New to the Group

October 25, 2005

This is good advise.I think most of the members on

this group have learned from their own experience and

by educating themselves,that is why we seem

passionately opinonated and also because a lot of us

have suffered due to the indifferent atitude of the

medical community.Maybe that is the reason why we all

feel the need to help in whatever small way, so as to

alleviate some of the misery the undiagnosed/newbies

might otherwise have to endure.

But as advises,use your own discretion and dont

blindly follow the suggestions given.

Good Luck!

Puneet

--- " L. on " <res075oh@...> wrote:

> Hi, Misty. First, I think you will have to do a bit

> of research to

> educate yourself about your possible illnesses; and

> while you do please

> remember to take anything I or anyone else on the

> net tells you with a

> grain of salt.

>

> I think If I were you I would try to find a doc

> familiar with hormonal

> problems; maybe an endo. Then I would ask for a

> complete test program

> [blood, urine, saliva, whatever] that would provide

> evidence for normal

> or abnormal hormone levels.

>

> As for diet, I would suggest you check out two books

> from the library

> and read them, even if you don't want to follow the

> diets therein. They

> are written by authors with a great depth of

> knowledge as to what causes

> weight gain. One is THE ZONE by Dr. Barry Sears,

> and the other is THE

> SOUTH BEACH DIET, and I cannot remember the author.

> There is a wealth

> of knowledge about metabolism there. Weight gain is

> one of the things

> in life that just seems so unfair. I can eat a ton

> of junk food and yet

> I stay about 180 lb., while my wife eats a very

> healthy diet and always

> has to fight the pounds; so stop blaming yourself.

>

> Luck,

>

> >Message: 11

> > Date: Sun, 16 Oct 2005 18:27:15 -0000

> > From: " Misty " <majgh1@...>

> >Subject: New to the Group

> >

> >Hi Everyone,

> >

> > My name is Misty and as you can tell from the

> subject line I'm

> >new. I think I may have hypothyroidism but I'm not

> sure.

> >Everything I read tells me something different.

> I'm terrified of

> >going to the doctor and having him tell me I'm

> crazy or just looking

> >for an excuse because I'm overweight. But I don't

> think I'm crazy.

> >I've been overweight my ENTIRE life and I'm 22.

> Right now by

> >medical standards I'm morbidly obese (a label that

> I'm sure the

> >world could have done without). I don't eat

> anymore than anyone

> >else I know or anymore than I always have and no

> matter how much I

> >exercise I keep gaining weight slowly. I was

> really excited about

> >going to college because I was going to have to do

> a LOT of walking

> >and I was sure I would lose weight once I got away

> from my moma's

> >home cooking and into some regular exercise.

> Instead I just kept

> >gaining. Lately I've been feeling worse. I work a

> full time job

> >and go to graduate school which would tire anyone

> out but the way

> >I'm feeling is more. My body temperature is always

> around 96.5, my

> >feet are always painfully swollen, the outsides of

> my feet are too

> >sore to touch, when I walk anywhere I lose my

> breath and have to

> >stop, my knees ache all the time, my nails are

> brittle, I have

> >trouble sleeping sometimes and then sometimes I

> sleep so soundly

> >that I can't seem to pull myself out of sleep and I

> get depressed

> >sometimes and just feel like crying for hours but

> I'm regularly a

> >pretty happy person despite my size. My GP is

> always trying to tell

> >me that I am remarkably healthy for someone my

> size... my blood

> >pressure and sugar levels are normal. He acts like

> its all my fault

> >that I'm overweight and puts me on diets that never

> work. I was

> >thinking of taking Alvidar without seeing a doctor

> just so I

> >wouldn't have to go through the embarassment of

> another one telling

> >me I'm crazy. I'm sorry this email was sooo long.

> I just thought

> >someone here might understand what I'm going

> through and I would

> >finally have someone to talk to who understands.

> >

> >Thanks,

> >Misty

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 25, 2005

New to the Group

> > >

> > >Hi Everyone,

> > >

> > > My name is Misty and as you can tell from the

> > subject line I'm

> > >new. I think I may have hypothyroidism but I'm not

> > sure.

