Introduction and Question

[Guest guest]

Hi Connie,

I don't know what it is but sometimes I have a have a hard time getting out of bed I take deep breaths that helps with the pain they told me to do that in the hopital it help .Well you have a nice day

Susie

-------------- Original message --------------

After surgery it was a struggle, I just crawled up them sometimes. Going down isn't too bad, I just take it one step at a time. At work, I won't take the stairs up because, they are too difficult. A few stairs aren't too bad. Before we moved, We had stairs and, it was okay for the most part but, the past few months have been really hard. Getting in and out of cars is not as bad as when I first had surgery. I have to sometimes just lift my leg myself to get it in the car. My biggest problem right now is getting off the bed. Everything else is a piece of cake compared to that, it is very painful to get out of it.

Connie

juneflower60@... writes:

Hi Connie,

I was wondering how are you when you walked up and down stairs? I hate stairs we'll moving in a house that my daughter brought no stairs we have two weeks can't wait until we move. I have a hard time getting in cars getting out isn't too bad How are you getting in and out of cars? Well I hope that pain goes away for you .

Susie

[Guest guest]

I am still waiting on them to do that.

Connie

palybami@... writes:

Hey Connie, how about if your loved ones rearrange your room?

[Guest guest]

I was going to have it the way I usually sleep on it but, I have the TV and, computer in the room and they put the phone jack and, stuff on that side, so I chose to put it on the other side which now I realize was a mistake. As soon as I can get someone to move it for me, I am going to have them do it. The won't even have to move the TV.

Connie

juneflower60@... writes:

Hi Connie,

Did you have your right Hip replace ? Why didn't they put the bed the right way when you first moved in ? I had my right Hip replace so I get in bed from my left side and pull myself in I lift both legs at the same time getting in bed and getting out of bed .

Well I hope you will get your bed put the right way then is will be much earier getting in and out of bed when I turn over I pull myself all the way to the edge of the bed that way I won't roll off the bed . I sleep in a twin size bed I'm not married I was married for 20 years had a son and daughter .Well you have a nice day.

Susie

[Guest guest]

I had my Left hip done. Connie

juneflower60@... writes:

Hi Connie,

Did you have your right Hip replace ? Why didn't they put the bed the right way when you first moved in ? I had my right Hip replace so I get in bed from my left side and pull myself in I lift both legs at the same time getting in bed and getting out of bed .

Well I hope you will get your bed put the right way then is will be much earier getting in and out of bed when I turn over I pull myself all the way to the edge of the bed that way I won't roll off the bed . I sleep in a twin size bed I'm not married I was married for 20 years had a son and daughter .Well you have a nice day.

Susie

[Guest guest]

Hey Connie, how about if your loved ones rearrange your room?

I didn't have a problem when I was sleeping in another direction before We moved. But, now that I have to lead with the left leg, it is harder. I do try to breathe first. Connie

[Guest guest]

Hi Connie,

Did you have your right Hip replace ? Why didn't they put the bed the right way when you first moved in ? I had my right Hip replace so I get in bed from my left side and pull myself in I lift both legs at the same time getting in bed and getting out of bed .

Well I hope you will get your bed put the right way then is will be much earier getting in and out of bed when I turn over I pull myself all the way to the edge of the bed that way I won't roll off the bed . I sleep in a twin size bed I'm not married I was married for 20 years had a son and daughter .Well you have a nice day.

Susie

-------------- Original message --------------

I didn't have a problem when I was sleeping in another direction before We moved. But, now that I have to lead with the left leg, it is harder. I do try to breathe first. Connie

juneflower60@... writes:

Hi Connie,

I don't know what it is but sometimes I have a have a hard time getting out of bed I take deep breaths that helps with the pain they told me to do that in the hopital it help .Well you have a nice day

Susie

[Guest guest]

At 11:51 AM 6/24/2006, you wrote:

>Hi everyone, I'm Tyler Rose. I've been making natural perfume for 4

>years and am happy to be amongst so many like-minded souls in this

>group. My question is about diluting absolutes. I've read the achives

>and it seems there are two camps: those who do and those who don't

>(Mandy Aftel being one of the latter). I've always tinctured absolutes

>from between 7-25% but am wondering if I haven't sacrificed fullness

>and staying-power for subtlety and cost? I'm about to embark on a new

>line of " extrait " perfumes and think this issue is central to their

>composition. At the risk of revisiting an old topic, I'd appreciate

>anyone's new thoughts on the subject. Thanks.

Do you have a good scale, I hope? One that measures down to .1 gram? That's

the first step -- measure every aromatic by weight, and then decided if you

want to go w/w or w/v in your blends and dilutions.

Many absolutes NEED to be diluted to reveal their true nature, or just to

be workable. After years of familiarity with them, especially the more

liquid ones, you should feel confident not diluting them first (eg,

jasmine.) However, some are so strong in odor intensity, I highly recommend

diluting them, and that goes for some EOs too, like galbanum. LIke

anything, the more you practice and observe, the more you will develop your

own technique, albeit with some reality constraints in place, as mentioned

with the thick or esp. strong ones.

Anya

http://artisannaturalperfumers.com The Artisan Natural Perfumers Guild

http://.com The premier site on Natural Perfume

/

Biggest, most dynamic natural perfumery chat group

[Guest guest]

Do not give up hope.  Keep seeking different opinions from doctors.  I had to

be assertive with my doctors while in the Army.  I had a thyroid cyst which

stuck out and looked like I swallowed a golf ball.  My cyst was cancerous but

after surgery, radiation over ten years ago, I am all right.  I can exercise

and work, no I am not the same as before but lead a pretty normal life.  You

know you symptoms are not normal.  Maybe you have just not found the right

doctor yet.  I wish you the best in your eventual recovery.-lenosan

Introduction and question

Hello everyone~

My name is Brittney, and I've recently become extremely concerned that

I may have a thyroid problem, or somethign along those lines. I was

really hoping I could find some answers here, as my doctor is clueless.

