Reply

[Guest guest]

Tami,

This is late, but better late than never!

If your doctor is receptive, you might ask him if he will explain AIH to

your husband and let him know that you are going through some major

physical and emotional changes because of your condition. It can't hurt to

give it a try. Let your doctor know that your husband's lack of

understanding is making it difficult for you to concentrate on staying

stable. Hope he'll do something for you.

Take care,

Geri

[Guest guest]

Hi ,

I know I have tried to deny the facts. I happen to have a very

good friend who is painfully honest with me too. It sounds like

for many people on this list they were hit with the reality of

this condition out of the blue. Mine has come on slowly. I have

been able to adjust to the changes and pain because it was so

slow. I blamed it on aging. I do know 36 is not that old so it

did sound rather ridiculous to me that was my only answer to what

was happening. The last year has been very difficult and my

husband has seen the stress and agony I have been in. He

actually was beginning to think I was bothered my the kids. I am

in love with these kids - although they can drive me nuts,

especially my two teens - I am so glad to have a name for what is

going on. Now my husband understands that it is not my family.

Now my plan is to try and stay healthy for as long as I can. I

know depression has been a problem for me too. This list of

people is a life saver!!

Lee Ann

-

[Guest guest]

Jim & Marta,

I've been suffering MS related symptoms with a plaque on my spinal cord

(definitely demyeliting disease) for 5 years (the plaque did not show up for

4 years). My Lyme doc believes I have Lyme. He says there is the remote

possibility of having both but the probability is so small, it's highly

unlikely. He also believes that when everything is said and done, Lyme will

be one of the causes of MS. I discussed the attached abstract with him and

he tends to agree with it and that it supports his contention that MS is

caused by several thing including Bb.

Heterogeneity of multiple sclerosis lesions: implications for the

pathogenesis of demyelination.

Lucchinetti C, Bruck W, Parisi J, Scheithauer B, M, Lassmann H.

Department of Neurology, Mayo Clinic, Rochester, MN, USA.

Multiple sclerosis (MS) is a disease with profound heterogeneity in clinical

course, neuroradiological appearance of the lesions, involvement of

susceptibility gene loci, and response to therapy. These features are

supported by experimental evidence, which demonstrates that fundamentally

different processes, such as autoimmunity or virus infection, may induce

MS-like inflammatory demyelinating plaques and suggest that MS may be a

disease with heterogeneous pathogenetic mechanisms. From a large pathology

sample of MS, collected in three international centers, we selected 51

biopsies and 32 autopsies that contained actively demyelinating lesions

defined by stringent criteria. The pathology of the lesions was analyzed

using a broad spectrum of immunological and neurobiological markers. Four

fundamentally different patterns of demyelination were found, defined on the

basis of myelin protein loss, the geography and extension of plaques, the

patterns of oligodendrocyte destruction, and the immunopathological evidence

of complement activation. Two patterns (I and II) showed close similarities

to T-cell-mediated or T-cell plus antibody-mediated autoimmune

encephalomyelitis, respectively. The other patterns (III and IV) were highly

suggestive of a primary oligodendrocyte dystrophy, reminiscent of virus- or

toxin-induced demyelination rather than autoimmunity. At a given time point

of the disease--as reflected in autopsy cases--the patterns of demyelination

were heterogeneous between patients, but were homogenous within multiple

active lesions from the same patient. This pathogenetic heterogeneity of

plaques from different MS patients may have fundamental implications for the

diagnosis and therapy of this disease.

Publication Types:

Multicenter study

PMID: 10852536 [PubMed - indexed for MEDLINE]

I am about to try chemotherapy (Novantrone). It's mechanism of effect

is to inhibit the reproduction to T & B cells. There was a recent abstract

from Columbia U. confirming that Bb hides in T & B cells. There are so many

types of T & B cells that I don't know if the Novantrone will get the right

ones but I think it's worth a try.

Borrelia burgdorferi recovered from infected mammal cells (3/01).

