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---- karriesgranny200353 <karriesgranny200353@...> wrote:

> Hello to all,Just wanted to introduce myself.I'm Karrie,have hadback

> problems for the last 10 yrs.I hope i can get some helpful

> information,and advice.Also it will be nice to have people who

> understand how this affects ur life.I look forward to being in this

> group....Karrie

>

> Hi Karrie welcome... This is a bunch of caring loving friends here.. Hope to

get to know you better. I have had two back surgeries and I have found nothing

short of caring loving supportive people here.

Tonja

>

>

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Tomorrow for me.... who'd a thunk I'd live this long? -dz-

Re: [hepatitis_c_ support] hello

AdrienneWelcome to the group. I haven't tried too many herbs. I used to use milk thistle alongside conventional treatment so I couldn't tell if it was effective. I will probably try it again in the future when I am more financially able.Adrienne Elliott <jumpercable6> wrote:

I joined your group to see if I like it. Is anyone on herbs?

I am. I'm doing well on them.

All-new - Fire up a more powerful email and get things done faster.

____________ _________ _________ _________ _________ __

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I DID...I DID!!! LOLdhz920@... wrote: Tomorrow for me.... who'd a thunk I'd live this long? -dz- Re: [hepatitis_c_ support] hello AdrienneWelcome to the group. I haven't tried too many herbs. I used to use milk thistle alongside conventional treatment so I couldn't tell if it was effective. I will probably try it again in the future when I am more financially able.Adrienne Elliott <jumpercable6> wrote: I joined your group to see if I like it. Is anyone on herbs? I am. I'm doing well on them. All-new - Fire up a more powerful email and get things done faster. ____________ _________ _________ _________ _________ __

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In my mind I see myself in my twentyes, then I see this guy in my mirror & thank who is that. Terrydhz920@... wrote: Tomorrow for me.... who'd a thunk I'd live this long? -dz- Re: [hepatitis_c_ support] hello AdrienneWelcome to the group. I haven't tried too many herbs. I used to use milk thistle alongside conventional treatment so I couldn't tell if it was effective. I will probably try it again in the future when I am more financially able.Adrienne Elliott <jumpercable6> wrote: I joined your group to see if I like it. Is anyone on herbs? I am. I'm doing well on them. All-new - Fire up a more powerful email and get things done faster. ____________ _________ _________ _________ _________ __

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I know, I went to my 25th class reunion and was amazed at how old my former classmates had become!! -dz-

Re: [hepatitis_c_ support] hello

AdrienneWelcome to the group. I haven't tried too many herbs. I used to use milk thistle alongside conventional treatment so I couldn't tell if it was effective. I will probably try it again in the future when I am more financially able.Adrienne Elliott <jumpercable6> wrote:

I joined your group to see if I like it. Is anyone on herbs?

I am. I'm doing well on them.

All-new - Fire up a more powerful email and get things done faster.

____________ _________ _________ _________ _________ __

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Ya don't realize how much older the OTHER people get huh?? They look so aged..PTL we don't..LOL FFFF, Jandhz920@... wrote: I know, I went to my 25th class reunion and was amazed at how old my former classmates had become!! -dz- Re: [hepatitis_c_ support] hello AdrienneWelcome to the group. I haven't tried too many herbs. I used to use milk thistle alongside conventional treatment so I couldn't tell if it was effective. I will probably try it again in the future when I am more financially able.Adrienne Elliott <jumpercable6> wrote: I joined your

group to see if I like it. Is anyone on herbs? I am. I'm doing well on them. All-new - Fire up a more powerful email and get things done faster. ____________ _________ _________ _________ _________ __

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  • 2 months later...

Jen,

What about a patch? He only has to remember it at bedtime. Implants

is a possibility although really expensive. And.....get one of those

pill rmeinders with an alarm to remind the poooooor forgetful soul

to use his T. As lousey as he has to feel, one would think he'd

remember to keep from feeling like crud! His diet on the road is

also in his control. He really has to make these types of decisions

for himself. It'll drive you nutz trying to do it for him. Hope

there is soon a workable solution. He's lucky to have you!

