New to the Group

[Guest guest]

When you think of your thyroid being ablated now you have very little

hormone, maybe none. Some thyroids still produce a little bit even

after ablation (if a piece is left). So taking 400mcg is a large dose

for the average person most people here take between 100-250mcg. I

think this is one of highest I heard. But you can take up to 500mcg.

So you don't have much thyroid that is working I am sorry to say--now

my point is why only t4 (levoxyl)--you need all the hormones---t1,t2,

t3, and t4 and whatever else is there that we don't know about yet.

There are some thoughts to even more unknown hormones in the gland.

So you are missing the others ---digestive problems, not feeling 100%

yet ---tell your doctor you need to try armour first --the natural

hormone that supplies all of the above.

Many have no choice on the ablation and usually it's the right move

if the hyper would kill you and some people have no choice but to

radiate it or take it out. So don't feel bad it might have been best

for you---but you can repair and live better being hypo!!! Once you

get on the right medication!!!and supplements!!! You can feel a whole

lot better on the right stuff--it just takes a lot of time to get it

right!!!!!

http://thyroid.about.com/cs/thyroiddrugs/a/armour.htm

-- In hypothyroidism , jafrasouth@a... wrote:

> Hi, My name is Teneshia, I found this group from cure zone. I used

to be

> acutely hyperthyroid (grave's disease). I had my thyroid gland

ablated which I

> really regret for many reasons but I was told it was necessary. I

have been

> hypo since 99 when I had it ablated. I have been taking 400 mcg of

Levoxyl daily

> for 6 months now and it seems that I am never above a hypo level.

I think

> being hypo so long has caused other health problems (which is why

I regret

> having the ablation done). The worst of which is weight gain (100

pounds) and

> digestive issues.

> I am looking forward to learning alot with this group. Perhaps

sharing too...

> Teneshia

> Norcross, GA

>

>

>

[Guest guest]

Welcome Teneshia! there are many good people here.

We are glad to have you be part of club!

Sorry about your troubles...

anything we can help with, don't hesitate to ask.

Chriss.

[Guest guest]

hi Teneshia & welcome!

Levoxyl might not be the best thyroid medication for you as someone else in this

forum suggested (was it Tina?).

When I was taking Levoxyl, I felt better, but still had a lot of symptoms. When

my doc added Cytomel (T3), there was a much bigger improvement.

About 6 weeks ago, I switch from that combo to Armour, and have seen even more

improvements in my symptoms.

Have you had a chance to read about some of the other thyroid meds out there?

What is thyroid ablation?

My mom used to be hyperthyroid and she had a partial TT. they removed, I

believe, about 60% of her thyroid.

She was fine for years, but then over the past several years started having some

symptoms.

She is hypothyroid now & taking synthroid. She's thinking about switching to

Armour though because she's still having symptoms despite a lowered TSH.

take care and keep in touch, sheila

jafrasouth@... wrote:

Hi, My name is Teneshia, I found this group from cure zone. I used to be

acutely hyperthyroid (grave's disease). I had my thyroid gland ablated which I

really regret for many reasons but I was told it was necessary. I have been

hypo since 99 when I had it ablated. I have been taking 400 mcg of Levoxyl

daily

for 6 months now and it seems that I am never above a hypo level. I think

being hypo so long has caused other health problems (which is why I regret

having the ablation done). The worst of which is weight gain (100 pounds) and

digestive issues.

I am looking forward to learning alot with this group. Perhaps sharing too...

Teneshia

Norcross, GA

[Guest guest]

Welcome Tenesia,

My name is Loriann and I am new to the group too. I have found this group to

be A+++++ they are top notch quality people who are struggling with symptoms

currently or have finally made it to the promised land! :-) I haved been hypo

at least since 1997 and except for one prescription of synthroid have been on

Armour all of that time. I know you will enjoy this group they are the best!

Blessings,

Loriann

[Guest guest]

> Hello everyone:

>

> I'm new to this, so I hope I can get some good advise. Please stay

> with me here as I tell you my condensed life story.

>

> I've been searching for my adult life to find out what was wrong

with

> me. I thought I was the only one out there like me.

>

> As a child I was overweight. When I reached puberty age, I

developed

> body hair but my penis did not grow (much if any). When I married,

> sex was difficult and as the years have gone by, fairly non-

existent.

