Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Robyn: Thank you for you advice. I will try to stay away from those products that you mention. I thank you for you prayers. SAM > Hello Sam, > My name is Robyn, I am 43 & live in beautiful Nth Queensland, Australia. I was so sad to read your story...but I feel your pain & frustration. I am a Manager with 13 staff & look after 2 offices. My flare up at the moment is really bad, I have both wrists, neck, finger flared up this time. I have my hand in a splint as movement is so painful. But, I must work as I have committments & I sometimes wonder how I can go on. Concentrating is difficult as I take alot of painkillers. Like you I get annoyed wiyh myself & my limitiations. I have refused to take anymore Methotrexate as I had liver problems the previous 3 times.I take Prednisone, Voltaren & Prothiaden & pain killers, but more importantly..DIET!. Avoid foods that " flare you up " especially, potatoes, tomato, eggplant & peppers. I have also cut out caffiene. I find this helps with pain control. Good luck with your battle, it's just as much a battle as with the Secret Service...lol. I'll pray for to feel better as soon as you read this email, > Regards..Robyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 --- dr mano mustafa <drahmedmac@...> wrote: please also tell me about colloidal sillver at what dose i > take it > and for how long. You shouldn't take it at all. It can be dangerous. It is a metal, it is stored in the body in various tissues and organs, INCLUDING THTE LIVER, and can be toxic to the liver. Iron is toxic to the liver. Copper, gold, lead. Almost anything where there is excess that is not excreted from the body can be toxic to the liver. (This included vitamins like vitamin A, D, and K.) There are MUCH safer and also much more effective alternatives to use if you don't want to use the pegylated interferon/ribavirin combo. Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn- Welcome and I am so sorry to hear that 4 out of 5 have lyme. I am a mom of 6, my husband, myself, and 5 of my 6 kids have lyme. You didn't mention of you all are being treated, seeing a LLMD, etc. Maybe I can help, I am in remission with lyme and cured of the co-infections of babesia, bartonella, mycoplasma, HHV-6 and Epstein barr after 3 1/2 yrs. of tx and was paralyzed from lyme. I have been a lyme advocate for 6 yrs. and am in the natural health field. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Dawn, We to have four of the five of us sick with Lyme Disease if you ever want to talk let me know...sounds like we have some things in common. Cyntha Landon in Lititz The ones of us infected is me, Myesha, Celeste and ...husband is being tested he has been having trouble off and on. Re: [ ] Hello Dawn- Welcome and I am so sorry to hear that 4 out of 5 have lyme. I am a mom of 6, my husband, myself, and 5 of my 6 kids have lyme. You didn't mention of you all are being treated, seeing a LLMD, etc. Maybe I can help, I am in remission with lyme and cured of the co-infections of babesia, bartonella, mycoplasma, HHV-6 and Epstein barr after 3 1/2 yrs. of tx and was paralyzed from lyme. I have been a lyme advocate for 6 yrs. and am in the natural health field. sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 I do not quite understand this message??? Re: [ ] Hello Hi, Dawn, Welcome. Yes, every fall in particular. I'm in the worst crash now. Why is this, does anyone have a clue? It's very discouraging, isn't it? Wellness to you, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hi Marie, Yes It's very depressing. Especially being that Bet starts school now... she missed today. Last year she missed 40 days. I have an appt for her thursday. She cant miss more then 24 days of school so I'm praying that she will go into remission. She was bussing tables over the summer, she was in so much pain that she was crying at work and the next day she couldn't get out of bed. It's really weird I never put lyme and ms in the same catagory but you know now that i think about it Bet does alot of the snytoms my mom had. I know more people with lyme than without. Lyme is very bad in this area. I'm going to see if i can start a petition to make lyme titters free. Its sinful if you dont have insurance they dont test you cause the tests are over 500.00 so they just treat you for it and you might not even have it. Dawn P.S. I dont know why maybe the seasons maybe the change of weather especially hot to cold???? I'm clueless LOL --------------------------------- - We Remember 9-11: A tribute to the more than 3,000 lives lost Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 LOL Hi Holly the question was does anyone get worse in the fall and spring??? --------------------------------- - We Remember 9-11: A tribute to the more than 3,000 lives lost Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Sure I'd love to talk.... email me please. Thanks Dawn --------------------------------- - We Remember 9-11: A tribute to the more than 3,000 lives lost Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 I have always gotten worse in the fall and winter. The cold and me do not get along very well. With such bad arthritis and bursitis they just do not mix. But then this summer I had a horrible time with hot flashes so can anyone reallly ever know with this disease????I do not think so. Re: [ ] Hello LOL Hi Holly the question was does anyone get worse in the fall and spring??? --------------------------------- - We Remember 9-11: A tribute to the more than 3,000 lives lost Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Dawn, Is this for me or someone else? If it is for me I