Be Well, Vickie

, <jenncascaddan@...> wrote:

>

> I'm searching for information on this issue for my husband. He's a

OTR (over the road) truck driver & isn't able to use the Androgel

that the Urologist gave him (due to lack of memory & being in the

truck all the time). I am wondering if there is something in a pill

form that he can take for this? Poor guy's driving all day so he's

getting virtually no exercise, isn't able to eat very good @ all &

we know that isn't helping matters. I have the book by Dr. R.

Lee on this issue & I was hoping that there was something aside from

the gel that we can get for him to help him? My husband has health

issues that I'm confident are linked to this low testosterone level.

>

> Please feel free to e-mail me directly with websites, books or any

other information that you have:) I have hormone imbalance issues

myself & am just now getting those ironed out so I decided to start

researcing for my husband since he can't do it himself.

>

> Thanks & look forward to getting to know everyone.

>

> Jen

>

>

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Jen a good book is the Testostrone Syndorme by Dr. Shippen and I feel he should

do shots 100mgs to start once a week this is the for him he can do the shot him

self and only needs to remember to do the every week.

Phil

Vickie <plp40@...> wrote:

Jen,

What about a patch? He only has to remember it at bedtime. Implants

is a possibility although really expensive. And.....get one of those

pill rmeinders with an alarm to remind the poooooor forgetful soul

to use his T. As lousey as he has to feel, one would think he'd

remember to keep from feeling like crud! His diet on the road is

also in his control. He really has to make these types of decisions

for himself. It'll drive you nutz trying to do it for him. Hope

there is soon a workable solution. He's lucky to have you!

Be Well, Vickie

, <jenncascaddan@...> wrote:

>

> I'm searching for information on this issue for my husband. He's a

OTR (over the road) truck driver & isn't able to use the Androgel

that the Urologist gave him (due to lack of memory & being in the

truck all the time). I am wondering if there is something in a pill

form that he can take for this? Poor guy's driving all day so he's

getting virtually no exercise, isn't able to eat very good @ all &

we know that isn't helping matters. I have the book by Dr. R.

Lee on this issue & I was hoping that there was something aside from

the gel that we can get for him to help him? My husband has health

issues that I'm confident are linked to this low testosterone level.

>

> Please feel free to e-mail me directly with websites, books or any

other information that you have:) I have hormone imbalance issues

myself & am just now getting those ironed out so I decided to start

researcing for my husband since he can't do it himself.

>

> Thanks & look forward to getting to know everyone.

>

> Jen

>

>

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Hi,

The patient involvement with TRT is the least with hormone pellets

which cost about $450 every 4 months. Nothing required daily or

weekly. These are inserted under the skin into the fatty layer where

they dissolve 24/7 at a constant rate.

Problem is finding a doctor that provides pellet therapy. Even if you

find one, he may not provide enough T to bring the T level of 800 or

more.

My doctor is located in Augusta, GA and he has a web site where you

can read about the benefits of TRT for both men and women.

http://www.members.aol.com/gambr999/

He answers questions if you send him an E-MAIL.

Ernie

>

> I'm searching for information on this issue for my husband. He's a

OTR (over the road) truck driver & isn't able to use the Androgel that

the Urologist gave him (due to lack of memory & being in the truck all

the time). I am wondering if there is something in a pill form that he

can take for this? Poor guy's driving all day so he's getting

virtually no exercise, isn't able to eat very good @ all & we know

that isn't helping matters. I have the book by Dr. R. Lee on this

issue & I was hoping that there was something aside from the gel that

we can get for him to help him? My husband has health issues that I'm

confident are linked to this low testosterone level.

>

> Please feel free to e-mail me directly with websites, books or any

other information that you have:) I have hormone imbalance issues

myself & am just now getting those ironed out so I decided to start

researcing for my husband since he can't do it himself.

>

> Thanks & look forward to getting to know everyone.

>

> Jen

>

>

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  • 2 weeks later...

On Sat, 11 Nov 2006 12:07:47 -0500, you wrote:

>I'm searching for information on this issue for my husband. He's a OTR (over

the road) truck driver & isn't able to use the Androgel that the Urologist gave

him (due to lack of memory & being in the truck all the time). I am wondering if

there is something in a pill form that he can take for this? Poor guy's driving

all day so he's getting virtually no exercise, isn't able to eat very good @ all

& we know that isn't helping matters. I have the book by Dr. R. Lee on this

issue & I was hoping that there was something aside from the gel that we can get

for him to help him? My husband has health issues that I'm confident are linked

to this low testosterone level.

