update

[Guest guest]

- thanks for the encouragement. I certainly don't intend to

quit the MTX. The rheumy said it is a starter dose to make sure I can

tolerate it, so I know that she may eventually up it to see if we get

more effect.

Even if not, I'm way better than I was a month ago!

sherry z

>

> Hi S.

> Improvement is improvement. MTX takes 8-12 weeks to give an

accurate

> measure if it is helping. I urge you to continue, it could get much

> better.

[Guest guest]

Selma and I compared notes on this over on Lymenet a while back- I'm

also having a weird phenomenon whereby I now have lots of energy to

exercise, walk, bike, do physical stuff- but no motivation to do mental

projects yet. It's like I " m still tired in a whole different way than

before treatment. I " m sure it'll go away, it's just interesting seeing

how a body's physical energy can be so varied. It feels like the exact

same thing that Selma's describing.

I also feel like part of my problem is just from being out of practice

using my brain for so long. But part of it is still definitely Lyme (I

haven't been treating nearly as long as Selma and I still have a long

way to go)

selmanaka wrote:

>

> I have energy to cycle, swim, do gardening, do

> my work, etc. But it's 'superficial' energy. I have more superficial

> energy than most people around me that aren't sick.

>

> But as for my deeper energy, I'm still not sure if I'm in the same

> level as others. It's slowly coming. One sign is initiative, that

> only recently started to come like a 'flush', without any effort. It

> took me almost a year to get this initiative back, almost as it was

> before lyme. Almost A YEAR AFTER I first felt fatigue was lifting!!!

> Isn't that amazing how long it takes to heal?

>

>

[Guest guest]

Dear Selma!

So glad that your brain is working.

I think you are one brainy lady.

ellen

>

> Hi everybody, I would have liked to have a bit more time to answer

> well all your posts, sorry if I delay in answering, or if the answers

> never come. I do answer you all in my head, believe me!!

>

> The work is doing fine now. My cognitive function is working back

> again as usual, except when fatigue from metal detox hits, or when

> I'm on a chilly 'attack'. But most of the time (90%), I feel the rust

> is gone!!!

>

> I'm a bit in trouble to find time to do the job, and take care of my

> little one, so I stay up until late usually...

>

> I'm back to learning German too. I'm not sure my memory is as good as

> before lyme, but I feel again very interested in learning, got many

> ideas how to improve it, doing my exchange with a German pal I had

> lost contact through Skype (he's now in the US!!), I bought a new

> magazine for people who are learning German, my 1st German course

> after lyme finished now... So things are moving. I'm much less scared

> about my brain now. Fortunately.

>

> I was thinking I could have gotten some permanent damage from lyme. I

> now believe that most of my difficulty I felt when I got back to

> the 'world of the living' was due to rust (long time not using my

> brain due to fatigue and neuroborreliosis), and some of it is due to

> lack of 'deep' energy. I have energy to cycle, swim, do gardening, do

> my work, etc. But it's 'superficial' energy. I have more superficial

> energy than most people around me that aren't sick.

>

> But as for my deeper energy, I'm still not sure if I'm in the same

> level as others. It's slowly coming. One sign is initiative, that

> only recently started to come like a 'flush', without any effort. It

> took me almost a year to get this initiative back, almost as it was

> before lyme. Almost A YEAR AFTER I first felt fatigue was lifting!!!

> Isn't that amazing how long it takes to heal?

>

> I bought a few DVDs from Dr. K. in German, just to see how he speaks

> in his courses. I just got them yesterday. If I don't understand

> anything, I will not make a course in May. The courses are for health

> professionals (and I am not!). That vocabulary, I'm not familiar

> either...The DVDs are on mental field therapy, but the course I would

> like to do is on ART (here they call RD)... They don't have DVDs on

> these courses, unfortunately.

>

> My doctor is encouraging me to do the courses though, he thinks I can

> follow them. In English I guess, is no problem, but in German...

> well... I just don't want to throw money away...

>

> I re-started a bit of core protocol recently, as maintenance dose.

> And I think I herxed a bit arthritis!!!! Very bit, but I think it

> comes from lyme arthritis still!! I don't have any joint pain for

> ages now, but after I stopped andro for 2 months, I think I'm herxing

> arthritis. I'm not 100% sure, as I'm doing the metal detox thing, and

> I feel clear 'pulls' from my joints (like stinging) after NDF. So I'm

> not very sure whether if this is borrelia herxing or just metals

> coming out.

