Intro

[Guest guest]

>methotrexate 2 pills Saturday, 2 pills Sunday because

>I can't handle all 4 on the same day without extreme

>nausea,

Helen --

Nice note --

On the subject of methotrexate you might want to try

the injectible form. I too experienced nausea as a

result of taking MTX orally, though I don't think mine

was as bad as yours! In any event, my rheumy switched

me over the the injectible form and I have not had a

any trouble since. As an additional bonus, I think

the MTX works better being absorbed under the skin. I

can understand if you are leery of giving yourself a

shot, but I give myself three a week and can tell you

it is not big deal -- it is very east to learn and to

do. And that is from me, the biggest chicken on the

Eastern seaboard. Injecting oneself is sure a lot

better than putting up with the nausea and the pain!

good luck --

=====

, NJ Highlands

raharris@...

__________________________________________________

[Guest guest]

Marcie,

I have been on Enbrel along with 15 mg of Methotrexate orally for about

3 months now. It has helped me more than anything else that I have tried

over the 18 years that I have had PA. I am not sure if it was the Enbrel

or the MTX that has cleared up most of my P. The best thing with Enbrel

is that my terrible morning stiffness is now all but gone. Good luck to

you and your husband.

Marcie wrote:

>

> Hi-I joined this list to learn what I can about PA for my husband.

> He was on several meds w/minor results and started on Enbrel on

> Friday (12/29). He is 35 years old.

>

> For those on Enbrel, what kind of results/side effects have you had

> and how soon after starting did you see these? He gets his 2nd dose

> on Tuesday.

>

> Thanks and I wish all a safe and happy new year.

>

> Marcie

> wife to Jerry-PA sufferer

>

>

[Guest guest]

Welcome ...that is a good book. If you are interested in doing the

Gluten free diet.. has a great book called, Special Diets for Special

Kids. It explains the diet and other supplements that we use with our kids and

also alot of good recipes.

HTH

Rhonda in CA

[Guest guest]

> Are you a member of the australian biomedical group? Search for

> " biomedicalautismgroup " if you are not already signed up. It's a

> fantastic group and they have an extensive lending library. I'm going

> to be donating some hard to get books before I head back to California

> next month.

Thanks for the tip . I briefly thjougth about setting up a

lending library myself, given the shortage of books here. I'm so

pleased to hear about this one! And I'm sure the local group will be

helpful in other ways too.

Jeni

[Guest guest]

,

I want to say that it is not easy converting to any diet that is not the

cultural norm but you can do it and the kids will accept it. I think it

is easier to ease into it, but you can also do it all at once (harder for

you because you have to figure out what to put on the table). My son

doesn't want to do this diet, but I am already cooking a lot of GAPS

things for all of us. Get all the junk out of the house, if your husband

doesn't buy into it, then at least get his agreement to eat his junk away

from home. We have been eating NT for several years now. You would be

surprised, my 11 year old sometimes makes up his own recipes and he

doesn't go looking for white sugar as a baking ingredient because it

doesn't exist in our house, he would list " succanat " or stevia as a

sweetener ingredient, it is all what you put in front of them. Also,

take the kids to the farmers market and to farms, educate them about good

food, they may protest and make fun of it, but the information will sink

in. My 11 year old recently went with my husband to Sacramento to

protest for the right to drink raw milk. I am hopeful that he will grow

up to be a food activist. He also likes going to WAPF potlucks because

of the good food so you can see that he knows the difference between junk

food and real food, and prefers real food. If your kids watch TV,

educate them about the commercials (the seller of these products isn't

interested in you or your health, only in making as much money as they

can...).

Soups can be very filling--add meat or chicken and lots of veges to the

broth + a little olive oil and fresh herbs.

And, as difficult as it is for all of you with small children, I will

tell you (perhaps again) that I would love to be doing this diet for

young children (and 10 is still young). My sick son is 18, I have to get

his buy in, your children are minors, you do not need their buy in,

really.... Just start feeding them this diet, don't have any non-GAP

foods in the house, let them protest, let them get hungry enuf, and then

they will settle down and accept that this is how your family eats. THe

hardest part will probably be figuring out school lunches (we do a lot of

soups and stews in a thermos) and working with their friends moms to only

offer gaps snacks when they are playing at a friends house. And you

might be surprised, the first time I made juice, my sick son said no

juice with veges but my 11 year old begged for more fruit/vege juice and

wants to learn to use the juicer. And, they both gobbled up the nut &

coconut flour GAP goodies that I made. All this said, I realize that

none of this is easy, but if you think this diet might help your kids, it

is easier now than it will be when they get older. I would give anything

for my sick son to be either 8 (in my control) or 28 (out of my control)

and not 18 (in between).

Sue V.

