Re: (Aspergers Support) HELP! Rages have us in constant crisis

[Guest guest]

Denel,

I'm sorry for what you're going through and I don't have any advice on some magic strategy that you could use. However I wanted to let you know that there is an institute in your area called the May Institute. Maybe you know of them already. They specialize autism spectrum disorders. Maybe you could get some help from them.

We just started working with a board certified ABA therepist in our area that works for the May Institute and she has been great. She has even gone to meetings at the school with us and done school observations (when they've let her).

Not sure if this information will be of any help but I wish you luck and I hope things get better for you. <<hugs>>ne

From: (¯`'.. Blessed Mom¸..'´¯) <blessedmom1305@...>Subject: ( ) (Aspergers Support) HELP! Rages have us in constant crisis Date: Thursday, December 9, 2010, 9:14 AM

Question for the group. I apologize if this has been asked and answered before, if so direct me? I need to know (besides move to a quiet area, get safe, therapeutic hold etc which I know) what the heck do we do when our child rages while in public? My son who is almost 6, is very quirky and clearly Aspergers but due to his age, no one will formerly diagnose him, just “say he most likely has it†it to me.

His formal diagnoses on paper from his medical team following him from birth (yes its scattered and allot—please I don’t need disagreements to this, I’m only putting it for background to show you how messy everything is) is Mood Disorder, Childhood Bipolar, ADHD-was ruled out, fits criteria for ODD, Sensory Processing Disorder, possible NVLD, PDD-nos and his therapist stands on her DX of Aspergers (which I agree). We entered the last hospital asking for diagnostic clarity.

I have had (2) 51a’s (complaint for abuse and neglect) filed by the school alleging –I--- have the mental illness and nothing is wrong with my child (this is unsupported of course) and then one filed by mobile crisis team for refusing a bed at a hospital I did not want, and waiting 2 days for a planned admission to the hospital of my choice.

Zachary just spent almost 3 weeks in CBAT (Community Based Acute Treatment) this was his second placement since September! I signed off for diagnostic testing/observation but they did none). They saw a couple rages but then 2 very violent children came onto the unit and sucked all the energy out of the staff, so Zachary’s issues flew under the radar (no one to observe him) They found him to be stable and released him. Funny that he went into a rage in the parking lot as we were leaving over cookies he didn’t get in the house (I didn’t know about) and his clinician was going to call to have him restrained. BUT he was fine and didn’t need CBAT. They put him back in my hands like I was to blame and needed lessons. *sighs

Some background about me.

I am a single mom, stuck living on the state system due to the volume of supports it offers children. I am a childcare professional with child psychology background, I am licensed to run a family day care for the past 10 years and have done all the schooling to keep that license, I am a certified paralegal and a foster parent. I run a huge support group for Parents of Bipolar Children ( & comorbid disgnoses). I am more than qualified to tend to children, especially with special needs. But somehow the tables were turned on me and I was blamed. I find myselt in that nowheres land of troubled child not getting help.

Zachary’s supports:

He is currently in a Therapeutic school for a 45 days assessment. He has an in home therapy team visit once per week, he has an independent therapist once per week, we have a Family Therapist, he has an Intensive Care Coodinator. We are signed in for placement for transition assistance for them to come in the am and do morning routine and get to school with us. Note: He is so unsafe he is not a candidate for transportation. His DRs all agree, he should not be on a bus.

Since his discharge STABLE 3 days ago in follow ups to the Dr's office 2 days in a row, when it was non threatening environment – we had to leave both times. He attacked me and the Drs and trashed their offices. Today on the way to the car for school because he realized he didn't get the toaster strudel he never asked for he went into full rage attacking me. Now after getting him safely in the house, he will not go to school or I forsee another rage will ensue. In Mass the law is he must attend school by Sept of the year he turns 6 – so legally I can keep him home until they resolve these issues.

I know this is HUGE stuff I am pilling on you and hope that you can wade through it and give me some direction and help. I added all my info and his supports so that your energy in replying wouldn’t be towards suggestions for that stuff. I’m at my wits end, we have all the supports in place, no one will diagnose him properly (and Im in the best city Boston !). I just don’t know what to do anymore.

Denel

Exhasperated mom