Re: Panic Attacks???

[Guest guest]

I have to respond on this on b/c I partied A LOT in my day and often wonder if I

brought this on myself. Of course, all this has caused me to come to an abrupt

halt. I know back then I was getting sick all the time from the lack of sleep,

among other things. P and PA don't run in my family. In fact no autoimmune

diseases are in my family which is why it was such a mystery that I contracted

this disease. Always searching for answers...

[Guest guest]

Jen (Ron, and whoever else 'partied'),

I never partied and I most certainly hope that researchers don't find

out that 'partying' is a cause for PA... because, then I will really

be upset that I didn't do my share of it..........ha ) If it is,

then it is too late for me to catch up now (

Also, I agree that the advertisements are very annoying, but since we

are all using ... maybe it just goes along with the territory.

I had become use to the annoying ads... but recently they have this

very, very irritating flashing/blinking 'click' sign on them... so, I

think I will cut out a cardboard the shape of the ads and tape it to

the top of the screen so I can flip it down to cover the ads when

they pop up ) I can't concentrate with the blinking !!!!!!!

Lastly, as I am tired today... I will mention that I just started

back on MTX for the 5th time ! But, this time by injection, hoping

that I will not be as nauseous... already I think I feel dizzy... but

I am sure it is only my mind playing tricks on me. Each of the

previous 4 times ended up in bronchitis and I had to stop... so

hopefully all will go well this time.

I need feedback concerning dosages, I had been taking 4 tablets a day

(2.5 mgs each), now my Rheumy is starting me gradually with 7.5 mgs

(same as .75 mls) once a week and eventually plans to increase it to

10mgs (1 ml)... Anybody have any experiences they want to share?

Plus, should I be expecting any strange feelings... maybe I am just

too apprehensive at this point since I have just started up again.

All my preliminary bloodwork is completely within normal limits,

hasn't ALL been in normal limits for the past 4 or 5 years )

Any feedback concerning MTX injections and such is really

appreciated, thanks in advance. #2

-- In @y..., Sleepless096@a... wrote:

> Ron you mentions you partied a bit in your day, I myself the

same.What I was

> wondering could it have brought the PA on ?

> Jen

>

>

>

[Guest guest]

-Dan,

I just read your message, thanks. I have a question... the

instructions/pamphlet says that the bottle/vial can only be used once

and then must be discarded because it is no longer sterile or becomes

more toxic. Today I took my 1st injection, felt a bit funny, slept a

while, and now I am fine... I think it was just me being too

anxious. We could only find 50 mg vials, so we weren't sure whether

to keep the rest for next time or to throw it away... this time we

decided to throw it away until we had more advice. Your message says

you have enough in each bottle for 7 doses... that sounds about the

same as what my Rheumy is suggesting for me... are you sure it is

safe/okay to use the same vial/bottle more than once ? Also, how do

you store the bottle ? He decided to start me with a bit of a lower

dose and then to increase it to 1 ml in a few weeks if all goes well

(you were correct in your estimations, thanks)

Also, I did take my own syringe, I have plenty that have been sitting

around for some time now... may as well use them. And, I am happy to

say the injection didn't hurt at all ) So, my 'moon' is happy.

If you have time, let me know about using the vial for more than one

dose, has your doctor said it is safe? If so, I need to know...

because I feel bad throwing out 4/5 of each bottle each week.

Thank you so much for your message and the time you took in writing

it.

#2

[Guest guest]

,

Thanks. I always try to rationalize everything and I can't come up with a

rational reason for why/how I have this disease. I guess it doesn't matter why

I have it or what caused me to get it. I have it and there isn't much I can do

about it but take my meds and try to cope w/ it. I do hope that when I have

children that I don't pass it along to them if it is a genetic defect. Is there

some way to prevent that?

I was never depressed before I got sick but I have always been very stressed. I

am absolutely positive that my being depressed now is because I am sick. How

could one not be depressed? I am also positive that stress has a direct effect

on my disease. I get stressed very easily and when I do I always feel worse.

