Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hi , welcome to our group. Are you undergoing treatment? Look forward to hearing more from you. -dz- -----Original Message----- From: [mailto: ]On Behalf Of darker_goddess Sent: Tuesday, November 29, 2005 1:08 PM To: Subject: [ ] Hello Hi I just joined this site and wanted to pop in to say hey. My name is stephanie, I am 20 I was dxed with HepC when I was sixteen. I am end stage chirrossis and end stage of the disease it self. I am hoping to make some friends who understand what having hep is like. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Gassy & bloated, may be due to Candida die off. reduce quantity & build slowly up. =============================== hello > ok is psyllium seed oirganic powder ok does it have gluten does it > feed yeast ? iam going to try it i tried the hulls and made me more > gassy and bloated ??? my diet is turkey and vegies and some wild > salmon sometimes flaxseed oil olive oil all raw oils not heats steamd > or muchsed foods what else probiotic and thats it enzymes dont work > for me ..... fresh mint leaves i dont do teas they have mold i make > frsh tea from leaves and ginger etc and i take an herbal antifungal > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 On Thu, 15 Dec 2005 16:41:51 -0000, you wrote: >Hello all I just wanted to give a short intro about myself. I am a 37 >year old male living in Delaware. I just got my Testosterone level >checked and it was 112 to which my doctor said is low. I am starting >to use 5mg daily of Androgel and I hope that this corrects a lot of >the issues I have been having. I hope to learn a lot from this board >and more about my condition. Welcome. It's time to start doing some homework. Look up the AACE guidelines in the files section. Check out a copy of Shippen's book, Testosterone Syndrome, and visit allthings male.com and read around. You're going to find most all docs are fairly ignorant on this condition and you will have to fend for yourself and carefully educate your doctor to get truly well and to get the treatment you need. Has you doctor ordered a prolactin test, ferritn test,E2 test and FSH and LH tests? All of these should have been done BEFORE you started taking Androgel. - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 HI and welcome if you need to know anything just ask. You will need to be tested in 2 weeks to be sure the gel works for you. And to see if you need to do more of it. Phil ogarchamplin <gripperm@...> wrote: Hello all I just wanted to give a short intro about myself. I am a 37 year old male living in Delaware. I just got my Testosterone level checked and it was 112 to which my doctor said is low. I am starting to use 5mg daily of Androgel and I hope that this corrects a lot of the issues I have been having. I hope to learn a lot from this board and more about my condition. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 I am not being tested for 90 days > Hello all I just wanted to give a short intro about myself. I am a 37 > year old male living in Delaware. I just got my Testosterone level > checked and it was 112 to which my doctor said is low. I am starting > to use 5mg daily of Androgel and I hope that this corrects a lot of > the issues I have been having. I hope to learn a lot from this board > and more about my condition. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 No he only tested my Free Testosterone? and my PSA? > > >Hello all I just wanted to give a short intro about myself. I am a 37 > >year old male living in Delaware. I just got my Testosterone level > >checked and it was 112 to which my doctor said is low. I am starting > >to use 5mg daily of Androgel and I hope that this corrects a lot of > >the issues I have been having. I hope to learn a lot from this board > >and more about my condition. > > > Welcome. It's time to start doing some homework. Look up the AACE > guidelines in the files section. Check out a copy of Shippen's book, > Testosterone Syndrome, and visit allthings male.com and read around. > > You're going to find most all docs are fairly ignorant on this > condition and you will have to fend for yourself and carefully educate > your doctor to get truly well and to get the treatment you need. > > Has you doctor ordered a prolactin test, ferritn test,E2 test and FSH > and LH tests? All of these should have been done BEFORE you started > taking Androgel. > > - - - - > Just another albino black sheep > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 On Fri, 16 Dec 2005 02:25:02 -0000, you wrote: >No he only tested my Free Testosterone? and my PSA? You shouldn't be starting TRT until these basic tests are done. He has not tried to determine the cause of your low T. It could be high iron (ferritin test) in which case you need to address that and TRT would likely be unnecessary - if caught soon enough. You could have high prolactin, from a small pituitary tumor. This is always a first check. Similarly high E2 could be lowered to increase your T if it is very high. FSH and LH are tested to see how the pituitary is acting in the T formation cycle. If you don't do these tests to begin with you're 1. missing possible