RE: Re:Heart breaking, I met a undiagnosed, never treated aspergers adult. I am glad you guys are helping your children

[Guest guest]

Hi,

I met a mother with a 19 year old aspie girl. That Aspie girl never gets out of her room, afraid of everybody and everything. She listens to her IPOD all the long and enclose herself on her room to play with her pc.

She got diagnosed at 16, doctors never diagnosed her in spite of the mother efforts. That girl does not have a job, does not go to school, etc..

It was heart broken to see a young girl in isolation for life. Devastating isolation, unproductive life, depression, fears...

I asked the mother if she is planning to help her, but now that girl is an adult and it is hard to help her unless she gets guardianship of her. But when putting food in the table and paying rent are priority, other issues have to wait...

I am glad that this group exists and that all of you are helping your children to live productive life in society. Nowdays people are being more aware of the damage that aspergers cause in the individual. I am glad to be able to participate in this group and find great people. With your inputs I am able to help myself and help others.

( ) Re: new hereHi ,Thanks for the help. I am going to keep pursuing the diagnosis.Best wishes for you too,> >> > Hi everyone, > > I think my 5 and 1/2 year old daughter may have Asperger's. it's been very difficult to get an accurate diagnosis and often I get dismissed as an overly concerned mother.> > > > My daughter has issues with social interactions, motor delays, reciprocal language problems, anxiety, severe angry outbursts, and difficulty with change. However, most people view her as having behavioral problems and my husband will refer to it as being "bratty".> > > > I feel so frustrated because the school took away all her services at 5 years old so I held her back from kindergarten and kept her in preschool.> > > > I am worried about her starting kindergarten in the fall. I think they will put her in an inclusion class but I think I need to get her a diagnosis also.> > > > She is on a very restricted diet due to GI issues and that really bothers her and makes her feel different from the other kids. This adds to the social problems.> > > > Can anyone relate to this?> > Would really appreciate feedback!> > > >>

[Guest guest]

This is exactly why I {I hate to use the word} advertise and let Jakob tell his story! I advocate where ever we go, making sure I have the right tools and my stuff in order. For example, this afternoon we are having a Pampered Chef Party, "Cooking with Kids". On my baking counter I have a display on a bright yellow piece of card stock that says, "What is Aspergers Syndrome? Have you ever met someone with Aspergers? If your at my home, in our family, or a friend, you HAVE met someone with Aspergers! JAKOB! I ask that you open your eyes, heart and ears. Close your mouth, and stop Judgment! Take the time to understand, accept, and have compassion. This is not contagious. This is a Brilliant child. A creative child. A compassionate child. A child who strives to be heard, understood and accepted. This is my child. My son. My Jakob and this is Jakob's story" I go on to explain what Aspergers Syndrome is and

how it effects Jakob. Then I explain Jakob's history and when we recieved the diagnoses. I list his accomplishments and things we are still working on. I want everyone to be aware, that I am having shirts made. I don't want him to feel different, but to see that everyone has something. There's something in every family. A few worse things in my own family. Since I have been advocating, Jakob will look at me, wait for my nod, and then walk up to people and say " Hi my name is Jakob and I have Aspergers Shyndrome". And to think that just last year, Jakob was so scared of everyone, everything, he would hide behind my, cry, throw a fit, etc.. He has come out because I have not sheltered him or hide this from him. Now all children are different. All parents are different. And of course all parenting styles are different. So you have to adapt to what your childs needs are. I had to totally retrain myself from the old style of "I'm the adult your the child,

its my way or the HWY. You'll do as I say. You were born into my world, I wasn't born into yours" way of thinking. You express your expectations, postively inforce your expectations, and most importantly talk to your children. We have come along way 5 months and I hope it just continues to get better from here on out. God Bless you all and thank you, everyone who has posted comments, stories, etc.. Together we can continue to raise awareness and advocate for OUR children!

Thanks,

TeamJakobSupport children with Aspergers,With your support their is no limit to Jakob's success!!

From: mimasdprofile <callis4773@...> Sent: Sat, March 27, 2010 7:24:53 AMSubject: ( ) Re:Heart breaking, I met a undiagnosed, never treated aspergers adult. I am glad you guys are helping your children

That is so sad. I can see how much my son has benefitted from everyone working hard with him. He is happy and outgoing and very very friendly even though he's awkward in social situations. Because he has such a happy, friendly way about him people seem to be able to look past how odd he can be. I'm sure if I hadn't gotten him diagnosed at age 3 we'd have had a lot more trouble. At the time this was considered an early asperger diagnosis. Now it's being diagnosed earlier than it was in 2000. Of course this depends very much on where you live and what schools your child attends. We have our difficult times, but it isn't difficult all the time or even most of the time.I say the earlier a kid gets help the better and that the people who do the diagnosing should err on the side of caution and get a kid help who might not actually need it. This is what it felt like when was diagnosed. We didn't feel sure and the people doing the diagnosis

weren't 100% sure either but they felt that if he needed it we could get rid of the diagnosis later. I'm glad we went with the dx because when we moved to Texas we suffered a huge nightmare even WITH a good IEP. They couldn't say he didn't have AS but as it was they took away everything except speech therapy. This really was to THEIR detriment more than mine or 's. provides his own natural consequences and eventually he got what he needed.It isn't fun to have a kid who acts out and injures other people and scares people, but it really is advocating for himself. He's not aggressive much any more. He's in a great school and has a lot of people around him who love him and accept him.Miriam > > > >

