Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Hi Dave, Welcome to the group I am sure you will find a lot of support and useful info on here. It is a godsend to me. I have had thyroid problems since 1992 when my thryoid was overactive, then in 1997 I had Radioiodine treatment and it went underactive. At the moment I am on 100 mcg of thyroxine and started treatment advised by Dr P about three weeks ago. This week I have started candida diet protocol, am starting t3 (Cytomel) and Nutri Thyroid, currently on x2 tabs of Nutri Adrenal Extra as Dr P thinks I have Adrenal Defiency. Take care, Ali <monsiergentil@...> wrote: > > I posted my history on here recently. No idea how to use the site. I > havent had any feedback. > > Dave > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Actually Jen and Dave - I think I am the guilty person for causing this problem. As you posted originally under New Member (I think) I changed the subject heading to read 'Dave - New member' and that probably caused the confusion. Talking of other 'males' Jen, do you get the feeling that yet more and more men are joining lately. Seems the incidence amongst men is growing. Luv - Sheila Hi Dave, welcome to the site, It is a bit fidderly to get used to, but hang on in here and you will be pleased you did. This is a very active forum and up to 2000 posts a month. If there were any replies to your post they will be linked under your original post. For example, if you click on the post I am responding to and look beneath, you will find this post and then any more added to it. It also appears in the order in which it was posted. There are many experienced people here who will hopefully be able to guide and support you. You will read some positive posts also of people who have been able to get their life back, one step at a time. One things that is for sure - you are not alone anymore............You may also be comforted to know that there are some other males on the forum as well. jennyfreeman ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Hi Dave, we are a buisy group so it may take some time to get a reply. we try to help others with thyroid problems as doctors don`t seem to have much time for us and are not upto date with their knowledge base .just ask a question and we will try are best to answer it. and you are welcome to give us information about what tests you have had and any tips on vitamins and supplements you find useful.go to our file and read all that is their so you can take control of you health. so you are seeing Dr P, you are in good hands and you will soon be able to advise us about being hyper and how you fill after your treatment.regards angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Hi, my name is Magdeline my baby is a near drowning since 01/12/08,what kind of therapy have you done, remember to try everything before you make any desicion, Were did you live? check Ray Cralle Physical Therapy he is great and he got great hands. Check him out or call him, he is in Delray Beach n Florida,., Magdeline > > Hi everybody. My name is Lannah and I'm 17 years old. I was born with > very mild left hemiplegia cerebral palsy, cleft lip/cleft palate, and > clubbed feet. They were able to correct the foot unaffected by the > cerebral palsy, but weren't able to correct the one affected with it. > I had minimal problems walking when I was little, but when I turned > ten I began having more problems. They put me in a wheelchair for long > distances, and when I turned 11, they did surgery to help me. I didn't > progress with therapy like they thought I would, and now I don't walk > that well at all. I knee walk around the house and it is damaging my > knees, so I am thinking about getting my foot amputated. I am hoping > to talk to someone who has had a leg/foot amputated before. I also > hope to make some friends who have similar problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 See my website for peer reviewed published studies, testimonials and more over 800 pages, Serving your needs since 1998 Rapid Recovery Hyperbarics www.hbot4u.com and CHT Underwood, DO, MD, JD hyperbaric1@... [ ] Re: New > > Hi, my name is Magdeline my baby is a near drowning since 01/12/08,what > kind of therapy have you done, remember to try everything before you > make any desicion, Were did you live? check Ray Cralle Physical Therapy > he is great and he got great hands. Check him out or call him, he is in > Delray Beach n Florida,., > > Magdeline > >> >> Hi everybody. My name is Lannah and I'm 17 years old. I was born with >> very mild left hemiplegia cerebral palsy, cleft lip/cleft palate, and >> clubbed feet. They were able to correct the foot unaffected by the >> cerebral palsy, but weren't able to correct the one affected with it. >> I had minimal problems walking when I was little, but when I turned >> ten I began having more problems. They put me in a wheelchair for long >> distances, and when I turned 11, they did surgery to help me. I didn't >> progress with therapy like they thought I would, and now I don't walk >> that well at all. I knee walk around the house and it is