Hi i'm new

[Guest guest]

welcome.... Warm regards, Adrienne

From: leenye84 <leenye84@...>Subject: Hi I'm Newno-forced-vaccination Date: Wednesday, December 3, 2008, 1:30 PM

please check out my ANTI Vaccine/Modernmedic ine myspace and be my friend there.www.myspace. com/injection101

[Guest guest]

Hullo Leeny and Welcome. WOWOWOW What an impressive site. You have been busy, as well as creative. Great one stop site for so very much information and truth. Keep the faith and thank you for all your great work. Kudos!!! That song was soooo haunting! Glad Day ~ Karla in IL

[Guest guest]

Deb: you should bring anything that's going on up to your rheumatologist. If

you're having a lung problem it could well be relevant if for no other reason

than that you will likely have to have a chest x-ray before starting on almost

any of the drugs that are used to control PsA. Chronic lung problems (or even

ones that are currently dormant) can be dramatically affected by them since

these drugs weaken your immune system. When I had my chest x-ray, I got sent to

a communicable disease specialist because I had spots on my lungs that were

calcified. Turned out he recognized them right away as the " leftovers " of

exposure to histoplasmosis, the result of growing up in central IL where almost

everyone has been exposed. So, it wasn't a problem unless I took Remicade which

(for some reason) can eat thru the calcification and let loose the

histoplasmosis spores.

Joanna Hoelscher

[Guest guest]

Deb,

Welcome to the group. I would definitely mention any concerns you have. The MD

may or may not have an answer for you. I have had to do a lot of my own research

about the disease. Because psoriatic arthritis is an auto immune disease and our

immune systems are not functioning as they should our whole bodies can be

affected in different ways.

I was diagnosed at 39 and I know what you are saying about feeling like an old

lady. There is help available so don't despair. I am on meds now and can

function again. Ask a lot of questions and do your own research. I have found

that when I started being more actively involved in my own care by researching

and altering my diet and lifestyle, I felt much more in control of my disease

instead of it controlling me. Hope you find a lot of support here. God Bless,

Patty

[Guest guest]

Hi Deb,

I would mention everything to your doctor. Before you go to your appointment

take some time to research PsA so you know what the symptoms are and because

doctors don't always know all the answers. By lung issues do you have asthma? I

hope you get a definite diagnosis so you can start treatment. Be well.

Lori

[Guest guest]

Thanks so much for your support ladies. I had never had any lung problems before

but ended up with pleurisy in my late 20s. It went away but all was fine for

long time then a few years ago I started coughing and have not been able to stop

(I don't mean ever but its like a bad cough that just won't go away.) They just

diagnosed 'adult asthma even though I've never in my life had an asthma attack

and gave me inhalers to control it but they don't really work. My lung feel

almost constantly inflamed and any change in the weather, or exercising, the

smell of perfumes or cleaning products..anything starts a coughing fit. I heard

that psoriatic arthritis can effect organs in the body as well as the joints and

I wondered if there could be a connection.

Deb

[Guest guest]

Hi, I'm new on here. I was diagnosed with PsA? in Sept 09 & have been on LDN for

almost 2 weeks now & am sure (although I began on only one ml then gradually up

to 3ml) it's had an amazing effect. Before, I was using morphine to sleep for

perhaps 2hrs at a time & codeine to try relieve pain during the day. Now I'm

sleeping all night & use nothing for pain relief. In fact, when not moving I

feel hardly any pain!

But..... a query someone may help me with.....whereas before the LDN I was able

to make a fist despite sausage fingers, I can no longer do that & my fingers &

toes are much more swollen, but painful only when I move. It's a small price to

pay though! I was told by my rheumy to take methotrexate which I REALLY didn't

fancy. Anybody any ideas please! Also, anybody know whether marijuana & LDN are

compatible?!

