(No subject)

[Guest guest]

Thank you so much Margie!

Diane

At 10:29 AM 7/2/99 -0500, you wrote:

>From: " BANDER, MARGIE F " <MARGIE.F.BANDER@...>

>

>Diane,

>

>There are lots of different rife generators to purchase. Check out the

>following web sites:

>http://www.rifemachine.com

>http://www.kalamark.com/batyah/

>http://www.rt66.com/~rifetech/

>http://www.mindspring.com/~turf/alt.htm

>

>Margie Bander

>

> [ ] (no subject)

>

>

>From: Diane Naasz <dianelnl@...>

>

>Someone had given a website for the Rife generator earlier and I have lost

>it. Does anyone have it?

>

>Thanks,

>Diane

>

>---------------------------

[Guest guest]

Diane,

To subscribe: rife-list-request@...

subject: Subscribe

edith

In a message dated 7/2/99 6:11:01 PM Central Daylight Time,

dianelnl@... writes:

<< From: Diane Naasz <dianelnl@...>

Thanks Edith! Do you know the name of the list?

Diane

At 04:04 PM 7/2/99 EDT, you wrote:

>From: Es9525@...

>

>In a message dated 7/2/99 1:41:07 PM Central Daylight Time,

>dianelnl@... writes:

>

><< rom: Diane Naasz <dianelnl@...>

> >

> >Someone had given a website for the Rife generator earlier and I have lost

> >it. Does anyone have it?

> >

> >Thanks,

> >Diane >>

>

>

>Diane,

>

>There is also a Rife list to join if you want. I was on it for awhile but

it

>was way over my head.

>

>edith

>

[Guest guest]

Thanks Edith! Do you know the name of the list?

Diane

At 04:04 PM 7/2/99 EDT, you wrote:

>From: Es9525@...

>

>In a message dated 7/2/99 1:41:07 PM Central Daylight Time,

>dianelnl@... writes:

>

><< rom: Diane Naasz <dianelnl@...>

> >

> >Someone had given a website for the Rife generator earlier and I have lost

> >it. Does anyone have it?

> >

> >Thanks,

> >Diane >>

>

>

>Diane,

>

>There is also a Rife list to join if you want. I was on it for awhile but

it

>was way over my head.

>

>edith

>

>---------------------------

[Guest guest]

Thanks again Edith!

Diane

At 08:40 PM 7/2/99 EDT, you wrote:

>From: Es9525@...

>

>Diane,

>

>To subscribe: rife-list-request@...

>subject: Subscribe

>edith

>

>

>

>In a message dated 7/2/99 6:11:01 PM Central Daylight Time,

>dianelnl@... writes:

>

><< From: Diane Naasz <dianelnl@...>

>

> Thanks Edith! Do you know the name of the list?

>

> Diane

>

> At 04:04 PM 7/2/99 EDT, you wrote:

> >From: Es9525@...

> >

> >In a message dated 7/2/99 1:41:07 PM Central Daylight Time,

> >dianelnl@... writes:

> >

> ><< rom: Diane Naasz <dianelnl@...>

> > >

> > >Someone had given a website for the Rife generator earlier and I have

lost

> > >it. Does anyone have it?

> > >

> > >Thanks,

> > >Diane >>

> >

> >

> >Diane,

> >

> >There is also a Rife list to join if you want. I was on it for awhile but

> it

> >was way over my head.

> >

> >edith

> >

>

>---------------------------

[Guest guest]

Dear Foggs, (neat name)

Yes, I want to grow our own food. Organic is shown to be richer in

nutrients than mass produced vegees and fruits. The cost of adher-

ing to an all organic diet forces us to try and grow our own. Also, I buy

from a local farmer friend. We also take a phytochemical supple-

ment: the adults and big kids in a powder form, the ten and under trio take

them in a gummy bear form. Good point. L.

>From: Foggschool@...

>Reply-Dronelist

>Dronelist

>Subject: (no subject)

>Date: Sun, 12 Mar 2000 09:31:31 EST

>

>The growth of the protocol, measured only by time, is an inspiring

>perspective. We are out here.