damaging my >> knees, so I am thinking about getting my foot amputated. I am hoping >> to talk to someone who has had a leg/foot amputated before. I also >> hope to make some friends who have similar problems. >> > > > > > ------------------------------------ > > " So I say to you: Ask and it will be given to you; seek and you will find; > knock and the door will be opened to you. For everyone who asks receives; > he who seeks finds; and to him who knocks, the door will be opened. " [Luke > 11: 9-10] > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Welcome, . I am so sorry to hear about Adam's diagnosis and the pain he is going through. I am not familiar enough with Kawasaki to give you any words of wisdom but want you to know that there are many moms here who share your struggle with their own children. Having our children on steroid type medications is a tough thing to accept but sometimes being aggressive early on can make a considerable difference later. But I do understand it's a double edged-sword (own daughter is on Methotrexate injections weekly). I hope you will find support here for yourself. Having children dx with chronic long-term illness is a devastating blow and we all need friends that know first hand what it feels like. Big hugs to you and Adam... -Hadley (Isabelle, turning 5 yrs. old next week , dx JRA age 2) > > Hello, > > My name is and my son is Adam. We are new to jra as of > October. Adam was hospitalized with Kawasakis disease in October. He > did not respond to treatments for Kawasakis and they went back and > forth for a long time about it being Kawasakis. It wasnt until after > he was released and an echo showed enlarged blood vessels that they > decided he had Kawasakis. His labs were slowly returning to normal and > we were backing off the steriods when on Christmas he woke up crying in > pain. His legs and hands were stiff. Then each morning his hands are > stiff he can barely move them. We went back to Childrens and his sed > rate was back up to 75. I am at a loss with all of this. The meds > seem extreme as he is still on steriods, Plavix and asprin. I need to > hear from other parents, any advise or ideas are welcome. Thank you > for your time. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 What side effects if any has she had on the this med? Â Thanks for your kind words From: hadley_messner <hmessner@...> Subject: Re: new Date: Sunday, January 11, 2009, 1:20 PM Welcome, . I am so sorry to hear about Adam's diagnosis and the pain he is going through. I am not familiar enough with Kawasaki to give you any words of wisdom but want you to know that there are many moms here who share your struggle with their own children. Having our children on steroid type medications is a tough thing to accept but sometimes being aggressive early on can make a considerable difference later. But I do understand it's a double edged-sword (own daughter is on Methotrexate injections weekly). I hope you will find support here for yourself. Having children dx with chronic long-term illness is a devastating blow and we all need friends that know first hand what it feels like. Big hugs to you and Adam... -Hadley (Isabelle, turning 5 yrs. old next week , dx JRA age 2) > > Hello, > > My name is and my son is Adam. We are new to jra as of > October. Adam was hospitalized with Kawasakis disease in October. He > did not respond to treatments for Kawasakis and they went back and > forth for a long time about it being Kawasakis. It wasnt until after > he was released and an echo showed enlarged blood vessels that they > decided he had Kawasakis. His labs were slowly returning to normal and > we were backing off the steriods when on Christmas he woke up crying in > pain. His legs and hands were stiff. Then each morning his hands are > stiff he can barely move them. We went back to Childrens and his sed > rate was back up to 75. I am at a loss with all of this. The meds > seem extreme as he is still on steriods, Plavix and asprin. I need to > hear from other parents, any advise or ideas are welcome. Thank you > for your time. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hello Judy, Try not to worry too much. I'm going to be starting treatment soon. Just had the results of a cat scan (no problems). I found out an interesting thing from the VA. Seems that I have the one (most common in the U.S.) type that is difficult to cure. It was allegedly only about 30% curable. The VA told me that they were finding exceptionally high cure rates amongst prisoners! So, they sifted through data and guess what? That tough type has about an 80% *cure* rate! Why the differences? The prisoners were controlled and had to take the medicine at the proper time and also couldn't smoke. So, I've been told I must quit smoking plus, when I start treatment, the medications must be taken within one hour of the same time when they are due. Follow this and expect an 80% cure rate. Hang in there, the picture isn't as bleak as it has been painted in the past. FWIW, I have a viral load around 300,000. I should be starting treatment in the next month. Best regards from Rochester, NY Jim new I just got through praying the ry. I am worried. My husband just told me that I had a transfusion with my son 25 years ago and I may have hepatitis c from what the doctor said but he took 2 more tests to find out how severe the hepatitis. I was in denial. I am scared. