Re: PA Under the skin question

[Guest guest]

i went to a lecture on an unrelated subject given by a cardiologist and he

talked a bit abouut psoriasis and said that in the past he has seen people

who have had psoriasis [usually extensive]have found psoriatic lesions on

their heart. im guess it also affects the inside of your body as well if you

have a serious case of it. so ican imagine it can effect any other organ as

well.this was news to me.

cathy from mass

[Guest guest]

Mike:

I have these same feelings and I have been diagnosed with

Fibromyalgia. There are some Doctors that don't believe there is

such a thing but then they are not the ones that have that pain. I

have said it seems as I have pain in places there is nothing really

much to hurt; but hurt it does. I certainly would ask my doctor if

that could be the pain you are suffering.

Good Luck

Granny Patty/Missouri

Also, I seem to get more pain in my

> muscles/tendons than my joints. Any ideas or help would be

> appreciated!

>

> Mike

[Guest guest]

Mike,

What you describe is what I have been told is one of the key differences with

PA over other types of Arthritis. I forget the name of this type of problem

with the tendons and muscles, but that has been a major problem for me since

I was first diagnosed with PA in 1981. My first real " disability " level of

pain was in the chest and shoulder muscle and tendons. It was due to the

location of the pain and the fact that I had P that the doctors thought I had

PA. In 1986 my rheumy provided a long discussion about PA and the unique

problem it causes in the muscles and tendons for some folks. This was later

reinforced by the folks at NIH.

The joint pain seems to move around on its own schedule and at present I am

doing better in that area with my meds. The P is under control. The pain in

the soft tissue is not under control. I have problems with my left arm,

upper back, rib cage lower leg muscles and ankle. These areas have been a

problem for many years. Some days it seems that things are better but as

soon as I start to use those muscles and tendons there is a pay back.

Celebrx seems to help out some, at least the mornings are a little easier.

MTX has helped a lot with the joints, but I am not sure it has made any

difference with the soft tissue problem. I have got to the point that I just

say no to some things in order to limit the pay back pain. In my case the

pain in the muscles and tendons has a much greater everyday effect on my life

than the joints.

Bob in VA

[Guest guest]

Mike - From the info I've gotten online, seems an awful lot of PA sufferers

are also " blessed " with fiber myalgia - a connective tissue disorder which

makes all your muscles hurts - sounds like this is worth looking into for

you. Unfortunately, I don't think there is a whole lot to do for fiber

myalgia other than diet and anti-inflammatories.

[Guest guest]

- my PAP tests are always abnormal and show hyperkeratosis - a

thickening of the skin cells -

I asked my Gyn if this could be related to psoriasis since that's what P

basically is - and she said absolutely not, but a good question - P is skin

only, not organs

But maybe she's wrong?