Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Hi Rhea, When I was weaned off the Prednisone, it took about 3 months to wean all the way off. I did have liver pain, but it seems to have subsided somewhat. Now the weight, that's a whole nother story........ I put on 30 lbs when on the Prednisone and have only lost a few of it. I've tried but it's hard. When I don't eat enough or try to diet, I feel weak and tired. I don't need that since the AIH makes you feel that way anyway. You sound like you feel the way most of us feel. Hope you're able to wean soon. I did feel better once I was off the Prednisone. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 hi Marilyn, Does the weight watchers still work for you? I've got to lose some of this Prednisone weight. Can you help? ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 In a message dated 10/12/00 8:58:05 AM Eastern Daylight Time, egroups writes: << Rhea >> Ha...yup.lots of questions! Let's see...ok first liver pain.all I use is heat..either a heating pad or hot water bottle..and I have also found that stretching my arm up over my head while on my other side seems to relax the surrounding muscles which also relieves a part of it. I take no pain meds at all.....a Tylenol once in a very blue moon. You could count the number I took in a YEAR on one hand. Advil can cause bleeding of my varices also so.... Prednisone does make it very hard to loose weight...the best bet you have is slow and steady..stay on a basic healthy diet and exercise..I walk and dance....and have never felt that it makes my pain worse...maybe you have costachondritis.an automimmune diseas.arthris family.that attacks the ribs...this comes and goes with me..again I take nothing. I guess my best suggestion is try the heat and simple basic yoga till you get more limber then add exercising. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 In a message dated 10/12/00 8:58:05 AM Eastern Daylight Time, egroups writes: << ck to dating. I spent many years hiding behind a lot of extra poundage. But a successful time with Weight Watcher's has helped me beat the addiction to food. I will be featured in their January issue as I lost 107 poun >> Marilyn, Way to go!!!!! Pat yourself on the back for that......what an inspiration you must be to many others. Joanne C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 In a message dated 10/12/00 8:58:05 AM Eastern Daylight Time, egroups writes: << One of my new projects is going to be to > create a web site that contains general information and referrals for people > that suffer from AIH. Knowledge is power and unfortunately there is so little > information available too many of us leave ourselves in the hands of the > doctors. >> , What a great idea....any help looking for links to add let me know.i will happily find things for you to use... You are so right ...knowledge IS power!!!!! Joanne C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 Congradulations, Jarrod!!! and many many thanks to all his friends for making this happen!! , and achon from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 To anyone that is interested, I am sure that I am sensitive to toxic molds. I have all of the classic sx. and black mold (stachy) was found where I was living. I take a lot of Vit. C, usually 20 grams a day and it seems to help my sx. The problem that bothers me the most is that I have some sort of dermatitis where my beard is and it causes my facial hair to grow in that cause inflamed bumps that are painful. I have fare skin so I am not predisposed to this sort of thing. All of the different treatments that I have tried have not worked. I just use tiple A oint. and this helps with the infection. I think that it is some sort of inflamatory response because when I am tired and overloaded with chemicals that I have unfortunately been exposed to in the general environment my face starts to get inflamed and itches as well as sinus congestion and weird neurological type sx.. to a degree that I can't think. I was hoping that someone might know something about this condition. I remember reading something about it in a book on allergies but I can't remember which book. I have not found any information since. Thanks Mark wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 In a message dated 7/31/03 12:46:28 PM Eastern Daylight Time, writes: > Date: Wed, 30 Jul 2003 13:23:12 -0700 (PDT) > From: <kblanco@...> > Subject: Carbamazepine-induced hypersensitivity syndrome transient > hypogammaglobulinaemia > > Well, this is horrible news, since does have hypogammaglobulenmia and > HHV6 activation! > > > Original message attached. > Kathy This list doesn't allow attachments so I can't read what you are responding to. BUT HHV-6 is part of a large family of viruses some of which are common in CFIDS, When I could not afford a likely pharmaceutical, I began to take significant doses of officinalis tincture. I am MUCH better. Took many months. I make my own from homegrown Lemon balm. The part of that equation is adequate amounts of l-Lysine. Hope this helps mjh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Thanks for your message, I work with some talented people! Look forward to catching up with you before too long. Ros Digest Number 1192 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Thanks for your message, I work with some talented people! Look forward to catching up with you before too long. Ros Digest Number 1192 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Terry, I don't think Bob answered your question about electrode placement, did he? I cut some 4x4 cardboard pieces and covered them with foil. Then I folded an old washrag over each