Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Pearl: yes i have the heart palpatations, you need to relax at the time, lie down & take about 3-4 big breaths and let them out slowly! since you have been to the hosp. just as i was soo many times you know your heart is ok. when having the attacks keep "reminding" your self your heart is fine & it will pass! try to relax and go with the flow!!!!!!! it works, once you know how to get past them you'll be ok! possibly could you be going thru a die=off period? i only had mine at night time, waking me up. do you ever feel like you need to go to the bathroom? 1 Dr. told me if i would bear dwon like having a bowel movement would put it under control also. let me know if this helps! Mogdrmom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Pearl: you really don't have much of a choice, if you start the diet and what meds did he give you,? once you start having the die-offs your problem with your anxiety & heart will subside! i only get them now when my body is going thru a change of some sort! the more yeast you get out of your system the bettter you will be! Trust me! i've been there done that. my Dr. gave me Lorazapan to take at night, but i still get the palpatations but they are more softer, not as loud! Mog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 No, I am not going through a die off, because I have not strated the medicine the doctor has given me. I am afraid to. I am afriad the palpitations will get worse. My doctor is not a man of many words....he tells me what to take and then I am on my own. He has cost me a fortune and I still am in the dark. So I have just been trying to get the symptoms inder control ( heart racing ) and still have not started what he gave me. I am afraid of the die off...to be honest. I feel like it is a no win situation. I am sicj with anxiety and heart racing now, and If I take the meds, I will get worse. Pearl (NY) Country Living at it's finest Countrylife Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Jonah, This whole heart palpitations thing is a little scary. I was diagnosed with what the doctor called Wolf Parkinson White syndrome based on a couple of inconclusive heart monitor sessions. But it sounds like what you guys are describing here: occasional periods where the heart would feel like it was missing a beat, and the other times when it would 'go off' like a rocket- racing like 180bpm and I would have to lie down and RELAX and take very deep breaths. I have always just accepted that there was something wrong with the electrical pathways in my heart, but maybe it's not that serious. Something to think about anyway! It hasn't bothered me in a few months, now. Jonah mogdrmom@... wrote: Pearl: yes i have the heart palpatations, you need to relax at the time, lie down & take about 3-4 big breaths and let them out slowly! since you have been to the hosp. just as i was soo many times you know your heart is ok. when having the attacks keep "reminding" your self your heart is fine & it will pass! try to relax and go with the flow!!!!!!! it works, once you know how to get past them you'll be ok! possibly could you be going thru a die=off period? i only had mine at night time, waking me up. do you ever feel like you need to go to the bathroom? 1 Dr. told me if i would bear dwon like having a bowel movement would put it under control also. let me know if this helps! Mogdrmom Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hi again Pearl Tell me, are you menopausal. These attacks can happen because of menopause. It could be they are hormonal related. Try taking magnesium, these will help the palpitations, and also calm your central nervous system. You will probably have to take about 6 tablets a day, instead of the usual two. What ever dose they say, double it! The only thing that will happen if you have too much is the trots! I will keep in touch Re: Hello > No, I am not going through a die off, because I have not strated the > medicine the doctor has given me. I am afraid to. I am afriad the > palpitations will get worse. My doctor is not a man of many words....he > tells me what to take and then I am on my own. He has cost me a fortune > and I still am in the dark. So I have just been trying to get the > symptoms inder control ( heart racing ) and still have not started what > he gave me. I am afraid of the die off...to be honest. > I feel like it is a no win situation. I am sicj with anxiety and heart > racing now, and If I take the meds, I will get worse. > > Pearl (NY) > > > Country Living at it's finest > Countrylife > > > > Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 >>>Tell me, are you menopausal. These attacks can happen because of menopause. It could be they are hormonal related. Try taking magnesium, these will help the palpitations, and also calm your central nervous system. You will probably have to take about 6 tablets a day, instead of the usual two. What ever dose they say, double it! >>>>> Yes I am . Pearl (NY) Country Living at it's finest Countrylife Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 I can relate to the feeling electrocuted. I drank coffee (my last one ever!) 3 days into the diet as I went out one evening. I was up all night feeling like I was buzzing on the inside. My bladder ached, my bones ached, and I felt like my insides had ADHD! A sort of jittery feeling. YUCK! I am too scared to try coffee again! >>> When I get this type of anxiety my bladder also goes crazy ! I am in the bathroom every few minutes....wonder why this happens?