Mold & Eye Disorders/HELP!

[Guest guest]

Guys,

I could really use your help. My 6 yr. old son

continues with involuntary eye movements that the

experts experienced in toxic mold exposure say is most

likely related to the exposure. We've now seen 2

different physicians in the field and neither have

taken much concern to the issue other than to say it's

likely from the exposure. I've continued to be

concerned over this and have no idea what doctor could

help. These continual involuntary movements when

previously in the mold home, were also accompanied by

the head jerking downward in the opposite diagonal

direction and " drawing " of the mouth on one side (all

simultaneously). Once leaving the home, the head

jerking and mouth " drawing " left...but the involuntary

eye movements have continued for over 1 year.

NOW, just last night a new very strange and worrisome

occurrence happened: his eyeball literally got stuck

in a downward position. He was yelling and crying

that his eye was stuck. When it was checked his

eyeball was extremely downward from the white of the

eye. At one point the movements were thought to be

nystagmus, but the opthalmologist we were referred to

said it's not nystagmus, but she didn't know what it

was.

Before we knew of the mold exposure and were trying to

find out what this was, it was speculated to be a tic

disorder, then tourette syndrome, then a sign of some

form of seizures, then a sign of a brain tumor.

Remember...all these speculations were before knowing

of exposure and by doctors not familiar with mold

exposure. Now we've even been to Dr.

Marinkovich, in CA, one of the best in the world for

mold exposure and still have no answers on this

particular symptom. Please understand, I have no

problems with Dr. Marinkovich's care....I just wonder

if there is enough known on eye diseases/disorders

related to exposure.

Can any of you refer us to anyone that may be able to

help? I expect we need someone familiar with mold

exposure as well as eye disorders. Maybe even a

neurotoxicologist....I don't know.... I've tried to

not let it concern me, but after this new occurrence

my mother's instinct just tells me this is not normal.

If you can refer me to anyone that you think can help

guide me in the right direction PLEASE do so. If you

feel the need to pass this on to someone you think can

offer ideas please do so as well.

I hope you can understand my concern as I don't know

what this condition is, don't know if it's permanent,

and don't know if it could affect his vision (or if it

already does). Thank you so much for any help!

Beverly

__________________________________________________