update

[Guest guest]

Janice: you will not only have to have a TB test but a chest x-ray is standard

procedure before starting on any of the biologics, since they can exacerbate any

existing lung problem. I had to see a disease specialist after mine because I

had calcification spots on my lungs - turned out they were only the residual

from exposure to histoplasmosis so not a problem for Enbrel or Humira (though

they can be for Remicade because Remicade can " eat thru " the calcium and let the

spores loose into the body.) Good luck. I'll be interested in hearing how

you make out with the Encourage Foundation. I went to their website once and

plugged in some basic numbers to see if I was qualified and the computer told me

I wasn't, so I never pursued it any further.

Joanna Hoelscher

[Guest guest]

<<Janice <booksbyjanice@...> wrote: She went ahead and did a TB skin

test. I'm trying not to be nervous about the fact that the injection site is

pretty red. It's not big , just pea-sized is all. Still, did any of you have a

positive-looking TB skin test?>>

You should return to the doctor's office to have her read the TB skin test 48

hours after it is placed, especially if there is a red bump the size of a pencil

eraser or larger. Depending on your risk factors for TB (age, exposure or

travel to endemic areas, immune suppression, previous history of treated TB or

history of receiving BCG vaccine, etc) if the bump itself is larger than a

certain number of millimeters (anywhere between 5 and 15 mm according to the CDC

Red Book's table of interpretation) you may need to have a chest X ray. That

said, reading a PPD can be extremely subjective and should only be done by

experienced health care professionals. I myself have had a couple of equivocal

TB reactions which were assumed to be hypersensitivity reactions as

well......however my rheumatologist refused to start me on biologics without

first obtaining a blood test for TB called the Quantiferon TB Gold test. It's a

special test, and only a few labs in the country are able to run it, but it was

worth it to me for peace of mind.

Drei

[Guest guest]

I'll be praying that Enbrel helps you as much as it has me. So glad to hear your

positive news!  Have you heard of the Freelancers Union?  As I understand it

they are a web-based group of Freelancers who came together to get benefits like

health insurance. http://www.freelancersunion.org/insurance/how.html

God bless,

Janette

[Guest guest]

You just take your time and don't worry about posting to each and

everyone of us. We know you are dealing with a terrible illness and you

need all your strength to get well and then you can answer anything.

Bless you dear man,

Donna ACS

----------

> List,

>

> I greatly appreciate the many words of encouragement from so many. I

> want to answer each individually but it is extremely difficult for me

> right now. Several have asked for details of the things I am

> doing. I will do my best to write it up during the next few days.

>

> Thank you,

>

[Guest guest]

,

Rest is important. Please don't do more than you can easily accomplish.

ar

>

> List,

>

> I greatly appreciate the many words of encouragement from so many. I

> want to answer each individually but it is extremely difficult for me

> right now. Several have asked for details of the things I am

> doing. I will do my best to write it up during the next few days.

>

> Thank you,

>

>

[Guest guest]

For now you need to be selfish and worry about others when this has past.

Cheri

>

> List,

>

> I greatly appreciate the many words of encouragement from so many. I

> want to answer each individually but it is extremely difficult for me

> right now. Several have asked for details of the things I am

> doing. I will do my best to write it up during the next few days.

>

> Thank you,

>

>

[Guest guest]

.

Please just work on getting well. I know too well how this disease takes our

energy. It looks like what you are doing is working. Good luck.

Stay well

Steve Bergerson

[Guest guest]

" 'Do only half what you think you can do. "

Advice from Prof C Goodwin to his Chronic Fatigue Patients.

Rowena

On 7/02/2010 7:30 AM, VGammill wrote:

> List,

>

> I greatly appreciate the many words of encouragement from so many. I

> want to answer each individually but it is extremely difficult for me

> right now. Several have asked for details of the things I am

> doing. I will do my best to write it up during the next few days.