- Pearl (NY) Country Living at it's finest Countrylife Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 > You might have supraventricular tachycardia. It occurs when there is an extra electrical pathway in the heart. Some heart beats will take this extra path and keep re-entering the heart, hence the faster and faster heart beats. My Drs. misdiagnosed me with this some time ago so I did quite a bit of research. You can take a beta blocker for it. I take one every day for tachycardia and can't live a normal life without it. Some people also have ablations, a procedure in which the extra pathway is blocked (I think they burn it) and the heart beats can no longer take the extra path. An electrophisiologist is the type of Dr. who specializes in irregular heart beats. It might be worthwhile for you to see one. You can wear a holter monitor or a 30 day event monitor that will record what is happening when you go into your arrhythmia (irregular heart beat). I have found that magnesium really helps me with palpitations and arrhythmias. For some reason potassium actually increases my arrhythmias. Be careful when starting any new supplements. It is a good idea to only start one at a time so that you notice the effect it is having on you. Hope this helps, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 I forgot to add that there are some manuevers that might help you the next time you go into an SVT attack. These include: putting your face into very cold water, lying down, coughing, bearing down like when having a bowel movement and rubbing the artery in your neck where you can feel your pulse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 I have found that magnesium really helps me with palpitations and arrhythmias. For some reason potassium actually increases my arrhythmias. Be careful when starting any new supplements. It is a good idea to only start one at a time so that you notice the effect it is having on you. Hope this helps, >>> How much magnesium can I take a day? I have had the holter and also EKG, I have had heart blood ennzymes taken, numerous stress tests, an echocardia gram and other tests. I have had the attacks monitored on a monitor by my heart doctor in the middle of an attack.It is chemical...I know believe it is coming from the candida. Thank you for the advise. I am going to write down the type of doctor you are suggesting for my friend...this was very useful information..thanks so much Pearl (NY) Country Living at it's finest Countrylife Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I get this exact same feeling during premenstral times for me. I call it I feel like someone has plugged me in like an electrical appliance. That's the best way I can describe this. It feels like I drank gallons of coffee all at once. I haven't even come near caffeine in over 5 years. I have no idea why I get this way but I know it is directly related to the candida. Re: Hello I can relate to the feeling electrocuted. I drank coffee (my last oneever!) 3 days into the diet as I went out one evening. I was up allnight feeling like I was buzzing on the inside. My bladder ached, mybones ached, and I felt like my insides had ADHD! A sort of jitteryfeeling. YUCK! I am too scared to try coffee again! >>>When I get this type of anxiety my bladder also goes crazy ! I am inthe bathroom every few minutes....wonder why this happens?-Pearl (NY)Country Living at it's finestCountrylifeSend blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 > [Original Message] > From: BOGS <lcyr@...> > <candidiasis > > Date: 3/27/01 10:05:21 PM > Subject: Re: Hello > > I get this exact same feeling during premenstral times for me. I call it I feel like someone has plugged me in like an electrical appliance. That's the best way I can describe this. It feels like I drank gallons of coffee all at once. I haven't even come near caffeine in over 5 years. I have no idea why I get this way but I know it is directly related to the candida. > > > Re: Hello > > > I can relate to the feeling electrocuted. I drank coffee (my last one > ever!) 3 days into the diet as I went out one evening. I was up all > night feeling like I was buzzing on the inside. My bladder ached, my > bones ached, and I felt like my insides had ADHD! A sort of jittery > feeling. YUCK! I am too scared to try coffee again! > >>> > > When I get this type of anxiety my bladder also goes crazy ! I am in > the bathroom every few minutes....wonder why this happens?