Mo Schofield <footloosefancy3@...>

[Guest guest]

Hi Deb: Just wanted say that you should bring up everything when you see your

rheumatologist. Also, be you own advocate and research everything you have a

question about. A great place to get very up to date info on PA is the

Psoriasis Foundations website:

http://www.psoriasis.org

I find that they have more info then even the Arthritis Foundation. Good luck

to you and I hope you are feeling better soon! Deanna

[Guest guest]

Hi,

I had psoriasis from the age of 28 & now I am 52.

Also PsA since last 7 yrs.

For psoriasis you can try getting help from Dr Madalene Heng, Oxnard, CA.

I followed her treatment during 2008/2009 & would say with 90-95% success.

You can e mail her for getting more information

madaleneheng@... 

I had an appointment with her on Sept 30th 2008 (traveled from India)  & was

amazed with the knowledge she has on the subject & the number of research papers

she has submitted.

Avoiding inflammatory foods help control my joint pains.

 

Regrds,

Padmesh

India

[Guest guest]

Hi Everyone

I've joined your group, to try to find out more about Aspergers.

I hope you will take me under your wings as it isn't actually my children that

have it, but my Son's girlfriend Marissa

She told me she has Aspergers, but I was afraid of upsetting her by asking what

it entails as this is all very new to me.

Her Mum has told me briefly about some of her symptoms, and since I have noticed

a few.

Her mum says she doesn't show her feelings very well, yet she is very loving

towards my Son and esp my Baby Granddaughter.

Sometimes we can be sat in the lounge and she is very quiet, at first I thought

she was shy, but her mum says this is her way.

I get on really well with Marissa and she is a lovely girl.

Marissa is at college doing brick laying, and also is training to be a boxer.

This week she was on about leaving college as she is struggling with the theory

side of it, but both her mum and myself have reassured her we will help her get

through this, and she actually has a meeting with her tutor today to see if they

can get her extra help.

So what I'm really asking is how best I can offer help and support to her by

having a better understanding of what her condition entails by reading and

listening to you all in this group.Thank you.

[Guest guest]

Wow, Carolyn,

You are an amazing mom!!!! I think you're doing all you can do!! Accepting her and accepting your son's decision. Having contact with HER mom. Good for you!!!

Is it too much to say that I love you? he he. Hugs.

Robin

"Normal is just

a cycle

on a washing machine....."

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 8:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Hi

Thank you for saying I'm an amazing mum, and for taking the time to read and reply to my message. I have told her I love her, and she has responded by saying she loves me too.

Marissa got good results from college today, they are going to give her the extra help she needs to get through the theory side of her course, and I told her I was proud of her and I know she will do well.

Carolyn

From: and/or Robin Lemke <jrisjs@...> Sent: Thu, 20 January, 2011 13:34:02Subject: Re: ( ) Hi i'm new

Wow, Carolyn,

You are an amazing mom!!!! I think you're doing all you can do!! Accepting her and accepting your son's decision. Having contact with HER mom. Good for you!!!

Is it too much to say that I love you? he he. Hugs.

Robin

"Normal is just

a cycle

on a washing machine....."

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 8:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

That's awesome that she got good results back. Ya know, if we all had good, decent, accepting people in our lives, imagine how nice it would be.......sigh.

(Oh....and I'm s' wife, Robin. We just have both of our names on the "title". he he)

Robin

"Normal is just

a cycle

on a washing machine....."

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 8:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Hi Carolyn,

Wow, that is just wonderful that you care enough to go through the trouble to find out about Aspergers and join this group. That's so great! You're son is very lucky to have a Mom like you. I hope all goes well with your son and Marrisa.ne

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 9:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Hi ne

Thank you for that it means a lot, I can tell from the messages I have read on here that your all a strong supportive group to each other, and even though I may not reply to some of the messages, it doesn't mean I don't read them, because I do, its just I feel out of my depth with some of them and I think it's due to me still being new to this condition, and still learning about it.