> > >Everything I read tells me something different.

> > I'm terrified of

> > >going to the doctor and having him tell me I'm

> > crazy or just looking

> > >for an excuse because I'm overweight. But I don't

> > think I'm crazy.

> > >I've been overweight my ENTIRE life and I'm 22.

> > Right now by

> > >medical standards I'm morbidly obese (a label that

> > I'm sure the

> > >world could have done without). I don't eat

> > anymore than anyone

> > >else I know or anymore than I always have and no

> > matter how much I

> > >exercise I keep gaining weight slowly. I was

> > really excited about

> > >going to college because I was going to have to do

> > a LOT of walking

> > >and I was sure I would lose weight once I got away

> > from my moma's

> > >home cooking and into some regular exercise.

> > Instead I just kept

> > >gaining. Lately I've been feeling worse. I work a

> > full time job

> > >and go to graduate school which would tire anyone

> > out but the way

> > >I'm feeling is more. My body temperature is always

> > around 96.5, my

> > >feet are always painfully swollen, the outsides of

> > my feet are too

> > >sore to touch, when I walk anywhere I lose my

> > breath and have to

> > >stop, my knees ache all the time, my nails are

> > brittle, I have

> > >trouble sleeping sometimes and then sometimes I

> > sleep so soundly

> > >that I can't seem to pull myself out of sleep and I

> > get depressed

> > >sometimes and just feel like crying for hours but

> > I'm regularly a

> > >pretty happy person despite my size. My GP is

> > always trying to tell

> > >me that I am remarkably healthy for someone my

> > size... my blood

> > >pressure and sugar levels are normal. He acts like

> > its all my fault

> > >that I'm overweight and puts me on diets that never

> > work. I was

> > >thinking of taking Alvidar without seeing a doctor

> > just so I

> > >wouldn't have to go through the embarassment of

> > another one telling

> > >me I'm crazy. I'm sorry this email was sooo long.

> > I just thought

> > >someone here might understand what I'm going

> > through and I would

> > >finally have someone to talk to who understands.

> > >

> > >Thanks,

> > >Misty

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

October 25, 2005

Hi Misty,

I had a thought that you should also check out the Thyroid helpers forum

on - one of the moderators there has a daughter a bout your age

who has been ill for many years as well and struggles with a lot of the

same things you do - and there are quite a few young people there - I

suggest this because I believe that its important to be able to talk to

people your own age and because when we are older as I am (47 - oops 48

- there goes another one LOL) there are a lot of issues involved with

ageing and hormones which simply would not be relevant to you.

I would suggest that you check out the Top docs list on Shomon's

website as well.....or find an osteopath in your area - it is crucial

you find a good doctor - some of us here self medicate but we're older

and have less to lose in a way - I would not recommend you do this at

your age - or at least not until you have tried everything else.

I totally understand why you would be embarrassed to go to the doctor -

they can be so insensitive and often just plain stupid - that's why its

important at this point to take some time to research and find a good

doc.

On 's website there are a lot of articles and in particular some

with the questions you should ask when you do find your new doc.

I hope this helps,

Kerry

New to the Group

Hi Everyone,

My name is Misty and as you can tell from the subject line I'm

new. I think I may have hypothyroidism but I'm not sure.

Everything I read tells me something different. I'm terrified of

going to the doctor and having him tell me I'm crazy or just looking

for an excuse because I'm overweight. But I don't think I'm crazy.