I am switching doctors, and I actually see the new one tomorrow. I am

not sure what to ask him, what to ask for, or anything, so I'm really

hoping for help on that.

Here is my story; alot of this story may be irrelevant, but I'm not

sure what to make of all of this. I'm including everything so nothing

gets overlooked:

My whole life I have suffered from chronic UTI's and blood in my urine.

No one can figure it out to this day. They just tell me it's " normal "

for me. I've always had temperature issues.. As a kid and teen, I was

always super hot.. and I would sweat alot. I don't know if my periods

are irregular, as I've been on birth control since I've had them. I

didn't get my first period until I was nearly 15. I was also told as a

tween that I was " borderline diabetic " , though I have no idea what that

means or if it is even significant. I've also suffered from severe

anxiety and depression since I was a teenager.

Then, I got sick with pertussis. Really sick. An x-ray (to see if I had

pneumonia) showed that I had some " growth " in my chest/ lung area. They

thought I had cancer. So I went to a larger hospital for some more

testing. Said that it was my thymus, and it was enlarged. But that

wasn't as worrisome as this weird protein that I had in my blood. (this

is what I was told.. I know it is not very specific. I was very sick

and had no idea what was going on). This protein signaled to them that

I had cancer SOMEWHERE in my body. Most likely a lymphoma or myeloma.

After I had recovered from the bad case of pertussis, I had to go in

for more testing. The protein was still there, my thymus still enlarged

(but not concerning?), and eventually had a bone-marrow biopsy. That

was completely normal.

Then, I got pregnant.

I went in for more testing after I foudn out I was pregnant. The

protein had disappeared! Vanished, though they said I needed to be

tested again after baby was born. I never went back. At least, not yet.

I also had a doc tell me aroudn this time that my thyroid was enlarged.

Nothing was ever done about that.

Then, all of the sudden, I was no longer hot anymore, I was cold. Still

am, and my dd is 15 months. Then, I started having really low blood

pressure readings, like 90/40 most of the time. I sprouted horribly

scarring acne on my face, chest and back. My temp was/ is very low as

well (pre-O, 96.2 about, post-O, 97.5).

Now, at 15 months PP, here are my other weird symptoms.. I have no idea

if they are related or what, but here they all are:

-Nodule on the right side of thyroid; .8cm big

-Grossly enlarged right side of thyroid

-Small cyst on left side of thyroid

-Abnormal hair growth on my neck, side of face (even on my one cheek),

upperlip, back, buttocks, belly, toes, and inner theigh.

-Always really cold or really hot

-CANNOT lose weight, or if I do, I gain back quickly no matter what I

do.

-I have a weird lump on the right side of my abdomen that is tender

when poked at... again, no one knows what it may be.

-Puffy face

-headaches

-extreme tiredness

-anxiety, depression

-joint and muscle pain

-face discoloration

-weird discoloration on the nape of my neck... it is also " swollen "

looking. Like a hump that sticks out really far.

-Heart palpatations

-Low blood pressure and temps

-High phosphorous levels

-dry skin

-bad facial acne that scars

-bad body odor/ sweat

I can't think of anything else right now.

I'm just so sick of feeling like I'm falling apart and no one knows

why. I'm only 21 years old and I feel like I'm 80. These docs treat me

like I'm a hypochondriac, and I'm sick of wondering if I really am.

These symptoms are real, and from the minimal amount that I have read,

may be related?

Please, someone help me out!

Thanks

~Brittney

________________________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

http://mail.aol.com

[Guest guest]

Hi Brittney,

At the very least you should probably have your thyroid levels of TSH,

FT3, and FT4 checked out for starters. It also sounds like you may be

having hormone issues or your hormones are relatively unbalanced to

each other, and possibly iodine and adrenal issues....so blood levels

might have to be checked here as well.

The best person to ask about all this and exactly what you should do

are (LadyBugsandBees) and Janie (Loboshe) on the

" NaturalThyroidHormones " and on the " NTH-Adrenals " board. All

of these ladies know their stuff and will help you today.

Just take your first post and paste it on those two boards and I

guarantee you will get help!

Best of luck and I will be interested in what they come up with for you!

Neil

>

> Hello everyone~

> My name is Brittney, and I've recently become extremely concerned that

> I may have a thyroid problem, or somethign along those lines. I was

> really hoping I could find some answers here, as my doctor is clueless.

> I am switching doctors, and I actually see the new one tomorrow. I am

> not sure what to ask him, what to ask for, or anything, so I'm really

> hoping for help on that.

>

> Here is my story; alot of this story may be irrelevant, but I'm not

> sure what to make of all of this. I'm including everything so nothing

> gets overlooked:

>

> My whole life I have suffered from chronic UTI's and blood in my urine.

> No one can figure it out to this day. They just tell me it's " normal "

> for me. I've always had temperature issues.. As a kid and teen, I was

> always super hot.. and I would sweat alot. I don't know if my periods

> are irregular, as I've been on birth control since I've had them. I

> didn't get my first period until I was nearly 15. I was also told as a

> tween that I was " borderline diabetic " , though I have no idea what that

> means or if it is even significant. I've also suffered from severe

> anxiety and depression since I was a teenager.

