suggestions?

[Guest guest]

Dear Jenna:

Welcome to the group. Yes, I was recently diagnosed as well and

started the pred. treatment. I started eating everything in the

house and my emotions were, as you say, a rollercoster. I finally

decided to take antidepressants and it has helped immensley. I'm

taking effexor xr. As others will tell you, the pred. has to be

tapered very slowly, so as not to experience very bad side effects.

My dr. started tapering me by 10mg. every two weeks until I got to

20mg. and now 5 mg every two weeks. Some say that is still a fast

decrease.

As for the fatique, I don't know what to tell you. That is the most

common side effect of our disease. I'm still plaqued by it and find

myself having to take a nap after being up only four hours. I will

write more later, as my cat wants on the computer.

Love,

Rhonda/TN

> Hi All,

>

> I was diagnosed with Autoimmune Chronic Active Hepatitis about 4

> months ago. I was quickly started on 80mg of prednisone. 2 of my

> liver enzymes were through the roof between 10 and 15 times as

high

> as normal levels, hence the extremly high dose of prednisone. I

> gradually came down to 10mg over a period of about 3 months and

had a

> horrible reaction to being so low. I am currently back up to

50mg.

> The high doses of prednisone have really messed with my head,

body,

> and emotions. I was wondering if anyone has any suggestions as to

> how to deal with the lack of concentration, emotional

rollercoaster,

> and depression which I have heard are all side effects of this

> wonderful drug. I have also gained a decent amount of weight in

the

> past few months and have had zero energy to exercise. Does anyone

> know of any effective exercises that don't require too much

energy?

> Thanks so much for your help.

>

> Jenna

[Guest guest]

Jenna,

Your reactions sound only too familiar to those of us w/AIH. The horrible

reaction to 10 mg is unfortunately only too common and not easy to deal

with. The unfortunate answer from my experience is you just have to do it. I

advise now that you are back on 50, start an exercise routine and force

yourself to continue as you work your way down. The only one I could

maintain as I bottomed out was walking & swimming. My heart goes out to you.

Hand in there,

Patty AIN 1982, Tx 1998.

----Original Message-----

From: brownie_jenna [mailto:brownie_jenna@...]

Sent: Sunday, July 14, 2002 11:47 AM

Subject: [ ] Suggestions?

Hi All,

I was diagnosed with Autoimmune Chronic Active Hepatitis about 4

months ago. I was quickly started on 80mg of prednisone. 2 of my

liver enzymes were through the roof between 10 and 15 times as high

as normal levels, hence the extremly high dose of prednisone. I

gradually came down to 10mg over a period of about 3 months and had a

horrible reaction to being so low. I am currently back up to 50mg.

The high doses of prednisone have really messed with my head, body,

and emotions. I was wondering if anyone has any suggestions as to

how to deal with the lack of concentration, emotional rollercoaster,

and depression which I have heard are all side effects of this

wonderful drug. I have also gained a decent amount of weight in the

past few months and have had zero energy to exercise. Does anyone

know of any effective exercises that don't require too much energy?

Thanks so much for your help.

Jenna

[Guest guest]

Dear Jenna, I am sorry you are suffering so. Unfortunately, Prednisone is one of those meds that they give you the dose in part by body weight, so it is a bit of a vicious cycle, if you weigh more, you get give more steroid, which makes you gain more weight. As I mentioned in a previous email, I went up 2-3 pant sizes (depending upon the brand of clothing!)...and basically had to buy a whole new wardrobe...the steroid gave me so much "false" energy that even after coming home from a long day's work, I wanted to clean house....but then I would sleep late (I almost always had to force myself to sleep...listened to environmental music tapes and all that to bring myself down), and wake up tired the next morning,until I took the Prednisone again, and the cycle would begin....And, as I tapered off the Prednisone, I would get body aches and feel so tired from my body adjusting to the reduction in Prednisone. There are a few suggestions I can make, from my experience and my experience only (and I am sure others have other suggestions for you), which would alleviate some symptoms: (a) Try to keep on the same schedule daily : Prednisone (steroid) causes our body to basically stop producing its own natural steroid, adrenal cortisol. So long term use does put a strain on our adrenal gland, which functions optimally when it rests between 10pm-7am (ie. the time when we should be in bed and sleeping); ( Do regular but mild/low-impact exercise - the best, in my opinion, is walking daily. Walking is easy, you can do it in natural and relaxing surroundings, so it is more enjoyable. If you do this, you could have healthy (as opposed to unhealthy) weight loss, which means they will reduce your prednisone, and which means you will gain less weight from less prednisone; © Eat a sensible and healthy diet : which means less fat, no fried foods, no refined sugars (because sugar makes you more tired, and causes mood swings on top of the side effect of prednisone); no caffeine, alcohol or nicotine (because these drain our adrenal glands) - if you're already addicted, try to quit gradually, like taking decaf or using patches, both for your adrenal/mood swing problem, as well as for your liver health; (d) Make sure you eat every 3 hours, because if you're hypoglycemic (low blood sugar, it has been described as a silent disease cos most people dont know they have it), you can become depressed. When I saw eat, I dont mean an entire meal. I mean a small snack, preferably protein. Have a bite of a protein bar. (e) Have your thyroid checked. Normal range is 1-5, but per naturopaths, the optimal is 1.5. Also, make sure not only to check the TSH, but also the T3 and T4, because sometimes the TSH (which is the ratio of T3 and T4) looks normal, but individually the T3 and/or T4 might be too high or too low. (f) I suspect the common denominators in our disease are food allergies and hypoglycemia. But that's a separate research. I am not saying food allergies are the only reason for fatigue, but I am saying that they dont help with the tiredness that comes with the disease - so if you can stay away from them, I think you might feel the difference. If I think of anything else, I'll write you. But for now, please please get the rest you need in the hours of 10pm-7am, eat less of refined sugar, caffeine and nicotine, as well as other common food allergens (eg. lots of people are intolerant of wheat and dairy). Get tested, if you must. I'll be thinking of, and praying for you. hugs, aisha [ ] Re: Suggestions? > Hi All,> > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4 > months ago. I was quickly started on 80mg of prednisone. 2 of my > liver enzymes were through the roof between 10 and 15 times as high > as normal levels, hence the extremly high dose of prednisone. I > gradually came down to 10mg over a period of about 3 months and had a > horrible reaction to being so low. I am currently back up to 50mg. > The high doses of prednisone have really messed with my head, body, > and emotions. I was wondering if anyone has any suggestions as to > how to deal with the lack of concentration, emotional rollercoaster, > and depression which I have heard are all side effects of this > wonderful drug. I have also gained a decent amount of weight in the > past few months and have had zero energy to exercise. Does anyone > know of any effective exercises that don't require too much energy? > Thanks so much for your help.> > Jenna

[Guest guest]

Jenna,

I wish I had some wonderful suggestions. But the fatigue is something

to just have to get thru. Tapering down can be very rough in that way.

