Re: New and have questions....

[Guest guest]

Hi. I thought I share my experience. I vaccinated my 2 year old. I didn't

start reading about the dangers of vaccines until she was almost through.

But the first book I read was What Your Doctor May Not Tell You About

Children's Vaccinations. You can check it out at the library. I also have a

7 month old that I have not vaccinated. Luckily at my pediatricians office I

can say no to vaccines and they don't question me, same thing at birth with

the hep. b. Another book worth reading is How To Raise a Healthy Child in

Spite of Your Doctor. I just got this book and started reading it. I know

your scared of Whooping Cough, but that is one that usually children can

survive. When discussing vaccines with my ped., he suggested Prevnar and Hib

because children can die from these. But something ped. and other doctors

with not discuss is how you can protect your children from these diseases is

through nutrition and keeping the immune system strong. That is how I plan

on protecting my baby(hopefully). I will say that sometimes I still wonder

if I am doing the right thing. I felt stuck with making a decision about

vaccines for a long time, and I won't do it until I feel comfortable with

it, if I ever do. I know I can't sit in the doctor's office and let them

inject my baby. I feel horrible for allowing it to be done to my 2 year

old.

Kim

[Guest guest]

Dear Darci:

First, the link below is to your state's administrative code for special

education.

http://www.isbe.state.il.us/rules/archive/pdfs/226ark.pdf

Now, the Code provides for Autism Spectrum Disorder. Since Autism is a spectrum

unto itself and Aspergers is one notch on that spectrum, it is not a far stretch

to have your child's dx adjusted to ASD. This would give a more appropriate

approach to take with your District.

The challenge that you need to overcome is that professional, credentialed

evaluators are taken more seriously than the parents. It matters not that we

know our children better than everyone else. Hence, you will need solid

evidence of the dx. The professional that proffers this dx will need to include

appropriate recommendations in their report. I would advise that you discuss

with that professional the services that you believe are appropriate at that

time.

The report should also answer questions like:

How this dx affects your child in the educational, home, and community

environments?

What negative effects will occur if your child does not receive the recommended

therapies or interventions?

As for the SSI, well that is a whole other ball of wax. The Social Security

office has a checklist for you to complete. You can schedule an appointment to

see an advisor and the office will send you this list by mail.

About five years ago, I applied for my dd. Based on her dx alone, she

qualified. Unfortunately, she was denied because of my income level. So I

don't know if income still plays a part in the determination but it is something

to look into.

Another alternative is to register your child with your state's department of

developmental disabilities. You can obtain additional services that may not be

available to you in the school district. Keep in mind though that the

availability of services will be based on funding. The website for your state

is below.

http://www.dhs.state.il.us/page.aspx?item=29733

Regards,

>

> Hi my name is Darci, mom to Ty (6) who was just diagnosed with AS. I joined a

few weeks ago after my sons latest diagnosis My question for you seasoned

families is on his diagnosis codes and descriptions as follows...

>

> 299.80 Aspergers Disorder moderate/severe

> 314.01 Attention Deficit Hyperactivity Disorder Combine inattentive type

> Sensory Integrations Disorder

> Obsessive Compulsive Traits Developing

>

> My son was a 32 weeker, born under distress with Placenta Previa, which begun

in my 20th week. As of now my son has had a IEP since 1 yrs. We utilized EI til

3 then he went to a ECDEC program for Pre-School for 2 years and is now

mainstreamed and in 1st grade.

>

> With this new diagnosis we want to further request assistance and therapies as

well as a aid for him in school. But I am confused on the Illinois law and if

the medical code 299.80 showing up on some websites as PPD and not on the Autism

Spectrum/Aspegers. Will he even be able to receive such services.

>

> I also want to apply for SS benefits for him, and would love information on

your experiences on that and what they offer and how your path went there.

>

[Guest guest]

Darci, I don't know about the laws in Illinois because I live in Pennsylvania. Do you have a medical assistance (ma) card for him. You should be able to get him one even if you already have other insurance. If you can or do have ma then you should be able to get other benefits with the card. See what agencys that are out there. I went to our Base Service Unit that provides services for the disabled and I was able to get my dd wrap around services after school which works on her social and behavior problems. Ask your school or welfare office if they know of any services.

As for receiving SS benefits, they go by income, but give them a try anyways.

Good luck

-

From: lumpysmama <darcilumpkin@...>Subject: ( ) New and have questions.... Date: Wednesday, November 10, 2010, 7:02 PM

Hi my name is Darci, mom to Ty (6) who was just diagnosed with AS. I joined a few weeks ago after my sons latest diagnosis My question for you seasoned families is on his diagnosis codes and descriptions as follows... 299.80 Aspergers Disorder moderate/severe314.01 Attention Deficit Hyperactivity Disorder Combine inattentive typory Integrations DisorderObsessive Compulsive Traits DevelopingMy son was a 32 weeker, born under distress with Placenta Previa, which begun in my 20th week. As of now my son has had a IEP since 1 yrs. We utilized EI til 3 then he went to a ECDEC program for Pre-School for 2 years and is now mainstreamed and in 1st grade. With this new diagnosis we want to further request assistance and therapies as well as a aid for him in school. But I am confused on the Illinois law and if the medical code 299.80 showing up on some websites as PPD and not on the Autism Spectrum/Aspegers. Will he

even be able to receive such services. I also want to apply for SS benefits for him, and would love information on your experiences on that and what they offer and how your path went there.