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Pearl: yes i have the heart palpatations, you need to relax at the time, lie down & take about 3-4 big breaths and let them out slowly! since you have been to the hosp. just as i was soo many times you know your heart is ok. when having the attacks keep "reminding" your self your heart is fine & it will pass! try to relax and go with the flow!!!!!!! it works, once you know how to get past them you'll be ok! possibly could you be going thru a die=off period? i only had mine at night time, waking me up. do you ever feel like you need to go to the bathroom? 1 Dr. told me if i would bear dwon like having a bowel movement would put it under control also. let me know if this helps! Mogdrmom

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Pearl: you really don't have much of a choice, if you start the diet and what meds did he give you,? once you start having the die-offs your problem with your anxiety & heart will subside! i only get them now when my body is going thru a change of some sort! the more yeast you get out of your system the bettter you will be! Trust me! i've been there done that. my Dr. gave me Lorazapan to take at night, but i still get the palpatations but they are more softer, not as loud! Mog

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No, I am not going through a die off, because I have not strated the

medicine the doctor has given me. I am afraid to. I am afriad the

palpitations will get worse. My doctor is not a man of many words....he

tells me what to take and then I am on my own. He has cost me a fortune

and I still am in the dark. So I have just been trying to get the

symptoms inder control ( heart racing ) and still have not started what

he gave me. I am afraid of the die off...to be honest.

I feel like it is a no win situation. I am sicj with anxiety and heart

racing now, and If I take the meds, I will get worse.

Pearl (NY)

Country Living at it's finest

Countrylife

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Jonah,

This whole heart palpitations thing is a little scary. I was diagnosed

with what the doctor called Wolf Parkinson White syndrome based on a couple

of inconclusive heart monitor sessions. But it sounds like what you guys

are describing here: occasional periods where the heart would feel like

it was missing a beat, and the other times when it would 'go off' like

a rocket- racing like 180bpm and I would have to lie down and RELAX and

take very deep breaths.

I have always just accepted that there was something wrong with the

electrical pathways in my heart, but maybe it's not that serious. Something

to think about anyway!

It hasn't bothered me in a few months, now.

Jonah

mogdrmom@... wrote:

Pearl:

yes i have the heart palpatations, you need to relax at the time, lie

down & take about 3-4

big breaths and let them out slowly! since you have

been to the hosp. just as

i was soo many times you know your heart is ok.

when having the attacks

keep "reminding" your self your heart is fine & it

will pass! try to relax

and go with the flow!!!!!!! it works, once you know

how to get past them you'll

be ok! possibly could you be going thru a die=off

period? i only had mine

at night time, waking me up. do you ever feel like

you need to go to the bathroom?

1 Dr. told me if i would bear dwon like

having a bowel movement

would put it under control also. let me know if this

helps!

Mogdrmom

Send blank message to candidiasis-unsubscribeonelist

if you want to UNSUBSCRIBE !

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Hi again Pearl

Tell me, are you menopausal. These attacks can happen because of menopause.

It could be they are hormonal related. Try taking magnesium, these will

help the palpitations, and also calm your central nervous system. You will

probably have to take about 6 tablets a day, instead of the usual two. What

ever dose they say, double it! The only thing that will happen if you have

too much is the trots!

I will keep in touch

Re: Hello

> No, I am not going through a die off, because I have not strated the

> medicine the doctor has given me. I am afraid to. I am afriad the

> palpitations will get worse. My doctor is not a man of many words....he

> tells me what to take and then I am on my own. He has cost me a fortune

> and I still am in the dark. So I have just been trying to get the

> symptoms inder control ( heart racing ) and still have not started what

> he gave me. I am afraid of the die off...to be honest.

> I feel like it is a no win situation. I am sicj with anxiety and heart

> racing now, and If I take the meds, I will get worse.

>

> Pearl (NY)

>

>

> Country Living at it's finest

> Countrylife

>

>

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

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>>>Tell me, are you menopausal. These attacks can happen because of

menopause. It could be they are hormonal related. Try taking magnesium,

these will help the palpitations, and also calm your central nervous

system. You will probably have to take about 6 tablets a day, instead of

the usual two. What ever dose they say, double it! >>>>>

Yes I am .