[Guest guest]

BTW , you were not rude. I will announce to the world to stay the heck out

of south dakota if they have special needs children. Minnesota is where i grew

up and they are absolutely wonderful and extremely accomodating in MN (that's

where my 2 Aspie nephews live). Wish I could move back!!!!!

>

>

> Okay... not trying to be rude or anything (aspie here! lol) but your right

about rural South Dakota, so that brings up the seemingly (at least to me)

obvious question of, is moving possible, preferably to a school distrtict a bit

more aspie friendly (maybe even with a special program for them). I know this

brings up problems of moving away from a support group but sometimes thats the

only way.

>

>

>

> As for homeschooling, 6th grade is a hard year. If he was a bit older it

would be possible that you wouldn't always have to be there to assist him, even

know if your husband and yourself could work opposite shifts it might still be

possible. You might want to check out a homeschool group on to see how

other parents do it while still working.

>

>

>

> There is also a question in my mind about the legality of expelling an

asperger's kid for things probably related to his disorder. Have you consulted

a lawyer about this? I am sure I might think of more, but thats my main 3

questions for now... cya

>

>

>

>

> From: moien@...

> Date: Sun, 29 Nov 2009 17:24:26 +0000

> Subject: ( ) Intro

>

>

>

>

>

> Hello, I'm hoping I am in the right place, and can find some advice here. I

have an 11 year old (6th grade) that is being tested for Asperger's in February.

He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three

boys are clones of one another behaviorally.

> My son lives with me, my husband (his stepdad) and my older daughter (13). He

rarely sees his dad now, but did live with his dad/stepmom last school year, and

did ok. He will NEVER go back to live there due to the horrid environment we

found him living in.

> THis year quite simply, has been hell at school. We just had his 3 year eval

for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD,

Depression, Anxiety, and mild CP. I finally got them to bring back his OT at

school, who initially was there for handwriting. That has done no good at all.

Her focus now will be keyboarding. His SPED teacher has some fidgets and other

OT sensory things, but is obviously not trained in that nor uses them properly.

He also feels he is bullied all the time, part of it is true, but part of it is

his social perceptions.

> Most recently, he has been " not participating " in class. He has gone from A's

and B's to D's and F's. He is on his 4th day of in school suspension tomorrow

for not participating in class. They are aiming for expulsion, which is soon if

not this week if he has another ISS.

> He has a behavior plan but doesn't react to rewards anymore. If he gets

expelled, I don't know what I will do. And because of his IEP, we can not open

enroll him in other school districts. I have tried.

> So the obvious answer is to homeschool him. Now I'm not being selfish but in 6

months I will have completed my bachelor's degree. In a year from now I will

have $600/month student loan payments. I HAVE to work! Either that or my

children will starve!

> I'm lost as to what to do. Rural SOuth Dakota is not conducive to children

with disabilities, and I'm frustrated beyond belief. HELP!

>

>

>

>

>

>

> _________________________________________________________________

> Windows 7: It works the way you want. Learn more.

>

http://www.microsoft.com/Windows/windows-7/default.aspx?ocid=PID24727::T:WLMTAGL\

:ON:WL:en-US:WWL_WIN_evergreen:112009v2

>

[Guest guest]

My 16 year old was 'unhomeschoolable to the maximus' in my opinion; we did it for a while and I MISS DOING IT!!!!! Best thing I EVER DID, and I wish my middle two boys would let me homeschool them; it was great for the now 16 year old an me. We did it when he was in 8th grade because he was suicidal for real and the school would do NOTHING NOTHING NOTHING to accomodate his needs. We moved from that school district to a nicer home about 20 minutes away and a new district; still not easy but better than that!!!!! We have moved from 3 1/2 hours away to be in the city though because we were having to drive 2 hours one way to do anything (in Des Moines then); we live in eastern Iowa now so get everything we need here in the Iowa City / Cedar Rapids area (advocate for everything we have but small town USA doesn't cut it when you have Aspies kids).......

Ruthie Dolezal

Aspergers Treatment From: fnofsports@...Date: Sun, 29 Nov 2009 19:09:16 -0600Subject: RE: ( ) Intro

Okay... not trying to be rude or anything (aspie here! lol) but your right about rural South Dakota, so that brings up the seemingly (at least to me) obvious question of, is moving possible, preferably to a school distrtict a bit more aspie friendly (maybe even with a special program for them). I know this brings up problems of moving away from a support group but sometimes thats the only way. As for homeschooling, 6th grade is a hard year. If he was a bit older it would be possible that you wouldn't always have to be there to assist him, even know if your husband and yourself could work opposite shifts it might still be possible. You might want to check out a homeschool group on to see how other parents do it while still working. There is also a question in my mind about the legality of expelling an asperger's kid for things probably related to his disorder. Have you consulted a lawyer about this? I am sure I might think of more, but thats my main 3 questions for now... cya

