update

[Guest guest]

Hi Bren thank you so much for your reply,

Do people ever treat Lyme and take LDN simultaneously?

Due to various health issues no doctor of mine wants to put me on long

term antibiotics until my gut is in better shape.

Amazingly, LDN is really helping my GI issues.

If I do have Erlichiosis possible Lyme as well then it is indeed very

long term and in that case 1 month of antibiotics won't cut the

mustard. I have an appointment for an alternative Lyme clinic mid

December.

The Vitamin D is really helping with the body pain.

Today though it has been about complete and utter exhaustion. I don't

know if that is typical for Lyme issues or what?

Jodi

Crohn's/Colitis

>

>

> If you have lyme, it is well known on these forums that LDN can

> increase lyme symptoms and sometimes severely. Dr. Bihari sometimes

> had to take his lyme patients off LDN and start treating the lyme and

> later re-introduced the LDN and generally the LDN didn't cause as much

> disturbance in the lyme symptoms the second go around.

>

[Guest guest]

I did most every treatment, for lyme, finally got cured, based on symptoms, and Igenex tests, using the Marshall protocol.com. I had a few residual joint pain and psorisis.,issues. I have been on LDN, now, about 10 months, pain mostly gone in joints 3-4 months, at 5 months 90% gone, now almost 100%. I feel great. Based on my experience, you can do LDN, with other lyme treatments. I think they would complement each other.

Hi Bren thank you so much for your reply,

Do people ever treat Lyme and take LDN simultaneously?

Due to various health issues no doctor of mine wants to put me on long

term antibiotics until my gut is in better shape.

Amazingly, LDN is really helping my GI issues.

If I do have Erlichiosis possible Lyme as well then it is indeed very

long term and in that case 1 month of antibiotics won't cut the

mustard. I have an appointment for an alternative Lyme clinic mid

December.

The Vitamin D is really helping with the body pain.

Today though it has been about complete and utter exhaustion. I don't

know if that is typical for Lyme issues or what?

Jodi

Crohn's/Colitis

>

>

> If you have lyme, it is well known on these forums that LDN can

> increase lyme symptoms and sometimes severely. Dr. Bihari sometimes

> had to take his lyme patients off LDN and start treating the lyme and

> later re-introduced the LDN and generally the LDN didn't cause as much

> disturbance in the lyme symptoms the second go around.

>

[Guest guest]

>

> Hi Bren thank you so much for your reply,

>

> Do people ever treat Lyme and take LDN simultaneously?

> Due to various health issues no doctor of mine wants to put me on

long

> term antibiotics until my gut is in better shape.

> Amazingly, LDN is really helping my GI issues.

> If I do have Erlichiosis possible Lyme as well then it is indeed

very

> long term and in that case 1 month of antibiotics won't cut the

> mustard. I have an appointment for an alternative Lyme clinic mid

> December.

> The Vitamin D is really helping with the body pain.

> Today though it has been about complete and utter exhaustion. I

don't

> know if that is typical for Lyme issues or what?

>

> Jodi

> Crohn's/Colitis

--------------

Many do take LDN while treating lyme, but sometimes the adverse side

effects the LDN can cause, one may have to get a month or so of lyme

treatment under his/her belt before the LDN can be re-introduced.

LDN many times brings lyme infection to the forefront and a whole

host of negative symptoms can arise until one starts to treat lyme

properly. Why this happens, I dun't know, LOL.

[Guest guest]

Hi Ron,

Thanks for that info..

I still find this whole Erlichiosis and co-infection diagnosis highly

suspect- due to many chronically ill people can have the antibodies so

it will show up as co-infections. With that said my reaction to LDN

is also pointing in that direction. The only way I will know for sure

is to do treatment and then comes the question which school of thought

to follow when it comes to being long term with these things- because

the spirochete is in tissue- not even in the blood. It's questionable

if it's even in the tissue according to some conventional Neuro-Lyme

experts. It is very confusing.

Did you ever take antibiotics while on LDN for lyme?

If so how did it make you feel?

Thanks,

Jodi

> >

> >

> > If you have lyme, it is well known on these forums that LDN can

> > increase lyme symptoms and sometimes severely. Dr. Bihari sometimes

> > had to take his lyme patients off LDN and start treating the lyme and

> > later re-introduced the LDN and generally the LDN didn't cause as

much

> > disturbance in the lyme symptoms the second go around.