>

> My smilax finished long time ago, I'm on an increased dose of

> knotweed (my body finally re-accepted it, at least in these low

> doses), one capsule cats claw, 3 andro standardized. Then Rizols (for

> bart and funghi), and the KMT. My right hand is still with rashes,

> but it's nothing serious. Feet funghi still here too. I'll try to see

> if I dont' buy the Bear Creek herbs Buhner suggested against yeast.

> Anyone tried those tinctures (desert willow + chaparo amargosa)?? I

> wonder if they would work against skin funghi.

>

> Best healing wishes to all,

> Selma

>

[Guest guest]

dear jo,

this is wonderful! i appreciate your sharing the update; it encourages me on

my journey.

gratefully,

kendra

-----Original Message-----

From:

[mailto: ]On Behalf Of wyomin@...

After 9 busy days, I realize its time for an update because I'm doing so

much better!

[Guest guest]

That is so good to hear, jo!!!!!!!!!

I was also surprised to find that some symptoms, that I did not

associate with Lyme, went away after Lyme treatment. Mine weren't

infections like your cough, but I'm sure they were related to Lyme.

Alternately it's possible that your herbs target those infections too,

or that the immune support from some of the herbs has helped your body

fight off whatever was causing the cough.

wyomin@... wrote:

>

> After 9 busy days, I realize its time for an update because I'm doing so

> much better!

>

> After improving during the winter, I had experienced what seemed like a

> plateau that I could not figure out. Fortunately, after 2 and a half

> weeks on Vit D supplementation, I suddenly began to improve and have

> remained strong since. I will be testing this week, at one month of

> supplementation, to see if my levels are up, but I suspect that they are

> and that declining levels were responsible for my plateau.

>

> The main improvement is in stamina; I've been able to work outside for

> longer periods, have my grandchildren for longer periods, etc and not be

> totally knocked down. I'm tired for sure, but I rest and I come back

> much sooner. I just feel stronger.

>

> Brain function is so so. It has not improved significantly (yet!) though

> it has not declined. The one symptom that has not improved is sleep.

> Most of this year, that symptom has been worse, resembling what it was

> when I first got sick. Since I've used so many sleep aids throughout the

> years, some are no longer effective, or cause weight gain. I decided to

> go back on trazodone recently since it helped with sleep years ago. It

> did cause weight gain for me so I'll be watching for that; my plan is to

> use it for a while until enough healing has occured for my body to sleep

> on its own.

>

> Another major improvement is that the chronic cough that I have been

> treating with nebulized glutathione for 8 to 10 years, is gone!!! And,

> of course, I have had NO sinus infections for months, after spending the

> last 7 or 8 winters on and off antibiotics for such infections! Whatever

> 'bugs' were cause those two infections are gone! This in itself is

> pretty amazing.

>

> I stopped one of the 'core protocol' herbs recently because I

> developed a redenning and mild itching around my neck; I replaced it

> with another (with herbs there is always another herb if one is a

> problem). I also bought bulk herbs and I mix them with a little

> applesauce and eat 3 times a day; this is less expensive and I like

> getting as close to the source as possible.

>

> I exercise as I am able. Mild yoga stretches during the winter, and

> swimming too now that the pool is open.

>

> I also believe that one's psychological and spiritual health is part of

> the picture. I believe that physical health affects and is affected by

> them. So I continue with my therapy every other week (besides it feels

> good to have someone to supports me through thick and thin, who sees the

> real me, who validates me despite the limitations of illness!) and an

> energy psychology workshop (Be Set Free Fast) once a month. I'm also

> reading and experimenting with The Law of Attraction as written by

> Esther Hicks (as you may have seen in The Secret). Family and friends

> round out the picture.

>

> So, as of May, 07, things are looking up for me. I still have a long

> way to go, and there are still pieces to the puzzle yet to be addressed

> (heavy metals and detox seems likely the next step) but I am optimistic

> that I'll continue to make improvements.

>

> I am grateful to Buhner for his book; and to those of you with lyme

> who have been so generous with your knowledge and support along the way.

> May you all find the path that works for you Blessings to all, jjo

>

>

[Guest guest]

, One of the things I love about the herbs is that they are broad

spectrum. I told my doctor I didn't know if the herbs were targeting the

'bugs' causing the cough and sinus infection directly, or the lyme; she

agreed probably a little of both. Whatever it was, I'm grateful! jo

[Guest guest]

Congrats on your improvent, Jo !!! It's wonderful to have our lives a

bit back, isn't it? Even if you have a long way to go, what cares is

that you feel much better!

Selma

[Guest guest]

Can't be too much help to you this time Finette. Other than the herbs made me

feel better after a few days.

