New

[Guest guest]

Hi D

The Hepatitis C group is undergoing new management and SPAM cleanup, so is basically a 'notification only' group at this time.

Please come over to our main group, the .

http://health.dir./group/ / <--- click here

In the group the forum is active, and we have a HUGE Links Library of information for your use on all aspects of HCV.

We also post Daily News and helpful Articles to keep you up on the latest information.

I am sorry for the inconvience.

love

don in ks

From: dbrown715907 <dbrown715907@...>Subject: newHepatitis C Date: Friday, March 5, 2010, 9:32 PM

Hello I am 30 years old and have hep c. I will be starting pegasys treetment in 3 weeks and dont know what to expect, I read the side effects and I must say they scared the crap out of me. Just here looking for people that have beem there. Thanks I have gyno type 1a if that helps------------------------------------

[Guest guest]

,

I had my first knee done Nov 10, 09. By March 1st, 10 I was very recovered and

getting ready for the second knee. The first one I did have done was my left

knee and that made driving easier but the second one and right one was done and

by a month and a half I was driving. What you can do to help yourself is to

start an exercise program now. The more you strengthen your leg before hand the

less you will do later.

I would read the " Book " Ahead of time too. And I assume you are doing minimally

invasive surgery? If not you will want to find someone who can do that for you.

The more you see your GP and have him build up you physical body so you take as

healthy a body as possible into surgery.

And I would be very clear in the hospital after surgery, that you are getting

your knee iced constantly. I believe it makes it much easier. If you have a

friend who is coming with you give them the job of tracking down ice and all you

need. If not, I would find someone.

Good luck!

Donna R

New

Hi my name is (49 years old). I am schuduled(May 18) for a total knee

replacement on my right knee. I'm looking for hints and tips about what to

expect. I'm nervous about this surgery, but know I have to have it. My

biggest concern is that I am a full time student. I begin Student Teaching in

Aug. I MUST be completely healed and mobile by then. My doctor assured me

this should not be a problem.

Thank you!!!

[Guest guest]

Thanks for the advice Donna!!! My sister works in a rehab facility she said I

should start exercising to prepare. I see the PT tomorrow so I intend to ask

about exercises

Sent from my Verizon Wireless BlackBerry

New

Hi my name is (49 years old). I am schuduled(May 18) for a total knee

replacement on my right knee. I'm looking for hints and tips about what to

expect. I'm nervous about this surgery, but know I have to have it. My

biggest concern is that I am a full time student. I begin Student Teaching in

Aug. I MUST be completely healed and mobile by then. My doctor assured me

this should not be a problem.

Thank you!!!

[Guest guest]

Hello Latasha, and welcome to our group!

You should have been emailed some important articles when you joined the group.

I know they are quite long and detailed, but they contain information that will

answer most of your questions, so make sure you read them. We're here to help

you out from there

Best in health,

andra, a group moderator

Hi, I got my diagnosis today...Candida. It looks like I have a lot of work

ahead of me. I am getting ready to go to bed but while searching for something

to eat for breakfast, I came across this group. I look forward to getting and

giving support!!

Latasha

[Guest guest]

Welcome to the group. What shall we call you?

As I understand you, nothing has been firmly diagnosed. I don't know much about

PBC or overlap, but others in the group will have better information about these

conditions.

Have you had a biopsy?

When you say you're taking steroids, you mean prednisone or prednisolone. What

dosage? Are you taking azathioprine or a similar immunosuppressant with that? If

not, why not?

Are you taking a calcium supplement? Calcium with vitamin D is important with

corticosteroids.

Has the itching abated?

Are you in Great Britain?

Best wishes.

Harper

AIH dx 2000; in remission

[ ] New

Hi everyone,

I just joined and wanted to introduce myself. I am 42, have had abnormal

function tests for 8 years and then started itching and fatigue about this time

last year.

My hepatologist has 'sort of' diagnosed me with pbc last december, and also

thinks I have overlap AIH. My biopsy has not been able to confirm.

I started on urso and that took my alp figures down from 1100's to 300's but

then back up to 500, so he started me on a trial of steroids which bought it

down in the 200's.

But he isn't sure as I also started on vitamin D (adcal) and he said sometimes

that can bring ap down!

I gained a stone so far on the steroids and really need to lose weight!

I am so confused.

