Hello

[Guest guest]

Welcome Back Robynn!

[Guest guest]

can anyone tell me the connection of Lyme and cancer?

[Guest guest]

Hey Mark,

Welcome! We just went through a round of bios, so you might want to go back and read the archives. You'll find a lot of help here. It's amazing how many of us have had similar problems, including things that you wouldn't think would be liver related. So join in anytime you feel comfortable. Oh...and don't let all these women scare you!! <grin>

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

[Guest guest]

Check out Art Doherty's Lots of Links On Lyme

[Guest guest]

Mark,

This would be the place. You can find any answer you want within this group.

gayle/trans.6-99

galye@... ^0^

`

[Guest guest]

Thanks so much! I missed everyone.

Does anyone want to chat Tuesday? How about Tuesday 7:30 pm Eastern time?

You can access the chat through our sister site at . The address is

listed below. I'll be there in case anyone wants to drop in.

I hope everyone is well and I look forward to catching up with all of you.

Sincerely,

Robynn

-OwnereGroups

Re: [ ] hello

> Welcome Back Robynn!

[Guest guest]

Hello Mark,

Welcome to this group. My name is Loes, I am 27 years old and dx'd with AIH

last August.

Here you can talk all you want about AIH, your feelings, you depressions,

your hopes and your dreams. I found these people

here a true blessing. There is so much knowlegde here. Please take care.

Loes, AIH, The Netherlands

[ ] Hello

> Hey

> I have been looking for someone to talk to and share with. I have

> known I have AIH for about 4 years now. I am now a 32 year old male

> with a 7 year old son and a 5 year old daughter. My blood counts have

> been very high and the medication has brought it down some but I have

> been having a bad month. I have been feeling depressed lately and I

> guess I am looking for someone to talk to that may share the same

> problems.

>

> Mark

>

>

>

>

[Guest guest]

Hey Robynn,I'll print this out and scotch tape it somewhere in view so I

don't forget. The debate is on Tue. night soon after you have set up the

chat, I think. Not that anything worthwhile is going to happen there-and,

so annoying to watch. If I see one more " sniff " from Bush, I'll vomit.

Anyway, I have never entered a chat so I hope I get the access right. I hope

to see you there. Deborah

Re: [ ] hello

>

>

> > Welcome Back Robynn!

>

>

>

>

> Many thanks to our founder and friend, Marta McCoy, for making

what it is today.

>

>

> Easy Reference:

> Send a blank email message to:

>

> -Subscribeegroups - Subscribe to the list through email

> -Unsubscribeegroups - Unsubscribe from the list

> -Digestegroups - Switch your subscription to a digest format

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>

> Please send messages not related to Lyme disease to

-Offtopicegroups

>

> Archives can be accessed at lyme-aid

>

> Please visit the sister site at

> http://clubs./clubs/lymeaid

> This is the primary chat site for .

>

>

[Guest guest]

Hello,

I am going into Mexico the end of Nov. Is there things to buy there for

cancer that I can't get here in the US. Any help would be appreciated.

Jean

[Guest guest]

Contact me about the time that you expect to come. I can help you make

a few judicious choices.

Re: [ ] Hello

> Hello,

> I am going into Mexico the end of Nov. Is there things to buy there for

> cancer that I can't get here in the US. Any help would be appreciated.

> Jean

[Guest guest]

Mark

I don't think we have seen any posts from you since the 15th...well I haven't

anyways...I hope you will join our group....you will get lots of support

here...Hope to hear from you...

Luanne Ty's mom

[Guest guest]

Still here,

Had my doctor appt yesterday, blood results better than a few months ago,

GGTP 566 (down from 750),ALK PHOS 457, SGPT 264. Have been very tired every

day, making it hard for me to study for a Certification I am after. I have

an MCRP scan tomorrow. Have to give some credit to my wife for putting up

with my mood swings. I have been trying to read all the posts but have been

very busy at work. This group has given me much encouragement about my

future. I also asked my Doctor how many patient he has with AIH and he said

very few. Will have to write my life story ( so to speak) when I have more

time. In a nut shell since 1986 I was always very pale and under weight,

after many many many Doctors poking probing and injecting I finally found my

current one in 1995, He got my other medical problems under control and is

now treating me for AIH. Gained 50 lbs real fast. and have been where I

should be, weight wise for awhile now.