- > > Pearl (NY) > > > Country Living at it's finest > Countrylife > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 I have felt those buzzing feeling also, PMS and eating the wrong foods. I feel it a little feeding frenzy going on. If this doesn't help make you think you did a bad thing then nothing will. Can't stop your hormones tho' but trying to get them in balance is very helpful in finding these symptoms become less severe. LIZ > [Original Message] > From: BOGS <lcyr@...> > <candidiasis > > Date: 3/27/01 10:05:21 PM > Subject: Re: Hello > > I get this exact same feeling during premenstral times for me. I call it I feel like someone has plugged me in like an electrical appliance. That's the best way I can describe this. It feels like I drank gallons of coffee all at once. I haven't even come near caffeine in over 5 years. I have no idea why I get this way but I know it is directly related to the candida. > > > Re: Hello > > > I can relate to the feeling electrocuted. I drank coffee (my last one > ever!) 3 days into the diet as I went out one evening. I was up all > night feeling like I was buzzing on the inside. My bladder ached, my > bones ached, and I felt like my insides had ADHD! A sort of jittery > feeling. YUCK! I am too scared to try coffee again! > >>> > > When I get this type of anxiety my bladder also goes crazy ! I am in > the bathroom every few minutes....wonder why this happens?- > > Pearl (NY) > > > Country Living at it's finest > Countrylife > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Cherry, Welcome to the group! This group is intended for those with autoimmune liver disease and I, myself, suffered from autoimmune hepatitis until May 1995, at which I received my liver transplant. There are hundreds of people on this list, some pre-transplant and post-transplant (with varying degrees of liver disease) who are more than willing to answer your questions and share their wealth of information. Just let us know what type of liver disease you have...AIH, PSC, PBC.., ask your questions, and I am sure you will receive lots of helpful information as well as websites to assist. Jerry on this list is a great source of information to all of us with website information and great insight. Just let us know how we can help you. Bonnie AIH and post transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Welcome, Cherry For information, support, empathy and a great cheering section, you have come to the right place. I think I have learned more about autoimmune hepatitis here than from any other resource. Whatever question you may have, someone here has probably experienced it. If you go back over the message list, you will see a lot of topics...a lot of links to good, informative sites also. If you dont see what you are looking for, ask your question, someone will respond..usually several someones... Tell us a little about your situation..when, how diagnosed, your current treatment...where you are now...and what you would like information about. There are people here from newly diagnosed, to those you have lived with this disease for many years. Since I am closer to newly diagnosed, I can give a little info..but others here know much, much more than I do. Once again, welcome...lets hear from you soon! nne AIH 11/00 > Hi, My name is Cherry Guynee and I am from ville, PA. I have been diagnosed with Autoimmune Liver disease for almost 2 years now and know nothing of the disease. I am now able to look some things up for myself and talk to others. Since my doctors aren't informative, I was wondering if there's any one else around in the same situation. I will welcome any information. > > Thank you Cherry Guynee............... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 HI to everyone......... At this time I would like to thank everyone for their support. I am not in complete control of my computer so bear with me. I have been sick for 2 years and am just now well enough (mentally and physically) to start seeking help. You are all so wonderful and have made me smile. I just go around in a fog all the time so I asked my dr. if I was tested for hemochromatosis and he said yes and they were all normal soooo, I'm back to square one. Normal blood counts but feel like hell, in a fog and extremely tired. Has anyone out there had feet that ache real bad? I tell my drs and don't know. My prayers to all of you. Cherry.... Re: [ ] HELLO Cherry, Welcome to the group! This group is intended for those with autoimmune liver disease and I, myself, suffered from autoimmune hepatitis until May 1995, at which I received my liver transplant. There are hundreds of people on this list, some pre-transplant and post-transplant (with varying degrees of liver disease) who are more than willing to answer your questions and share their wealth of information. Just let us know what type of liver disease you have...AIH, PSC, PBC.., ask your questions, and I am sure you will receive lots of helpful information as well as websites to assist. Jerry on this list is a great source of information to all of us with website information and great insight. Just let us know how we can help you. Bonnie AIH and post transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Hi Jacqui, Welcome to the group. I have been using Elecom (also known as Mometasone Furoate Cream 0.1%. Its the best I've found yet for treating my psoriasis. It is by prescription here in Canada and I'm sure it's available in the UK as well. I would ask your doctor for it. ...Any suggestions for psoriasis would be appreciated. I am lucky that it is on my back and torso out of sight... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Hi Jacqui And a Huge Welcome. I've been trying to track down some of the UK residents on here - I live in Bournemouth. I've had PA and the skinny thing for about 8 years now and currently in remission after years of torment. So there is hope for some of u that are in the thick of a flare up - i have to remeber to make the most of the good times and enjoy life to the full when I can. Speak soon Nigel ) (uk) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 hello there! you are so right about enjoying the good days > only thing is sometimes i'm so happy about feeling good i can overdo it ! then a couple of days later i have a little flare up just so it can remind me ! are you effected by the weather? it's been so hot and dry the last couple of days i feel like a different person but if it's hot and humid i suffer! also if it's damp and wet i seem to have a flare up. I wonder if there is a relationship between vapour in the air and flare ups > then again this is not an exact science as sometimes it flares up for no given reason!! i have been on holiday from work for the last two weeks and have noticed a big difference in my condition both from the p and pa which leads me to conclude that stress is also a major factor. unfortunately as i am unable to retire to a hot country just yet i guess i had better go back to work next week!! anyway take it easy in bournemouth > bet you're enjoying the sun as well aren't you? bye jacqui anyway nigel and everyone else bye bye for now --- NippyNige@... wrote: > Hi Jacqui > > And a Huge Welcome. > > I've been trying to track down some of the UK > residents on here - I live in > Bournemouth. > > I've had PA and the skinny thing for about 8 years > now and currently in > remission after years of torment. So there is hope > for some of u that are in > the thick of a flare up - i have to remeber to make > the most of the good > times and enjoy life to the full when I can. > > Speak soon > > Nigel ) (uk) > > > [Non-text portions of this message have been > removed] > > > ____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 Nigel, Your mention of UK residents made me think of Mike (Picbond). Do you have any news of how his heart surgery turned out? -- Ron > I've been trying to track down some of the UK residents on > here - I live in Bournemouth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 In a message dated 23/05/01 01:55:11 GMT Daylight Time, jacquilintern@... writes: > anyway take it easy in bournemouth > bet you're > enjoying the sun as well aren't you? > > bye > > jacqui > Yes Jacqui I am making the most of it by going down the beach with my daughter these last couple of days and hopefully trying to get my rid of the psoriasis on my back. I still get embarassed tho - hate taking my shirt off these days cos people stare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 Jacqui Lintern wrote: > >> unfortunately as i am unable to retire to a hot > country just yet i guess i had better go back to work > next week!! > Hi Jacqui, I'm here to tell you -- this won't make your day -- that being in a hot country will not likely make a difference to your PA (though it might to the P). I'm in Arizona, which is about the sunniest and (maybe?) the hottest state in the US, and it doesn't do anything helpful at all for my PA. The sun does help the P, but then again you have to watch out for too much of those UVA and UVB rays (skin cancer, doncha know). Ta ta for now, --Louise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 I live in Croydon, surrey! My name is Simon and I am 29 years old with PA and P. [ ] Re: hello Nigel, Your mention of UK residents made me think of Mike (Picbond). Do you have any news of how his heart surgery turned out? -- Ron > I've been trying to track down some of the UK residents on > here - I live in Bournemouth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Hello and welcome Simon Nice to know that there are other UK folk here as well as our American and other friends - where else is everyone from?? Nigel ) (uk) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Hi Nigel - I'm in PA with PA (Pennsylvania that is - about 35 miles west of Philadelphia) Do you have any news about Mike? (Picbond) Quote Link to comment Share on other sites More sharing options...
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