Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 In a message dated 11/1/03 5:25:25 PM Central Standard Time, fredsdebts@... writes: > Thanks to all who are writing regarding nutrition. I tried the Atkins Diet > over three decads ago and developed--of all things--psoriatic looking > lesions on my arms!! I did not seek treatment because the skin problems > disappeared shortly after the diet did. > That's interesting. Do you know if the Atkins diet was the same then as it is now? While on the subject does anyone know what likenesses and what differences between Atkins and Pagano? Orin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Joanie, I was an adult on the ketogenic diet. It does not really work for the adults because our brain is fully developed. I was on it for a year. I had got rid of many seizures. WHen I went off and changed the meds they came back again. I now sometimes do the low carb diet and I can see a change in the seizures. But I don't always stay on it. It is not the atkins. It is no bread at all. I am trying to write a cookbook for the ketogenic diet. I have about 97 recipes. One day I will get it printed out completely. > Hi again, > > Has any of you tried the Specific Carbohydrate Diet for treatment? > Since my son was denied insurance coverage to begin the Keto diet I > ahve him on Atkins and it seemed to do some good, but then, like > everything else, success seems to get away. > > I am more convinced it is the grains in diet which is harmful - that > we have just had an overload of them stashed in our diets and the > damage is unique to each person, though there are some similarities. > It seems to be a combo of bad foods, vaccinations, and antibiotics. > I have been reading about fats and grass fed animals and how we are > not getting enough ( any perhaps) Cla's ( I foget what that is, LOL, > but we need it.) because the animals need the grass and not so much > grain based feeds. We need unpasteurized plain old milk, butter, > cheese,suet, and the processes we use remove all the crucial goodies > in the products. I am using using some grass fed beef and other good > meats, goat milk ( well, not on Atkins - yuk, I hate that diet.), raw > butter and at least organic cheeses. I have virgin coconut oil on > the way. Food is a part of this scene, I believe, though not the > whole picture, of course. But which diet?.... This is driving me > mad. > Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 > Dear Dee, How old is ? The thing which bothers me is that my is now 13 and in puberty. I feel like his life is flying by and so much of it is wasting. He has no friends and cannot do normal things, BUT he wants friends and to do things he cannot do. I feel like we are sitting arud waiting - for what? I don't know. I am smiling. I trust the Lord knows what is best and I have to remember that when the frustration gets to me. I iwll pray for and for the Lord to give you a clue. Remember, kids on the Keto who are seizure free can suddenly start having seizures and it can be traced sometimes to some sugar or carb hidden in something - or even in lotion!! So, just closely re-examine everything he is using and try to get it as grain free and lo carb as you can. Bless you! Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 In a message dated 4/1/2005 9:05:09 PM Eastern Standard Time, kellictc@... writes: .. I am a little weight obsessed because I have gone from a size 12 to a size 6 (which I stayed at for a year with a good healthy diet, and lots of exercise) then quit and went to a size 18 in the past 4 years. My weight had been pretty much a steady 135 for many years. I was one of those fortunate people who could eat anything and not gain weight because I have a high metabolism and was always active and moving. I've never been on a diet in my life. I didn't even gain weight when I quit smoking. When my AIH first became active I lost 15 pounds. Since being on prednisone I've gone up to 166. Some of that is water retention, my legs and feet have been very swollen. But some of it is Pepperidge Farm Double Chocolate Milano cookies and a total lack of activity (. Next week I start respiratory/physical therapy and I'm tapering down my prednisone again. I'm hoping this will help me find an activity level that I can handle and maybe loose some weight. Once I get my prednisone down to a maintenance dose I will have to go on a diet for the first time in my 53 years and I'm sure I'll be needing lots of support. This might well be one of the hardest aspects of my illness. I've had to give up a lot of things that I enjoy since being ill, but giving up those Milanos, oh my, that's going to be tough!! Regards, Elaine Long Island NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Elaine, How fortunate you are to have been able to live this long in your life without going on a diet. As I make changes to improve my diet, my chiropractor told me that if I will follow my diet plan 90% of the time, I will be doing far better then the general population, and look at this way you can save your precious favorite cookies for that 10% of the time. Kelli > In a message dated 4/1/2005 9:05:09 PM Eastern Standard Time, > kellictc@m... writes: > . I am a little weight obsessed because I > have gone from a size 12 to a size 6 (which I stayed at for a year > with a good healthy diet, and lots of exercise) then quit and went > to a size 18 in the past 4 years. > > My weight had been pretty much a steady 135 for many years. I was one of > those fortunate people who could eat anything and not gain weight because I have a > high metabolism and was always active and moving. I've never been on a diet > in my life. I didn't even gain weight when I quit smoking. > > When my AIH first became active I lost 15 pounds. Since being on prednisone > I've gone up to 166. Some of that is water retention, my legs and feet have > been very swollen. But some