Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 My primary dr referred me to a GI specialist, immediately after getting my viral load results. In fact the first clue was the liver enzymes, then the test for hcv antbodies. When she got those results she told me to make an appointment with the specialist and she had the viral load checked. No playing around. I was diagnosed Sept 10th and was on treatment by the middle of Nov. Luckily I'm on a PPO,and not an HMO. My liver enzymes were NOT that high. 50's, with 40 being high normal. If you can get a 2nd opinion, go to a gastroenterologist or hepatologist. In fact you might call the liver foundation for a referral. Sharon --- WILLIAM A WALTKE <kbwaltke@...> wrote: > Well with my son and daughter in law reading these > pages I don't want to scare either one of them or > get all blubbery and such but I'd pay for a 2nd > opinion out of my pocket if I could get him to go. > Or even just to know he has seen a specialist in the > field at the HMO would help. Anything besides your > healthy yet. Well he won't be one day .... and if > he is so healthy how is it he could pass out from > the fatique they say must be something else as hes > to healthy yet . The more I think about the info > they came home with from that class the more I know > he has to seek better answers than that. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Bullshit! Liver enzymes can be high if you drink alcohol. I'm sorry if I offend anyone but these people are NOT educated enough on hepc to be in the medical profession. They are what give HMO's a bad name. Fight them tooth and nail, go to th insurance board, be heard. OK, I'm ranting, but I come from a medical family and practiced dental hygiene for over 25 years and this REALLY makes me mad. If you don't do all the tests you cannot make a proper diagnosis. Sharon --- WILLIAM A WALTKE <kbwaltke@...> wrote: > Its been more than 3 months and he won't be tested > till July. I suppose > we should wait till July see what they say but they > actually told him the > viral load count was not the important indicator. I > think thats what they said > How can that be? That the liver enzymes are. From > everything I read here > that is not so. They have not even ran the test to > determin the viral load > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Now you see why in one hand I want to be hopeful but on the other hand I am scared for my son. I want him alive and well not listening to stuff that can ultimately harm him down the road I brought your message to special attention with Greg and just incase they are a little lax in reading or posting this weekend They are young and in love what can I say... they are doing Laundry!! LOL Re: [ ] Hello Bullshit! Liver enzymes can be high if you drinkalcohol. I'm sorry if I offend anyone but these peopleare NOT educated enough on hepc to be in the medicalprofession. They are what give HMO's a bad name. Fightthem tooth and nail, go to th insurance board, beheard. OK, I'm ranting, but I come from a medicalfamily and practiced dental hygiene for over 25 yearsand this REALLY makes me mad. If you don't do all thetests you cannot make a proper diagnosis. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Its been more than 3 months and he won't be tested> till July. I suppose> we should wait till July see what they say but they> actually told him the> viral load count was not the important indicator. I> think thats what they said> How can that be? That the liver enzymes are. From> everything I read here> that is not so. They have not even ran the test to> determin the viral load> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 I am going to be talking with Greg and again soon I am sure And I will let them know to get a specialist involved or I am willing to pay for a 2nd opinion if it takes it. I can't determine if treatment is crucial and important or not for right now. I can say this in my opinion the only tests done was the liver enzyme the ultrasound of the liver ( normal ) and hcv antibody. Thats it oh I take that back on other liver enzyme test. Thats it. That isn't enough for a potentially terminal virus. We need to know all we can is my opinion. Thanks Sharon I hope Greg and are reading this cause they were really happy with the no treatment needed nothing more to do prognosis. Moms secretly or not so secretly now that they are part of this list too scared. Re: [ ] Hello My primary dr referred me to a GI specialist,immediately after getting my viral load results. Infact the first clue was the liver enzymes, then thetest for hcv antbodies. When she got those results shetold me to make an appointment with the specialist andshe had the viral load checked. No playing around. Iwas diagnosed Sept 10th and was on treatment by themiddle of Nov. Luckily I'm on a PPO,and not an HMO. Myliver enzymes were NOT that high. 50's, with 40 beinghigh normal. If you can get a 2nd opinion, go to agastroenterologist or hepatologist. In fact you mightcall the liver foundation for a referral. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Well with my son and daughter in law reading these> pages I don't want to scare either one of them or> get all blubbery and such but I'd pay for a 2nd> opinion out of my pocket if I could get him to go. > Or even just to know he has seen a specialist in the> field at the HMO would help. Anything besides your> healthy yet. Well he won't be one day .... and if> he is so healthy how is it he could pass out from> the fatique they say must be something else as hes> to healthy yet . The more I think about the info> they came home with from that class the more I know> he has to seek better answers than that. