Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 I am one of eight children. 4 of us have psoriasis of the scalp. Myself and one sister have psoriasis elsewhere on the body at times. Neither parent had/have symptoms. An Aunt on my mothers side says she has P on her fingers but I can't see it when she shows me her hands. 3 or 4 generations before there was a relative that was wheelchair bound w/ awful pain. Probably the PA from the age of 30 something. My sis has pain and sausage fingers etc at times but denies it is PA. She insists she is changing her diet and has a thyroid problem and hormone problems....not PA. I believe I have PA and have been diagnosed w/ it. It attacks my tendons all over my body and w/out meds I can't move. W/ meds I can function and continue to work. The problem is getting relatives to admit if they have psoriasis. Who is going to stand up and say " look at my crappy scalp condition " ? You get my meaning? Minor aches and pains might be PA but until it interfers w/ your life who is going to be diagnosed w/ PA? Looking back I had symptoms for a few years before it finally hit hard and interfered w/ my life. To not have children is a personal decision whether one has PA or not. None of my sisters or brothers had noticable scalp conditions until after our kids were born. Yes, we can look anxiously at them for symptoms but they are already on this planet. My younger brother is the only single one of the bunch and he is freaked that he will get like me. He has no symptoms of P but watches me and feels bad for himself. Pat B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 --- Bias <PBias@...> wrote: [snipped] > The problem is getting relatives to admit if they > have psoriasis. Who is going to stand up and > say " look at my crappy scalp condition " ? You get > my meaning? Minor aches and pains might be PA but > until it interfers w/ your life who is going to be > diagnosed w/ PA? Looking back I had symptoms for a > few years before it finally hit hard and interfered > w/ my life. [snipped] Very good point, Pat. On thinking about what you said it occurs to me that the people on my fathers side would not admit to having been run over even if they had tire tracks across their torsos, so why would they admist to P or PA? RAH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 I have two teenagers. I have PA and their father (my ex) has PA. I don't even want to think about it, but I do. I can't help it. I just hope and pray for a cure and do as much research as possible. Catja Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 In a message dated 7/26/99 12:23:22 PM Eastern Daylight Time, raharris@... writes: << Looking back I had symptoms for a > few years before it finally hit hard and interfered > w/ my life. >> I did also. I can look back and remember wearing my hair in a beehive and shampooing every week...and little crusty spots would appear between shampoos. I didn't know what it was then...but I sure do now. I also now remember having tender spots on the tips of my ears and not knowing what it was. My PA came on virtually overnight and was preceded by a full-blown scalp outbreak a month before. My PA inflammation is in direct tandem with the skin psoriasis. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 My father has P and he has arthritis but it's never been actually diagnosed as PA. I assume that's whatit is. I have P and I've been diagnosed with PA. My sister and one of my brothers have P. The P didn't show up in any of us until our 40's. My dr seems to think P is hereditary but not everyone that gets P develops PA. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 In a message dated 07/26/1999 5:20:21 PM Pacific Daylight Time, Frog1945@... writes: << My PA inflammation is in direct tandem with the skin psoriasis. >> Annette, I've found the same thing. My Dr insists that when the P is " under control " , the PA should be also. I've found though that my P is better then it has been in the past, but the PA is worse. Go figure. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 - Re: [ ] Hereditary? From: VLarson169@... In a message dated 07/26/1999 5:20:21 PM Pacific Daylight Time, Frog1945@... writes: << My PA inflammation is in direct tandem with the skin psoriasis. >> Annette, I've found the same thing. My Dr insists that when the P is " under control " , the PA should be also. I've found though that my P is better then it has been in the past, but the PA is worse. Go figure. Vicki Vicki Same here. My hands used to earn me the nickname of lizard skin and my scalp had me looking like I'd just stepped out of a snow storm. With the methyltrexate my hands are now totally free of p and look like any other normal hand - no scarring ect. My scalp is a constant battle but even at it's worse is but a shadow of the way it used to be. The a on the other hand has been up and down - even though I am considered " in remission " . Not sure of the why's and wherefore's of the status of either but I am glad to have my hands back. They look like they did before the p showed up. {:-D SeyWitch ------------------------------------------------------------------------ Please visit our new web page at: http://www.wpunj.edu/icip/pa ----------------------------------------------- FREE! The World's Best Email Address @email.com Reserve your name now at http://www.email.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 In a message dated 05/29/2002 1:02:15 PM Eastern Daylight Time, leckie@... writes: > It does tend to be passed on through the father's genes, but again it is not > automatic Meghan - Is it more likely to pass thru the father than the mother? [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 I have been told that it usually skips a generation. Sounds like you have a ways to go before you start worring about grandkids :-) --- Leckie <leckie@...> wrote: > Should I be worried about PA starting in my children > since my husband is so badly affected with PA? My > children are 12 and 3 and I worry that they will end > up like my husband. Has this happened to anyone on > the list? > > in NJ > > [ Quote Link to comment Share on other sites More sharing options...
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