Re: Roy and OT

[Guest guest]

In a message dated 9/8/00 6:34:13 AM Eastern Daylight Time, roweg@...

writes:

<< Just for you I will UNSUBSCRIBE and I hope YOUR DEMAND for this list to

return to, " as YOU like it " , will transpire!

Gillian >>

Gillian: You're not serious about unsubscribing are you???? Please do not

do that...

, Monroe, MI

[Guest guest]

Gillian,

Please do not quit the e-group...It was you and Margaretha that kept me afloat when I was new...You have a way of putting things that make people understand this dreaded disease we all live with.

If you quit, you better keep in contact with me privately...I won't stay where you are not...I'm sure others feel the same way. I would hate to see this group dwindle down to 0 when , and the others have worked so hard to build it up. Some people do not understand compassion and love when it slaps them in the face. Yes, we could all go to medical groups and get the information we search for...it relates to me as much as the worst Derm or Rheumy any of us have ever had. I think most of us are searching for another human being with knowledge and wisdom as well as warmth, wit and humor.

Don't let one person make you leave...if they don't like it let them leave. It is a two way street here and no one is going to tie them to the computer either...maybe they should get a life...

Donna

Gillian Rowe <roweg@...> wrote:

-------------------------- eGroups Sponsor -------------------------~-~>GET A NEXTCARD VISA, in 30 seconds! Get ratesof 2.9% Intro or 9.9% Ongoing APR* and no annual fee!Apply NOW!>Hi'>1/9146/4/_/494167/_/968409201/-------------------------------------------------------------------->Hi Roy and >It used to be a list about psoriatic arthritis<To my knowledge it still is and a very interesting and supportive list.From your previous e-mails, 29th May, 5th June, 3rd September and 5thSeptember, I can see you have been one of the 'very active' and 'verysupportive' members. The initial two e-mails were in response to my EveningPrimrose Oil and Cholesterol messages. I for one posted a question to you,which has not as yet been answered, so perhaps you can take time out fromyour " Criticism " and replied to it. Here is the copy:>Hi Roy and Can you please inform us about your treatment with CD11a. For example was itan injection, IV or pill? Did you have any side effects? When you say goodresults, has it assisted your arthritis?Love and God BlessGillianPosted 3rd of September, perhaps you missed it or just chose to use thedelete key???>Lately the list seems to be used as a sounding board for certain peoplesnonrelated problems and or experiences<Can you please explain what you consider to be " NONRELATED? " Unfortunately Icannot unzip this condition and leave it behind me when I wish. It tends tofollow me around and generally makes my life Hades, even when walking myDOG! I reside with my Mom, who I love, but she is knocking on in Years. Iknow others members also reside with there Moms. If my Mom has a problem,that I cannot figure out, are you suggesting this has nothing to do with ME,let alone PA? We know STRESS plays a BIG ROLE in PA. Waiting for Mom to comecrashing down the stairs, you do not think is STRESSFUL?>Let the list get back to the way it used too be<How many members did we have and how many members do we now have? I am surethat if everyone wanted just a PURE medical low down on treatments, drugs,side affects, symptoms, Rheumatologist, Nurses, Dieticians, they couldeasily locate all this on the numerous Medical Sites. However if people wantto know they are not alone, social outcasts, that at the end of thiskeyboard is another person who suffers, has a insight on this condition,then they locate a " E-Group " .Coping with PA is not JUST about popping Drugs. If anyone is on a 'downcycle', no matter how many drugs they pop, sometimes they cannot get out ofthat cycle. Then out of the blue, a silly, stupid e-mail arrives fromanother member and that person suddenly starts to smile.>Get a life,make new friends,start a hobby,do anything that will keep youaway fromthe computer<Just for you I will UNSUBSCRIBE and I hope YOUR DEMAND for this list toreturn to, " as YOU like it " , will transpire!GillianGoodbye and God Bless[As for the Poll I will close it tonight, do the Summary of findings ande-mail it to another member for posting]Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details.

[Guest guest]

Hi Gillian,

I hope you will not unsubscribe from this PA support group because

you are one of the most inspirational members and contributors we have. I

have found your emails to be educational and humorous.

For example, I don't think any of us are " normal people " because

" normal people " do not have PA.

Sincerely,

Bill in DC

P.S. May you have enough happiness to make you sweet, enough

trials to make you strong, enough sorrow to keep you human, enough

hope to make you happy.

[ ] Roy and OT

>

>Hi Roy and

>>It used to be a list about psoriatic arthritis<

>To my knowledge it still is and a very interesting and supportive list.

>From your previous e-mails, 29th May, 5th June, 3rd September and 5th

>September, I can see you have been one of the 'very active' and 'very

>supportive' members. The initial two e-mails were in response to my Evening

>Primrose Oil and Cholesterol messages. I for one posted a question to you,

>which has not as yet been answered, so perhaps you can take time out from

>your " Criticism " and replied to it. Here is the copy:

>>Hi Roy and

>Can you please inform us about your treatment with CD11a. For example was

it

>an injection, IV or pill? Did you have any side effects? When you say good

>results, has it assisted your arthritis?

>Love and God Bless

>Gillian

>Posted 3rd of September, perhaps you missed it or just chose to use the

>delete key???

>>Lately the list seems to be used as a sounding board for certain peoples

>nonrelated problems and or experiences<

>Can you please explain what you consider to be " NONRELATED? " Unfortunately

I

>cannot unzip this condition and leave it behind me when I wish. It tends to

>follow me around and generally makes my life Hades, even when walking my

>DOG! I reside with my Mom, who I love, but she is knocking on in Years. I

>know others members also reside with there Moms. If my Mom has a problem,

>that I cannot figure out, are you suggesting this has nothing to do with

ME,

>let alone PA? We know STRESS plays a BIG ROLE in PA. Waiting for Mom to

come

>crashing down the stairs, you do not think is STRESSFUL?