The only other thing is Chocolate. I can't eat that at all since I got my

colon takine out, it acts like a laxative. Same as taking Exlax. Bad diarrhea

from it, and sick to my stomache too.

Jim.

###

Finette Lerman-Russak <FinRussak@...> wrote:

ok so I finally was brave enough to start...took first 2 doses of

single tab of andro..( yesterday I was too weeny to take it before

my parents arrived as I was alone)

..yes bitter but I swallowed quickly and chased it with my favorite

taste bud reward...good Belgium chocolate courtesy of my sister's

year long stint over there with J and J pharma all last year!! ( I

learned this trick from my wonderful local pharmacist after

suffering thru Biaxin and other bitter liquid suspensions)

anyway...I had a very bad nite...up several times with sweats and

feeling " hyper " ...almost overtired...and a bit more cardiac ( tachy

and pauses)--all worse than the past few days.

BUT the Sarsaparilla today seemed to take the edge off...now I will

slowly get to 3 per day, then weekly increase the per dose regimen.

BUT Im thinking of staying on 3 dose per day trying to avoid taking

it close to bedtime

QUESTION: anyone else feel " wired " or hyper or more jittery while on

andro?? it MAY be a form of " herx " given that Ive been on a good

dose of Suprax about a week now, adding the andro may have finally

kick started something given my body's sensitivities and all..hope

so...and that its not a sign of not tolerating the herb itself. They

werent NEW sx but a worsening of existing ones...so...

and anyone find this with the other herbs?? wary of adding to this

lovely effect..

now to find the courage to keep taking it while alone all day all

this week!!!( I just so dread the possibility of an ER run and

having to try to explain what Im ingesting and why given my

classification as still " medically fragile " !!)

Good news for those keeping tabs on my daughters Costa

Rican " adventure " ...by July 27 she will be OUT of the rainforest and

on her way to San ...after 3 days R and R she will then be on a

plane July 30 to HOME!!! thanks for keeping up the kind thoughts and

prayers for her safe return!!

Now if I can be feeling better by then too!!! ( yeah its a lot to

ask for, but hope springs eternal)

Hope to be feeling well enough for more updates by week's end ( or

sooner if I have any more questions)

BTW as for Evan, Dr J changed his Rx protocol...again...and so we

need 7-10 days to gauge his response before adding the Buhner

herbs...but Im keeping him on the Sarsa. as it seems to help him too

with the sx. Dr J was supportive for adding Buhner to the mix...so

we will see.

be well

Finette

---------------------------------

Get the toolbar and be alerted to new email wherever you're surfing.

[Guest guest]

Finette, just fast as I'm travelling in Belgium now!

Watch out for andro. Sounds like herxes. They can be tough. Use lots of

cleansers,

specially chlorella good quality. One of my mottos is 'a bad herx can kill'. I

do believe it as

it can mess up with breathing, heart rhythms, blood pressure. No cleansers =

danger.

Go slow.

Selma

>

> ok so I finally was brave enough to start...took first 2 doses of

> single tab of andro..( yesterday I was too weeny to take it before

> my parents arrived as I was alone)

> .yes bitter but I swallowed quickly and chased it with my favorite

> taste bud reward...good Belgium chocolate courtesy of my sister's

> year long stint over there with J and J pharma all last year!! ( I

> learned this trick from my wonderful local pharmacist after

> suffering thru Biaxin and other bitter liquid suspensions)

>

> anyway...I had a very bad nite...up several times with sweats and

> feeling " hyper " ...almost overtired...and a bit more cardiac ( tachy

> and pauses)--all worse than the past few days.

>

> BUT the Sarsaparilla today seemed to take the edge off...now I will

> slowly get to 3 per day, then weekly increase the per dose regimen.

> BUT Im thinking of staying on 3 dose per day trying to avoid taking

> it close to bedtime

>

> QUESTION: anyone else feel " wired " or hyper or more jittery while on

> andro?? it MAY be a form of " herx " given that Ive been on a good

> dose of Suprax about a week now, adding the andro may have finally

> kick started something given my body's sensitivities and all..hope

> so...and that its not a sign of not tolerating the herb itself. They

> werent NEW sx but a worsening of existing ones...so...

>

> and anyone find this with the other herbs?? wary of adding to this

> lovely effect..

>

> now to find the courage to keep taking it while alone all day all

> this week!!!( I just so dread the possibility of an ER run and

> having to try to explain what Im ingesting and why given my

> classification as still " medically fragile " !!)

>

> Good news for those keeping tabs on my daughters Costa

> Rican " adventure " ...by July 27 she will be OUT of the rainforest and

> on her way to San ...after 3 days R and R she will then be on a

> plane July 30 to HOME!!! thanks for keeping up the kind thoughts and

> prayers for her safe return!!