Re: [ ] Hello

Mark

I don't think we have seen any posts from you since the 15th...well I

haven't

anyways...I hope you will join our group....you will get lots of support

here...Hope to hear from you...

Luanne Ty's mom

[Guest guest]

, and anyone else out there, if you have had or know of a situation

of pancreatic cancer could you tell me what they have done. I am looking

for any kind of help or advice.

Thanks

Jean

Re: [ ] Hello

>

>

> > Hello,

> > I am going into Mexico the end of Nov. Is there things to buy there for

> > cancer that I can't get here in the US. Any help would be appreciated.

> > Jean

>

>

>

>

> Learn more about cancer:

> http://home.online.no/~dusan/diseases/cancer/

> http://home.online.no/~dusan/diseases/cancer/faq.htm

> http://www.geocities.com/~mycleanse/

> http://www.geocities.com/HotSprings/1158

>

> You are receiving this email because you elected to subscribe to the

egroups.

[Guest guest]

Mark...

Glad that you got back to us....As usual I am having trouble keeping up with

the posts....I also belong to others...for Tyler...

Good to see that your labs are coming down...How did your MCRP scan go....

Are you on Prednisone...that will help with the weight coming back on...For

the people who have lost alot because of being sick the pred makes them feel

better quickly and helps then put some pounds on...For others who have too

much weight they do get the relief but also put on more weight..so for some

a win ...win for others a win....lose....

Tyler was just started on pred about 5 weeks ago...because of a very large

spleen....causing pain etc...they did a CT to make sure there were no

growths...YIKES..thankfully is was just BIG...his doctors say that ir should

weigh about 2-3 lbs...Ty's was about 12-13 lbs....Now after being on pred for

the 5-6 weeks he has lost about 10 lbs...the reduction in the size of the

spleen....His abdomen was so large that his abdomen was way out...gave him on

outty belli-button....Now things look better...He sees his GI on friday

morning...early...7:30am...we are 2 hours away...but we have to be home to

catch a bus(charter) for Scraton Pa...High school marching band is going out

there for finals....its about 3-4 hours away....It will be a very late

night...more like an early morning...when we get home...

Then next thur he goes back to the same hosp to see some new doctors in

IMMUNOLOGY....They want to see him....hopefully they will be able to help him

before more things are attacked...

The Prednisone can cause the mood swings if you are taking that....Tell your

wife I feel for her....Sometimes hard to keep up with the moods...but need to

try because it is something that can not be helped...

It was nice hearing from you....

Take care of yourself ...

Luanne Ty's mom

[Guest guest]

I have CFS, and any kind of infection goes hand-in-hand with CFS because the

immune system is damaged in CFS. But UTI's are quite common with CFS,

depending on the stage of CFS that you are in. So are migraines. So is

candida. And nerve damage also goes hand-in-hand with CFS. B-12 is often

deficient in people with CFS (or who have candida problems), and many people

with CFS find that they feel better when they use sublingual, IM or

subcutaneous injections of B-12. (Hydroxycobalamin or Methylcobalamin form.)

B-12 taken orally is often not absorbed in people with candida (and

CFS)because of low stomach acid, and excess toxins in their system that use

it up before it can build up a surplus. And sublinguals are often not in

high enough doses to counteract the toxins that lead to the deficiency.

There are a lot of other problems that can mimic CFS, like Lupus, MS,

Rheumatoid arthritis, mycoplasmosis (sp?) infection, etc., many of which

require different treatment than CFS, so before you self-diagnose yourself

with CFS, you should have a further medical evaluation done.

lindaj@...

hello

" Stuck " <sstuck@...>

Hi

I am doing research on Candida,as I seem to have almost every symptom,

however I fit CFS pretty well as well, so iam trying to figure out what do.

iam 22 About to celebrate 8 months of marriegae to my best friend. Iam a

SAHW. My MIL lives in her pwn apartment down stairs in our raised ranch.

belive me THAT IS NOT EASY! She is impossable to live with most of the time.