From: moien@...Date: Sun, 29 Nov 2009 17:24:26 +0000Subject: ( ) Intro

Hello, I'm hoping I am in the right place, and can find some advice here. I have an 11 year old (6th grade) that is being tested for Asperger's in February. He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three boys are clones of one another behaviorally. My son lives with me, my husband (his stepdad) and my older daughter (13). He rarely sees his dad now, but did live with his dad/stepmom last school year, and did ok. He will NEVER go back to live there due to the horrid environment we found him living in. THis year quite simply, has been hell at school. We just had his 3 year eval for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD, Depression, Anxiety, and mild CP. I finally got them to bring back his OT at school, who initially was there for handwriting. That has done no good at all. Her focus now will be keyboarding. His SPED teacher has some fidgets and other OT sensory things, but is obviously not trained in that nor uses them properly. He also feels he is bullied all the time, part of it is true, but part of it is his social perceptions. Most recently, he has been "not participating" in class. He has gone from A's and B's to D's and F's. He is on his 4th day of in school suspension tomorrow for not participating in class. They are aiming for expulsion, which is soon if not this week if he has another ISS. He has a behavior plan but doesn't react to rewards anymore. If he gets expelled, I don't know what I will do. And because of his IEP, we can not open enroll him in other school districts. I have tried. So the obvious answer is to homeschool him. Now I'm not being selfish but in 6 months I will have completed my bachelor's degree. In a year from now I will have $600/month student loan payments. I HAVE to work! Either that or my children will starve! I'm lost as to what to do. Rural SOuth Dakota is not conducive to children with disabilities, and I'm frustrated beyond belief. HELP!

Windows 7: It works the way you want. Learn more.

[Guest guest]

Hi , by " not participating " and having ISS for that reason (only?), I'm

guessing he's not doing any work either? Is he behavioral in any way for that

ISS?

Does he have a therapist or case manager (in or out of school)?

Any idea of why he's quit " participating " ? If it's the bullying (real and

perceived) at school, I'd be in the principal's office and talking about that

and how it's bothering him so much (upset, depressed...) that he's quit caring,

doing work.... They know he's capable of good work/grades obviously.

Just quick thoughts,

>

> Hello, I'm hoping I am in the right place, and can find some advice here. I

have an 11 year old (6th grade) that is being tested for Asperger's in February.

He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three

boys are clones of one another behaviorally.

> My son lives with me, my husband (his stepdad) and my older daughter (13). He

rarely sees his dad now, but did live with his dad/stepmom last school year, and

did ok. He will NEVER go back to live there due to the horrid environment we

found him living in.

> THis year quite simply, has been hell at school. We just had his 3 year eval

for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD,

Depression, Anxiety, and mild CP. I finally got them to bring back his OT at

school, who initially was there for handwriting. That has done no good at all.

Her focus now will be keyboarding. His SPED teacher has some fidgets and other

OT sensory things, but is obviously not trained in that nor uses them properly.

He also feels he is bullied all the time, part of it is true, but part of it is

his social perceptions.

> Most recently, he has been " not participating " in class. He has gone from A's

and B's to D's and F's. He is on his 4th day of in school suspension tomorrow

for not participating in class. They are aiming for expulsion, which is soon if

not this week if he has another ISS.

> He has a behavior plan but doesn't react to rewards anymore. If he gets

expelled, I don't know what I will do. And because of his IEP, we can not open

enroll him in other school districts. I have tried.

> So the obvious answer is to homeschool him. Now I'm not being selfish but in 6

months I will have completed my bachelor's degree. In a year from now I will

have $600/month student loan payments. I HAVE to work! Either that or my

children will starve!

> I'm lost as to what to do. Rural SOuth Dakota is not conducive to children

with disabilities, and I'm frustrated beyond belief. HELP!

>

>

[Guest guest]

He has a counselor that is outside the district. Hunter has the " right " per his

IEP to leave the classroom and go to the SPED room if he's upset. Certain

teachers allow him to and some don't, causing this horrid conflict and causing

him to get upset. He says he doesn't understand anything this year. THing is he

does get A's and B's on tests, just refuses to participate in class, giving him

those horrid grades.

> >

> > Hello, I'm hoping I am in the right place, and can find some advice here. I

have an 11 year old (6th grade) that is being tested for Asperger's in February.

He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three

boys are clones of one another behaviorally.

> > My son lives with me, my husband (his stepdad) and my older daughter (13).

He rarely sees his dad now, but did live with his dad/stepmom last school year,

and did ok. He will NEVER go back to live there due to the horrid environment we

found him living in.