>

>Please feel free to e-mail me directly with websites, books or any other

information that you have:) I have hormone imbalance issues myself & am just now

getting those ironed out so I decided to start researcing for my husband since

he can't do it himself.

>

>Thanks & look forward to getting to know everyone.

>

>Jen

Shots are the more convenient method. Once a week. Is he home enough

to swing that at the doctor? It's somewhat hard to get them on the

road. You need the prescription and a note from the doctor.

as to back ground info find this book:

http://www.amazon.com/Testosterone-Syndrome-Eugene-Shippen/dp/087131858X/sr=1-1/\

qid=1164223634/ref=pd_bbs_sr_1/103-5934762-2171036?ie=UTF8 & s=books]

It's somewhat out of date but 95% accurate and the most helpful thing

out there.

Then maybe this:

http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

________________

" You never need an argument against the use of violence, you need an

argument for it. " Noam Chomsky

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  • 3 weeks later...

Dotti,

I second Kathy's suggestion for your daughter, find another rheumy! Mine told

me the same thing the other day. He said my fibromyalgia was causing my

problems

due to lack of sleep. He gave me a script for some muscle relaxers he said

would

help me sleep through the night and I would have this magic energy. I was in a

twilight state of sleep for 24 hours on one pill! Guess where those babies

went.

That was worse than no sleep. So I am changing rheumies as soon as I decide

who I want to see. I will have to go to downtown Sacramento, but I guess that

will be ok. I have not had an xray or any other test than a blood test for

almost

4 years, so I don't think any of them know what my body is doing to me and if I

don't get better care, Kaiser will hear this woman roar big time. I'm tired of

paying

good money for nothing. Tell your daughter good luck, she's definately not

alone.

God bless,

Janet in Ca

-------------- Original message --------------

From: " Dotti " <dottijones2005@...>

> .

>

> My daughter had her first visit with Rhuemy on Friday. He gave her

> sleeping pills. Said her condition was due to lack of sleep. And he

> ask her if she was sure her mother had PA. Well duh! Any advice for

> her?

>

> > [Editor's Note: My advice to your daughter would be to find a new rheumy. It

> is great to hear how well YOU are doing, Dotti. The combination of MTX and

less

> stress seems to be working some magic for you. YAY! Enjoy. Kathy F.]

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Yep....I was thinking just what Kathy said...tell your daughter to

switch docs. Does she want someone working for her to have that degree

of disregard for her? We have to remember that WE PAY THESE DOCTORS.

They work for us. Why on earth we get so intimidated by them and feel

forced to stick with ones that are not working for our better good is

beyond me. I think most of us have done it. Hurray for 10 great days!!!

And I'm so glad it's just in time for your husband's surgery and I hope

it goes well. Love Betz

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hi dotti. it took me 4 rheumies over a 6 year period before i found one who

diagnosed me. i wasnt looking for this. i had a variety of general doctors who

were referring me to these specialists. and the specialists always said no. you

dont have " it " . so yes your daughter needs to keep going to docs until they have

a diagnosis.. it took a podiatrist to finally raise the flag on my problem. its

a long process but because of going through this, i know that what im diagnosed

with is accurate. i even had a certain family member say that i kept going to

the doc until they said what i wanted them to say. what a croc. i am now almost

pain free, though the damage has been done. and can never be repaired. and i

accept my fatigue for what it is. and also the flares. there is hope for her she

just has to be a voice to be heard.

casey

-------------- Original message --------------

From: " Dotti " <dottijones2005@...>

> .

>

> My daughter had her first visit with Rhuemy on Friday. He gave her

> sleeping pills. Said her condition was due to lack of sleep. And he

> ask her if she was sure her mother had PA. Well duh! Any advice for

> her?

---------------------------------

Want to start your own business? Learn how on Small Business.

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Hi Betz

Bobby's surgery went very well. The cuff was completely torn. Now the

recovery time!

Today was another great day. I saw a couple of people at the hospital

walking with canes. It was just a few weeks ago I couldn't walk

without a cane. Now just stiffness when I first stand up. I thank God

for each step I'm able to take.