of it is Pepperidge Farm Double Chocolate Milano > cookies and a total lack of activity (. > > Next week I start respiratory/physical therapy and I'm tapering down my > prednisone again. I'm hoping this will help me find an activity level that I can > handle and maybe loose some weight. Once I get my prednisone down to a > maintenance dose I will have to go on a diet for the first time in my 53 years and I'm > sure I'll be needing lots of support. This might well be one of the hardest > aspects of my illness. > > I've had to give up a lot of things that I enjoy since being ill, but giving > up those Milanos, oh my, that's going to be tough!! > > Regards, > Elaine > Long Island NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 I'm sure I'm going to wind up in some kind of hell... Red meats are a staple and so is my addiction to Coca Cola. I don't even want to admit what my husband just made us for breakfast. You guys really have me feeling bad about what I am eating... It's funny though, because of the fact that all my life I have had a problem with being anemic, the doctors have always encouraged red meats.... strange. Teri .... From: Gloria <gadamscan@...> Sent: Fri, May 7, 2010 12:05:07 PMSubject: Re: [ ] Diets You know, even when my son was very very little, he had an aversion to red meat. Didn't matter if it was baby food, people food or anything. He really didn't like hamburgers all that much either. So a whole lot of peanut butter had to substitute for the protein and you could tell that neither the aversion nor the peanut butter was harming him in any fashion.Gloria I'm noticing that seems everyone developes an aversion to red meat. I haven't been too keen on meats for several months, and again, I haven't started TX yet. Even meat items I have always loved! http://facebook. com/people/ andTrudy- Kinsey/134046087 7 " A well- behaved woman never made History". Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2010 Report Share Posted May 7, 2010 TrudyThere are protein mixes on the market. I know, it'll never be the same as real food; but, at least you will be able to get the protein that your body is craving.Gloria I haven't changed how or what I eat... But my body has! Like I said , cannot stand sight, smell, taste of most meats, chicken, fish... I do bake all our bread products and still enjoy small portions of these breads. Never had much of a sweet tooth till now. CRAVE sweets; cake, reeses cups, puddings!! Can't understand it but it's as tho I have an eating disorder... Crazy about sweets suddenly! Other than that lots of fresh veggies and fresh( not canned) beans. Struggling( and losing) to get nearly enuff protein. http://facebook. com/people/ andTrudy- Kinsey/134046087 7 " "A well- behaved woman never made history" http://allrecipes. com/cook/ TrudyK/profile. aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 I love red meat too. But that is probably good because they say we are suppose to avoid eating red meat. It isn't liver friendly. It is in Dons files. Cinder Check out datagrey's photos and profile! http://community.webshots.com/user/datagrey Find me on MySpace and be my friend. http://www.myspace.com/datagrey From: Trudy <trudykinsey@...>Subject: [ ] Diets"Hcv" < >Date: Thursday, May 6, 2010, 10:20 PM I'm noticing that seems everyone developes an aversion to red meat. I haven't been too keen on meats for several months, and again, I haven't started TX yet. Even meat items I have always loved! http://facebook. com/people/ andTrudy- Kinsey/134046087 7 " A well- behaved woman never made History". Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks! -Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi Tania, Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet).. You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago! The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above. There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters. Some other good books on this subject would be... The Autism & ADHD Diet by Barrie Silberberg Healing the New Childhood Epidemics by Brock Children With Starving Brains by McCandless Is This Your Child? by Rapp I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL.. You might also google "leaky gut" or "gut & psychology syndrome". Misty From: sopranotania <sopranotania@...> Sent: Wed, February 16, 2011 8:18:13 AMSubject: ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself. From: md l <dontblinkhs@...> Sent: Wed, February 16, 2011 8:18:01 PMSubject: Re: ( ) diets Hi Tania, Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet).. You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago! The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above. There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters. Some other good books on this subject would be... The Autism & ADHD Diet by Barrie Silberberg Healing the New Childhood Epidemics by Brock Children With Starving Brains by McCandless Is This Your Child? by Rapp I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL.. You might also google "leaky gut" or "gut & psychology syndrome". Misty From: sopranotania <sopranotania@...