S x

[Guest guest]

Hi Harper,

My name's Steph

Thanks for your reply. I had a biopsy about 7 years ago and another last

December.

Yes 30mg pred, for 4 weeks, and now reducing by 5mg a week. He has tested me to

see if I can have another drug which I think is Aza, and will find out when I go

back in 3 weeks. Yes I have vitamin D deficiency and doc has given me A,D and

Calcium tablets. He is rechecking my levels and says I may need an injection.

The itching did get better on urso, but then flared up again when my results

went back up. Much better since being on the steroids though

I live near London, UK. It would be lovely to speak to other people with the

same thing.

Thanks so much for your lovely welcome. I was feeling very low yesterday, but

today I feel much better and it's lovely to chat to folk about this.

Steph x

[ ] New

Hi everyone,

I just joined and wanted to introduce myself. I am 42, have had abnormal

function tests for 8 years and then started itching and fatigue about this time

last year.

My hepatologist has 'sort of' diagnosed me with pbc last december, and also

thinks I have overlap AIH. My biopsy has not been able to confirm.

I started on urso and that took my alp figures down from 1100's to 300's but

then back up to 500, so he started me on a trial of steroids which bought it

down in the 200's.

But he isn't sure as I also started on vitamin D (adcal) and he said sometimes

that can bring ap down!

I gained a stone so far on the steroids and really need to lose weight!

I am so confused.

S x

[Guest guest]

I hope you'll have an azathioprine toxicity test. A small percentage of people

have a genetic? condition that prevents them from taking aza or allows only a

certain amount.

If you don't tolerate aza, there are other steroid-sparing immunosuppressants.

They can greatly reduce the amount of Prednisone needed.

Itching doesn't always occur with liver disease. For me, it was intense until I

began to heal. If itching is a problem, let me know and I'll send you a YouTube

made by my hep; she speaks of things that help liver itch.

I found that patting with plain cornstarch helped; baby talc was too abrasive at

the time, and anti-itch powders stung. Keep as cool as possible (no hot

showers). Wear smooth, light clothing. A lambs wool duster sometimes felt good,

as did an electric fan.

I found that Atarax made me itch much less. My doctor said it was safe for liver

patients. It does cause severe sleepiness at first, but that was a benefit.

My hepatologist, Dr. n s at UCSF, speaks of other pharmacological aids

in her YouTube; I can't remember their names right now. She also says that

Eucerin Cream (not lotion) is topically soothing.

Best wishes.

Harper

AIH dx 2000

CD dx 2002

Re: [ ] New

Hi Harper,

My name's Steph

Thanks for your reply. I had a biopsy about 7 years ago and another last

December.

Yes 30mg pred, for 4 weeks, and now reducing by 5mg a week. He has tested me to

see if I can have another drug which I think is Aza, and will find out when I go

back in 3 weeks. Yes I have vitamin D deficiency and doc has given me A,D and

Calcium tablets. He is rechecking my levels and says I may need an injection.

The itching did get better on urso, but then flared up again when my results

went back up. Much better since being on the steroids though

I live near London, UK. It would be lovely to speak to other people with the

same thing.

Thanks so much for your lovely welcome. I was feeling very low yesterday, but

today I feel much better and it's lovely to chat to folk about this.

Steph x

[ ] New

Hi everyone,

I just joined and wanted to introduce myself. I am 42, have had abnormal

function tests for 8 years and then started itching and fatigue about this time

last year.

My hepatologist has 'sort of' diagnosed me with pbc last december, and also

thinks I have overlap AIH. My biopsy has not been able to confirm.

I started on urso and that took my alp figures down from 1100's to 300's but

then back up to 500, so he started me on a trial of steroids which bought it

down in the 200's.

But he isn't sure as I also started on vitamin D (adcal) and he said sometimes

that can bring ap down!

I gained a stone so far on the steroids and really need to lose weight!

I am so confused.

S x

[Guest guest]

I found text showing my hep's pruritis recommendations:

PruritisProtocol

Dr. n s, Professor of Medicine, Division ofGastroenterology at UCSF

shared the following information at the Northern CaliforniaPBC/PSC meeting on

Saturday, May 13th. (2006?)

Itching, or pruritus, in patients with liver disease can beextremely

uncomfortable. It occurs when bile salts that are not being normallyexcreted.