>>Let the list get back to the way it used too be<

>How many members did we have and how many members do we now have? I am sure

>that if everyone wanted just a PURE medical low down on treatments, drugs,

>side affects, symptoms, Rheumatologist, Nurses, Dieticians, they could

>easily locate all this on the numerous Medical Sites. However if people

want

>to know they are not alone, social outcasts, that at the end of this

>keyboard is another person who suffers, has a insight on this condition,

>then they locate a " E-Group " .

>Coping with PA is not JUST about popping Drugs. If anyone is on a 'down

>cycle', no matter how many drugs they pop, sometimes they cannot get out of

>that cycle. Then out of the blue, a silly, stupid e-mail arrives from

>another member and that person suddenly starts to smile.

>>Get a life,make new friends,start a hobby,do anything that will keep you

>away from

>the computer<

>Just for you I will UNSUBSCRIBE and I hope YOUR DEMAND for this list to

>return to, " as YOU like it " , will transpire!

>Gillian

>Goodbye and God Bless

>[As for the Poll I will close it tonight, do the Summary of findings and

>e-mail it to another member for posting]

>

>

>

>

>

>Please visit our new web page at:

>http://www.wpunj.edu/icip/pa

>

>We are currently discussing new chat times. moderates a chat

on arthritis at

>www.about.com on Thursday evenings, so check that

>out in the meantime! E mail at RA@... for details.

>

>

>

[Guest guest]

<<<<<<<Just for you I will UNSUBSCRIBE and I hope YOUR DEMAND for

this list to

return to, " as YOU like it " , will transpire!>>>>>>>>>>

You will NOT NOT NOT do such a thing. One disgruntled member does not

speak for the rest of us. We need your wonderful sense of humor to

keep going. We're not just a bunch of people with the same disease -

we're friends.

in Illinois

[Guest guest]

Oh my God, Gillian, you aren't really going to

unsubcribe?!

I love reading your e-mail and you've been so

informative and supportive for me and for this entire

group!

What the hecks been going on? I've only been away for

4 days!

DON'T GO!!!

--- Gillian Rowe <roweg@...> wrote:

> Hi Roy and

> >It used to be a list about psoriatic arthritis<

> To my knowledge it still is and a very interesting

> and supportive list.

> From your previous e-mails, 29th May, 5th June, 3rd

> September and 5th

> September, I can see you have been one of the 'very

> active' and 'very

> supportive' members. The initial two e-mails were in

> response to my Evening

> Primrose Oil and Cholesterol messages. I for one

> posted a question to you,

> which has not as yet been answered, so perhaps you

> can take time out from

> your " Criticism " and replied to it. Here is the

> copy:

> >Hi Roy and

> Can you please inform us about your treatment with

> CD11a. For example was it

> an injection, IV or pill? Did you have any side

> effects? When you say good

> results, has it assisted your arthritis?

> Love and God Bless

> Gillian

> Posted 3rd of September, perhaps you missed it or

> just chose to use the

> delete key???

> >Lately the list seems to be used as a sounding

> board for certain peoples

> nonrelated problems and or experiences<

> Can you please explain what you consider to be

> " NONRELATED? " Unfortunately I

> cannot unzip this condition and leave it behind me

> when I wish. It tends to

> follow me around and generally makes my life Hades,

> even when walking my

> DOG! I reside with my Mom, who I love, but she is

> knocking on in Years. I

> know others members also reside with there Moms. If

> my Mom has a problem,

> that I cannot figure out, are you suggesting this

> has nothing to do with ME,

> let alone PA? We know STRESS plays a BIG ROLE in PA.

> Waiting for Mom to come

> crashing down the stairs, you do not think is

> STRESSFUL?

> >Let the list get back to the way it used too be<

> How many members did we have and how many members do

> we now have? I am sure

> that if everyone wanted just a PURE medical low down

> on treatments, drugs,

> side affects, symptoms, Rheumatologist, Nurses,

> Dieticians, they could

> easily locate all this on the numerous Medical

> Sites. However if people want

> to know they are not alone, social outcasts, that at

> the end of this

> keyboard is another person who suffers, has a

> insight on this condition,

> then they locate a " E-Group " .

> Coping with PA is not JUST about popping Drugs. If

> anyone is on a 'down

> cycle', no matter how many drugs they pop, sometimes

> they cannot get out of

> that cycle. Then out of the blue, a silly, stupid

> e-mail arrives from

> another member and that person suddenly starts to

> smile.

> >Get a life,make new friends,start a hobby,do

> anything that will keep you

> away from

> the computer<

> Just for you I will UNSUBSCRIBE and I hope YOUR

> DEMAND for this list to

> return to, " as YOU like it " , will transpire!

> Gillian

> Goodbye and God Bless

> [As for the Poll I will close it tonight, do the

> Summary of findings and

> e-mail it to another member for posting]

>

>

>

>

>

__________________________________________________

[Guest guest]

Gillian! Don't leave! You are such an important

member of this group! I love reading your emails and

have learned so much from you. I also admire you. One

of the things that I admire is your strength in coping

with this illness, so don't be picking up your crayons

and going home just because someone was rude.

Stay.....please?

--- Gillian Rowe <roweg@...> wrote:

> Hi Roy and

> >It used to be a list about psoriatic arthritis<

> To my knowledge it still is and a very interesting

> and supportive list.