Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi .It is nice to see you on today..I hope everyone is having a nice day today..I am not doing much..I might take my daughter fishing in the pond behind our house this afternoon..Once again hi to all and have a GREAT day!!!!! <ralexan@...> wrote: Hi Welcome to the group.Please keep us updated on the progress of your treatment. [ ] Re: New to the group> Hi,> I have just joined the group and would like to share my experience with> interferon treatment.> In 1998 I went on Interferon thru a protocol group with Drs. Schiff and> Jeffers at U of Miami (FL)- 10 million units 3xs per week for 6 mos.> I responded during treatment but rebounded afterwards.> Last year I did 6mos on PegIntron and Ribaviron and the same thinghappened.> Last night I started a new regime with Multiferon (not available in USA)that> I imported from Sweden. If the last 24 hrs is any indication - the side> effects are significantly less and I have a lot of energy today. Fatiguehas> been the worst indication of my Hep-C> More to come> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 I didn't have any side effects and it took 2 weeks to START feeling better. ----Original Message Follows---- From: " lmscrappy " <@...> Reply-hypothyroidism hypothyroidism Subject: New to the group Date: Tue, 08 Jul 2003 17:23:22 -0000 Hi, I'm new to the group. After going to the Doctor for the third time pushing and pushing because I KNEW something was not right she finally ordered blood tests and stopped screaming Menopause and Depression at me and lo and behold I needed synthroid. Which I started to take today. When will I feel better? What are the side effects? Curious. Thanks! Scrappy _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Hi, glad you are so scrappy and did the right thing for yourself. Most of us have gotten the " diet, exercise, and antidepressant " approach. You might want to look for a better doctor, read some good books. Some of us think $ynthroid sucks but it will probably help you for a while. Look at http://www.geocities.com/thyroide Gracia > Hi, I'm new to the group. After going to the Doctor for the third > time pushing and pushing because I KNEW something was not right she > finally ordered blood tests and stopped screaming Menopause and > Depression at me and lo and behold I needed synthroid. Which I > started to take today. When will I feel better? What are the side > effects? Curious. Thanks! > Scrappy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Well truthfully I think I've outgrown my family practitioner and I don't think she really even knows that much about it. I have just now found a new Dr. (have to drive a bit to get there) but I'm changing OB/GYN docs right now. Should I find an endocrinologist while I'm at it? I'm assuming so. Also does anyone go to a good one in the St. Louis area? I'm impatient and want results. I'm so sick of feeling sick. Thanks! > > Hi, glad you are so scrappy and did the right thing for yourself. Most of > us have gotten the " diet, exercise, and antidepressant " approach. You > might want to look for a better doctor, read some good books. Some of us > think $ynthroid sucks but it will probably help you for a while. Look > at http://www.geocities.com/thyroide > Gracia > > > Hi, I'm new to the group. After going to the Doctor for the third > > time pushing and pushing because I KNEW something was not right she > > finally ordered blood tests and stopped screaming Menopause and > > Depression at me and lo and behold I needed synthroid. Which I > > started to take today. When will I feel better? What are the side > > effects? Curious. Thanks! > > Scrappy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Great, you will get well if you are proactive. IMO it might save time, money, misery to check topdoc lists, call and ask questions. Good ones are Does doc do Free T3 and FREE T4 testing and not just go by TSH? Does doc prescibe Armour thyroid or just synthetics? IMO holistic docs are best and some of the worst horror stories are told about endos (ignorant, arrogant syndrome). Some places to look for docs: http://www.armourthyroid.com http://www.thyroid.about.com Gracia > Well truthfully I think I've outgrown my family practitioner and I > don't think she really even knows that much about it. I have just > now found a new Dr. (have to drive a bit to get there) but I'm > changing OB/GYN docs right now. Should I find an endocrinologist > while I'm at it? I'm assuming so. Also does anyone go to a good one > in the St. Louis area? > > I'm impatient and want results. I'm so sick of feeling sick. > > Thanks! > > > > > > Hi, glad you are so scrappy and did the right thing for yourself. > Most of > > us have gotten the " diet, exercise, and antidepressant " approach. > You > > might want to look for a better doctor, read some good books. Some > of us > > think $ynthroid sucks but it will probably help you for a > while. Look > > at http://www.geocities.com/thyroide > > Gracia > > > > > Hi, I'm new to the group. After going to the Doctor for the third > > > time pushing and pushing because I KNEW something was not right > she > > > finally ordered blood tests and stopped screaming Menopause and > > > Depression at me and lo and behold I needed synthroid. Which I > > > started to take today. When will I feel better? What are the > side > > > effects? Curious. Thanks! > > > Scrappy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 My personal opinion is get an endocrinologist. Sheila --- lmscrappy <@...