I have been tired and just fatgiged f or years now. and have found ;atley

that I have regular purple grape juice Iam out like a light there is a fruit

punch that I like but also puts me out faster than you can say 1. and iam

out for hours.A couple of my friends have CFS and are thinking that I have

one or the other. but UTI's don't ussually go with CFs iam told. but it

depends in the person. i have been dealing with a double kidney infection

for about a month now roughly, I was on Ciprodome and Percacet for that for

@10 days and it helped the ultimate pain, but it still hurts to have osmeone

touch me in that area, and i get shooting pians in my legs and chesta lot.

does this sound like anyone lese on this list? what dfo you do to relive the

symptoms? i also get viloent nightmares and migraines. do you guys? and the

really scarry part is that some how or another even if it's just a sentence

or a lookf rom them my dreams come true. nightmares and dreams, it's really

earie. iam not into signs and austrologya nd all that stuff but I don't have

to be, it just seems to happen to me. very weird. also my husband is a

computer software angineer, if you know of any company that is hiring

tellecummters please let us know,a s he is trying to find a better job.

Thanks

Stuck

I may get stuck a lot in life, but at least I stick with it:)

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

This isn't just a self diagnoisis Doctors have iluded tothis as well. He is

pretty certian I have fMs and is thinking Ih ave Candida, but will be

talking to him next week about it.

I may get stuck a lot in life, but at least I stick with it:)

hello

" Stuck " <sstuck@...>

Hi

I am doing research on Candida,as I seem to have almost every symptom,

however I fit CFS pretty well as well, so iam trying to figure out what do.

iam 22 About to celebrate 8 months of marriegae to my best friend. Iam a

SAHW. My MIL lives in her pwn apartment down stairs in our raised ranch.

belive me THAT IS NOT EASY! She is impossable to live with most of the time.

I have been tired and just fatgiged f or years now. and have found ;atley

that I have regular purple grape juice Iam out like a light there is a fruit

punch that I like but also puts me out faster than you can say 1. and iam

out for hours.A couple of my friends have CFS and are thinking that I have

one or the other. but UTI's don't ussually go with CFs iam told. but it

depends in the person. i have been dealing with a double kidney infection

for about a month now roughly, I was on Ciprodome and Percacet for that for

@10 days and it helped the ultimate pain, but it still hurts to have osmeone

touch me in that area, and i get shooting pians in my legs and chesta lot.

does this sound like anyone lese on this list? what dfo you do to relive the

symptoms? i also get viloent nightmares and migraines. do you guys? and the

really scarry part is that some how or another even if it's just a sentence

or a lookf rom them my dreams come true. nightmares and dreams, it's really

earie. iam not into signs and austrologya nd all that stuff but I don't have

to be, it just seems to happen to me. very weird. also my husband is a

computer software angineer, if you know of any company that is hiring

tellecummters please let us know,a s he is trying to find a better job.

Thanks

Stuck

I may get stuck a lot in life, but at least I stick with it:)

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

> It's ok. i get that as well, even my husband doesn't really support me.

the

> other week he said " Everyone gets tired just push yourself and you'll get

> the cleaning done " and all the sudden he seems to thin idon't want to cook

> dinner forhim anymore? he keeps asking of he should stopa nd get something

> on the wayhome? i don't understand that at all? One night I was tootired

> recently so he probably took that as i odn't want to cook again.It is

> extremly frustrating. Also do any of you faint easily? Is that apart of

> Candida as well? i tend to be worse in the heat but i an faint in winter,

if

> iam just too tired, or when i getthat horriable gut pain that won't gi

away,

> when I can't take the pain anymorer i faint. i ahve had a nurologist call

it

> Female Fainting syndrome. but it's beginning to not jive with me. anyone

> care to comment.

> s.

> I may get stuck a lot in life, but at least I stick with it:)

> hello

> >

> >

> >

> > " Stuck " <sstuck@...>

> >

> > Hi

> >

> > I am doing research on Candida,as I seem to have almost every symptom,

> > however I fit CFS pretty well as well, so iam trying to figure out what

> do.

> > iam 22 About to celebrate 8 months of marriegae to my best friend. Iam a

> > SAHW. My MIL lives in her pwn apartment down stairs in our raised ranch.

> > belive me THAT IS NOT EASY! She is impossable to live with most of the

> time.