causes that TRT will not address, 2. will likely end up in front of an endo later who will tell you you need to stop TRT for 2 or 3 months so they can get " normal " baseline pre-TRT numbers for some of these measures. Look in the file section of this group and read the AACE guidelines and get them to your doctor. > > > >> >> >Hello all I just wanted to give a short intro about myself. I am a 37 >> >year old male living in Delaware. I just got my Testosterone level >> >checked and it was 112 to which my doctor said is low. I am starting >> >to use 5mg daily of Androgel and I hope that this corrects a lot of >> >the issues I have been having. I hope to learn a lot from this board >> >and more about my condition. >> >> >> Welcome. It's time to start doing some homework. Look up the AACE >> guidelines in the files section. Check out a copy of Shippen's book, >> Testosterone Syndrome, and visit allthings male.com and read around. >> >> You're going to find most all docs are fairly ignorant on this >> condition and you will have to fend for yourself and carefully educate >> your doctor to get truly well and to get the treatment you need. >> >> Has you doctor ordered a prolactin test, ferritn test,E2 test and FSH >> and LH tests? All of these should have been done BEFORE you started >> taking Androgel. >> >> - - - - >> Just another albino black sheep >> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Welcome aboard. You'll learn an awful lot on this board. Also, check out the www.allthingsmale.com website for some great info from a leader in this field. > Hello > > >Hello all I just wanted to give a short intro about myself. I >am a 37 year old male living in Delaware. I just got my >Testosterone level checked and it was 112 to which my doctor >said is low. I am starting to use 5mg daily of Androgel and I >hope that this corrects a lot of the issues I have been >having. I hope to learn a lot from this board and more about >my condition. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 I feel this is way to long things can go wrong you blood count for one you levels not going high enough. You body on Androgel will stop making T and doing the gel you can end up lower then you were before you started on the gel. Read the insert that comes with the androgel and then call your Dr. and tell him you need to be tested sooner. Phil ogarchamplin <gripperm@...> wrote: I am not being tested for 90 days > Hello all I just wanted to give a short intro about myself. I am a 37 > year old male living in Delaware. I just got my Testosterone level > checked and it was 112 to which my doctor said is low. I am starting > to use 5mg daily of Androgel and I hope that this corrects a lot of > the issues I have been having. I hope to learn a lot from this board > and more about my condition. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 I agree. i was tested two weeks after initial dosage. When the tests came back the T Skyrocketed off the normal range. then i had to be off the T for a time and I was ut on half the dose. Labs came back fine. > > Hello all I just wanted to give a short intro about myself. I am a 37 > > year old male living in Delaware. I just got my Testosterone level > > checked and it was 112 to which my doctor said is low. I am starting > > to use 5mg daily of Androgel and I hope that this corrects a lot of > > the issues I have been having. I hope to learn a lot from this board > > and more about my condition. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 Beth I missed your post introducing yourself and I am sorry. I am just a regular member but yes there are day's when getting out of bed is just to much. I have spent many days in bed but am doing better now because the doctors have finally gotten me on a dose of meds that work for me. This disease is so contrary that what works for one person doesn't always work for another. You will find we all have different stages of this disease and different ways of dealing with it. When I was first diagnosed I had many questions so please feel free to ask anything. AIH1996 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2005 Report Share Posted December 25, 2005 Hi Lilly, Well I did not start out to get rid of Candida, or leaky gut, which is probably good because I see so many people fail when they do this. I was determined to stop getting sick every month and I was really tired of living on ANtibiotics. I had late state lyme and just was horribly sick all the time. I started researching everything I could on building the immune system I tried everything I could afford and lots of it. I did start to help some of my symptoms like my allergies and asthma, but some other symptoms were still there and some were getting worse. I never got discouraged because I was not willing to go back to the doctors and so I just kept on working at it. I was also getting pretty educated during this time about better diet and all. I have never eaten fruit and never been a sweet eater so it was not necessary to eliminate those things. I was however a carb freak and I did not eliminate those things until after I got better. At this current time I eat all organics, meat, vegies, some