>

> Thank you,

>

>

[Guest guest]

That so true  Rowena " 'Do only half what you think you can do. "

 I Have had CFS for over  20 years now,  I was in bed for two years of those

years, I use to  think that  all I had to do was rest, and I get well again.

But The more I rested the worst it got.  I use to sleep for 13 hours at a time,

Then  one of my doctor told me I could  use pain meds to take the edge of

it. and get up an do what work I needed done  I found out  with the pain

meds I could do work for a half hour. then I would be soaked with sweat. I

rest for an hour watch TV and then get up do some more work so  I slowly got

stronger. I did this till  three years ago when I found out I had

cancer but only slowed me down a little bit   cheers Ray  

 

> List,

>

> I greatly appreciate the many words of encouragement from so many. I

> want to answer each individually but it is extremely difficult for me

> right now. Several have asked for details of the things I am

> doing. I will do my best to write it up during the next few days.

>

> Thank you,

>

>

________________________________________________________________________________\

__

7: Catch-up on your favourite Channel 7 TV shows easily, legally, and for

free at PLUS7. www.tv..au/plus7

[Guest guest]

Would the Navarro strips help here? I haven't tried them myself but from

what I have read they tell you if you are getting worse or better.

Sanra

snip

I have no insurance. I am a poor broke farmer and I suffer from MCS, so

I don't want to go near a doctors office, but I will if I need to. Is

there any blood or urine test that will tell me if the cancer is loose?

I have no desire to pay for a battery of tests that are not to the

point, but that are 'standard'. I have a friend that is a doctor, so I

can usually get only the tests I want.

I know that when I allowed the doctors to carve on me, they went much

further than an eighth of an inch into me, but that the melanoma was

still in situ, not phase 1.

Bright Blessings,

Kim

[Guest guest]

Greetings,

Will you please tell me more about Navarro strips, I tried to google it,

but I got page after page about some guy stripping for PETA, I don't

think that is what you are referring to.

Bright Blessings,

Kim

s.l-c.o wrote:

> Would the Navarro strips help here? I haven't tried them myself but from

> what I have read they tell you if you are getting worse or better.

> Sanra

>

>

>

>

>

>

[Guest guest]

Here is a website with one man's experience of dealing with this cancer and

he has all the information about the strips.Sanra

http://www.loghome-forsale.com/cancer_therapies.htm

Greetings,

Will you please tell me more about Navarro strips, I tried to google it,

but I got page after page about some guy stripping for PETA, I don't

think that is what you are referring to.

Bright Blessings,

Kim

s.l-c.o wrote:

> Would the Navarro strips help here? I haven't tried them myself but from

> what I have read they tell you if you are getting worse or better.

> Sanra

>

>

>

>

>

>

[Guest guest]

Kim,

Check out this link or google Navarro test cancer.

http://www.new-cancer-treatments.org/Articles/Determine.html

I do the Navarro test every 6-8 weeks to track my progress. So far my number

have gone down and waiting for the results of my next one. Fingers crossed they

are still going in that direction.

It may not answer your question of weither your cancer is spreading but it could

give you an idea how well your doing after you remove your moles. I believe

that cancer is not just the tumours or moles in your case and that it is in your

blood. Hopefully getting rid of the moles might free up your immune system to

get the rest of the cancer under control but you may consider taking it

internally as well as I have heard many people recommend this. Of course you

should look into this and study up on it yourself but just a thought.

All the best,

angiosarcoma primary breast

> > Would the Navarro strips help here? I haven't tried them myself but from

> > what I have read they tell you if you are getting worse or better.

> > Sanra

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Wonderful news, Celia. Well done.MargaretFrom: Celia <celia@...>LDN_4_cancer ; ldnforcancer ; LDN_Users ; low dose naltrexone Sent: Thu, April 15, 2010 7:47:36 PMSubject: [low dose naltrexone] update

Today I got my scan results, diagnosed over four years ago with NSCLC - much to my horror!!!! I was given 6 - 12 months. There is no change between this scan and the last four months ago, and a bronchoscopy that took a sample of a lymph node showed no evidence of disease!!!!! !!!!!!!!! !!!!!!!!! !!!!! Keep at the LDN folks, if it ain't gonna cure it, it sure as hell slows it down........ ......... ......... ......... ..