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 No Sharon we don't know the genotype or anything. Just that he is positive for the antibodys had a high liver enzyme when he had a stomach bacteria called H-Pylori so they ran the hcv antibody test and did a liver ultrasound. Next blood test came back nearly normal on the liver enzymes and his ultrasound was normal so they said good to go. No genotype No viral load no nothing they say hes to healthy now so go home and prosper till July we will run one more blood test. Thats it. Well that and the class and don't drink alcohol and he should be just fine to be able to live with this. I don't want Greg mad at me but this is my son for pitys sake I want to save his life. I mean what mother wouldn't. Love Re: [ ] Hello> > > > You got that right! Even though I thought I had a> > very competent dr in the end. He took some time> > right at the beginning and we talked about this> > disease, the treatment, etc. but that was about> it.> > Unfortunately the dr's don't seem to have the time> > to spend with individual patients, they come in,> do> > their thing and they're out of there. Thank God> for> > the internet. Though you have to be careful not to> > believe everything out here, at least you can> > believe other people who have been through this. > > > -dz- > > Sharon Zeis <szeis_1@...> wrote: > > If you don't get educated about it, you'll never> > understand. I find that this and the other group> I'm> > in have been a Godsend, because people understand.> > > Sharon> > --- WILLIAM A WALTKE <kbwaltke@...> wrote:> > > Yup..... Greg makes it to the end of his work> day> > > 3/4ths in a fog and half dazed with fatigue by> the> > > time his work day is over. He was making a huge> > > mistake for awhile. He was so tired he was> > slamming> > > high protein drinks and protein bars trying to> > find> > > that energy..... big mistake.... its a wonder he> > > could find his way home. Seems the common> > > interpretation by most is geez he is getting > lazy> > > and irresponsible and even though inside he> really> > > does know how hard hes worked and his job is> > > really physical and manly man stuff and he> should> > > be able to work hard and play just as hard end> > > result his self esteem has plummeted into the> > > toilet..... and to him to say hey Im tired is> > just> > > inexcuseable. I just got on his brother hard> > core.> > > Moms can lecture whoo hoo you better believe> it> > > when they are on a roll. For a while there on> > > Friday nights they were toget off work and pack> > up> > > and go 2 hours up to the mountains where his> > brother> > > and his wife and kids live so they all could> > > snowboard and ski all weekend. Well they'd get> up> > > there late as it takes Greg and a while> at> > > the end of the work week to get things going to> > get> > > up there. His need to spend time with his bro> and> > > wife and have some family fun was writing> checks> > > his body couldn't cash. Which in turn meant> that> > > his brother and wife are up there thinking whats> > > wrong those lazy bums get off your duffers and> get> > > up here. I told his brother they need to> educate> > > themselves about this and get off his rear> before> > > dealing with me requires more effort than they> > want> > > to deal with!!! We have a rather complicated> > family> > > Greg and his only brother ...... married> > sisters.> > > Well I won't go into the rest of this...... but> > > suffice it to say Gregs reputation for lazy due> to> > > the fatigue is superceding his ability to give> a> > > hoot at times. He catches it from all possible> > > directions. I think his wife is starting to> > really> > > see this now too. And maybe between the two of> us> > > we can hope to get some attitudes corrected. > Sure> > > hope so cause if Greg is depressed that would be> > > why. > > > > > > > > > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 I just had my biological daughter tested (without her knowing) during her routine physical. She is 14 and a worrier, so I chose not to tell her unless she's positive. I know your son is grown but it doesn't stop us from wanting the best for him. If a biopsy showed NO liver damage, then it wouldn't be terrible to wait, but they do need that biopsy. And if he's a geontype 2 or 3 he has a pretty good chance of treatment putting him in remission. (there is no cure, you will always carry the virus unless they come up with a cure). The present treatments just make the viral load undetectable on blood tests, which makes the virus stop damaging the liver. That's our goal, controlling this dragon, so it can't control us. Good luck and if there is anything I can do to help let me know. Sharon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2002 Report Share Posted May 5, 2002 There is one way you can help, just do what you have always done be there and shoot straight from the hip. reads the mail and she will see this. And believe me this helps. Re: [ ] Hello I just had my biological daughter tested (without herknowing) during her routine physical. She is 14 and aworrier, so I chose not to tell her unless she'spositive. I