Dorward and Larson in the March 2001 issue of Infection and Immunity

demonstrate that Bb spirochetes can adhere to mouse lymphocytes and that Bb

spirochetes with affinity for mouse lymphocytes can establish disseminated

infections in mice. This is the first study to demonstrate the attraction of

Bb to mammalian lymphocytes in vivo. The recovery of viable spirochetes in

this study from mouse B and T cells indicates that the spirochetes and the

lymphocytic cells are in intimate contact with one another in the mammal.

While previous work demonstrated that Bb spirochetes could target, adhrere

to, and invade primary human B and T lymphocytes in vitro, the exact nature

of the in vivo spirochete-lymphocytes interactions could not be demonstrated

by electron microscopy in this study; the same lymphocyte preparations from

the spleen and blood of infected mice did however produce active spirochetal

cultures. The authors speculate that visualization may not have been

possible due to a low number of spirochetes per ml. This study supports the

suggestion that cellular tropism and lymphocytic-Bb interactions may be

mechanisms of persistent infection and disease pathogenesis in the mammalian

host.

Science is a heartbeat away from developing a cure/treatment for

demyeliting. I'm sure we are all close to getting our life back.

I'll keep everyone posted.

Larry NV

[Guest guest]

cherie,

yes the companion nutrients contain the same sulphurated proteins as cottage

and or yogurt.

Sherry Nature's Distributors, IncFountain Hills, Az 85268800-624-7114 ext. 105

[Guest guest]

Minnie,

Just hit the "reply" button wherever you are (e-mail or online) and type away. If you're online, then after you hit the "reply" link, just put the cursor at the top of the message box. Hope that helps and that I'm answering you with something you don't already know.

Annette

-----Original Message-----From: minnietoby [mailto:minnietoby@...]Sent: Friday, August 09, 2002 4:23 PM Subject: [ ] replyHow do you reply to a message?Minnie

[Guest guest]

I get about 200 candida emails a day from subscribing to this group and dont

check them regularly because I have several other email addresses. So every

few days, I come back and check. Just wanted to comment to Vincey312 that I

thought you reply to the newcomer was impatient and insensitive and downright

nasty. I'll give you the benefit of the doubt and conclude that it's the

candida illness affecting the brain that perhaps makes you overly emotional.

Remember, you were once a newcomer too. And if newcomers posts annoy you,

then simply dont reply to them - R.

[Guest guest]

I've gotten more help from some of the members of this group, than I

could ever have found online.

Michele, if you want to email me my address is slickrick605 @

> Avoiding your sarcasm, I will comment that I've searched and I've

> researched hours on end for days now. Yes, of course I've used a

search

> engine. I would rather ask those who personally know what works

and " have

> been there. " Forgive me for appreciating your knowledge and

expertise.

> My son passed away. Had I learned for the knowledge of those who

had

> " been there " rather than the words of my doctors, he would still be

alive

> today.

>

> Mic.... not afraid to ask questions (After all, I'm a teacher).

>

>

> >Content-Transfer-Encoding: 7bit

> >Do you know what a search button is? Ever heard of search engines?

> >There are hundreds of web site about candida that will answer your

> >question. If every new member would ask the same questions all the

> >time, this group would be pretty boring.

[Guest guest]

I don't see what your son's death has anything to do with what i said.

It was a rather weak argument.

You searched the net for days and you didnt find what systemic

candida is? I'll help you. Go to www.google.com and type " systemic

candida " .

Do you wanna know if rice is ok? go to www.google.com and

type " candida rice "

If google doesn't provide an answer to your question, then ask the

group. It is common sense, everyone should do that in order to avoid

hundreds of messages everyday.

[Guest guest]

Good lord, i didn't tell her to stop asking questions, i was merely

saying that the web can provide answers to simple questions.

Common sense people, common sense.

> I've gotten more help from some of the members of this group, than

I

> could ever have found online.

