Melatonin

[Guest guest]

Hi All,

Was in health food store today - seeking out melatonin, as it helps with

sleep.

However, there was a contraindication on the bottle warning those prone to or

experiencing autoimmune disorders not to take it.

The gals in the health food store (SUPER people) were very aware of this, but

didn't know why the warning either.

Anyone?

Thanks

Chris

[Guest guest]

I wonder about this warning. Hubby has an autoimmune disorder called

sarcoidosis, and Melatonin is used in HIGH doses as a tx. I use it for sleep

at times, doesn't seem to do anything neg. with lyme. I wouldn't go higher

than 3mg. to see if it affects you negatively in any way though, in fact I'd

start at 1 or 2mg to be safe.pj

[Guest guest]

Thanks for the info!

[Guest guest]

Thanks for the info!

[Guest guest]

Ste,

In a message dated 06/27/2001 2:15:13 PM Eastern Daylight Time,

stebennett@... writes:

> Melatonin feeds some cancers and inhibits others

I've read that too. Do you know which types of cancer it feeds?

Leonard

[Guest guest]

I have researched it a few years ago - it is not indicated for

non-hodgkins lymphoma. (no I don't remember where the research

is but it wasn't too hard to find).

Dave Perkins

" enjoy being "

email: dperkins@...

web site: www.betterwayhealth.com

Re: [ ] melatonin

> Ste,

> In a message dated 06/27/2001 2:15:13 PM Eastern Daylight Time,

> stebennett@... writes:

> > Melatonin feeds some cancers and inhibits others

> I've read that too. Do you know which types of cancer it feeds?

> Leonard

>

> You are digging your grave with your teeth!

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[Guest guest]

Hi--

I'm on Klonopin too, and Melatonin, and I still take an Ambien 5 mg.

in the middle of the night to get 8-9 hours of sleep. Can I ask why you're

going off the K? I'm new at this Lyme stuff, but I think I read benzos aren't a

good idea with Lyme.

I have Periodic Limb Movement Disorder and alpha wave intrusion, so

basically every 20 seconds my sleep was disrupted. The sleep dr. put me on up

to 4 mg. Klonopin, said I could add up to 1 mg. of Melatonin, and was aware

that I also take Ambien sometimes. Perhaps that is a shocking amount of sleep

meds -- I don't know.

I have noticed that if I take Natrol brand melatonin I get the type of

headache you describe, plus more of a hung-over feeling. I'm trying to stay

completely vegetarian with the Melatonin, though, because I don't want

anything derived from cow brains, on the advice of a neurologist a few years

ago.

I'm currently at 3 mg. clonazepam (cheaper generic Klonopin), 2 mg.

melatonin, and sometimes Ambien. I would say I have vivid dreams but not

nightmares. --Ann

In a message dated 1/31/2005 12:14:27 PM Pacific Standard Time,

REMOCLIHP@... writes:

> Subj: [ ] Melatonin

> Date: 1/31/2005 12:14:27 PM Pacific Standard Time

> From: REMOCLIHP@...

> Reply-to:

>

> Sent from the Internet

>

>

>

>

> I am being weaned off Klonopin;as best I can tell it no longer helps me

> sleep but I am tapering off gradually. I started using melatonin last week and

it

> seems to put me to sleep great and I sleep very deeply. However I still wake

> up later in the night after taking it. I'm taking about 3.5 mg;my doctor

> told me not to exceed 5mg as I may get nightmares. I'm wondering if others are

> taking it and what dose you need for it to help. Also I notice at first when I

> take it I get a minor frontal headache.Wondered if others experience that.

>

> Phil

>

[Guest guest]

The Klonopin is no longer helping me. My LLMD doesn't use it;I was on it from

another doctor I've seen since '94 when I was originally diagnosed with CFS. I

will be trying different supplements instead. A fair amount of time in the last

couple of years I did not need Klonpin. I'm kind of scared of the stuff after I

stupidly stopped it cold turkey last October.A dumb move.