>I am interested in a recipe, using Dr. s protocol, for shampoo. The

>current recipe is not working for my oily hair. Any thoughts would be

>appreciated.

>I am also interested to know if there are many of you whom have chosen to

>grow their own food, have concerns about genetic alterations of " our " food,

>or feel the need to purchase organic foods. Just curious.

> " for president. "

>Foggs

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

[Guest guest]

> The growth of the

protocol, measured only by time, is aninspiring > perspective. We are out here.

> I am interested in a recipe, using Dr. s protocol, for shampoo.Yes, me

too. I've been lax in this department and unable to finda good substitute,though

I have to admit to not trying all that hard. If someone would market something

that we could trust thatwould be terrific.> I am also interested to know if

there are many of you whom havechosen to > grow their own food, have concerns

about genetic alterations of " our " food, > or feel the need to purchase organic

foods. Ayeah to that:) highly concerned about this, how much disk spacedo you

have? Just kidding. You know EU has banned the use ofgenetically modified foods,

however there is a problem when thosethat usethe genetically altered seeds

contaminating the " pure " crops.http://www.purefoods.org has a lot of good

information and I'vejoined Debbie Ortmann (Organic Consumers Association) in her

efforts. I plan on getting my family involved they are the " real talkers " onthis

issue.Foggs, I see you here, but I haven't gotten any of your e-maildelivered to

my box and was wondering what happened to you. Well, mystorage is very limited

and fills up, that must be the problem, in fact I know it's the problem.Take

care,

[Guest guest]

In a message dated 3/12/2000 11:45:00 AM Eastern Standard Time,

CCs@... writes:

<< Organic Consumers Association >>

Thanks. A Rutgers University Study, " Variations in Mineral Content in

Vegetables " , compared mineral and trace mineral content in organic and

inorganic vegetables, purchased at a standard supermarket. I probably don't

have to tell you that almost ALL of the minerals in inorganic vegetables have

been leached from them by the chemicals. There were 1,938 ppm of iron in

organic tomatoes and an astounding 1 ppm in the inorganic specimens.

Interestingly, the SALT was almost completely deleted from all inorganic

specimens.

[Guest guest]

,

If you have no insurance at all, could you qualify for Medicade or

Medicare? I would not be able to fight this disease without

medications.

in Illinois

[Guest guest]

lisa i sent you a message but i addressed it to kelly by mistake . i am an

idiot on this computer and do not even know what i am doing half the time

hope you got my message . i stil; have a lot to learn especially with this

e-mail stuff. hey.. you live ,...you learn cathy from

mass

[Guest guest]

Hi ,

PA is a terrible thing to have with drugs let alone without. I find it hard

to believe that in the US you have to have insurance even for

medication....??

While it is advisable to take something to prevent degeneration of your

joints there are things you can do that are none drug related as well.

Diet, has helped me immensely (no meat, wheat or diary), as has taking

evening primrose oil etc.

Go and talk to a naturopath to get advise on the above....it can be a part

of your treatment and/or maintenance program.

I wish you luck.

Kate

[Guest guest]

Although I can't answer most of these questions I can tell you on important

thing. Advocate for yourself! You are in charge! Doctors are not gods.

Btw I wanted to mention to everyone I started reading this book which I

highly recommend. It's called Chi Gong-the ancient chinese way to health by

Dong and Aristide H. Esser. Keep an open mind i.e. don't think western

and I think you'll all learn something which could help your health, mental,

physical and spiritual well being. I'll let you all know about any other

things I turn up.

-Adriel

> From: Puddinpanda@...

> Reply- egroups

> Date: Wed, 23 Aug 2000 04:43:39 EDT

> egroups

> Subject: [ ] (no subject)

>

> Good Morning,

> I am fairly new to the group and have been reading all of the emails that

> have been coming my way. I find all of this very interesting and informative

> but all of this information I am getting is raising quite a few questions. I

> am seeing in others quite a few things that I have seen happening with myself

> that my doctor just kind of brushes off and tells me to calm down that I am

> being neurotic. I have been seeing this Rheumy for about 9 years. At first

> he was caring and took his time with his patients, he is now at a point where

> if I see him for 3 minutes at my appointment it is a lot. Occasionally If I

> am in a bad flare up he will give me shots directly into the toe joint which

> are extremely painful, he tells me I am being a baby that he gives these

> shots to kids and it doesn't seem to hurt them. (what happened to compassion

> in the medical field, this stuff hurts) My questions to him are pretty much

> waylaid, it almost seems that he doesn't have the time to be bothered. I

> have gone through the normal routine of medication over the past years. I do

> have to say at one point the pain in my feet was so bad I could barely walk

> and he has gotten me past that hurdle.