> Sent: Wed, February 16, 2011 8:18:13 AMSubject: ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Please understand that this is your opinion and not a fact. Problems with restrictive diet can be any numbers of issues going on and not at all related to this idea of an "allergy" to food. If it is working for you and your kid, great. But that doesn't mean it works for most kids with autism. That is just your opinion. If people want to buy into this theory, they can. There are tons of sites out there ready to tell you all about it! Also, having autism does not mean you are running around attacking people until someone takes you off gluten. My two ds's have HFA and neither one was out there doing that. Stimming went away with growth and maturity over the years and not with any special diet. I know people attribute rapid growth in speech, for example, to removing gluten from the diet or fish oil pills or other such things. "We removed all milk from his diet and then he began to talk!" My 3 ds's all had severe speech delays and their language all came in without any of those things. My one ds's initial problem with food was just the temperature of the food, we discovered! I remember at the time being so amazed to have figured it out, lol! It had nothing to do with "an opiate response." Once I realized it was the temperature (everything had to be cold!), we started to slowly warm things up over a long period of time. Today, he eats better than most NT people - all variety of food, hot or cold. My other ds is still extremely restrictive with what he will eat and it's a big problem. He is not jumping off of furniture because of what he is eating either. And it has nothing to do with allergies or opiate responses to certain things. He has severe problems with taste and texture and also is a rigid thinker. When we used to have a local autism group, most of the women in the group believed in the Great Plains lab and had a personal relationship with them. I saw them doing a lot of really weird things - I thought it was weird, I should say. They thought it made perfect sense. Here I was doing ABA therapy, which I am sure they thought was weird. Anyway, I really never saw a big improvement in their kids but they would all constantly insist that the new pill or removing something from the diet had fixed problems. They constantly said, "Look how much calmer he is now" and I'd look and the kid looked exactly the same as before. I couldn't figure it out. But they all agreed with each other that it was working. Anyway, the big story I am trying to tell: One lady was frantic one day when the family dog died. She apparently decided that her PDD kid had killed the dog. I don't remember why she came to that conclusion. He must have abused the dog in the past or something. Or she found the kid hitting the dog, who was dead. He was probably trying to get the dog to move or wake up really, in retrospect. But at any rate, she went on to discuss how he had recently been given a red Popsicle and she knew that was the cause of his "rage" against the dog. The red popsicle caused the kid to go ape and kill the dog! She must have went on for 10 days to two weeks about this awful experience in our local chat group - really awful experience to be sure! Well, turns out, after testing the dog, they found out he had paint in his system. At the time of his death, they were painting their bathroom. So that is how the dog actually died. And that red Popsicle never caused the rage that killed the dog after all. Roxanna “Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks! -Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 I totally agree, . Being a nurse, I am usually the one that gets on my soapbox about people advocating special diets or treatments that have no scientific studies to back them up. People can waste tons of money on this kind of stuff. From: [mailto: ] On Behalf Of MacAllisterSent: Thursday, February 17, 2011 8:58 AM Subject: Re: ( ) diets My son has never eaten " 3 or so " foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about " our kids " when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself. From: md l <dontblinkhs@...> Sent: Wed, February 16, 2011 8:18:01 PMSubject: Re: ( ) diets Hi Tania,Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet).. You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago! The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above. There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters. Some other good books on this subject would be... The Autism & ADHD Diet by Barrie SilberbergHealing the New Childhood Epidemics by BrockChildren With Starving Brains by McCandlessIs This Your Child? by Rapp I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL.. You might also google " leaky gut " or " gut & psychology syndrome " . Misty From: sopranotania <sopranotania@...> Sent: Wed, February 16, 2011 8:18:13 AMSubject: ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Wow, I am surprised at the lack of knowledge about this on this group. There is plenty of research done on this. Have you ever tried it yourself or even fully researched it past reading a simple article? Sounds like you are dismissing this without fully understanding the science behind it (and yes, there is science there.. do the research). I apologize for saying "most kids" or whatever I said. But it is not my imagination AT ALL. My child clearly has a reaction to certain foods. The very foods she tested positive for. If she didn't, I certainly wouldn't have kept her on this diet for so long.. I would love for us to all go back to eating regular foods!! I found out that I have celiac disease during all this, which has saved me from a lot of issues. So this definitely runs in my family. And "running around attacking people" is not what she does.. And that is not what makes her have Asperger's. You are making assumptions and putting words in my mouth and that is not fair. She has aggression issues for sure and maybe I worded that wrong.. She has explosive behavior at times and will attack siblings or even me just as many kids with Asperger's do. But that is not what makes her have Asperger's. Geez. Misty From: Roxanna <MadIdeas@...