Phil

Re: [ ] Melatonin

Hi--

I'm on Klonopin too, and Melatonin, and I still take an Ambien 5 mg.

in the middle of the night to get 8-9 hours of sleep. Can I ask why you're

going off the K? I'm new at this Lyme stuff, but I think I read benzos aren't

a

good idea with Lyme.

[Guest guest]

Phil,

Since I was labeled with CFS a few years ago (post Lyme), I was

prescribed Amitryptyline or Elavil. I started at 5 mg or up to 10 mg

depending on my stress level ( and I seem to relate some anxiety to my

menstrual cycle as well). But now I'm on 25 mg which is a dosage

prescribed for antidepressant use. It seems to work well for me. The

reason for the increase was my primary care physician noting I was at

times emotional. Well heck yeah! I just want to be the active and

motivated person I once was.

Deb in MA (who is finally going in for a Lumbar Puncture in a few weeks)

>

[Guest guest]

Hi, to those on nuerontin, please be careful of the side effects! I was on

nuerontin and had a horrible time, anyone wants to email me seperately i will go

into more detail..eve

[Guest guest]

> Hi, to those on nuerontin, please be careful of the side effects! I was on

nuerontin and had a horrible time, anyone wants to email me seperately i

will go into more detail..eve

>

I LOVED Neurontin , it was the only pain med that did its job and the only

side effect was sleepiness, which at the time was much needed ( insomnia)

[Guest guest]

Same here. Early on in my RLS (restless leg) treatment, a neuro-surgeon put me

on Neurontin. I took it for about 1 month - it never helped my RLS - and made

me CRAZY! Seeing things that weren't there, feeling really weird, etc. You

could even tell I was on something by looking at my face / eyes.

Re: [ ] Melatonin

Hi, to those on nuerontin, please be careful of the side effects! I was on

nuerontin and had a horrible time, anyone wants to email me seperately i will go

into more detail..eve

[Guest guest]

I take 1 mg sublingual and that works for me most nights; I did not like 3 mg as

I would be wide awake later in the night, after a few hours sleep. I also take

extra B 12 and 6, and I added a little magnesium in the evenings ( I take

calcium-magnesium with lunch).

My daughter takes the same sublingual 1 mg melatonin and she still wakes up

every few hours - she does however now get back to sleep easily. When she first

took it, she did not fall back asleep.

We both tried it years ago, did not like it, tried it again months later and

then liked it. I have no idea why!

Edith

__________________________________________________

[Guest guest]

Hi Elliot,

After my diagnosis, I saw Dr. Block in Chicago. One

of the problems he addressed was my history of not

being able to fall asleep at night. He felt that many

people had low levels of Melatonin, which interfere

with the body's ability to fall asleep, stay asleep

and repair at night. In my case, he recommended

Melatonin up to 20mg per night. He sells his own

brand of Melatonin and it is of very good quality. I

have tried many other brands to try and save money,

but there are major differences. Some have been

completely ineffective for me. The best brands that I

have found are Block's and Natures Sunshine.

>

> I get tired of books with " miracle " in the title,

> but there is a book called " The Melatonin Miracle "

> whose authors appear to have some clout behind what

> they say, given their strong credentials.

>

> These authors say that by the time a person is in

> their mid-sixties, or at most their seventies, their

> bodily melatonin production is down to nearly

> nothing. They strongly advise those in their sixties

> and above to take a melatonin supplement.

>

>

>

>

>

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[Guest guest]

..What type of cancer did you have? a

[Guest guest]

Hi, .

Thanks for the post. A few questions, please:

There are of course many Dr. Blocks of all kinds, even quite a few

just in Chicago. Could you give the first name of this particular

doctor, as well as what, if any, specialty he/she practices?

Twenty mg is a very high dose. Even nine mg is considered high. But

then there is the question of how much externally taken melatonin is

actually absorbed and utilized. Did you discuss the question of

actual absorption and utilization with Dr. Block, and if so, what was

Dr. Block's opinion? It's my understanding that if there was

significant absorption, you would be feeling quite " hung over " in the

morning from 20 mg of melatonin.

You mentioned major differences between brands. I take it the major

difference you have experienced is ineffectiveness/not being able to

get to sleep or stay asleep?

Thanks.