know your son is grown but it doesn't stopus from wanting the best for him. If a biopsy showedNO liver damage, then it wouldn't be terrible to wait,but they do need that biopsy. And if he's a geontype2 or 3 he has a pretty good chance of treatmentputting him in remission. (there is no cure, you willalways carry the virus unless they come up with acure). The present treatments just make the viral loadundetectable on blood tests, which makes the virusstop damaging the liver. That's our goal, controllingthis dragon, so it can't control us. Good luck and ifthere is anything I can do to help let me know. Sharon__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 they checked me too for that arthritis due to the fact I was hurting so much in my joints..I do have Osteo arthritis they found out so you seee it there is a reasoon for checking him for it..He may be complaining of joint aches.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 dd is darling (well, sometimes darling lol) daughter naet is an allergy elimination treatment. uses muscle testing and accupuncture/accupressure. I paid $50 for the first treatment and $25 for subsequent treatments. I think it costs more for adults. have a look at naet.com we've only been going for a few weeks, so can't say if it's helping yet. Kathy in Canada > What is dd? And can you tell us more about NAET? How it works, what has been your experience? Cost/ Time involved? I see reference > to it occasionally but know no one who " has been there. " Thanks! > Ann > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 I did talk to my dr about that. He admitted that they do discourage drs from the more expensive tests/drugs, etc. They have guidelines that must be met before they allow certain procedures. It ticks me off when the dr prescribe one med and the hmo says, no you can only have this. -dz- <ralexan@...> wrote: Hi It sounds like you might be right about the HMO sparing expense. They don't mind taking your money, but sure don't want to let any of it go. HMO stands for Hand The Money Over. Re: [ ] Hello You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 I think that it is considered "chronic" if it persists for a year or more without clearing. -dz- WILLIAM A WALTKE <kbwaltke@...> wrote: Perhaps I get confused in Greg and s retelling of the class but what I understood them to say is he may be clearing this on his own. Well the tattoo responsible was a long time ago. So how does that reason out. I am just concerned that if he really should have treatment now..... he shouldn't be discouraged or influenced not to. [ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 If you accept that the condition of the liver is the main concern, then the PCR is not the greatest thing to tell, but neither are the enzyme counts. Only a biopsy will tell how the liver is faring, at least as far as I have been able to tell. -dz- WILLIAM A WALTKE <kbwaltke@...> wrote: Its been more than 3 months and he won't be tested till July. I suppose we should wait till July see what they say but they actually told him the viral load count was not the important indicator. I think thats what they said How can that be? That the liver enzymes are. From everything I read here that is not so. They have not even ran the test to determin the viral load Re: [ ] Hello> Without ALL the tests, how can they know?>> Sharon>>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 I agree there. Even on the treatment, my liver enzyme counts varied. There are many factors that can affect them. Alcohol, as you mentioned, certain pain relievers, etc. That's why I showed high enzyme levels on physicals in '87 '89 '93 etc. and nobody ever seemed too concerned over it. They kept telling me they were "slightly elevated" and I should re-test, but it never went any further than that. I wrongly assumed that if they were not worried about it, then I had no need to. -dz- Sharon Zeis <szeis_1@...> wrote: Bullshit! Liver enzymes can be high if you drinkalcohol. I'm sorry if I offend anyone but these peopleare NOT educated enough on hepc to be in the medicalprofession. They are what give HMO's a bad name. Fightthem tooth and nail, go to th insurance board, beheard. OK, I'm ranting, but I come from a medicalfamily and practiced dental hygiene for over 25 yearsand this REALLY makes me mad. If you don't do all thetests you cannot make a proper diagnosis. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Its been more than 3 months and he won't be tested> till July. I suppose> we should wait till July see what they say but they> actually told him the> viral load count was not the important indicator. I> think thats what they said> How can that be? That the liver enzymes are. From> everything I read here> that is not so. They have not even ran the test to> determin the viral load> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 He is..... his hands hurt so bad then they go numb may take after his Daddy.. Bill has Rhuematoid Arthritis not limited to the hands and arms. But he gets so bad it disables him. However Bill was tested for Hep C once Greg was diagnosed just to be sure...... Bill is negative so seems they don't go hand in hand. I am the one who is not tested yet. I was to be tested but somehow they didn't test for it. LOL Isn't that bizarre. Oh well next time the vampires are out I will ask them specifically to test for it once again. Re: [ ] Hello they checked me too for that arthritis due to the fact I was hurting so much in my joints..I do have Osteo arthritis they found out so you seee it there is a reasoon for checking him for it..He may be complaining of joint aches.