> I am curious to know a things about the following issues that I am not

> getting straight answers from my Rheumy on.

> 1. Is a baker cyst somehow related to PA? I had one removed about 8 years

> ago and it has recently reappeared? On one visit my right knee was really

> bothering me and just by the feel of it I could tell there was fluid that

> needed to be removed. I asked my Rheumy about it, he looked at it and said

> there is no fluid, I persuaded him to drain it and low and behold he removed

> about 4 syringes full of fluid (that I was being neurotic about)

> 2. Is tonsillitis related to PA, I have my share of strept throat over the

> past 6 months

> 3. About 3:00 every afternoon I could just go to sleep. Is this a side

> effect from Enbrel or is it just from the PA? (Doc tells me get more sleep) I

> work long and stressful. hours. My tiredness seems to have gotten worse since

> I started Enbrel but then again work has also been more stressful.

> 4. The joints in a few of my toes are pretty much gone. One toe has a hole

> straight through the bone. When I ask the Doctor about my future with PA he

> manages to evade this question altogether.

> 5. Can Enbrel cause mood swings or is it a mid life crisis (I'm 45 years old)

> 6. Is mussel weakness in the legs and arms from the PA or medication.

> 7. I have read a lot of emails about sinus infections, I seem to get a lot

> of them

> One other thing, I have noticed since I started taking Enbrel I have had more

> colds and sinus infections.

> I know this is long but one last thing. Since taking Enbrel I need to take

> antibiotics when I have any dental work done. Even with 2000 mg of

> amoxicilian before my apt I got very sick two times, I now take antibiotics

> for 3 days. Any input on this?

>

> Thanks for listening, I know I was rambling

> Jill

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> We are currently discussing new chat times. moderates a chat on

> arthritis at

> www.about.com on Thursday evenings, so check that

> out in the meantime! E mail at RA@... for details.

>

>

[Guest guest]

Jill - does your doc ever do IV drips of steroids? I have had 3 and they

help tremendously at least for a little while and they are much less painful

than the injections. You are NOT a baby - your doctor is an ass!

[ ] (no subject)

> Good Morning,

> I am fairly new to the group and have been reading all of the emails that

> have been coming my way. I find all of this very interesting and

informative

> but all of this information I am getting is raising quite a few questions.

I

> am seeing in others quite a few things that I have seen happening with

myself

> that my doctor just kind of brushes off and tells me to calm down that I

am

> being neurotic. I have been seeing this Rheumy for about 9 years. At

first

> he was caring and took his time with his patients, he is now at a point

where

> if I see him for 3 minutes at my appointment it is a lot. Occasionally If

I

> am in a bad flare up he will give me shots directly into the toe joint

which

> are extremely painful, he tells me I am being a baby that he gives these

> shots to kids and it doesn't seem to hurt them. (what happened to

compassion

> in the medical field, this stuff hurts) My questions to him are pretty

much

> waylaid, it almost seems that he doesn't have the time to be bothered. I

> have gone through the normal routine of medication over the past years. I

do

> have to say at one point the pain in my feet was so bad I could barely

walk

> and he has gotten me past that hurdle.

> I am curious to know a things about the following issues that I am not

> getting straight answers from my Rheumy on.

> 1. Is a baker cyst somehow related to PA? I had one removed about 8 years

> ago and it has recently reappeared? On one visit my right knee was really

> bothering me and just by the feel of it I could tell there was fluid that

> needed to be removed. I asked my Rheumy about it, he looked at it and said

> there is no fluid, I persuaded him to drain it and low and behold he

removed

> about 4 syringes full of fluid (that I was being neurotic about)

> 2. Is tonsillitis related to PA, I have my share of strept throat over

the

> past 6 months

> 3. About 3:00 every afternoon I could just go to sleep. Is this a side

> effect from Enbrel or is it just from the PA? (Doc tells me get more

sleep) I

> work long and stressful. hours. My tiredness seems to have gotten worse

since

> I started Enbrel but then again work has also been more stressful.