As for excercise, I wouldn't thing of any formal excercise. Just

daily activities should be enough while you get thru this. Possibly

some walking, swimming, maybe yoga, but only what you can tolerate.

Whatever you do, don't push it as that will only make the fatigue that

much worse. Especially if the prednisone " high " makes you feel hyper.

Don't let that fool you..it is like a false energy. Eat healthy,

rest as much as you can, use whatever organizational tools you can to

keep track of things (organizer, calendars, etc.), and tell those

closest to you that you cant always control the feelings. Having them

even trying to understand what you are going thru will help.

nne

> Hi All,

>

> I was diagnosed with Autoimmune Chronic Active Hepatitis about 4

> months ago. I was quickly started on 80mg of prednisone. 2 of my

> liver enzymes were through the roof between 10 and 15 times as high

> as normal levels, hence the extremly high dose of prednisone. I

> gradually came down to 10mg over a period of about 3 months and had a

> horrible reaction to being so low. I am currently back up to 50mg.

> The high doses of prednisone have really messed with my head, body,

> and emotions. I was wondering if anyone has any suggestions as to

> how to deal with the lack of concentration, emotional rollercoaster,

> and depression which I have heard are all side effects of this

> wonderful drug. I have also gained a decent amount of weight in the

> past few months and have had zero energy to exercise. Does anyone

> know of any effective exercises that don't require too much energy?

> Thanks so much for your help.

>

> Jenna

[Guest guest]

Aisha,

Thank you so much for your suggestions. I can't begin to tell you

how helpful it is to get advice from someone who knows what I

am going through. My family tries to understand and give

suggestions, but they really don't understand.

The false energy is something I really struggled with in the

beginning of my illness. I am a college student and it worked

wonders for my GPA to have so little sleep. I wouldn't be able to

sleep until 3am and I would wake up at 7am full of energy. I tried

so hard to get more sleep but my body wouldn't let me sleep for

more than 4 or 5 hours. I am now getting a lot more sleep and

my schedule is a lot more stable and healthy.

As far as diet changes go I have implemented a lot of them. Fat

was eliminated from my diet after I had my gallbladder removed

April '00. I can no longer break down complex fats so that is not

an issue in my weight gain. I cut caffeine out of my diet as well

because it made me really jittery.

I am not on high doses of prednisone because of my weight, I

only weighed 130lbs when I started prednisone. I am now

around 150lbs. I don't totally understand how I have gained so

much weight since I have such a low fat diet. I am sure that

walking will help me a lot. I used to walk a lot more, but since

school has let out for the summer I am not having to trek across

campus for classes. In the fall, I will be back up to walking about

5-10 miles per day. That will be fun :-) Thanks again for your

help, I really appreciate it.

Jenna

> > Hi All,

> >

> > I was diagnosed with Autoimmune Chronic Active Hepatitis

about 4

> > months ago. I was quickly started on 80mg of prednisone. 2

of my

> > liver enzymes were through the roof between 10 and 15

times as

> high

> > as normal levels, hence the extremly high dose of

prednisone. I

> > gradually came down to 10mg over a period of about 3

months and

> had a

> > horrible reaction to being so low. I am currently back up to

> 50mg.

> > The high doses of prednisone have really messed with my

head,

> body,

> > and emotions. I was wondering if anyone has any

suggestions as to

> > how to deal with the lack of concentration, emotional

> rollercoaster,

> > and depression which I have heard are all side effects of this

> > wonderful drug. I have also gained a decent amount of

weight in

> the

> > past few months and have had zero energy to exercise.

Does anyone

> > know of any effective exercises that don't require too much

> energy?

> > Thanks so much for your help.

> >

> > Jenna

>

>

>

>

[Guest guest]

Jenna, can you tell me why you eliminated fats from your diet after the gall bladder surgery? I had mine out and no one mentioned anything about it. I would like to know what you were told.

debby/calif

[ ] Re: suggestions?

Aisha, Thank you so much for your suggestions. I can't begin to tell you how helpful it is to get advice from someone who knows what I am going through. My family tries to understand and give suggestions, but they really don't understand. The false energy is something I really struggled with in the beginning of my illness. I am a college student and it worked wonders for my GPA to have so little sleep. I wouldn't be able to sleep until 3am and I would wake up at 7am full of energy. I tried so hard to get more sleep but my body wouldn't let me sleep for more than 4 or 5 hours. I am now getting a lot more sleep and my schedule is a lot more stable and healthy. As far as diet changes go I have implemented a lot of them. Fat was eliminated from my diet after I had my gallbladder removed April '00. I can no longer break down complex fats so that is not an issue in my weight gain. I cut caffeine out of my diet as well because it made me really jittery. I am not on high doses of prednisone because of my weight, I only weighed 130lbs when I started prednisone. I am now around 150lbs. I don't totally understand how I have gained so much weight since I have such a low fat diet. I am sure that walking will help me a lot. I used to walk a lot more, but since school has let out for the summer I am not having to trek across campus for classes. In the fall, I will be back up to walking about 5-10 miles per day. That will be fun :-) Thanks again for your help, I really appreciate it.Jenna> > Hi All,> > > > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4 > > months ago. I was quickly started on 80mg of prednisone. 2 of my > > liver enzymes were through the roof between 10 and 15 times as > high > > as normal levels, hence the extremly high dose of prednisone. I > > gradually came down to 10mg over a period of about 3 months and > had a > > horrible reaction to being so low. I am currently back up to > 50mg. > > The high doses of prednisone have really messed with my head, > body, > > and emotions. I was wondering if anyone has any suggestions as to > > how to deal with the lack of concentration, emotional > rollercoaster, > > and depression which I have heard are all side effects of this > > wonderful drug. I have also gained a decent amount of weight in > the > > past few months and have had zero energy to exercise. Does anyone > > know of any effective exercises that don't require too much > energy? > > Thanks so much for your help.> > > > Jenna> > > >

[Guest guest]

Hi Jenna, Welcome to our group, sorry it is because you too have AIH though. I was diagnosed in March of this year, so I am getting used to the fun experience of the predisone side effects. One week I gained 7 lbs, I was eating salads and other low calorie foods, but I could tell it was water gain, because after 10 days about 5-7 lbs came off almost as fast as I gained it. The ER doctor said a lot of what I was experiencing was water retention gain, he was so sweet, he patted me on the shoulder and felt bad when I told him I felt like the Pillsbury Dough Boy!!! I think you are going to do well at coping because you are working hard to learn as much as you can and you have the fighting spirit that is so important. God Bless.