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 What I find silly is IE they say oh you may clear this on your own yours is soooooo mild. Not thinking that if the exposure was 10 years ago... DUH if it was gonna clear it would have. I think that is their way of saying go away don't bother me. I really do feel that way. From what I learned so far most people are not even diagnosed in the first year. [ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 That is what I told Greg he said they do not recommend a biopsy with near normal enzymes as that is an unwarranted procedure that has risks associated to it. The ultrasound of the liver was normal so they are presuming the liver itself would be I guess. Greg hates doctors hospitals blood tests anything medical.. The irony of this is. About a year or less before the tattoo Greg cut himself very badly. He was bleeding just awful. They wanted to do a transfusion on him and he rufused it cause he didn't want to get a disease of any kind. So he goes and gets a tattoo ba da bing ba da boom..... You know though it does not matter he didn't choose this. He wanted a tattoo not hep c... unreal. Re: [ ] Hello> Without ALL the tests, how can they know?>> Sharon>>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 All I can say is I will do whatever it takes to get my son the care he needs and it darn well better not be money that has a thing to do with it. They pay alot of money out monthly to have health care. Re: [ ] Hello You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 I think most HMO's have a patient advocate. You might check on that. Sharon --- WILLIAM A WALTKE <kbwaltke@...> wrote: > All I can say is I will do whatever it takes to get > my son the care he needs and it darn well better not > be money that has a thing to do with it. They pay > alot of money out monthly to have health care. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 I will suggest this to Greg and You know when he was a little guy I could just strap him in the car seat and go to the doctors. Now he has to fasten his own saftey belt !!! Who said being Mom is always easy. Its Not. Re: [ ] Hello I think most HMO's have a patient advocate. You mightcheck on that. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> All I can say is I will do whatever it takes to get> my son the care he needs and it darn well better not> be money that has a thing to do with it. They pay> alot of money out monthly to have health care. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I know what you mean. Sharon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 my mother had Rhuematoid Arthritis. She was on SSI from when she was 37 untill she passed away. Terry WILLIAM A WALTKE <kbwaltke@...> wrote: He is..... his hands hurt so bad then they go numb may take after his Daddy.. Bill has Rhuematoid Arthritis not limited to the hands and arms. But he gets so bad it disables him. However Bill was tested for Hep C once Greg was diagnosed just to be sure...... Bill is negative so seems they don't go hand in hand. I am the one who is not tested yet. I was to be tested but somehow they didn't test for it. LOL Isn't that bizarre. Oh well next time the vampires are out I will ask them specifically to test for it once again. Re: [ ] Hello they checked me too for that arthritis due to the fact I was hurting so much in my joints..I do have Osteo arthritis they found out so you seee it there is a reasoon for checking him for it..He may be complaining of joint aches.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 RA is a very cruel thing. I have seen Bill suffer so with it.. Breaks the heart. Re: [ ] Hello they checked me too for that arthritis due to the fact I was hurting so much in my joints..I do have Osteo arthritis they found out so you seee it there is a reasoon for checking him for it..He may be complaining of joint aches.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 It's hard to fight the dr's. I'm curious, if Greg's enzymes were normal, what led them to suspect that he may be infected with hcv? It's not a test they normally do without some reason to suspect it's presence. Normally the presence of elevated AST/ALT is what may prompt them to test for hcv. -dz- WILLIAM A WALTKE <kbwaltke@...> wrote: That is what I told Greg he said they do not recommend a biopsy with near normal enzymes as that is an unwarranted procedure that has risks associated to it. The ultrasound of the liver was normal so they are presuming the liver itself would be I guess. Greg hates doctors hospitals blood tests anything medical.. The irony of this is. About a year or less before the tattoo Greg cut himself very badly. He was bleeding just awful. They wanted to do a transfusion on him and he rufused it cause he didn't want to get a disease of any kind. So he goes and gets a tattoo ba da bing ba da boom..... You know though it does not matter he didn't choose this. He wanted a tattoo not hep c... unreal. Re: [ ] Hello> Without ALL the tests, how can they know?