> 4. The joints in a few of my toes are pretty much gone. One toe has a

hole

> straight through the bone. When I ask the Doctor about my future with PA

he

> manages to evade this question altogether.

> 5. Can Enbrel cause mood swings or is it a mid life crisis (I'm 45 years

old)

> 6. Is mussel weakness in the legs and arms from the PA or medication.

> 7. I have read a lot of emails about sinus infections, I seem to get a

lot

> of them

> One other thing, I have noticed since I started taking Enbrel I have had

more

> colds and sinus infections.

> I know this is long but one last thing. Since taking Enbrel I need to take

> antibiotics when I have any dental work done. Even with 2000 mg of

> amoxicilian before my apt I got very sick two times, I now take

antibiotics

> for 3 days. Any input on this?

>

> Thanks for listening, I know I was rambling

> Jill

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> We are currently discussing new chat times. moderates a

chat on arthritis at

> www.about.com on Thursday evenings, so check that

> out in the meantime! E mail at RA@... for details.

>

>

[Guest guest]

Jill -

I believe that the tiredness and mood swings are somewhat drug related, but

also a part of the disease. Also, about the dental work, I seem to get

somewhat of a flare after any kind of procedure that is somewhat traumatic to

my system. A cleaning might not bother me, but a filling might set off a

flare (maybe the immune system fighting a foreign body in the filling

materials??). Dental has been mild, but anything more major (surgery, an

infection, etc.) really sets off a bad flare in me.

As for your doctor - why are you continuing to go to someone who is totally

unsupportive and insensitive?? Dump this # & $*%@ and find a doctor who

understands that patients are human beings!!

Take care,

[Guest guest]

[ ] (no subject)Good Morning, I am fairly new to the group and have been reading all of the emails that have been coming my way. I find all of this very interesting and informative but all of this information I am getting is raising quite a few questions. I am seeing in others quite a few things that I have seen happening with myself that my doctor just kind of brushes off and tells me to calm down that I am being neurotic. I have been seeing this Rheumy for about 9 years. At first he was caring and took his time with his patients, he is now at a point where if I see him for 3 minutes at my appointment it is a lot. Occasionally If I am in a bad flare up he will give me shots directly into the toe joint which are extremely painful, he tells me I am being a baby that he gives these shots to kids and it doesn't seem to hurt them. (what happened to compassion in the medical field, this stuff hurts) My questions to him are pretty much waylaid, it almost seems that he doesn't have the time to be bothered. I have gone through the normal routine of medication over the past years. I do have to say at one point the pain in my feet was so bad I could barely walk and he has gotten me past that hurdle. I am curious to know a things about the following issues that I am not getting straight answers from my Rheumy on.1. Is a baker cyst somehow related to PA? I had one removed about 8 years ago and it has recently reappeared? On one visit my right knee was really bothering me and just by the feel of it I could tell there was fluid that needed to be removed. I asked my Rheumy about it, he looked at it and said there is no fluid, I persuaded him to drain it and low and behold he removed about 4 syringes full of fluid (that I was being neurotic about)2. Is tonsillitis related to PA, I have my share of strept throat over the past 6 months3. About 3:00 every afternoon I could just go to sleep. Is this a side effect from Enbrel or is it just from the PA? (Doc tells me get more sleep) I work long and stressful. hours. My tiredness seems to have gotten worse since I started Enbrel but then again work has also been more stressful.4. The joints in a few of my toes are pretty much gone. One toe has a hole straight through the bone. When I ask the Doctor about my future with PA he manages to evade this question altogether.5. Can Enbrel cause mood swings or is it a mid life crisis (I'm 45 years old)6. Is mussel weakness in the legs and arms from the PA or medication.7. I have read a lot of emails about sinus infections, I seem to get a lot of themOne other thing, I have noticed since I started taking Enbrel I have had more colds and sinus infections.I know this is long but one last thing. Since taking Enbrel I need to take antibiotics when I have any dental work done. Even with 2000 mg of amoxicilian before my apt I got very sick two times, I now take antibiotics for 3 days. Any input on this?Thanks for listening, I know I was ramblingJillJill, wow lots of questions, I will try to answer what I can. First I don't know anything about baker's cysts. Cysts almost always have fluid in them. Injections into a joint can be very painful and no doctor should ever call a patient a baby. I think you are up against what we faced with Waynes first Rheumy. He couldn't fix this disease very well so he became disinterested. We dumped him and now have a very nice woman Rheumy who is much kinder and helpful. Tonsillitis is not related to PA but strept throat certainly stress's the system, who knows? You are working long stressful hours, have a disease that makes you tired and also are probably in pre menopause who wouldn't be tired. We can't get a doctor to talk about the prognosis with PA, I think they just don't know since the disease is so variableto each person, including age, other disease factors and degree of disease. Enbrel lowers your immune system and puts you at risk for infection, any infection sinus, colds, flu, if you get a temp above 100. call your doctor. Any dental work should have pre antibiotics. Hope that helped. Wayne hasn't been tired on the enbrel 3 rd shot today. He is some better but has up and down days. We are fighting hypertension now and just changed his blood pressure medication. Take Care SharonPlease visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details.