Thanks again,

[Guest guest]

Hi - that sounds like an IVP - what was that for? Kidney stones? I've

had terrible trouble with those and got my first PA flare after surgery for

stone removal (which also resulted in a bacterial blood infection). I'd be

interested in knowing why you had the kidney procedure as I'm always looking

for strange links to PA (a lot of us seem to have thyroid problems and/or

diabetes along with the PA)

Just curious -

[Guest guest]

> I was never depressed before I got sick but I have always been very

stressed. I am absolutely positive that my being depressed now is because I

am sick. How could one not be depressed? I am also positive that stress

has a direct effect on my disease. I get stressed very easily and when I do

I always feel worse.

>

> Thanks again,

>

>

Same here leslie....I was never depressed either before getting this

disease.. But I was always overly stressed about everything... When i went

to work , I was practically a perfectionist.. Even if my boss would tell me

that i did a great job, I wouldnt believe what he said and I would just

strive to make sure that everything was done correct every time.. I guess

maybe its all because of a fear inside me that if I do something wrong, that

I would get yelled at .. and when i was younger my stupid dad would yell at

me for the smallest thing.. So i know back then i put a ton of more stress

on myself then i should of.. Now i realize how stupid i was for being that

way.... If i just had a " I dont give a sh*t " attitude like everybody else

around here i probably wouldnt even have this disease... And both my parents

are " worry warts " so that didnt help much either..

mike

[Guest guest]

, the kidney x-ray was IVP to determine cause of hematuria (blood in

urine). Interestingly, I do take synthroid for low thyroid and experience

hypoglycemia but no meds as yet for diabetes (my father had diabetes as well

as psoriasis, PA, low thyroid and finally, heart disease and cancer).

Yesterday, when I went to hospital to pick up x-ray to take to urologist

today when he will do cystoscopic of bladder in office, discovered they have

have 'misplaced' my x-ray--gave me copy of written report but cannot locate

actual x-rays! Report indicated 'calcifications of the pelvis consistent

with phleboliths' kidney stones? --Guess I will learn more this afternoon.

Thanks for your inquiry and I will let you know result of this afternoon's

visit to urologist.

As to your interest in 'strange links' to PA--I am also being followed for

MS lesions--it seems to me that it is the autoimmune diseases that we are

vulnerable to and the different manifestations of autoimmune are due to

genetics--same zebra with different stripes--what do you think? Every new

problem I experience and consequently start researching always turns out to

be classified as an autoimmune disease. Look forward to hearing from you

again-- in Virginia

Re: [ ] Re: Panic Attacks???

> Hi - that sounds like an IVP - what was that for? Kidney stones?

I've

> had terrible trouble with those and got my first PA flare after surgery

for

> stone removal (which also resulted in a bacterial blood infection). I'd

be

> interested in knowing why you had the kidney procedure as I'm always

looking

> for strange links to PA (a lot of us seem to have thyroid problems and/or

> diabetes along with the PA)

> Just curious -

>

>

>

>

>

>

[Guest guest]

Funny you should mention this. I had a kidney stone also before the onset of

PA. I also had a severe reaction to the IVP dye. I woke up with three doctors

in the room. I have no memory of it, but evidently it stopped my heart. I was

told never to let them use IVP dye on me again because a second time would

probably be lethal. I have it stamped on the cover of all of my medical

documents. Maybe there is a connection. RGDS R.E.

Re: [ ] Re: Panic Attacks???

Hi - that sounds like an IVP - what was that for? Kidney stones? I've

had terrible trouble with those and got my first PA flare after surgery for

stone removal (which also resulted in a bacterial blood infection). I'd be

interested in knowing why you had the kidney procedure as I'm always looking

for strange links to PA (a lot of us seem to have thyroid problems and/or

diabetes along with the PA)

Just curious -

[Guest guest]

>

> Re: [ ] Re: Panic Attacks???