>

> Michele, if you want to email me my address is slickrick605

@

[Guest guest]

Well, i have lots of friends and people seem to like me. I guess i'm

not that bad

> Vincey-

> Were you born a jerk or has it taken lots of work to get there?

> Cripes, lay off.

>

[Guest guest]

Vincey-

Were you born a jerk or has it taken lots of work to get there?

Cripes, lay off.

T.

At 02:55 PM 11/5/2002 +0000, you wrote:

>I don't see what your son's death has anything to do with what i said.

>It was a rather weak argument.

>

>You searched the net for days and you didnt find what systemic

>candida is? I'll help you. Go to www.google.com and type " systemic

>candida " .

>

>Do you wanna know if rice is ok? go to www.google.com and

>type " candida rice "

>

>If google doesn't provide an answer to your question, then ask the

>group. It is common sense, everyone should do that in order to avoid

>hundreds of messages everyday.

>

>

>

>

>

[Guest guest]

Ok i was wrong. We don't need any more messages about this.

> I get about 200 candida emails a day from subscribing to this group

and dont

> check them regularly because I have several other email addresses.

So every

> few days, I come back and check. Just wanted to comment to

Vincey312 that I

> thought you reply to the newcomer was impatient and insensitive and

downright

> nasty. I'll give you the benefit of the doubt and conclude that

it's the

> candida illness affecting the brain that perhaps makes you overly

emotional.

> Remember, you were once a newcomer too. And if newcomers posts

annoy you,

> then simply dont reply to them - R.

[Guest guest]

Amen Vincey!

[Guest guest]

Dear Mic ~ Welcome! It is always a little awkward to join a new group and

to have the courage to speak up by writing. I'm sure there are many people

who don't participate and share information because they are afraid of a

critical reaction. You are right..... the information is so limited and

confusing that it is wonderful that we can learn from each other. Sometimes

that means being PATIENT with someone who doesn't know what you know. As a

teacher, I'm sure you can relate. It can be easy for some to forget that they

were once in the dark and new too. We so often get treated with a lack of

dignity from Doctors and people who do not understand, that I would think it

is important for us to be supportive of each other. This is after all a

support forum. I am truly sorry to hear about the loss of your son. I am

sorry you are having trouble finding the answers to difficult health issues.

I hope that you find some here. Keep searching and please don't let anyone

discourage you. I have included some links at the bottom. Unfortunately,

there is not a quick and fast cure. I suggest doing a lot of reading and

researching. Then you still have to do what works for your body. I think

you will find the e-mail here interesting. Best wishes and good luck to you

in search for Good Health!

Ter

<A

HREF= " https://www.bodyecologydiet.com/store/merchant.mv?Screen=PROD & Store_Code=B\

E & Product_Code=TBED & Category_Code=BEHB " >Body Ecology: The Body Ecology Diet</A>

<A HREF= " http://www.geocities.com/HotSprings/4966/index.html " > Tripp,

Recovery from Candida</A> <A

HREF= " http://www.candidaforum.com/_Archives/_disc21/3_10__3_20.htm " >

http://www.candidaforum.com/_Archives/_disc21/3_10__3_20.htm</A>

<A HREF= " http://www.healingyou.com/living/article4.asp " >A SAMPLE CANDIDA

DIET</A>

<A

HREF= " http://www.healthwell.com/delicious-online/D_backs/Nov_97/10356_s1.cfm?pat\

h=hw " >Controlling Candida</A>

<A HREF= " http://chetday.com/candida3.html " >What I Did for Systemic Candida</A>

<A HREF= " http://www.healingyou.com/living/article4.asp " >A SAMPLE CANDIDA

DIET</A>

<A HREF= " http://www.curezone.com/cleanse/bowel/ " >Bowel Cleanse, different

programs for cleansing intestines. What is Bowel

clean</A>

[Guest guest]

Ter,

You're a gem. Thank you so much for your kind and encouraging words.