> Sent: Thu, February 17, 2011 9:13:29 AMSubject: Re: ( ) diets Please understand that this is your opinion and not a fact. Problems with restrictive diet can be any numbers of issues going on and not at all related to this idea of an "allergy" to food. If it is working for you and your kid, great. But that doesn't mean it works for most kids with autism. That is just your opinion. If people want to buy into this theory, they can. There are tons of sites out there ready to tell you all about it! Also, having autism does not mean you are running around attacking people until someone takes you off gluten. My two ds's have HFA and neither one was out there doing that. Stimming went away with growth and maturity over the years and not with any special diet. I know people attribute rapid growth in speech, for example, to removing gluten from the diet or fish oil pills or other such things. "We removed all milk from his diet and then he began to talk!" My 3 ds's all had severe speech delays and their language all came in without any of those things. My one ds's initial problem with food was just the temperature of the food, we discovered! I remember at the time being so amazed to have figured it out, lol! It had nothing to do with "an opiate response." Once I realized it was the temperature (everything had to be cold!), we started to slowly warm things up over a long period of time. Today, he eats better than most NT people - all variety of food, hot or cold. My other ds is still extremely restrictive with what he will eat and it's a big problem. He is not jumping off of furniture because of what he is eating either. And it has nothing to do with allergies or opiate responses to certain things. He has severe problems with taste and texture and also is a rigid thinker. When we used to have a local autism group, most of the women in the group believed in the Great Plains lab and had a personal relationship with them. I saw them doing a lot of really weird things - I thought it was weird, I should say. They thought it made perfect sense. Here I was doing ABA therapy, which I am sure they thought was weird. Anyway, I really never saw a big improvement in their kids but they would all constantly insist that the new pill or removing something from the diet had fixed problems. They constantly said, "Look how much calmer he is now" and I'd look and the kid looked exactly the same as before. I couldn't figure it out. But they all agreed with each other that it was working. Anyway, the big story I am trying to tell: One lady was frantic one day when the family dog died. She apparently decided that her PDD kid had killed the dog. I don't remember why she came to that conclusion. He must have abused the dog in the past or something. Or she found the kid hitting the dog, who was dead. He was probably trying to get the dog to move or wake up really, in retrospect. But at any rate, she went on to discuss how he had recently been given a red Popsicle and she knew that was the cause of his "rage" against the dog. The red popsicle caused the kid to go ape and kill the dog! She must have went on for 10 days to two weeks about this awful experience in our local chat group - really awful experience to be sure! Well, turns out, after testing the dog, they found out he had paint in his system. At the time of his death, they were painting their bathroom. So that is how the dog actually died. And that red Popsicle never caused the rage that killed the dog after all. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 LOL over the red popsicle story! From: [mailto: ] On Behalf Of RoxannaSent: Thursday, February 17, 2011 9:13 AM Subject: Re: ( ) diets Please understand that this is your opinion and not a fact. Problems with restrictive diet can be any numbers of issues going on and not at all related to this idea of an " allergy " to food. If it is working for you and your kid, great. But that doesn't mean it works for most kids with autism. That is just your opinion. If people want to buy into this theory, they can. There are tons of sites out there ready to tell you all about it! Also, having autism does not mean you are running around attacking people until someone takes you off gluten. My two ds's have HFA and neither one was out there doing that. Stimming went away with growth and maturity over the years and not with any special diet. I know people attribute rapid growth in speech, for example, to removing gluten from the diet or fish oil pills or other such things. " We removed all milk from his diet and then he began to talk! " My 3 ds's all had severe speech delays and their language all came in without any of those things. My one ds's initial problem with food was just the temperature of the food, we discovered! I remember at the time being so amazed to have figured it out, lol! It had nothing to do with " an opiate response. " Once I realized it was the temperature (everything had to be cold!), we started to slowly warm things up over a long period of time. Today, he eats better than most NT people - all variety of food, hot or cold. My other ds is still extremely restrictive with what he will eat and it's a big problem. He is not jumping off of furniture because of what he is eating either. And it has nothing to do with allergies or opiate responses to certain things. He has severe problems with taste and texture and also is a rigid thinker. When we used to have a local autism group, most of the women in the group believed in the Great Plains lab and had a personal relationship with them. I saw them doing a lot of really weird things - I thought it was weird, I should say. They thought it made perfect sense. Here I was doing ABA therapy, which I am sure they thought was weird. Anyway, I really never saw a big improvement in their kids but they would all constantly insist that the new pill or removing something from the diet had fixed problems. They constantly said, " Look how much calmer he is now " and I'd look and the kid looked exactly the same as before. I couldn't figure it out. But they all agreed with each other that it was working. Anyway, the big story I am trying to tell: One lady was frantic one day when the family dog died. She apparently decided that her PDD kid had killed the dog. I don't remember why she came to that conclusion. He must have abused the dog in the past or something. Or she found the kid hitting the dog, who was dead. He was probably trying to get the dog to move or wake up really, in retrospect. But at any rate, she went on to discuss how he had recently been given a red Popsicle and she knew that was the cause of his " rage " against the dog. The red popsicle caused the kid to go ape and kill the dog! She must have went on for 10 days to two weeks about this awful experience in our local chat group - really awful experience to be sure! Well, turns out, after testing the dog, they found out he had paint in his system. At the time of his death, they were painting their bathroom. So that is how the dog actually died. And that red Popsicle never caused the rage that killed the dog after all. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Being a nurse does not qualify you to make assumptions or discount something that is clearly working for so many children. I was a nurse in the Navy and worked in the PACU recovering patients from surgery. I can tell you all about recovering patients from anesthesia, but it didn't make me any more knowledgable on special diets.. My own personal research did. If any of you would take the time to do some research on this or even try it yourselves... You might think differently. And like I said, removing gluten is not a cure and it may not even work for some kids.. But everyone that I've ever known who has tried it (with the exception of one or two) has had amazing results. Misty From: Elgamal <cindyelgamal@...> Sent: Thu, February 17, 2011 9:15:14 AMSubject: RE: ( ) diets I totally agree, . Being a nurse, I am usually the one that gets on my soapbox about people advocating special diets or treatments that have no scientific studies to back them up. People can waste tons of money on this kind of stuff. From: [mailto: ] On Behalf Of MacAllisterSent: Thursday, February 17, 2011 8:58 AM Subject: Re: ( ) diets My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself. From: md l <dontblinkhs@...> Sent: Wed, February 16, 2011 8:18:01 PMSubject: Re: ( ) diets Hi Tania, Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet).. You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago! The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above. There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters. Some other good books on this subject would be... The Autism & ADHD Diet by Barrie Silberberg Healing the New Childhood Epidemics by Brock Children With Starving Brains by McCandless Is This Your Child? by Rapp I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL.. You might also google "leaky gut" or "gut & psychology syndrome". Misty From: sopranotania <sopranotania@...> Sent: Wed, February 16, 2011 8:18:13 AMSubject: ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 I have one daughter with Asperger's who also is not picky.. She eats a good variety.. She was not having the "opiate affect".. But she does have a serious gluten sensitivity.. Her bowel issues and constant headaches disappeared along with some of her learning issues and OCD tendencies when we removed gluten. I apologize for saying "our kids".. I was referring to "our kids who have these issues with gluten" and not necessarily "our kids who have Asperger's". There is a lot of research on this subject, but I don't know if there is any research published in "reputable journals".. I do not read reputable journals because they do not help me help my children. I only read things that help me help my children. If we only limited ourselves to those things that were published in reputable journals.. We would miss out on so much. Misty From: MacAllister <smacalli@...> Sent: Thu, February 17, 2011 8:58:22 AMSubject: Re: ( ) diets My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself. From: md l <dontblinkhs@...> Sent: Wed, February 16, 2011 8:18:01 PMSubject: Re: ( ) diets Hi Tania, Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet).. You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago! The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above. There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters. Some other good books on this subject would be... The Autism & ADHD Diet by Barrie Silberberg Healing the New Childhood Epidemics by Brock Children With Starving Brains by McCandless Is This Your Child? by Rapp I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL.. You might also google "leaky gut" or "gut & psychology syndrome". Misty From: sopranotania <sopranotania@...> Sent: Wed, February 16, 2011 8:18:13 AMSubject: ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 That's the point. It's not "clearly working for so many children." It is working for yours. I think meant that because she is a nurse, she looks to scientific research to back up claims. Roxanna “Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks! -Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 That makes no sense. You don't read things in reputable journals because they wouldn't help your child? Only non-scientific research for you? Okay, then you probably just proved my point. I know celiac disease has been scientifically proven but some of the other stuff you advocate for has not. I'll stick with science based interventions. Sent via BlackBerry by AT&TFrom: md l <dontblinkhs@...>Sender: Date: Thu, 17 Feb 2011 08:04:05 -0800 (PST)< >Reply Subject: Re: ( ) diets I have one daughter with Asperger's who also is not picky.. She eats a good variety.. She was not having the "opiate affect".. But she does have a serious gluten sensitivity.. Her bowel issues and constant headaches disappeared along with some of her learning issues and OCD tendencies when we removed gluten. I apologize for saying "our kids".. I was referring to "our kids who have these issues with gluten" and not necessarily "our kids who have Asperger's". There is a lot of research on this subject, but I don't know if there is any research published in "reputable journals".. I do not read reputable journals because they do not help me help my children. I only read things that help me help my children. If we only limited ourselves to those things that were published in reputable journals.. We would miss out on so much. MistyFrom: MacAllister <smacalli@...