> > THis year quite simply, has been hell at school. We just had his 3 year eval

for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD,

Depression, Anxiety, and mild CP. I finally got them to bring back his OT at

school, who initially was there for handwriting. That has done no good at all.

Her focus now will be keyboarding. His SPED teacher has some fidgets and other

OT sensory things, but is obviously not trained in that nor uses them properly.

He also feels he is bullied all the time, part of it is true, but part of it is

his social perceptions.

> > Most recently, he has been " not participating " in class. He has gone from

A's and B's to D's and F's. He is on his 4th day of in school suspension

tomorrow for not participating in class. They are aiming for expulsion, which is

soon if not this week if he has another ISS.

> > He has a behavior plan but doesn't react to rewards anymore. If he gets

expelled, I don't know what I will do. And because of his IEP, we can not open

enroll him in other school districts. I have tried.

> > So the obvious answer is to homeschool him. Now I'm not being selfish but in

6 months I will have completed my bachelor's degree. In a year from now I will

have $600/month student loan payments. I HAVE to work! Either that or my

children will starve!

> > I'm lost as to what to do. Rural SOuth Dakota is not conducive to children

with disabilities, and I'm frustrated beyond belief. HELP!

> >

> >

>

[Guest guest]

I had a quick meeting with the principal after school. Hubby and I decided that

we really needed to figure out where Hunter stands (close to expulsion?) We

would pull him and homeschool before that happened. The principal told me that

the school board can not expel him (due to special ed and I was 90% sure this

was the case anyway), and before that happened we would work on a different

avenue to make this work. I told him before expulsion we want an aide for

Hunter. He actually said he wanted that in writing. I was shocked. Hunter goes

back to the classroom tomorrow so we will see how that goes. Much different than

I expected, and what a relief.

> >

> > Hello, I'm hoping I am in the right place, and can find some advice here. I

have an 11 year old (6th grade) that is being tested for Asperger's in February.

He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three

boys are clones of one another behaviorally.

> > My son lives with me, my husband (his stepdad) and my older daughter (13).

He rarely sees his dad now, but did live with his dad/stepmom last school year,

and did ok. He will NEVER go back to live there due to the horrid environment we

found him living in.

> > THis year quite simply, has been hell at school. We just had his 3 year eval

for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD,

Depression, Anxiety, and mild CP. I finally got them to bring back his OT at

school, who initially was there for handwriting. That has done no good at all.

Her focus now will be keyboarding. His SPED teacher has some fidgets and other

OT sensory things, but is obviously not trained in that nor uses them properly.

He also feels he is bullied all the time, part of it is true, but part of it is

his social perceptions.

> > Most recently, he has been " not participating " in class. He has gone from

A's and B's to D's and F's. He is on his 4th day of in school suspension

tomorrow for not participating in class. They are aiming for expulsion, which is

soon if not this week if he has another ISS.

> > He has a behavior plan but doesn't react to rewards anymore. If he gets

expelled, I don't know what I will do. And because of his IEP, we can not open

enroll him in other school districts. I have tried.

> > So the obvious answer is to homeschool him. Now I'm not being selfish but in

6 months I will have completed my bachelor's degree. In a year from now I will

have $600/month student loan payments. I HAVE to work! Either that or my

children will starve!

> > I'm lost as to what to do. Rural SOuth Dakota is not conducive to children

with disabilities, and I'm frustrated beyond belief. HELP!

> >

> >

>

[Guest guest]

Cool, yea I knew a mother in Minnepolis thats kid had a special resource room for just aspies and it had social skills classes too I think. Granted she had a hard time getting the services for her kid (school always tried limiting the kids in it) but still, pretty cool.

