Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 My new Doc is running all the Igenex co-infection tests on me now. From what I understand I tested Negative for Babesia earlier, but I guess my old doc did not test for the ones that are on the west coast (Uh, I live in california). Thank you for your input. Hope your daughter is 100% =). --- jblral <jblral@...> wrote: > Joe: Has your LLMD evaluated you for coinfections? > Even though she > tested negative for bartonella, my daughter's doc > suspected she had > it. When he started treating her for it anyway, she > showed a big burst > of improvement. > > Also, I've come to believe that it's very important > to address > detoxification issues. As one doctor put it: " The > body of a > chronically ill person is like New York City during > a garbage strike. " > > Sorry you've suffered so much. Best of luck to you. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 You also need to do research on the treatment you are currently on. For learning common treatment ideas: I would start at _http://www.ilads.org/_ (http://www.ilads.org/) There is a herb book, Healing Lyme by Buhner, that is pretty popular. I give my son digestive enzymes with his minocycline to help " uncloak " the lyme. I give him his minocycline in the morning and a bunch of herbs in the evening. He is living as normals, whereas before he was autistic. Start by researching the meds you are on. For example, I researched minocycline and found out that it will make your thyroid and bones grey unless you take Vitamin C daily, and that it won't work well if you take it at the same time that you take minerals. Thus, research because docs don't tell you these things. Some things I do are methyl B12 powder, epsom-salt cream, multivitamin, chewable folic acid, niacin (flush-type only), extra D3, digestive enzymes, buffered Vit. C, turmeric, ginger root, milk thistle, modified citrus pectin, cod liver oil. Most of this is stuff I learned before I learned it was lyme making us all sick. Thus, I am researching lyme now, and will be changing things after I learn more. But this gets us living as normals. Heidi N **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Are you aware of the California Lyme group? Great for connecting with others in your region. CaliforniaLyme/ > > > Joe: Has your LLMD evaluated you for coinfections? > > Even though she > > tested negative for bartonella, my daughter's doc > > suspected she had > > it. When he started treating her for it anyway, she > > showed a big burst > > of improvement. > > > > Also, I've come to believe that it's very important > > to address > > detoxification issues. As one doctor put it: " The > > body of a > > chronically ill person is like New York City during > > a garbage strike. " > > > > Sorry you've suffered so much. Best of luck to you. > > > > D. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Joe, I had Lyme (still have it, as you never totally get rid of it), but no symptoms for over 2 years now. Some advice my LLMD gave me is that you should track your progress every 3 months. Your LLMD should be looking at your Lyme loads and continue to look for possible co-infections that may be stopping you from getting well. You must first treat the co-infection and then the Lyme. I agree with the other response, you should look at balancing your traditional LLMD treatment supplemented with a holistic treatment. Your LLMD should be aware of everything you decide to do regarding supplemental treatment and should be able to advise you on what would be best to bolster the anti-biotic treatment. You must be your own advocate regarding your treatment. Insist, politely :-) I might add, that your LLMD is trying every possible avenue of treatment. Keep a log and track your progress every three months. Be well, > > I've had Lyme for a year now. I didn't know what it was for the first > 4 months. I tested positive for Igenex IGG IGM. > > I've been on antibiotics for 7 months now and I don't feel like I am > going to be well anytime soon. Every time I start getting well I have > a relapse. > > I feel helpless. I stopped working, thinking that if I took it easy > and rested I would have a better chance at eradicating it from my system. > > I've done everything my LLMD has told me to do, and still I'm not > feeling great. > > I don't know what I am supposed to do. Do I go back to work and hope > that I can deal with it? I know that it is near impossible to get > disability with Lyme. > > What do the rest of you chronic people do? I know I may never be able > to get this into remission, it seems a lot of people aren't able to. > > I don't think I can work a normal job anymore. Do I just spend the > rest of my money and hope that I get better in time before I run out > of money? > > At wits End > > Joe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 How do you test lyme loads? Is that the CD 57 test? -------------- Original message -------------- From: LymeAngl@... In a message dated 12/7/2007 3:25:02 P.M. Mountain Standard Time, @... writes: Joe, I had Lyme (still have it, as you never totally get rid of it), but no symptoms for over 2 years now. Some advice my LLMD gave me is that you should track your progress every 3 months. Your LLMD should be looking at your Lyme loads and continue to look for possible co-infections that may be stopping you from getting well. You must first treat the co-infection and then the Lyme. I agree with the other response, you should look at balancing your traditional LLMD treatment supplemented with a holistic treatment. Your LLMD should be aware of everything you decide to do regarding supplemental treatment and should be able to advise you on what would be best to bolster the anti-biotic treatment. You must be your own advocate regarding your treatment. Insist, politely :-) I might add, that your LLMD is trying every possible avenue of treatment. Keep a log and track your progress every three months. Be well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 , When you said your Doctor checks your Lyme loads, which test are you