Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 Thanks to all who lend some advice or thier opinion. I guess what really got to me was that he saw the reg pt last year and she did well. She knows him well enough that I did not expect her to say go along with the student PT. I do think this student Pt needs more experience in special needs children. My son has had epilepsy since he was 1 1/2. Epilepsy or not I always think its important to not hit your head. yes, accidents do happen. With this pt it could have been prevented. My son is also being tested for mitrochondrial disease as he has little energy. Pushing him further will only cause meltdowns and muscle aches. It also seems to make the myoclonus jerks worse. He is also going through things that his legs swell up. I'm not really sure he even needs pt. He mainly goes just for hypotonia and excersie intolerence. At pt they usually don't do anything but work on him alternating steps, riding a bike, playing on playground equipment, and doing range of motion, all of which that can be done at home. We have discussed putting him in Karate and Little Gym. He probably would get the same effect from that. I really only need their eval so his doc's know how he is doing energy wise, and how his hypotonia is doing. I am still undecided if I am going back there. My husband says he would like to go with!!! I checked on other pt's and if we have to pay out of pocket ,we are willing just so he is treated fairly. Thank you all so much for being a listening ear and I pray for all of you and your families. Our children are going to be some great people that set the world to better expectations. Take care:) Quote Link to comment Share on other sites More sharing options...
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