Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Does anybody know about heriditariness of PA? Is only P or also A heriditary? Is the kind of P one has hariditary? It is sometimes said that it is not heriditary, but just is found in one family more than in others...hmmm. I read 2 of 3 of s children have psoriasis (on introducion on homepage PA), which makes me concerned if it is wise to have children when one of the parents to be has this disease. Eliane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 > Does anybody know about heriditariness of PA? I have not been able to get a doctor to admit to a hereditary connection, though some don't rule it out. In my family, I have PA (but my P is so mild as to be unnoticeable), my father has mild P, my son has moderate P and my cousin's daughter has moderate to severe P and PA. My father's mother is the common connection. We can only draw our own conclusions. My children were all born long before my PA was diagnosed, even before my father was diagnosed with P, so whether to have children or not was not an issue. I don't think I would have felt differently had I known, though I am concerned that my son may one day develop PA as well. Cheers Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 --- Tony Barr <A.S.Barr@...> wrote: > I have not been able to get a doctor to admit to a > hereditary connection, though some don't rule it > out. I am the only one I know of in my family to have either P or PA. None of my brothers or sister have either, my father, his parents and siblings are " clean, " as is my mother and her parents. Go figure. === , NJ Highlands raharris@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 In a message dated 7/26/99 12:07:35 PM Eastern Daylight Time, raharris@... writes: << I have not been able to get a doctor to admit to a > hereditary connection, >> I found just the opposite and two of my doctors explained the hereditary connection of the HLA B27 gene....and similar ones. I was tested for it 5 years ago and it came back positive. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 I live in the Sacramento area of California. They (U. C. ) are now doing a study to try and link the " gene " . My Rh says there is " defiantly a hereditary factor " as there is will all auto immune conditions. They are collecting samples of scrapings in your mouth.......they ask that at least 2 relatives do this. I think alot of us have figured out this is probably a hereditary thing..... it would be nice to confirm it. I do worry about my children too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 There is a research programme at Leeds University/ Leeds General Infirmary (England) into hereditary PA. Info can be obtained via the PA Alliance website www.paalliance.org in UK. I myself am following this up as my sister has P and PA as well as me. Though what it can achieve I am not sure. Regards, Tiff. Harrogate, Yorkshire, England. Re: [ ] heriditariness >From: Frog1945@... > >In a message dated 7/26/99 12:07:35 PM Eastern Daylight Time, >raharris@... writes: > ><< I have not been able to get a doctor to admit to a > > hereditary connection, >> > >I found just the opposite and two of my doctors explained the hereditary >connection of the HLA B27 gene....and similar ones. >I was tested for it 5 years ago and it came back positive. > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 1999 Report Share Posted July 27, 1999 > There is a research programme at Leeds University/ Leeds General Infirmary > (England) into hereditary PA. Info can be obtained via the PA Alliance > website www.paalliance.org in UK. I myself am following this up > as my sister > has P and PA as well as me. Though what it can achieve I am not sure. They have an impressive set up at Leeds. I spent a couple of weeks in the rheumatology unit at Chapel Allerton last year. They got my medication sorted out well and with the therapy I was able to walk out without my stick. Lasted quite a long while before I needed to dig it out again. Cheers Tony (in Hull) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 - [ ] heriditariness From: Eliane Segers <E.Segers@...> Does anybody know about heriditariness of PA? Is only P or also A heriditary? Is the kind of P one has hariditary? It is sometimes said that it is not heriditary, but just is found in one family more than in others...hmmm. I read 2 of 3 of s children have psoriasis (on introducion on homepage PA), which makes me concerned if it is wise to have children when one of the parents to be has this disease. Eliane Hi Eliane I don't know what the " experts " say but here's my thoughts. My father had psoriasis since his late twenties - first showed up during WWII. He didn't develope the arthritis until his mid fifties. He not only had PA but also RA and gout. Back in the late '60's and early '70's they didn't have near the treatments they do now so his PA/RA was debilitating. My brother has never had psoriasis or arthritis and is in his late fifties. I, on the other hand developed psoriasis at the age of seventeen/eighteen. Where my father's psor involved his whole body. Mine has always been primarily on my hands and scalp areas. I didn't start to show signs of the arthritis part of the equation until I was thirty-six. I don't know if I inherited the PA or just the vulnerability to develope it - genetics may answer that question for us in the future. As for children, each person has to make their own decision on that. But if we never took a chance think of all the great people that wouldn't be here. Don't let PA be your weightiest factor in that decision. From what I have read the percentage of p sufferers that turn into pa is less than 7% and out of that less than 1% develope the debilitating syptoms - most have a mild case or no a at all. Hoped this helped. SeyWitch --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Hi Tony, thanks for the note. I am myself an escapee from the fair city of Hull, in Harrogate. Regards, Tiff. RE: [ ] heriditariness >From: Tony Barr <A.S.Barr@...> > >> There is a research programme at Leeds University/ Leeds General Infirmary >> (England) into hereditary PA. Info can be obtained via the PA Alliance >> website www.paalliance.org in UK. I myself am following this up >> as my sister >> has P and PA as well as me. Though what it can achieve I am not sure. > >They have an impressive set up at Leeds. I spent a couple of weeks in the >rheumatology unit at Chapel Allerton last year. They got my medication >sorted out well and with the therapy I was able to walk out without my >stick. Lasted quite a long while before I needed to dig it out again. > >Cheers > >Tony (in Hull) > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
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