referring to and what are recovered Lyme loads supposed to be? Dagmar **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 Dagmar, They were the IGenex tests as well as full blood work ups periodically to check my over all health. I saw her every six weeks and she would have me first tell her my progress. After I gave her my details on how I was feeling and reviewed in detail any anomalies she would THEN tell me if my Lyme load had gone up or down and what she was expecting me to say after I told her how I was feeling. She used her 15+ years of clinical Lyme experience to determine my status before she would go to the tests. I believe she did this on purpose because none of the tests are 100% accurate and Lyme is better diagnosed and treated based on how the patient is feeling and progressing. We all know that Lyme and its associated diseases can hide so the tests results were used as a secondary tool to backup her clinical diagnosis and to adapt her treatment based on my progress. There are many great people on this board with a wealth of Lyme experience (diagnosing, testing, treating, etc...). Use them as a vehicle for your research, but at the end of the day Lyme is a very specific disease. Every case is different and every individual must find what works for them. I believe that there is hope that everyone can find the right treatment but you must be objective and become your own advocate. I was trapped in the darkness of Lyme for a long long time, not knowing what was destroying my life and putting the future of my family at risk. Luckily my wife asked my GP to run a test for Lyme after I had seen countless specialists and was severely depressed. LUCKILY I came up positive for Lyme. I thought my problem was solved until I found out how complicated Lyme and its associated diseases are. Same old story as many in this group. The best advice I received from this board was to find a GREAT LLMD. Someone that has over 10+ years successfully treating Lyme and interview them as you would interview someone for a job. If their not interested in answering some questions for you then their not the doctor you want for this disease. The next best information was to research a holistic healer who had experience with Lyme that could help me focus on what would be the best supplements to bolster the Lyme treatment I was receiving from my LLMD. Not only to help fight the Lyme but to balance out the abx treatment. I let all of my healers know that my Lyme LLMD was the boss and in charge of all of my treatments and that I expected them to work as a team. I would go into my appointments prepared with a list of all of my supplements and treatments and my doctor would review them with me. You should be sure that you have one quarterback and many other teammates that will assist. Gradually I added in a protein diet and exercise (as much as I was physically able because at one point I couldn't get off the couch to go to the bathroom by myself and had major neuro symptoms). Sorry for the long winded answer. I just feel strongly that everyone with Lyme (including myself, my wife and my son Dr. treated him and got him well!) need to develop an individual plan that works for them. You need to focus on getting better! Decide who is going to be your quarterback and teammates and then focus on seeing results. If you don't see any results then adapt your plan until you do. Make small modifications at first, don't give up on one plan and jump to another or you will never see the results your looking for. I can't tell you what is right for you but I can tell you I had many times when I didn't see any results and thought there was no hope. That's when I would modify my plan and over the long run became fully symptom free. It's not an easy journey but it is a journey that's worth fighting for! I owe a debt of gratitude for the good people in this group who helped me and my family to be symptom free from Lyme for over two years! Thank you all! Be well, > > , > > When you said your Doctor checks your Lyme loads, which test are you > referring to and what are recovered Lyme loads supposed to be? > > Dagmar > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 I would like to know what led you to the doctor to begin with. Was it symptoms? If so, what were they? I'm also hoping that your doctor ran a complete hormonal panel to see what else may be out of balance besides testosterone. Determining whether its primary or secondary hypogonadism also determines your treatment. You don't just start to throw testosterone at the situation. And please do tell us that they did a PSA test and checked your prostate before administering testosterone. Giving testosterone to a man suceptable to prostate cancer is like putting fuel on a fire. They may also do a bone density scan. There's a direct connection between low testosterone and osteoporosis. In addition, they may do a MRI on the pituitary gland (the master hormone gland) to rule out any possible tumors. This is what they did to me before they started giving me testosterone. My treatment has varied over the past three years. I started on patches and gels to no avail. For some people they simply don't work so monitor your levels and especially your symptoms (if any). Later I moved to injections and it took me a long time to find a program for me. But with help from this forum I was able to find something that works for me. You still have a long road ahead so be patient. If the patches and gels don't work you'll probably move to injections. Tell the group what your injection schedule will be. We know what works and what doesn't through experience although most of us had to learn the hard way. And if you're not getting anywhere with your doctor you may have to change doctors. Most of us have probably been to at least 5 doctors before something worked out. Do not allow your doctor to blame his failures in treatment on you and tell you to see a shrink like my first doctor. We are not substitutes for credible medical advice but rather guys with a lot of experience. I hope we can be of some help. P.S. I didn't like patches. They didn't work for me and I found it embarrasing when they fell off at work or at a restaraunt, you see the patch on the floor, you know its yours, that kind of thing. venaraoh <chris@...