> > Hi everyone, > > > I think my 5 and 1/2 year old daughter may have Asperger's. Â it's been very difficult to get an accurate diagnosis and often I get dismissed as an overly concerned mother. > > > > > > My daughter has issues with social interactions, motor delays, reciprocal language problems, anxiety, severe angry outbursts, and difficulty with change. Â However, most people view her as having behavioral problems and my husband will refer to it as being "bratty". > > > > > > I feel so frustrated because the school took away all her services at 5 years old so I held her back from kindergarten and kept her in preschool. > > > > > > I am worried about her starting kindergarten in the fall. Â I think they will put her in an inclusion class but I think I need to get her a diagnosis also. > > > > > > She is on a

very restricted diet due to GI issues and that really bothers her and makes her feel different from the other kids. Â This adds to the social problems. > > > > > > Can anyone relate to this? > > > Would really appreciate feedback! > > > > > > > >>

[Guest guest]

Good for you, . I love your attitude From: teamjakob06@...Date: Sat, 27 Mar 2010 05:02:32 -0700Subject: Re: ( ) Re:Heart breaking, I met a undiagnosed, never treated aspergers adult. I am glad you guys are helping your children

This is exactly why I {I hate to use the word} advertise and let Jakob tell his story! I advocate where ever we go, making sure I have the right tools and my stuff in order. For example, this afternoon we are having a Pampered Chef Party, "Cooking with Kids". On my baking counter I have a display on a bright yellow piece of card stock that says, "What is Aspergers Syndrome? Have you ever met someone with Aspergers? If your at my home, in our family, or a friend, you HAVE met someone with Aspergers! JAKOB! I ask that you open your eyes, heart and ears. Close your mouth, and stop Judgment! Take the time to understand, accept, and have compassion. This is not contagious. This is a Brilliant child. A creative child. A compassionate child. A child who strives to be heard, understood and accepted. This is my child. My son. My Jakob and this is Jakob's story" I go on to explain what Aspergers Syndrome is and

how it effects Jakob. Then I explain Jakob's history and when we recieved the diagnoses. I list his accomplishments and things we are still working on. I want everyone to be aware, that I am having shirts made. I don't want him to feel different, but to see that everyone has something. There's something in every family. A few worse things in my own family. Since I have been advocating, Jakob will look at me, wait for my nod, and then walk up to people and say " Hi my name is Jakob and I have Aspergers Shyndrome". And to think that just last year, Jakob was so scared of everyone, everything, he would hide behind my, cry, throw a fit, etc.. He has come out because I have not sheltered him or hide this from him. Now all children are different. All parents are different. And of course all parenting styles are different. So you have to adapt to what your childs needs are. I had to totally retrain myself from the old style of "I'm the adult your the child,

its my way or the HWY. You'll do as I say. You were born into my world, I wasn't born into yours" way of thinking. You express your expectations, postively inforce your expectations, and most importantly talk to your children. We have come along way 5 months and I hope it just continues to get better from here on out. God Bless you all and thank you, everyone who has posted comments, stories, etc.. Together we can continue to raise awareness and advocate for OUR children!

Thanks,

TeamJakobSupport children with Aspergers,With your support their is no limit to Jakob's success!!

From: mimasdprofile <callis4773 > Sent: Sat, March 27, 2010 7:24:53 AMSubject: ( ) Re:Heart breaking, I met a undiagnosed, never treated aspergers adult. I am glad you guys are helping your children

That is so sad. I can see how much my son has benefitted from everyone working hard with him. He is happy and outgoing and very very friendly even though he's awkward in social situations. Because he has such a happy, friendly way about him people seem to be able to look past how odd he can be. I'm sure if I hadn't gotten him diagnosed at age 3 we'd have had a lot more trouble. At the time this was considered an early asperger diagnosis. Now it's being diagnosed earlier than it was in 2000. Of course this depends very much on where you live and what schools your child attends. We have our difficult times, but it isn't difficult all the time or even most of the time.I say the earlier a kid gets help the better and that the people who do the diagnosing should err on the side of caution and get a kid help who might not actually need it. This is what it felt like when was diagnosed. We didn't feel sure and the people doing the diagnosis

weren't 100% sure either but they felt that if he needed it we could get rid of the diagnosis later. I'm glad we went with the dx because when we moved to Texas we suffered a huge nightmare even WITH a good IEP. They couldn't say he didn't have AS but as it was they took away everything except speech therapy. This really was to THEIR detriment more than mine or 's. provides his own natural consequences and eventually he got what he needed.It isn't fun to have a kid who acts out and injures other people and scares people, but it really is advocating for himself. He's not aggressive much any more. He's in a great school and has a lot of people around him who love him and accept him.Miriam > > > >

> > Hi everyone, > > > I think my 5 and 1/2 year old daughter may have Asperger's. Â it's been very difficult to get an accurate diagnosis and often I get dismissed as an overly concerned mother. > > > > > > My daughter has issues with social interactions, motor delays, reciprocal language problems, anxiety, severe angry outbursts, and difficulty with change. Â However, most people view her as having behavioral problems and my husband will refer to it as being "bratty". > > > > > > I feel so frustrated because the school took away all her services at 5 years old so I held her back from kindergarten and kept her in preschool. > > > > > > I am worried about her starting kindergarten in the fall. Â I think they will put her in an inclusion class but I think I need to get her a diagnosis also. > > > > > > She is on a

very restricted diet due to GI issues and that really bothers her and makes her feel different from the other kids. Â This adds to the social problems. > > > > > > Can anyone relate to this? > > > Would really appreciate feedback! > > > > > > > >>

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