Mic

> Dear Mic ~† Welcome!†† It is always a little awkward to join a new group

>and

>to have the courage to speak up by writing.† I'm sure there are many

>people

>who don't participate and share information because they are afraid of a

>critical reaction.† You are right..... the information is so limited and

>confusing that it is wonderful that we can learn from each other.†

>Sometimes

>that means being PATIENT with someone who doesn't know what you know.† As

>a

>teacher, I'm sure you can relate. It can be easy for some to forget that

>they

>were once in the dark and new too.† We so often get treated with a lack

>of

>dignity from Doctors and people who do not understand, that I would think

>it

>is important for us to be supportive of each other.† This is after all a

>support forum.†† I am truly sorry to hear about the loss of your son.† I

>am

>sorry you are having trouble finding the answers to difficult health

>issues.†

>I hope that you find some here.† Keep searching and please don't let

>anyone

>discourage you.† I have included some links at the bottom.†

>Unfortunately,

>there is not a quick and fast cure.† I suggest doing a lot of reading and

>researching.† Then you still have to do what works for your body.† I

>think

>you will find the e-mail here interesting.† Best wishes and good luck to

>you

>in search for Good Health!

>

>Ter

[Guest guest]

Dear (27) you did say you were in OR didn't you? AND I have insomnia - I

thought it was coffee at first but it happens every once in a while. Stay up

all night and sleep all day! That gets a lot of walls and ceilings painted!!!

I think each of us react differently in symptoms and length of symptoms and at

what level of dose! anyway welcome and laugh and cry with us all and we will

always love you. OR Sharon

[Guest guest]

I asked Dr. McBride about fermented dairy for my family, as we don't seem to have problems with fermented dairy. She said it was fine to use buttermilk, as long as it was properly fermented. She also said yogurt and kefir were fine, too. We just started the diet about three weeks ago, and used the fermented dairy right from the get go.

My daughter has severe allergies and without the fermented dairy, we were struggling to find breakfast items.

I have noticed that we can take the probiotic with buttermilk with no problems. However, when I take the probiotic with yogurt, I get a little diarrhea. I guess my gut has a long way to go ..... Has anyone else had this experience?

We also found that we needed to increase the probiotic VERY slowly. Die-off usually starts on day 3 or 4, but can take 1 week or more to clear.

(another one)

[ ] Re: Intro and Questions

Sorry for delayed reply. Thanks for replies from Connie and Maureen. I wouldn't be looking for a doctor if it was me, but the young person in question says he wants the counsel of a doctor, not an "Internet researcher." (That would be me, although I also read books, esp. Dr. -McBride's:)Any new info from Dr. -McBride about the phasing in of fermented dairy? I got that she said yogurt (24-hour cultured) first, then kefir. I understood the intro diet to say butter or ghee if tolerated, then after detox yogurt, then kefir, but I'm confused about timetable and what indicators to look for on when to introduce yogurt and when kefir.Also this morning someone mentioned Slippery Elm. I was surprised to find that on the illegals list in SCD and in Dr. -McBride's book. The only reason I could think of (I always use it for sore throats) is that it is "rich in mucilage, a complex mixture of polysaccharides," and the SCD, which is based on Dr. Haas' research, had identified a sensitivity to disaccharides and polysaccharides in the original patients SCD was designed to treat (celiac). It's interesting bec. in addition to being used for sore throat, slippery elm has been used to help digestive problems. Anybody know?Again, many thanks for the advice and sorry for delayed reply.> >> >>

[Guest guest]

Hi ,

How do you take the probiotic with buttermilk? Do you just drink it down plain or do you flavor it? What is you buttermilk like? Where do you get it? I bought some from a farmer and it was a clear liquid almost purple like. I can't imagine you drink it down with that.

Thanks for your info on Dr. Mc B.

Blessings to you,

Ann

-- [ ] Reply

I asked Dr. McBride about fermented dairy for my family, as we don't seem to have problems with fermented dairy. She said it was fine to use buttermilk, as long as it was properly fermented. She also said yogurt and kefir were fine, too. We just started the diet about three weeks ago, and used the fermented dairy right from the get go.