> wrote: Hi Guys. I'm 39 and was just recently diagnosed with low T, in the 230 range. My pcp has prescribed Androderm 5mg patches to me. I am applying my first patch tonight, and wanted to ask the group how long I can expect it to take before feeling the benefits (or negatives) of using the patch. I've never used anything like this before, so I'm completely clueless. I've been struggling to loose weight for the past 3 years, and it just seems to keep piling on. General energy level is very low, as is my sex drive. Thank you in advance. Chris --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Welcome you landed in the right spot, more test are good, ie " estrogen " may be your major problem as is indicated by your weight gain. Estrogen needs fat to store itself, for some unknown at present reason, your body started producing far more estrogen than you truly need. Estrogen needs fat to store itself. Any number of things can upset your hormonal balance, medications and or mother nature turned me T/E levels backwards. I needed a bra, and larger clothes, I now use arimidex to keep my estrogen level down, I think thirty to one, T vs E is good for most. I imagine yours is close to two T to one E, I use HCG shots to encourage my testicles to produce more T. It works and keeps my weight in check. Ascertain you have a good docter, who will work with you over time, six months to a year, or more, ask questions here to verify what your dock is doing. Most MD's have little to no training in hormones, my guess would be, less than ten percent know how to treat your situation, correctly. kind regards david New to the group > Hi Guys. > > I'm 39 and was just recently diagnosed with low T, in the 230 range. > My pcp has prescribed Androderm 5mg patches to me. > > I am applying my first patch tonight, and wanted to ask the group how > long I can expect it to take before feeling the benefits (or > negatives) of using the patch. > > I've never used anything like this before, so I'm completely clueless. > > I've been struggling to loose weight for the past 3 years, and it just > seems to keep piling on. General energy level is very low, as is my > sex drive. > > Thank you in advance. > > > Chris > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi first let me ask did your Dr. do all the testing possable to try to find our why your levels are so low. If not think about not going on this patch once you start on TRT it every hard to find out way your so low. Things that need to be tested are the following. First you need to know if your Primary meaning your testis are not keeping up or if your secondary meaning your pituitary gland in your brain is not sending the messages to your testis to make testosterone if your Estradiol is good at about 20pg/ml and your LH and FSH are very low this can mean you have a pituitary problem and need an MRI done on it to rule out a tumor. Also your Liver can be fatty, you can have bad Adrenals and Thyroid the list is long as to what can make your levels low. Try and get the following tests done. This is taken from Dr. 's site at www.allthingsmale.com in TRT: A Recipe for Success. • Total Testosterone • Bioavailable Testosterone (AKA " Free and Loosely Bound " ) • Free Testosterone (if Bioavailable T is unavailable) • DHT • Estradiol (specify the Extraction Method, or " sensitive " assay for males) • LH • FSH • Prolactin • Cortisol • Thyroid Panel get the following. * TSH But this lab is only for diagnosis of hypopituitary, NOT to diagnose or dose your hypo by. * Free T4 and Free T3 (note the word “free”) * Thyroid Antibodies (anti-TPO and TgAb. YOU NEED BOTH.) * Ferritin (and do stress FERRITIN, not just RBC) * B-12 & DHEA * Reverse T3 • CBC • Comprehensive Metabolic Panel • Lipid Profile • PSA (if over 40) Also I need to tell you Patches are dam old they don't stay on when they do and you take them off you have a bad red rash that needs a HC cream to help it heal. You see each moring you put the patch on a different spot so by the time your back to the first one it may still be a red rash. You will end up with red marks all over your body. If you do like I told you here and you find out why and you need to add in Testosterone then ask your Dr. for Andorge or Testim it's a gel you rub on your upper arms and shoulders every morning after a shower. You start a a low 5 grams dose so get retested in 2 weeks to be sure the gel is working and it's a high enough dose. If not you may need more like 10 grams. Doing this you can see your self feeling better in 2 weeks if the gel is working. Still it takes time you need your Total and Free T levels up into the upper 1/3 of your labs range for a young man. And you need to keep your Estradiol " E2 " down between 10 to 30 best at 20 pg/ml some do good at 40. If you don't keep this in check you will take away from the good the Testosterone is doing and this can kill your sex life. venaraoh <chris@...> wrote: Hi Guys. I'm 39 and was just recently diagnosed with low T, in the 230 range. My pcp has prescribed Androderm 5mg patches to me. I am applying my first patch tonight, and wanted to ask the group how long I can expect it to take before feeling the benefits (or negatives) of using the patch. I've never used anything like this before, so I'm completely clueless. I've been struggling to loose weight for the past 3 years, and it just seems to keep piling on. General energy level is very low, as is my sex drive. Thank you in advance. Chris Co-Moderator " Don't believe anything you hear and only half of what you see. " Phil --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Hey - welcome to the group - Yes 230 is low and will make you feel as you have described. The 5 mg patch is considered by most to be a low dose and a pain in the ass (no pun intended. The negatives are they have a tendency to cause skin irritations - mine left a red bullseye where ever I stuck it. Additionally I did not like having to stick 2 of them on everyday. I did not absorb the T at all - not to say you won't - we are all different. This is pretty text book by your PCP to prescribe a low dose easy to use method - it just didn't work for me. Next tried the gel and still did not get the benefit - I had to go to shots which I prefer and have had great results. You should begin to see benefits quickly - within a few days if they work for you. First thing is usually energy followed by night time erections. Good Luck and keep us posted - it really is a trial and error process. Arkansas venaraoh <chris@...