Ruth

tdcc2000 <tdcc2000@...> wrote:

Jenna, can you tell me why you eliminated fats from your diet after the gall bladder surgery? I had mine out and no one mentioned anything about it. I would like to know what you were told.

debby/calif

[ ] Re: suggestions?

Aisha, Thank you so much for your suggestions. I can't begin to tell you how helpful it is to get advice from someone who knows what I am going through. My family tries to understand and give suggestions, but they really don't understand. The false energy is something I really struggled with in the beginning of my illness. I am a college student and it worked wonders for my GPA to have so little sleep. I wouldn't be able to sleep until 3am and I would wake up at 7am full of energy. I tried so hard to get more sleep but my body wouldn't let me sleep for more than 4 or 5 hours. I am now getting a lot more sleep and my schedule is a lot more stable and healthy. As far as diet changes go I have implemented a lot of them. Fat was eliminated from my diet after I had my gallbladder removed April '00. I can no longer break down complex fats so that is not an issue in my weight gain. I cut caffeine out of my diet as well because it made me really jittery. I am not on high doses of prednisone because of my weight, I only weighed 130lbs when I started prednisone. I am now around 150lbs. I don't totally understand how I have gained so much weight since I have such a low fat diet. I am sure that walking will help me a lot. I used to walk a lot more, but since school has let out for the summer I am not having to trek across campus for classes. In the fall, I will be back up to walking about 5-10 miles per day. That will be fun :-) Thanks again for your help, I really appreciate it.Jenna> > Hi All,> > > > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4 > > months ago. I was quickly started on 80mg of prednisone. 2 of my > > liver enzymes were through the roof between 10 and 15 times as > high > > as normal levels, hence the extremly high dose of prednisone. I > > gradually came down to 10mg over a period of about 3 months and > had a > > horrible reaction to being so low. I am currently back up to > 50mg. > > The high doses of prednisone have really messed with my head, > body, > > and emotions. I was wondering if anyone has any suggestions as to > > how to deal with the lack of concentration, emotional > rollercoaster, > > and depression which I have heard are all side effects of this > > wonderful drug. I have also gained a decent amount of weight in > the > > past few months and have had zero energy to exercise. Does anyone > > know of any effective exercises that don't require too much > energy? > > Thanks so much for your help.> > > > Jenna> > > >

[Guest guest]

Aisha Can I ask were you got all you information from I was impressed with every thing that you know. Are you a nurse or do you work in the medical proffesion. Jeanette UK AIH dx1998 Cirrhosis dx 2001.

aisha yeoh <aishayeoh@...> wrote:

Dear Jenna,

I am sorry you are suffering so. Unfortunately, Prednisone is one of those meds that they give you the dose in part by body weight, so it is a bit of a vicious cycle, if you weigh more, you get give more steroid, which makes you gain more weight. As I mentioned in a previous email, I went up 2-3 pant sizes (depending upon the brand of clothing!)...and basically had to buy a whole new wardrobe...the steroid gave me so much "false" energy that even after coming home from a long day's work, I wanted to clean house....but then I would sleep late (I almost always had to force myself to sleep...listened to environmental music tapes and all that to bring myself down), and wake up tired the next morning,until I took the Prednisone again, and the cycle would begin....And, as I tapered off the Prednisone, I would get body aches and feel so tired from my body adjusting to the reduction in Prednisone.

There are a few suggestions I can make, from my experience and my experience only (and I am sure others have other suggestions for you), which would alleviate some symptoms:

(a) Try to keep on the same schedule daily : Prednisone (steroid) causes our body to basically stop producing its own natural steroid, adrenal cortisol. So long term use does put a strain on our adrenal gland, which functions optimally when it rests between 10pm-7am (ie. the time when we should be in bed and sleeping);

( Do regular but mild/low-impact exercise - the best, in my opinion, is walking daily. Walking is easy, you can do it in natural and relaxing surroundings, so it is more enjoyable. If you do this, you could have healthy (as opposed to unhealthy) weight loss, which means they will reduce your prednisone, and which means you will gain less weight from less prednisone;

© Eat a sensible and healthy diet : which means less fat, no fried foods, no refined sugars (because sugar makes you more tired, and causes mood swings on top of the side effect of prednisone); no caffeine, alcohol or nicotine (because these drain our adrenal glands) - if you're already addicted, try to quit gradually, like taking decaf or using patches, both for your adrenal/mood swing problem, as well as for your liver health;

(d) Make sure you eat every 3 hours, because if you're hypoglycemic (low blood sugar, it has been described as a silent disease cos most people dont know they have it), you can become depressed. When I saw eat, I dont mean an entire meal. I mean a small snack, preferably protein. Have a bite of a protein bar.

(e) Have your thyroid checked. Normal range is 1-5, but per naturopaths, the optimal is 1.5. Also, make sure not only to check the TSH, but also the T3 and T4, because sometimes the TSH (which is the ratio of T3 and T4) looks normal, but individually the T3 and/or T4 might be too high or too low.

(f) I suspect the common denominators in our disease are food allergies and hypoglycemia. But that's a separate research. I am not saying food allergies are the only reason for fatigue, but I am saying that they dont help with the tiredness that comes with the disease - so if you can stay away from them, I think you might feel the difference.

If I think of anything else, I'll write you. But for now, please please get the rest you need in the hours of 10pm-7am, eat less of refined sugar, caffeine and nicotine, as well as other common food allergens (eg. lots of people are intolerant of wheat and dairy). Get tested, if you must.

I'll be thinking of, and praying for you.

hugs, aisha

[ ] Re: Suggestions?

> Hi All,> > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4 > months ago. I was quickly started on 80mg of prednisone. 2 of my > liver enzymes were through the roof between 10 and 15 times as high > as normal levels, hence the extremly high dose of prednisone. I > gradually came down to 10mg over a period of about 3 months and had a > horrible reaction to being so low. I am currently back up to 50mg. > The high doses of prednisone have really messed with my head, body, > and emotions. I was wondering if anyone has any suggestions as to > how to deal with the lack of concentration, emotional rollercoaster, > and depression which I have heard are all side effects of this > wonderful drug. I have also gained a decent amount of weight in the > past few months and have had zero energy to exercise. Does anyone > know of any effective exercises that don't require too much energy? > Thanks so much for your help.> > Jenna

[Guest guest]

Hi Jeanette,

I am learning, like everyone else. I read alot, like everyone else, and we

learn from what we read. We also learn a lot from others' experience, just

as you do me, and I do you. I learned a lot from my roommate who was

diagnosed with the following (pretty much in this order): chronic fatigue

syndrome (1992), asthma (1995), Hashimoto's autoimmune thyroid (1996),

fibromyalgia (1997), irritable bowel syndrome (1998). She went through 15

doctors before she finally found one who diagnosed her properly, and treated

her thyroid and other problems, and brought the symptoms under control so

that she has as much of a normal life (working 5-6 days a week) as a person

with those problems possibly can.