[Guest guest]

Good Morning All,

Thanks you all for your response to my email. It is great to finally have a

support system. I do agree with all you that it is time to see a new Rheumy.

I think the guilt factor has played a part up until now, I have been with him

for 9 years.

I wanted to join in on the chat line last night, but after a long day I fell

asleep, maybe next week. Lately I can't seem to get enough sleep.

Well, time to give myself my Enbrel and off to work I go.

Jill

[Guest guest]

Jill..where do you live? Maybe someone on here can help you find a new

Rheumy! I hope so...please, pursue that...it is SOOO Important to your care

[Guest guest]

In a message dated 9/3/00 11:16:59 PM Eastern Daylight Time, saewen@...

writes:

<< Jill..where do you live? Maybe someone on here can help you find a new

Rheumy! I hope so...please, pursue that...it is SOOO Important to your care

>>

Hi all and good morning

I live in south Florida. Anyone know a good Rheumy here. Sure could use the

help in finding one. If not the interview process shall begin.

[Guest guest]

I live in south Florida. Anyone know a good Rheumy here

We have a great Rheumy in south florida, Dr. Jodi Grosflam in fort myers, She

is kind and caring. Sharon

[Guest guest]

Blair wrote:

> Sounds like it is time for you to go do your homework also. As confused as

you definitely

> seem, your intent comes across quite clearly. Too bad for your confusion.

Sorry to say I

> don't believe there is anything I can say or do to help you on this one.

>

> jalyons@... wrote:

>

> >

> > > Sorry , this is registered as a NON-COGNITIVE bio-feedback

> > machine. Now go do your

> > > homework and figure out what this means. Also, wrong number!

> > Woops!

> > -------------------

> > I'm not , but I am confused about some other stuff above.

> >

> > I just finished reading the FDA letter to phazx and it seems pretty

> > clear to me what they found issue with.

> >

> > Registered where as a " NON-COGNITIVE " bio-feedback machine? Because

> > they wrote that on their FDA application maybe? That did not seem to

> > be the issue in the rather strongly worded (and documented) warning

> > letter. It doesn't seem that the FDA think they registered it as a

> > NON-COGNITIVE bio-feedback machine.... Mmmmm...

> >

> > And what number is the " wrong number? "

> >

> > Could you be more clear in your response?

> >

> > Thanks,

> > JALyons

> >

> >

> >

> > Learn more from:

> > http://home.online.no/~dusan/gallstones/

> > http://home.online.no/~huldakli/

> > http://www..net/

> > http://home.online.no/~dusan/

> >

> >

[Guest guest]

I take something from health store daily to increase my immune system. I also have diabetes, which suppresses immune system so I thought I should be doubly careful. Check with your local health food store - can't hurt. And I have not been sick with colds, virus, etc., for a year. Last year I was pretty "sickly."