>

> Now if I can be feeling better by then too!!! ( yeah its a lot to

> ask for, but hope springs eternal)

>

> Hope to be feeling well enough for more updates by week's end ( or

> sooner if I have any more questions)

>

> BTW as for Evan, Dr J changed his Rx protocol...again...and so we

> need 7-10 days to gauge his response before adding the Buhner

> herbs...but Im keeping him on the Sarsa. as it seems to help him too

> with the sx. Dr J was supportive for adding Buhner to the mix...so

> we will see.

>

> be well

> Finette

>

[Guest guest]

Selma and all - Where do you get good quality Chlorella? Also which

brand of Milk Thistle should be used?

Thanks,

Sanjukta

________________________________

From:

[mailto: ] On Behalf Of selmanaka

Sent: Monday, July 23, 2007 10:35 AM

Subject: [ ] Re: update

Finette, just fast as I'm travelling in Belgium now!

Watch out for andro. Sounds like herxes. They can be tough. Use lots of

cleansers,

specially chlorella good quality. One of my mottos is 'a bad herx can

kill'. I do believe it as

it can mess up with breathing, heart rhythms, blood pressure. No

cleansers = danger.

Go slow.

Selma

[Guest guest]

Finette,

You may have hit on a key when you said " BUT the Sarsaparilla today seemed to

take the edge off. "

I started Buhner's core protocol (minus astragalus) over a year ago and have

posted before that if I were to start over again, I would start with the

Sarasparilla.

It, along with Resveratrol, are the two herbs in the core protocol Buhner

mentions as helping with herxes/removing endotoxins, and it makes sense to me,

in

retrospect, to start some " clean-up " first (I don't use any other detox

supplements). I noticed a big improvement after I added the Sarsaparilla.

I'm now on relatively low doses of the core protocol herbs (Andro, Cat's

Claw, Resveratrol, and Sarsparilla), approximately one tablet of each three

times

daily, though some times I miss a dose, or I adjust a little here and there

from time to time.

Good luck with continuing with this protocol. I hope you find as much

improvement on it as I have!

Ann

p.s. Hooray for chocolate!

>

> ok so I finally was brave enough to start...took first 2 doses of

> single tab of andro..( yesterday I was too weeny to take it before

> my parents arrived as I was alone)

> .yes bitter but I swallowed quickly and chased it with my favorite

> taste bud reward...good Belgium chocolate courtesy of my sister's

> year long stint over there with J and J pharma all last year!! ( I

> learned this trick from my wonderful local pharmacist after

> suffering thru Biaxin and other bitter liquid suspensions)

>

> anyway...I had a very bad nite...up several times with sweats and

> feeling " hyper " ...almost overtired...and a bit more cardiac ( tachy

> and pauses)--all worse than the past few days.

>

> BUT the Sarsaparilla today seemed to take the edge off...now I will

> slowly get to 3 per day, then weekly increase the per dose regimen.

> BUT Im thinking of staying on 3 dose per day trying to avoid taking

> it close to bedtime

>

> QUESTION: anyone else feel " wired " or hyper or more jittery while on

> andro?? it MAY be a form of " herx " given that Ive been on a good

> dose of Suprax about a week now, adding the andro may have finally

> kick started something given my body's sensitivities and all..hope

> so...and that its not a sign of not tolerating the herb itself. They

> werent NEW sx but a worsening of existing ones...so...

>

> and anyone find this with the other herbs?? wary of adding to this

> lovely effect..

>

> now to find the courage to keep taking it while alone all day all

> this week!!!( I just so dread the possibility of an ER run and

> having to try to explain what Im ingesting and why given my

> classification as still " medically fragile " !!)

>

> Good news for those keeping tabs on my daughters Costa

> Rican " adventure " ...by July 27 she will be OUT of the rainforest and

> on her way to San ...after 3 days R and R she will then be on a

> plane July 30 to HOME!!! thanks for keeping up the kind thoughts and

> prayers for her safe return!!

>

> Now if I can be feeling better by then too!!! ( yeah its a lot to

> ask for, but hope springs eternal)

>

> Hope to be feeling well enough for more updates by week's end ( or

> sooner if I have any more questions)

>

> BTW as for Evan, Dr J changed his Rx protocol...again...and so we

> need 7-10 days to gauge his response before adding the Buhner

> herbs...but Im keeping him on the Sarsa. as it seems to help him too

> with the sx. Dr J was supportive for adding Buhner to the mix...so

> we will see.