I've been overweight my ENTIRE life and I'm 22. Right now by

medical standards I'm morbidly obese (a label that I'm sure the

world could have done without). I don't eat anymore than anyone

else I know or anymore than I always have and no matter how much I

exercise I keep gaining weight slowly. I was really excited about

going to college because I was going to have to do a LOT of walking

and I was sure I would lose weight once I got away from my moma's

home cooking and into some regular exercise. Instead I just kept

gaining. Lately I've been feeling worse. I work a full time job

and go to graduate school which would tire anyone out but the way

I'm feeling is more. My body temperature is always around 96.5, my

feet are always painfully swollen, the outsides of my feet are too

sore to touch, when I walk anywhere I lose my breath and have to

stop, my knees ache all the time, my nails are brittle, I have

trouble sleeping sometimes and then sometimes I sleep so soundly

that I can't seem to pull myself out of sleep and I get depressed

sometimes and just feel like crying for hours but I'm regularly a

pretty happy person despite my size. My GP is always trying to tell

me that I am remarkably healthy for someone my size... my blood

pressure and sugar levels are normal. He acts like its all my fault

that I'm overweight and puts me on diets that never work. I was

thinking of taking Alvidar without seeing a doctor just so I

wouldn't have to go through the embarassment of another one telling

me I'm crazy. I'm sorry this email was sooo long. I just thought

someone here might understand what I'm going through and I would

finally have someone to talk to who understands.

Thanks,

Misty

January 13, 2006

In a message dated 1/13/06 scifli writes:

> How about enhanced soy milk?

Soy is not recommended for cancer unless it is fermented.

> I have been taking supplements...zinc, vitamin E, vitamin c, >selenium,

glucosamine and chondroitin.

Chondroitin has been linked to cancer. Just take Glucosamine and MSM

together.

> Is there any place where Barlean's flax oil can be purchased for less than

$28.95 for a 32 oz. bottle?

>

Barleans [online] will sell wholesale to cancer patients.

January 13, 2006

Simon: This is not but I wanted to comment on a few things, I went to a

site - its Dr Burzynski's site - and got his number and called, his sec sent me

a file. its astronomical in price but.. there was a four or five page booklet

and it talked awhole lot about prostate cancer, all these vitamins and stuff to

do for it. He's an alternative doctor just in Texas I think. Take a look,

there's also another site I found through these wonderful people here. its

called Can Help and I haven't looked into it but it read great on the home page.

I have breast cancer and am doing the alternative treatment also. I have several

appts with naturopaths to get there take and maybe more wisdom then I have on

the subject. My surgeon wanted to do a mastectomy and chemo in four weeks. I

won't be seeing her anytime soon. Well good luck with this, there is definitely

hope and I pray you gleen for all of these posts and find whats right for you.

Frann

Simon Bronson wrote:

I had surgery (prostatectomy) and radiation for prostate cancer in

2000. I had 31/2 years cancer free. My PSA began rising in April

of 2004. Along with that, pain developed in my groin. At first the

pain was a 2 or 3 on a scale of 1 to 10. Last month I was rating it

at a 4 or 5. Today I'm calling it 1 to 2.

I skeptically began doing the fo/cc and ground flaxseeds 3 times

daily, along with eating fresh fruit, vegetables(esp. garlic and

tomatoes), fish, cod liver oil, etc. Before that, my diet

was 'typical american.' I think the pain has subsided because of

this. There were 2 days when it got back to a 4 or 5, but the rest

have been almost pain free. My plan is to skeptically continue the

Budwig Protocol. I want to especially thank Olson for her

insights on Budwig.

April 3, 2006

In a message dated 4/3/2006 6:03:05 A.M. Pacific Standard Time,

yonder@... writes:

Hello all,

I am on some other as well. I am 47, female,single, and

recently diagnosed with this arthritis, so I wanted to join and see

what I can learn about this condition. I don't have the skin

condition,though my Mom has it mildly. I have the Arthritis. My C-

reactive protein level was 32 and should have been 3.2 or lower the

Doctor said.I was told my inflammation level was very high. I was also

put on Methotrexate, 5 pills once w week for now. I also have

Fibromyalgia,Chronic Fatigue Syndrone,migraines, as so on..I just want

to say hi, and I will be reading along with you all. Look forward to

learning more about my condition.

Thanks so much,

Jeanette

April 3, 2006

Hi Jeanette,

I am relatively new to this group myself and find it a great help

and inspiration. I'm sure you will find out all you need to know

about and where you are at with this disease. You will realise that

you are not alone and do not need to suffer in silence, they are a

very robust and giving group of people who can offer real empathy to

you.

Ian.