> Then, I got sick with pertussis. Really sick. An x-ray (to see if I had

> pneumonia) showed that I had some " growth " in my chest/ lung area. They

> thought I had cancer. So I went to a larger hospital for some more

> testing. Said that it was my thymus, and it was enlarged. But that

> wasn't as worrisome as this weird protein that I had in my blood. (this

> is what I was told.. I know it is not very specific. I was very sick

> and had no idea what was going on). This protein signaled to them that

> I had cancer SOMEWHERE in my body. Most likely a lymphoma or myeloma.

> After I had recovered from the bad case of pertussis, I had to go in

> for more testing. The protein was still there, my thymus still enlarged

> (but not concerning?), and eventually had a bone-marrow biopsy. That

> was completely normal.

> Then, I got pregnant.

> I went in for more testing after I foudn out I was pregnant. The

> protein had disappeared! Vanished, though they said I needed to be

> tested again after baby was born. I never went back. At least, not yet.

> I also had a doc tell me aroudn this time that my thyroid was enlarged.

> Nothing was ever done about that.

> Then, all of the sudden, I was no longer hot anymore, I was cold. Still

> am, and my dd is 15 months. Then, I started having really low blood

> pressure readings, like 90/40 most of the time. I sprouted horribly

> scarring acne on my face, chest and back. My temp was/ is very low as

> well (pre-O, 96.2 about, post-O, 97.5).

> Now, at 15 months PP, here are my other weird symptoms.. I have no idea

> if they are related or what, but here they all are:

> -Nodule on the right side of thyroid; .8cm big

> -Grossly enlarged right side of thyroid

> -Small cyst on left side of thyroid

> -Abnormal hair growth on my neck, side of face (even on my one cheek),

> upperlip, back, buttocks, belly, toes, and inner theigh.

> -Always really cold or really hot

> -CANNOT lose weight, or if I do, I gain back quickly no matter what I

> do.

> -I have a weird lump on the right side of my abdomen that is tender

> when poked at... again, no one knows what it may be.

> -Puffy face

> -headaches

> -extreme tiredness

> -anxiety, depression

> -joint and muscle pain

> -face discoloration

> -weird discoloration on the nape of my neck... it is also " swollen "

> looking. Like a hump that sticks out really far.

> -Heart palpatations

> -Low blood pressure and temps

> -High phosphorous levels

> -dry skin

> -bad facial acne that scars

> -bad body odor/ sweat

>

> I can't think of anything else right now.

> I'm just so sick of feeling like I'm falling apart and no one knows

> why. I'm only 21 years old and I feel like I'm 80. These docs treat me

> like I'm a hypochondriac, and I'm sick of wondering if I really am.

> These symptoms are real, and from the minimal amount that I have read,

> may be related?

> Please, someone help me out!

> Thanks

> ~Brittney

>

[Guest guest]

You definitely need a doc who will help you. Sometimes it takes several

before you find just the right one for you. You should visit www

stopthethyroidmadness.com there is lots of info there. SOunds like you have

goiter. You're case seems so complex and you will need lots of info form

many different people. I agree that you should join the other groups.

-- Introduction and question

Hello everyone~

My name is Brittney, and I've recently become extremely concerned that

I may have a thyroid problem, or somethign along those lines. I was

really hoping I could find some answers here, as my doctor is clueless.

I am switching doctors, and I actually see the new one tomorrow. I am

not sure what to ask him, what to ask for, or anything, so I'm really

hoping for help on that.

Here is my story; alot of this story may be irrelevant, but I'm not

sure what to make of all of this. I'm including everything so nothing

gets overlooked:

My whole life I have suffered from chronic UTI's and blood in my urine.

No one can figure it out to this day. They just tell me it's " normal "

for me. I've always had temperature issues.. As a kid and teen, I was

always super hot.. and I would sweat alot. I don't know if my periods

are irregular, as I've been on birth control since I've had them. I

didn't get my first period until I was nearly 15. I was also told as a

tween that I was " borderline diabetic " , though I have no idea what that

means or if it is even significant. I've also suffered from severe

anxiety and depression since I was a teenager.

Then, I got sick with pertussis. Really sick. An x-ray (to see if I had

pneumonia) showed that I had some " growth " in my chest/ lung area. They

thought I had cancer. So I went to a larger hospital for some more

testing. Said that it was my thymus, and it was enlarged. But that

wasn't as worrisome as this weird protein that I had in my blood. (this

is what I was told.. I know it is not very specific. I was very sick

and had no idea what was going on). This protein signaled to them that

I had cancer SOMEWHERE in my body. Most likely a lymphoma or myeloma.

After I had recovered from the bad case of pertussis, I had to go in

for more testing. The protein was still there, my thymus still enlarged

(but not concerning?), and eventually had a bone-marrow biopsy. That

was completely normal.

Then, I got pregnant.

I went in for more testing after I foudn out I was pregnant. The

protein had disappeared! Vanished, though they said I needed to be

tested again after baby was born. I never went back. At least, not yet.

I also had a doc tell me aroudn this time that my thyroid was enlarged.

Nothing was ever done about that.

Then, all of the sudden, I was no longer hot anymore, I was cold. Still

am, and my dd is 15 months. Then, I started having really low blood

pressure readings, like 90/40 most of the time. I sprouted horribly

scarring acne on my face, chest and back. My temp was/ is very low as

well (pre-O, 96.2 about, post-O, 97.5).

Now, at 15 months PP, here are my other weird symptoms.. I have no idea

if they are related or what, but here they all are:

-Nodule on the right side of thyroid; .8cm big

-Grossly enlarged right side of thyroid

-Small cyst on left side of thyroid

-Abnormal hair growth on my neck, side of face (even on my one cheek),

upperlip, back, buttocks, belly, toes, and inner theigh.