> >

>

[Guest guest]

Thank you ..

I am still trying to figure out how to deal with all of this.

Jodi

[Guest guest]

if you still have the herps virus take few spoons of extra virgin

cocunt oil a day.it will keep the virus under control and it is very

good food for crohn patients as it is absorbed directly.

>

> Following all the skin drama I have been experiencing and it

> progressively was getting worse and my eye inflammation got weird,

I

> went to the ER last night as I was very nervous from the constant

> on-slaught of having to scratch and scratch and scratch (what a

great

> way to torture someone) but my eye itching threw me right over the

> sane ledge into totally mental territory.

>

> I was worried I may have the Shingles. I have had Chicken Pox when

I

> was a youngster, I have an underlying Herpes issue (cold sores-

would

> get super bad at times) but when I was really ill with the Crohn's

> stuff I got Sackie virus which was an utter nightmare. I

couldn't

> swallow for probably a month and just lived on ingestible

lidociane,

> antibiotics and get this ANGEL FOOD CAKE as that would " coat " my

> stomach to be able to take the meds. I don't want to think about it

> as it makes me sick how I did so many things so wrong. Boy have I

> been desperate at times.

>

> Anyway, with this and teetering over the edge- I went to the ER.

> Complications were ruled out and I was told to take Benadryl and

> continue with an anti-histamine during the day. The Benadryl dosage

> IMMEDIATELY helped. They said it is some kind of acute skin

allergy-

> as when I just touch my skin a rash appears now. After the Benadryl

> this subsided. If I have any throat issues or difficulty breathing

> within the next few days I need to go back to the ER and get

steroids.

> I don't think that is the route I will take. Unless it's an

> emergency of course.

>

> I think it is some bizzare die-off. I do not think it is just an

> allergy, granted something could of changed for sure but I think

the

> yeastie beasties are acting up and they just have different ways of

> manifesting with each layer and level of die-off or aggravation.

>

> I am seeing my Homeopath today and doing another Ozone treatment.

> This too shall pass.

>

> I just am always so humbled to learn just how sick I have been and

the

> various layers to getting healthy is quite astonishing. Many people

> taking Low Dose Naltrexone see a total connection with something

> called Hering's Law of Cure. In a nutshell it's about when one gets

> cured- the symptoms cure in a reverse order of how they appear. I

> will write a post about Hering's soon. It enlightened me.

>

> Big hugs.. and thank you all for your support.

>

> Jodi

>

[Guest guest]

In a message dated 3/20/2009 3:37:41 P.M. US Mountain Standard Time,

hollywood_dreams67@... writes:

I still wake up gasping for beath at night, and my chest hurts. It is also

something that doesn't happen every night. But why would I wake up so suddenly

actually feeling like I haven't had air and sucking in as much air as I can

if I don't have this. I also feel like I am not breathing good when I wake up

like my asthma is acting up. Not weezing but labored breathing.

Have you been diagnosed with Babesia??? This symptom you describe sounds

like " air hunger " which is very common with those suffering with Babesia?? You

might get your doc to prescribe some oxygen for you to sleep with at

night....it is frightening when you wake up from " air hunger " .....

Angel Huggzzzz

or Angel

[Guest guest]

Thank You. I guess I have to call my LLMD. He wouldn't tell me which

co-infection I have this time.

********This tells me he didn't record " any/all " of your

co-infections....they do that to stay under the Licensing Board radar....THIS IS

WRONG.....PLUS,

you have a RIGHT to a copy of your chart and to know what diagnosis he gives

you....if he refuses then I would either change doctors or report him to the

Med. Licensing board for non-compliance with a patient needs....

I know I tested positive for elechriosis, I am on a med for a co-infection

used to treat Maleria I don't remember which Co-infection that is but my doctor

told me the medication was for joint muscle pain. But I read that the

medication I am on is to treat co-infection.