square and sewed it on 3 sides and trimmed off the excess material. I put four small alligator clips, that I got at Radio Shack, on the ends of a 5 or 6 foot piece of lamp cord or speaker wire. I connected one end with two alligator clips to the battery, and the other end to the foil covered cardboards. You will want to separate the wires on one end, so you can place the pads one in front and one in back. Wet the washrag covers, squeeze them out and slide over the foil squares. I think this should be good for chest colds, or any internal infection, as long as you can put a pad on both sides of it. You can have someone help you to place the one in the back, and put a piece of plastic behind it so you don't get the chair wet, but don't put any plastic between the pad and you, or you won't get any current. Hope this helps. Dick Re: Candida therapies > > WEll, this can make your skin itch, Terry. If you use 6 volts it > may need some taming with a resistance of some kind. It can be a > wet cloth roll between a joint in the wire, or a variable resistor > to allow you to set the resistance to comfort level. You should set > just below the " feeling it " level. > > I have no idea what's going on with this condition, and suggest if > you do this, to be sure you keep it short and sweet the whole first > week, no more than 10 minutes a day, and next week try a slight > increase, if all's well. It's a very powerful microbicide, I think, > and that can be interesting, to say the least. > > good luck, and keep us updated how you're doing, we care and we need > to know > > bob > > >> I recently came to the conclusion that I may be struggling with > some >> kind of yeast infection. >> >> I have had, all my life, a dry, itchy skin condition, coupled with >> very unstable blood sugar. It, plus amazing medical incompetence, > is >> what drove me into Alternative Health (Praise God!). I have been > able >> to manage my health conditions, more or less, and keep them within > a >> certain semi-acceptable range. >> >> In the last few months, it has been getting distinctly worse. My >> energy level has been so consistently low that it is interferring >> with regular life. I finally noticed recently that when I ate >> nutritional yeast (which normally gives me energy), I felt bad and >> had a very itchy reaction. This is not your regular itchy > reaction, >> this is the scratch-till-I-bleed kind. >> >> So I have begun doing several anti-candida things. I am starting >> today to drink CS with H2O2 in it, as I have seen work for other >> folks with yeast issues. I am taking specific candida homeopathic >> remedies. >> >> How would I use the Baby Grand to add its benefits? Where would >> I " hook up " the electrodes? For how long? (I don't need a herx.) > I've >> got the 6-volt battery with electrodes ready to go (have used it > on a >> tooth infection). Would a 4-volt setup be better? Or a resister on >> the 6-volt? I've got the wrist strap electrodes from SOTA that I > can >> use, you know, one on each wrist. Is that a good idea? I have no >> heart problems that I am aware of. >> >> Any suggestions would be much appreciated. >> >> Terry Chamberlin > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > The group's main page has a menu to the left, with photos of Godzilla > devices and info. This is a discussion, free speech forum, not medical > advice. All info is free to members. Membership is free, but by joing, > you agree to hold harmless the posters, including moderator, from damages > from anything you find here whether jointly, severally, or individually. > We are interested in your results, but cannot say anything about > repeatability, or whether this might have medical benefits. Thanks, for > your understanding, good luck researching. --bG > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 This is a test message to see if a message can be sent to the forum using the " Reply " option without actually going to the Group. It seems some messages are making it through and others are not. What is the proper method to send a message to the group? Re: Digest Number 1192 Original message has been cut for test purposes. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Hi Dick, looks like it works. that is the only way I ever post messages , right out of the emair program. I rarely use the websites on . Take care, V http://www.theledman.net http://www.pulsepowermeter.com > This is a test message to see if a message can be sent to the forum > using the " Reply " option without actually going to the Group. It > seems some messages are making it through and others are not. What is > the proper method to send a message to the group? > Re: Digest Number 1192 > Original message has been cut for test purposes. > ------------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 This answers my question. You CAN use the " Reply " to send a message without going to the Group. Re: Digest Number 1192 Original message has been cut for test purposes. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 > Message: 2 > Date: Thu, 21 Jul 2005 18:46:03 -0000 > From: " Jan Webster " <janthedoula@...> > Subject: Re: Bainbridge > > Not really, but if there is a need an interest one could easily be > started, there are bandsters here in several stages. Maybe a weekend > coffee group or evening walking group would appeal here. I'd be very interested in a Bainbridge Island group. I live off of Sandy Hook Road, close to the Agate Passage Bridge. If a groups is organized, count me in. Debbie Poulsbo, WA Dr. Montgomery 5/5/05 235/201/135 Quote Link to comment Share on other sites More sharing options...
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