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hello Judy, Try not to worry too much. I'm going to be starting treatment soon. Just had the results of a cat scan (no problems). I found out an interesting thing from the VA. Seems that I have the one (most common in the U.S.) type that is difficult to cure. It was allegedly only about 30% curable. The VA told me that they were finding exceptionally high cure rates amongst prisoners! So, they sifted through data and guess what? That tough type has about an 80% *cure* rate! Why the differences? The prisoners were controlled and had to take the medicine at the proper time and also couldn't smoke. So, I've been told I must quit smoking plus, when I start treatment, the medications must be taken within one hour of the same time when they are due. Follow this and expect an 80% cure rate. Hang in there, the picture isn't as bleak as it has been painted in the past. FWIW, I have a viral load around 300,000. I should be starting treatment in the next month. Best regards from Rochester, NY Jim new I just got through praying the ry. I am worried. My husband just told me that I had a transfusion with my son 25 years ago and I may have hepatitis c from what the doctor said but he took 2 more tests to find out how severe the hepatitis. I was in denial. I am scared. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 hi judy,,,,,,first don't worry Stress wrecks havoc with the immune system that is already weak if you do have it. Have you had blood work done to see what geno type or what your viral load is? Has there been any tests done at all? If you have it your husband has it too. I need more info before I can give you any advice except to just calm down and get the tests done. Your child may be spared if the blood you recieved was tainted. I myself had a complete transfusuion in 1972 while in the Army after my ulcer ruptured. I myself am a veteran as well and the VA has done many vets wrong. I tested positive in 1999 at my VA medical center. It was 2004 before anyone told me or refferred me for treatment. Luck was with me because during that period I was very sick for months. My body cleared the virus partly due to my life changes such as quiting smoking and drinking and eating healhty along with vitamins and fruits. So just wait for the results and you and your husband have got be together on this one. All I want you to do is research the medicines available and side effects that can be worse than the disease itself. Just find a quiet place and meditate on your self you can overcome this disease. I did it without the meds, but not everyone can clear the virus by themselves. My cousin had to take the treatments and he came thru with flying colors and there are others that can share their stories who have over come. Peace love and Light ,,,,,, ===================== Posted through Grouply, the better way to access your like this one. http://www.grouply.com/?code=post Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 hi judy,,,,,,first don't worry Stress wrecks havoc with the immune system that is already weak if you do have it. Have you had blood work done to see what geno type or what your viral load is? Has there been any tests done at all? If you have it your husband has it too. I need more info before I can give you any advice except to just calm down and get the tests done. Your child may be spared if the blood you recieved was tainted. I myself had a complete transfusuion in 1972 while in the Army after my ulcer ruptured. I myself am a veteran as well and the VA has done many vets wrong. I tested positive in 1999 at my VA medical center. It was 2004 before anyone told me or refferred me for treatment. Luck was with me because during that period I was very sick for months. My body cleared the virus partly due to my life changes such as quiting smoking and drinking and eating healhty along with vitamins and fruits. So just wait for the results and you and your husband have got be together on this one. All I want you to do is research the medicines available and side effects that can be worse than the disease itself. Just find a quiet place and meditate on your self you can overcome this disease. I did it without the meds, but not everyone can clear the virus by themselves. My cousin had to take the treatments and he came thru with flying colors and there are others that can share their stories who have over come. Peace love and Light ,,,,,, ===================== Posted through Grouply, the better way to access your like this one. http://www.grouply.com/?code=post Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2009 Report Share Posted March 16, 2009 hi melissa, I've 5 y/o son also diagnosed of cholesteatoma. This 26 March i will see the doctor in Singapore to discuss the detail of the operation procedure, and by the way i'm in jakarta-indonesia. Very sad that this is happenning to our children but we have to be strong especially in front of them. I will let you know what the doctor will be saying just for your input. And what the doctor going to do with your son. johanes > > Hello, > My 4 y/o son was diagnosed last wk with a cholesteatoma in his left > ear. Found this group and am happy to have the information and support. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 > > I am an IT person and addicted to computers also . I love computers and game, my children love them too. This is not addiction, this is simply using computers a lot. Getting a lot of use out of something is not the same as being addicted to it. Addiction is when you are doing something destructive to your life. It is compulsive and beyond one's control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Thank you! I agree, my daughter is extremely smart, and the computer is definitely something she is comfortable with, she has friends on the computer and can act anyway she wants to act without the fear of being made fun of. The downfall is that this is the only thing she wants to do. I want her to be albe to interact at family functions and to do things like read books, go for walks outside, and things like that. But when I let her have all the time she wants on the computer, that is the only thing she wants to do. I can't get her to do anything else. I'm hoping by restricting her time she'll be able to explores other things and be able to be socially active with at the least her family. I've always thought that since my daughter is technologically inclined on the computer that she will grow up to have a wonderful job that she loves, by doing something with computers. I do think her speding time on the computer definitely has its advantages too. Again, thank you for your reply, I really appreciate it! > > > > Hi, > > I think that you daughter is very smart and she will be very successful if you guide her computers skills positively > > > I am an IT person and addicted to computers also . I love computers and game, my children love them too. > > . > I watch the news in my pc, I socialized in my pc, I do my banking in my pc, etc. > > > In the computer world everybody belongs to the same race, everybody wears the same clothing. Nobody call you “weirdâ€. People accept you the way you are… > I express myself better using a pc because I am not afraid of the possibility of people disliking me because of my look or color. > > > I introduced my children to the computer world and now they are addicted to games, computers, phone, etc. > My son is 22 and when we see each other we play games together, sometimes we search web sites to learn how to play the guitar and also we watch movies in our pc. > > Using the pc my son learned to play the guitar; I learned how to program in VB and how to set up my web page for my business and how to run an internet business. > Using the pc my daughter learned math and to play the clarinet. > Using the pc I met the most wonderful friend I have in my life. > Using the pc I keep contact with my family from Dominican Republic . > > > I buy games for my daughter, playing those games she had learned to dance, to be patience and to do well in math... > > > I do not see anything wrong with using a pc or playing games all the time. > > The bad aspect is the social effects that computers could cause in some people, but in my situation I have not time to be social. > > My aspergers girl sooths herself playing computers games. When she plays a game she abstracts herself and travel to a place where she is accepted as she is, where being “weird†is acceptable and sometimes “coolâ€. > > > > I also always keep track and monitor the web sites she goes to and she is well train on internet securities. > > > ( ) New > > Hello Everyone! > My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated. > I am really looking forward to being back on this support group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Hi! Yes, there are many, many good uses for the computer...I will say that....but like you said you monitor your child....I am not too sure how I can? Maybe I need to learn more...what I worry about is that my son doesn't want to do anything educational...he'll go on myspace or youtube ...rarely does he go to educational sights...and I worry what they are saying to each other on aim....or when they are texting. My son is a follower...and he gets things mixed up...say it jokingly when it should never have been said. I am so afraid that some father is going to come here and/or press charges. I also want my son to get exercise...I don't want him inside all day. And, I do want my son to learn how to socialize....hopefully one day he will be working in the real world. Jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: tfitzge134@... <tfitzge134@...