Celia

celiadawsholm (DOT) demon.co. ukwww.dawsholm. dandie-dinmont. com

And Just when the caterpillar thought that life was over.... It turned into a butterfly!The pharmaceuticals don't want a cure. They want a treatment. Only treatments have repeat customers.

'Life may not be the party we hoped for.. but while we are here we might as well dance

I don't suffer from insanity, I enjoy every minute of it!

http://health. groups.. com/group/ LungCancerSuppor tFamily/

http://uk.groups. / group/LDN_ RaisingAwareness UK/

[Guest guest]

Celia, that's so inspiring, thank you. and YAY! May I ask how long you've

been taking LDN? --

>Today I got my scan results, diagnosed over four years ago with NSCLC -

>much to my horror!!!! I was given 6 - 12 months. There is no change

>between this scan and the last four months ago, and a bronchoscopy that

>took a sample of a lymph node showed no evidence of

>disease!!!!!!!!!!!!!!!!!!!!!!!!!!!! Keep at the LDN folks, if it ain't

>gonna cure it, it sure as hell slows it

>down.....................................

>Celia

>

><mailto:celia@...>celia@...

>www.dawsholm.dandie-dinmont.com

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Celia,

That is wonderful news!!! Keep the LDN flowing!!!!!!!

You are an inspiration!!!!

Great luck in the rest of the flow.

Tom

--- [low dose naltrexone] updateFrom: "Celia" <celia@...>Date: Thu, April 15, 2010 1:47 pm<LDN_4_cancer >, <ldnforcancer >,<LDN_Users >, <low dose naltrexone >

Today I got my scan results, diagnosed over four years ago with NSCLC - much to my horror!!!! I was given 6 - 12 months. There is no change between this scan and the last four months ago, and a bronchoscopy that took a sample of a lymph node showed no evidence of disease!!!!!!!!!!!!!!!!!!!!!!!!!!!! Keep at the LDN folks, if it ain't gonna cure it, it sure as hell slows it down.....................................

Celia

celiadawsholm (DOT) demon.co.ukwww.dawsholm.dandie-dinmont.com

And Just when the caterpillar thought that life was over.... It turned into a butterfly!The pharmaceuticals don't want a cure. They want a treatment. Only treatments have repeat customers.

'Life may not be the party we hoped for.. but while we are here we might as well dance

I don't suffer from insanity, I enjoy every minute of it!

LungCancerSupportFamily/

http://uk./group/LDN_RaisingAwarenessUK/

[Guest guest]

I have been taking LDN for about two and a half years, best thing I

ever did....... Hope it's helping you too!!

Celia

xx

> Celia, that's so inspiring, thank you. and YAY! May I ask how long you've

> been taking LDN? --

[Guest guest]

Yes, my life is very different. I haven't yet been able to stop taking

thyroid medication, but my fibromyalgia is significantly improved. I have

also been doing the iodine protocol, which is also doing wonders. Because I

started them both near each other, I cannot be sure which is responsible

for what, but I started the LDN first (end of Dec 2009) and the immmediate

effects were lessening of depression, and cessation of pain. The immediate

effect of the iodine protocol was giving me more energy. I've also started

taking 10mg day of lithium in the form of lithium orotate, which is really

helping the brain fog. Lithium is an essential mineral that removes toxins

from the brain-- and because we live in a toxic soup many people are

deficient in lithium. Only the orotate form of lithium enters the cells

easily, which is why you only need a tiny dose instead of the

near-poisonous doses they give in psych pharma.

http://mysite.verizon.net/res003jh/lithium-orotate/id13.html

--

At 10:18 AM 4/16/2010, you wrote:

> I have been taking LDN for about two and a half years, best thing

>I ever did....... Hope it's helping you too!!