From: moien@...Date: Mon, 30 Nov 2009 13:15:54 +0000Subject: Re: ( ) Intro

BTW , you were not rude. I will announce to the world to stay the heck out of south dakota if they have special needs children. Minnesota is where i grew up and they are absolutely wonderful and extremely accomodating in MN (that's where my 2 Aspie nephews live). Wish I could move back!!!!!>> > Okay... not trying to be rude or anything (aspie here! lol) but your right about rural South Dakota, so that brings up the seemingly (at least to me) obvious question of, is moving possible, preferably to a school distrtict a bit more aspie friendly (maybe even with a special program for them). I know this brings up problems of moving away from a support group but sometimes thats the only way.> > > > As for homeschooling, 6th grade is a hard year. If he was a bit older it would be possible that you wouldn't always have to be there to assist him, even know if your husband and yourself could work opposite shifts it might still be possible. You might want to check out a homeschool group on to see how other parents do it while still working.> > > > There is also a question in my mind about the legality of expelling an asperger's kid for things probably related to his disorder. Have you consulted a lawyer about this? I am sure I might think of more, but thats my main 3 questions for now... cya> > > > > From: moien@...> Date: Sun, 29 Nov 2009 17:24:26 +0000> Subject: ( ) Intro> > > > > > Hello, I'm hoping I am in the right place, and can find some advice here. I have an 11 year old (6th grade) that is being tested for Asperger's in February. He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three boys are clones of one another behaviorally. > My son lives with me, my husband (his stepdad) and my older daughter (13). He rarely sees his dad now, but did live with his dad/stepmom last school year, and did ok. He will NEVER go back to live there due to the horrid environment we found him living in. > THis year quite simply, has been hell at school. We just had his 3 year eval for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD, Depression, Anxiety, and mild CP. I finally got them to bring back his OT at school, who initially was there for handwriting. That has done no good at all. Her focus now will be keyboarding. His SPED teacher has some fidgets and other OT sensory things, but is obviously not trained in that nor uses them properly. He also feels he is bullied all the time, part of it is true, but part of it is his social perceptions. > Most recently, he has been "not participating" in class. He has gone from A's and B's to D's and F's. He is on his 4th day of in school suspension tomorrow for not participating in class. They are aiming for expulsion, which is soon if not this week if he has another ISS. > He has a behavior plan but doesn't react to rewards anymore. If he gets expelled, I don't know what I will do. And because of his IEP, we can not open enroll him in other school districts. I have tried. > So the obvious answer is to homeschool him. Now I'm not being selfish but in 6 months I will have completed my bachelor's degree. In a year from now I will have $600/month student loan payments. I HAVE to work! Either that or my children will starve! > I'm lost as to what to do. Rural SOuth Dakota is not conducive to children with disabilities, and I'm frustrated beyond belief. HELP!> > > > > > > __________________________________________________________> Windows 7: It works the way you want. Learn more.> http://www.microsoft.com/Windows/windows-7/default.aspx?ocid=PID24727::T:WLMTAGL:ON:WL:en-US:WWL_WIN_evergreen:112009v2>

Bing brings you maps, menus, and reviews organized in one place. Try it now.

[Guest guest]

I have to agree with you . I live in Southwest Minnesota and the services

I have received for my ASD 5-year old have been amazing. It started with his

referral after a preschool conference and before kindergarten started we had all

of the testing done for school, his IEP in place and a plan of action. They did

not even require a medical diagnosis because they believe the tests they do are

proof enough. In all reality his ASD testing for school was over multiple days

for many hours and his medical tests and diagnosis came from one morning! I

feel truly blessed to have these resources. When I read these stories on here

about the struggles so many have with schools it breaks my heart.

> >

> >

> > Okay... not trying to be rude or anything (aspie here! lol) but your right

about rural South Dakota, so that brings up the seemingly (at least to me)

obvious question of, is moving possible, preferably to a school distrtict a bit

more aspie friendly (maybe even with a special program for them). I know this

brings up problems of moving away from a support group but sometimes thats the

only way.

> >

> >

> >

> > As for homeschooling, 6th grade is a hard year. If he was a bit older it

would be possible that you wouldn't always have to be there to assist him, even

know if your husband and yourself could work opposite shifts it might still be

possible. You might want to check out a homeschool group on to see how

other parents do it while still working.

> >

> >

> >

> > There is also a question in my mind about the legality of expelling an

asperger's kid for things probably related to his disorder. Have you consulted

a lawyer about this? I am sure I might think of more, but thats my main 3

questions for now... cya

> >

> >

> >

> >

> > From: moien@

> > Date: Sun, 29 Nov 2009 17:24:26 +0000

> > Subject: ( ) Intro

> >

> >

> >

> >

> >

> > Hello, I'm hoping I am in the right place, and can find some advice here. I

have an 11 year old (6th grade) that is being tested for Asperger's in February.

He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three

boys are clones of one another behaviorally.

> > My son lives with me, my husband (his stepdad) and my older daughter (13).

He rarely sees his dad now, but did live with his dad/stepmom last school year,

and did ok. He will NEVER go back to live there due to the horrid environment we

found him living in.

> > THis year quite simply, has been hell at school. We just had his 3 year eval

for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD,

Depression, Anxiety, and mild CP. I finally got them to bring back his OT at

school, who initially was there for handwriting. That has done no good at all.

Her focus now will be keyboarding. His SPED teacher has some fidgets and other

OT sensory things, but is obviously not trained in that nor uses them properly.

He also feels he is bullied all the time, part of it is true, but part of it is

his social perceptions.

> > Most recently, he has been " not participating " in class. He has gone from

A's and B's to D's and F's. He is on his 4th day of in school suspension

tomorrow for not participating in class. They are aiming for expulsion, which is

soon if not this week if he has another ISS.