>Subject: Re: ( ) New Date: Monday, July 20, 2009, 2:09 PM Hi, I think that you daughter is very smart and she will be very successful if you guide her computers skills positively I am an IT person and addicted to computers also . I love computers and game, my children love them too. .. I watch the news in my pc, I socialized in my pc, I do my banking in my pc, etc. In the computer world everybody belongs to the same race, everybody wears the same clothing. Nobody call you “weirdâ€. People accept you the way you are… I express myself better using a pc because I am not afraid of the possibility of people disliking me because of my look or color. I introduced my children to the computer world and now they are addicted to games, computers, phone, etc.My son is 22 and when we see each other we play games together, sometimes we search web sites to learn how to play the guitar and also we watch movies in our pc.Using the pc my son learned to play the guitar; I learned how to program in VB and how to set up my web page for my business and how to run an internet business.Using the pc my daughter learned math and to play the clarinet.Using the pc I met the most wonderful friend I have in my life.Using the pc I keep contact with my family from Dominican Republic . I buy games for my daughter, playing those games she had learned to dance, to be patience and to do well in math...I do not see anything wrong with using a pc or playing games all the time.The bad aspect is the social effects that computers could cause in some people, but in my situation I have not time to be social. My aspergers girl sooths herself playing computers games. When she plays a game she abstracts herself and travel to a place where she is accepted as she is, where being “weird†is acceptable and sometimes “coolâ€. I also always keep track and monitor the web sites she goes to and she is well train on internet securities. ( ) NewHello Everyone!My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated.I am really looking forward to being back on this support group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 I agree with both sides...computers are good but they also can be bad....I find kids at school say whatever they wnat on mySpace....they tell lies or mean things to each other...and this is when it becomes harmful... I have seen fights at school over things said on MySpace. I feel we are losing human contact...that we all could live in little bubbles...never see each other face to face and survive. I guess this could be good for some ...but not the entire world. It is confusing me alot...and I do worry because my son is 13 going on 19 but sometimes he is 5 or 6. I have already had one mother call me because my son called her a slut ...why...because she broke up with his best friend...and of course the girls had to run to the assit. principal....OMG...it is okay the things they do or say to my son...but my son does something and they are up in the office in 2 seconds. And, to beat it all, he was angry becuase she hurt his best friend...he thought he was right...he was protecting his friend. And, this is how my son always gets in trouble....he just doesn't get the whole social thing...and I could tell him why this way wrong etc. ....and practice it but then something else pops up and he is back in trouble...like when he told the girl to stop making fun of his other friend and if she didn't he would spit in her hair...she didn't stop, so he spit in her hair...he warned her....and of course the girls ran to the offce and tattled on him....it was one heck of a year.....they borrowed his good hoodie...fuzzy inside and I paid a lot of money for it ...and then they never gave it back...it disappeared...and somehow the girl didn't have it. And, get this...she did bring back 2 of his other less expensive jackets. And, then the mother calls the school guidance office and tell them to tell my son to stop giving the girls his jackets. They ask him to wear it ...and he lets them even after I told him not to do it. He even let the girl he hates wear his good one and now he doesn't have it any more. It is gone and he doesn't seem to care...and has not learned anything. Well, I told him I am not buying another one. He loans things out, doesn't keep track of them or ask for the items back. So, I told him,,,,i am done buying...if he wants something he needs to earn it. Well, I have gotten off track....I agree with both sides and I think I need to limit him...he is such a different kid when he is not on Xbox, computer or texting. He just can not handle the social scene....even though he wants to be in it... Jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: marypetrovic <marypetrovic@...