Elliot

Niewiara wrote:

> Hi Elliot,

> After my diagnosis, I saw Dr. Block in Chicago. One of the problems he

addressed was my history of not being able to fall asleep at night. He felt

that many people had low levels of Melatonin, which interfere with the body's

ability to fall asleep, stay asleep

> and repair at night. In my case, he recommended Melatonin up to 20mg per

night. He sells his own brand of Melatonin and it is of very good quality. I

have tried many other brands to try and save money, but there are major

differences. Some have been completely ineffective for me. The best brands

that I have found are Block's and Natures Sunshine.

>

[Guest guest]

--- breathedeepnow <aug20@...> wrote:

>

> Thanks for the post. A few questions, please:

>

> There are of course many Dr. Blocks of all kinds,

> even quite a few

> just in Chicago. Could you give the first name of

> this particular

> doctor, as well as what, if any, specialty he/she

> practices?

Sorry, I should have been more specific. I saw Dr.

Block at Block Center for Integrative Health.

He is in ton, IL. I saw him several times when I

lived in the Chicago area. He is an oncologist that

practices complementary medicine. He incorporates

diet, nutritional supplements, mind/body therapies and

when necessary traditional medicine. That said, he

does not force traditional treatments. I saw him

after I had surgery for leiomyosarcoma. Since I moved

from that area, I have not see him in a couple of

years, but I do still order some of his supplements.

Here is his website.

http://www.blockmd.com/home.html

>

> Twenty mg is a very high dose. Even nine mg is

> considered high.

Twenty is not that high. I was told that up to 40mg

is considered safe. I take anywhere from 12mg to

20mg. I now sleep well and as a result I have more

energy.

Did you discuss the

> question of

> actual absorption and utilization with Dr. Block,

> and if so, what was

> Dr. Block's opinion?

Excellent question. However at the time, I had such

little time to discuss a laundry list of issues with

him that I don't recall anything being mentioned about

the absorption rate of the Melatonin in his

supplements. I do recall that as part of my work-up,

he did collect several saliva (spit test) specimens to

test my Melatonin level. It was low.

It's my understanding that if

> there was

> significant absorption, you would be feeling quite

> " hung over " in the

> morning from 20 mg of melatonin.

Never. I take it every night and I am rather petite.

Is there something published with that statement?

Here is a site that discusses Melatonin and a study

done with children. They were given 5mg.

http://healthgate.partners.org/browsing/LearningCenter.asp?fileName=21730.xml & ti\

tle=Insomnia

>

> You mentioned major differences between brands. I

> take it the major

> difference you have experienced is

> ineffectiveness/not being able to

> get to sleep or stay asleep?

Yes, either I can't fall asleep, stay asleep or I'm up

very early. For me, there is definitely a difference

in the quality between brands.

Hope this has been helpful.

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[Guest guest]

Hi a,

Uterine leiomyosarcoma. Diagnosed in 2/2003.

--- a Trombetta <pjtteach@...> wrote:

> ..What type of cancer did you have? a

>

>

>

>

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[Guest guest]

Hi, Kay.

Thank you for providing specific information on Dr. Block.

That is WONDERFUL that you are apparently in good health several

years after being diagnosed with a sarcoma! Congratulations and

blessings to you!

You did not say who told you 20 mg is not that high. According to the

scientists who wrote the book, " The Melatonin Miracle, " these guys

being authorities on melatonin, 20 mg of melatonin is very high, and

40 mg is out of this world. It is not necessarily a matter of " safe, "

since, from what I understand, the body will simply excrete excess

melatonin. It is a matter of possible hang-over, as I mentioned

previously, if significant melatonin is absorbed, and diminishing

returns/waste of money if 3-6 mg will do the same thing 20-40 mg does.

You are the first person I have heard of who takes as much as 20 mg,

and this is the first I have ever heard about 40 mg. If such dosages

were common, melatonin would not as a rule, be sold in bottles of 3

mg capsules.

I wonder about the validity of a salivary melatonin level test. Have

never heard of such. I am going to investigate. Thanks for mentioning

it.