Pearl (NY)

Country Living at it's finest

Countrylife

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I can relate to the feeling electrocuted. I drank coffee (my last one

ever!) 3 days into the diet as I went out one evening. I was up all

night feeling like I was buzzing on the inside. My bladder ached, my

bones ached, and I felt like my insides had ADHD! A sort of jittery

feeling. YUCK! I am too scared to try coffee again! :(

>>>

When I get this type of anxiety my bladder also goes crazy ! I am in

the bathroom every few minutes....wonder why this happens?-

Pearl (NY)

Country Living at it's finest

Countrylife

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> You might have supraventricular tachycardia. It occurs when there

is an extra electrical pathway in the heart. Some heart beats will

take this extra path and keep re-entering the heart, hence the faster

and faster heart beats. My Drs. misdiagnosed me with this some time

ago so I did quite a bit of research. You can take a beta blocker for

it. I take one every day for tachycardia and can't live a normal life

without it.

Some people also have ablations, a procedure in which the extra

pathway is blocked (I think they burn it) and the heart beats can no

longer take the extra path. An electrophisiologist is the type of Dr.

who specializes in irregular heart beats. It might be worthwhile for

you to see one. You can wear a holter monitor or a 30 day event

monitor that will record what is happening when you go into your

arrhythmia (irregular heart beat).

I have found that magnesium really helps me with palpitations and

arrhythmias. For some reason potassium actually increases my

arrhythmias. Be careful when starting any new supplements. It is a

good idea to only start one at a time so that you notice the effect

it is having on you. Hope this helps,

>

>

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I forgot to add that there are some manuevers that might help you the

next time you go into an SVT attack. These include: putting your face

into very cold water, lying down, coughing, bearing down like when

having a bowel movement and rubbing the artery in your neck where you

can feel your pulse.

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I have found that magnesium really helps me with palpitations and

arrhythmias. For some reason potassium actually increases my

arrhythmias. Be careful when starting any new supplements. It is a good

idea to only start one at a time so that you notice the effect it is

having on you. Hope this helps, >>>

How much magnesium can I take a day?

I have had the holter and also EKG, I have had heart blood ennzymes

taken, numerous stress tests, an echocardia gram and other tests.

I have had the attacks monitored on a monitor by my heart doctor in the

middle of an attack.It is chemical...I know believe it is coming from

the candida.

Thank you for the advise. I am going to write down the type of doctor

you are suggesting for my friend...this was very useful

information..thanks so much

Pearl (NY)

Country Living at it's finest

Countrylife

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I get this exact same feeling during premenstral times for me. I call it I feel like someone has plugged me in like an electrical appliance. That's the best way I can describe this. It feels like I drank gallons of coffee all at once. I haven't even come near caffeine in over 5 years. I have no idea why I get this way but I know it is directly related to the candida.

Re: Hello

I can relate to the feeling electrocuted. I drank coffee (my last oneever!) 3 days into the diet as I went out one evening. I was up allnight feeling like I was buzzing on the inside. My bladder ached, mybones ached, and I felt like my insides had ADHD! A sort of jitteryfeeling. YUCK! I am too scared to try coffee again! :( >>>When I get this type of anxiety my bladder also goes crazy ! I am inthe bathroom every few minutes....wonder why this happens?-Pearl (NY)Country Living at it's finestCountrylifeSend blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE !

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> [Original Message]

> From: BOGS <lcyr@...>

> <candidiasis >

> Date: 3/27/01 10:05:21 PM

> Subject: Re: Hello

>

> I get this exact same feeling during premenstral times for me. I call it

I feel like someone has plugged me in like an electrical appliance. That's

the best way I can describe this. It feels like I drank gallons of coffee

all at once. I haven't even come near caffeine in over 5 years. I have no

idea why I get this way but I know it is directly related to the candida.