I have sat and talked to Marissa today about her Aspergers, and I don't like to push it, I don't want her to think I'm judging her or getting onto her for having it, but I am intrested in finding out all about it.

She did tell me she wasn't dagnosed until year 11 at school, so the poor love had had to go through her earlier years of school struggling, but not knowing why.

When she stays over on the days she's not in college we tend to spend the day together and talk as my Son is at work.

I know her mum has said she has had outbursts at home, but she has never had one at my home, but now if she did I would be able to understand what it was. One thing I was thinking about and that is is it genetic could it be passed on to any children she has or is it just that it affects people in general, not that it would bother me if it did as any child born into our family will be loved the same as the next.

Carolyn

From: susanne hansen <s_hansen34@...> Sent: Fri, 21 January, 2011 7:06:08Subject: Re: ( ) Hi i'm new

Hi Carolyn,

Wow, that is just wonderful that you care enough to go through the trouble to find out about Aspergers and join this group. That's so great! You're son is very lucky to have a Mom like you. I hope all goes well with your son and Marrisa.ne

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 9:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Thank you for your response Robyn it means a lot.

Carolyn

From: and/or Robin Lemke <jrisjs@...> Sent: Fri, 21 January, 2011 3:10:33Subject: Re: ( ) Hi i'm new

That's awesome that she got good results back. Ya know, if we all had good, decent, accepting people in our lives, imagine how nice it would be.......sigh.

(Oh....and I'm s' wife, Robin. We just have both of our names on the "title". he he)

Robin

"Normal is just

a cycle

on a washing machine....."

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 8:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Yes, Carolyn, there is a genetic link. From: [mailto: ] On Behalf Of carolyn whittakerSent: Friday, January 21, 2011 6:54 PM Subject: Re: ( ) Hi i'm new Hi ne Thank you for that it means a lot, I can tell from the messages I have read on here that your all a strong supportive group to each other, and even though I may not reply to some of the messages, it doesn't mean I don't read them, because I do, its just I feel out of my depth with some of them and I think it's due to me still being new to this condition, and still learning about it.I have sat and talked to Marissa today about her Aspergers, and I don't like to push it, I don't want her to think I'm judging her or getting onto her for having it, but I am intrested in finding out all about it.She did tell me she wasn't dagnosed until year 11 at school, so the poor love had had to go through her earlier years of school struggling, but not knowing why.When she stays over on the days she's not in college we tend to spend the day together and talk as my Son is at work.I know her mum has said she has had outbursts at home, but she has never had one at my home, but now if she did I would be able to understand what it was. One thing I was thinking about and that is is it genetic could it be passed on to any children she has or is it just that it affects people in general, not that it would bother me if it did as any child born into our family will be loved the same as the next.Carolyn From: susanne hansen <s_hansen34@...> Sent: Fri, 21 January, 2011 7:06:08Subject: Re: ( ) Hi i'm new Hi Carolyn,Wow, that is just wonderful that you care enough to go through the trouble to find out about Aspergers and join this group. That's so great! You're son is very lucky to have a Mom like you. I hope all goes well with your son and Marrisa.neFrom: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 9:14 PM Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Hi Thank you for that, so if they do end up have a family together, we now know it could be that their child may have Aspergers, and can be aware to look for the signs. CarolynFrom: Elgamal <cindyelgamal@...> Sent: Sat, 22 January, 2011 14:54:36Subject: RE: ( ) Hi i'm new