>

> be well

> Finette

>

**************************************

Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

I heartily agree with Selma. A bad herx left me with a painful sound

sensitivity that I still can't get on top of a year later.

>

> Finette, just fast as I'm travelling in Belgium now!

>

> Watch out for andro. Sounds like herxes. They can be tough. Use

lots of cleansers,

> specially chlorella good quality. One of my mottos is 'a bad herx

can kill'. I do believe it as

> it can mess up with breathing, heart rhythms, blood pressure. No

cleansers = danger.

>

> Go slow.

>

> Selma

>

> >

> > ok so I finally was brave enough to start...took first 2 doses of

> > single tab of andro..( yesterday I was too weeny to take it

before

> > my parents arrived as I was alone)

> > .yes bitter but I swallowed quickly and chased it with my

favorite

> > taste bud reward...good Belgium chocolate courtesy of my sister's

> > year long stint over there with J and J pharma all last year!! (

I

> > learned this trick from my wonderful local pharmacist after

> > suffering thru Biaxin and other bitter liquid suspensions)

> >

> > anyway...I had a very bad nite...up several times with sweats and

> > feeling " hyper " ...almost overtired...and a bit more cardiac (

tachy

> > and pauses)--all worse than the past few days.

> >

> > BUT the Sarsaparilla today seemed to take the edge off...now I

will

> > slowly get to 3 per day, then weekly increase the per dose

regimen.

> > BUT Im thinking of staying on 3 dose per day trying to avoid

taking

> > it close to bedtime

> >

> > QUESTION: anyone else feel " wired " or hyper or more jittery while

on

> > andro?? it MAY be a form of " herx " given that Ive been on a good

> > dose of Suprax about a week now, adding the andro may have

finally

> > kick started something given my body's sensitivities and

all..hope

> > so...and that its not a sign of not tolerating the herb itself.

They

> > werent NEW sx but a worsening of existing ones...so...

> >

> > and anyone find this with the other herbs?? wary of adding to

this

> > lovely effect..

> >

> > now to find the courage to keep taking it while alone all day all

> > this week!!!( I just so dread the possibility of an ER run and

> > having to try to explain what Im ingesting and why given my

> > classification as still " medically fragile " !!)

> >

> > Good news for those keeping tabs on my daughters Costa

> > Rican " adventure " ...by July 27 she will be OUT of the rainforest

and

> > on her way to San ...after 3 days R and R she will then be on

a

> > plane July 30 to HOME!!! thanks for keeping up the kind thoughts

and

> > prayers for her safe return!!

> >

> > Now if I can be feeling better by then too!!! ( yeah its a lot to

> > ask for, but hope springs eternal)

> >

> > Hope to be feeling well enough for more updates by week's end (

or

> > sooner if I have any more questions)

> >

> > BTW as for Evan, Dr J changed his Rx protocol...again...and so we

> > need 7-10 days to gauge his response before adding the Buhner

> > herbs...but Im keeping him on the Sarsa. as it seems to help him

too

> > with the sx. Dr J was supportive for adding Buhner to the

mix...so

> > we will see.

> >

> > be well

> > Finette

> >

>

[Guest guest]

thanks!!!

actually after being on so much for so long Im thinkiong its not so

much aherx (too soon and too fast) but sensitivity to the herb

so hard to tell...many of us ( me included) assume " herx " too easily.

with " active " Lyme maybe it can be fast, but with mostly chronic and

cystic forms and again after so many " killers " over past 2-3 yrs,

even the " usual " meds dont produce a fast bad herx anymore...

as Ive just posted a 2 day stop with a regroup is in order

and Id still really be interested in those others' reactions.

Be well

Finette

> >

> > Finette, just fast as I'm travelling in Belgium now!

> >

> > Watch out for andro. Sounds like herxes. They can be tough. Use

> lots of cleansers,

> > specially chlorella good quality. One of my mottos is 'a bad

herx

> can kill'. I do believe it as

> > it can mess up with breathing, heart rhythms, blood pressure. No

> cleansers = danger.

> >

> > Go slow.

> >

> > Selma

> >

> > >

> > > ok so I finally was brave enough to start...took first 2 doses

of

> > > single tab of andro..( yesterday I was too weeny to take it

> before

> > > my parents arrived as I was alone)

> > > .yes bitter but I swallowed quickly and chased it with my

> favorite

> > > taste bud reward...good Belgium chocolate courtesy of my

sister's

> > > year long stint over there with J and J pharma all last year!!