The bile salts irritate the skin cells resulting in pruritus. Thefollowing

measures have been found successful in decreasing pruritus either bystabilizing

the skin cells or by assisting in the excretion of bile.

Measures are listed below in order of the doctor’s preference.

Measures 1-6 ALL should be taken together:

1. Decrease water temperature of shower or bath.

2. Use a moisturizing soap such as Dove. Avoid deodorant soaps.

3. Don’t dry off completely after shower/bath.

4. Aftershower/bath, while skin is still damp, apply EUCERIN CREAM to all skin

that isitching. EUCERIN CREAM can be bought almost anywhere (Walgreens,

Wal-Mart,K-Mart, etc.) Eucerin has the newEucerin Calming in cleanser and

lotion.

5. Wearfewer/lighter clothes.

6. Sleep withfewer clothes and blankets.

7.Cholestyramine powder (Questran, Cholestipol), a prescription medication

thatbinds with bile salts in the intestine to decrease the absorption of

bilesalts, is taken one scoop/packet twice a day initially and may be increased

toa total of six scoops/packets a day. Mix with water, tea, soda, or juice.

Mostcommon side effect is bulky stools and constipation.

All other medicines should betaken one hour before and four hours after

taking Questran.

IF YOU ARE TAKINGURSODEOXYCHOLIC ACID OR IMMUNOSUPPRESSANTS, TALK TO YOUR

DOCTOR BEFORE TAKINGTHIS MEDICATION as taking them together will decrease both

drug effects.

8. Doxepin is aprescription medication. It is given at a very low dose (10-20

mg) forpruritus. Since this medication may cause drowsiness, it should be taken

onlyat bedtime. This medication can cause side effects; however, the dose given

forpruritus is extremely low, and incidence of side effects is rare. Check

withyour physician for interactions and precautions. (Aside: Doxepin is

normallyused as an antidepressant.)

9.Ursodeoxycholic acid is useful in patients with some cholestatic

liverdiseases:PBC 15 mg/kg/day, PSC 20 mg/kg/day qhs.

[Guest guest]

HI Harper,

Yes, a TPMT? test.

Your information is very helpful, thanks so much.

Steph

[ ] New

Hi everyone,

I just joined and wanted to introduce myself. I am 42, have had abnormal

function tests for 8 years and then started itching and fatigue about this time

last year.

My hepatologist has 'sort of' diagnosed me with pbc last december, and also

thinks I have overlap AIH. My biopsy has not been able to confirm.

I started on urso and that took my alp figures down from 1100's to 300's but

then back up to 500, so he started me on a trial of steroids which bought it

down in the 200's.

But he isn't sure as I also started on vitamin D (adcal) and he said sometimes

that can bring ap down!

I gained a stone so far on the steroids and really need to lose weight!

I am so confused.

S x

[Guest guest]

Yes, TPMT.

http://dtb.bmj.com/content/47/1/9.abstract

Azathioprine has been in use for decades as an immunosuppressant treatment for

various autoimmune diseases. It is a prodrug of mercaptopurine, a substance that

is subsequently metabolised by several alternative pathways, one of which

involves the enzyme thiopurine methyltransferase (TPMT). Some people have

deficiency of TPMT because of genetic mutations. This has been widely said to

occur in around 3 in 1,000 individuals;1 however, studies in recent years have

suggested a prevalence of up to 6 in 1,000.2,3 These people are at great risk of

developing severe, potentially life-threatening bone marrow toxicity when

treated with conventional doses of azathioprine or mercaptopurine. It is

possible to test patients for TPMT activity before starting treatment with these

drugs. Here we review the evidence about such testing, and discuss whether it

should be used for patients being considered for azathioprine therapy.

Re: [ ] New

HI Harper,

Yes, a TPMT? test.

Your information is very helpful, thanks so much.

Steph

[ ] New

Hi everyone,

I just joined and wanted to introduce myself. I am 42, have had abnormal

function tests for 8 years and then started itching and fatigue about this time

last year.

My hepatologist has 'sort of' diagnosed me with pbc last december, and also

thinks I have overlap AIH. My biopsy has not been able to confirm.

I started on urso and that took my alp figures down from 1100's to 300's but

then back up to 500, so he started me on a trial of steroids which bought it

down in the 200's.

But he isn't sure as I also started on vitamin D (adcal) and he said sometimes

that can bring ap down!