> wrote: > Well truthfully I think I've outgrown my family > practitioner and I > don't think she really even knows that much about > it. I have just > now found a new Dr. (have to drive a bit to get > there) but I'm > changing OB/GYN docs right now. Should I find an > endocrinologist > while I'm at it? I'm assuming so. Also does anyone > go to a good one > in the St. Louis area? > > I'm impatient and want results. I'm so sick of > feeling sick. > > Thanks! > > > > > > Hi, glad you are so scrappy and did the right > thing for yourself. > Most of > > us have gotten the " diet, exercise, and > antidepressant " approach. > You > > might want to look for a better doctor, read some > good books. Some > of us > > think $ynthroid sucks but it will probably > help you for a > while. Look > > at http://www.geocities.com/thyroide > > Gracia > > > > > Hi, I'm new to the group. After going to the > Doctor for the third > > > time pushing and pushing because I KNEW > something was not right > she > > > finally ordered blood tests and stopped > screaming Menopause and > > > Depression at me and lo and behold I needed > synthroid. Which I > > > started to take today. When will I feel better? > What are the > side > > > effects? Curious. Thanks! > > > Scrappy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 My goodness!! It sounds like your family is having one heck of a time. I'm so sorry to hear that. Don't feel alone on the weight issue. I've had the same problem with weight for the past 5 years also. Those have been my most inactive years also. I think it has something to do with my slug metabolism!! I'm trying to get my insurance to pay for a hormone urine test, to see if my hormones could be responsible. My LLMD says most Lyme patients have wacked out hormones and that could greatly contribute to the problem. Of course, there's lack of exercise. Hard to do when the room spins! One girl told me that her LLMD sent her to a pituitary specialist, I think that's what it was called who took blood and found a hard to find thyroid problem. I'm still looking into that theory. I wish I could give you a success story, but I'm having the same trouble. Especially with stairs. Let me know if you find out anything!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Hi - I am so sorry for what you are going through with the Lyme. You are fortunate that you are getting the extended i.v. treatment, however, I too gained about 75 lbs over the course of my Lyme treatment. I knew that I could not have possibly consumed enough food to gain that much weight, although my sugar cravings did get out of hand at the time. What I did learn was that the extended use of antibiotics cause Candida which is a systemic yeast overgrowth which causes us to blow up like " the Pillsbury Doughboy. " The more white flour and sugar we eat along with the antibiotics, the larger we grow. I have been antibiotic free for eight years and discovered through reading the book " The Yeast Connection " that Candida symptoms and Lyme symptoms are very similar and until we rebuild the immune system, and get the yeast problem under control, we will continue to suffer. There are several paths to take in order to do this, and I have found a rather easy path to do this. If you would like more info, please fell free to e-mail me privately, or you can call me. It is too much to explain by typing. My e-mail address is Poeticsue@.... Sue Rauch (732) 946-2216 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 In a message dated 7/27/2003 7:18:19 PM Eastern Daylight Time, Joliedel@... writes: > I look forward to getting to know everyone and sharing and giving what > support I can! > Hi Jo, Welcome to the group. We are all here to support one another. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Welcome Jo, great to have you as part of the group. Allan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 In a message dated 7/27/03 7:18:14 PM Eastern Daylight Time, Joliedel@... writes: << I am also on 2.5 Methotrexate with folic acid of course. I was previously on 10 mg of prednisone, which he recently reduced to 5 mg, which has not been the most pleasant of transitions. >> Jo, How long were you on Prednisone total? Man, that is really tough! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I don't know how much surfing you have done of the many posts on this board, but if you have not yet done so, I think you will soon come to realize just how informative and supportive this board is. I have only been a member for about a month myself, but every morning I look forward to logging in and " meeting " again with everyone. It has made a big difference in my life - I feel much less alone, and much more confident that I can deal with this yucky disease we all have. I hope the same is true for you. Take care, and I look forward to " getting to know you " . All the best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Welcome, Jo! Penny > > > Hi! I just joined and wanted to introduce myself. My name is Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 I've been on prednisone for five years. One rheumy had me on 15 mg, but I didn't like his attitude so I switched to the one I have now. He cut me down to 10 then 5. He's very thorough and is trying to come up with the best combination of meds for me, so I'm going to hang in there and work with him and hope for the best. Jo > > Jo, > > How long were you on Prednisone total? Man, that is really tough! > > > > -- Using M2, Opera's revolutionary e-mail client: http://www.opera.com/m2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Jo, Welcome to the group. Nice to see someone else from Ohio in the group? I live in southwest Ohio, just north of Dayton. Where do you see your rheumy, where you live now or in Columbus? I have my first appt. tomorrow (actually later today). I hope I am ready for it. Will report back after the appt. Lynda (with a " y " , from Ohio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2003 Report Share Posted July 29, 2003 Hi! I live in mid eastern Ohio ... near Cambridge, which is on the intersection if I-70 and I-77. My rheumy is in Canton, an hour's drive north. All rheumys are at least a half hour from me, but he was the best option and I haven't regretted it. Good luck with your appt! Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 -Hello Tempest Welcome too the group. Sorry too hear about your pain. I have DDD too and have been battling L5-S1 for over a year. What kind of information are you looking for?? Maybe I can steer you in the direction of articles and sites I have found. I had surgery but it didn't work and now the dr's won't touch me, again. Back too square one I'm afraid. But I did try accupucture last week for the first time, I heard several people say it helped them. One of the dr's I saw suggested Yoga to help stretch out my back. I'm looking for answers too,cause the last 2 days I can barely walk. I get up for 15 min and my leg starts screaming. Very frustrating trying too get much done. So I want too find something that helps. After surgery I had 3 days where it didn't hurt and it was heaven. I think nerve pain is the worst pain in the world. Let me know if I can find anything for you. I have alot of sites and information, also check on the links a few of them are in there too the left on the club home page. S p.s. no can spell and think when you hurt, its ok In neck pain , " ELANA " <tempest19610@y...> wrote: > Hello all Im new to the group, and I have degenerative disk diesase > sorry for the spelling not my best subject... but Im on workmans > comp and this has been a never ending roller coaster ride and i > would like to get off now.... I have L5 S1 problems. And I just hope > I can get some information here... > > > > Thanks, > Tempest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 -Hello Tempest Welcome too the group. Sorry too hear about your pain. I have DDD too and have been battling L5-S1 for over a year. What kind of information are you looking for?? Maybe I can steer you in the direction of articles and sites I have found. I had surgery but it didn't work and now the dr's won't touch me, again. Back too square one I'm afraid. But I did try accupucture last week for the first time, I heard several people say it helped them. One of the dr's I saw suggested Yoga to help stretch out my back. I'm looking for answers too,cause the last 2 days I can barely walk. I get up for 15 min and my leg starts screaming. Very frustrating trying too get much done. So I want too find something that helps. After surgery I had 3 days where it didn't hurt and it was heaven. I think nerve pain is the worst pain in the world. Let me know if I can find anything for you. I have alot of sites and information, also check on the links a few of them are in there too the left on the club home page. S p.s. no can spell and think when you hurt, its ok In neck pain , " ELANA " <tempest19610@y...> wrote: > Hello all Im new to the group, and I have degenerative disk diesase > sorry for the spelling not my best subject... but Im on workmans > comp and this has been a never ending roller coaster ride and i > would like to get off now.... I have L5 S1 problems. And I just hope > I can get some information here... > > > > Thanks, > Tempest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Hi Tempest! Sorry to hear about your back. I am a fifty four year old male that suffered with L5/S1 disk problems most of my life. I tried so many different courses of treatment over the years without any relief from the constant pain. However, I truly believe exercise and reducing the size of my stomach may have actually made a difference if I would have committed to it. (I never could understand why I was so lacks in my exercising.) Thing progressed to a point I opted for surgery. On April 11, 2002 I had spinal fusion performed on the L5/S1. Its been 16 months of slow recovery. Some days are better than others, but 90% are better than what I was dealing with pre-surgery. I still have lower back discomfort, but not the intense pain I use to deal with. My surgeon told me it may be up to two year before I am fully recovered. I have talked to lots of people that went the fusion route and some are happy with it but most are disappointed with it. Try everything you can before having any surgery, this is last resort. If you end up having surgery and would like more info about my experience, just let me know. There is a lot more to tell about the recovery. I hope this info may be of some comfort to you. Good luck and God bless. Jim -Hello Tempest Welcome too the group. Sorry too hear about your pain. I have DDD too and have been battling L5-S1 for over a year. What kind of information are you looking for?? Maybe I can steer you in the direction of articles and sites I have found. I had surgery but it didn't work and now the dr's won't touch me, again. Back too square one I'm afraid. But I did try accupucture last week for the first time, I heard several people say it helped them. One of the dr's I saw suggested Yoga to help stretch out my back. I'm looking for answers too,cause the last 2 days I can barely walk. I get up for 15 min and my leg starts screaming. Very frustrating trying too get much done. So I want too find something that helps. After surgery I had 3 days where it didn't hurt and it was heaven. I think nerve pain is the worst pain in the world. Let me know if I can find anything for you. I have alot of sites and information, also check on the links a few of them are in there too the left on the club home page. Sp.s. no can spell and think when you hurt, its ok In neck pain , "ELANA" <tempest19610@y...> wrote:> Hello all Im new to the group, and I have degenerative disk diesase > sorry for the spelling not my best subject... but Im on workmans > comp and this has been a never ending roller coaster ride and i > would like to get off now.... I have L5 S1 problems. And I just hope > I can get some information here...