need your e-mail address. I just get confused sometimes on this panel because unless someone specifically says your name you don't know who it is for. holly Re: [ ] Hello Sure I'd love to talk.... email me please. Thanks Dawn --------------------------------- - We Remember 9-11: A tribute to the more than 3,000 lives lost Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 TrueColorz, I can't offer a whole lot hers, since I was just diagnosed on Friday! But I do know this - I have a Hepatologist (a subspecialty of Gastroenterology) and he could tell that I had AIH by looking at my bloodwork and most especially, my biopsy slides. I picked up my slides from the hospital and took them to his office myself. He also noticed something that the pathologist who did my biopsy report didn't even notice - the presence of a bile duct disease. Right now I'm on 1,500 mg Urso a day. I'm not sure why he didn't put me on Prednisone but I have another appointment in a month, at which time I'll get the results of my MRI of the bile duct and DNA and chromosomal bloodwork. I'll know more then about the course of my treatment. I'm also new to this list and would appreciate any information and tips I can get my hands on. Bless all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Welcome Iggy.....you will gets lots of info here! Sorry that you have to join this club, but is sounds like you have an awesome doctor! That is good...... debby Re: [ ] Hello TrueColorz,I can't offer a whole lot hers, since I was just diagnosed on Friday! But I do know this - I have a Hepatologist (a subspecialty of Gastroenterology) and he could tell that I had AIH by looking at my bloodwork and most especially, my biopsy slides. I picked up my slides from the hospital and took them to his office myself. He also noticed something that the pathologist who did my biopsy report didn't even notice - the presence of a bile duct disease. Right now I'm on 1,500 mg Urso a day. I'm not sure why he didn't put me on Prednisone but I have another appointment in a month, at which time I'll get the results of my MRI of the bile duct and DNA and chromosomal bloodwork. I'll know more then about the course of my treatment.I'm also new to this list and would appreciate any information and tips I can get my hands on. Bless all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 Check out naturalhealingsolutions.com. > Hello, I'm new here.†What is the Russ Protocol and is >there a web site/information I can look up to read >about it? >Has anyone used SF722 and what did/do you think?†>I can answer yes to almost all the quetions asked >about candidas so I know I have to do something. >Has anyone ever heard of yeast pockets or sacks.†I >have had golfball sized " polyps " removed from my >maxillary sinus cavities and sinus areas twice and one >doctor said he hadn't seen polyps like that before and >I'm thinking they could be a yeast pocket or sack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 Hello, ML, and welcome. The " Russ protocol " is a diet/supplement plan. Some people seem to have luck with it, some didn't. The URL was provided above. But everyone's bodies are different, with differing degrees of illness, different symptoms, different strains of yeast, different food allergies, differences of opinion and results are bound to happen. I just ordered the SF-722. Again, I've heard both good and indifferent responses about it. I'm going to try both the Russ protocol, then the SF-722. If they work, I'll be very happy. And I won't know unless I try them. That's just me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 Hi, ML - I'm one of the ones who's seeing dramatic improvement on the " Russ protocol " --- and I've been adhering to every detail of the protocol, including the very restrictive diet. I think that some of the folks who've done most of the protocol but added things to the diet haven't had such good results. If you decide to do it, do it completely --- it's only for 30 days --- not a bad trade-off for the likelihood of getting well. Considering the fact that I'm 55 years old and have probably had candidiasis most of my life, I consider this turn-around to be pretty awesome. Good luck figuring out what you need to do. Connie > Hello, ML, and welcome. > The " Russ protocol " is a diet/supplement plan. Some people seem > to have luck with it, some didn't. The URL was provided above. But > everyone's bodies are different, with differing degrees of illness, > different symptoms, different strains of yeast, different food > allergies, differences of opinion and results are bound to happen. > I just ordered the SF-722. Again, I've heard both good and > indifferent responses about it. I'm going to try both the Russ > protocol, then the SF-722. If they work, I'll be very happy. And I > won't know unless I try them. That's just me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2003 Report Share Posted February 3, 2003 FPR UNSUBSCRIBE BILL_BUCK92647 [ ] Hello > Hi Everyone! I am an aunt of a recent near drown victim. His name is > Logan and he is 2 years old. I am trying to come up with the funds > and knowledge of HBOT. I have heard that this is a really good > treatment for this type of brain injury. He is not recieving any > kind of treatments or therapies that are benefiting him in any way. > They are basically medicating him to make him more comfortable. > Logan is covered by medicaid here in Indiana. He is diagnosed as a > vegatative state, his taking the C shape, sezuires every 5 minutes, > a trac and a G tube. Any one with any sort of info would be greatly > appreciated. > Thank you, > Heidi McMaster > > > _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._. > Unrestricted downloads of 50+ pdf files on HBOT efficacy medicaid/files/ and HDO-documentation/files/ > > Download your state EPSDT program http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word " ameliorate " . State Medicaid websites http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html > > Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm > > HBOT can save billions of dollars and millions of heartaches. Subscribe to by sending a blank email to mailto:medicaid-subscribe > > Unsubscribe? Click here mailto:medicaid-unsubscribe .. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2003 Report Share Posted February 3, 2003 Hi Heidi, we did a fundraiser which included setting up an account through our church, placing an article with a picture in the newspaper, and selling pins. We sent out letters to corporations, but this was unsuccessful. The teachers at my daughter's school joined in by having soup sales. We got assistance from local charities. People in the church organized a concert benefit, and friends put together bake sales. Some I know have raised money through cutting hair or selling raffle tickets or having a bingo game. I'm sure you will be able to come up will many creative ideas for your niece. Good luck to you. It was my sister as well who helped me so much in the beginning. It was she who coordinated the fundraisers for me. You are a real blessing for your family. Good luck to you. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2003 Report Share Posted February 3, 2003 >Hi Everyone! I am an aunt of a recent near drown victim. His name is >Logan and he is 2 years old. I am trying to come up with the funds >and knowledge of HBOT. I have heard that this is a really good >treatment for this type of brain injury. He is not recieving any >kind of treatments or therapies that are benefiting him in any way. >They are basically medicating him to make him more comfortable. >Logan is covered by medicaid here in Indiana. He is diagnosed as a >vegatative state, his taking the C shape, sezuires every 5 minutes, >a trac and a G tube. Any one with any sort of info would be greatly >appreciated. >Thank you, >Heidi McMaster > Heidi, While there is a certain amount of paperwork required to make a Medicaid request for reimbursement of HBOT, much of this work has already been done. No state Medicaid agency can now deny HBOT on the reason that it is " experimental and investigational " ; they must now first assess if HBOT is " necessary to correct or ameliorate. " On the files page at medicaid/files/ is a tremendous amount of data to substantiate the fact that HBOT is in fact " necessary to correct or ameliorate. " I encourage you to put together a formal Medicaid request. Members of this list will help you do it. One place to start: http://oceanhbo.com/client/studies/studies.htm . The first case study is a near drowning patient. Downloadable before/after video is found on that page. Let us help you through this. Don't hesitate to ask for help. Thanks for signing on. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened. " [Luke 11:10] Freels 2948 Windfield Circle Tucker, GA 30084-6714 770/491-6776 (phone and fax) 509/275-1618 (efax, sends fax as email attachment) mailto:dfreels@... http://www.freelanceforum.org/df Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 Heidi, First, I am sorry to hear about your nephew. While most of us have traveled this journey, it doesn't get any easier when we see a child suffer. I am the father of a 7 year old girl, who had died at birth (for 35 minutes). We did very well with various physical therapies and by giving her a lot of stimulation. This enables an injured person to learn to do things through a neuronal mechanism called " plasticity " ; that is, the brain adapts to changes and modifies itself in relation to stimulation it receives, or intentional learning (swinging a tennis racket, for example). The brains ability to adapt with " plasticity " is powerful; however, the bottom line is your nephew did injure his brain. So, now the question is what can be done about that injury. I unabashedly and adamantly endorse HBOT. Today, there is no real alternative to re-establish damaged neurons, other than HBOT. Simply, HBOT should help re-establish his damaged blood brain barrier (blood vessels supplying the brain); it should wake up neurons stunned due to the lack of oxygen, and/or glucose when he could not breath (no oxygen), and it can support axonal sprouting (plasticity and learning). For a near drowning child, it will take a lot of HBOT sessions. And, while you are giving him those sessions, you will need to stimulate him and give him physical and movement therapies. I have seen dramatic changes in my daughter - but that doesn't mean your nephew will respond the same, or better, or worse. My daughter is fully right in the middle of the response curve of kids. Some kids do absolutely great, while others may not respond at all. But, HBOT should be your first effort. And, the sooner the better. To check out some good centers, go to www.LittlestAngel.com goto the : Reources page look at : Before and After Videos Ocean Hyperbarics Harch Hyperbarics Santa Hyperbarics (this is where we are this week to treat - you can call me here at 310-260-0033.) Also, look at: www.HyperbaricOxygen.info goto : Medical News Look at : Congressional Testimony Presentation (pdf) for brain scans of vairous brain injury patients. There is also a Dr. Perlmutter in Naples FL. But, I have never spoken to anyone who has been to his clinic. So, I cannot say anything good or bad about him. Ocean Hyperbarics has a therapist nearby