>Celia

>xx

>

>

>>Celia, that's so inspiring, thank you. and YAY! May I ask how long

>>you've been taking LDN? --

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

, thanks for your update and glad you are doing so well. Wish I could say the same for me and LDN. But I've thought about lithium over the years but NEVER got on it. I'll check it again and thanks for the comments on it. I have been taking Pycnogenol and Grapeseed Ex for close to 15 yrs and have gotten rid of any allergy/sinus/headaches.....but low and behold yesterday and now today I've got a sinus headache going on....so strange. I changed Grapeseed brands and I'm wondering about that even though I've been on the new brand over a month and all has been good. Thanks again and continue your good works. joyce

Re: [low dose naltrexone] update

Yes, my life is very different. I haven't yet been able to stop taking thyroid medication, but my fibromyalgia is significantly improved. I have also been doing the iodine protocol, which is also doing wonders. Because I started them both near each other, I cannot be sure which is responsible for what, but I started the LDN first (end of Dec 2009) and the immmediate effects were lessening of depression, and cessation of pain. The immediate effect of the iodine protocol was giving me more energy. I've also started taking 10mg day of lithium in the form of lithium orotate, which is really helping the brain fog. Lithium is an essential mineral that removes toxins from the brain-- and because we live in a toxic soup many people are deficient in lithium. Only the orotate form of lithium enters the cells easily, which is why you only need a tiny dose instead of the near-poisonous doses they give in psych pharma.http://mysite.verizon.net/res003jh/lithium-orotate/id13.html--At 10:18 AM 4/16/2010, you wrote:> I have been taking LDN for about two and a half years, best thing >I ever did....... Hope it's helping you too!!>Celia>xx>>>>Celia, that's so inspiring, thank you. and YAY! May I ask how long >>you've been taking LDN? --~~~ There is no way to peace; peace is the way ~~~~--A.J. Muste

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.801 / Virus Database: 271.1.1/2815 - Release Date: 04/16/10 11:31:00

[Guest guest]

It's all over the news that we're having a particularly intense allergy

season this spring, in the USA at least. I had a little brush with my

asthma the last few days, which is highly unusual. Might be the factor in

your sinus issues. Are you using a neti pot or something similar?

--

>, thanks for your update and glad you are doing so well. Wish I

>could say the same for me and LDN. But I've thought about lithium over

>the years but NEVER got on it. I'll check it again and thanks for the

>comments on it. I have been taking Pycnogenol and Grapeseed Ex for

>close to 15 yrs and have gotten rid of any allergy/sinus/headaches.....but

>low and behold yesterday and now today I've got a sinus headache going

>on....so strange. I changed Grapeseed brands and I'm wondering about

>that even though I've been on the new brand over a month and all has been

>good. Thanks again and continue your good works. joyce

>

> Re: [low dose naltrexone] update

>

>

>

>Yes, my life is very different. I haven't yet been able to stop taking

>thyroid medication, but my fibromyalgia is significantly improved. I have

>also been doing the iodine protocol, which is also doing wonders. Because I

>started them both near each other, I cannot be sure which is responsible

>for what, but I started the LDN first (end of Dec 2009) and the immmediate

>effects were lessening of depression, and cessation of pain. The immediate

>effect of the iodine protocol was giving me more energy. I've also started

>taking 10mg day of lithium in the form of lithium orotate, which is really

>helping the brain fog. Lithium is an essential mineral that removes toxins

>from the brain-- and because we live in a toxic soup many people are

>deficient in lithium. Only the orotate form of lithium enters the cells

>easily, which is why you only need a tiny dose instead of the

>near-poisonous doses they give in psych pharma.

><http://mysite.verizon.net/res003jh/lithium-orotate/id13.html>http://mysite.ver\

izon.net/res003jh/lithium-orotate/id13.html

>

>--

>

>At 10:18 AM 4/16/2010, you wrote:

>

> > I have been taking LDN for about two and a half years, best thing

> >I ever did....... Hope it's helping you too!!