I gained a stone so far on the steroids and really need to lose weight!

I am so confused.

S x

[Guest guest]

First of all, I hear horror stories about Alabama and getting help there, especially with IEP's and the school systems. They have their own 'Alabama Code' that you have to follow that outweighs the Federal one.Medications: There arent medications for Aspergers, but my son has epression and anxiety, whichh he takes Lexapro 20 mg for, ADHD which he takes 36 mg Concerta, and trouble sleeping which he takes Abilify for (a low dose). He also hass Oppositional defiance disorder, OCD, tic disorder, and other mixed diagnoses that exacerbate (make worse) the symptoms of Asperger's.My son is 12.5, but maturity level is 8.5. Asperger kids are usually 2/3 their maturity level for their age. Don't expect him to 'act' like an 11 year old. Always

stay calm. Everyone needs a break sometime throughout the day, say "We need a break, go do what you want to do for 15 minutes and I will do the same." Walk away and pick up the task again in 15 minutes.Take a breather and medications dont always work unless you have worked with a psychiatrist nonstop for about 2 years to come up with the right 'soup' for your child. They may recommend other forms of modification. Remember - it isnt your child's fault. These behaviors are out of his control.For more information, please visit my website at www.TheAspergerChild.org I am the President and will find answers if I dont already have them available to me. BaerFrom: tammy_mcburnett <McB3BTH@...> Sent: Sat, June 19, 2010 12:49:15 PMSubject: ( ) new

hello I live in alabama my son has aspergers. He is 11 years old. we have lost out patients with him. He worries, hates changes, only loves tractors, get upset when made fun of. does not have no social skills etc. can some one tell me any medications help he takes focalin xr 30 mg zolfot any recommedtion?my patient is running very low i live in alabama

[Guest guest]

I live in alabama too. Lamictal has helped my son.Sent on the Sprint® Now Network from my BlackBerry®From: "tammy_mcburnett" <McB3BTH@...>Date: Sat, 19 Jun 2010 16:49:15 -0000< >Subject: ( ) new hello I live in alabama my son has aspergers. He is 11 years old. we have lost out patients with him. He worries, hates changes, only loves tractors, get upset when made fun of. does not have no social skills etc. can some one tell me any medications help he takes focalin xr 30 mg zolfot any recommedtion?my patient is running very low i live in alabama

[Guest guest]

Yes I sent you an email. I am posting this because other have had teh

same question.

So the files section Folder # 2 will give you a list of books.

This message of instructions shall repeat every so often and be sent to newbies

in the group.

Jeanetta Mastron CPhT BS

Founder/Owner

>

> Hello,

>

> I happen to find this site while searching online and I'm looking forward to

continue using the site.

>

> I'm planning on taking the PTCB test in a couple of months and was wondering

if there are any suggestions for a good test prep book.

>

> I've PharmacyTrainer from another site.

>

> Any info would be great

> Thanks

> -

>

[Guest guest]

File #2 has a list of study books and guides that have been reviewed by me and

with my ratings.

 

Jeanetta Mastron CPhT BS

F/O

From: Jeanetta Mastron <rxjm2002@...>

Subject: Re: New

Date: Thursday, July 22, 2010, 9:08 PM

Yes I sent you an email. I am posting this because other have had teh

same question. 

So the files section Folder # 2 will give you a list of books.

This message of instructions shall repeat every so often and be sent to newbies

in the group.

Jeanetta Mastron CPhT BS

Founder/Owner

>

> Hello,

>

> I happen to find this site while searching online and I'm looking forward to

continue using the site.

>

> I'm planning on taking the PTCB test in a couple of months and was wondering

if there are any suggestions for a good test prep book.

>

> I've PharmacyTrainer from another site.

>

> Any info would be great

> Thanks

> -

>

------------------------------------

[Guest guest]

>

> wow, I just joined this group because for years I have been plauged with my

body basicly shutting down, someone told me about Candida and how yeast can

affect the body and I have every sympome of it, have not been officially

diagnosted yet, been to sooo many doctors and all they say is I dont know and

throw their hands up, until I begged my last doc to send me to a specialist, I

have a hard time eating without it commin back up and cronic diarrea, so she

sent me to an intternalist I had a endoscope and he noticed my stomach is not

empying, so he sent me to another specialist and he did a nucular test and was

able to watch my food go down and it just sat.