>Subject: Re: ( ) New Date: Monday, July 20, 2009, 2:51 PM Thank you! I agree, my daughter is extremely smart, and the computer is definitely something she is comfortable with, she has friends on the computer and can act anyway she wants to act without the fear of being made fun of. The downfall is that this is the only thing she wants to do. I want her to be albe to interact at family functions and to do things like read books, go for walks outside, and things like that. But when I let her have all the time she wants on the computer, that is the only thing she wants to do. I can't get her to do anything else. I'm hoping by restricting her time she'll be able to explores other things and be able to be socially active with at the least her family.I've always thought that since my daughter is technologically inclined on the computer that she will grow up to have a wonderful job that she loves, by doing something with computers. I do think her speding time on the computer definitely has its advantages too.Again, thank you for your reply, I really appreciate it! >> > > Hi, > > I think that you daughter is very smart and she will be very successful if you guide her computers skills positively > > > I am an IT person and addicted to computers also . I love computers and game, my children love them too. > > . > I watch the news in my pc, I socialized in my pc, I do my banking in my pc, etc. > > > In the computer world everybody belongs to the same race, everybody wears the same clothing. Nobody call you “weirdâ€. People accept you the way you are… > I express myself better using a pc because I am not afraid of the possibility of people disliking me because of my look or color. > > > I introduced my children to the computer world and now they are addicted to games, computers, phone, etc. > My son is 22 and when we see each other we play games together, sometimes we search web sites to learn how to play the guitar and also we watch movies in our pc. > > Using the pc my son learned to play the guitar; I learned how to program in VB and how to set up my web page for my business and how to run an internet business. > Using the pc my daughter learned math and to play the clarinet. > Using the pc I met the most wonderful friend I have in my life. > Using the pc I keep contact with my family from Dominican Republic . > > > I buy games for my daughter, playing those games she had learned to dance, to be patience and to do well in math... > > > I do not see anything wrong with using a pc or playing games all the time. > > The bad aspect is the social effects that computers could cause in some people, but in my situation I have not time to be social. > > My aspergers girl sooths herself playing computers games. When she plays a game she abstracts herself and travel to a place where she is accepted as she is, where being “weird†is acceptable and sometimes “coolâ€. > > > > I also always keep track and monitor the web sites she goes to and she is well train on internet securities. > > > ( ) New > > Hello Everyone! > My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated. > I am really looking forward to being back on this support group!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 I have a son, , who is 12 and is on the computer all the time. AGG. He does seem to have a few friends who are like-minded. I have to work to get him outside, but he WILL go out and then has a good time. Mostly, he wants to be on the computer. UGH. Miriam > > Hello Everyone! > My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated. > I am really looking forward to being back on this support group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 It's not always a bad thing, you know. My 20 yo was just like that once we got connected to the internet. He prefers to be on the computer. He has HFA and is not good with people overall. So trying to make him change is not something that could be done. Sure, we did social skill programs, speech therapy for many years...he just will never be a people person. I don't think you should give up trying to find a balance in life for the kids, but if you are starting out with a kid who is so off balance, you might eventually realize that what is considered "balanced" for NT kids is not the same for your kid, who has special needs and ways of dealing with things. The trick is to find a "balance" that suits the child, not a balance that is considered "NT" by most people. So work with that in mind. My ds later attended a computer program for two years and he excelled in it and got several professional certifications already. He finished at the top of his class. He got in the top ten in a national competition. He will be making computers his job in life. So in looking back, I think I freaked out more than I should have. I don't always believe that these games are good places to learn social skills - that's something you should attempt in real life. <g> But also work with the child's strengths as you go along. Roxanna "The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke ( ) Re: New I have a son, , who is 12 and is on the computer all the time. AGG. He does seem to have a few friends who are like-minded. I have to work to get him outside, but he WILL go out and then has a good time. Mostly, he wants to be on the computer. UGH. Miriam > > Hello Everyone! > My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated. > I am really looking forward to being back on this support group! > An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 welcom keinne. what sort of herbal treatment you are getting.,explain in details. swammy From: key_adamcomer <key_adamcomer@...