sprouted grains, coconut oil, olive oil are the two oils I use. I take around $250.00 per month worth of supplements including vitamins, minerals, antioxidants, fish oil, pro-biotics, enzymes, glyconutrients, phytonutrients, hormonal support. This is a permanent lifestyle for me and I feel great. -- hello hello , did u avoid all fruit grains sugars high carbs? what did u do ? i am just eating some vegies olive oil coconut loil and animal protiens =) xoxo anything else i need that u would reccomend? thanks Lilly xoxo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2005 Report Share Posted December 25, 2005 > > Hi Lilly, cool yes i understabnd iam on the same diet as u however i stopped the grains they bothered me and i would go on and off them i do well with out them =) i guess its a long road ahead no matter what yeast takes time to go i took antibotics my whole life and than became vegan thats when it kicked in at first i didnt have any side effects i just looked pregnant and always binged on carbs the yeaqst waS TALKING ANBD THAN 2 YEARS LATER AHA GUT INTESTINAL PROBLEMS ... THANKS FOR UR IN PUT ... I DO COCONUT AND OLIVE ATHO I THINK ALL STOP FLAXSEED AS IT CAN BE RANCID .... HAVE U TRIED BEES DIET? > probably good because I see so many people fail when they do this. I was > determined to stop getting sick every month and I was really tired of living > on ANtibiotics. I had late state lyme and just was horribly sick all the > time. I started researching everything I could on building the immune system > I tried everything I could afford and lots of it. I did start to help some > of my symptoms like my allergies and asthma, but some other symptoms were > still there and some were getting worse. I never got discouraged because I > was not willing to go back to the doctors and so I just kept on working at > it. I was also getting pretty educated during this time about better diet > and all. I have never eaten fruit and never been a sweet eater so it was not > necessary to eliminate those things. I was however a carb freak and I did > not eliminate those things until after I got better. At this current time I > eat all organics, meat, vegies, some sprouted grains, coconut oil, olive oil > are the two oils I use. I take around $250.00 per month worth of supplements > including vitamins, minerals, antioxidants, fish oil, pro- biotics, enzymes, > glyconutrients, phytonutrients, hormonal support. This is a permanent > lifestyle for me and I feel great. > > -- hello > > hello , did u avoid all fruit grains sugars high carbs? what did > u do ? i am just eating some vegies olive oil coconut loil and animal > protiens =) xoxo anything else i need that u would reccomend? thanks > Lilly xoxo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Hi Lilly, I have not done her diet, I have heard a few that got worse, on her diet. I just use common sense eating practices and try to keep it simple. -------Original Message------- From: LILLY cool yes i understabnd iam on the same diet as u however i stopped the grains they bothered me and i would go on and off them i do well with out them =) i guess its a long road ahead no matter what yeast takes time to go i took antibotics my whole life and than became vegan thats when it kicked in at first i didnt have any side effects i just looked pregnant and always binged on carbs the yeaqst waS TALKING ANBD THAN 2 YEARS LATER AHA GUT INTESTINAL PROBLEMS ... THANKS FOR UR IN PUT ... I DO COCONUT AND OLIVE ATHO I THINK ALL STOP FLAXSEED AS IT CAN BE RANCID .... HAVE U TRIED BEES DIET? > probably good because I see so many people fail when they do this. I was > determined to stop getting sick every month and I was really tired of living > on ANtibiotics. I had late state lyme and just was horribly sick all the > time. I started researching everything I could on building the immune system > I tried everything I could afford and lots of it. I did start to help some > of my symptoms like my allergies and asthma, but some other symptoms were > still there and some were getting worse. I never got discouraged because I > was not willing to go back to the doctors and so I just kept on working at > it. I was also getting pretty educated during this time about better diet > and all. I have never eaten fruit and never been a sweet eater so it was not > necessary to eliminate those things. I was however a carb freak and I did > not eliminate those things until after I got better. At this current time I > eat all organics, meat, vegies, some sprouted grains, coconut oil, olive oil > are the two oils I use. I take around $250.00 per month worth of supplements > including vitamins, minerals, antioxidants, fish oil, pro- biotics, enzymes, > glyconutrients, phytonutrients, hormonal support. This is a permanent > lifestyle for me and I feel great. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Jan, You are not alone there are millions of people out there with bipolar. I am not one of them ,but i bet i could be boarder line. Either that or i'm just a real bit.. Girl hang in there. It can't be easy with whats going on at home. You seem like a strong woman. Keep your head up. And no one know what you going through till they walk in your shoes.You can e-mail me at Robinsbrn7@.... I work till 2:00pm. I get home by 3:00.im me we'll chat.I gotta go make the sandwiches.Its a tough job ,but someone has to do it.LOL . Have A Great Day!! I will pray for you.In my books you are pretty awesome. Janet <jfw4359@...