> >Celia

> >xx

> >

> >

> >>Celia, that's so inspiring, thank you. and YAY! May I ask how long

> >>you've been taking LDN? --

>

>~~~ There is no way to peace; peace is the way ~~~~

>--A.J. Muste

>

>

>

>

>----------

>

>No virus found in this incoming message.

>Checked by AVG - www.avg.com

>Version: 9.0.801 / Virus Database: 271.1.1/2815 - Release Date: 04/16/10

>11:31:00

>

>

>No virus found in this incoming message.

>Checked by AVG - www.avg.com

>Version: 9.0.801 / Virus Database: 271.1.1/2816 - Release Date: 04/17/10

>01:31:00

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Your body needs good levels of Testosterone to support your joints and muscles.

Not all men feel like this with low T but it can happen it happened to me. I

was on gels the gels going through my skin was not supporting my joints and

muscles be it the way the T got into the blood or my levels not being high

enough.

When I switched to shots my pain was better even after the first shot. I then

in a short time 4 weeks on shots I was pain free.

Co-Moderator

Phil

> From: Spence D <spencesdd@...>

> Subject: Update

>

> Date: Sunday, November 14, 2010, 9:58 AM

> Hi Everyone,

> I made a call to my urologist's nurse, and she told me that

> the procedure they were going to do was infact to insert the

> Testopel pellets (75mg) into my hip.  So, I decided to

> cancel the appointment and check into the Sottopelle

> instead.  Friday I went down for yet another round of

> bloodwork as they want recent tests and to test my body for

> estrogen.

>

> But I have a question......This past week, all week, I have

> had alot of body aches, and pains in my arms, and a couple

> times during the week my legs felt like they were going to

> give out on me.  It just seems like I'm having more and

> more of these aches and pains everywhere...  Is this

> related?

>

> Thanks.

>

>

>

> ------------------------------------

>

>

[Guest guest]

I've been on T for about ten years. When I was out for a couple of months, the

longer I went, the achier my muscles and joints got. Now that I'm back on T, the

aches are disappearing again.

>

> Hi Everyone,

> I made a call to my urologist's nurse, and she told me that the procedure they

were going to do was infact to insert the Testopel pellets (75mg) into my hip.

So, I decided to cancel the appointment and check into the Sottopelle instead.

Friday I went down for yet another round of bloodwork as they want recent tests

and to test my body for estrogen.

>

> But I have a question......This past week, all week, I have had alot of body

aches, and pains in my arms, and a couple times during the week my legs felt

like they were going to give out on me. It just seems like I'm having more and

more of these aches and pains everywhere... Is this related?

>

> Thanks.

>

[Guest guest]

Well it has been a while since I've been to the group. I just wanted to update

everybody on before I leave.

left to go live with his dad yesterday morning. I never knew how hard it

would be to let him go. I didn't know how much missing him would hurt.

Before he left, this akward kid with little social skills had a stream of

visitors. Kids from the neighborhood came pouring in to say their goodbyes. I

was a bit surprised. was always saying he didn't have friends and nobody

liked him. The ammount of love and respect those kids showed him was truly

astonishing.

On the other hand, showed no emotion at all about going. At one point I

got frustrated with him because of this and accused him of not caring. He told

me " mom I love you very much and will miss you with all my heart. My brain

doesn't work the same as others so I am not able to show my feelings, but that

doesn't mean I don't have any. "

I have heard peopl say kids with AS don't have emotion. They do. They feel just

as much as the rest of us. They just are unable to outwardly express them.

I plan to leave the group since my aspie has moved so far away. I don't think I

would have much to post about. I want to thank the group for the support you all

gave me for a short time. If ever comes home I will most likely rejoin,

but I have this sinking feeling in my heart I may not see him for years. All I

can do now is hope he gets the services and education he needs in Fla and hope

he is happier than he was with me.

Again, thank you