(

> I

> > > learned this trick from my wonderful local pharmacist after

> > > suffering thru Biaxin and other bitter liquid suspensions)

> > >

> > > anyway...I had a very bad nite...up several times with sweats

and

> > > feeling " hyper " ...almost overtired...and a bit more cardiac (

> tachy

> > > and pauses)--all worse than the past few days.

> > >

> > > BUT the Sarsaparilla today seemed to take the edge off...now I

> will

> > > slowly get to 3 per day, then weekly increase the per dose

> regimen.

> > > BUT Im thinking of staying on 3 dose per day trying to avoid

> taking

> > > it close to bedtime

> > >

> > > QUESTION: anyone else feel " wired " or hyper or more jittery

while

> on

> > > andro?? it MAY be a form of " herx " given that Ive been on a

good

> > > dose of Suprax about a week now, adding the andro may have

> finally

> > > kick started something given my body's sensitivities and

> all..hope

> > > so...and that its not a sign of not tolerating the herb

itself.

> They

> > > werent NEW sx but a worsening of existing ones...so...

> > >

> > > and anyone find this with the other herbs?? wary of adding to

> this

> > > lovely effect..

> > >

> > > now to find the courage to keep taking it while alone all day

all

> > > this week!!!( I just so dread the possibility of an ER run and

> > > having to try to explain what Im ingesting and why given my

> > > classification as still " medically fragile " !!)

> > >

> > > Good news for those keeping tabs on my daughters Costa

> > > Rican " adventure " ...by July 27 she will be OUT of the

rainforest

> and

> > > on her way to San ...after 3 days R and R she will then be

on

> a

> > > plane July 30 to HOME!!! thanks for keeping up the kind

thoughts

> and

> > > prayers for her safe return!!

> > >

> > > Now if I can be feeling better by then too!!! ( yeah its a lot

to

> > > ask for, but hope springs eternal)

> > >

> > > Hope to be feeling well enough for more updates by week's end

(

> or

> > > sooner if I have any more questions)

> > >

> > > BTW as for Evan, Dr J changed his Rx protocol...again...and so

we

> > > need 7-10 days to gauge his response before adding the Buhner

> > > herbs...but Im keeping him on the Sarsa. as it seems to help

him

> too

> > > with the sx. Dr J was supportive for adding Buhner to the

> mix...so

> > > we will see.

> > >

> > > be well

> > > Finette

> > >

> >

>

[Guest guest]

for " greens " I use Green Magma and Kyogreen..Im not a fan of

Chlorella...no real reason...not convinced by the lit.

as for thistle I always have stuck with THISLYN...sometimes a bit

more $ but always good quality and WORKS. Plus this is the brand

often used in those studies with hepatitis and live cancer and other

liver problems.

I like to stick with whats proven as working/safe if I can.

be well

Finette

>

> Selma and all - Where do you get good quality Chlorella? Also which

> brand of Milk Thistle should be used?

> Thanks,

> Sanjukta

>

> ________________________________

>

> From:

> [mailto: ] On Behalf Of selmanaka

> Sent: Monday, July 23, 2007 10:35 AM

>

> Subject: [ ] Re: update

>

>

>

> Finette, just fast as I'm travelling in Belgium now!

>

> Watch out for andro. Sounds like herxes. They can be tough. Use

lots of

> cleansers,

> specially chlorella good quality. One of my mottos is 'a bad herx

can

> kill'. I do believe it as

> it can mess up with breathing, heart rhythms, blood pressure. No

> cleansers = danger.

>

> Go slow.

>

> Selma

>

[Guest guest]

I heartily agree with Selma. A bad herx left me with a painful sound

sensitivity that I still can't get on top of a year later.

,

I'd be very interested in hearing a little more about what triggered the

bad herx and what your sound sensitivity is like. I have extremely

severe and reactive hyperacusis that i'm trying to resolve and the last

thing i want is to aggravate it further.

Thanks.

Hollis </HTML>

[Guest guest]

Sanjukta, I buy mine in powder in the dr. K's institute here in

Geramny, but I'm actually looking for cheaper alternatives. Powdered

chlorella LASTS MUCH LONGER than in capsules or pressed. I guess any

brand is okay, you just have to be sure it's not from poluted water as

chlorella binds to many toxins. If your tummy is sensitive, try to find

chlrella vulgaris, not pyrenoidosa, it's easier to digest.

Milk thistle, no particular brand either. I guess the only thing that

you have to have is a standardized formula, according to Buhner. I

still use it, and have used it all the way in my lyme story, together

with bear garlic tincture (for kidneys). And for this last infection,

I'm always testing good for artichoke (for pancreas), for some reason,

my pancreas needs constant support since last reinfection. These are my

basic organ protectors, they have helped me immensely during herxes.