> wrote: Ok to those of you that know my secret that I confessed to a while back about being bipolar!! Today I had a breakdown..I have been fighting it for so long..I thought I was doing good but today got the best of me..I guess it doesn't go away does it??I have been on wellbutrin for a while and it has not helped..Then to top it all off I considered myself a failure for letting it get the best of me..my kids just though tit was a bad mood I was having but then they realized different.The hubby was confused at first laughing saying I had my ass in my face till he saw that it was not just a bad mood..It has been so long that I had a breakdown.I just don't understand and I guess unless you go through it too you can't understand either..Is anyone else in the group SUFFERING from bipolar?? I know I am not the only idiot that has this..Beleive me this is exactly what you feel like..Ok so I am rambling but I feel thisis my only way to help deal with it.Guess it's time for another appt. with the Dr..Been a while..Maybe new meds would help but I am so tired of taking them..I HATE FEELING LIKE THIS!! Jan Photos – Showcase holiday pictures in hardcoverPhoto Books. You design it and we’ll bind it! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Dear Curtis, Some people have the ability to rise above their disabilities. Unfortunatly, I am not one of them. If, I am unable to become pain free and have a life that I feel is worth living, then I will wait until my two sons finish college to just " disappear " . Thanks for your reply curt4362 <curt4362@...> wrote: For almost 19 years I've been paralyzed and in a wheelchair. I am now 38 years old and have been happily married to the love of my life for 14 years. I have always enjoyed helping people. I often share my story of how I got hurt and how my life has changed since that day many years ago. I have my own website that myself and a friend have put together where we share our story, detailing the good and the bad. The website is also an invitation for anybody who has a disability to come and share their story but to also read about other people. The website is www.gloryinweakness.com and it is a message board that we call an online support group for those who have disabilities as well as for family members of those who are disabled. The website has only been online for three weeks and we are hoping and praying that many people will join us and be encouraged by other people with disabilities. Never underestimate how God can use you to change someone else's life. Your testimony and advice may be priceless to someone who is struggling. There is absolutely no advertising and no charge for membership. Please come and check out our online support group.> > Thank you so much, Curtis www.gloryinweakness.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hello, I’m new to the group and just wanted to introduce myself. My family was forever changed a couple years ago when we lost my Aunt Connie to breast cancer. At the time, I believed that the doctors were on top of everything and put my faith in the medical system. After much reading and late nights on the computer, I am convinced that if I had taken more responsibility of her health, we might have had a different outcome. It saddens me how much information is kept hidden to the public about this horrible disease. I have learned how diet, stress and your environment play a major role in the risk associated with cancer. As a result, my family and I try to eat organic foods and use fewer chemicals. We are more aware of our environment and health but still have a long way to go. There is just so much to learn but we are making progress. I am glad to have found a group of individuals that are open to alternative medicines and treatments as well as sharing ideas. I wish I knew about this groups a couple years ago. Anyway, there are a few books that I have really enjoyed and thought that I would share them with you. They are by S. Epstein and you can find them on his website www.preventcancer.com. If you have any suggestions regarding books or websites that are interesting, please let me know. Thanks again, Betheney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 At 08:57 AM 2/4/2006, you wrote: >Hello , I am looking for someone that has had artificial disc >replacement at L5-S1 . What might your question be? I have an artificial disc at L4/L5. http://thebacklog.