********It is important that you know your COMPLETE diagnosis....I go to

patient appointments with many chronically ill patients (the doctors are not

happy with that, as I remind them of the patient rights).....if you are in a

health PLAN or on medicaid then you have a right to file a complaint/FIRE and

change doctors....I just got a doctor removed from a plan here in ARIzona.....he

thought I was stupid, but I proved to him that his patients have RIGHTS and

IF he chooses to NOT follow the law, then he would be removed from every plan

I found him in as I had records of his screw-UP.....Doctors are NOT

God.....luckily, we find GOOD doctors, but those docs that are idiots and treat

patients badly, need to be called on the carpet for this and shame on them if

I'm

a patient advocate for a patient that sees him/her.

I have had lyme for ten years and been inadiquitely treated. I am supposed

to go to LLMD April 1st again if I can get there.

Angel Huggzzzz

or Angel

_www.lymecommunity.com_ (http://www.lymecommunity.com)

[Guest guest]

Thank You. I guess I have to call my LLMD. He wouldn't tell me which

co-infection I have this time. I know I tested positive for elechriosis, I am

on a med for a co-infection used to treat Maleria I don't remember which

Co-infection that is but my doctor told me the medication was for joint muscle

pain. But I read that the medication I am on is to treat co-infection.

I have had lyme for ten years and been inadiquitely treated. I am supposed to

go to LLMD April 1st again if I can get there.

>

>

> In a message dated 3/20/2009 3:37:41 P.M. US Mountain Standard Time,

> hollywood_dreams67@... writes:

>

> I still wake up gasping for beath at night, and my chest hurts. It is also

> something that doesn't happen every night. But why would I wake up so suddenly

> actually feeling like I haven't had air and sucking in as much air as I can

> if I don't have this. I also feel like I am not breathing good when I wake up

> like my asthma is acting up. Not weezing but labored breathing.

>

>

>

> Have you been diagnosed with Babesia??? This symptom you describe sounds

> like " air hunger " which is very common with those suffering with Babesia??

You

> might get your doc to prescribe some oxygen for you to sleep with at

> night....it is frightening when you wake up from " air hunger " .....

>

> Angel Huggzzzz

> or Angel

>

[Guest guest]

yeah? well i think the malleria one is babesia... And hopefully your LLMD appt.

goes welll and med.s work!!

Elaina

From: hollywood_dreams67 <hollywood_dreams67@...>

Subject: [ ] Re: Update

Date: Saturday, March 21, 2009, 6:18 PM

Thank You. I guess I have to call my LLMD. He wouldn't tell me

which co-infection I have this time. I know I tested positive for elechriosis,

I am on a med for a co-infection used to treat Maleria I don't remember which

Co-infection that is but my doctor told me the medication was for joint muscle

pain. But I read that the medication I am on is to treat co-infection.

I have had lyme for ten years and been inadiquitely treated. I am supposed to

go to LLMD April 1st again if I can get there.

[Guest guest]

Dear Group,

 

Im a mother of a 2 year old baby with autism as per the doctors in Dubai. I

start ABA therapy with him since 02 months ago.  After therapy my son present

the following:

 

1. He gain some skills like building blocks, puzzle, matching objects, shapes,

photo and all this kind of games.

 

2. He replay to his name maybe 80 % of the time. His eye contact improve as

well, he give more hugs, he runs, walks and claiming, he handover diffrent

objects to us when request.

 

3. He likes to observe baby playing hes smiling at them but he doesn't now how

to interact with them.

 

4. He try to imitate what we are doing and he tris to interact or to play with

us by showing us what he wants.

 

5. He doesn't speak until this moment i did his hearing test and it was ok. \

 

6. He sleep sometimes well but sometimes his rolling so much in his sleep.

 

7. I put him in Cod liver as well and i try some Kirkaman products but since i

try with one vitamins liquid i dont have the name now with me he start to thru

up. So i don't know if i should give him or not.

 

8. His visual stim increase during last 02 weeks and this really concerns me. If

somebody can advise what i should do.

 

9. I change his diet from normal milk to soya milk and not im trying to put him

on rice milk.

 

Note: Also i want to mention that he has only 02 years but his tall like 5

years. I have as well a Little girl shes 03 months but shes like a 7 months old

baby. I stop giving her vaccine after Larry King show.

 

I require advise on  what toxin test i should do for my son and if somebody can

read this test for me. I try to find a DAN doctor in Dubai but until this moment

i could not find one.

 

 

I attached also a photo of my baby.