Selma

>

> Selma and all - Where do you get good quality Chlorella? Also which

> brand of Milk Thistle should be used?

> Thanks,

> Sanjukta

>

> ________________________________

>

>

[Guest guest]

I just use whole herb powder Milk THistle from StarWest Botanicals. You can get

it from them or 1st CHinese.

Jim.

###

selmanaka <hardynaka@...> wrote:

Sanjukta, I buy mine in powder in the dr. K's institute here in

Geramny, but I'm actually looking for cheaper alternatives. Powdered

chlorella LASTS MUCH LONGER than in capsules or pressed. I guess any

brand is okay, you just have to be sure it's not from poluted water as

chlorella binds to many toxins. If your tummy is sensitive, try to find

chlrella vulgaris, not pyrenoidosa, it's easier to digest.

Milk thistle, no particular brand either. I guess the only thing that

you have to have is a standardized formula, according to Buhner. I

still use it, and have used it all the way in my lyme story, together

with bear garlic tincture (for kidneys). And for this last infection,

I'm always testing good for artichoke (for pancreas), for some reason,

my pancreas needs constant support since last reinfection. These are my

basic organ protectors, they have helped me immensely during herxes.

Selma

[Guest guest]

Do you know if they ordered a HLAB27 blood test? That is the first

test my rheumy ordered for me along with all the other tests and

xrays.All the other blood tests were normal except for the sed rate

which was a little elevated. The x-rays of course showed the damage

to my hands and SI joints showed fluid which is an indicator of PA.

The HLAB27 came back positive which is also an indicator sometimes. It

also can be an indicator for many other diseases...according to my

rheumy. RA and psoriasis is present in my family history...no first

degree relatives with psoriasis but some cousins with it. RA on both

sides of my family in grandparents and great-grandparents. Hope you

get some answers and some relief soon!

Sharon

[Guest guest]

Hi " Penny "

Yes, pretty much.

PA is usually diagnosed by what process of elimination. Ruling out all

of the other possibilities, while taking int consideration the symptoms

that you have.

I know it's not very comforting, but there is not any particular test

that can be done that if done confirms or denies PA.

Stay Well,

[Guest guest]

sorry .. this is the link!

http://www.marybradleybooks.com/

>

> Hi folks .. I updated my website recently and wanted to share it with

> you guys. Since I wrote the book Up the Creek, I feel a wonderful

> connection with many of you and your families. I sincerely hope my

> email finds all of you healthy and happy.

>

> All the very Best

> Bradley

> www.marybradleybooks.com

>

> PS .. the picture on the opening page is from Arranmore Island, Co

> Donegal .. up by the lighthouse .. that is where Mom and I walked our

> last walk. Nice!

>

[Guest guest]

I read some of the excerpts and reviews, and will be ordering the book. Looks like something that needs to be more widely read. I especially liked that you said that this was no knock against conventional or other alternative medicine. Too many people are looking for the one solution to everything, and the realities are that there is just no magic bullet. As you say, many people react differently to different treatments...but how lucky we are to have such great volumes of evidence with LDN and MS especially. It is just too bad that doctors can get in trouble for trying to help patients - and abide by their wishes.

Best

Bob C

From: mboylebradley <mboylebradley@...>Subject: [low dose naltrexone] Re: Updatelow dose naltrexone Date: Saturday, September 6, 2008, 11:18 PM

sorry .. this is the link!http://www.marybrad leybooks. com/>> Hi folks .. I updated my website recently and wanted to share it with > you guys. Since I wrote the book Up the Creek, I feel a wonderful > connection with many of you and your families. I sincerely hope my > email finds all of you healthy and happy. > > All the very Best> Bradley> www.marybradleybook s.com> > PS .. the picture on the opening page is from Arranmore Island, Co > Donegal .. up by the lighthouse .. that is where Mom and I walked our > last walk. Nice!>

[Guest guest]

some people see improvement very quickly with ldn.

if you see improvement for only half a day you should consider after

sometime to DP-phenylalanine like advised by dr bihari,from solaray.

you only should make sure you can useit.no high blood pressure and

some more problems that will not allowed it to be used.other will

have to mention the other problems with DL-phenylalanine

>

> Thank you everyone for your well wishes.

> I am going to do this and work through it I just get discouraged

> having so many set-backs. I am committed though and all of your

> support is awesome.