I have noticed that we can take the probiotic with buttermilk with no problems. However, when I take the probiotic with yogurt, I get a little diarrhea. I guess my gut has a long way to go ..... Has anyone else had this experience?

(another one)

..

[Guest guest]

>

> Re: encouragement

>

> 2 servings per day of fruit actually sounds like quite a lot

> I have fruit maybe once every 2 days

+++Hi K P. If you are eating 1 fruit at any time you would not be following

this program.

>

> What I did start doing is having a puff of broccolli or alfalfa sprouts with

meals for enzymes

> Do you think there is benefit in this, since I do not take digestive enzymes

- only take HCL before meals and artichoke between meals

+++There aren't any enzymes in those foods that will help you but they are okay

if they are thoroughly cooked in order to release their nutrients.

I do not recommend taking any digestive enzymes, since the most important factor

is ensuring there is enough HCl which triggers the pancreas to produce its

proper enzymes, along with producing baking soda to alkalize foods so they can

be digested properly in the small intestines.

Also don't take HCl too soon after starting to eat; it is better to take the

first one(s) after finishing eating, or even later, like 40 minutes - 2 hours

later.

So are you doing this program?

Bee

[Guest guest]

> >

> > Re: encouragement

> >

> > 2 servings per day of fruit actually sounds like quite a lot

> > I have fruit maybe once every 2 days

>

> +++Hi K P. If you are eating 1 fruit at any time you would not be following

this program.

> >

> > What I did start doing is having a puff of broccolli or alfalfa sprouts with

meals for enzymes

>

> > Do you think there is benefit in this, since I do not take digestive

enzymes - only take HCL before meals and artichoke between meals

>

> +++There aren't any enzymes in those foods that will help you but they are

okay if they are thoroughly cooked in order to release their nutrients.

>

> I do not recommend taking any digestive enzymes, since the most important

factor is ensuring there is enough HCl which triggers the pancreas to produce

its proper enzymes, along with producing baking soda to alkalize foods so they

can be digested properly in the small intestines.

>

> Also don't take HCl too soon after starting to eat; it is better to take the

first one(s) after finishing eating, or even later, like 40 minutes - 2 hours

later.

>

> So are you doing this program?

>

> Bee

Hi Bee - I had a question about taking the HCL.

I read your article about how to take HCL and it indicates to take capsule(s) in

the middle of a complex meal and at the end of a meal.

This is what I have been doing.

However, I have read elsewhere where it is recommended to take the first one(s)

after a meal or even later - as you recommend above.

Which would be the best way to take the HCL?

Thanks for your help -

>

[Guest guest]

> >

> > Hi Bee - I had a question about taking the HCL.

> >

> > I read your article about how to take HCL and it indicates to take

capsule(s) in the middle of a complex meal and at the end of a meal.

> >

> > This is what I have been doing.

> >

> > However, I have read elsewhere where it is recommended to take the first

one(s) after a meal or even later - as you recommend above.

> >

> > Which would be the best way to take the HCL?

>

> +++Hi . Since I'm reading and learning all the time, I found out

something about digestion I didn't realize before. When you eat carbs digestion

starts in the mouth and continues for about 20-30 minutes " until HCl levels in

the stomach increase enough to neutralize the enzymes from the mouth. " So I

need to revise my articles on how to take HCl, since if you take HCl too soon,

it will neutralize carb digestion too quickly.

>

> After carb digestion is stopped in the stomach by high enough HCl, digestion

resumes in the small intestines. So taking HCl halfway through a meal isn't

long enough to allow carb digestion to continue like it should.

>

> Therefore it is important to start taking HCl at least 30 minutes after you've

finished eating, and it is good to take anytime up to 2 hours after eating.

>

> The best, Bee

*** Thank you very much for the information - it is very helpful. I will change

how I am taking it.

>