dr visit

[Guest guest]

Hello all. Went back to my dr today due to eye 'floaters' , and bell's

palsy. I took alot of Lyme info with me to back me up. She did a lot of

bloodwork and while I was there, she called the neurologist and he said that

yes, it sounded like it probably was Lyme disease causing all of my symptoms.

So I got started on Augmentin 875 mg twice a day for 28 days. The neuro doc

is gonna talk with his partners to see if they think I need to be on IV drugs

, I hope not, but at this point I am willing to do whatever it takes to beat

these bugs! I also got all of the suppliments that Dr.B recommended. So wish

me luck, I finnaly feel like I am getting somewhere with the docs and am

hopefully gonna get better. Since I have not been on antibotics for longer

than a week, I have not had a 'herx' When will I be getting this?? a week, 2

weeks??? Well I am rambling here! Heres to a better day tomarrow!

Deb

[Guest guest]

Hi Deb,

So glad you found a receptive doctor. That is half the battle. If I

were you I would give the IV meds some consideration, as they may be the

opportunity to knock those germs out of your system. It is really difficult

to pin point when a herx will begin when one is on oral meds, it can be a

few days to a few weeks, but you will know when it hits you, you will feel

about 10 times worse than when you started the meds, so if you can, get

yourself ready for some bedrest. Benedryl helps me if the symptoms are bad,

as well as pain meds. If you feel too badly contact your doctor. I had

floaters and the bells palsy symptoms early in my disease, very annoying,

but they did go away with abx treatment,

Best to you and keep us posted,

Hugs,

Marta NJ

>From: DJinMECH@...

>

>Hello all. Went back to my dr today due to eye 'floaters' , and bell's

>palsy. I took alot of Lyme info with me to back me up. She did a lot of

>bloodwork and while I was there, she called the neurologist and he said

that

>yes, it sounded like it probably was Lyme disease causing all of my

symptoms.

> So I got started on Augmentin 875 mg twice a day for 28 days. The neuro

doc

>is gonna talk with his partners to see if they think I need to be on IV

drugs

>, I hope not, but at this point I am willing to do whatever it takes to

beat

>these bugs! I also got all of the suppliments that Dr.B recommended. So

wish

>me luck, I finnaly feel like I am getting somewhere with the docs and am

>hopefully gonna get better. Since I have not been on antibotics for longer

>than a week, I have not had a 'herx' When will I be getting this?? a week,

2

>weeks??? Well I am rambling here! Heres to a better day tomarrow!

>Deb

[Guest guest]

Are you sure it was Free T looks like Total T to me and this is dam low what are

you using for TRT. You need to post your ranges when you post a test result.

Any why what ever your labs range is you need to be in the upper 1/3 of the labs

range for Total and Free T. Also your Dr. needs to check your Estradiol " E2 "

if it is high it will keep you down on TRT. 341 is not even normal for a 100

yr. old man. Go to www.allthingsmale.com and read TRT : A Recipe for Success

and the HCG Update print this out and give it to your Dr. and tell him you want

to try this. I say this because I don't feel your Dr. is up on Tresting low T.

or treating it I hope before you went on TRT your Dr. did all the tests in the

TRT link. You need to find out why your low before going on T meds. After you

go on them everything shuts down your testis stop making T and it is hard to

find out why your low. If your Dr. will not work with you ask him if he will

work with Dr. over the phone if he will you

will be in good shape in no time.

Phil

ogarchamplin <gripperm@...> wrote:

Today I went back to the family doc and got my free testosterone

levels. It went from 114 to 341 in 3 months. He said that it was now

high enough but I disagree. Also I had asked him to check my DHEA

levels and he did not because he told me that He did not need those

numbers. I am 37 years old what do you all think?

[Guest guest]

He did none of the tests that I asked. I read the book by Dr. Shippen

and told him what all needed tested and he said it was a waste. It

might of been total test but my old doc before I moved wanted my

numbers around 800..this guy said once you get above 240 then you are

normal. I went from 10 grams of AndroGel a day to 5 grams when I

moved and got this doc because he felt 10 grams was too much.

> Today I went back to the family doc and got my free testosterone

> levels. It went from 114 to 341 in 3 months. He said that it was now

> high enough but I disagree. Also I had asked him to check my DHEA

> levels and he did not because he told me that He did not need those

> numbers. I am 37 years old what do you all think?