> wrote: Hi Guys. I'm 39 and was just recently diagnosed with low T, in the 230 range. My pcp has prescribed Androderm 5mg patches to me. I am applying my first patch tonight, and wanted to ask the group how long I can expect it to take before feeling the benefits (or negatives) of using the patch. I've never used anything like this before, so I'm completely clueless. I've been struggling to loose weight for the past 3 years, and it just seems to keep piling on. General energy level is very low, as is my sex drive. Thank you in advance. Chris --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Thanks Arkansas. I have to agree that that patches suck it hard. They fall off, leave marks and they burn my skin... and all of that for nothing so far. No return of NTEs no increased energy, libido or anything else for that matter. I have asked to be switched to Androgel, and I now have an rx waiting for me to pickup after work. I'll give that a try before moving on to more sever measures. My pcp will not administer shots, so who do I go to? I have a urologist, would he be the right guy to ask? I live in the Dallas Texas area, so if anyone knows a good hormone specialist in the area (thats in - network with United preferably) please let me know. Thanks again for the response. This is a frustrating process to go through. Unlike some, I was actually happy to hear that I had low T. I was happy because until then I didnt know WHAT was wrong with me. I feel a lot better knowing there actually IS something wrong, and that it is treatable. Chris On 1/23/08, Dan Meatheany <dmeatheany@...> wrote: > > Hey - welcome to the group - Yes 230 is low and will make you feel > as you have described. The 5 mg patch is considered by most to be a low dose > and a pain in the ass (no pun intended. The negatives are they have a > tendency to cause skin irritations - mine left a red bullseye where ever I > stuck it. Additionally I did not like having to stick 2 of them on everyday. > I did not absorb the T at all - not to say you won't - we are all different. > This is pretty text book by your PCP to prescribe a low dose easy to use > method - it just didn't work for me. Next tried the gel and still did not > get the benefit - I had to go to shots which I prefer and have had great > results. You should begin to see benefits quickly - within a few days if > they work for you. First thing is usually energy followed by night time > erections. Good Luck and keep us posted - it really is a trial and error > process. > > Arkansas > > venaraoh <chris@... <chris%40venaro.net>> wrote: > Hi Guys. > > I'm 39 and was just recently diagnosed with low T, in the 230 range. > My pcp has prescribed Androderm 5mg patches to me. > > I am applying my first patch tonight, and wanted to ask the group how > long I can expect it to take before feeling the benefits (or > negatives) of using the patch. > > I've never used anything like this before, so I'm completely clueless. > > I've been struggling to loose weight for the past 3 years, and it just > seems to keep piling on. General energy level is very low, as is my > sex drive. > > Thank you in advance. > > Chris > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Patches also make me break out with a rash and if perspired at all, they would not stay on. Ended up trying to put more tape on top of that and it still didn't work. Rash got worse and even though I tried it for one month, there was not noticeable difference positively. I was diagnosed with 43 T a few weeks ago and have been on Adrogel, 5 mg. for two weeks and nothing yet. I think the the dose is too low for me, but I understand that MDs will try a conservative approach first. I have a feeling I will end up on shots like Dan. I have felt bad for 5 years so I am really excited about the potential of having a little more energy, enthusiasm for life, not to mention the ability to get an erection. Good Luck. P.s. I've done a lot of research in this area since being diagnosed and I think it is worth the trouble of going to specialist to find out why you are low. Dan Meatheany <dmeatheany@...> wrote: Hey - welcome to the group - Yes 230 is low and will make you feel as you have described. The 5 mg patch is considered by most to be a low dose and a pain in the ass (no pun intended. The negatives are they have a tendency to cause skin irritations - mine left a red bullseye where ever I stuck it. Additionally I did not like having to stick 2 of them on everyday. I did not absorb the T at all - not to say you won't - we are all different. This is pretty text book by your PCP to prescribe a low dose easy to use method - it just didn't work for me. Next tried the gel and still did not get the benefit - I had to go to shots which I prefer and have had great results. You should begin to see benefits quickly - within a few days if they work for you. First thing is usually energy followed by night time erections. Good Luck and keep us posted - it really is a trial and error process. Arkansas venaraoh <chris@...