[Guest guest]

I would be careful with the immune system boosters, isn't our problem an

overactive immune system in the first place? (PA)

Ilene

[Guest guest]

Dani,

I am really exhausted now... but I couldn't turn off my computer

until I had made a response to your message. If " he " was inclined to

leave you and your daughters... then you better count your

blessings. You are fortunate to have 2 wonderful 'blessings' and you

will make it... it isn't easy, but I would think it will be easier

than having a person around the house and in your lives that really

doesn't want to be there. You need support and you need to focus on

you and your 2 daughters, you will be okay. This PA site is a great

place for support, advice, and emotional comfort. I have been a

member for nearly 3 months now... I was 'okay' before, but now this

site has really been a source of comfort and inspiration for me... I

can tell I am better now just having all these new friends on this PA

site. We are all here for each other. I wish you the best of luck,

you can do it on your own. #2-

[Guest guest]

Just wanted to share that I had chest pressure/soreness and sometimes

unexplainable pain in my chest the whole time I was on MTX (5 years). At

times it would cause me to cough--a cough so loud and " dry " (my husband's

word) that my husband and son would become very alarmed, but nothing I or

the my primary physician tried to stop it helped. The rheumy was not

concerned about it as he stated he had other patients with same side effect

of MTX. When the MTX was stopped after five years in June, 2000 these

episodes stopped. MTX was reintroduced in January, 2002 soreness, " weird "

pains " and cough started again. MTX was stopped after about a month, not

because of this side effect but because of blood in urine which cleared

gradually after stopping the MTX, with no explanation ever found for blood

in urine by urologists (test results/x-rays negative). I occasionally have

soreness in my chest now, but never the cough or pain. My rheumy says the

soreness is chostochronditis--which apparently is common among PA

sufferers. The action of the MTX the immune response apparently diminishes

the body's ability to attack the chostochronditis.

[ ] (no subject)

> Hello,

>

> Just to introduce myself! I am Betty (50) in Lynchburg, Va.

> Several yrs. ago I was diagnoised with Undifferent Spondlyoarthropathy. At

> first

> my rheumy thought this might go into the direction of AS. Now Psoriatic

> Arthritis is

> creeping in. I also have osteoarthritis, gout, Fibromyalgia, a very mild

type

> 2 diabetes, and that Raynauds thing...(especially in the winter)

> I never used to have dry skin (it was somewhat oily when I was younger)

hair

> too. I thought my drying out somewhat was just to be expected with

menapause.

> Last summer my R wrist flared up suddenly, got red, hot, swollen, and

really

> sore.. Rheumy worked me right in and put in cortisone.That helped,,,but

with

> in the first 2 or 3 hours..my wrist took on a " bent or crooked " look and

it

> remained! I am self employed and a seamstress. I subcontract work. My

rheumy

> used to answer questions really well...but not this past yr. When he did

a

> bone scan last yr..he immediately put me on MTX and seemed to " clam up " .

> Usually when I can get him to give me specific information he starts out

with

> .... " now don't go looking on the internet, you don't know where that

> information really comes from... " lol..But this past time...He did

finally

> say that my wrist is PA and then he said what is in my knees and ankles

> likely is too...

> I've had occassional sore knees..ankles and feet, acctually my feet have

> acted up on and off for yrs...sometimes in the morning can hardly walk at

> first...then they let up after a while...My R SI joint is deteriorating,

I

> feel that in my low back...and on occassion when it flares...it can make

my

> butt swell up hugh and really poke out...making it nearly impossible to

> stand...(in fact about 3 yrs ago..it swelled up so big and fast and was so

> wild with pain I couldn't move my legs or walk...) That time I went to the

ER

> and got " put to sleep " finally for the pain...and they didn't know what it

> was then and never x-rayed, just seemed to have one goal...to pump me so

full

> of pain med till I was able to walk out and leave.. WHAT A RIP OFF. .I

went

> on MTX and during the first 12 mo I got " crooked " from the SI joint...it's

> higher and pokes out to the side... From my waist line to the floor there

is

> a 1 3/4 " difference and all in one yr and after starting the mtx! In the

past

> few mo..I feel it in my L SI joint too but the rheumy didn't x-ray to

check

> it...