>

>

>

>

>

>

>

>

>

[Guest guest]

OH and to make matters worse I have been tired in the afternoon and I

use a CPAP and I said that I was wondering if the AndroGel was making

my sleep apena worse and he said " No androgel has no side effect on

sleep apena " but three months ago he was the one who told me that I

should keep an eye out because of AndroGel and Sleep Apena

> Today I went back to the family doc and got my free testosterone

> levels. It went from 114 to 341 in 3 months. He said that it was now

> high enough but I disagree. Also I had asked him to check my DHEA

> levels and he did not because he told me that He did not need those

> numbers. I am 37 years old what do you all think?

>

>

>

>

>

>

>

>

>

[Guest guest]

Well you do know what you need to do so do go to the files section and read

Finding a Male Hormone Dr. Then go to this site and click on Find a Dr. and

then put in your state. Start calling and ask questions like how many men dose

the Dr. treat for low T and if he checks for the tests you feel you need also

ask if he tests for high Estradiol and if one is high does he use arimidex to

get and keep it down. Ask if the Dr. uses HCG to help keep the testis working

because they are not getting the LH and FSH message to make more T because one

is on TRT. You will know when you have found a good Dr. At this site a lot of

Dr.'s singed up on it but are not up on low T.

http://www.tuneupyourt.com/

Also for the latest on TRT go to this site www.allthingsmale.com and read TRT:

A Recipe for Success and the HCG Update print this and tell the new Dr. you want

to try this. If they are not comfortable doing this ask if they will work with

Dr. over the phone. Tell them you want the best treatment you can get.

Phil

ogarchamplin <gripperm@...> wrote:

He did none of the tests that I asked. I read the book by Dr. Shippen

and told him what all needed tested and he said it was a waste. It

might of been total test but my old doc before I moved wanted my

numbers around 800..this guy said once you get above 240 then you are

normal. I went from 10 grams of AndroGel a day to 5 grams when I

moved and got this doc because he felt 10 grams was too much.

> Today I went back to the family doc and got my free testosterone

> levels. It went from 114 to 341 in 3 months. He said that it was now

> high enough but I disagree. Also I had asked him to check my DHEA

> levels and he did not because he told me that He did not need those

> numbers. I am 37 years old what do you all think?

>

>

>

>

>

>

>

>

>

[Guest guest]

Like I said you know what you need to do.

Phil

ogarchamplin <gripperm@...> wrote:

OH and to make matters worse I have been tired in the afternoon and I

use a CPAP and I said that I was wondering if the AndroGel was making

my sleep apena worse and he said " No androgel has no side effect on

sleep apena " but three months ago he was the one who told me that I

should keep an eye out because of AndroGel and Sleep Apena

> Today I went back to the family doc and got my free testosterone

> levels. It went from 114 to 341 in 3 months. He said that it was now

> high enough but I disagree. Also I had asked him to check my DHEA

> levels and he did not because he told me that He did not need those

> numbers. I am 37 years old what do you all think?

>

>

>

>

>

>

>

>

>

[Guest guest]

I would start looking for a new doctor...

> > Today I went back to the family doc and got my free testosterone

> > levels. It went from 114 to 341 in 3 months. He said that it was

now

> > high enough but I disagree. Also I had asked him to check my DHEA

> > levels and he did not because he told me that He did not need

those

> > numbers. I am 37 years old what do you all think?

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I'll pile-on this bandwagon. You need to find a new doctor. Any

doctor that knows anything about male TRT knows that being at 240+

is not the range you shoot for with TRT. Also, you need to get your

medical records from your previous doc, which from the sound of it

was much better for this type of problem. You might want to post

your general area to see if anyone reading these has a doctor in

their area that they know about.

It's true that some people can do just fine at 350 or 400 test but

it's not optimal and if you're shutting down your Hypothalamus

Pituitary Gonadal Axis with TRT you might as well get your T into

the optimal ranges rather than the bare minimums. Additionally,

people who are hypogonadal usually should get their T levels into

optimal ranges so the body can repair itself from the period of time

when T was low (i.e. bone growth, insulin management, etc.)

Proper TRT has very little affect on CPAP treated apnea. I was

diagnosed with moderate/sever Apnea prior to TRT and have seen no

increase in Apnea since starting TRT. I have a CPAP machine that

can detect and record apnea events which I can download to my

computer and review. So far no problem. I think the main worry

about Apnea and TRT is for people who are not being treated with

CPAP. I should say that if you feel like the Apnea symptoms are

returning you may want to ask for a referral to a sleep doc and get

retested. You should be re-titrated on your CPAP pressure every few

years anyhow. Using a CPAP machine with recording capabilities

would probably all you need to do to review your Apnea treatment

though.

Good Luck!