+++Hi there. Welcome to our group. The main reason your stomach doesn't empty

like it should is because of fibres, which are mainly caused by consuming

grains, nuts, seeds and legumes (peas & beans that are grown in pods) of any

kind. Also raw vegetables contribute because our bodies are not capable of

digesting cellulose (the cell walls of all plant foods, including grains).

Carbs are any foods not classified as protein and fat.

I have no energy, have a hard time just walking from one room to another, my

heart starts pumming way to fast and I get dizzy, my blood presure is to low and

the doc dont know why but wont find out what is going on, I am in the proccess

of getting another doctor and hoping this one will test me for Candida, I also

have Gluten intollorance and If i end up haveing both Candida and Gluten

intolorance I have no idea what I will be able to eat.

+++There's plenty of foods you can eat, and my program doesn't include grains or

legumes of any kind nor raw vegetables (all vegetables must be thoroughly

cooked) as explained in this article:

http://www.healingnaturallybybee.com/articles/veg3.php

+++Of course there are no sugars on my program either, including fruits, except

for lemons and limes.

It is very frustrating. I am very accident pron and notice that I am bruising

very easy and my bones hurt so bad I have trouble sleeping at night. I forget

what I am saying and have a hard time concentrating. Sometimes the floor feels

like I am on a boat and it rocks back and forth, then of course it adds to my

feeling sick and I get very nausious. It feels like every day I feel worse and

worse.

+++There are many people on this group who totally understand what you are going

through, including myself.

Befor I found out I was gluten intolarent I was eating just wheat pasta, bread,

exc.. and wondering why I was getting more sick, then found out wheat had to be

cut completly out of diet and I thought i would get better, but now looks like I

have both the Candida and the gluten intolorance.

+++Gluten is unhealthy for anyone, not just people who have candida.

Sorry so leanghly just very frustrated but in a way happy to find this group and

hopefully get my health back. I am 32 years old and i swear it feels like I am

80 something. I also get very angry for no aparent reason, my mood changes so

often, I will be angry one minute, then start crying, then be extreamly tired,

rarly am I happy any more. Would like to get back to my happy, chearful self

again.

+++You can get healthy again like many others who follow my program. For

encouragement and inspiration see these wonderful Success Stories by members of

this group: http://www.healingnaturallybybee.com/success/index.php

+++Please ensure you read two important articles so you know what you need to do

and why:

How to Successfully Overcome Candida:

http://www.healingnaturallybybee.com/articles/intro2.php

Curing Candida, How to Get Started:

http://www.healingnaturallybybee.com/articles/intro1.php

This program isn't just for curing candida, since it is an overall healing

program that improves anyone's health, which you will understand after reading

more.

Your journey towards health starts by reading and learning.

The best in health, Bee

[Guest guest]

welcome to the group;-) the mood swings are the WORST! you are going to be

wonderful, just follow bee's directions. it will be a lot of work especially if

coming straight out of SAD. thankfully i have been following weston a price for

awhile now. good luck and stay strong!

blessings,

shannon

>

> wow, I just joined this group because for years I have been plauged with my

body basicly shutting down, someone told me about Candida and how yeast can

affect the body and I have every sympome of it, have not been officially

diagnosted yet, been to sooo many doctors and all they say is I dont know and

throw their hands up, until I begged my last doc to send me to a specialist, I

have a hard time eating without it commin back up and cronic diarrea, so she

sent me to an intternalist I had a endoscope and he noticed my stomach is not

empying, so he sent me to another specialist and he did a nucular test and was

able to watch my food go down and it just sat. I have no energy, have a hard

time just walking from one room to another, my heart starts pumming way to fast

and I get dizzy, my blood presure is to low and the doc dont know why but wont

find out what is going on, I am in the proccess of getting another doctor and

hoping this one will test me for Candida, I also have Gluten intollorance and If

i end up haveing both Candida and Gluten intolorance I have no idea what I will

be able to eat. It is very frustrating. I am very accident pron and notice that

I am bruising very easy and my bones hurt so bad I have trouble sleeping at

night. I forget what I am saying and have a hard time concentrating. Sometimes

the floor feels like I am on a boat and it rocks back and forth, then of course

it adds to my feeling sick and I get very nausious. It feels like every day I

feel worse and worse. Befor I found out I was gluten intolarent I was eating

just wheat pasta, bread, exc.. and wondering why I was getting more sick, then

found out wheat had to be cut completly out of diet and I thought i would get

better, but now looks like I have both the Candida and the gluten intolorance.