> wrote: Hi Guys. I'm 39 and was just recently diagnosed with low T, in the 230 range. My pcp has prescribed Androderm 5mg patches to me. I am applying my first patch tonight, and wanted to ask the group how long I can expect it to take before feeling the benefits (or negatives) of using the patch. I've never used anything like this before, so I'm completely clueless. I've been struggling to loose weight for the past 3 years, and it just seems to keep piling on. General energy level is very low, as is my sex drive. Thank you in advance. Chris --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 I originally used my urologist but my personal opinion is you are best with a Dr. that is willing to work with you (no God complex). Most doctors are willing to work with you if they are of the opinion you have done your homework and have valid data to support your request. The sad part is that most doctors go by the text book result - shich is antiquated because the demand is not there - we are a small group in the big picture. I am currently swithching to my PCP because my URO is retiring. He also is willing to work with me because I have brought him information to back my request and proven to him I know whats going on when it comes to things like the affect of too much or too little T, T conversion to estradiol via the aromatase pathway and the affects of using HCG. All of this information can be found in the file section of this group. I also monitor and trend my weely dosages and test results. The only down side I see to androgel (assuming it works for you - you absorb it OK) is the cost - it is still very expensive as compared to shots which are cheap and effective. It really is a matter of being able to pay for it and personal preference - you need to try it out. Giving yourself shots is easy to do and can be demonstrated by any of the nurses or doctors. There are even documents in the file section that shows you how to. I can't stress how important it is to monitor E2 (estradiol) as well as total T. Keep us posted and don't be afraid to ask - this is a very experienced group. Arkansas Gunderson <chris@...> wrote: Thanks Arkansas. I have to agree that that patches suck it hard. They fall off, leave marks and they burn my skin... and all of that for nothing so far. No return of NTEs no increased energy, libido or anything else for that matter. I have asked to be switched to Androgel, and I now have an rx waiting for me to pickup after work. I'll give that a try before moving on to more sever measures. My pcp will not administer shots, so who do I go to? I have a urologist, would he be the right guy to ask? I live in the Dallas Texas area, so if anyone knows a good hormone specialist in the area (thats in - network with United preferably) please let me know. Thanks again for the response. This is a frustrating process to go through. Unlike some, I was actually happy to hear that I had low T. I was happy because until then I didnt know WHAT was wrong with me. I feel a lot better knowing there actually IS something wrong, and that it is treatable. Chris On 1/23/08, Dan Meatheany <dmeatheany@...> wrote: > > Hey - welcome to the group - Yes 230 is low and will make you feel > as you have described. The 5 mg patch is considered by most to be a low dose > and a pain in the ass (no pun intended. The negatives are they have a > tendency to cause skin irritations - mine left a red bullseye where ever I > stuck it. Additionally I did not like having to stick 2 of them on everyday. > I did not absorb the T at all - not to say you won't - we are all different. > This is pretty text book by your PCP to prescribe a low dose easy to use > method - it just didn't work for me. Next tried the gel and still did not > get the benefit - I had to go to shots which I prefer and have had great > results. You should begin to see benefits quickly - within a few days if > they work for you. First thing is usually energy followed by night time > erections. Good Luck and keep us posted - it really is a trial and error > process. > > Arkansas > > venaraoh <chris@... <chris%40venaro.net>> wrote: > Hi Guys. > > I'm 39 and was just recently diagnosed with low T, in the 230 range. > My pcp has prescribed Androderm 5mg patches to me. > > I am applying my first patch tonight, and wanted to ask the group how > long I can expect it to take before feeling the benefits (or > negatives) of using the patch. > > I've never used anything like this before, so I'm completely clueless. > > I've been struggling to loose weight for the past 3 years, and it just > seems to keep piling on. General energy level is very low, as is my > sex drive. > > Thank you in advance. > > Chris > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Arkansas 6 montrhs ago I switched from my uro to PCP for testestorone injections and blood work. Uro had me on 300 mg of T every three weeks. Did not work well. I was at my PCP for my back pain and talked to him about T. He said Jack I can do that for you. It was 3 weeks scince my last shot so he did the blood work. T was down to 118. We started 200 mg every two weeks. Blood work T was down to 120 again. He did a complete T that time and I asked for an E2 which he did. The E2 was 24. Went to 600 mg every two weeks. Took two shots to get it all in. I went back and said Doc lets do 300 every 10 days. He agreed. I have been doing that now for just over 2 months. Feel better and sex drive is much better and I don't hit bottom. After 2 uros and years of T treatment from gels, paches, to shots my PCP was the guy that got it right. Conclusion: Uro's are to worried about cancer and treat to conservitely. Also being on pain meds for my back made my T drop real fast. Jack in West Tennessee > > Hi Guys. > > > > I'm 39 and was just recently diagnosed with low T, in the 230 range. > > My pcp has prescribed Androderm 5mg patches to me. > > > > I am applying my first patch tonight, and wanted to ask the group how > > long I can expect it to take before feeling the benefits (or > > negatives) of using the patch. > > > > I've never used anything like this before, so I'm completely clueless. > > > > I've been struggling to loose weight for the past 3 years, and it just > > seems to keep piling on. General energy level is very low, as is my > > sex drive. > > > > Thank you in advance. > > > > Chris > > > > --------------------------------- > > Never miss a thing. Make your homepage. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hey Jack - sounds like you burn up T very fast - have you ever had a check of your T shortly after a shot? 300 mg every 10 days is a large dose. Most can get by with half that much or less. Could be you need that much. Might consider smaller more frequent shots to help levelize the peak and trough even more. I shoot 50 mg 2 times a week - I weigh in at 160 #s and this keeps my total T around 700. Arkansas JACKPINNER <jpinner1@...> wrote: Arkansas 6 montrhs ago I switched from my uro to PCP for testestorone injections and blood work. Uro had me on 300 mg of T every three weeks. Did not work well. I was at my PCP for my back pain and talked to him about T. He said Jack I can do that for you. It was 3 weeks scince my last shot so he did the blood work. T was down to 118. We started 200 mg every two weeks. Blood work T was down to 120 again. He did a complete T that time and I asked for an E2 which he did. The E2 was 24. Went to 600 mg every two weeks. Took two shots to get it all in. I went back and said Doc lets do 300 every 10 days. He agreed. I have been doing that now for just over 2 months. Feel better and sex drive is much better and I don't hit bottom. After 2 uros and years of T treatment from gels, paches, to shots my PCP was the guy that got it right. Conclusion: Uro's are to worried about cancer and treat to conservitely. Also being on pain meds for my back made my T drop real fast. Jack in West Tennessee > > Hi Guys. > > > > I'm 39 and was just recently diagnosed with low T, in the 230 range. > > My pcp has prescribed Androderm 5mg patches to me. > > > > I am applying my first patch tonight, and wanted to ask the group how > > long I can expect it to take before feeling the benefits (or > > negatives) of using the patch. > > > > I've never used anything like this before, so I'm completely clueless. > > > > I've been struggling to loose weight for the past 3 years, and it just > > seems to keep piling on. General energy level is very low, as is my > > sex drive. > > > > Thank you in advance. > > > > Chris > > > > --------------------------------- > > Never miss a thing. Make your homepage. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 > > Hi everyone, > > I am a mother of two girls. My 3 year old was recently diagnosed with > autism. She has terrible yeast overgrowth which I have been working > on for the past 2 months. She is on the SC diet, but I'm not having > much success with it. > > I am also breastfeeding my 5 month old baby girl. > > I am concerned about my 5 month old having yeast issues as well and > need to start this program asap! I would like to put my 3 year old on > it as well. I have no idea where to start. I am looking for stage 1 > recipes. Ruby is a great eater now, but I have to have things made > for her and they have to be finger foods or foods she can eat with a > spoon. > > Is it okay to do this while breastfeeding? I really don't want to > pass my yeast issues on to the baby. ==>Hi . Welcome to our group. You have come to the right place to help you with your children. For you baby and 3 year old see " Candida Treatments for Babies & Children " ; http://www.healingnaturallybybee.com/articles/baby.php Also see the autism & candida connection articles: http://www.healingnaturallybybee.com/articles/menu2_1_1.php There are no Stage 1 recipes listed, however there are Food Lists: http://www.healingnaturallybybee.com/articles/menu2_2.php One of the most important article is: " Curing Candida, How to Get Started " ; http://www.healingnaturallybybee.com/articles/menu2_8.php Please Note: My website is still under construction so the recipes or success stories are not posted yet, however you can find all of them in our Group's Files (left menu). All the articles are there! To find articles use the Site Map on my website (left menu) and use your Edit, Find on this page, function on the top of your browser. Yes, you can do this program while breastfeeding, except some of the antifungals, i.e. clove oil, oil of oregano, and Pau D'Arco. The SC diet contains foods that feed candida. We are here to help and support you so after reading please get back to us with questions and concerns. We have a few mothers too, who will help you. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2008 Report Share Posted February 5, 2008 > > Hello Everyone, > > I would like to introduce myself. My name is Amber. I found this website two days ago after I came to suspect that my health problems may be caused by candida overgrowth, candida being brought to mind after my first, but very persistent vaginal yeast infection acquired about a month ago. > > For those who would like to commiserate and for the sake of potential progress, here are my symptoms: > > -chronic fatigue and lethargy > -extreme thirst (I drink 4-5 liters of water/day to keep my parched throat, dry eyes and nose, and shriveled fingertips under control) > -dry skin, patches of flakey rash on my face > -frequent toothaches > -extremely heavy periods w/ many large clots > -constipation > -constant bloating and gas > -dark circles under eyes > -elevated liver enzymes > -gluten intolerance > -high cholesterol (I'm only 25 years old and 5'7 " and 125 lbs.) > -frequent urination (I wake up at least three times every night to go) > -very low aerobic endurance, unable to build up through exercise > -iron deficiency anemia > -constant hunger > -poor long-term memory > -excessive falling hair > -all muscles tender to the touch > -dandruff > -restless leg syndrome > -frequent insomnia > -easy bruising > > > I followed a strict vegan diet from age 12 to 18, after which, due to failing health, switched to faithfully following all of the dietary principles of the Weston A. Price foundation <http://www.westonaprice.org/index.html> . My health did improve markedly (my mental health particularly), however, I still have the above symptoms in full force. > > In the past two days, I have already implemented much of the program, cutting out grains, fruits, high-carb veggies, nuts, and seeds. For years I have been consuming a lot of organic butter, virgin coconut oil, beef liver, homemade bone broths, celtic sea salt, raw lacto-fermented