-Always really cold or really hot

-CANNOT lose weight, or if I do, I gain back quickly no matter what I

do.

-I have a weird lump on the right side of my abdomen that is tender

when poked at... again, no one knows what it may be.

-Puffy face

-headaches

-extreme tiredness

-anxiety, depression

-joint and muscle pain

-face discoloration

-weird discoloration on the nape of my neck... it is also " swollen "

looking. Like a hump that sticks out really far.

-Heart palpatations

-Low blood pressure and temps

-High phosphorous levels

-dry skin

-bad facial acne that scars

-bad body odor/ sweat

I can't think of anything else right now.

I'm just so sick of feeling like I'm falling apart and no one knows

why. I'm only 21 years old and I feel like I'm 80. These docs treat me

like I'm a hypochondriac, and I'm sick of wondering if I really am.

These symptoms are real, and from the minimal amount that I have read,

may be related?

Please, someone help me out!

Thanks

~Brittney

[Guest guest]

hi Neil

I am sure you are giving good advice, but I would just like to tell you---if I

may---that I certainly know as much and well maybe more than the ppl you

mention. I do know all of them.

sorry, couldn't help myself.

Gracia

Hi Brittney,

At the very least you should probably have your thyroid levels of TSH,

FT3, and FT4 checked out for starters. It also sounds like you may be

having hormone issues or your hormones are relatively unbalanced to

each other, and possibly iodine and adrenal issues....so blood levels

might have to be checked here as well.

The best person to ask about all this and exactly what you should do

are (LadyBugsandBees) and Janie (Loboshe) on the

" NaturalThyroidHormones " and on the " NTH-Adrenals " board. All

of these ladies know their stuff and will help you today.

Just take your first post and paste it on those two boards and I

guarantee you will get help!

Best of luck and I will be interested in what they come up with for you!

Neil

---

Recent Activity

a.. 10New Members

Visit Your Group

Having cancer is hard

Finding help

shouldn´t be.

Healthy Eating

on

A place for parents

to share their ideas.

Get info and support

on Samsung HDTVs

and devices.

.

[Guest guest]

you really need/must have iodine. http://www.helpmythyroid.com

http://www.optimox.com

then you can add thyroid meds as needed.

look for a holistic doc/naturopath.

Gracia

Hello everyone~

My name is Brittney, and I've recently become extremely concerned that

I may have a thyroid problem, or somethign along those lines. I was

really hoping I could find some answers here, as my doctor is clueless.

I am switching doctors, and I actually see the new one tomorrow. I am

not sure what to ask him, what to ask for, or anything, so I'm really

hoping for help on that.

Recent Activity

a.. 11New Members

Visit Your Group

Cancer Support

on

Connect w/ others

find help & share

FruitaBü Parents

Healthy Eating Zone

A parenting resource

on .

Sell Online

Start selling with

our award-winning

e-commerce tools.

.

[Guest guest]

No problem, I am sure Brittney could benefit from many opinions. I know the

thoughts of quite a few people helped me reach consensus.

She may not know the other boards exist as well...

Neil

_____

From: hypothyroidism [mailto:hypothyroidism ]

On Behalf Of Gracia

Sent: Wednesday, October 03, 2007 9:52 PM

hypothyroidism

Subject: Re: Re: Introduction and question

hi Neil

I am sure you are giving good advice, but I would just like to tell you---if

I may---that I certainly know as much and well maybe more than the ppl you

mention. I do know all of them.

sorry, couldn't help myself.

Gracia

Hi Brittney,

At the very least you should probably have your thyroid levels of TSH,

FT3, and FT4 checked out for starters. It also sounds like you may be

having hormone issues or your hormones are relatively unbalanced to

each other, and possibly iodine and adrenal issues....so blood levels

might have to be checked here as well.

The best person to ask about all this and exactly what you should do

are (LadyBugsandBees) and Janie (Loboshe) on the

" NaturalThyroidHormones " and on the " NTH-Adrenals " board. All

of these ladies know their stuff and will help you today.

Just take your first post and paste it on those two boards and I

guarantee you will get help!

Best of luck and I will be interested in what they come up with for you!

Neil

---

Recent Activity

a.. 10New Members

Visit Your Group

Having cancer is hard

Finding help

shouldn´t be.

Healthy Eating

on

A place for parents

to share their ideas.

Get info and support

on Samsung HDTVs

and devices.

..

[Guest guest]

Brittney? While I was reading your email, I kept thinking " iodine

deficient " .... www.laurapower.com/iodinedeficiency.htm

An Iodine Loading Test can be gotten here:

http://www.breastcancerchoices.org/loading.html

Sam

>

> Hello everyone~

> My name is Brittney, and I've recently become extremely concerned

that

> I may have a thyroid problem, or somethign along those lines. I was

> really hoping I could find some answers here, as my doctor is

clueless.

> I am switching doctors, and I actually see the new one tomorrow. I

am

> not sure what to ask him, what to ask for, or anything, so I'm

really

> hoping for help on that.

>

> Here is my story; alot of this story may be irrelevant, but I'm not

> sure what to make of all of this. I'm including everything so

nothing

> gets overlooked:

>

> My whole life I have suffered from chronic UTI's and blood in my

urine.

> No one can figure it out to this day. They just tell me

it's " normal "

> for me. I've always had temperature issues.. As a kid and teen, I

was

> always super hot.. and I would sweat alot. I don't know if my

periods

> are irregular, as I've been on birth control since I've had them. I

> didn't get my first period until I was nearly 15. I was also told

as a

> tween that I was " borderline diabetic " , though I have no idea what

that

> means or if it is even significant. I've also suffered from severe

> anxiety and depression since I was a teenager.