>

> I wanted to say that last night it took me -forever- to fall asleep

> and I had no wacky dreams. I woke up a couple of times a little

out

> of breath but no big deal at all. Again today I felt good in the

> morning and at around noon- I started to feel very achey and my

body

> hurts again to the point I cannot leave the house. My lower back

is

> beyond stiff at this point. I did pay attention not to exert too

much

> today to see if that is what caused my issues. It can also be

that I

> have my period which is normally very difficult for me and causes a

> lot of problems too... I did experience a hyper feeling earlier in

> the day and I think this has to do with thyroid meds? I felt like

me

> screaming inside my own head- very off thing to experience.

>

> I must say the good news! on the Crohn's/Colitis level I see a

> dramatic improvement. I only went to the bathroom 2 times

yesterday

> and once today and not to get too descriptive but it was really

good

> bowel movements. I also have this on going issue in my Upper GI-

this

> constant Right Upper Quadrant Pressure that I have been battling

with

> for a couple of years now. I am getting this evaluated as we speak

> with a GI that specializes in Liver Diseases and the Upper GI to

see

> if it is a Crohn's complication or inflammation in the colon (as my

> new GI thinks that's putting pressure on my Diaphram) I woke up

this

> morning and that Pressure and discomfort reduced by like

> %50!!!!!!!!!!!!!!!!!!!! It is just incredible. I feel I can

breathe

> better. WOW WOW WOW!

>

> I am attributing this to the LDN. Is this too quick of a response

> both good and bad? Not doubting at all. Trust me, I have been

> through high holy hell with my health. I will take anything..

>

> Thanks everyone.

>

> Jodi

>

[Guest guest]

Jodi,

due to new pain: When I started using LDN I got pain in both shoulders, one hip, and one knee. Just for a week or two. Then it dissapeared.

Great that your bm's are normal now! The same thing happened for me, too. But I needed some weeks to get normal bm's.

My stomach discomfort and pain was gone the first morning after starting LDN.

I also used to have those partial obstructions a couple of times each month. Haven't had ONE since august last year.

Congrats! I am sure you'll get better and better:-) Ingrid

From: jodah235 <jodah235@...>low dose naltrexone Sent: Saturday, November 15, 2008 7:48:09 PMSubject: [low dose naltrexone] UpdateThank you everyone for your well wishes.I am going to do this and work through it I just get discouragedhaving so many set-backs. I am committed though and all of yoursupport is awesome.I wanted to say that last night it took me -forever- to fall asleepand I had no wacky dreams. I woke up a couple of times a little outof breath but no big deal at all. Again today I felt good in themorning and at around noon- I started to feel very achey and my bodyhurts again to the point I cannot leave the house. My lower back isbeyond stiff at

this point. I did pay attention not to exert too muchtoday to see if that is what caused my issues. It can also be that Ihave my period which is normally very difficult for me and causes alot of problems too... I did experience a hyper feeling earlier inthe day and I think this has to do with thyroid meds? I felt like mescreaming inside my own head- very off thing to experience. I must say the good news! on the Crohn's/Colitis level I see adramatic improvement. I only went to the bathroom 2 times yesterdayand once today and not to get too descriptive but it was really goodbowel movements. I also have this on going issue in my Upper GI- thisconstant Right Upper Quadrant Pressure that I have been battling withfor a couple of years now. I am getting this evaluated as we speakwith a GI that specializes in Liver Diseases and the Upper GI to seeif it is a

Crohn's complication or inflammation in the colon (as mynew GI thinks that's putting pressure on my Diaphram) I woke up thismorning and that Pressure and discomfort reduced by like%50!!!!!!!!!!!!!!!!!!!! It is just incredible. I feel I can breathebetter. WOW WOW WOW!I am attributing this to the LDN. Is this too quick of a responseboth good and bad? Not doubting at all. Trust me, I have beenthrough high holy hell with my health. I will take anything..Thanks everyone.Jodi------------------------------------

[Guest guest]

About 10% of the population has a problem w/dlpa...I happen to be one! I get pounding in ears and can't sleep. Just had my chiro muscle test me to see if I could take it now, and I am still unable to use it.

Nonie

> > some people see improvement very quickly with ldn.> if you see improvement for only half a day you should consider after > sometime to DP-phenylalanine like advised by dr bihari,from solaray.> you only should make sure you can useit.no high blood pressure and > some more problems that will not allowed it to be used.other will > have to mention the other problems with DL-phenylalanine

[Guest guest]

If you have lyme, it is well known on these forums that LDN can

increase lyme symptoms and sometimes severely. Dr. Bihari sometimes

had to take his lyme patients off LDN and start treating the lyme and

later re-introduced the LDN and generally the LDN didn't cause as much

disturbance in the lyme symptoms the second go around.