> > I have been tired and just fatgiged f or years now. and have found

;atley

> > that I have regular purple grape juice Iam out like a light there is a

> fruit

> > punch that I like but also puts me out faster than you can say 1. and

iam

> > out for hours.A couple of my friends have CFS and are thinking that I

have

> > one or the other. but UTI's don't ussually go with CFs iam told. but it

> > depends in the person. i have been dealing with a double kidney

infection

> > for about a month now roughly, I was on Ciprodome and Percacet for that

> for

> > @10 days and it helped the ultimate pain, but it still hurts to have

> osmeone

> > touch me in that area, and i get shooting pians in my legs and chesta

lot.

> > does this sound like anyone lese on this list? what dfo you do to relive

> the

> > symptoms? i also get viloent nightmares and migraines. do you guys? and

> the

> > really scarry part is that some how or another even if it's just a

> sentence

> > or a lookf rom them my dreams come true. nightmares and dreams, it's

> really

> > earie. iam not into signs and austrologya nd all that stuff but I don't

> have

> > to be, it just seems to happen to me. very weird. also my husband is a

> > computer software angineer, if you know of any company that is hiring

> > tellecummters please let us know,a s he is trying to find a better job.

> >

> > Thanks

> >

> > Stuck

> > I may get stuck a lot in life, but at least I stick with it:)

> >

> >

> >

> >

> >

> > Send blank message to candidiasis-unsubscribeonelist if you want

to

> > UNSUBSCRIBE !

> >

[Guest guest]

-

Find a good rheumatologist (not always easy) as soon as possible. If the Doc

you are seeing doesn't immediately mention methotrexate I'd keep looking. It

seems to be what works for the majority of us, and any physician who doesn't

suggest it probably hasn't dealt with PA successfully in the past.

In my experience painkillers don't help much. I take Methotrexate and Enbrel,

which are both types of DMARDS (Disease Modifying Arthritis Drugs?). I used

to take some painkillers, but since finding the two DMARDS that work best for

me I don't need any pain killers. Life is definitely better when you and your

Doc find what works.

As far as coping with tiredness, I find napping to be the best answer. Daily

mild exercise (walking works for me) is also invaluable. Getting enough sleep

is part of coping with PA. When you are in pain it's hard to sleep.

good luck - Rob Glover

> From: " Boorman " <BoormanSE@...>

> Subject: Hello

SNIP

> Can anyone offer me advice on how best to deal with the pain, apart from

> taking painkillers? What else can I do to make the best of this bad

> situation? How do you cope with the tiredness?

[Guest guest]

Hi !

I know how you feel--it's very odd to be so young (I'm 28 myself) and yet feel and move so old. I think it's really hard for our family and friends to understand. I think the best thing to do--especially if you aren't really bad right now--is to keep moving. Swim, walk, cycle, anything to keep your joints loosened up. No matter how much it hurts it seems to help if you can just force yourself to get moving. On the days that I'm really in pain and just want to stay in bed or sit around I have to remember how awful it is once you finally do get moving.

As far as medication goes, I've been on Relafen (a NSAID--nonsteriodal anti-inflammatory), which was helpful at the beginning, and then my doc added Methotrexate. MTX sounds really scary at first--they might tell you things about possible liver failure and potential birth defects--but I was on it for almost three years and I was fine. They started me out with low doses and added folic acid (helps with nausea) and then gradually built up. It took about 3 months for me to notice a real difference, though. You just have to be careful with it--no drinking. I found that some foods made me nauseous, but overall I had no problem with it. There's lots of other meds out there as well. One thing--watch out for Prednisone. It will help with pain initially, but it will make your psoriasis worse and make you blow up and get all moon faced. I think it increases your appetite and also makes you retain water, etc.

Most important of all, try to keep a positive attitude. Even though it's hard sometimes--I get angry when I see others my age wandering around without a care in the world--you just have to do the best that you can every day. If you let this get you down it's so hard to get up and face the pain and everything else.

I hope that all of this is helpful to you. I think it helps to hear what other people are going through as well!

Good luck!