> > He has a behavior plan but doesn't react to rewards anymore. If he gets

expelled, I don't know what I will do. And because of his IEP, we can not open

enroll him in other school districts. I have tried.

> > So the obvious answer is to homeschool him. Now I'm not being selfish but in

6 months I will have completed my bachelor's degree. In a year from now I will

have $600/month student loan payments. I HAVE to work! Either that or my

children will starve!

> > I'm lost as to what to do. Rural SOuth Dakota is not conducive to children

with disabilities, and I'm frustrated beyond belief. HELP!

> >

> >

> >

> >

> >

> >

> > _________________________________________________________________

> > Windows 7: It works the way you want. Learn more.

> >

http://www.microsoft.com/Windows/windows-7/default.aspx?ocid=PID24727::T:WLMTAGL\

:ON:WL:en-US:WWL_WIN_evergreen:112009v2

> >

>

[Guest guest]

I have two sons. One is senior & one is a sophomore. They both have Behavior Plans that allow them to leave the classroom & go to the sped room if they are upset or overwhelmed. One has a green card & the other has a purple card. They just show it & leave the room - no talking, no discussion! It has worked great for both of them!Sent from my iPhoneBlessings, DonnaOn Nov 30, 2009, at 3:00 PM, "" <moien@...> wrote:

He has a counselor that is outside the district. Hunter has the "right" per his IEP to leave the classroom and go to the SPED room if he's upset. Certain teachers allow him to and some don't, causing this horrid conflict and causing him to get upset. He says he doesn't understand anything this year. THing is he does get A's and B's on tests, just refuses to participate in class, giving him those horrid grades.

> >

> > Hello, I'm hoping I am in the right place, and can find some advice here. I have an 11 year old (6th grade) that is being tested for Asperger's in February. He is a true vision of Asperger's...my sister has 2 Aspie boys, and all three boys are clones of one another behaviorally.

> > My son lives with me, my husband (his stepdad) and my older daughter (13). He rarely sees his dad now, but did live with his dad/stepmom last school year, and did ok. He will NEVER go back to live there due to the horrid environment we found him living in.

> > THis year quite simply, has been hell at school. We just had his 3 year eval for IEP. He has been receiving ST since age 4, his diagnoses are/were ADHD, SPD, Depression, Anxiety, and mild CP. I finally got them to bring back his OT at school, who initially was there for handwriting. That has done no good at all. Her focus now will be keyboarding. His SPED teacher has some fidgets and other OT sensory things, but is obviously not trained in that nor uses them properly. He also feels he is bullied all the time, part of it is true, but part of it is his social perceptions.

> > Most recently, he has been "not participating" in class. He has gone from A's and B's to D's and F's. He is on his 4th day of in school suspension tomorrow for not participating in class. They are aiming for expulsion, which is soon if not this week if he has another ISS.

> > He has a behavior plan but doesn't react to rewards anymore. If he gets expelled, I don't know what I will do. And because of his IEP, we can not open enroll him in other school districts. I have tried.

> > So the obvious answer is to homeschool him. Now I'm not being selfish but in 6 months I will have completed my bachelor's degree. In a year from now I will have $600/month student loan payments. I HAVE to work! Either that or my children will starve!

> > I'm lost as to what to do. Rural SOuth Dakota is not conducive to children with disabilities, and I'm frustrated beyond belief. HELP!

> >

> >

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[Guest guest]

My 15 year old has a similar situation.  He attends the regular classes unless he gets overwhelmed and then he just goes down to the " Alternate Learning Program " . There is a counselor, a teacher aid and 2 teachers there, with about 6 kids at any given time.  They are not children with behavioral difficulties, but more kids with OCD and Aspergers. He does his schoolwork from the regular classes there.  Some days he spends all day in there, and other days he's fine to go to the regular classes.  He determines his needs.  I would have never thought he was capable of high school, (he's 10th grade,) but he's been on the honor roll every quarter. Will wonders never cease!!!!

Lindsey senhttp://5kidswdisabilities.wordpress.comOn Mon, Nov 30, 2009 at 8:14 PM, Donna <donnalmoore@...> wrote:

 

I  have two sons.  One is senior & one is a sophomore.  They both have Behavior Plans that allow them to leave the classroom & go to the sped room if they are upset or overwhelmed.  One has a green card & the other has a purple card.  They just show it & leave the room - no talking, no discussion!  It has worked great for both of them!

Sent from my iPhoneBlessings,  Donna

[Guest guest]

So the " participate in class " is only referring to things like not joining in

any discussion or raising hand or maybe answering a question if called on...he's

doing all the other work?? I just can't see ISS for that reason, if that is the

case. Also, I would talk to whoever (guidance counselor?) is over his IEP about

some of the teachers not allowing him to leave class, name names. If need be,

talk to the principal. THEN if need to, call the school district spec ed

director about it. THEN, sigh, if need to, call the state spec ed director.