Sorry so leanghly just very frustrated but in a way happy to find this group and

hopefully get my health back. I am 32 years old and i swear it feels like I am

80 something. I also get very angry for no aparent reason, my mood changes so

often, I will be angry one minute, then start crying, then be extreamly tired,

rarly am I happy any more. Would like to get back to my happy, chearful self

again.

>

[Guest guest]

God bless you. Sounds exactly like me almost to the tee. I have not tested for

gluten intolerance though but generally avoid it anyways. Mine comes and goes

but my mri showed that i had wrinkling small intestine and very slow food

transit. Some foods literally do just seem to sit there and you can literally

feel it finally release after hours or a day or so. Hang in there. I know this

is scary I have lost 50 pounds so far and my cravings keep me slipping on the

diet. Start slow. Email me if you want I have run a battery of tests and may be

able to gain and help at the same time. These moderators do care and have a God

given gift to heal.

>

> wow, I just joined this group because for years I have been plauged with my

body basicly shutting down, someone told me about Candida and how yeast can

affect the body and I have every sympome of it, have not been officially

diagnosted yet, been to sooo many doctors and all they say is I dont know and

throw their hands up, until I begged my last doc to send me to a specialist, I

have a hard time eating without it commin back up and cronic diarrea, so she

sent me to an intternalist I had a endoscope and he noticed my stomach is not

empying, so he sent me to another specialist and he did a nucular test and was

able to watch my food go down and it just sat. I have no energy, have a hard

time just walking from one room to another, my heart starts pumming way to fast

and I get dizzy, my blood presure is to low and the doc dont know why but wont

find out what is going on, I am in the proccess of getting another doctor and

hoping this one will test me for Candida, I also have Gluten intollorance and If

i end up haveing both Candida and Gluten intolorance I have no idea what I will

be able to eat. It is very frustrating. I am very accident pron and notice that

I am bruising very easy and my bones hurt so bad I have trouble sleeping at

night. I forget what I am saying and have a hard time concentrating. Sometimes

the floor feels like I am on a boat and it rocks back and forth, then of course

it adds to my feeling sick and I get very nausious. It feels like every day I

feel worse and worse. Befor I found out I was gluten intolarent I was eating

just wheat pasta, bread, exc.. and wondering why I was getting more sick, then

found out wheat had to be cut completly out of diet and I thought i would get

better, but now looks like I have both the Candida and the gluten intolorance.

Sorry so leanghly just very frustrated but in a way happy to find this group and

hopefully get my health back. I am 32 years old and i swear it feels like I am

80 something. I also get very angry for no aparent reason, my mood changes so

often, I will be angry one minute, then start crying, then be extreamly tired,

rarly am I happy any more. Would like to get back to my happy, chearful self

again.

>

[Guest guest]

It will take 4 to 6 weeks for you to really feel differences. I don't know how

much you are taking, but if you take 1/2 of your dose in the morning and 1/2

just before bed, you might feel better in the morning.  Also, the tests you

would need to get next after at least 4 weeks on the Armour are Free T3, Free

T4, and they always test for TSH. Welcome and good luck . Keep us posted on how

you feel and post your test results, along with the ranges from the lab and they

can be evaluated here.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: <michellemartens@...>

Subject: New

hypothyroidism

Date: Wednesday, August 11, 2010, 2:47 PM

Hi,

My name is . I have just been diagnosed with Hypothyroidism. My TSH

level was 10.5.I just started taking Armour Thyroid Yesterday. Have any of you

taken this? I have been tired and weak for so long. I am ready to have some

relief from this. I need more energy. In the mornings I am so fatigued. I have

to drag myself out of bed. And I always feel like I am on the verge of passing

out. When I stand up from sitting or laying down, everything goes black for a

few seconds and I get light headed and have to sit back down right away.

Sometimes this goes on all day. Sometimes I start to feel better mid afternoon.

How do I cope with this? I am a stay at home mom. I homeschool my older children

and I have a 9 month old baby. My husband is very picky about the house and

wants it to be very clean when he comes home.