 Thank you

________________________________

From: Axe <badaboom@...>

Sent: Sunday, April 19, 2009 3:36:32 PM

Subject: [ ] Re:update

Congrats on the improvements in migraine from chelation! My son had those

effects also. Plus, we have used CoQ10, 100mg 4x a day for migraines, cranial

sacral and magnets. For pesticide exposure we use a combination of vitamin A in

cod liver oil and phosphadytlcholine to unblock the pathways in the brain

blocked by pesticides. It is so wonderful to hear of your successes.

[Guest guest]

Congrats on the improvements in migraine from chelation! My son had those

effects also. Plus, we have used CoQ10, 100mg 4x a day for migraines, cranial

sacral and magnets. For pesticide exposure we use a combination of vitamin A in

cod liver oil and phosphadytlcholine to unblock the pathways in the brain

blocked by pesticides. It is so wonderful to hear of your successes.

[Guest guest]

In the UK this is called Nebido and here is what men had to do to get started on

it.

=========================================================================

From what I have been reading about the R1000 is that it is best to have a

second shot at 6weeks then the one every 10 weeks using the whole 4ml of course

each shot.

=========================================================================

When the guys in the UK started on this they felt good after a week from the

shot but it did not last long and the Dr.'s were not yet up on how to use it.

So as time went on they were not happy with it. Until the Dr.'s started to the

shots as above.

Chrysin is a waste of money I have talked to men in your area that got Arimidex

to keep there Estradiol down. But I think they seen a privet Dr. still

Indolplex/DIM works good and on this big shot the guys in the UK had problems

with there Estradiol levels going up on this. And all they could do is DIM.

You need to do a Search on DIM in your area then give me a link on it so I can

tell you how to take it. Some DIM's that are not Indolplex get killed in the

stomach so if you take it with some oil it gets past this and work well. I tell

men to take it at dinner time in about 2 weeks or less you will get some strong

night time and morning wood this means your Estradiol is in the sweet spot keep

taking it but is wood stops your going down to low and this is just as bad as to

high. So stop the DIM until your wood comes back. Then that day go back on it

but take less.

In this link it tells you how to start on R1000.

http://www.medsafe.govt.nz/Consumers/cmi/r/reandron.htm

These links are the Indolplex/DIM I use the first one will send any where is the

world the last time I checked.

http://www.ritecare.com/prodsheets/PHY-15336.html

There are a lot of brands wth Indolplex in them.

http://www.vitaglo.com/e5336.html

This link talks a lot about how DIM works.

http://www.energeticnutrition.com/vitalzym/dim.html

At my Men's Only Thyroid forum a women from you country posts to me Lethal Lee

she might be of some help to you finding things.

At this link she in her sig is a co mod at a web site talk to here tell her Phil

sent you.

http://forums.realthyroidhelp.com/viewtopic.php?f=5 & t=8829

Co-Moderator

Phil

> From: Shaun <shaun.repacholi@...>

> Subject: update

>

> Date: Monday, July 13, 2009, 9:56 AM

> Hi Phill. I had my appointment with

> the urologist today and he changed me over from the Gel to

> the testostone shots. He put me on Reandron 1000, which is

> done every 10-12 weeks. I went and got it done today and

> christ did it hurt, dont know if its tolerable actually, but

> at least its only once every 3 months. Now my question is,

> when should i start seeing the benefits of it? So far i feel

> abit warmer, bit stronger but no increased sex drive or

> anything like that. Is reandron in your opinion any good or

> not? Also what dosage of DIM should i be taking and when and

> how often do you take it? and Chrysin is it in your opinon

> of any value, have you in your experience found it worked

> for people or is a waste of money? would i be better off

> just buyinh more DIM than bothering with Chrysin, and does

> it lower estodial? Urologist is suspecting also that i might

> be hypo pituitary as my LH and FSH are in the lower end of

> the normal bracket, what other tests are good in determining

> if your are hypo p? i have normal Aldosterone but slightly

> elevated renin. My TSH is suppressed but i am on armour so

> thats normal. So any other tests you can think of advise me

> and i'll get my alternative prac to do them. THanks heaps

> for the advice. Shaun.

>

>

>

> ------------------------------------

>

>

[Guest guest]

Phill i just been using the Source Naturals DIM that iherb carries. Here is a

link for it http://www.iherb.com/DIM-100-mg-60-Tablets/1460?at=0 I do all my

shopping at iherb so its just conveniant to get it from here along with the rest

of my stuff. So at night i take how much mgs of DIM you think and do i do this

before or after i eat? How much oil do i take to make it work? Thank Shaun.