And, of course, she watches her diet, no wheat, sugar, little dairy, minimal

red meat. Half gallon water daily. Try to have good bowel movements

everyday. Glass of carrot juice daily. Her biggest battle now is quitting

smoking. So, I learned a lot from her. In fact, when I had the worst

eczema ever in Dec 1995, m was so red and peeling and painful people thought

I looked like something from another planet, and she took me to her doctor

and it turned out to be a thyroid problem (who'd have guess it) and a lack

of good EFAs like flax seed oil (which I ingest daily now).

Anyhow, I learned from people, still learning from people, and from my own

experience, from reading books, asking my doctors questions that aren't

always even directly related to my problem, try to be well-informed patient

who tries to understand her own body (as I noticed all of us are doing the

same thing also), and reading websites like Web MD looking up things I dont

understand.

But, as they say, experience is the greatest teacher. And it looks like

almost everyone else in the group has had this disease longer, and some have

multiple autoimmune diseases, so I am privileged to be learning from all

these other experienced people in the group.

It was nice to hear from you personally. Thanks for being on the journey to

discovery and recovery with me, and with all of us.

love and hugs,

aisha

>From: Jeanette Carpenter <jeanette_cuk@...>

>Reply-

>

>Subject: Re: [ ] Re: Suggestions?

>Date: Mon, 15 Jul 2002 15:58:39 +0100 (BST)

>

>

>Aisha Can I ask were you got all you information from I was impressed with

>every thing that you know. Are you a nurse or do you work in the medical

>proffesion. Jeanette UK AIH dx1998 Cirrhosis dx 2001.

> aisha yeoh <aishayeoh@...> wrote: Dear Jenna, I am sorry you are

>suffering so. Unfortunately, Prednisone is one of those meds that they

>give you the dose in part by body weight, so it is a bit of a vicious

>cycle, if you weigh more, you get give more steroid, which makes you gain

>more weight. As I mentioned in a previous email, I went up 2-3 pant sizes

>(depending upon the brand of clothing!)...and basically had to buy a whole

>new wardrobe...the steroid gave me so much " false " energy that even after

>coming home from a long day's work, I wanted to clean house....but then I

>would sleep late (I almost always had to force myself to sleep...listened

>to environmental music tapes and all that to bring myself down), and wake

>up tired the next morning,until I took the Prednisone again, and the cycle

>would begin....And, as I tapered off the Prednisone, I would get body aches

>and feel so tired from my body adjusting to the reduction in Prednisone.

>There are a few suggestions I can make, from my experience and my

>experience only (and I am sure others have other suggestions for you),

>which would alleviate some symptoms: (a) Try to keep on the same schedule

>daily : Prednisone (steroid) causes our body to basically stop producing

>its own natural steroid, adrenal cortisol. So long term use does put a

>strain on our adrenal gland, which functions optimally when it rests

>between 10pm-7am (ie. the time when we should be in bed and sleeping); (

>Do regular but mild/low-impact exercise - the best, in my opinion, is

>walking daily. Walking is easy, you can do it in natural and relaxing

>surroundings, so it is more enjoyable. If you do this, you could have

>healthy (as opposed to unhealthy) weight loss, which means they will reduce

>your prednisone, and which means you will gain less weight from less

>prednisone; © Eat a sensible and healthy diet : which means less fat, no

>fried foods, no refined sugars (because sugar makes you more tired, and

>causes mood swings on top of the side effect of prednisone); no caffeine,

>alcohol or nicotine (because these drain our adrenal glands) - if you're

>already addicted, try to quit gradually, like taking decaf or using

>patches, both for your adrenal/mood swing problem, as well as for your

>liver health; (d) Make sure you eat every 3 hours, because if you're

>hypoglycemic (low blood sugar, it has been described as a silent disease

>cos most people dont know they have it), you can become depressed. When I

>saw eat, I dont mean an entire meal. I mean a small snack, preferably

>protein. Have a bite of a protein bar. (e) Have your thyroid checked.

>Normal range is 1-5, but per naturopaths, the optimal is 1.5. Also, make

>sure not only to check the TSH, but also the T3 and T4, because sometimes

>the TSH (which is the ratio of T3 and T4) looks normal, but individually

>the T3 and/or T4 might be too high or too low. (f) I suspect the common

>denominators in our disease are food allergies and hypoglycemia. But

>that's a separate research. I am not saying food allergies are the only

>reason for fatigue, but I am saying that they dont help with the tiredness

>that comes with the disease - so if you can stay away from them, I think

>you might feel the difference. If I think of anything else, I'll write you.

> But for now, please please get the rest you need in the hours of

>10pm-7am, eat less of refined sugar, caffeine and nicotine, as well as

>other common food allergens (eg. lots of people are intolerant of wheat and

>dairy). Get tested, if you must. I'll be thinking of, and praying for you.

>hugs, aisha ----- Original Message -----From: savedbybunniesSent: Sunday,

>July 14, 2002 9:44 AM @...:

>[ ] Re: Suggestions?

> > Hi All,

> >

> > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4

> > months ago. I was quickly started on 80mg of prednisone. 2 of my

> > liver enzymes were through the roof between 10 and 15 times as

>high

> > as normal levels, hence the extremly high dose of prednisone. I

> > gradually came down to 10mg over a period of about 3 months and

>had a

> > horrible reaction to being so low. I am currently back up to

>50mg.

> > The high doses of prednisone have really messed with my head,

>body,

> > and emotions. I was wondering if anyone has any suggestions as to

> > how to deal with the lack of concentration, emotional

>rollercoaster,

> > and depression which I have heard are all side effects of this

> > wonderful drug. I have also gained a decent amount of weight in

>the

> > past few months and have had zero energy to exercise. Does anyone

> > know of any effective exercises that don't require too much

>energy?

> > Thanks so much for your help.