vegetables, and take cod liver oil, so I am considering the possibility that the additional restrictions on carbohydrates, dairy products, and mushrooms, as well as the addition of anti-fungals in this program will be helpful. > > I do have a question for anyone that cares to answer. Has anyone found any reliable laboratory testing that can provide some concrete evidence that candida overgrowth is indeed the source of one's health problems? Also, has anyone worked directly with a health practitioner that has proven knowledgeable and helpful in regards to your candida/digestion issues? ==>Hi Amber. Welcome to our wonderful group. There is " no " reliable laboratory test that conclusively and consistently prove the presence of candida overgrowth, however tests some have found it in some people some times. The most reliable test is Dr. Crook's Candida Questionnaire, found in my main candida article " How to Successfully Overcome Candida " . Yes, I too come via the Weston A. Price Foundation, but I wrote my first candida article over 20 years ago when I was curing my own candida. My program has evolved and changed significantly over the years to what it is today, particularly because of WAPF's information about good fats, oils, etc., and particularly because of The Optimal Diet created by Dr. Jan Kwasniewski, in Poland, who has been curing people of heart disease, diabetes, cancer, asthma, etc. for over 30 years; http://homodiet.netfirms.com/ If you are familiar with Weston A. Price you also know that cholesterol readings are a no issue when it comes to predicting future health problems, because the cholesterol theory is a total myth, not based on any truths. Also when your body is trying hard to heal it is detoxifying and during detoxification cholesterol will increase as well. Also thyroid problems, caused by candida as well, will cause cholesterol levels to increase. I caution you not to change over to this diet too fast, without also increasing your good fats high enough at the same time, because it may cause constipation - please see the article " Curing Candida, How to Get Started " ; http://www.healingnaturallybybee.com/articles/menu2_8.php There are many other members who have come from WAPF as well. Remember that candida is not cured by killing it off. It is only cured by building up the immune system so it becomes strong enough to " make " candida change back into the friendly organism it is supposed to be. It also takes 1 year of natural healing for every year you've been unwell, and for most people nowadays that is since before birth. So it takes time, patience, and persistence on the program long enough so the body will heal itself. Take good care. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2008 Report Share Posted February 5, 2008 You can try an Organic Acid Test (OAT) from Great Plains Labs. You can also try to look for a doctor with DAN (defeat autism now) training - they actually will treat for Candida! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 What medication(s)? How much are you taking? What were your lab results (all of them)? Do you have hypothyroidism or autoimmune thyroiditis? There is no way we can be as helpful as we can be without this information. Peace, --- deedran <deedranhughes@...> wrote: > Hello, my name is Deedra. I live in Wisconsin and I > am 25. I have > just joined the ground and I have just found out > within the last week > that I have hypothyroidism. I have had a large > increase in weight > over the past couple of years and have been trying > so hard to get it > off with no success. I got a trainer and I just > couldn't make it > happen and she is the one that prompted me to see my > doctor. I have a > family history of thyroid problems, my Granddaddy > had Graves Disease. > > So I have been on my meds now almost a week and I > was just curious > how is it for everyone else. How long before the > symptoms start to > die down. I have horrible fatigue headaches and > muscle soreness along > with being overweight. > > I actually had my thyroid tested back in 2003 and I > now know, after > getting a copy of my records from my last doctor, > that my thyroid was > low then. It is so frustrating to know that I could > have already been > on the road to getting better and getting my life > back on track but > my doctor did not pursue it. > > Any advice that anyone has to offer I would love to > hear it. I feel I > am fighting a lonely battle. My family is all very > small and doesn't > understand what I am going through and how hard I > have been working > to get nowhere. I have just been the fat sister who > eats to much or > isn't active enough when I really do lead a healthy > and active > lifestyle. > > I look forward to meeting everyone. Have a great > night. > Deedra > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Deedra! Welcome, from a fellow Wisconsinite! is correct. If we know your numbers, we can give you more info. I think it is criminal that your doctor did not let you know that your tests a couple of years ago showed you to be hypoT. I just don't get it. What is going on with these doctors. This is a great group you will learn a lot. Go to stopthethyroidmadness.com and Shoman's website at about.com. You will find a treasure of info. Keep us posted. Oh, where in WI are you. I am in Milwaukee. Venizia -- In hypothyroidism , " deedran " <deedranhughes@...