> Sent: Thu, February 17, 2011 8:58:22 AMSubject: Re: ( ) diets My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself. From: md l <dontblinkhs@...> Sent: Wed, February 16, 2011 8:18:01 PMSubject: Re: ( ) diets Hi Tania,Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet).. You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like thisBEFORE we ever went on the diet over a year ago! The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above. There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters. Some other good books on this subject would be... The Autism & ADHD Diet by Barrie SilberbergHealing the New Childhood Epidemics by BrockChildren With Starving Brains by McCandlessIs This Your Child? by Rapp I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL.. You might also google "leaky gut" or "gut & psychology syndrome". Misty From: sopranotania <sopranotania@...> Sent: Wed, February 16, 2011 8:18:13 AMSubject: ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of peoplehave their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 I don't think you will advance your cause by telling us we are all ignorant. lol. There are not a lot of scientifically valid studies out there at all. That's the problem. I've seen people doing "the diet" and not getting anywhere, let alone "amazing stuff." You've seen amazing things. This doesn't mean that I am just ignorant and you're not. I don't agree with your conclusion. That is what my popsicle story was meant to illustrate - that the cause/effect relationship is not always what you first think it is. If your kid has a reaction to foods, then it is probably a good idea to work on her diet issues. That is common sense. It isn't that people can't have food allergies. What I meant by the fact that my kids are not running around attacking people is that this is not what AS kids do. You said, "many kids with AS do" this and I disagree. To relate attacking people to having AS, then to the diet a person is following is what I am disagreeing with. Your own child does this, I get that part. But I haven't met anyone else who is out there attacking people at large - no news reports, no friends whose kids have AS doing this. You are talking about this feature as if it's very common when I don't feel it is very common. Then you attribute it to eating certain foods and I would not agree that this is why either. For you, perhaps that is the cause of the problem. I wouldn't pretend to know. But you can't assume this is the cause for everyone else or even that all our kids are out there attacking people because they have AS and a food allergy. Hopefully, I explained that more clearly. I did not intend to put "words in your mouth" but am trying to disagree with exactly what you are saying. Roxanna “Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks! -Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Wow, that is so sad about the paint and dog story and to think that kid wether he heard it verbally or not, was being blamed. I know my kids feel tension and would have picked up on something being wrong.. UGHH poor kid In a message dated 2/17/2011 10:47:30 A.M. Eastern Standard Time, cindyelgamal@... writes: LOL over the red popsicle story! From: [mailto: ] On Behalf Of RoxannaSent: Thursday, February 17, 2011 9:13 AM Subject: Re: ( ) diets Please understand that this is your opinion and not a fact. Problems with restrictive diet can be any numbers of issues going on and not at all related to this idea of an "allergy" to food. If it is working for you and your kid, great. But that doesn't mean it works for most kids with autism. That is just your opinion. If people want to buy into this theory, they can. There are tons of sites out there ready to tell you all about it! Also, having autism does not mean you are running around attacking people until someone takes you off gluten. My two ds's have HFA and neither one was out there doing that. Stimming went away with growth and maturity over the years and not with any special diet. I know people attribute rapid growth in speech, for example, to removing gluten from the diet or fish oil pills or other such things. "We removed all milk from his diet and then he began to talk!" My 3 ds's all had severe speech delays and their language all came in without any of those things. My one ds's initial problem with food was just the temperature of the food, we discovered! I remember at the time being so amazed to have figured it out, lol! It had nothing to do with "an opiate response." Once I realized it was the temperature (everything had to be cold!), we started to slowly warm things up over a long period of time. Today, he eats better than most NT people - all variety of food, hot or cold. My other ds is still extremely restrictive with what he will eat and it's a big problem. He is not jumping off of furniture because of what he is eating either. And it has nothing to do with allergies or opiate responses to certain things. He has severe problems with taste and texture and also is a rigid thinker. When we used to have a local autism group, most of the women in the group believed in the Great Plains lab and had a personal relationship with them. I saw them doing a lot of really weird things - I thought it was weird, I should say. They thought it made perfect sense. Here I was doing ABA therapy, which I am sure they thought was weird. Anyway, I really never saw a big improvement in their kids but they would all constantly insist that the new pill or removing something from the diet had fixed problems. They constantly said, "Look