> Then, I got sick with pertussis. Really sick. An x-ray (to see if I

had

> pneumonia) showed that I had some " growth " in my chest/ lung area.

They

> thought I had cancer. So I went to a larger hospital for some more

> testing. Said that it was my thymus, and it was enlarged. But that

> wasn't as worrisome as this weird protein that I had in my blood.

(this

> is what I was told.. I know it is not very specific. I was very

sick

> and had no idea what was going on). This protein signaled to them

that

> I had cancer SOMEWHERE in my body. Most likely a lymphoma or

myeloma.

> After I had recovered from the bad case of pertussis, I had to go

in

> for more testing. The protein was still there, my thymus still

enlarged

> (but not concerning?), and eventually had a bone-marrow biopsy.

That

> was completely normal.

> Then, I got pregnant.

> I went in for more testing after I foudn out I was pregnant. The

> protein had disappeared! Vanished, though they said I needed to be

> tested again after baby was born. I never went back. At least, not

yet.

> I also had a doc tell me aroudn this time that my thyroid was

enlarged.

> Nothing was ever done about that.

> Then, all of the sudden, I was no longer hot anymore, I was cold.

Still

> am, and my dd is 15 months. Then, I started having really low blood

> pressure readings, like 90/40 most of the time. I sprouted horribly

> scarring acne on my face, chest and back. My temp was/ is very low

as

> well (pre-O, 96.2 about, post-O, 97.5).

> Now, at 15 months PP, here are my other weird symptoms.. I have no

idea

> if they are related or what, but here they all are:

> -Nodule on the right side of thyroid; .8cm big

> -Grossly enlarged right side of thyroid

> -Small cyst on left side of thyroid

> -Abnormal hair growth on my neck, side of face (even on my one

cheek),

> upperlip, back, buttocks, belly, toes, and inner theigh.

> -Always really cold or really hot

> -CANNOT lose weight, or if I do, I gain back quickly no matter what

I

> do.

> -I have a weird lump on the right side of my abdomen that is tender

> when poked at... again, no one knows what it may be.

> -Puffy face

> -headaches

> -extreme tiredness

> -anxiety, depression

> -joint and muscle pain

> -face discoloration

> -weird discoloration on the nape of my neck... it is also " swollen "

> looking. Like a hump that sticks out really far.

> -Heart palpatations

> -Low blood pressure and temps

> -High phosphorous levels

> -dry skin

> -bad facial acne that scars

> -bad body odor/ sweat

>

> I can't think of anything else right now.

> I'm just so sick of feeling like I'm falling apart and no one knows

> why. I'm only 21 years old and I feel like I'm 80. These docs treat

me

> like I'm a hypochondriac, and I'm sick of wondering if I really am.

> These symptoms are real, and from the minimal amount that I have

read,

> may be related?

> Please, someone help me out!

> Thanks

> ~Brittney

>

[Guest guest]

Cha Ching Cha Ching!

In a message dated 10/4/2007 2:37:23 AM Eastern Daylight Time,

veetee@... writes:

I cannot understand why the doctors keep running all sorts of tests and are

looking past symptoms that appear to be screaming hormonal imbalances.

************************************** See what's new at http://www.aol.com

[Guest guest]

PCOS is iodine deficiency. Cysts, goiter, tumors, sex organ cancers=iodine

defiicency.

Gracia

Hi Brittany,

And welcome. The latter part of your post sounded to me like Cushings disease,

the hump on the nape of the neck etc. As for the hair loss, but hair on the

face, upper lip and other sites sounds very much like PCOS which stands for

polycystic ovarian syndrome.If you read up on those you might find some answers.

The skin problems and hair loss suggest PCOS to me.

I found some websites you may find helpful. I cannot understand why the

doctors keep running all sorts of tests and are looking past symptoms that

appear to be screaming hormonal imbalances. Hypothyroidism may well be one of

your symptoms, in amongst everything else. As far as I have read, the thymus

gland is something that normally shrinks as we age. If I recall right, it is

linked very much to our developing immune system when we are younger. If I have

got that wrong, no doubt someone on the list will put me straight on that.

Try www.ovarian-cysts-pcos.com/book and www.pcos.net

Hope you find what you are looking for, both here on this site and from your

own searches. Forewarned is forearmed as they say, and maybe if you find some

answers, you could suggest to docs where they could begin to look for answers.

They wont thank you for it, doctors in the main being an arrogant lot, but what

the heck, its your health, your life, and it needs to be of a much better

quality than the one you are currently living!

God Bless, Good Health,

Keep posting.

Val

[Guest guest]

There she is!!!! I was just wondering where you've been!

-- Re: Introduction and question

Brittney? While I was reading your email, I kept thinking " iodine

deficient " .... www.laurapower.com/iodinedeficiency.htm

An Iodine Loading Test can be gotten here:

http://www.breastcancerchoices.org/loading.html

Sam

>

> Hello everyone~

> My name is Brittney, and I've recently become extremely concerned

that

> I may have a thyroid problem, or somethign along those lines. I was

> really hoping I could find some answers here, as my doctor is

clueless.

> I am switching doctors, and I actually see the new one tomorrow. I

am

> not sure what to ask him, what to ask for, or anything, so I'm

really

> hoping for help on that.

>

> Here is my story; alot of this story may be irrelevant, but I'm not

> sure what to make of all of this. I'm including everything so

nothing

> gets overlooked:

>

> My whole life I have suffered from chronic UTI's and blood in my

urine.