------------------------------------

[Guest guest]

Hi , I had to email since I'm a fellow homeschooler with a

thyroid problem as well. Have you read Stop The Thyroid Madness? It may

provide insight into this very complicated issue.. I did much better

initially on Armour but then hit a plateau and got worse. Many of my lab

levels were of concern but particularly my ferritin and RT3. Because my

ferritin level was so low I've had to heavily supplement with iron and

my RT3,(which is high), seems to be blocking the Thyroid from being

accepted into the cells so I'm on T3 only for 12 weeks to try and clear

this. There is lots of help on the internet and hope but it is time

consuming and you have to take control of your labs and treatment. I

don't know how you can keep the house perfect while homeschooling and

having a thyroid condition maybe you should present him with a bill that

shows how much private school would cost! Best of luck to you, Beth

..

..1.

New

<hypothyroidism/message/52080;_ylc=X3oDMTJ

xa3FlYWJvBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXN

nSWQDNTIwODAEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI4MjAzODQ0OQ-->

Posted by: " " michellemartens@...

<mailto:michellemartens@...?Subject=%20Re%3ANew>

michellemartens@...

<michellemartensymail>

Mon Aug 16, 2010 1:02 pm (PDT)

Hi,

My name is . I have just been diagnosed with Hypothyroidism. My

TSH level was 10.5.I just started taking Armour Thyroid Yesterday. Have

any of you taken this? I have been tired and weak for so long. I am

ready to have some relief from this. I need more energy. In the mornings

I am so fatigued. I have to drag myself out of bed. And I always feel

like I am on the verge of passing out. When I stand up from sitting or

laying down, everything goes black for a few seconds and I get light

headed and have to sit back down right away. Sometimes this goes on all

day. Sometimes I start to feel better mid afternoon. How do I cope with

this? I am a stay at home mom. I homeschool my older children and I have

a 9 month old baby. My husband is very picky about the house and wants

it to be very clean when he comes home.

[Guest guest]

I homeschooled my children as well. Two of them all the way through high school,

and one up until high school. While homeschooling is not for everyone, it was

definitely the right choice for our family. Our kids have done fantastic in high

school and college, having consistently received top grades and honors each

semester. They've turned out to be pretty awesome young adults and we are very

proud of their efforts. 

I am pretty picky about having a clean house, too, but realized early on that

having the kids turn out well and having a close relationship with them would

mean more in the long run than having a clean house. Even if you don't hear this

at home: You're on the right track. Just keep putting one foot in front of the

other. It WILL make a difference when your kids are older...I promise! A messy

house will not ruin your kids the way a messy relationship will if you make a

decision that is not the right one for your family.

~~*~ Macias ~*~~

Your Scrapbooking and Avon Connection

www.closetomyheart.com

www.lindamacias.blogspot.com

www.youravon.com/lmacias5183

(209) 675-1830

From: Gilchrist <beth@...>

Subject: Re:New

hypothyroidism

Date: Tuesday, August 17, 2010, 5:50 PM

 

Hi , I had to email since I'm a fellow homeschooler with a

thyroid problem as well. Have you read Stop The Thyroid Madness? It may

provide insight into this very complicated issue.. I did much better

initially on Armour but then hit a plateau and got worse. Many of my lab

levels were of concern but particularly my ferritin and RT3. Because my

ferritin level was so low I've had to heavily supplement with iron and

my RT3,(which is high), seems to be blocking the Thyroid from being

accepted into the cells so I'm on T3 only for 12 weeks to try and clear

this. There is lots of help on the internet and hope but it is time

consuming and you have to take control of your labs and treatment. I

don't know how you can keep the house perfect while homeschooling and

having a thyroid condition maybe you should present him with a bill that

shows how much private school would cost! Best of luck to you, Beth

..

..1.

New

<hypothyroidism/message/52080;_ylc=X3oDMTJ

xa3FlYWJvBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXN

nSWQDNTIwODAEc2VjA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTI4MjAzODQ0OQ-->

Posted by: " " michellemartens@...

<mailto:michellemartens@...?Subject=%20Re%3ANew>

michellemartens@...