>

> OH and to make matters worse I have been tired in the afternoon

and I

> use a CPAP and I said that I was wondering if the AndroGel was

making

> my sleep apena worse and he said " No androgel has no side effect on

> sleep apena " but three months ago he was the one who told me that I

> should keep an eye out because of AndroGel and Sleep Apena

>

>

[Guest guest]

>

> He did none of the tests that I asked. I read the book by Dr. Shippen

> and told him what all needed tested and he said it was a waste. It

> might of been total test but my old doc before I moved wanted my

> numbers around 800..this guy said once you get above 240 then you are

> normal. I went from 10 grams of AndroGel a day to 5 grams when I

> moved and got this doc because he felt 10 grams was too much.

>

>

Most won't run tests unless the outcome would influence your course of

treatment.

With respect to the 240 issue,

http://www.labtestsonline.org/understanding/features/ref_ranges.html

should be required reading for those subjected to the tyranny of the

reference range.

Brad

[Guest guest]

i took my son for his six week paych visit today she up his meds from 2ml to 3ml

hes started haveing outburst again so were going to try and see if this will

help i think he may just have some anxity about starting school in three weeks i

go back on the tenth for a med recheck im hoping that one day we will leval out

enough to just go every six weeks so my question is how many of you have had to

change meds for your aspie and how many times also any one got any advise on how

to help him adjust to starting school " i think i may have more anxity about it

than he does "

[Guest guest]

What medication is he taking. yes, my daughter has been on many meds. Most work

for about a year and then they don't seem to help her anymore..I am hoping to

try Intuniv.

>

> i took my son for his six week paych visit today she up his meds from 2ml to

3ml hes started haveing outburst again so were going to try and see if this will

help i think he may just have some anxity about starting school in three weeks i

go back on the tenth for a med recheck im hoping that one day we will leval out

enough to just go every six weeks so my question is how many of you have had to

change meds for your aspie and how many times also any one got any advise on how

to help him adjust to starting school " i think i may have more anxity about it

than he does "

>

[Guest guest]

I have worked with Yale Parent and Child Clinic on helping

my daughter cope with returning to school after vacations

holidays and summer break. She has a gradul return plan in

her IEP so there is no more anxiety for her or me. She is able

to start back 2 hours a day, then increase it to half a day

if she is calm and so on.

We have the zoloft at 75mg but our child pscychiatrist is

not willing to increase this for outburts that may

be caused by anxiety. Once the panic was under control

that was it for increases.

She is very much in favor of behavior therapy to shape

calmer behaviors than using Rispedal at this point.

If you don't have a ASD behaviorist it may be helpful to you,

this is considered a proven treatment for ASD kids.

Pam

>

> i took my son for his six week paych visit today she up his meds from 2ml to

3ml hes started haveing outburst again so were going to try and see if this will

help i think he may just have some anxity about starting school in three weeks i

go back on the tenth for a med recheck im hoping that one day we will leval out

enough to just go every six weeks so my question is how many of you have had to

change meds for your aspie and how many times also any one got any advise on how

to help him adjust to starting school " i think i may have more anxity about it

than he does "

>

[Guest guest]

he takes citalopram right now i was kinda aginst it at first i reall didnt want

my son on and ssir or any kinda antidepresnt but i skiped a few days just to see

if things would change and he was s o hard to deal with but on the meds he tends

to have less meltdowns we still have a few which i understand will happen his

behavior is better also but he still has some major anixity and im real worried

about school he has a hard time being around more than five kids at one time he

has three other siblings and hes fine with that but if more than two of the

nighborhood kids come down its a nightmare. Hes very high functioning and

according to his kindergarten assment test he dosnt qulify for special education

but if he cant control himself he will be put in to kinda isolate him so he

dosnt hurt anyone but im affraid that he wont recive the kinda education that he

deserves in that case but i also dont want him hurting anyone so im not sure

what to do and im kinda stuck the school hes going to dosnt have any other

aspies and there arnt any resources in my area so everyone kinda looks at me

like what are we going do with him i have a meeting with the teacher befor

school so mayby we can come up with a plan

> >

> > i took my son for his six week paych visit today she up his meds from 2ml to

3ml hes started haveing outburst again so were going to try and see if this will

help i think he may just have some anxity about starting school in three weeks i

go back on the tenth for a med recheck im hoping that one day we will leval out

enough to just go every six weeks so my question is how many of you have had to

change meds for your aspie and how many times also any one got any advise on how

to help him adjust to starting school " i think i may have more anxity about it

than he does "

> >

>

[Guest guest]

My son takes a small does of Xanax when he gets anxious or stressed. He know now when he needs it and will ask for it. It is usually when he is going out with a friend or going to a friend's house. I don't think he would be able to do it without the help.