Yes, Carolyn, there is a genetic link. From: [mailto: ] On Behalf Of carolyn whittakerSent: Friday, January 21, 2011 6:54 PM Subject: Re: ( ) Hi i'm new Hi ne Thank you for that

it means a lot, I can tell from the messages I have read on here that your all a strong supportive group to each other, and even though I may not reply to some of the messages, it doesn't mean I don't read them, because I do, its just I feel out of my depth with some of them and I think it's due to me still being new to this condition, and still learning about it.I have sat and talked to Marissa today about her Aspergers, and I don't like to push it, I don't want her to think I'm judging her or getting onto her for having it, but I am intrested in finding out all about it.She did tell me she wasn't dagnosed until year 11 at school, so the poor love had had to go through her earlier years of school struggling, but not knowing why.When she stays over on the days she's not in college we tend to spend the day together and talk as my Son is at

work.I know her mum has said she has had outbursts at home, but she has never had one at my home, but now if she did I would be able to understand what it was. One thing I was thinking about and that is is it genetic could it be passed on to any children she has or is it just that it affects people in general, not that it would bother me if it did as any child born into our family will be loved the same as the next.Carolyn From: susanne hansen <s_hansen34@...> Sent: Fri, 21 January, 2011 7:06:08Subject: Re: ( ) Hi i'm new Hi Carolyn,Wow, that is just wonderful that you care enough to go through the trouble to find out about Aspergers and join this group. That's so great! You're son is very lucky to have a Mom like you. I hope all goes well with your son and Marrisa.neFrom: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 9:14 PM Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son

and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Carolyn , i wish their were more people in the world like you , even tho she is not your daughter , you cared enough and had enough compassion to learn about her disorder!! I have three boys , and i often think if they ever meet a girl what they will be like , and what her parents will think of my son..... i can only hope that if they do find a special girl , that her parents will be as open minded and loving as you are!!! MeaghanFrom:

carolyn whittaker <crlyn_whittaker@...> Sent: Fri, January 21, 2011 7:15:40 PMSubject: Re: ( ) Hi i'm new

Thank you for your response Robyn it means a lot.

Carolyn

From: and/or Robin Lemke <jrisjs@...> Sent: Fri, 21 January, 2011 3:10:33Subject: Re: ( ) Hi i'm new

That's awesome that she got good results back. Ya know, if we all had good, decent, accepting people in our lives, imagine how nice it would be.......sigh.

(Oh....and I'm s' wife, Robin. We just have both of our names on the "title". he he)

Robin

"Normal is just

a cycle

on a washing machine....."

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 8:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.

[Guest guest]

Hi Carolyn,

It is so nice of you to want to reach out to her like you are. I'm sure it means a lot to her and your son that you are so opened minded and willing to find out what Asperger's is all about and not automatically judge her.

Even if your son and her don't end up staying together, I'm sure your son will be forever grateful to you.

If she does ever have an outburst with your son or in your presents the key is to try not to take anything personnal and to try to stay calm yourself. It is best to wait for the situation to defuse before you try to talk about whatever the issue was. Hopefully this will never happen, but it's best to know how to handle it if it does so you you will be prepared.

You said you are from the UK? Can I ask from where?

ne

From: carolyn <crlyn_whittaker@...>Subject: ( ) Hi i'm new Date: Wednesday, January 19, 2011, 9:14 PM

Hi EveryoneI've joined your group, to try to find out more about Aspergers.I hope you will take me under your wings as it isn't actually my children that have it, but my Son's girlfriend MarissaShe told me she has Aspergers, but I was afraid of upsetting her by asking what it entails as this is all very new to me.Her Mum has told me briefly about some of her symptoms, and since I have noticed a few.Her mum says she doesn't show her feelings very well, yet she is very loving towards my Son and esp my Baby Granddaughter.Sometimes we can be sat in the lounge and she is very quiet, at first I thought she was shy, but her mum says this is her way.I get on really well with Marissa and she is a lovely girl.Marissa is at college doing brick laying, and also is training to be a boxer.This week she was on about leaving college as she is struggling with the theory side of it, but both her mum and myself have reassured

her we will help her get through this, and she actually has a meeting with her tutor today to see if they can get her extra help.So what I'm really asking is how best I can offer help and support to her by having a better understanding of what her condition entails by reading and listening to you all in this group.Thank you.