> >

> > Jenna

>

>

>

>

[Guest guest]

Patty,

It's my understanding that if you have your gallbladder removed some may have

difficulties digesting fatty foods but not all. I think it is just an

individual thing and if it doesn't bother you its ok not to limit fats.

Maybe someone else can give more info.

[Guest guest]

Debbie/Jenna,

I don't have one either when the give you a transplanted liver they remove and do not replace you own... I don't watch fats at all... Should I?

Patty

NOTE: Sounds like I am a pig, I don't mean I eat fried food, I mean I eat ice cream and the occcasional snickers.

-----Original Message-----From: tdcc2000 [mailto:tdcc2000@...]Sent: Monday, July 15, 2002 1:09 AM Subject: Re: [ ] Re: suggestions?

Jenna, can you tell me why you eliminated fats from your diet after the gall bladder surgery? I had mine out and no one mentioned anything about it. I would like to know what you were told.

debby/calif

[ ] Re: suggestions?

Aisha, Thank you so much for your suggestions. I can't begin to tell you how helpful it is to get advice from someone who knows what I am going through. My family tries to understand and give suggestions, but they really don't understand. The false energy is something I really struggled with in the beginning of my illness. I am a college student and it worked wonders for my GPA to have so little sleep. I wouldn't be able to sleep until 3am and I would wake up at 7am full of energy. I tried so hard to get more sleep but my body wouldn't let me sleep for more than 4 or 5 hours. I am now getting a lot more sleep and my schedule is a lot more stable and healthy. As far as diet changes go I have implemented a lot of them. Fat was eliminated from my diet after I had my gallbladder removed April '00. I can no longer break down complex fats so that is not an issue in my weight gain. I cut caffeine out of my diet as well because it made me really jittery. I am not on high doses of prednisone because of my weight, I only weighed 130lbs when I started prednisone. I am now around 150lbs. I don't totally understand how I have gained so much weight since I have such a low fat diet. I am sure that walking will help me a lot. I used to walk a lot more, but since school has let out for the summer I am not having to trek across campus for classes. In the fall, I will be back up to walking about 5-10 miles per day. That will be fun :-) Thanks again for your help, I really appreciate it.Jenna> > Hi All,> > > > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4 > > months ago. I was quickly started on 80mg of prednisone. 2 of my > > liver enzymes were through the roof between 10 and 15 times as > high > > as normal levels, hence the extremly high dose of prednisone. I > > gradually came down to 10mg over a period of about 3 months and > had a > > horrible reaction to being so low. I am currently back up to > 50mg. > > The high doses of prednisone have really messed with my head, > body, > > and emotions. I was wondering if anyone has any suggestions as to > > how to deal with the lack of concentration, emotional > rollercoaster, > > and depression which I have heard are all side effects of this > > wonderful drug. I have also gained a decent amount of weight in > the > > past few months and have had zero energy to exercise. Does anyone > > know of any effective exercises that don't require too much > energy? > > Thanks so much for your help.> > > > Jenna> > > >

[Guest guest]

Patty, I try to watch my fat intake simply because I need to. I have heard from others who have had their gall bladder out that they have severe diarrhea after their surgery. But I already had that problem before surgery. Sometimes, when I have bad diarrhea, I think maybe I have eaten too much....just depends on each person, I believe.

Actually, according to statistics, we should limit our intake of fats...not eliminate it totally, but watch it.

debby

[ ] Re: suggestions?

Aisha, Thank you so much for your suggestions. I can't begin to tell you how helpful it is to get advice from someone who knows what I am going through. My family tries to understand and give suggestions, but they really don't understand. The false energy is something I really struggled with in the beginning of my illness. I am a college student and it worked wonders for my GPA to have so little sleep. I wouldn't be able to sleep until 3am and I would wake up at 7am full of energy. I tried so hard to get more sleep but my body wouldn't let me sleep for more than 4 or 5 hours. I am now getting a lot more sleep and my schedule is a lot more stable and healthy. As far as diet changes go I have implemented a lot of them. Fat was eliminated from my diet after I had my gallbladder removed April '00. I can no longer break down complex fats so that is not an issue in my weight gain. I cut caffeine out of my diet as well because it made me really jittery. I am not on high doses of prednisone because of my weight, I only weighed 130lbs when I started prednisone. I am now around 150lbs. I don't totally understand how I have gained so much weight since I have such a low fat diet. I am sure that walking will help me a lot. I used to walk a lot more, but since school has let out for the summer I am not having to trek across campus for classes. In the fall, I will be back up to walking about 5-10 miles per day. That will be fun :-) Thanks again for your help, I really appreciate it.Jenna> > Hi All,> > > > I was diagnosed with Autoimmune Chronic Active Hepatitis about 4 > > months ago. I was quickly started on 80mg of prednisone. 2 of my > > liver enzymes were through the roof between 10 and 15 times as > high > > as normal levels, hence the extremly high dose of prednisone. I > > gradually came down to 10mg over a period of about 3 months and > had a > > horrible reaction to being so low. I am currently back up to > 50mg. > > The high doses of prednisone have really messed with my head, > body, > > and emotions. I was wondering if anyone has any suggestions as to > > how to deal with the lack of concentration, emotional > rollercoaster, > > and depression which I have heard are all side effects of this > > wonderful drug. I have also gained a decent amount of weight in > the > > past few months and have had zero energy to exercise. Does anyone > > know of any effective exercises that don't require too much > energy? > > Thanks so much for your help.> > > > Jenna> > > >

[Guest guest]

I have had my son, 5 years old, on the GAPS diet for about 6 months as

well as a food avoidance diet based on allergy/sensitivity testing for

one year. After stool analysis showed a high level of yeast, he was

on a 2 month course of Nystatin to get rid of the yeast in Feb/March

of this year. A recent blood analysis in May shows that while

numerous food sensitivities have healed, he now has a new ones,

probably because I didn't rotate foods in his diet enough. Basically,

his gut is still leaky. I'm doing all the recommended supplements

with him - probiotics, cod liver oil, digestive enzymes.

I'm curious what kind of time frames people are seeing for healing

their guts because I'm feeling a bit frustrated. A friend of mine

told me that the gut should be able to heal in about 3 months so I'm

curious what could be holding him back?

Any thoughts are appreciated.

[Guest guest]

Is he getting gelatin from broths? I heard from Dr. NCM that broth is

not optional, that it is required because it has the building blocks

needed to repair the gut. We've been on GAPS diet for 9 months and

have seen improvements, but still have allergies. My son is 6.He does

not drink broth at all. We recently purchased some Dr Jensen's

gelatin, and have started adding this to some of his foods which

hopefully will give him more building blocks to repair himself. He

only gets a little broth when we sneak it into things. So hopefully

this will help.