It's in his IEP, they have to follow it. Think of it like if you don't tell,

then no one (principal or district or state) knows what is going on at his

school, that IEPs aren't being followed, etc. And it's causing your son

problems. (and who knows what other students with IEPs too)

If the school gives excuses and doesn't comply, well I would mention that you

will check with the district, state, etc.; they'd rather handle it themselves

then have to answer to " higher ups " with paperwork, etc.

Just some more thoughts. My Aspie son also has OCD and the OCD was severe and

causing most problems with school. Whew, some years really had to advocate. I

found I did better over phone and thru emails than at actual meetings; face to

face I tend to " wimp out " tho a few meetings I managed to state my case pretty

well. I got better over time and practice at all the meetings! (and

sometimes being really fed up)

>

> He has a counselor that is outside the district. Hunter has the " right " per

his IEP to leave the classroom and go to the SPED room if he's upset. Certain

teachers allow him to and some don't, causing this horrid conflict and causing

him to get upset. He says he doesn't understand anything this year. THing is he

does get A's and B's on tests, just refuses to participate in class, giving him

those horrid grades.

[Guest guest]

Oh, just read this! YAY for principal, sounds like he will work with you on the

problems (different avenues, etc.). Keep us updated,

> >

> > Hi , by " not participating " and having ISS for that reason (only?), I'm

guessing he's not doing any work either? Is he behavioral in any way for that

ISS?

>

[Guest guest]

Hi Joanne. Bless your heart for all and your son have been through

From: jpbarham@...Date: Fri, 12 Mar 2010 16:15:28 +0000Subject: ( ) Intro

Hi all --I'm JoAnn, homeschooling mom of 6 kids, 3 of whom have PDD-NOS/Aspergers (conflicting diagnoses, but so similar, doesn't matter at this point). My oldest is the one having PROBLEMS. He is nearly 20 years old, was diagnosed at age 13, but we've received/found very little help support over the years. We ended up homeschooling after he had disastrous problems in several schools. He is very HF -- most people did not know his diagnosis. :/ We just found a new counselor, and we're hopeful we're back on the right track again....He has fibromyalgia, too, and is in severe, chronic pain 24/7. We are just starting a GF diet for him, as he is getting worse and worse lately....Too much to share, but wanted to jump in and say HI. (The other 2 are 14 and 6, and they're both doing well for now. Thank goodness!) My other kiddos who are NT (I think!) have quirky issues, some OCD stuff, etc. but are functioning overall pretty well. Whew. It's exhausting. I knew my oldest was different from the moment he was born. BEGGED for help from docs, pedis, etc. and NO ONE would listen AT ALL for a very long time. He was in a small private school until 6th grade, and no one saw anything wrong. He did great there: uniforms, strict rules, small classes -- was perfect for my little professor rule follower. We moved to a new state, put him in public school -- GASP! Everything fell apart. I see now, we were making accomodations for him all along, and he was NEVER typical. I thought he was "high needs" or something as a baby (screamed all the time, whether held or not -- nursed 2+ years, etc., but wasn't happy, EVER). Enough for now. Thanks for having this list. JoAnn

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[Guest guest]

hi ashley, im desiree i have 2 kids ages 2 & 4. im also new 2 the group, my 2 yr

old is the one displaying as symptoms n im tryin 2 get a diagnosis for her. so

far not much help, im told i have to wait till shes 3( which is in 3 months) im

new to the whole idea of this. i saw that parenthood show n saw some of the same

signs in my daughter. every1 a,so told me it was nothing n she'd grow out of it,

its frustrating when u know theres something wrong w ur baby n u feel helpless

cuz u have no idea what 2 do. but enough about me, my heart goes out 2 u n ur

family(5 kids, really?) how do u do it i have 2 n i wanna pull my hair out?!

well neway welcome n feel free 2 send info or guestions my way!! have a gr8

day!!!

[Guest guest]

My daughter was diagnosed PDDNOS at 2 so the whole wait until 3 is bogus. At

this point waiting until 3 makes sense b/c she would be diagnosed using the 3

year old scale...

Jen

>

> hi ashley, im desiree i have 2 kids ages 2 & 4. im also new 2 the group, my 2

yr old is the one displaying as symptoms n im tryin 2 get a diagnosis for her.

so far not much help, im told i have to wait till shes 3( which is in 3 months)

im new to the whole idea of this. i saw that parenthood show n saw some of the

same signs in my daughter. every1 a,so told me it was nothing n she'd grow out

of it, its frustrating when u know theres something wrong w ur baby n u feel

helpless cuz u have no idea what 2 do. but enough about me, my heart goes out 2

u n ur family(5 kids, really?) how do u do it i have 2 n i wanna pull my hair

out?! well neway welcome n feel free 2 send info or guestions my way!! have a

gr8 day!!!