>

>

> Re: Hello

>

>

> I can relate to the feeling electrocuted. I drank coffee (my last one

> ever!) 3 days into the diet as I went out one evening. I was up all

> night feeling like I was buzzing on the inside. My bladder ached, my

> bones ached, and I felt like my insides had ADHD! A sort of jittery

> feeling. YUCK! I am too scared to try coffee again! :(

> >>>

>

> When I get this type of anxiety my bladder also goes crazy ! I am in

> the bathroom every few minutes....wonder why this happens?-

>

> Pearl (NY)

>

>

> Country Living at it's finest

> Countrylife

>

>

>

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I have felt those buzzing feeling also, PMS and eating

the wrong foods. I feel it a little feeding frenzy

going on. If this doesn't help make you think you did

a bad thing then nothing will. Can't stop your hormones

tho' but trying to get them in balance is very helpful

in finding these symptoms become less severe.

LIZ

> [Original Message]

> From: BOGS <lcyr@...>

> <candidiasis >

> Date: 3/27/01 10:05:21 PM

> Subject: Re: Hello

>

> I get this exact same feeling during premenstral times for me. I call it

I feel like someone has plugged me in like an electrical appliance. That's

the best way I can describe this. It feels like I drank gallons of coffee

all at once. I haven't even come near caffeine in over 5 years. I have no

idea why I get this way but I know it is directly related to the candida.

>

>

> Re: Hello

>

>

> I can relate to the feeling electrocuted. I drank coffee (my last one

> ever!) 3 days into the diet as I went out one evening. I was up all

> night feeling like I was buzzing on the inside. My bladder ached, my

> bones ached, and I felt like my insides had ADHD! A sort of jittery

> feeling. YUCK! I am too scared to try coffee again! :(

> >>>

>

> When I get this type of anxiety my bladder also goes crazy ! I am in

> the bathroom every few minutes....wonder why this happens?-

>

> Pearl (NY)

>

>

> Country Living at it's finest

> Countrylife

>

>

>

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Cherry,

Welcome to the group! This group is intended for those with autoimmune liver disease and I, myself, suffered from autoimmune hepatitis until May 1995, at which I received my liver transplant. There are hundreds of people on this list, some pre-transplant and post-transplant (with varying degrees of liver disease) who are more than willing to answer your questions and share their wealth of information. Just let us know what type of liver disease you have...AIH, PSC, PBC.., ask your questions, and I am sure you will receive lots of helpful information as well as websites to assist.

Jerry on this list is a great source of information to all of us with website information and great insight. Just let us know how we can help you.

Bonnie

AIH and post transplant

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Welcome, Cherry

For information, support, empathy and a great cheering section, you

have come to the right place. I think I have learned more about

autoimmune hepatitis here than from any other resource. Whatever

question you may have, someone here has probably experienced it.

If you go back over the message list, you will see a lot of topics...a

lot of links to good, informative sites also. If you dont see what

you are looking for, ask your question, someone will respond..usually

several someones...

Tell us a little about your situation..when, how diagnosed, your

current treatment...where you are now...and what you would like

information about. There are people here from newly diagnosed, to

those you have lived with this disease for many years. Since I am

closer to newly diagnosed, I can give a little info..but others here

know much, much more than I do.

Once again, welcome...lets hear from you soon!

nne AIH 11/00

> Hi, My name is Cherry Guynee and I am from ville, PA. I

have been diagnosed with Autoimmune Liver disease for almost 2 years

now and know nothing of the disease. I am now able to look some

things up for myself and talk to others. Since my doctors aren't

informative, I was wondering if there's any one else around in the

same situation. I will welcome any information.

>

> Thank you Cherry Guynee...............

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HI to everyone......... At this time I would like to thank everyone for their support. I am not in complete control of my computer so bear with me. I have been sick for 2 years and am just now well enough (mentally and physically) to start seeking help. You are all so wonderful and have made me smile. I just go around in a fog all the time so I asked my dr. if I was tested for hemochromatosis and he said yes and they were all normal soooo, I'm back to square one. Normal blood counts but feel like hell, in a fog and extremely tired. Has anyone out there had feet that ache real bad? I tell my drs and don't know. My prayers to all of you.

Cherry....