> No one can figure it out to this day. They just tell me

it's " normal "

> for me. I've always had temperature issues.. As a kid and teen, I

was

> always super hot.. and I would sweat alot. I don't know if my

periods

> are irregular, as I've been on birth control since I've had them. I

> didn't get my first period until I was nearly 15. I was also told

as a

> tween that I was " borderline diabetic " , though I have no idea what

that

> means or if it is even significant. I've also suffered from severe

> anxiety and depression since I was a teenager.

> Then, I got sick with pertussis. Really sick. An x-ray (to see if I

had

> pneumonia) showed that I had some " growth " in my chest/ lung area.

They

> thought I had cancer. So I went to a larger hospital for some more

> testing. Said that it was my thymus, and it was enlarged. But that

> wasn't as worrisome as this weird protein that I had in my blood.

(this

> is what I was told.. I know it is not very specific. I was very

sick

> and had no idea what was going on). This protein signaled to them

that

> I had cancer SOMEWHERE in my body. Most likely a lymphoma or

myeloma.

> After I had recovered from the bad case of pertussis, I had to go

in

> for more testing. The protein was still there, my thymus still

enlarged

> (but not concerning?), and eventually had a bone-marrow biopsy.

That

> was completely normal.

> Then, I got pregnant.

> I went in for more testing after I foudn out I was pregnant. The

> protein had disappeared! Vanished, though they said I needed to be

> tested again after baby was born. I never went back. At least, not

yet.

> I also had a doc tell me aroudn this time that my thyroid was

enlarged.

> Nothing was ever done about that.

> Then, all of the sudden, I was no longer hot anymore, I was cold.

Still

> am, and my dd is 15 months. Then, I started having really low blood

> pressure readings, like 90/40 most of the time. I sprouted horribly

> scarring acne on my face, chest and back. My temp was/ is very low

as

> well (pre-O, 96.2 about, post-O, 97.5).

> Now, at 15 months PP, here are my other weird symptoms.. I have no

idea

> if they are related or what, but here they all are:

> -Nodule on the right side of thyroid; .8cm big

> -Grossly enlarged right side of thyroid

> -Small cyst on left side of thyroid

> -Abnormal hair growth on my neck, side of face (even on my one

cheek),

> upperlip, back, buttocks, belly, toes, and inner theigh.

> -Always really cold or really hot

> -CANNOT lose weight, or if I do, I gain back quickly no matter what

I

> do.

> -I have a weird lump on the right side of my abdomen that is tender

> when poked at... again, no one knows what it may be.

> -Puffy face

> -headaches

> -extreme tiredness

> -anxiety, depression

> -joint and muscle pain

> -face discoloration

> -weird discoloration on the nape of my neck... it is also " swollen "

> looking. Like a hump that sticks out really far.

> -Heart palpatations

> -Low blood pressure and temps

> -High phosphorous levels

> -dry skin

> -bad facial acne that scars

> -bad body odor/ sweat

>

> I can't think of anything else right now.

> I'm just so sick of feeling like I'm falling apart and no one knows

> why. I'm only 21 years old and I feel like I'm 80. These docs treat

me

> like I'm a hypochondriac, and I'm sick of wondering if I really am.

> These symptoms are real, and from the minimal amount that I have

read,

> may be related?

> Please, someone help me out!

> Thanks

> ~Brittney

>

[Guest guest]

Are these " other boards " actually email groups

like this one, or are they forums that you have to

access from some other way than ?

--Diane

--- neil <neilneil@...> wrote:

> No problem, I am sure Brittney could benefit from

> many opinions. I know the

> thoughts of quite a few people helped me reach

> consensus.

>

> She may not know the other boards exist as well...

>

> Neil

>

> _____

>

> From: hypothyroidism

> [mailto:hypothyroidism ]

> On Behalf Of Gracia

> Sent: Wednesday, October 03, 2007 9:52 PM

> hypothyroidism

> Subject: Re: Re: Introduction and

> question

>

>

>

>

> hi Neil

> I am sure you are giving good advice, but I would

> just like to tell you---if

> I may---that I certainly know as much and well maybe

> more than the ppl you

> mention. I do know all of them.

> sorry, couldn't help myself.

> Gracia

>

> Hi Brittney,

>

> At the very least you should probably have your

> thyroid levels of TSH,

> FT3, and FT4 checked out for starters. It also

> sounds like you may be

> having hormone issues or your hormones are

> relatively unbalanced to

> each other, and possibly iodine and adrenal

> issues....so blood levels

> might have to be checked here as well.

>

> The best person to ask about all this and exactly

> what you should do

> are (LadyBugsandBees) and Janie (Loboshe)

> on the

> " NaturalThyroidHormones " and on the

> " NTH-Adrenals " board. All

> of these ladies know their stuff and will help you

> today.

>

> Just take your first post and paste it on those two

> boards and I

> guarantee you will get help!

>

> Best of luck and I will be interested in what they

> come up with for you!

>

> Neil

>

> ---

> Recent Activity

> a.. 10New Members

> Visit Your Group

>

> Having cancer is hard

>

> Finding help

>

> shouldn´t be.

>

> Healthy Eating

> on

>

> A place for parents

>

> to share their ideas.

>

>

> Get info and support

>

> on Samsung HDTVs

>

> and devices.

> .

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

[Guest guest]

Hey Carla - Did you get the huge snowstorm too? We are totally snowed in! As far

as your mother scoby goes... this would be day 10. I liked mine at day 7 - the

longer you leave it, the more ferment-y tasting (a little more sour) it will be.