> I " ve never had Psoiasis before...and the only thing outside I've ever seen

is

> numerous tiny dots on my upper legs..dry whitish greyish scalie dots...can

> " scrape " them off use oil, creams ..etc and they come back with in a

> week..quess that is psoriasis..

> I've had occassional attacks of DRY throat...causing coughing...etc..and

rush

> for water...drives me nuts.. I've noticed in the past 2 or 3 mos..I can

put

> lotion on my arms..etc in the morning..and by mid day..my arms look

> white..and colorless...and feel horribly dry...put on lotion and

> presto...color is back...(for a little while..)

> also the past 2-3 mo...I wake up several times a week with dry scratchie

> feeling eyes... and my cheeks (OK>>FACE! lol) get dry and scratchie real

> quick... For that I found one thing that last longer thru the day...(a

> moisturizer night cream by MK)

> I don't have pitted fingernails or dry scalp just normal scalp so far I

> think...

> I know I have lots of spurs up and down my spine...but only 3 that are

> inbetween the disc...and those are in my neck...on the bottom side of the

> front of disc...

> I am wondering what creams...? Moisturizers...? what do you guys do that

> helps..? WHAT on earth helps the dry throat and cough..?

> I forgot to mention to rheumy last week (cause it won't hurting right

then)

> that the past 2 mo...I have had a lot of soreness in my chest... I had

> chostochronditis several yrs ago..from a car accident (seat belt) it took

> nearly 2 yrs go go away..and the pain I feel now is so similar to that...I

> did tell my primary dr. when I saw him this week and he felt it was

related

> to the PA...no real trouble breathing...but this chest thing seem to put

> pressure and has weird pains..and they make me cough....

> What helps that? Am I right in understanding that this PA stuff is

somewhat

> a rarer form of arthritis? ALL suggestions welcomed! No one in my family

> has ever had this before...(some spondylitis though)

> betty in VA

>

>

>

[Guest guest]

In a message dated 03/10/2002 5:44:26 AM Eastern Standard Time,

onefineseamstres@... writes:

> When he did a

> bone scan last yr..he immediately put me on MTX and seemed to " clam up " .

Hi Betty - Ask your doc. if you have osteoporosis. A scan may have shown OP

because you were on steriods, and it made you more suseptible. That could be

why he went to the MTX and took you off steriods. Just a guess - but I sure

would ask.

As far as moisturizers go - I like them with tea tree oil. Many on the

market have that now. Seems to be healing for me. I also use a soap with

olive oil or a body gel with lots of moisturizers.

By the way - My hubby bought me a sewing machine for Xmas and I still haven't

figured out how to even thread it!! I guess I need to get lessons - so I envy

your seamstress skills

Take care,

[Guest guest]

Hi Tracey...

I had gotten a few cortisone shots when something acted up really bad..but

had not been on steriods... I had been on like 250 mg relafin twice a

day..which didn't help...after the bone scan he put me on MTX 3 2.5 once

a week... He didn't really talk about the scan much...but I do know he saw a

lot of spurs all over...He has told me my bone density is very good... I

don't have osterporosis... But I do have osteoarthritis...I take calcuim with

vitamen D to help off set that...fortunately no one in my family has had

osteoporosis...BUT then again...so far as I know I am the first to have

Psoriatic arthritis...

I also have gout..which I take 300 mg alluperinol each day for...and it has

controlled it very well...I have now been 4 yrs without a gout attack! )

I have had 4 bad gout attacks since 1991 the last time I didn't have it in

my feet...but I passed a bunch of little stones... " I knew what it was right

off...and was able to take them in to Dr. " They sent it to the lab..and the

stones were from uric acid...so I then decided to take gout very seriously

and stay on the meds...No sense in anyone dying from gout in this day and

time...

thanks for your response...this seems like a very nice and caring group...

Hey, I am in Va...if you were anywhere near, I would come over and show you

how to thread up that machine and get going... I need to get a little home

machine ....so I can do button holes.... I only have high speed industrials

for work...

betty (IN VA)