>

> I've been seeing an endo for several years for hyperthyroid. They

> had to kill out the thyroid and now I'm on synthroid 4 micrograms

per

> day. After reading and educating myself a little, on a visit

recently

> I told the doc I'd like to have him run a testosterone level on me.

> He ran one about three years ago and it was in the 300's, which he

> said was " OK " This time, total was 197, free % was 1.54 and free

was

> 30.3. LH was 5.6 and FSH was 5.8. That's all the tests he did.

His

> letter said he wanted to start me on T shots 200 ml every three

weeks.

>

> I am now two weeks post first shot and feeling a little more energy

> and maybe a little more libido???? Wishful thinking maybe.

Anyway,

> I have lots of questions and few answers. Here are some:

>

> 1. How long does it take to see the " full effect " of therapy?

> 2. Is 200 ml / 3 weeks enough?

> 3. What additional test do I need to have him run.

> 4. Should I have him test for Kleinfelter's or Kalmans?

> 5. And the most important one is WILL MY PENIS GROW?

> 6. Has anyone out there experience actual substantial growth and

how

> long did it take?

> 7. What else should I do?

>

> I'm sorry to be so long-winded, but I'm just so pissed off that

I've

> been to doctors all my life (48) years and not one of them has ever

> looked at my body and said, " Maybe we should do some tests here "

>

> Not the doct I had to see to get a marriage license

>

> Not the urologist I had to see when I found out I had a very low

> sperm count

>

> Not even the endo when I said, " Look at me. "

>

> Thanks

I am sorry to tell you that the answer to #5 is NO. Once the window

of puberty has passed you will not see any significant increase in

penis size with TRT.

[Guest guest]

Hi, Tom is it?

I suggest from your email that you get checked for Klinefelter Syndrome. You

have at least some of the classic symptoms. It is a simple blood test and

takes a couple of weeks to get it back, at least here. It might explain some of

your problems when you were younger and some of them now. You should at

least get a total and free testosterone test, an estrodiol. I actually would

suggest a full blood workup to make sure your liver is good and see what your

white cell count is up to.

As far as the penis size, my hubby said his was extremely small at 18yo. A

doctor told him " it is a muscle like any other muscle. Work it and it

grows. " Well, all I have to say is that my hubby must have worked hard

Maybe

that will work for you too.

/Montana

[Guest guest]

First,

Do yourself a favor and spend a day or two reading the post in this

forum from post 1. All of the answers to your questions are in here.

I believe the forum is fairly readable from post 1 as you will keep

learning along the way.

Quick answers:

> 1. How long does it take to see the " full effect " of therapy?

Different for different people. " full effect " isn't really

important. Basically, just get your blood levels at consistently

high testosterone levels and manage your estradiol and you will

start feeling the full effects very soon after you achieve this. The

effects will last as long as you keep your blood levels at the

proper levels.

> 2. Is 200 ml / 3 weeks enough?

No. Definitely not. First, you need to inject weekly, otherwise, you

will go about 1 week feeling ok and 2 weeks feeling like hell.

Second, you need to inject MINIMUM 100ml weekly. Even 200 ml

biweekly is a fairly poor schedule. 200 ml every 3 weeks and you are

guaranteed to not feel very good most of the time.

> 3. What additional test do I need to have him run.

You need to figure out whether your hypogonadism is primary or

secondary. If secondary, you should figure out why, could be a

benign tumour etc. If it is secondary then HCG is a great way to go,

and if not by itself, then at least in addition to TRT. To find out

if you are primary or secondary get:

LH and FSH tested. HOWEVER, you need to stop the TRT for a few weeks

in order to get them back to their appropriate levels. Since you

only injected once, you could get them tested after about 4 weeks

after the injection and get pretty much what your levels are at.

Read this forum and " the testosterone Syndrome " by eugene shippen to

find out what LH and FSH are and what primary and secondary hypo

are. You really should learn what these are if you want to get

yourself feeling good.

> 4. Should I have him test for Kleinfelter's or Kalmans?

Definitely get tested for Kleinfelter's. You have alot of the

symptoms. It is just a blood test.

> 5. And the most important one is WILL MY PENIS GROW

Not sure on this one. I have heard rumour that it can happen in some

rare cases. At your age though, I am doubting much will happen in

that department.

> 6. Has anyone out there experience actual substantial growth and

how

> long did it take?