>

[Guest guest]

, At 2 it is VERY possible that your child may grow out of a lot of behaviors. It's much more common for Asperger's to be diagnosed at a later age. 2 year olds are self centered and throw tantrums because they are 2...call your local early on program and have them do an evaluation if you are that sure she has something wrong with her but it IS possible that others are right and she is simply being 2...good luck.From: <kiwizmommy@...>Subject: ( ) Re: intro Date: Sunday, April 18, 2010, 8:47 AM

hi ashley, im desiree i have 2 kids ages 2 & 4. im also new 2 the group, my 2 yr old is the one displaying as symptoms n im tryin 2 get a diagnosis for her. so far not much help, im told i have to wait till shes 3( which is in 3 months) im new to the whole idea of this. i saw that parenthood show n saw some of the same signs in my daughter. every1 a,so told me it was nothing n she'd grow out of it, its frustrating when u know theres something wrong w ur baby n u feel helpless cuz u have no idea what 2 do. but enough about me, my heart goes out 2 u n ur family(5 kids, really?) how do u do it i have 2 n i wanna pull my hair out?! well neway welcome n feel free 2 send info or guestions my way!! have a gr8 day!!!

[Guest guest]

Hi Krista, welcome to the group. It's great though that you didn't give up. It's not too late to get help. Myson is 7 also diagnosed with ADHD at age 5, but last year we noticed, same with you, that there is more going on.

So far I am in the investigative stages. I need to get a child neuropsychologist to run some test on my son. What were the signs that you noticed that made you think it wasn't only ADHD? Did Asperger's ever cross your mind?

Thanks,

cathleen

From: K Clyburn <krisclyburn@...> Sent: Tue, September 21, 2010 7:10:12 PMSubject: ( ) Intro

Hello My name is Krista Clyburn and I am a Mom of four children. My oldest who is 17 was just diagnosed with Asperger's after being wrongly diagnosed with ADHD since first grade. I was always aware that my son didn't seem like a typical ADHD child and more was going on. I could not get any of the doctors to listen to me. They said he was too social to be an Aspie. His social cues are way off and he doesn't understand or read anyone else's. But he tries to be social and wants to have friends.So here we sit after 12 years believing that something more was going on with him, which ended up exactly what we thought. After two months of extensive testing by a new doctor who we love, finally we have answers.As relieved as I am, I am also hurting because I am fearful of this new arena. My son is getting such a late start and has suffered so much over the years. I struggle with guilt for not having more patience with him. If

only I had known 12 years ago.......I am seeking any and all information on what worked well with your child. What ever advice you have to offer, different agencies we need to look at......I would be very appreciative.Is anyone in the south central PA area? Do you know of any great support groups for parents? Do you know of any therapy classes that you can rave about?Thanks so much and I look forward to reading more from this group.~Krista

[Guest guest]

Hi!  My name is and I live in southern CA.  I have two

boys.  My oldest is 7 ½ and has high functioning autism.  He was diagnosised in

Feb. 2010 after being misdiagnosised.  My youngest is 4 and I am certain has Aspergers. 

The school district has not tested him but labeled him developmentally

delayed.  I am giving in and having him privately tested so I can have someone

back me that he is not ready to start Kinder in August.

Anyways, I am happy to be here!

Warmly,

Carey

http://www.GreenDiaperStore.com

We now

carry so much more than diapers! We have eco-friendly toys, feeding

products, bath and body, nursing products and more!

Fan us on Facebook at: http://www.facebook.com/pages/West-Hills-CA/Green-Diaper-Store/37724744230

[Guest guest]

Welcome to the group ! Happy Holidays to you and your family. Good idea to

get a private evaluation on your youngest. Good luck and take care!

ne

> From: Carey <lisa.carey@...>

> Subject: ( ) Intro

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> Date: Thursday, December 23, 2010, 2:52 AM

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> boys.  My oldest is 7 ½ and has high functioning

> autism.  He was diagnosised in

> Feb. 2010 after being misdiagnosised.  My youngest is 4

> and I am certain has Aspergers. 

> The school district has not tested him but labeled him

> developmentally

> delayed.  I am giving in and having him privately tested

> so I can have someone

> back me that he is not ready to start Kinder in

> August.

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> We

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> toys, feeding

> products, bath and body, nursing products and

> more!

>

> Fan us on

> Facebook at:

http://www.facebook.com/pages/West-Hills-CA/Green-Diaper-Store/37724744230

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