Dotti

>

> Yep....I was thinking just what Kathy said...tell your daughter to

> switch docs. Does she want someone working for her to have that

degree

> of disregard for her? We have to remember that WE PAY THESE DOCTORS.

> They work for us. Why on earth we get so intimidated by them and

feel

> forced to stick with ones that are not working for our better good

is

> beyond me. I think most of us have done it. Hurray for 10 great

days!!!

> And I'm so glad it's just in time for your husband's surgery and I

hope

> it goes well. Love Betz

>

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  • 2 weeks later...

Hi April. Welcome to our group. Thank you for sharing your story

about yourself and about your brother. It may be possible your brother

had candida. I knew a lady 20 years ago that had brain lesions caused

by candida; after 2 years on the candida program she was re-tested and

there were no lesions.

The best in health, Bee

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  • 4 weeks later...

>

> I am new to this site was infected having endoscopes done and had to

> go on heavy anti biotics and steroids. that was nearly a year ago my

> tongue started to get white about 2 months ago did sone reseach and

> have started the diet. My body is full of candida but the diet is

> starting to get rid of that. Just a question I get woken up at night

> with the soles of my feet burning and my bowl jumping about and hot

> flushes has anyone else experiance that. Many thanks

==>Hi . Welcome to our group. That's good my diet is helping

you. There are two schools of thought on burning sensations in the

feet and other places: 1) that it is a lack of circulation, and 2)

that blood is flowing to the area to heal and the inflammation is

required for healing - I personally lean more towards the 2nd one. I

believe it can also be caused by retracing incidents when you got very

cold feet in the winter, per Hering's Law of Cures.

==>Your bowl jumping about? Do you mean bowel? Could you describe

what is happening in more detail? Hot flashes in candida sufferers

usually means their adrenals aren't functioning up to par - do a site

search for the article " Adrenal Malfunction & How to Treat It " at my

website: http://www.healingnaturallybybee.com

The best in health, Bee

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>

> Hello everyone, I am a new member to the Candida support group.

I have been talking with a friend of mine who follows Bee's diet

very closely and is also a moderator in this group. She has helped me

tremendously so far and I really appreciate her giving me the heads

up on this group.

==>Hi Alan. Welcome to our wonderful group!

> I have had symptoms of Candida for many years and I've suspected I

have Candida over-run for at least four years now but I've been in

some serious denial. I have a lot of unexplainable health issues

and I generally feel quite unhealthy. I have been on the purple pill

for nearly 15 years not to mention all the other prescriptions for

sinus infections and other health related issues. I have just

recently started reading articles in this support group and I am

very enlightened by what I have read so far. I've been working hard

to eliminate sugars and carbs from my diet. I never realized how

many bad foods I consume regularly. My friend has also introduced me

to coconut oil which I have used daily for about a week now. I am

very excited to be a part of this discussion group and I look

forward to the correspondence and support it will bring me.

==>Good for you on eliminating sugars and carbs Alan! You can't go

wrong with giving your body what it needs to heal and keep you

healthy - for life! You can feel good but it does take hard work,

patience and persistence. It's onward and upward my friend!

Cheers, Bee

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  • 3 weeks later...

In a message dated 12/01/2007 21:44:58 GMT Standard Time,

tempestt1@... writes:

I just wanted to say hello. I have just found my way to this group after

dealing with psoriatic arthritis pretty much on my own for 8 yrs. It is so good

to

find other who are dealing with some of the same things that I am. Getting

ready to see a new rhuem. here in the next couple weeks, hoping for good things.