>

> Hello all,

> I am on some other as well. I am 47, female,single,

and

> recently diagnosed with this arthritis, so I wanted to join and

see

> what I can learn about this condition. I don't have the skin

> condition,though my Mom has it mildly. I have the Arthritis. My C-

> reactive protein level was 32 and should have been 3.2 or lower

the

> Doctor said.I was told my inflammation level was very high. I was

also

> put on Methotrexate, 5 pills once w week for now. I also have

> Fibromyalgia,Chronic Fatigue Syndrone,migraines, as so on..I just

want

> to say hi, and I will be reading along with you all. Look forward

to

> learning more about my condition.

> Thanks so much,

> Jeanette

>

April 3, 2006

Hi Jeanette

Welcome. I also have PA and fibromyalia, with occaional migraines. I

believe there are a lot of us that have fibromyalia along with the PA. That's

so

we can have pain in our muscles as well as in our joints! lol You have to

find your humor wherever you can these days. Does the methotrexate make you

sick? I've taken it for almost 4 years now and it still gets to me whether I

take folic acid (which is supposed to help) or not. I find eating chocolate

after taking the pills helps me most. And peppermint tea. God Bless!

Janet in Ca

April 3, 2006

Hi Janet in CA,

Chocolate and peppermint tea........I like the sound of that!!!!

definately my kind of remedy!!!!

Ian.

>

> Hi Jeanette

> Welcome. I also have PA and fibromyalia, with occaional

migraines. I

> believe there are a lot of us that have fibromyalia along with

the PA. That's so

> we can have pain in our muscles as well as in our joints! lol

You have to

> find your humor wherever you can these days. Does the

methotrexate make you

> sick? I've taken it for almost 4 years now and it still gets to

me whether I

> take folic acid (which is supposed to help) or not. I find

eating chocolate

> after taking the pills helps me most. And peppermint tea. God

Bless!

> Janet in Ca

>

April 5, 2006

Thanks Ian !!!

Jeanette French

[ ] Re: New to the Group

Hi Jeanette,

I am relatively new to this group myself and find it a great help

and inspiration. I'm sure you will find out all you need to know

about and where you are at with this disease. You will realise that

you are not alone and do not need to suffer in silence, they are a

very robust and giving group of people who can offer real empathy to

you.

Ian.

April 5, 2006

Hi Janet:

Sorry for my delay in answering, been under the weather.

I haven't had a long treatment with it yet. I took it for 6 weeks, had the blood

work done, missed a week for that, went back on a week, dizzy, and got a sinus

infection, which I keep getting chronically, and so I am off it again. Doc said

can't take if sick. I also take the B12 as I was low in that. I didn't notice

feeling sick from it, but this sinus infection has made me really sick to my

stomach, just started anti biotics again.....Thanks for the welcome !!

Jeanette French

Re: [ ] New to the Group

Hi Jeanette

Welcome. I also have PA and fibromyalia, with occaional migraines. I

believe there are a lot of us that have fibromyalia along with the PA.

That's so

we can have pain in our muscles as well as in our joints! lol You have to

find your humor wherever you can these days. Does the methotrexate make you

sick? I've taken it for almost 4 years now and it still gets to me whether I

take folic acid (which is supposed to help) or not. I find eating chocolate

after taking the pills helps me most. And peppermint tea. God Bless!

Janet in Ca

April 7, 2006

Jeanetta,

Your story sounded alot like mine so had to email you. I have suffered

with sinus infections so bad. Seems like I was not normal case either. Just

seems to hit all of a sudden by being dizzy. The being dizzy just knocks me

down and so sick to my stomach. Usually it takes from 3 to 4 rounds of

antibiotics to finally get rid of it. Been on Enbrel for over a year but have

to get off the Enbrel about 3 months then when I go back on it it seems like it

does not work as good. Just wanted you to know you are not alone. I hate it

when my sinuses are bad cause it makes me soooo sick. Blessings, Zoella

" The only people to get even with are those who have helped you. "

---------------------------------

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min

with Messenger with Voice.

April 7, 2006

Hi Zody:

Thanks for the email. Yes, I agree, the sinus infections really knock you down.

I get so weak. I usually do ok with one round, but a 3-4 weeks later I have it

back. I don't know if I will ever find out if the Mexotrxate works. I have to go

off it everytime I get sick, so it is up and down. Not good really.

Thanks