[Guest guest]

I have never used this but you can try it take 2 one with morning meal and one

at dinner. If it works you will get some night time and morning wood this means

it is working and your at you best levels for Estradiol. Get some TMG also take

this at bedtime it helps your liver wash out the E's that get converted from the

Estradiol using DIM. If later your wood stops this can mean your going down to

low on your Estradiol so stop the DIM until your wood comes back that day go

back on it but take less. If you find this dose not work and it comes in caps

open them and put it in a tsp then add some Olive oil to it take it this way so

your stomach will not kill it.

Co-Moderator

Phil

> From: Shaun Repacholi <shaun.repacholi@...>

> Subject: Re: update

>

> Date: Tuesday, July 14, 2009, 12:20 AM

> Phill i just been using the Source

> Naturals DIM that iherb carries. Here is a link for it

http://www.iherb.com/DIM-100-mg-60-Tablets/1460?at=0 I

> do all my shopping at iherb so its just conveniant to get it

> from here along with the rest of my stuff. So at night i

> take how much mgs of DIM you think and do i do this before

> or after i eat? How much oil do i take to make it work?

> Thank Shaun.

>

>

[Guest guest]

If you are unhappy with this one, husband gets this at iHerb, same formula as

the one Phil recommended (sorry about the pink must be the women's box...)

http://www.iherb.com/Enzymatic-Therapy-EstroBalance-with-DIM-60-Tablets/2166?at=\

0

>

> Phill i just been using the Source Naturals DIM that iherb carries. Here is a

link for it http://www.iherb.com/DIM-100-mg-60-Tablets/1460?at=0 I do all my

shopping at iherb so its just conveniant to get it from here along with the rest

of my stuff. So at night i take how much mgs of DIM you think and do i do this

before or after i eat? How much oil do i take to make it work? Thank Shaun.

>

>

[Guest guest]

Just throwing this out:

http://www.swansonvitamins.com/SWU119/ItemDetail?n=4294967191

________________________________

From: jeff_cline2003 <jc2wd@...>

Sent: Friday, July 17, 2009 8:03:37 PM

Subject: Re: update

 

If you are unhappy with this one, husband gets this at iHerb, same formula as

the one Phil recommended (sorry about the pink must be the women's box...)

http://www.iherb. com/Enzymatic- Therapy-EstroBal ance-with- DIM-60-Tablets/

2166?at=0

>

> Phill i just been using the Source Naturals DIM that iherb carries. Here is a

link for it http://www.iherb. com/DIM-100- mg-60-Tablets/ 1460?at=0 I do all my

shopping at iherb so its just conveniant to get it from here along with the rest

of my stuff. So at night i take how much mgs of DIM you think and do i do this

before or after i eat? How much oil do i take to make it work? Thank Shaun.

>

>

[Guest guest]

How's everything going Sherry? I'm behind reading emails but thought I would ask so I don't forget! I hope school gets started ok for you.

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) update

Hello everyone, I finally made the move with my children to NC, it was very dramatic and the drama has managed to follow me, however on the plus side my son who has AS/ADHD/Seizure Disorder is doing remarkable well and seems to really be relaxed here. My boyfriend came to the house we rented and managed to go thru my purse and find an application for an apartment here in NC, he then went thru my emails and found where i had posted to you all and had sent some to my family, he blew up and would not allow me to get my or my children's things so i managed to call 911 to have someone assist me but they could not make him give me my things any how i basically got a few of there things and our clothing but the majority of our things included pictures of my children and family and artwork the children have made over the years, got left behind, i then had to take my children to the local women's shelter in PA, we were there for 2 days and then made the move

here. I went to the shelter on monday july20 and left for NC on july 22 and recieved information by phone that last week someone reported to CYS that my son has been fondling his 13 yr old sister, i of course was outraged and so is my daughter, her response was i am sick of all these people telling lies. CYS in pa of course referred us to children services here but no one has contacted me. IN the meantime the man who so calls loves me so much and would do everything for me and my children has continually emailed my mother saying some rather vulgar things to her and blaming her for me leaving him. he sent her 14 emails yesterday, she is saving them as i should have done with the ones he sent to me because she said if children services contacts me i can show them what has been going on. i wasnt thinking protection for me, the emails were a sign of giving in to him and i felt in order to stay strong deleting was the best option, sorry Roxanna the one thing

you have always told us is to keep a paper trail for protection, my mind went blank for the past 2 wks. I did get the 2 children signed up for school and feel pretty confident school is going to be great for them, i am doing my best to keep myself together but all this crap is putting added strain on me. Please keep us in your prayers as we really need them at this time. sherry