Hi ,

Welcome to the group. Have you been to see the new Rheumy you mentioned above

yet? I see from your later posts you have Costochondritis bother every so

often. Its a nightmare trying to get a good breath when its bad isn't it? lol

Take care,

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  • 1 month later...
Guest guest

Dear Lorrye,

Welcome to the group, so sorry you have Flatback so soon after your surgery. Many of us have flatback from surgeries back in our teens and early adulthood with Harrington Rods, but we do see some members with Flatback after more recent surgeries. It also is awful that you are now uninsured, they sure make you jump through hoops to get help in the medicaid program, or state programs, and I'm so sorry you have to go through that mess. I know when I was a kid in California in the fostercare system and I needed scoliosis surgery it was delayed for almost a year while my Mom searched out funding, since Medi-Cal wouldn't pay for it because it wasn't life threatening. Finally she found funding with Crippled Childrens, they paid for the whole thing. Dealing with government programs can be daunting, but you just have to find a way to get what you need the easiest way possible. Do you have a case worker? Might try local disabled groups for suggestions on how you can get seen without sitting there for two days. Even if you have to be there all day, at least get a wheelchair to keep you off your feet, and maybe have a friend sit with you.

Unfortunately, med's and epidurals give some relief, but are not a fix, Flatback sends many of us onto surgery, just is a matter of when. I was symptomatic for years, but didn't have a diagnosis or a name for it. Doc's through the years threw pills at it, and told me to learn to live with it. I went that way for over a decade till I got to my doc and found out it did have a name and there was a surgery that could give me a chance at less pain and a more upright stance (Fusion to the sacrum, Revision). I have had that surgery and am four years post-op and doing very well.

Who did your surgery? What levels did you have fused.? Where is your hardware placed, from what level to what level? Who diagnosised you with Flatback, and are you still under their care?

I'm hoping you can find some kind of help to get through the red tape to get you the care you need, and to get to a good surgeon who can help you. You can always rant here, we get it!

Colorado Springs

[ ] Hello

Hi everyone. I'm Lorrye your new group member. I had the spinalfusion surgery July of 2004 because of a slipped disk. My scoliosis curvature hadn't changed in over 10 years. Well they told me they were going to go in and correct both and they didn't. They put the rods in from my neck to just above the bad disk. Since that time my fusion healed (used the bone stimulator thingy too). I have had nothing but problems. I have the flat back and spondylolisthesis. The epidural didn't work(last thing I had done before the insurance ran out), nor any of the pain medications (codine,roboxin,methocarbamol,valium. Now they want to do another surgery. I have leg weakness and spasms. If I get cold I get pin prick feelings in both legs that knock me to the floor. I walk bent forward with constant back pain and leg spasms. Lost my job,and health insurance because of all the time off when I couldn't move. Everytime I went to the Dr they kept telling me nothing was wrong until I started walking bent over and got the spasms. Had to give my rescued dog to a friend to care for because I can no longer walk her (she is living in a cage in his basement until I'm able to get her back) He boards dogs and can't have her loose, but he brings her to visit me often. I don't leave my house except for Dr appointments. I live alone and take care of myself (very difficult) terrified to get sick because a simple sneeze makes me scream out in pain, and of course you can tell that depression has set in. I never had the chance to fully recover from the inital surgery and have to have another. The best part is everyone I know personally who had the spinal fusion is fine and fully functional, so I figured it would be fine for me also. Even had it done at Rush University.Now I'm at the county and they have me on hold because of the insurance issue. Reduced to public aid and still have to fight them for a medical card (their Dr never took x-rays, just looked at the scar on my back and said I wasn't disabled enough for insurance)and Strogers physician cuts. So now with all that said, who has good advice for me as what options I have pertaining to pain relief. I haven't even been treated for the depression because without insurance its going to be an automatic 2 day stay in the waiting room to even get an appointment to see a Dr a month or two later. I can't go thru that again. I now have blood pressure problems when the spasms start and have to stay bed bound for a few days when I get agitated because of the severe pain.I'll check back in later for any advice, the meds are making me sleepy and I'm tired of complaining, had to rant, no more hair to pull out, looked a mess so I shaved it off. lol (really I did)Lorrye

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  • 3 weeks later...
Guest guest

Rosi:

Thanks for the welcome, Shaun and Barb. :-)

I hope to learn a lot from this group as I am not always sure how to help my

husband.

Oh, another thing I've wanted to ask!

To what extent can your diet help to control PA?

Are there certain foods that are a definite no no and are there other foods

that are recommended to include in your diet?

Thanks.

Rosi.

_______________________

Rosi Adendorff

Stellenbosch

South Africa

Website: http://www.rosi.co.za

Email: rosi@...

> Welcome to the group Rosie...

>

> Love and peace always,

> Shaun and Barb...

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