about diet

November 6, 2005

I have no scientific reason behind trying the diet. I

just felt it couldn't hurt and might help. Good luck

to you. Carolyn

--- mbrill100 <mbrill100@...> wrote:

> Hi, I have renewed my memebership in this club and

> have many questions,

> but for now I'm fascinated by the diet that you

> described...and why you do it.

> Do you feel it helps? And what is your " scientific "

> thinking behind it, if any?

>

> Thank you so much!

> Mari, age 48, dx 4/2003, 6 rounds of

> fludarabine/rituxan in 2003, now holding

> steady with some enlarged nodes but good bloods

>

November 8, 2005

Dear Mari,

I meant to write before, but I have been slow at replying mail, so sorry

about it.

I think it is a universally known that sugar and salt are not good for

cancers and other conditions, so cutting that off your diet will help the

body.

There have been cases of people with cancer that were given few months to

live and continued to live for 10 years following a rigourous diet.

Dr. Nicolas from New York was given Goverment funding for trials

with pancreatic cancer for his diet and enzimes treatment, the trials I

think are getting to the end.

With CLL we do not know, but I know people with stable CLL that have

followed a Gerson diet, it is very hard and help is needed.

I do not follow a diet as such, but do not eat sugar or salt, no wheat

produces or process food, also very little dairy produce, use goat milk for

some desserts, all freshly made, lots of vegetables, and sometimes I do

juicing and detox.

It might not make any different with the CLL, but it makes me feel well, so

no reason to change things, specially as I do not enjoy process food and I

do not like junk food.

I do eat meat as my Hb is on the low side, so I do all I can to keep it from

going down.

I also buy as much organic fruit and veg as I can get as well as other

product, for instance I have for breakfast porridge oats with banana, all

organic, and a pot of green tea.

Chonette (UK)

dx10-02 (aged 57)

November 8, 2005

Thank you so much, Chonette. I've been dallying with diet for awhile, and

mostly manage to just make sure I have organic food (which luckily I have

access to); I've heard about sugar and wheat and need to take that step

since I do feel much better when I don't eat those foods. In general, I

appreciate the idea of detoxing, since from little I know, I've begun feel

that anythiing that induces inflammation is likely to promote b-cell

production. Do you also do skin brushing and steams?

My Hb has also been a bit low and my oncologist recommended iron

supplements. I take Floravita Iron; it's expensive but I saw an almost

immediate improvement (from 10 to 10.5 in a few weeks), and a month or two

later, have started to feel quite a bit better.

Thanks,

Marietta

<FONT face= " Verdana, Geneva, Arial, Sans-serif "

color=#33ccff>Marietta Brill cell: 718-938-8712

</BLOCKQUOTE></div></html>

<BLOCKQUOTE style='PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT: #A0C6E5

2px solid; MARGIN-RIGHT: 0px'><font

style='FONT-SIZE:11px;FONT-FAMILY:tahoma,sans-serif'><hr color=#A0C6E5

size=1>

From: & quot;Chonette & quot;

& lt;ch@... & gt; Reply-To:

SLL-CLL-edu To:

& lt;SLL-CLL-edu & gt; Subject: Re:

about diet Date: Tue, 8 Nov 2005 15:45:33 -0000

<tt>

Dear Mari,

I meant to write before, but I have been slow at replying mail, so sorry

about it.

I think it is a universally known that sugar and salt are not good for

cancers and other conditions, so cutting that off your diet will help

the

body.

There have been cases of people with cancer that were given few months

to

live and continued to live for 10 years following a rigourous diet.

Dr. Nicolas from New York was given Goverment funding for

trials

with pancreatic cancer for his diet and enzimes treatment, the trials I

think are getting to the end.

With CLL we do not know, but I know people with stable CLL that have

followed a Gerson diet, it is very hard and help is needed.

I do not follow a diet as such, but do not eat sugar or salt, no wheat

produces or process food, also very little dairy produce, use goat milk

for

some desserts, all freshly made, lots of vegetables, and sometimes I do

juicing and detox.

It might not make any different with the CLL, but it makes me feel well,

so

no reason to change things, specially as I do not enjoy process food and

I

do not like junk food.

I do eat meat as my Hb is on the low side, so I do all I can to keep it

from

going down.

I also buy as much organic fruit and veg as I can get as well as other

product, for instance I have for breakfast porridge oats with banana,

all

organic, and a pot of green tea.

Chonette (UK)

dx10-02 (aged 57)

</tt>

<tt>

April 3, 2008

I finally got the last of the cheese and sourdough rye out of my daughter's

diet, so she's on the bare bones diet. I'd seen some improvements over the

last month of using Bio-Kult and trimming down some things in her diet, but

am seeing no difference at all in this last week without any cheese and

sourdough. I know (now) that she had some gut issues when she was a baby,

and a regression back in '99 after an antibiotic, but currently, other than

slight constipation, it hasn't been clear to me how bad her gut issues might

or might not be.

How long should I keep her so, um, well, deprived? How long can it take to

be sure any influences of the gluten or casein are gone? Or how critical is

that? Or can I go ahead and try adding something back?

I'm always scrambling to try to feed her a balanced diet and keeping her

from being unhappy about what she's allowed to eat, and I seem to spend my

life in the kitchen now :-/

Take care,

Alice - HSing mom to Alice (w/DS) born Thanksgiving Day 1995 :-)

Hopewell Junction, NY http://www.frontiernet.net/~castella/

April 8, 2008

It takes about 8 months for gluten to totally leave the system - and

2 years is what I usually hear it takes for the gut to heal

completely.

I just got back from the DAN conference - there was a presentation by

Arthur Krigsman who showed what these poor guts can look like-

http://www.thoughtfulhouse.com/0405-conf-akrigsman.htm

>

> I finally got the last of the cheese and sourdough rye out of my

daughter's

> diet, so she's on the bare bones diet. I'd seen some improvements

over the

> last month of using Bio-Kult and trimming down some things in her

diet, but

> am seeing no difference at all in this last week without any cheese

and

> sourdough. I know (now) that she had some gut issues when she was a

baby,

> and a regression back in '99 after an antibiotic, but currently,

other than

> slight constipation, it hasn't been clear to me how bad her gut

issues might

> or might not be.

> How long should I keep her so, um, well, deprived? How long can

it take to

> be sure any influences of the gluten or casein are gone? Or how

critical is

> that? Or can I go ahead and try adding something back?

> I'm always scrambling to try to feed her a balanced diet and

keeping her

> from being unhappy about what she's allowed to eat, and I seem to

spend my

> life in the kitchen now :-/

>

> Take care,

> Alice - HSing mom to Alice (w/DS) born Thanksgiving Day 1995 :-)

> Hopewell Junction, NY http://www.frontiernet.net/~castella/

>

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