>> Sharon>>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I guess you just answered a question I asked a few posts ago. Even though you suspect the tattoo, there's no way to know for sure if that was it. So even if you feel sure he's had it for over a year, maybe they do not. Still the presence of the antibodies, doesn't even prove he has the virus, it could already be cleared. The antibodies will never go away, even if he does clear the virus. I think some sort of PCR test is necessary just to prove or disprove that he even has hcv. -dz- WILLIAM A WALTKE <kbwaltke@...> wrote: No Sharon we don't know the genotype or anything. Just that he is positive for the antibodys had a high liver enzyme when he had a stomach bacteria called H-Pylori so they ran the hcv antibody test and did a liver ultrasound. Next blood test came back nearly normal on the liver enzymes and his ultrasound was normal so they said good to go. No genotype No viral load no nothing they say hes to healthy now so go home and prosper till July we will run one more blood test. Thats it. Well that and the class and don't drink alcohol and he should be just fine to be able to live with this. I don't want Greg mad at me but this is my son for pitys sake I want to save his life. I mean what mother wouldn't. Love Re: [ ] Hello> > > > You got that right! Even though I thought I had a> > very competent dr in the end. He took some time> > right at the beginning and we talked about this> > disease, the treatment, etc. but that was about> it.> > Unfortunately the dr's don't seem to have the time> > to spend with individual patients, they come in,> do> > their thing and they're out of there. Thank God> for> > the internet. Though you have to be careful not to> > believe everything out here, at least you can> > believe other people who have been through this. > > > -dz- > > Sharon Zeis <szeis_1@...> wrote: > > If you don't get educated about it, you'll never> > understand. I find that this and the other group> I'm> > in have been a Godsend, because people understand.> > > Sharon> > --- WILLIAM A WALTKE <kbwaltke@...> wrote:> > > Yup..... Greg makes it to the end of his work> day> > > 3/4ths in a fog and half dazed with fatigue by> the> > > time his work day is over. He was making a huge> > > mistake for awhile. He was so tired he was> > slamming> > > high protein drinks and protein bars trying to> > find> > > that energy..... big mistake.... its a wonder he> > > could find his way home. Seems the common> > > interpretation by most is geez he is getting > lazy> > > and irresponsible and even though inside he> really> > > does know how hard hes worked and his job is> > > really physical and manly man stuff and he> should> > > be able to work hard and play just as hard end> > > result his self esteem has plummeted into the> > > toilet..... and to him to say hey Im tired is> > just> > > inexcuseable. I just got on his brother hard> > core.> > > Moms can lecture whoo hoo you better believe> it> > > when they are on a roll. For a while there on> > > Friday nights they were toget off work and pack> > up> > > and go 2 hours up to the mountains where his> > brother> > > and his wife and kids live so they all could> > > snowboard and ski all weekend. Well they'd get> up> > > there late as it takes Greg and a while> at> > > the end of the work week to get things going to> > get> > > up there. His need to spend time with his bro> and> > > wife and have some family fun was writing> checks> > > his body couldn't cash. Which in turn meant> that> > > his brother and wife are up there thinking whats> > > wrong those lazy bums get off your duffers and> get> > > up here. I told his brother they need to> educate> > > themselves about this and get off his rear> before> > > dealing with me requires more effort than they> > want> > > to deal with!!! We have a rather complicated> > family> > > Greg and his only brother ...... married> > sisters.> > > Well I won't go into the rest of this...... but> > > suffice it to say Gregs reputation for lazy due> to> > > the fatigue is superceding his ability to give> a> > > hoot at times. He catches it from all possible> > > directions. I think his wife is starting to> > really> > > see this now too. And maybe between the two of> us> > > we can hope to get some attitudes corrected. > Sure> > > hope so cause if Greg is depressed that would be> > > why. > > > > > > > > > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 The opposite is really true. The younger the patient and the less advanced the disease is, the better the chance for successful treatment. Successful treatment may be the only way to avoid the necessity of a transplant. We really have a lot of ignorance to fight in getting this taken care of. What they are saying may be true of transplants. When treatment fails or is not possible then transplant becomes the best option when the disease has progressed to it's late stages. Then you have to hope there is a donor available. -dz- WILLIAM A WALTKE <kbwaltke@...> wrote: I would say that is true except at this class they kept stressing the cost of treatment and I am not sure how many liver transplants they even consider doing. They kepts saying treatment is only for those who are very sick with it. I am not sure I agree. If the virus is left alive and kicking .... won't it do its damage eventually. Why not do it when there is little damage instead of so much. Just a thought. I am sure I just don't like the idea of some virus in my son. Re: [ ] Hello You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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