>Subject: [ ] new Date: Wednesday, August 19, 2009, 12:27 AM Just wanted to say hi to all. i'm new here but i've been hepC+ for about 2 years now. no treatments as of yet. I take a herbal supplement and have been pretty lazy about any sort of specific treatment. anyway, just wanted to introduce myself. My names keianne by the way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 Hi, I've been using LDN for my Hepatitis C virus with great results - I also have fibromyalgia, RA, Sjogren's, and IBD. Started using 3 mg. LDN in February and today am feeling much, much better! My viral load dropped, fibro is 100% better, RA and Sjogren's levels dropped and my IBD has gone away. I also am on a gluten/dairy free diet which alone helped the IBD. I saw Dr. Berkson who put me on the LDN - here is one of his presentations from the recent LDN Conference - this video is about LDN and Lupus: RA - SLE (Lupus) - 5) Good luck - hope this helps! Nola Chris In a message dated 12/26/2009 1:36:34 P.M. Central Standard Time, valentinaeugenia@... writes: Thank you very much for the info, it helps tremendously to know that other people lupus are taking LDN and feeling better. Please other people with lupus and on LDN let me know how you feel and what you think of LDN. Thank you so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Hi Caz: My name is . I am from England too. I live in America. You do not say where you live now. That is ok. We can gain perspective with different places we have grown up in. I am 50 years old. I forget that this email thing can be so un private. No response on your part, I would of course be understandable by me. ( ) New hi i'm new here i am caroline nickname caz, 25years old i like to meet some others like me, i am from england take care hope to chat to some of you soon and to get to now you, caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Hi , I am a mom who just started this process about a week ago and my 22 month old is going through it with me as well. I take my coconut oil on a teaspoon and just eat it straight. I started with 1/8 tsp 3 times a day and have slowly progressed as I feel I am able to. Once I can handle enough I will start to cook with it but for now in such small amounts it is easier to take it straight. So the simple quick step, for those of you who started out using coconut > oil, how did you take it? Straight on a spoon? I use coconut oil on my face > to clean it, and I notice the nights I do this I wake up with a horrible > taste in my stomach, which I know is die-off related so I'm a bit scared to > try ingesting it. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 I mainly just eat the CO from a tbl spoon with each meal if the die off isn't to severe that day. Also I rub about a tbl CO on to my skin after a hot bath to help my skin from being so dry. “To eat is a necessity, but to eat intelligently is an art.†- La Rochefoucauld  April Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Thanks for the tip ! Hope all is well with your LO as well. Ours was pretty easy to get under wraps because she was on breastmilk for almost a year and only on solids for 4 months or so before we knew what was happening. After a few weeks of treatment and diet change, she was back to normal. We changed both of their diets though, because why torture myeslf more! One probiotic pill last year had me sick in bed for a week. So I know I have lots and lots to learn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 > > Hello all, I just wanted to introduce myself. My name is and I'm a mom to two little ladies who are 22 months old. +++Hi . Welcome to our group. That's wonderful you have twin girls! One of my daughters had/has candida and we were able to combat it. However after further reading, it seems that if the child has it, it is likely the mother has it. So after reading about some symptoms in adults, it matched me to a T. So here I am. I tried going straight to probiotics in the fall, but had horrible horrible die off symptoms so I obviously wanted to start slower and do it right this time. I'm looking forward to learning more and getting started. > > So the simple quick step, for those of you who started out using coconut oil, how did you take it? Straight on a spoon? I use coconut oil on my face to clean it, and I notice the nights I do this I wake up with a horrible taste in my stomach, which I know is die-off related so I'm a bit scared to try ingesting it. +++Ensure you start with small amounts, like 1 teaspoon with meals 3 times a day, and increase it slowly. Many people take it by the spoonful, particularly in the beginning since they shouldn't take too much. Many people like Bee's Egg Drink for breakfast, and then take CO by spoonfuls at lunch and dinner time. +++Of course the diet and taking supplements are most important! +++Please ensure you read two important articles so you understand candida, and know what you need to do and why: 1) How to Successfully Overcome Candida http://www.healingnaturallybybee.com/articles/intro2.php 2) Curing Candida, How to Get Started http://www.healingnaturallybybee.com/articles/intro1.php For encouragement and inspiration see these wonderful Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
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