Re: [ ] HELLO

Cherry, Welcome to the group! This group is intended for those with autoimmune liver disease and I, myself, suffered from autoimmune hepatitis until May 1995, at which I received my liver transplant. There are hundreds of people on this list, some pre-transplant and post-transplant (with varying degrees of liver disease) who are more than willing to answer your questions and share their wealth of information. Just let us know what type of liver disease you have...AIH, PSC, PBC.., ask your questions, and I am sure you will receive lots of helpful information as well as websites to assist. Jerry on this list is a great source of information to all of us with website information and great insight. Just let us know how we can help you. Bonnie AIH and post transplant

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  • 1 month later...
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Hi Jacqui,

Welcome to the group.

I have been using Elecom (also known as Mometasone Furoate Cream 0.1%. Its

the best I've found yet for treating my psoriasis. It is by prescription

here in Canada and I'm sure it's available in the UK as well. I would ask

your doctor for it.

...Any suggestions for psoriasis would be appreciated. I am lucky that it

is on my back and torso out of sight...

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Hi Jacqui

And a Huge Welcome.

I've been trying to track down some of the UK residents on here - I live in

Bournemouth.

I've had PA and the skinny thing for about 8 years now and currently in

remission after years of torment. So there is hope for some of u that are in

the thick of a flare up - i have to remeber to make the most of the good

times and enjoy life to the full when I can.

Speak soon

Nigel :o) (uk)

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hello there!

you are so right about enjoying the good days > only

thing is sometimes i'm so happy about feeling good i

can overdo it ! then a couple of days later i have a

little flare up just so it can remind me !

are you effected by the weather? it's been so hot and

dry the last couple of days i feel like a different

person but if it's hot and humid i suffer! also if

it's damp and wet i seem to have a flare up. I wonder

if there is a relationship between vapour in the air

and flare ups > then again this is not an exact

science as sometimes it flares up for no given

reason!! i have been on holiday from work for the last

two weeks and have noticed a big difference in my

condition both from the p and pa which leads me to

conclude that stress is also a major factor.

unfortunately as i am unable to retire to a hot

country just yet i guess i had better go back to work

next week!!

anyway take it easy in bournemouth > bet you're

enjoying the sun as well aren't you?

bye

jacqui

anyway nigel and everyone else bye bye for now

--- NippyNige@... wrote: > Hi Jacqui

>

> And a Huge Welcome.

>

> I've been trying to track down some of the UK

> residents on here - I live in

> Bournemouth.

>

> I've had PA and the skinny thing for about 8 years

> now and currently in

> remission after years of torment. So there is hope

> for some of u that are in

> the thick of a flare up - i have to remeber to make

> the most of the good

> times and enjoy life to the full when I can.

>

> Speak soon

>

> Nigel :o) (uk)

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

____________________________________________________________

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Nigel,

Your mention of UK residents made me think of Mike (Picbond). Do you

have any news of how his heart surgery turned out?

-- Ron

> I've been trying to track down some of the UK residents on

> here - I live in Bournemouth.

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In a message dated 23/05/01 01:55:11 GMT Daylight Time,

jacquilintern@... writes:

> anyway take it easy in bournemouth > bet you're

> enjoying the sun as well aren't you?

>

> bye

>

> jacqui

>

Yes Jacqui

I am making the most of it by going down the beach with my daughter these

last couple of days and hopefully trying to get my rid of the psoriasis on my

back. I still get embarassed tho - hate taking my shirt off these days cos

people stare.

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Jacqui Lintern wrote:

>

>> unfortunately as i am unable to retire to a hot

> country just yet i guess i had better go back to work

> next week!!

>

Hi Jacqui,

I'm here to tell you -- this won't make your day -- that being in a hot

country will not likely make a difference to your PA (though it might to

the P). I'm in Arizona, which is about the sunniest and (maybe?) the

hottest state in the US, and it doesn't do anything helpful at all for

my PA. The sun does help the P, but then again you have to watch out for

too much of those UVA and UVB rays (skin cancer, doncha know).

Ta ta for now,

--Louise

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I live in Croydon, surrey! My name is Simon and I am 29 years old with PA

and P.

[ ] Re: hello

Nigel,

Your mention of UK residents made me think of Mike (Picbond). Do you

have any news of how his heart surgery turned out?

-- Ron

> I've been trying to track down some of the UK residents on

> here - I live in Bournemouth.

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Hello and welcome Simon

Nice to know that there are other UK folk here as well as our American and

other friends - where else is everyone from??

Nigel :o) (uk)

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