> > I have to respond on this on b/c I partied A LOT in my day and

often

> wonder if I brought this on myself. Of course, all this has caused

me to

> come to an abrupt halt. I know back then I was getting sick all

the time

> from the lack of sleep, among other things. P and PA don't run in

my

> family. In fact no autoimmune diseases are in my family which is

why it was

> such a mystery that I contracted this disease. Always searching for

> answers...

> >

> >

and All,

I find myself compelled to reply to this post. I've learned

over the years that diseases are so often misunderstood. Let me give

you a stunning example. My dad passed away in December 1995; the

cause of death was Hepatitus C. Now, to the ordinary person, one

might think he used drugs or abused alcohol. Neither is the case.

In 1957 he had peptic (bleeding) ulcers and had to be hospitalized;

he was given 22 blood transfusions to save his life. This was before

they knew to test the blood for diseases and he developed hepatitus

from these transfusions (that saved his life). He was able to get

over the hepatitus and it lay dormant for many years. He lead a very

healthy and normal life until 1988 when he began having alot of

problems and went in for a liver biopsy. He was told he had (early

stage) cirrhosis of the liver and was not eligible for a transplant

(he had kidney damage from a childhood illness and only one kidney

functioned all his life). Even after the diagnosis in 1988, he

worked full time and still lived his life to the fullest. In 1992

they began to give him shots of Interferon for 6 months; that almost

killed him in itself! By 1994, he was in the last stages of

Hepatitus C and went into a hepatic coma (we were told he would most

probably not awaken). He shocked his doctors and did come out of the

coma and spent all of 1995 trying to live his life as best he could.

He never told one soul about the diagnosis of cirrhosis because

of the stigma attached to that disease. He was a proud man and he

never drank any in his life; he did not want anyone thinking

differently. I was one of his caregivers during that last year;

particularily during the last 3 months when he was with Hospice. I

watched this 'bigger-than-life' man wither away before my eyes, but

he taught me so much during those months. I think I'm a more

compassionate person now because of him; I know that I am thankful of

each day I have with my family and I give my thanks for all my

blessings every day.

Lifestyle may play a role in some degree in any illness we

contact. I personally believe that stress plays more of a role with

P.A. than any form of 'lifestyle' here if you may. I've always been

the 'problem-solver' in my family. I'm the oldest of three children;

9 years older than my brother and 13 years older than my sister; so

I've assumed the role of 'negotiator' in our family :-) I like peace

and harmony at all costs :-) And I'm a compulsive cleaner; I like my

house spotless. I always thought that by keeping my 'problems' to

myself; not letting my emotions run amuck; that was a way of coping

with life's everyday challanges. That year with Daddy showed me that

we must FEEL our emotions; not supress them. There are just so many

stresses in life and when we shut-down and supress our feelings, we

create a whole new set of problems for ourselves. I fully believe

this is why I developed P.A. And yes, it is totally frustrating not

to have control over this disease. I think we all are in agreement on

that :-)

Forgive the length of this reply, but I just had to tell you

that too many times we are all guilty of misunderstanding situations

and forming opinions without proper knowledge. It hurts my heart to

think my daddy was ashamed of a disease that he had no control of,

but I know he has peace with this now.

Regards,

P

[Guest guest]

Dear ,

Does there have to be blame or can we just accept that things happen? Maybe

the cause is because we are so hard on ourselves? Do you blame an innocent

child when it gets cancer? I was never much of a party girl and I'm not

sure about heredity but I have a pretty bad case of PA. I work on just

accepting that I have it and the fact that it interferes with my life. I

hope you can find some peace so you can use your energy on the disease and

not against yourself. Good Luck, Cheri

[Guest guest]

and Cheri,

I was just trying to find a reason for why I have this disease. I know there

may not be a reason at all. My last visit at my rheumy my mom asked if getting

tattoos could have caused my PA. Of course the doctor said no. I guess our

searching for reasons is our way of trying to rationalize this disease. Like I

have said before, no one has psoriasis in my family (including me) which is why

it is so strange that I have this disease. I know it doesn't matter why I have

it. I have it and there is nothing I can do about it. I have to accept it and

learn to live with it.