[Guest guest]

Joe this is great news and I can add more if your going to do this high dose do

it 2x's a week or every 3 days this will hold down the problems that happen

doing a higher dose. Like thicker blood and high levels of Estradiol. Your

sore in the gym tells me even with good wood your Estradiol levels might be to

low this happens when levels are low you get sore joints and muscles and in time

will suffer bone loss test this keep a log on your labs the dose your doing of

Arimidex and your wood. Figure out how you feel going to high like sore and

hard nipples or looking red on the upper parts of your body and head. Rashes on

the side of your body under you arms and feelings of anxiety. Going to low you

can't get it up taking Viagra but you can still have good wood and be on the low

side. Testing SHBG helps to know what your levels need to be at if your on the

low side of SHBG like me at 20 then you can keep your Estradiol lower 15 to 20

pg/ml. When I get

over 20 near 25 I have feelings of being to high when I am below 15 I lose

wood.

Doing shots every 3 days for me keeps me leveled good and holds down Estradiol

and I take a baby aspirin every 12 hrs. If you go to shots of T every 3 days do

70 mgs I would also add some HCG in to the mix doing 250 IU's the 2 days each in

between your T shots. Or do shots 2x's a week and HCG 250 IU the day before

your next T shot.

I use a small 27g 1ml x 1/2 " lg. needle to do both shots so I shoot everyday.

The oil comes out of the vile slow so I just pull the plunger all the way down

and hold it until I get my dose or a little more then I need I then push it back

in the vile until I have my dose. I shoot into my thigh one leg one day the

next leg the next day using a different spot each time just off the top of my

leg off to the out side.

Co-Moderator

Phil

> From: noonanjg <jgnoonan@...>

> Subject: Update

>

> Date: Thursday, September 24, 2009, 10:10 AM

> The Arimidex regimen that Phil

> recommended seems to be working perfectly.  I take

> .25mg ever two days and my night time and morning erections

> have returned and ED issues have disappeared.  My endo

> lowered my dose of T shots to 100 mg per week, and I haven't

> felt as good as when they were 175mg a week.  She had

> me go to a hemotologist because of the high hematocrit, and

> he ran some tests to check for a genetic disorder first, but

> that came back negative so he is going to do period blood

> draws to control the problem.  He called my endo and

> told her to bounce me back to the 175 which they did

> today.  My levels were excellent at this dose except

> for estradiol, which is now under control by the

> Arimidex.  So after 2 years of struggling with an

> incompetent PCP, I finally feel the treatment is in the

> groove.  I'm back at the gym doing 40 minutes of cardio

> 3x a week and lifting weights although I will say since

> starting on the Arimidex, I am experiencing bone pain when I

> lift and can't seem to lift as much.  I would chalk it

> up to age, but I'm only 48.

>

> In any case, I would not be at this point without the

> excellent advice from this group.  I've really taken

> control of the situation thanks to the excellent advice I

> get here.  Thanks for all your help.

>

> Joe

>

>

>

> ------------------------------------

>

>

[Guest guest]

Joe this is great news and I am so happy for you. As for a pituitary tumor yes

it needs to be checked but most don't need sugary or have a problem with it

growing. And as we age it will age with you and not work as well as it did when

you were younger. So like myself I have had Hypopituitary problems for over 27

yrs only knew about it in the last 4 yrs but it shows up in my labs over the yrs

as I get up in age I am finding more problems do to my pituitary not working as

good as it did when I first injured it up until 5 yrs ago I did not have low

Cortisol, Thyroid, Iron and Aldosterone problems. Now we are finding my growth

hormone levels are going down this will be the next thing I need to treat.

So you need to keep on top of this problem just when you think your all tuned up

something will or can happen.