He is also on Adderall EX for ADHD. He doesn't take it much in the summer as he is not in school and the doctor wanted to give him a break.

He had been on Prozac when his poppy was dying but is off it now. And he does get a small dose of Geodon at night (helps him sleep too) for his anger. He doesn't have meltdowns or cry...he just gets angry and throws things or breaks something. The Geodon has helped a lot.

But, one think I know...is that you can not have your child on medicine and then stop it for a few days. SSR's and such ...you need to be weaned on.

Jan

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: Pamela <susanonderko@...> Sent: Thu, July 22, 2010 10:33:53 AMSubject: ( ) Re: dr visit

I have worked with Yale Parent and Child Clinic on helpingmy daughter cope with returning to school after vacationsholidays and summer break. She has a gradul return plan in her IEP so there is no more anxiety for her or me. She is ableto start back 2 hours a day, then increase it to half a day if she is calm and so on. We have the zoloft at 75mg but our child pscychiatrist is not willing to increase this for outburts that maybe caused by anxiety. Once the panic was under controlthat was it for increases. She is very much in favor of behavior therapy to shapecalmer behaviors than using Rispedal at this point. If you don't have a ASD behaviorist it may be helpful to you,this is considered a proven treatment for ASD kids. Pam >> i took my son for his six week paych visit today she up his meds from 2ml to 3ml hes started haveing outburst again so were going to try and see if this will help i think he may just have some anxity about starting school in three weeks i go back on the tenth for a med recheck im hoping that one day we will leval out enough to just go every six weeks so my question is how many of you have had to change meds for your aspie and how many times also any one got any advise on how to help him adjust to starting school "i think i may have more anxity about it than he does">

[Guest guest]

yeah at the time he was only on 1 ml {my son is very small for his age he only

weighs 32 pounds and hes 5} so a small dose is good but i gave him a little bit

less for about a week then a little less for another the smaller the dose the

worse he got and then when we stoped it got to be like it was b4 so i put him

back on it he seems to do better on it so i just got over i dont wnat my kid on

med thing and relized that some kids {ie mine} need it in some ways i was

expecting it to just help everything and i was dissapointed when he had his

meltdowns or still wasnt sleeping or would still be aggressive or even his

social anxity. his doc had to explain to me that the meds would just help not

get rid of his spmptoms. I love his doc shes all about helping him to be

comfortable we saw one doc at one point that said we had to push him into

socialization or force him to look us in the eye but his new doc tells me that

this is how he is and the best thing i can do is learn how to help him for me

not to force him to look me in the eye that just b/c he wasnt looking didnt mean

he wasnt listening or to help him with learning how to make friends not to force

him that if i forced it wouldnt turn out good shes more about working with the

problem than she is about fixing it weve been seeing her for about six months

now and hesw jnst now started talking to her which is great considering that hes

seen the exact same pedatrician since birth and he didnt start tal\king to her

untill he was 3 so im ok with the meds now and im still trying to learn about AS

i just hate it that there arnt any resources in my area hell even be the only

kid with AS at his school so im kinda alone here in my home town but i still

keep going and i finaly got to the poing where i stoped trying to make it be

someting else not AS and i no longer see it as " oh no " situation and see it as a

gift i wouldnt have my son be anyother way and i know hes going to be great

> >

> > i took my son for his six week paych visit today she up his meds from 2ml to

> >3ml hes started haveing outburst again so were going to try and see if this

will

> >help i think he may just have some anxity about starting school in three

weeks i

> >go back on the tenth for a med recheck im hoping that one day we will leval

out

> >enough to just go every six weeks so my question is how many of you have had

to

> >change meds for your aspie and how many times also any one got any advise on

how

> >to help him adjust to starting school " i think i may have more anxity about

it

> >than he does "

> >

>

[Guest guest]

Probably the best place to start is the official LDN website:

http://www.ldninfo.org/

That's what I did and came away with a prescription that day. It's also good to

have the phone and fax of the pharmacy you want to use.

K.C.

>

> I called my doc to ask if she prescribes LDN. She said she is not sure what it

is and we can discuss it at my next visit in a couple of weeks. In the meantime,

I would like to send her some information (short & sweet) and am wondering what

info would be good to send. Does anybody have a recommendation?

>

> I have fibro & hypothyroidism. I am thinking that the Stanford study might be

good. Is there a better, more succinct, option?

>

> Thank you!

>