named Ray Cralle' . Ray has phenomenal hands and will help your nephew improve by reducing spasticity and high tone through myofacial therapies. Santa is great because there are a lot of additional therapists here. So, you can From Indiana, I would think Dr. Harch is easily accessible in New Orleans. He is also very good. ALso, when you go to www.LittlestAngel.com you can click on " 's Book " and read her story, but please say a prayer for and all the Friends of (this includes your nephew). This is a very long and difficult journey, but HBOT if the first good step. And the best way to take that step is first go to the best HBOT center you can get to and try to learn as much as possible. From there, you will have lot more alternatives to choose from. Also, it is best to start TODAY. Don't wait, just like you wouldn't wait to set a broken bone... it is always better to treat right away. I can answer all the technical Q's you have about how this works on neurons, etc. very easily. Also, my cell phone number is 916-417-2526. Best Wishes. Ed Nemeth 's Dad At 01:25 AM 2/3/2003 +0000, you wrote: >Hi Everyone! I am an aunt of a recent near drown victim. His name is >Logan and he is 2 years old. I am trying to come up with the funds >and knowledge of HBOT. I have heard that this is a really good >treatment for this type of brain injury. He is not recieving any >kind of treatments or therapies that are benefiting him in any way. >They are basically medicating him to make him more comfortable. >Logan is covered by medicaid here in Indiana. He is diagnosed as a >vegatative state, his taking the C shape, sezuires every 5 minutes, >a trac and a G tube. Any one with any sort of info would be greatly >appreciated. >Thank you, >Heidi McMaster > > >_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._. >Unrestricted downloads of 50+ pdf files on HBOT efficacy >medicaid/files/ and >HDO-documentation/files/ > >Download your state EPSDT program >http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the >word " ameliorate " . State Medicaid websites >http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver >programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html > >Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm > >HBOT can save billions of dollars and millions of heartaches. Subscribe to > by sending a blank email to >mailto:medicaid-subscribe > >Unsubscribe? Click here mailto:medicaid-unsubscribe . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Sounds like Klinefelters, but it may be something else. Only a karyotype test can be sure. Steph PS Does anyone know how to convert the UK system of measuring testo to the US version and/or vice-versa? Steph ----- Original Message ----- From: <ddsbadboy@...> Sent: Monday, February 24, 2003 9:36 PM > I just joined the group. I know I don't fit the 'typical' age range > for someone who is suffering from andropause, but I have felt all the > symptoms slowly catching up to me within the last 2 years - > depression, complete lack of sex drive, loss of erection (especially > in the morning), crabbiness, weight gain around the mid-section. I > could swear that my doctor took my testosterone levels a few years ago > and told me that around 240 (which was my level) was pretty much > normal. Is that true? I have so many things to ask and to add. I look > forward to hearing from anyone. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 I use tea tree shampoo and conditioner. It has helped me. Charmaine Jensen <charmainejensen@...> wrote:Does anybody in this group find that their hair on their head dries easily, that they are also losing it -- for instance I go to brush my hair each time - there is chunks of it in my brush each time -- so I try not to brush my hair too often through the day -- as well won't wash hair every day - will just add conditioner every other day. Charmaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 In a message dated 3/26/2003 7:44:04 PM Eastern Standard Time, monka825@... writes: > hi can some tell what can i do for the pain.please help. i'm from > long island. > I am also from Long Island so maybe I can help you. Tell us a little bit more about your problem. Do you you have P and were you diagnosed with PA. Have you seen a rheumatologist. I have a very good one if you need his name. I went to 2 other ones and they were not as good. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 Where is it & what causes it? PA? if so your doc. will probably try things like vioox, or other NSAIDS first, but I feel that you already know that. Outside of methotrexate and my over the counter: glucosomine, chrondroitin, MSM, and there also a " natural " 2 inhibitor [which I can't really vouch for]., When it's bad I have Vicodin (hydrocodone) to fall back on, but I celebrate the days I don't need it.! Sylvia Dont need to know <monka825@...> wrote:hi can some tell what can i do for the pain.please help. i'm from long island. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 If you are taking prednisone, definitely. I actually purchase one of those personal touch shaver things, because I had such a soft, fine, white batch of fuzz on my face. It wouldn't show until I put makeup on, then it streaked. It works fine, and no bristle on grow back. Sorry Guys, Carol M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Imight be associated with prednisone, but it also could just be genetics and hormones.[more testasorone & less estrogen]..don't know how old you are, but facial hair becomes more of a problem with age, Sylvia Quote Link to comment Share on other sites More sharing options...
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