, you mentioned that your father was ashamed of his disease. I share your

father's feelings. I don't like admitting to other people that I am sick. I

hate it when they find out and they either a) think I am a hypochondriac or it

is all in my head b/c I am just too young, or feel sorry for me because I am

so young to be so sick. I am embarrassed about it. I know it isn't my fault

and I don't know why I am ashamed of it - I just am. I guess that has to do

with peoples reactions. Anyway, as you put it I have no control over it and I

know it isn't my fault. I guess I will have to work on accepting it.

>>> nancparr@... 02/13/02 10:19PM >>>

>

> Re: [ ] Re: Panic Attacks???

> > I have to respond on this on b/c I partied A LOT in my day and

often

> wonder if I brought this on myself. Of course, all this has caused

me to

> come to an abrupt halt. I know back then I was getting sick all

the time

> from the lack of sleep, among other things. P and PA don't run in

my

> family. In fact no autoimmune diseases are in my family which is

why it was

> such a mystery that I contracted this disease. Always searching for

> answers...

> >

> >

and All,

I find myself compelled to reply to this post. I've learned

over the years that diseases are so often misunderstood. Let me give

you a stunning example. My dad passed away in December 1995; the

cause of death was Hepatitus C. Now, to the ordinary person, one

might think he used drugs or abused alcohol. Neither is the case.

In 1957 he had peptic (bleeding) ulcers and had to be hospitalized;

he was given 22 blood transfusions to save his life. This was before

they knew to test the blood for diseases and he developed hepatitus

from these transfusions (that saved his life). He was able to get

over the hepatitus and it lay dormant for many years. He lead a very

healthy and normal life until 1988 when he began having alot of

problems and went in for a liver biopsy. He was told he had (early

stage) cirrhosis of the liver and was not eligible for a transplant

(he had kidney damage from a childhood illness and only one kidney

functioned all his life). Even after the diagnosis in 1988, he

worked full time and still lived his life to the fullest. In 1992

they began to give him shots of Interferon for 6 months; that almost

killed him in itself! By 1994, he was in the last stages of

Hepatitus C and went into a hepatic coma (we were told he would most

probably not awaken). He shocked his doctors and did come out of the

coma and spent all of 1995 trying to live his life as best he could.

He never told one soul about the diagnosis of cirrhosis because

of the stigma attached to that disease. He was a proud man and he

never drank any in his life; he did not want anyone thinking

differently. I was one of his caregivers during that last year;

particularily during the last 3 months when he was with Hospice. I

watched this 'bigger-than-life' man wither away before my eyes, but

he taught me so much during those months. I think I'm a more

compassionate person now because of him; I know that I am thankful of

each day I have with my family and I give my thanks for all my

blessings every day.

Lifestyle may play a role in some degree in any illness we

contact. I personally believe that stress plays more of a role with

P.A. than any form of 'lifestyle' here if you may. I've always been

the 'problem-solver' in my family. I'm the oldest of three children;

9 years older than my brother and 13 years older than my sister; so

I've assumed the role of 'negotiator' in our family :-) I like peace

and harmony at all costs :-) And I'm a compulsive cleaner; I like my

house spotless. I always thought that by keeping my 'problems' to

myself; not letting my emotions run amuck; that was a way of coping

with life's everyday challanges. That year with Daddy showed me that

we must FEEL our emotions; not supress them. There are just so many

stresses in life and when we shut-down and supress our feelings, we

create a whole new set of problems for ourselves. I fully believe

this is why I developed P.A. And yes, it is totally frustrating not

to have control over this disease. I think we all are in agreement on

that :-)

Forgive the length of this reply, but I just had to tell you

that too many times we are all guilty of misunderstanding situations

and forming opinions without proper knowledge. It hurts my heart to

think my daddy was ashamed of a disease that he had no control of,

but I know he has peace with this now.

Regards,

P