> wrote: > > Hello, my name is Deedra. I live in Wisconsin and I am 25. I have > just joined the ground and I have just found out within the last week > that I have hypothyroidism. I have had a large increase in weight > over the past couple of years and have been trying so hard to get it > off with no success. I got a trainer and I just couldn't make it > happen and she is the one that prompted me to see my doctor. I have a > family history of thyroid problems, my Granddaddy had Graves Disease. > > So I have been on my meds now almost a week and I was just curious > how is it for everyone else. How long before the symptoms start to > die down. I have horrible fatigue headaches and muscle soreness along > with being overweight. > > I actually had my thyroid tested back in 2003 and I now know, after > getting a copy of my records from my last doctor, that my thyroid was > low then. It is so frustrating to know that I could have already been > on the road to getting better and getting my life back on track but > my doctor did not pursue it. > > Any advice that anyone has to offer I would love to hear it. I feel I > am fighting a lonely battle. My family is all very small and doesn't > understand what I am going through and how hard I have been working > to get nowhere. I have just been the fat sister who eats to much or > isn't active enough when I really do lead a healthy and active > lifestyle. > > I look forward to meeting everyone. Have a great night. > Deedra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Oh, Deedra I am so glad you found this group. Many of us here know how you feel. What meds are you on? cw -- New to the Group Hello, my name is Deedra. I live in Wisconsin and I am 25. I have just joined the ground and I have just found out within the last week that I have hypothyroidism. I have had a large increase in weight over the past couple of years and have been trying so hard to get it off with no success. I got a trainer and I just couldn't make it happen and she is the one that prompted me to see my doctor. I have a family history of thyroid problems, my Granddaddy had Graves Disease. So I have been on my meds now almost a week and I was just curious how is it for everyone else. How long before the symptoms start to die down. I have horrible fatigue headaches and muscle soreness along with being overweight. I actually had my thyroid tested back in 2003 and I now know, after getting a copy of my records from my last doctor, that my thyroid was low then. It is so frustrating to know that I could have already been on the road to getting better and getting my life back on track but my doctor did not pursue it. Any advice that anyone has to offer I would love to hear it. I feel I am fighting a lonely battle. My family is all very small and doesn't understand what I am going through and how hard I have been working to get nowhere. I have just been the fat sister who eats to much or isn't active enough when I really do lead a healthy and active lifestyle. I look forward to meeting everyone. Have a great night. Deedra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Hello All, Thanks so much for your help already. I am so glad that I found a group where people actually talk about why we are here! Ok so first off I live right out side of Madison. I haven't been in the area long, I am from Kentucky. I moved up here to go to school a little over a year ago and boy oh boy is it cold and deep in the IL snow! I was diagnosed with hypothyroidism. I am on Levothyroxin. The put me on the 50 MCG dosage. My doctor told me he wants to build me into it. I will have more blood work to determine if it needs to be raised. Is this correct? I hate to second guess doctors but I don't wanna be led down the wrong path... again. I have a strong history of hyperthyroidism and Graves Diseases, Dad, Grandaddy and my late Aunt. My Grandaddy actually lost an eye from Graves disease and have to have a glass eye most has adult life as they misdiagnosed his many times before getting it right, by then his eye had bulged so bad they couldn't get it fixed. Ok so I think I answered all the questions that were asked. Thanks in advance for helping me out. I dont like something going on in my body unless I know every part of it. Have a great day. Dee Crystal <sweetnwright@...> wrote: Oh, Deedra I am so glad you found this group. Many of us here know how you feel. What meds are you on? cw -- New to the Group Hello, my name is Deedra. I live in Wisconsin and I am 25. I have just joined the ground and I have just found out within the last week that I have hypothyroidism. I have had a large increase in weight over the past couple of years and have been trying so hard to get it off with no success. I got a trainer and I just couldn't make it happen and she is the one that prompted me to see my doctor. I have a family history of thyroid problems, my Granddaddy had Graves Disease. So I have been on my meds now almost a week and I was just curious how is it for everyone else. How long before the symptoms start to die down. I have horrible fatigue headaches and muscle soreness along with being overweight. I actually had my thyroid tested back in 2003 and I now know, after getting a copy of my records from my last doctor, that my thyroid was low then. It is so frustrating to know that I could have already been on the road to getting better and getting my life back on track but my doctor did not pursue it. Any advice that anyone has to offer I would love to hear it. I feel I am fighting a lonely battle. My family is all very small and doesn't understand what I am going through and how hard I have been working to get nowhere. I have just been the fat sister who eats to much or isn't active enough when I really do lead a healthy and active lifestyle. I look forward to meeting everyone. Have a great night. Deedra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Pam, welcome to our group. Your story is VERY familiar to many of us. My own story and yours differ only in minor details. What medications are you on for PA? Are you feeling any better? best regards, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 dear Pam, I too have had two neck surgeries...one in my thirties (before I knew the real cause) the second about1.5 years ago;;I thought that the early degeneration of my neck/upper back and low back was that " I must have damaged myself with all of the athletics I did in my life " . Since my PA had been so mild (only on my scalp/ears), until the swollen joints reared their ugly head I had no clue as what was wrong with me!!!...So the diagnosed took most of my life until it was solved...tell me you progression...... Dianne Quote Link to comment Share on other sites More sharing options...
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