[Guest guest]

I've been making the bone-in chicken broth from the GAPS book and he really likes this but probably only eats a couple of bowls of this a week. I could try and get him to eat more, as it does seem to help. Another tricky thing is that his blood work shows he's become sensitive to almonds now, and I was making his bread out of almond flour, per the GAPS protocol. He's no longer sensitive to wheat but I understand it's important to be grain free to heal the gut. I'm running out of options since he's sensitive to pecan and coconut. On Jul 5, 2009, at 7:32 AM, Malewicz wrote:Is he getting gelatin from broths? I heard from Dr. NCM that broth is not optional, that it is required because it has the building blocks needed to repair the gut. We've been on GAPS diet for 9 months and have seen improvements, but still have allergies. My son is 6.He does not drink broth at all. We recently purchased some Dr Jensen's gelatin, and have started adding this to some of his foods which hopefully will give him more building blocks to repair himself. He only gets a little broth when we sneak it into things. So hopefully this will help.=

[Guest guest]

Doesn’t the nystatin contribute in a major way to gut problems?

I thought I had read that somewhere. I believe there are some natural alternatives

such as genitian violet to try first? Though, this may only be for thrush.

I actually thought that the gaps book said that it takes 1-2

years to fully heal the gut.

From:

[mailto: ] On Behalf Of us

Sent: Sunday, July 05, 2009 1:19 AM

Subject: [ ] suggestions?

I have had my son, 5 years old, on the GAPS diet for about 6 months as

well as a food avoidance diet based on allergy/sensitivity testing for

one year. After stool analysis showed a high level of yeast, he was

on a 2 month course of Nystatin to get rid of the yeast in Feb/March

of this year. A recent blood analysis in May shows that while

numerous food sensitivities have healed, he now has a new ones,

probably because I didn't rotate foods in his diet enough. Basically,

his gut is still leaky. I'm doing all the recommended supplements

with him - probiotics, cod liver oil, digestive enzymes.

I'm curious what kind of time frames people are seeing for healing

their guts because I'm feeling a bit frustrated. A friend of mine

told me that the gut should be able to heal in about 3 months so I'm

curious what could be holding him back?

Any thoughts are appreciated.

[Guest guest]

----- Original Message -----

From: Malewicz

===> we had a little one who wouldn't drink broth either. We put stock instead of water in roasts along with carrots, onions and potatoes and other meats to cook them, made her noodles cooked in broth, then drained the noodles, added broth to meatloaf and put it in spaghetti sauce and of course, soup. She did not eat the liquid part of the soup, just the meat and vegetables. Enough gets in to make a difference.

Is he getting gelatin from broths? I heard from Dr. NCM that broth is not optional, that it is required because it has the building blocks needed to repair the gut. We've been on GAPS diet for 9 months and have seen improvements, but still have allergies. My son is 6.He does not drink broth at all. We recently purchased some Dr Jensen's gelatin, and have started adding this to some of his foods which hopefully will give him more building blocks to repair himself. He only gets a little broth when we sneak it into things. So hopefully this will help.

[Guest guest]

It's tricky because the GAPS book states that the gut won't heal until the yeast is gone since it tunnels through the intestinal wall. I tried a number of natural ways to get rid of the yeast with my son's doctor but could never quite get rid of it. The Nystatin did wonders and it was after that course that we actually saw that he was beginning to absorb fats because the bumpy skin on his arms and legs resolved. Maybe since the yeast has only been gone since March that I need to re-set the clock for healing from that point.On Jul 5, 2009, at 10:08 AM, Head wrote:Doesn’t the nystatin contribute in a major way to gut problems? I thought I had read that somewhere. I believe there are some natural alternatives such as genitian violet to try first? Though, this may only be for thrush. I actually thought that the gaps book said that it takes 1-2 years to fully heal the gut. From: [mailto: ] On Behalf Of usSent: Sunday, July 05, 2009 1:19 AM Subject: [ ] suggestions? I have had my son, 5 years old, on the GAPS diet for about 6 months as well as a food avoidance diet based on allergy/sensitivity testing for one year. After stool analysis showed a high level of yeast, he was on a 2 month course of Nystatin to get rid of the yeast in Feb/March of this year. A recent blood analysis in May shows that while numerous food sensitivities have healed, he now has a new ones, probably because I didn't rotate foods in his diet enough. Basically, his gut is still leaky. I'm doing all the recommended supplements with him - probiotics, cod liver oil, digestive enzymes.I'm curious what kind of time frames people are seeing for healing their guts because I'm feeling a bit frustrated. A friend of mine told me that the gut should be able to heal in about 3 months so I'm curious what could be holding him back?Any thoughts are appreciated.=

[Guest guest]

Yes, please me how to sprout the nuts. If I sprout the nuts, can I then grind them into flour? This would be more work but really helpful.I have been allowing him to eat a small portion of sprouted wheat once a week for the last couple of weeks.On Jul 5, 2009, at 10:01 AM, Head wrote:Have you tried sprouting the almonds or pecans first? That may make a real difference as it removes the philates, breaks down the enzymes and turns it into a living food more easily digested? You can also sprout the wheat as it turns it so the body processes it more like a vegetable versus a grain. From: [mailto: ] On Behalf Of usSent: Sunday, July 05, 2009 11:16 AM Subject: Re: [ ] Re:suggestions? I've been making the bone-in chicken broth from the GAPS book and he really likes this but probably only eats a couple of bowls of this a week. I could try and get him to eat more, as it does seem to help. Another tricky thing is that his blood work shows he's become sensitive to almonds now, and I was making his bread out of almond flour, per the GAPS protocol. He's no longer sensitive to wheat but I understand it's important to be grain free to heal the gut. I'm running out of options since he's sensitive to pecan and coconut. On Jul 5, 2009, at 7:32 AM, Malewicz wrote: Is he getting gelatin from broths? I heard from Dr. NCM that broth is not optional, that it is required because it has the building blocks needed to repair the gut. We've been on GAPS diet for 9 months and have seen improvements, but still have allergies. My son is 6.He does not drink broth at all. We recently purchased some Dr Jensen's gelatin, and have started adding this to some of his foods which hopefully will give him more building blocks to repair himself. He only gets a little broth when we sneak it into things. So hopefully this will help. ==

[Guest guest]