Sinead

>From: " Boorman"

>Reply- egroups > egroups >Subject: [ ] Hello >Date: Fri, 01 Dec 2000 17:09:13 -0000 > >Hello, > I've just joined the list. It seemed to be a useful thing to do, as I'm >feeling pretty helpless at the moment. >I'm 20 and I've had PA for little over a year now, but the more I think >about it I think I had it when I was at School. I was diagnosed quite >quickly, which is something. But my Doctor doesn't know anything about the >condition, he just writes out a prescription for painkillers. I do have a >good specialist though, but I can't always see him. He doesn't seem to want >to tell me what the future may hold. Nearly everything that I know (which >isn't a lot) I have got from the Net. I've just found out that there is more >than one kind of this arthritis, which is something I wasn't told, so I >don't know what type Ive got?! >I've read a few personal accounts of this condition, and it seems that I >should be thankful, as i don't appear to have it as bad as others. But >sometimes the pain is quite bad, even the painkillers don't work. I'm >finding at the moment, that the pain is worse when I'm stressed, and I do >that a lot. The stress and the pain stop me sleeping and in turn I find it >harder to cope. It seems to be spiraling out of control at the moment, but I >have to try hard to stay on top of things as I am in the final year of my >degree. Family and friends try to be supportive, but they don't know what it >is like, I feel so isolated. > >Can anyone offer me advice on how best to deal with the pain, apart from >taking painkillers? What else can I do to make the best of this bad >situation? How do you cope with the tiredness? >_____________________________________________________________________________________ >Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

My best advice is to consistently check in with this group and find a doctor

that knows something about this disease. I don't want to scare you, but if

it goes untreated it does spiral out of control. You are lucky. They

diagnosed you very quickly. Some people aren't that lucky and have to

sustain a lot of emotional and physical stress of the not knowing. Find a

doctor that knows something in your area! Do it soon! Also, listen to your

body. This disease changes your lifestyle to a certain degree. Always make

sure that you are getting enough sleep and if your body is telling you to

stop, stop. Over time you will begin to feel an understanding of your

limits. I'm crying as I write this because I know what it was like to be 21

and not know what was happening to me. I'm now 30 and finally am seeking

the help that I need. Please utilize this group as your support system! We

can all help a lot!

Kim from MN

>From: " Boorman " <BoormanSE@...>

>Reply- egroups

> egroups

>Subject: [ ] Hello

>Date: Fri, 01 Dec 2000 17:09:13 -0000

>

>Hello,

> I've just joined the list. It seemed to be a useful thing to do, as

>I'm

>feeling pretty helpless at the moment.

>I'm 20 and I've had PA for little over a year now, but the more I think

>about it I think I had it when I was at School. I was diagnosed quite

>quickly, which is something. But my Doctor doesn't know anything about the

>condition, he just writes out a prescription for painkillers. I do have a

>good specialist though, but I can't always see him. He doesn't seem to want

>to tell me what the future may hold. Nearly everything that I know (which

>isn't a lot) I have got from the Net. I've just found out that there is

>more

>than one kind of this arthritis, which is something I wasn't told, so I

>don't know what type Ive got?!

>I've read a few personal accounts of this condition, and it seems that I

>should be thankful, as i don't appear to have it as bad as others. But

>sometimes the pain is quite bad, even the painkillers don't work. I'm

>finding at the moment, that the pain is worse when I'm stressed, and I do

>that a lot. The stress and the pain stop me sleeping and in turn I find it

>harder to cope. It seems to be spiraling out of control at the moment, but

>I

>have to try hard to stay on top of things as I am in the final year of my

>degree. Family and friends try to be supportive, but they don't know what

>it

>is like, I feel so isolated.

>

>Can anyone offer me advice on how best to deal with the pain, apart from

>taking painkillers? What else can I do to make the best of this bad

>situation? How do you cope with the tiredness?

>_______________________________________________________________________________\

______

>Get more from the Web. FREE MSN Explorer download :

>http://explorer.msn.com

>

>

________________________________________________________________________________\

_____

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

>

I just joined the group and was planning on just listening quietly

but your emails inspired me to reply.

My name is Gayle and I'm 34 years old. I've had a mild case of

psoriasis for as long as I can remember and PA since I was in my late

twenties. My arthritis started to flare over the past few months. I

can deal with the pain during the day but the disruption to my sleep

is maddening. I have horrible nightmares and a very hard time waking

up. I'm exhausted most of the time which tends to turn me into an

emotional basket case.