<michellemartensymail>

Mon Aug 16, 2010 1:02 pm (PDT)

Hi,

My name is . I have just been diagnosed with Hypothyroidism. My

TSH level was 10.5.I just started taking Armour Thyroid Yesterday. Have

any of you taken this? I have been tired and weak for so long. I am

ready to have some relief from this. I need more energy. In the mornings

I am so fatigued. I have to drag myself out of bed. And I always feel

like I am on the verge of passing out. When I stand up from sitting or

laying down, everything goes black for a few seconds and I get light

headed and have to sit back down right away. Sometimes this goes on all

day. Sometimes I start to feel better mid afternoon. How do I cope with

this? I am a stay at home mom. I homeschool my older children and I have

a 9 month old baby. My husband is very picky about the house and wants

it to be very clean when he comes home.

[Guest guest]

Joan,

This part of your message caught my eye: I've never taken Plaquenil or any of

the DMARDs. I tried methotrexate once

but, it did nothing for me. Other people I know have had a lot of trouble with

the DMARDs because they can be very toxic and cause some nasty side effects.

I've found the biologics to be more effective and they are actually supposed to

be less toxic to your system. I've never had a problem other than an increase

in number of sinus infections. I've noticed that some docs are reluctant to use

the biologics like Enbrel or Remicade or they don't use them in sufficient

doses. My doc does clinical trial research and is at a major teaching hospital

in Chicago. He's very comfortable using the biologics and reluctant to use

DMARDs due to the toxicity.

Your doctor sounds like a gem. My current rheumy seems to be an Enbrel loyalist

- it's his favorite and if my body quits responding to it after 7 years then he

says it's because I don't have PsA anymore. He told me to get a second opinion

and that doc tried to tell me Enbrel causes all the lousy side effects I had on

methotrexate (I've not had one on the biologic!) and she wanted a liver panel

because it causes so much damage??? I've just spent a miserable out of remission

year until I finally talked my Enbrel loyalist into increasing my Enbrel dosage

so I'm back in remission. This is scary because I know my body will decide to

quit responding again sometime in the future and I'd like to know a doctor who

likes biologics as much as I do. I'm in Indiana and not afraid to drive to

Chicago to find a good doc. May I ask your doctor's name?

Janette in Indiana

[Guest guest]

Yes that happened to me after using Enbrel for 2 years. I switched to

Humira and it is not working. My doc may add Imuran at next appointment. Hang in

there. This disease is tricky.

Beth

[Guest guest]

Janette are you close to Munster Indiana? My rheumy is great!

[Guest guest]

I have relatives in the area and actually went to a doc in the Watertower in

Chicago for another problem 30 years ago so I know the route. Actually I'm on

the southside of Indianapolis. I took my daughter to Cleveland to get a

recommendation for Enbrel almost 10 years ago. My rheumy has no other patients

like me; he mostly does osteo. He took the Cleveland doc's recommendation for

a biologic for my daughter because he felt the guy knew more about our disease

and biologics. So if I go to a doc who recommends another biologic for a

second opinion it's possible my doc might buy it. Also I know a guy in Muncie

who actually goes to the Mayo clinic once a year for his rheumy appt. (Can you

tell IN is really short on good rheumys?) A once a year rheumy appt in

Chicago is very doable for me. Can I have a name?

Janette

[Guest guest]

Janette: I live in the western suburbs and go to a rheumy at Loyola - she has

offices out here and at the main hospital in Maywood, I think it is. I'm pretty

satisfied with her: her name is Ruth Kadanoff. When I first went to her, I

had all the symptoms of PA and was in bad shapel She put me on Enbrel - is very

good about follow-up testing, appointments, etc. However, I'm an aberration in

that the Enbrel worked and within 3 months, I no longer had symptoms and finally

told her I wanted to go off it after a year and a half. My internist was always

a bit skeptical about the diagnosis but didn't tell me this until I went to her

and asked what she thought about my going off of it. She thought it was worth

talking to the rheumy about it; I had no side effects but was mostly concerned

about the cost because I'm on Medicare and it was costing about $4,000/year

thanks to the donut hole. Anyway, I did go off of it and still see her every

six months or so but have not had any symptoms return. The best thing about her

is that she listens and believes in a joint partnership between doctor and

patient to resolve problems.

A psychiatrist that I saw recently (and absolutely hated - he did nothing for

me)

gave me referrals to a doc at Northwestern whom he considers the best rheumy in

the area. If I can find his name I will forward it to you and I know I have it

somewhere. He also mentioned that he thinks ton Northwest has the best

" team " of rheumys around. I have his referrals but will have to look to find

names/numbers for you.

Joanna Hoelscher