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Glad to hear you had a good time! I was wondering about how a hot tub would effect us. For me, its a toss, sometimes I come out completely drained for days, other times I am worder woman LOL I go on a vacation in april and the last day we have the option of doing a natural thermal spa, I would LOVE to, but the next 2 days are busy with flights etc grrrrr probably wont decide till the last second *-) > I am back from my disney vacation...five parks and alot of > walking...hope every one is ok....I found that the hot tub at disney > works very well for my lyme symptoms...the first few days are not fun > but the herx gradually disapears...feeling ok... > eric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Gosh, , I hope you didn't get to miss out on the fun because of your Herx. Interesting that the heat of a hot tub brought on a Herx. Jessie > > I am back from my disney vacation...five parks and alot of > walking...hope every one is ok....I found that the hot tub at disney > works very well for my lyme symptoms...the first few days are not fun > but the herx gradually disapears...feeling ok... > eric > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 I do recommend the hot tub! eric Jessie MacMillan <jessiemacmillan@...> wrote: Gosh, , I hope you didn't get to miss out on the fun because of your Herx. Interesting that the heat of a hot tub brought on a Herx. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi Elaine. I'm Fusion- C-3-4-5-6-7--T1. Had all my tests & (3) surgeries at the U of M Hospital. Great bunch of people up there & they really treat you well. E-mail me if you want.. Jim... > > Hi, I just joined your group in hopes of becoming more knowledgable > about my new diagnosis. > I have herniated discs in C3/4 and C6/7 and one or two more in my > lower back. I have Degenerative Disc Disease, stenosis throughout my > back and neck and many many bone spurs. > I had an MRI of cervical and lumbar spine in Dec. and recently saw a > neuro surgeon who said he saw nothing out of the ordinary for someone > my age. I am 60. > I asked my GP for a second opinion. > I have read up on this on the Mayo website but still am not sure what > to expect. I will most likely be referred to Ann Arbor, Mi. Mich > State Univ. for my 2nd opinion. > This is rather hard at this time as I am also fighting other physical > problems and it seems that the list just keeps growing and growing. > If you have any questions for me, please feel free to ask. > My name is Elaine but i also go by Grandma Skro. or Grandma. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hello Elaine and wecome too the group.I do not post much but noticed that you are in my area. I also live in MI, I suffer with DDD,flyromaslgia and many other issues.I think that you will find the group helpfull. >From: " Donna ELAINE Skrodenis " <grandma.skro@...> >Reply-spinal problems >spinal problems >Subject: Hello >Date: Mon, 13 Mar 2006 06:26:37 -0000 > >Hi, I just joined your group in hopes of becoming more knowledgable >about my new diagnosis. >I have herniated discs in C3/4 and C6/7 and one or two more in my >lower back. I have Degenerative Disc Disease, stenosis throughout my >back and neck and many many bone spurs. >I had an MRI of cervical and lumbar spine in Dec. and recently saw a >neuro surgeon who said he saw nothing out of the ordinary for someone >my age. I am 60. >I asked my GP for a second opinion. >I have read up on this on the Mayo website but still am not sure what >to expect. I will most likely be referred to Ann Arbor, Mi. Mich >State Univ. for my 2nd opinion. >This is rather hard at this time as I am also fighting other physical >problems and it seems that the list just keeps growing and growing. >If you have any questions for me, please feel free to ask. >My name is Elaine but i also go by Grandma Skro. or Grandma. > > > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi Elaine nice to meet you I'm Donna ELAINE Skrodenis <grandma.skro@...> wrote: Hi, I just joined your group in hopes of becoming more knowledgable about my new diagnosis. I have herniated discs in C3/4 and C6/7 and one or two more in my lower back. I have Degenerative Disc Disease, stenosis throughout my back and neck and many many bone spurs. I had an MRI of cervical and lumbar spine in Dec. and recently saw a neuro surgeon who said he saw nothing out of the ordinary for someone my age. I am 60. I asked my GP for a second opinion. I have read up on this on the Mayo website but still am not sure what to expect. I will most likely be referred to Ann Arbor, Mi. Mich State Univ. for my 2nd opinion. This is rather hard at this time as I am also fighting other physical problems and it seems that the list just keeps growing and growing. If you have any questions for me, please feel free to ask. My name is Elaine but i also go by Grandma Skro. or Grandma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 In a message dated 13/03/2006 23:32:30 GMT Standard Time, joe@... writes: Went back to the rheumy and we did the full inventory of tests, a thourough exam and came up with PA Hi Joe, Welcome to the group. I'm sorry that you are going through such a bad time, especially with the pain in your foot at the moment. I hope it eases soon. My PA started in my feet so I can fully identify with what you will be going through just now. I bet you thought it must be broken with the type of pain it was. Let us know how you are doing on the Humira. I hope it works well for you. Good luck, Quote Link to comment Share on other sites More sharing options...
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