I only just discovered from my research last night that fatigue is a

common part of this disease. I can't believe my reumatolgist never

told me that. I've sat in his office and described in detail what I

was feeling and all he has done is prescribe more drugs. Not once did

he ever even suggested that I was in any way having a normal

reaction. I'm pretty exhausted today but somehow I feel much better

just knowing that I'm not crazy and there are others that are going

through the same kind of things as I am.

Right now I'm taking Relafen twice a day. (Vioxx and Celebrex did

nothing for me.) I'm also taking Elavil to help me sleep. So far I'm

taking 25 mg and it's not helping but I've just started taking it and

my doctor told me he didn't expect to see any results until he raised

the dose to 50 mg. I take Tylenol Arthritis three times a day and it

seems to help a bit.

I've tried therapeutic massage in the past (feels nice but didn't

help much) and I'm currently seeing an osteopath. Osteopathy is a

strange and complicated science but I've heard great things about it

and this osteopath in particular. I'm not looking for any miracles

but I'm hoping he might help. After the osteopath I might try

acupuncture or even hypnosis. I don't do anything without consulting

my doctors but I'm open to anything that could help.

With everything I've tried, long hot baths seem to work the best so

far. I've also recently discovered these bean-bag type sacs that you

can heat in the microwave for two minutes and they stay hot for about

a half an hour. These work well to loosen up the neck and back

muscles while watching TV or even at work. One of the ones I bought

has a Velcro strap that allows you to wrap it around your waist and

move around with it.

I'm in quite a bit of pain most of the time but the real killer for

me is the lack of sleep. I used to get by quite well on six to eight

hours sleep but now I get between ten and fourteen and I still don't

feel rested. There just aren't enough hours in the day to sleep, soak

in a hot tub and do everything I'd like to do. Of course I'm usually

too tired to do what I want to do anyway. ;-)

I try my best to stay positive but it's tough not to get depressed.

Some days I can't seem to avoid looking at the big picture and I get

overwhelmed. I think things like: " Geez, my grandmother just turned

91 years old, I don't think I can take another 60 years of this. " Most

of the time I try to focus on one day at a time and I keep a pretty

good attitude.

Anyway, I think this is more than enough for a first posting. I want

to thank you all for the encouraging words I read in your emails.

It's nice to converse with people who really understand what you're

going through.

For anyone who's interested, I found this 90 minute radio broadcast

entitled " Understanding Psoriatic Arthritis: Hope Through Knowledge

and New treatments " . You can download the broadcast itself or a

printed transcript. I strongly recommend checking it out at:

http://www.healthtalk.com/rain/101700/replay.html

Thanks for listening,

Gayle

[Guest guest]

Thanks Harper

Re: [ ] hello

In a message dated 1/8/01 6:11:49 PM Pacific Standard Time, bjm@... writes:

The problem I have is joint & bone pain. What's the best drug to take to ease these pains? Welcome, B.J. Don't take anything without your doctor's approval, to avoid harming your liver. It's my understanding that Prednisone and Imuran may be helping your pains. I think we mostly just have to tough it out. My gp told me uneasily that perhaps a very occasional Tylenol, with very intense pain, might be okay. I"ve taken one Tylenol in nine months, when I had flu or something similar. Hot showers help, for me. If you take a hot bath, think about how you'll get out afterwards, whether there is someone who can give you a hand if need be. Harper (AIH 5/00)

[Guest guest]

Hi ,

I also just wanted to say welcome to the group as well. I think you will find a lot of help. Everyone is very helpful....Tonya

[Guest guest]

Welcome !

I lost a lot of weight on this group. But most importantly I gained my

health, love of life and energy. Keep lurking and asking questions. Make

this group you most important one and stick to it.

Best Wishes,

Bernadette

[Guest guest]

In a message dated 1/8/01 6:11:49 PM Pacific Standard Time, bjm@... writes:

The problem I have is joint & bone pain. What's the best drug to take to ease these pains?

Welcome, B.J. Don't take anything without your doctor's approval, to avoid harming your liver. It's my understanding that Prednisone and Imuran may be helping your pains. I think we mostly just have to tough it out. My gp told me uneasily that perhaps a very occasional Tylenol, with very intense pain, might be okay. I"ve taken one Tylenol in nine months, when I had flu or something similar.

Hot showers help, for me. If you take a hot bath, think about how you'll get out afterwards, whether there is someone who can give you a hand if need be.

Harper (AIH 5/00)