Many people here like it that way. I have just learned from experience (which is

EXTREMELY limited right now) that the baby will actually just grow like another

layer on top of the mother. I kept trying to push my scoby down into the tea,

which was a mistake. That disrupts the growth of the baby. I noticed little

white patches and after I took it out after 7 days, I realized that those white

patches WERE the baby. So, you may have a baby and not even realize it. The

" chalky " stuff on the bottom is the yeasty strings and they can be drunk with

the rest or strained if you prefer. Some like them - and they are actually good

for you.

If you want to test it - here's the advice I was given by some people here. Take

a straw and slide it down along the inside of the side of the jar (you may need

to move the scoby just a bit). Once it's down in the tea, put your finger on the

top of the straw and pull the straw out so that a sample of the tea will come

out with it.

Anymore questions - just let the group know! I hope this helped. You'll pick up

on the lingo and stuff fast, but the details come in time. Believe me, I am

still asking questions too.

(up to my KNEES in snow in Milwaukee)

[Guest guest]

In message <007201c8694e$cabe64e0$bf0ad318@SARAH> you wrote:

> Hey Carla - Did you get the huge snowstorm too? We are totally snowed in!

Hey, , send us some of your delicious WHITE over to England's

dreary grey ;-)

I've been waiting for about 20 years to build another decent

snowman/snow-woman - just about gets me to the beginning of my Kombucha

brewing career!

I just wanted to compliment you, on your excellent post to Carla.

I don't think I could add anything else more reassuring except, maybe

first brews very often aren't the best tasting ones as your brew is still

acclimatising to _your_ conditions. Give it and yourself time and be

really generous with the acidic starter when you make a new batch.

If you don't have enough KT starter you can supplement it with a little

distilled or pasteurised (previously boiled) vinegar. This is very good

mold prevention strategy. It is best to discard the accumulated yeast

on the bottom (use it for bread baking, if you like). Too much yeast makes

very beery brews that sour quickly. By getting rid of the extra yeast

you maintain a better balance between the yeast and bacteria and produce a

better tasting brew.

The 2 are helpfully working together, but the yeasts are the more vigorously

growing ones and tend to dominate unless 'weeded' out. S C O B Y is

and acronym for Symbiotic Culture Of Bacteria & Yeasts.

You're on the right track, Carla! Enjoy your brewing and phase in your

consumption gradually.

Greetings most kombuchaly ....

Margret:-) waiting for some snow to arrive ;-)

--

+------------------ Minstrel@... --------------------+

<)))<>< http://www.therpc.f9.co.uk <)))<><

http://www.AnswersInGenesis.com

+----------------- http://www.Gotquestions.org ------------------+

Not liking someone is no excuse for not loving them.

[Guest guest]

Hi

My son had the same problem he had two operations and we thought everthing was fine. No matter how hard we tried to keep the ear dry it was impossible. We went to a new doctor and he suggested we have a third surgery to open the hole more. He told me that he thought that it could be his last surgery because if he gets the hole the right size the ear will drain all the gunk out by itself. My son started all of this when he was 5 so we had to deal with grow throughout this process his is know 16. I am happy to say he had his last surgery 3 years ago the third time full surgery. The doctor opened the ear up and we did have drainage for a few months. He told us to get boric acid powder and use a dropper to put it in the ear to help dry it out. We did this for a few months and the ear drainage is a minimum. He only has problems with it when he plays football and sweats alot. I would not be against the surgery since we had a good outcome but you might ask the doctor about the boric acid powder.

Good Luck

introduction and question

Hi,I've been lurking on this group for a while, learning what I can aboutcholesteatomas. My son (age 19) had a CWD operation just over 2 years ago,and has been having regular suction clearances since then (at least once amonth, often more). He has had 2 further minor operations under generalanaesthetic to remove more skin and bone.His ear has still not healed properly and is still leaking fluid every day.We recently saw a new specialist who wants him to have another fulloperation (i.e. cutting through the skull behind the ear) to greatlyincrease the size of the cavity. I said "how do we know that the op will besuccessful this time and the cavity will heal completely?" and he said thereis a 70% chance that it will heal completely this time.To be honest, I am not too happy about that. That seems a low chance ofrecovery for such a major and risky operation.Anyway - to my question. I've been wondering what would happen if we usedantibiotic drops AND dried the inside of the ear each day using a hairdryer. I know it sounds wacky, but I figure that the infection thrives in amoist environment, so if we keep the ear ultra dry it might kill off theinfection once and for all. Does anyone have an opinion on this? Could it do any harm to the ear tokeep it so dry?I would be grateful for any thoughts as I am really not convinced thatconstantly cutting away more and more of the bone in the ear is a sensibleway forward.Thanks for listening,Gailhttp://www.LivingWaterBibleGames.com/ -------------------------------------

[Guest guest]

What your referring to is a modified radical, many of have us have had them. They have a 85% success rate of the c-toma not to come back. Basically the Doc will be removing the mastoid bone of the affected ear. The drainage of the c-toma is very infectious to the person, the mastoid bone is porous type of a bone and the drainage can hide in there. If all of the drainage is not cleaned out of there then the c-toma WILL grow back. In my opinion because of this the CWU's are useless as a operation as I have yet heard of a person who has had less then few CWU and had the c-toma go bye-bye for ever. Those who have CWU have in general have more than just a few operations, it seems to be endless. I had my Modified Radical in 1979 and I have not

had the c-toma come back in nearly 30 years.....These operations are very painful for the person and if a modifed radical will stop them then that's the way you should go.