> > > > Thanks,> Tempest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Hi Tempest! Sorry to hear about your back. I am a fifty four year old male that suffered with L5/S1 disk problems most of my life. I tried so many different courses of treatment over the years without any relief from the constant pain. However, I truly believe exercise and reducing the size of my stomach may have actually made a difference if I would have committed to it. (I never could understand why I was so lacks in my exercising.) Thing progressed to a point I opted for surgery. On April 11, 2002 I had spinal fusion performed on the L5/S1. Its been 16 months of slow recovery. Some days are better than others, but 90% are better than what I was dealing with pre-surgery. I still have lower back discomfort, but not the intense pain I use to deal with. My surgeon told me it may be up to two year before I am fully recovered. I have talked to lots of people that went the fusion route and some are happy with it but most are disappointed with it. Try everything you can before having any surgery, this is last resort. If you end up having surgery and would like more info about my experience, just let me know. There is a lot more to tell about the recovery. I hope this info may be of some comfort to you. Good luck and God bless. Jim -Hello Tempest Welcome too the group. Sorry too hear about your pain. I have DDD too and have been battling L5-S1 for over a year. What kind of information are you looking for?? Maybe I can steer you in the direction of articles and sites I have found. I had surgery but it didn't work and now the dr's won't touch me, again. Back too square one I'm afraid. But I did try accupucture last week for the first time, I heard several people say it helped them. One of the dr's I saw suggested Yoga to help stretch out my back. I'm looking for answers too,cause the last 2 days I can barely walk. I get up for 15 min and my leg starts screaming. Very frustrating trying too get much done. So I want too find something that helps. After surgery I had 3 days where it didn't hurt and it was heaven. I think nerve pain is the worst pain in the world. Let me know if I can find anything for you. I have alot of sites and information, also check on the links a few of them are in there too the left on the club home page. Sp.s. no can spell and think when you hurt, its ok In neck pain , "ELANA" <tempest19610@y...> wrote:> Hello all Im new to the group, and I have degenerative disk diesase > sorry for the spelling not my best subject... but Im on workmans > comp and this has been a never ending roller coaster ride and i > would like to get off now.... I have L5 S1 problems. And I just hope > I can get some information here...> > > > Thanks,> Tempest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Welcome, Keli! I live in Panama City, we're not so far apart. Penny > Hi Everyone, > I just wanted to introduce myself, I think I joined the group about a > week ago and really have not had much time to do this yet. Anyway, My > name is Keli, I'm 25. (Just turned 25 on the 17th) I have PA, I first > noticed the psoriasis, it came when I was about 12 then came the > pains of the arthritis about the age of 17. Of course I had no idea > what either was at the time. I did not even see doctors for either > until about 17 when I ruptured my tendon in one of my ankles. It all > went downhill from there. So, It took them until I was 21 to finally > make the call of what it actually was. I saw one Rhuemy for 3 years > and he wasn't helping so I switched and on the first visit she knew > exactly what it was. I was thrilled so I have been seeing the same > rhuemy for the last 4 years. So, I guess I'm about 8 years into the > disease or atleast the actual arthritis. I have been put on > Azulfidine, of course I stopped it about a year ago and have since > been put back on it. I have had other medical issues along with the > Pa so not all meds are an option. Such as the Enbrel which everyone > raves about. I live in ville,Florida. If anyone needs a good > rheumy here Dr. Olazar is wonderful! I look forward to talking with > all of you. > Thanks, > Keli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I'm the south Georgia part of the triangle......Valdosta. Liz [ ] Re: New to the group Welcome, Keli! I live in Panama City, we're not so far apart. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Then you're not far from me either. We go to Valdosta from time to time to go to Wild Adventures, I LOVE that roller coaster that does a loop forward, then you do the whole thing backwards!!!! Penny > I'm the south Georgia part of the triangle......Valdosta. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 I'm not sure if my last post went through or not, having issues with my computer. Thanks Penny, were not too far apart. Keli > I'm the south Georgia part of the triangle......Valdosta. Liz > > > > [ ] Re: New to the group > > > > Welcome, Keli! I live in Panama City, we're not so far apart. > Penny > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 > hello i am a 31 year old man who loves this great life i am > living even though i have to sit through it for ever i am > getting very serious about finding a good wife gettin kinda > lonely i guess trying to find a nice girl who is also in a > wheelchair i want to spend the rest of my life with someone who > knows what i am goin through that would make it very > interesting i love to work out and take it very > seriously .. lookin for a person with alot of motivation > and strength want to have kids or at least try hope > this works > Be careful what you wish for. You might just get it. There is one scary woman on this board. To quote Geena from " The Fly, " " Be afraid, be very afraid. " j Quote Link to comment Share on other sites More sharing options...
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