Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Hi, My name is Kellie. I am mom to identical twins with DS. They were born in 2003. Hagen and Brogan! Hagen developed AML in March of 05. He went through 3 rounds of Chemo.. relapsed and had a successful bone marrow transplant. He was 1 year 6 months post Trasp. when he developed pneumonia, which is uncommon. He recovered, gave us a big scare, then redeveloped the pneumonia, recovered and then got a bacterial infection and within a short time passed away. He faught very hard for so long!! He was a few months shy of his 4th birthday. Brogan is healthy, we test him every six months. I do not share this story to scare any of you... I wish I knew of this group while we were going through the things you are now going through. I do share this story so that you know about us. I am currently helping another family through some of their questions they have who also have a DS boy who just relapsed as well. Not all of our precious kids go through the same things and all respond differently, but there are lots of things that we do go through that are the same and I will keep all of you in my prayers!! Quote Link to comment Share on other sites More sharing options...
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