Tom Hansen

From: Gail Baines <gails.groups@...>cholesteatoma Sent: Friday, March 27, 2009 2:13:42 PMSubject: introduction and question

Hi,I've been lurking on this group for a while, learning what I can aboutcholesteatomas. My son (age 19) had a CWD operation just over 2 years ago,and has been having regular suction clearances since then (at least once amonth, often more). He has had 2 further minor operations under generalanaesthetic to remove more skin and bone.His ear has still not healed properly and is still leaking fluid every day.We recently saw a new specialist who wants him to have another fulloperation (i.e. cutting through the skull behind the ear) to greatlyincrease the size of the cavity. I said "how do we know that the op will besuccessful this time and the cavity will heal completely?" and he said thereis a 70% chance that it will heal completely this time.To be honest, I am not too happy about that. That seems a low chance ofrecovery for such a major and risky operation.Anyway - to my

question. I've been wondering what would happen if we usedantibiotic drops AND dried the inside of the ear each day using a hairdryer. I know it sounds wacky, but I figure that the infection thrives in amoist environment, so if we keep the ear ultra dry it might kill off theinfection once and for all. Does anyone have an opinion on this? Could it do any harm to the ear tokeep it so dry?I would be grateful for any thoughts as I am really not convinced thatconstantly cutting away more and more of the bone in the ear is a sensibleway forward.Thanks for listening,Gailhttp://www.LivingWa terBibleGames. com/ ------------ --------- --------- -------

[Guest guest]

Thanks for your reply, Tom. From

what I understand, the first operation my son had WAS a radical mastoidectomy,

but my son’s ear has still not healed properly. The cavity is not

very large, and so it’s not very easy to clean. It seems to me that

the only reason the doctor wants to do another mastoidectomy is to make the

cavity easier to clean. I find the whole thing worrying because 1) there

is no guarantee that the ear will heal even if we have another surgery, and 2)

I don’t like invasive surgery – I don’t like the idea of

continually cutting away more of the bone.

I’m not sure that we have much

option though.

Kind regards,

Gail

------

http://www.LivingWaterBibleGames.com/

From:

cholesteatoma

[mailto:cholesteatoma ]

On Behalf Of Tom Hansen

Sent: 27 March 2009 16:57

cholesteatoma

Subject: Re:

introduction and question

What your referring to is a modified radical, many of have us

have had them. They have a 85% success rate of the c-toma not to

come back. Basically the Doc will be removing the mastoid bone of the

affected ear. The drainage of the c-toma is very infectious to the

person, the mastoid bone is porous type of a bone and the drainage can hide in

there. If all of the drainage is not cleaned out of there then the

c-toma WILL grow back. In my opinion because of this the CWU's are

useless as a operation as I have yet heard of a person who has had less then

few CWU and had the c-toma go bye-bye for ever. Those who have CWU have in

general have more than just a few operations, it seems to be endless. I

had my Modified Radical in 1979 and I have not had the c-toma come back in

nearly 30 years.....These operations are very painful for the person and if a

modifed radical will stop them then that's the way you should go.

Tom Hansen

From: Gail Baines <gails.groups@...>

cholesteatoma

Sent: Friday, March 27, 2009

2:13:42 PM

Subject:

introduction and question

Hi,

I've been lurking on this group for a while, learning what I can about

cholesteatomas. My son (age 19) had a CWD operation just over 2 years ago,

and has been having regular suction clearances since then (at least once a

month, often more). He has had 2 further minor operations under general

anaesthetic to remove more skin and bone.

His ear has still not healed properly and is still leaking fluid every day.

We recently saw a new specialist who wants him to have another full

operation (i.e. cutting through the skull behind the ear) to greatly

increase the size of the cavity. I said " how do we know that the op will

be

successful this time and the cavity will heal completely? " and he said

there

is a 70% chance that it will heal completely this time.

To be honest, I am not too happy about that. That seems a low chance of

recovery for such a major and risky operation.

Anyway - to my question. I've been wondering what would happen if we used

antibiotic drops AND dried the inside of the ear each day using a hair

dryer. I know it sounds wacky, but I figure that the infection thrives in a

moist environment, so if we keep the ear ultra dry it might kill off the

infection once and for all.

Does anyone have an opinion on this? Could it do any harm to the ear to

keep it so dry?

I would be grateful for any thoughts as I am really not convinced that

constantly cutting away more and more of the bone in the ear is a sensible

way forward.

Thanks for listening,

Gail

http://www.LivingWa

terBibleGames. com/

------------ --------- --------- -------

[Guest guest]

Hi everyone. I'm Michele and I currently live in Knoxville. I have a 12 YO

daughter with AS. We'll be moving to Huntsville or Madison Al over the summer

and I was wondering if anyone in this group has any experience with the public

schools there. I know the Madison schools are great, but are they great for

kids with AS?

Also while reading some of the posts, I noticed that there was a discussion

about risperdal/abilify/and ssri's... My daughter had a terrible time with

meltdowns, hyperactivity, anger outbursts etc...which made it next to impossible

to send her to school, so I homeschooled her for four years. She has been on

Zoloft since she was 7 which cut the outbursts in half, so it was good for us,

but still not keeping her stable enough to trust leaving her with anyone. We

added Abilify in August and it was like a miracle. She seemed to change

overnight. It was like she calmed down, matured, started talking to people in a

more normal way...it was amazing. She did gain a lot of weight...about 15 lbs

in 2 months, I know this sounds extreme, but her Dr put her on Metformin for

weight control and she has stopped the weight gain. We were able to put her in

school within 3 weeks of starting the Abilify, and the teachers adore Josie and

she's had only one meltdown all year. They actually wonder what I was so

worried about. Compare that to not even being able to leave her for an hour

with a scout troop 2 months before the Abilify and you can see what a difference

it made. So I hope this info helps someone to make a decision. Meds can be

scary, but we've had such a great experience with this one.

Anyway I really digressed there, but I am interested in hearing if anyone in

this group has info about the Madison schools...

Thanks:)