It's my understanding that Nystatin isn't broken down in the gut or absorbed into the body at all but does make the liver work pretty hard which is taxing on those with leaky gut.On Jul 5, 2009, at 10:08 AM, Head wrote:Doesn’t the nystatin contribute in a major way to gut problems? I thought I had read that somewhere. I believe there are some natural alternatives such as genitian violet to try first? Though, this may only be for thrush. I actually thought that the gaps book said that it takes 1-2 years to fully heal the gut. From: [mailto: ] On Behalf Of usSent: Sunday, July 05, 2009 1:19 AM Subject: [ ] suggestions? I have had my son, 5 years old, on the GAPS diet for about 6 months as well as a food avoidance diet based on allergy/sensitivity testing for one year. After stool analysis showed a high level of yeast, he was on a 2 month course of Nystatin to get rid of the yeast in Feb/March of this year. A recent blood analysis in May shows that while numerous food sensitivities have healed, he now has a new ones, probably because I didn't rotate foods in his diet enough. Basically, his gut is still leaky. I'm doing all the recommended supplements with him - probiotics, cod liver oil, digestive enzymes.I'm curious what kind of time frames people are seeing for healing their guts because I'm feeling a bit frustrated. A friend of mine told me that the gut should be able to heal in about 3 months so I'm curious what could be holding him back?Any thoughts are appreciated.=

[Guest guest]

This is why I gave up on the Gaps diet. Three months after starting the diet, my daughter's blood work showed antibodies reacting to many of the Gaps diet foods; almonds, cashews, coconut . . . damm! Her ND wasn't surprised and said that's why he prefers a rotating diet and thinks the Gaps diet still needs fine tuning.So we've made adjustments based on the realization that we are all so unique and one size doesn't fit all. Having such a restrictive diet was depressing my daughter and stressing the hell out of me - not a good thing. We kept on with bone broth. Aside from weekly soup dinners. I add it to any dishes that needs a little liquid. Store bought (unsweetened) Kefir, and yogurt doesn't bother her. Brown rice (cooked in bone broth) and red potatoes (in moderation) don't seem to bother her as well. Enzymes, probiotics and Chinese herbal teas are also consumed.Top of my list is JUICING. Results are so immediate - very powerful healing tool.In Health,ClareOn Jul 5, 2009, at 8:15 AM, us wrote: I've been making the bone-in chicken broth from the GAPS book and he really likes this but probably only eats a couple of bowls of this a week. I could try and get him to eat more, as it does seem to help. Another tricky thing is that his blood work shows he's become sensitive to almonds now, and I was making his bread out of almond flour, per the GAPS protocol. He's no longer sensitive to wheat but I understand it's important to be grain free to heal the gut. I'm running out of options since he's sensitive to pecan and coconut. On Jul 5, 2009, at 7:32 AM, Malewicz wrote:Is he getting gelatin from broths? I heard from Dr. NCM that broth is not optional, that it is required because it has the building blocks needed to repair the gut. We've been on GAPS diet for 9 months and have seen improvements, but still have allergies. My son is 6.He does not drink broth at all. We recently purchased some Dr Jensen's gelatin, and have started adding this to some of his foods which hopefully will give him more building blocks to repair himself. He only gets a little broth when we sneak it into things. So hopefully this will help.=

[Guest guest]

Clare, Could you please tell me more about juicing? It is also recommended in the GAPS diet but I haven't yet pursued this. Can you recommend a juicer? And a book on juicing? What juices do you find healing?Thanks.On Jul 5, 2009, at 5:25 PM, Clare Metague wrote:This is why I gave up on the Gaps diet. Three months after starting the diet, my daughter's blood work showed antibodies reacting to many of the Gaps diet foods; almonds, cashews, coconut . . . damm! Her ND wasn't surprised and said that's why he prefers a rotating diet and thinks the Gaps diet still needs fine tuning.So we've made adjustments based on the realization that we are all so unique and one size doesn't fit all. Having such a restrictive diet was depressing my daughter and stressing the hell out of me - not a good thing. We kept on with bone broth. Aside from weekly soup dinners. I add it to any dishes that needs a little liquid. Store bought (unsweetened) Kefir, and yogurt doesn't bother her. Brown rice (cooked in bone broth) and red potatoes (in moderation) don't seem to bother her as well. Enzymes, probiotics and Chinese herbal teas are also consumed.Top of my list is JUICING. Results are so immediate - very powerful healing tool.In Health,ClareOn Jul 5, 2009, at 8:15 AM, us wrote:I've been making the bone-in chicken broth from the GAPS book and he really likes this but probably only eats a couple of bowls of this a week. I could try and get him to eat more, as it does seem to help. Another tricky thing is that his blood work shows he's become sensitive to almonds now, and I was making his bread out of almond flour, per the GAPS protocol. He's no longer sensitive to wheat but I understand it's important to be grain free to heal the gut. I'm running out of options since he's sensitive to pecan and coconut. On Jul 5, 2009, at 7:32 AM, Malewicz wrote:Is he getting gelatin from broths? I heard from Dr. NCM that broth is not optional, that it is required because it has the building blocks needed to repair the gut. We've been on GAPS diet for 9 months and have seen improvements, but still have allergies. My son is 6.He does not drink broth at all. We recently purchased some Dr Jensen's gelatin, and have started adding this to some of his foods which hopefully will give him more building blocks to repair himself. He only gets a little broth when we sneak it into things. So hopefully this will help.==

[Guest guest]

I don’t have one (I wish) but I heard the vitamixer is good. It is

a professional thing that can make soups and juice and all kinds of thing and

less waste.

From:

[mailto: ] On

Behalf Of us

Sent: Sunday, July 05, 2009 9:38 PM

Subject: Re: [ ] Re:suggestions?

Clare,

Could you please tell me more about juicing? It is

also recommended in the GAPS diet but I haven't yet pursued this. Can you

recommend a juicer? And a book on juicing? What juices do you find

healing?

Thanks.

On Jul 5, 2009, at 5:25 PM, Clare Metague wrote:

This is why I gave up on the Gaps diet. Three months after

starting the diet, my daughter's blood work showed antibodies reacting to many

of the Gaps diet foods; almonds, cashews, coconut . . . damm! Her ND wasn't

surprised and said that's why he prefers a rotating diet and thinks the Gaps

diet still needs fine tuning.

So we've made

adjustments based on the realization that we are all so unique and one size

doesn't fit all. Having such a restrictive diet was depressing my daughter and

stressing the hell out of me - not a good thing.

We kept on with bone

broth. Aside from weekly soup dinners. I add it

to any dishes that needs a little liquid. Store bought (unsweetened) Kefir, and

yogurt doesn't bother her. Brown rice (cooked in bone broth) and red potatoes

(in moderation) don't seem to bother her as well. Enzymes, probiotics and

Chinese herbal teas are also consumed.