how much calmer he is now" and I'd look and the kid looked exactly the same as before. I couldn't figure it out. But they all agreed with each other that it was working. Anyway, the big story I am trying to tell: One lady was frantic one day when the family dog died. She apparently decided that her PDD kid had killed the dog. I don't remember why she came to that conclusion. He must have abused the dog in the past or something. Or she found the kid hitting the dog, who was dead. He was probably trying to get the dog to move or wake up really, in retrospect. But at any rate, she went on to discuss how he had recently been given a red Popsicle and she knew that was the cause of his "rage" against the dog. The red popsicle caused the kid to go ape and kill the dog! She must have went on for 10 days to two weeks about this awful experience in our local chat group - really awful experience to be sure! Well, turns out, after testing the dog, they found out he had paint in his system. At the time of his death, they were painting their bathroom. So that is how the dog actually died. And that red Popsicle never caused the rage that killed the dog after all. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Well I respect your opinion and I hope you respect mine. I think your popsicle story was amusing and sad at the same time. I think some parents do tend to go overboard with the associations, which was clearly the case with the mom in your popsicle story.. I have not noticed an increase in behaviors with dyes in my kids. But we avoid them anyway just because they are unhealthy. Misty From: Roxanna <MadIdeas@...> Sent: Thu, February 17, 2011 10:59:03 AMSubject: Re: ( ) diets I don't think you will advance your cause by telling us we are all ignorant. lol. There are not a lot of scientifically valid studies out there at all. That's the problem. I've seen people doing "the diet" and not getting anywhere, let alone "amazing stuff." You've seen amazing things. This doesn't mean that I am just ignorant and you're not. I don't agree with your conclusion. That is what my popsicle story was meant to illustrate - that the cause/effect relationship is not always what you first think it is. If your kid has a reaction to foods, then it is probably a good idea to work on her diet issues. That is common sense. It isn't that people can't have food allergies. What I meant by the fact that my kids are not running around attacking people is that this is not what AS kids do. You said, "many kids with AS do" this and I disagree. To relate attacking people to having AS, then to the diet a person is following is what I am disagreeing with. Your own child does this, I get that part. But I haven't met anyone else who is out there attacking people at large - no news reports, no friends whose kids have AS doing this. You are talking about this feature as if it's very common when I don't feel it is very common. Then you attribute it to eating certain foods and I would not agree that this is why either. For you, perhaps that is the cause of the problem. I wouldn't pretend to know. But you can't assume this is the cause for everyone else or even that all our kids are out there attacking people because they have AS and a food allergy. Hopefully, I explained that more clearly. I did not intend to put "words in your mouth" but am trying to disagree with exactly what you are saying. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 This is where I stand as well. I really struggle with not having the scientific research to back the diets out there. I almost feel as if some doctors are pushing these labs and these diets on children and parents to give them some sense of hope. I do believe that the diets have helped some children, but I actually asked my mother (who is a special needs teacher) if she noticed any difference in those that were on the diets and those that were not (in behaviors in such) and she didn't feel as if she did. I also struggle with the whole vaccine debate. I am not sure I really like the whole schedule that has been placed with the vaccines, so I may split some up with my daughter, but honestly my children will both receive all of their vaccines (except that new one for girls, until there is more research out there), because I would feel horrific if I was the mom that didn't vaccinate and then my child got the disease. By the way, I am an RN as well, with a Bachelors, and honestly, I need that scientific research. It is important to me. I don't mind placing my child on supplements (that are proven) but I am not going to spend my life savings (as if I had any on unproven or quesionable things that probably aren't going to work. I do believe in therapy- it has helped my daughter greatly, and ABA and other proven therapies..... Carolyn From: Roxanna <MadIdeas@...> Sent: Thu, February 17, 2011 10:44:09 AMSubject: Re: ( ) diets That's the point. It's not "clearly working for so many children." It is working for yours. I think meant that because she is a nurse, she looks to scientific research to back up claims. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 That’s exactly what I meant. There is no scientific research to back up these claims. Now, I am not saying the professionals that are advocating diets and alternative treatments can’t show you “research†that backs up their claims but when you look at it you will see that it is research done without using the scientific method. People have the right to do whatever diet they think works for their child. But, if diets, chelation, and other alternative treatments really did reduce symptoms or “cure†autism there wouldn’t be a need for this group. AS would be a thing of the past and we wouldn’t be on here discussing it. Now, regarding diet: my 20 year old Aspie son absolutely bounces off the wall with too much sugar intake. But, my NT children were the same way when they were younger. So, I restricted their sugar intake. The difference is that as they grew older they learned to limit their sugar intake themselves. My Aspie didn’t and we still have to remind him to watch his sugar intake. But, I don’t think too much sugar increases his AS symptoms or limiting it decreases them. Excessive sugar makes many people hyper. From: [mailto: ] On Behalf Of RoxannaSent: Thursday, February 17, 2011 10:44 AM Subject: Re: ( ) diets That's the point. It's not " clearly working for so many children. " It is working for yours. I think meant that because she is a nurse, she looks to scientific research to back up claims. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 BTW, my 14-yr-old son with Aspergers has never "attacked" me. Ever. From: md l <dontblinkhs@...> Sent: Thu, February 17, 2011 9:47:01 AMSubject: Re: ( ) diets Wow, I am surprised at the lack of knowledge about this on this group. There is plenty of research done on this. Have you ever tried it yourself or even fully researched it past reading a simple article? Sounds like you are dismissing this without fully understanding the science behind it (and yes, there is science there.. do the research). I apologize for saying "most kids" or whatever I said. But it is not my imagination AT ALL. My child clearly has a reaction to certain foods. The very foods she tested positive for. If she didn't, I certainly wouldn't have kept her on this diet for so long.. I would love for us to all go back to eating regular foods!! I found out that I have celiac disease during all this, which has saved me from a lot of issues. So this definitely runs in my family. And "running around attacking people" is not what she does.. And that is not what makes her have Asperger's. You are making assumptions and putting words in my mouth and that is not fair. She has aggression issues for sure and maybe I worded that wrong.. She has explosive behavior at times and will attack siblings or even me just as many kids with Asperger's do. But that is not what makes her have Asperger's. Geez. Misty From: Roxanna <MadIdeas@...> Sent: Thu, February 17, 2011 9:13:29 AMSubject: Re: ( ) diets Please understand that this is your opinion and not a fact. Problems with restrictive diet can be any numbers of issues going on and not at all related to this idea of an "allergy" to food. If it is working for you and your kid, great. But that doesn't mean it works for most kids with autism. That is just your opinion. If people want to buy into this theory, they can. There are tons of sites out there ready to tell you all about it! Also, having autism does not mean you are running around attacking people until someone takes you off gluten. My two ds's have HFA and neither one was out there doing that. Stimming went away with growth and maturity over the years and not with any special diet. I know people attribute rapid growth in speech, for example, to removing gluten from the diet or fish oil pills or other such things. "We removed all milk from his diet and then he began to talk!" My 3 ds's all had severe speech delays and their language all came in without any of those things. My one ds's initial problem with food was just the temperature of the food, we discovered! I remember at the time being so amazed to have figured it out, lol! It had nothing to do with "an opiate response." Once I realized it was the temperature (everything had to be cold!), we started to slowly warm things up over a long period of time. Today, he eats better than most NT people - all variety of food, hot or cold. My other ds is still extremely restrictive with what he will eat and it's a big problem. He is not jumping off of furniture because of what he is eating either. And it has nothing to do with allergies or opiate responses to certain things. He has severe problems with taste and texture and also is a rigid thinker. When we used to have a local autism group, most of the women in the group believed in the Great Plains lab and had a personal relationship with them. I saw them doing a lot of really weird things - I thought it was weird, I should say. They thought it made perfect sense. Here I was doing ABA therapy, which I am sure they thought was weird. Anyway, I really never saw a big improvement in their kids but they would all constantly insist that the new pill or removing something from the diet had fixed problems. They constantly said, "Look how much calmer he is now" and I'd look and the kid looked exactly the same as before. I couldn't figure it out. But they all agreed with each other that it was working. Anyway, the big story I am trying to tell: One lady was frantic one day when the family dog died. She apparently decided that her PDD kid had killed the dog. I don't remember why she came to that conclusion. He must have abused the dog in the past or something. Or she found the kid hitting the dog, who was dead. He was probably trying to get the dog to move or wake up really, in retrospect. But at any rate, she went on to discuss how he had recently been given a red Popsicle and she knew that was the cause of his "rage" against the dog. The red popsicle caused the kid to go ape and kill the dog! She must have went on for 10 days to two weeks about this awful experience in our local chat group - really awful experience to be sure! Well, turns out, after testing the dog, they found out he had paint in his system. At the time of his death, they were painting their bathroom. So that is how the dog actually died. And that red Popsicle never caused the rage that killed the dog after all. Roxanna“Our lives begin to end the day we become silent about things that matter.†- Luther King, Jr. ( ) diets Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on GF or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!-Tania Quote Link to comment Share on other sites More sharing options...
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