Co-Moderator

Phil

> From: noonanjg <jgnoonan@...>

> Subject: Update

>

> Date: Wednesday, September 30, 2009, 9:40 AM

> Phil:  Your description of the

> Arimidex cycle is spot on.  I stopped for 2 days, the

> erections returned, then I started on .25 mg every two

> days.  I noticed that on the day I took the pill, the

> following morning's erection was not as strong so I am now

> taking it every three days and that seems to work

> perfectly.  I am really surprised at how my body is

> reacting to such a small dose, but if it works, who am I to

> argue!

>

> On a secondary note, I had to see my gastroenterologist

> about an unrelated matter and he thought I should at least

> have a consult about the pituitary tumor.  He said that

> monitoring its growth is not wise since it will grow and

> damage more of the pituitary and that it should be

> treated.  He referred me to " the best pituitary guy in

> CT, possibly in the Eastern US " .  They are waiting for

> my docs from my endo and then will set up an

> appointment.  I'll keep you posted on how that goes.

>

> To those folks new to this board, listen to what folks like

> Phil and others have to say.  They have a lot of

> experience and they have not steered me wrong yet.  I

> am in a whole better place now than I was in January thanks

> to Phil and others on this board.

>

> Joe

>

>

>

> ------------------------------------

>

>

[Guest guest]

I hear you. One of the concerns I have is that over the last month, my appetite

has grown tremendously. It's like I'm always hungry and it made me wonder about

Cushings. Another question I have for you is hair growth. In the last couple

of months, my hair and nails are growing like weeds. It's unbelievable. I know

some guys on the board have talked about losing hair, but my problem is the

opposite. It's growing on my head, my back, my shoulders, everywhere. Any

insight into that? Is this common with TRT?

Joe

>

> > From: noonanjg <jgnoonan@...>

> > Subject: Update

> >

> > Date: Wednesday, September 30, 2009, 9:40 AM

> > Phil:  Your description of the

> > Arimidex cycle is spot on.  I stopped for 2 days, the

> > erections returned, then I started on .25 mg every two

> > days.  I noticed that on the day I took the pill, the

> > following morning's erection was not as strong so I am now

> > taking it every three days and that seems to work

> > perfectly.  I am really surprised at how my body is

> > reacting to such a small dose, but if it works, who am I to

> > argue!

> >

> > On a secondary note, I had to see my gastroenterologist

> > about an unrelated matter and he thought I should at least

> > have a consult about the pituitary tumor.  He said that

> > monitoring its growth is not wise since it will grow and

> > damage more of the pituitary and that it should be

> > treated.  He referred me to " the best pituitary guy in

> > CT, possibly in the Eastern US " .  They are waiting for

> > my docs from my endo and then will set up an

> > appointment.  I'll keep you posted on how that goes.

> >

> > To those folks new to this board, listen to what folks like

> > Phil and others have to say.  They have a lot of

> > experience and they have not steered me wrong yet.  I

> > am in a whole better place now than I was in January thanks

> > to Phil and others on this board.

> >

> > Joe

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Yes this happens and the appetite is a problem for some when you feel better you

feel like eating then when one feels fatigued the eat more to feel better. Just

keep an eye on your weight I put on a lot of weight not knowing about this.

Today I go to Weight Watchers to keep my weight down it's a constant battle for

me.

Co-Moderator

Phil

> From: noonanjg <jgnoonan@...>

> Subject: Re: Update

>

> Date: Wednesday, September 30, 2009, 1:25 PM

> I hear you.  One of the concerns

> I have is that over the last month, my appetite has grown

> tremendously.  It's like I'm always hungry and it made

> me wonder about Cushings.  Another question I have for

> you is hair growth.  In the last couple of months, my

> hair and nails are growing like weeds.  It's

> unbelievable.  I know some guys on the board have

> talked about losing hair, but my problem is the

> opposite.  It's growing on my head, my back, my

> shoulders, everywhere.  Any insight into that?  Is

> this common with TRT?

>

> Joe

>

>

> >

> > > From: noonanjg <jgnoonan@...>

> > > Subject: Update

> > >

> > > Date: Wednesday, September 30, 2009, 9:40 AM

> > > Phil:  Your description of the

> > > Arimidex cycle is spot on.  I stopped for 2

> days, the

> > > erections returned, then I started on .25 mg

> every two

> > > days.  I noticed that on the day I took the

> pill, the

> > > following morning's erection was not as strong so

> I am now

> > > taking it every three days and that seems to

> work

> > > perfectly.  I am really surprised at how my body

> is

> > > reacting to such a small dose, but if it works,

> who am I to

> > > argue!