Top of my list is JUICING.

Results are so immediate - very powerful healing tool.

In Health,

Clare

On Jul 5, 2009, at 8:15 AM,

us wrote:

I've been making the bone-in chicken broth from the GAPS book and

he really likes this but probably only eats a couple of bowls of this a week.

I could try and get him to eat more, as it does seem to help.

Another tricky thing is that

his blood work shows he's become sensitive to almonds now, and I was making his

bread out of almond flour, per the GAPS protocol. He's no longer

sensitive to wheat but I understand it's important to be grain free to heal the

gut. I'm running out of options since he's sensitive to pecan and

coconut.

On Jul 5, 2009, at 7:32 AM,

Malewicz wrote:

Is he getting gelatin from broths? I heard from Dr. NCM that broth

is

not optional, that it is required because it has the building blocks

needed to repair the gut. We've been on GAPS diet for 9 months and

have seen improvements, but still have allergies. My son is 6.He does

not drink broth at all. We recently purchased some Dr Jensen's

gelatin, and have started adding this to some of his foods which

hopefully will give him more building blocks to repair himself. He

only gets a little broth when we sneak it into things. So hopefully

this will help.

=

=

[Guest guest]

You can do a little search on sprouting for some visuals. There

is good stuff on you-tube. Basically, though, you just put whatever you are

sprouting in a mason jar with a little screen on top of some sort to keep

anything from getting in there except air. (They sell sprouters, but not

necessary) Then, you rinse it off at various times. Depending on temperature

etc. different things take different amounts of time to sprout. Yu want it when

the sprout is just a little – they say to taste to know when it is a good

flavor. As for nuts – you may even have some luck with just soaking over night

in salt water and then dehydrating them as that alone can break down the

enzymes etc..As for dehydrating, you can do it in the oven, but it takes a long

time (so cant use oven) and also most new ovens wont go to a low enough temp.

you can probably get a dehydrator on craigs list. Most people into sprouting

seem to recommend the American harvest one by nesco, though. Then, to make

flour you would just grind it in a grain mill (they do sell an attachment for kitchen

aid mixers too). A spice grinder may work for small amounts and to get you

started to see if it is something you want to continue with. There are a bunch

of recipes online if you do a search or check some peoples blog sites like

cheeseslave. You do want to only grind what you are going to use as it doesn’t stay

well. You can store the sprouts in the fridge for about a week. They will keep

growing once refrigerated but not as quickly. Its more work, but you could

make a few loaves of bread etc. and then freeze them so you don’t have to do it

as often or whatever. Too, doing it yourself is less expensive – minus the

equipment needed, though. Hope that helps, let me know if I have missed

anything. There are some very step-by-step directions on you-tube that will

provide visuals on sprouting – that is how I learnedJ.

From:

[mailto: ] On

Behalf Of us

Sent: Sunday, July 05, 2009 3:54 PM

Subject: Re: [ ] Re:suggestions?

Yes, please me how to sprout the nuts. If I sprout the nuts, can I

then grind them into flour? This would be more work but really helpful.

I have been

allowing him to eat a small portion of sprouted wheat once a week for the last couple of weeks.

On Jul 5, 2009, at 10:01 AM, Head wrote:

Have you tried

sprouting the almonds or pecans first? That may make a real difference as it

removes the philates, breaks down the enzymes and turns it into a living food

more easily digested? You can also sprout the wheat as it turns it so the body

processes it more like a vegetable versus a grain.

From: [mailto: ] On Behalf Of us

Sent: Sunday, July 05,

2009 11:16 AM

Subject: Re:

[ ] Re:suggestions?

I've been making the bone-in chicken broth from the GAPS book and

he really likes this but probably only eats a couple of bowls of this a week.

I could try and get him to eat more, as it does seem to help.

Another tricky thing is that his

blood work shows he's become sensitive to almonds now, and I was making his

bread out of almond flour, per the GAPS protocol. He's no longer

sensitive to wheat but I understand it's important to be grain free to heal the

gut. I'm running out of options since he's sensitive to pecan and

coconut.

On Jul 5, 2009, at 7:32 AM,

Malewicz wrote:

Is he getting gelatin from broths? I heard from Dr. NCM that broth

is

not optional, that it is required because it has the building blocks

needed to repair the gut. We've been on GAPS diet for 9 months and

have seen improvements, but still have allergies. My son is 6.He does

not drink broth at all. We recently purchased some Dr Jensen's

gelatin, and have started adding this to some of his foods which

hopefully will give him more building blocks to repair himself. He

only gets a little broth when we sneak it into things. So hopefully

this will help.

=

=

[Guest guest]

Is there a way besides a blood test to check for yeast? How do I

know if I have too much yeast, I wonder? It is a common problem, istn it?

From:

[mailto: ] On

Behalf Of us

Sent: Sunday, July 05, 2009 3:50 PM

Subject: Re: [ ] suggestions?

It's tricky because the GAPS book states that the gut won't heal until the

yeast is gone since it tunnels through the intestinal wall. I tried a

number of natural ways to get rid of the yeast with my son's doctor but could

never quite get rid of it. The Nystatin did wonders and it was after that

course that we actually saw that he was beginning to absorb fats because the

bumpy skin on his arms and legs resolved. Maybe since the yeast has only

been gone since March that I need to re-set the clock for healing from that

point.

On Jul 5, 2009, at 10:08 AM, Head wrote:

Doesn’t the

nystatin contribute in a major way to gut problems? I thought I had read that

somewhere. I believe there are some natural alternatives such as genitian

violet to try first? Though, this may only be for thrush.

I actually

thought that the gaps book said that it takes 1-2 years to fully heal the gut.

From: [mailto: ] On Behalf Of us

Sent: Sunday, July 05,

2009 1:19 AM

Subject: [ ]

suggestions?

I have had my son, 5 years old, on the GAPS diet for about 6

months as

well as a food avoidance diet based on allergy/sensitivity testing for

one year. After stool analysis showed a high level of yeast, he was

on a 2 month course of Nystatin to get rid of the yeast in Feb/March

of this year. A recent blood analysis in May shows that while

numerous food sensitivities have healed, he now has a new ones,

probably because I didn't rotate foods in his diet enough. Basically,

his gut is still leaky. I'm doing all the recommended supplements

with him - probiotics, cod liver oil, digestive enzymes.

I'm curious what kind of time frames people are seeing for healing

their guts because I'm feeling a bit frustrated. A friend of mine

told me that the gut should be able to heal in about 3 months so I'm

curious what could be holding him back?

Any thoughts are appreciated.

=