It concerns me to hear that children were being given 5 mg of

melatonin. I may be completely wrong, but I think there might be the

possibility that natural melatonin production might diminish if

synthetic is given. Or maybe these particular children had some

problem producing their own, natural melatonin?

Thanks again,

Elliot

[Guest guest]

--- breathedeepnow <aug20@...> wrote:

> Hi, Kay.

Hi Elliot,

This is , but you can call me Kay. LOL!

>

> That is WONDERFUL that you are apparently in good

> health several

> years after being diagnosed with a sarcoma!

> Congratulations and

> blessings to you!

My health was much better before I moved to Houston,

TX. I also have bronchiectasis, which was under

control, before moving here. Last scan showed

progression of the bronchiectasis, so I'm trying to

get that under control and continue to search for

answers. I believe the pollution here is a factor.

> You did not say who told you 20 mg is not that high.

My osteopath in Indiana told me it's ok to take up to

40 mg. I don't recall if Block also told me the same

thing. However, he did tell me to take 20 mg.

It is a matter of possible hang-over, as

> I mentioned

> previously, if significant melatonin is absorbed,

> and diminishing

> returns/waste of money if 3-6 mg will do the same

> thing 20-40 mg does.

I suppose it all depends on individual need and how

well the pineal gland is functioning. I've been

taking it for 4 years now and I wake up feeling very

rested. It's made such a difference in my life.

> You are the first person I have heard of who takes

> as much as 20 mg,

> and this is the first I have ever heard about 40 mg.

> If such dosages

> were common, melatonin would not as a rule, be sold

> in bottles of 3

> mg capsules.

It isn't only sold in 3 mg capsules. Check out Life

Extension. They sell 10 mg capsules and there are

other companies that sell 5 mg tablets (I think Source

Naturals is one of them).

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[Guest guest]

While I was undergoing chemotherapy, I had a naturopath who helped me to get

my supplements in order in order to help support my body. He recommended

20 mg of melatonin also.

I no longer take that as it interferes with the Budwig protocol (it is a

hormone after all!)

Tina in the boonies of Kentucky

[Guest guest]

Melatonin has been studied quite a bit as a cancer treatment and is

there is good clinical evidence supporting it. I'm not sure that the

mechanisms are well understood, but it's known to be a powerful

antioxidant.

Many studies have used 20 mg/day, and I've even heard of up to 50

mg/day, but would agree that such a dose seems quite high.

There is also reason to believe that it might be effective in much

smaller doses, such as 2 to 5 mg/day. In the book " Your Body's Natural Wonder

Drug: Melatonin " by Russel Reiter, PhD, 1995, he even mentions the possibility

that it might be MORE effective in the lower dose.

In any case, at least for primary brain tumors, 20 mg/day, taken right before

bed, seems to be the most common dose.

I've mentioned melatonin in my brain tumor website:

http://home.comcast.net/~iaa/index.html

<http://home.comcast.net/~iaa/index.html>

Irfan

[Guest guest]

Should anyone want to delve into Melatonin more thoroughly, the following link

will take you to a site

that is involved with bladder cancer but if one scrolls downward they will find

a thorough discourse on Melatonin which I will be taking in a few minutes as I

call it a day. The site is that of one of the nation's leading Urologists Dr.

Lamm who also believes in a high vitamin protocol while using BCG the

'Gold Standard' Immunotherapy.

The link is: http://www.bcgoncology.com/physicians/DanRubinNatOnc.pdf

A big thanks to glange for thinking of and sending me the link that led me to

the above. There is information of interest to breast cancer victims as well re

the use of Melatonin.

Joe C.

The Link to the original site sent me is:

http://www.cancerrd.com/FAQs/FAQ50.htm

[Guest guest]

My naturopath prescribed 20mg a night. Deeper sleep helps with rest and

building the immune system This was while I was going through chemo though. I

dont need as much now.

[Guest guest]

I've heard a lot of good about melatonin, however it either gives me

wierd dreams or tends to mess up my sleep.

-Dave

Ray wrote:

>My naturopath prescribed 20mg a night. Deeper sleep helps with rest and

building the immune system This was while I was going through chemo though. I

dont need as much now.

>

>

>

>

>