> > >

> > > On a secondary note, I had to see my

> gastroenterologist

> > > about an unrelated matter and he thought I should

> at least

> > > have a consult about the pituitary tumor.  He

> said that

> > > monitoring its growth is not wise since it will

> grow and

> > > damage more of the pituitary and that it should

> be

> > > treated.  He referred me to " the best pituitary

> guy in

> > > CT, possibly in the Eastern US " .  They are

> waiting for

> > > my docs from my endo and then will set up an

> > > appointment.  I'll keep you posted on how that

> goes.

> > >

> > > To those folks new to this board, listen to what

> folks like

> > > Phil and others have to say.  They have a lot

> of

> > > experience and they have not steered me wrong

> yet.  I

> > > am in a whole better place now than I was in

> January thanks

> > > to Phil and others on this board.

> > >

> > > Joe

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

I have been able to get off adex for over 12 weeks by incorporating a few

theories which I put to the test. So far a large number of guys are followin

suite and their IGF-1 levels are going up like crazy plus lipid profile is

looking perfect vs being all distorted from the adex.

>

> Phil: Your description of the Arimidex cycle is spot on. I stopped for 2

days, the erections returned, then I started on .25 mg every two days. I

noticed that on the day I took the pill, the following morning's erection was

not as strong so I am now taking it every three days and that seems to work

perfectly. I am really surprised at how my body is reacting to such a small

dose, but if it works, who am I to argue!

>

> On a secondary note, I had to see my gastroenterologist about an unrelated

matter and he thought I should at least have a consult about the pituitary

tumor. He said that monitoring its growth is not wise since it will grow and

damage more of the pituitary and that it should be treated. He referred me to

" the best pituitary guy in CT, possibly in the Eastern US " . They are waiting

for my docs from my endo and then will set up an appointment. I'll keep you

posted on how that goes.

>

> To those folks new to this board, listen to what folks like Phil and others

have to say. They have a lot of experience and they have not steered me wrong

yet. I am in a whole better place now than I was in January thanks to Phil and

others on this board.

>

> Joe

>

[Guest guest]

What are the theories HANS? I would love to have my IGF-1 levels to go up.

________________________________

From: hardasnails1973 <hardasnails1973@...>

Sent: Wednesday, September 30, 2009 6:40:19 PM

Subject: Re: Update

 

I have been able to get off adex for over 12 weeks by incorporating a few

theories which I put to the test. So far a large number of guys are followin

suite and their IGF-1 levels are going up like crazy plus lipid profile is

looking perfect vs being all distorted from the adex.

>

> Phil: Your description of the Arimidex cycle is spot on. I stopped for 2 days,

the erections returned, then I started on .25 mg every two days. I noticed that

on the day I took the pill, the following morning's erection was not as strong

so I am now taking it every three days and that seems to work perfectly. I am

really surprised at how my body is reacting to such a small dose, but if it

works, who am I to argue!

>

> On a secondary note, I had to see my gastroenterologist about an unrelated

matter and he thought I should at least have a consult about the pituitary

tumor. He said that monitoring its growth is not wise since it will grow and

damage more of the pituitary and that it should be treated. He referred me to

" the best pituitary guy in CT, possibly in the Eastern US " . They are waiting for

my docs from my endo and then will set up an appointment. I'll keep you posted

on how that goes.

>

> To those folks new to this board, listen to what folks like Phil and others

have to say. They have a lot of experience and they have not steered me wrong

yet. I am in a whole better place now than I was in January thanks to Phil and

others on this board.

>

> Joe

>

[Guest guest]

I had read around the TB site one time and they said it was an allergy to

something in the vaccine...so don't worry...hopefully yours will be something

like that.

Suzanne Woodring <agapesue@...>

________________________________

From: Janice <booksbyjanice@...>

Thank you for your answers to my questions about skin-related issues

and headaches. I'm currently on fluocinonide for my scalp issues. Wish

I could say it was working. It does keep the problem subdued, so I

suppose that's good.