> 7. What else should I do?

Read the Testosterone Syndrome by Eugene Shippen (you can get it

from Amazon). Read these forums from day 1. Get your LH and FSh and

Estradiol checked. Don't take another shot of testoterone until you

do. If you do go back to the trt (if you find out you are primary),

then go to weekly shots at 100mg per week. Monitor your estradiol

closely. If it gets too high, that is a big problem. You may need

arimidex to manage your Estradiol.

Good for you for finding out what's wrong. Focus on the future not

on the past and be thankful that you are one of the small percentage

of men that knows whats wrong with them and live a happy life!

Good luck, the road ahead is not straight and easy, but once it's

figured out it's allot better than the road behind.

Armyguy

> Hello everyone:

>

> I'm new to this, so I hope I can get some good advise. Please

stay

> with me here as I tell you my condensed life story.

>

> I've been searching for my adult life to find out what was wrong

with

> me. I thought I was the only one out there like me.

>

> As a child I was overweight. When I reached puberty age, I

developed

> body hair but my penis did not grow (much if any). When I

married,

> sex was difficult and as the years have gone by, fairly non-

existent.

>

> I've been seeing an endo for several years for hyperthyroid. They

> had to kill out the thyroid and now I'm on synthroid 4 micrograms

per

> day. After reading and educating myself a little, on a visit

recently

> I told the doc I'd like to have him run a testosterone level on

me.

> He ran one about three years ago and it was in the 300's, which he

> said was " OK " This time, total was 197, free % was 1.54 and free

was

> 30.3. LH was 5.6 and FSH was 5.8. That's all the tests he did.

His

> letter said he wanted to start me on T shots 200 ml every three

weeks.

>

> I am now two weeks post first shot and feeling a little more

energy

> and maybe a little more libido???? Wishful thinking maybe.

Anyway,

> I have lots of questions and few answers. Here are some:

>

> 1. How long does it take to see the " full effect " of therapy?

> 2. Is 200 ml / 3 weeks enough?

> 3. What additional test do I need to have him run.

> 4. Should I have him test for Kleinfelter's or Kalmans?

> 5. And the most important one is WILL MY PENIS GROW?

> 6. Has anyone out there experience actual substantial growth and

how

> long did it take?

> 7. What else should I do?

>

> I'm sorry to be so long-winded, but I'm just so pissed off that

I've

> been to doctors all my life (48) years and not one of them has

ever

> looked at my body and said, " Maybe we should do some tests here "

>

> Not the doct I had to see to get a marriage license

>

> Not the urologist I had to see when I found out I had a very low

> sperm count

>

> Not even the endo when I said, " Look at me. "

>

> Thanks

[Guest guest]

Jahost is correct. You have a few years of penile growth when you're

a teenager - then its all over.

In a case like this I would consider phalloplasy (penile enhancement

surgery).

Regards,

K4

> > Hello everyone:

> >

> > I'm new to this, so I hope I can get some good advise. Please

stay

> > with me here as I tell you my condensed life story.

> >

> > I've been searching for my adult life to find out what was wrong

> with

> > me. I thought I was the only one out there like me.

> >

> > As a child I was overweight. When I reached puberty age, I

> developed

> > body hair but my penis did not grow (much if any). When I

married,

> > sex was difficult and as the years have gone by, fairly non-

> existent.

> >

> > I've been seeing an endo for several years for hyperthyroid.

They

> > had to kill out the thyroid and now I'm on synthroid 4 micrograms

> per

> > day. After reading and educating myself a little, on a visit

> recently

> > I told the doc I'd like to have him run a testosterone level on

me.

> > He ran one about three years ago and it was in the 300's, which

he

> > said was " OK " This time, total was 197, free % was 1.54 and free

> was

> > 30.3. LH was 5.6 and FSH was 5.8. That's all the tests he did.

> His

> > letter said he wanted to start me on T shots 200 ml every three

> weeks.

> >

> > I am now two weeks post first shot and feeling a little more

energy

> > and maybe a little more libido???? Wishful thinking maybe.

> Anyway,

> > I have lots of questions and few answers. Here are some:

> >

> > 1. How long does it take to see the " full effect " of therapy?

> > 2. Is 200 ml / 3 weeks enough?

> > 3. What additional test do I need to have him run.

> > 4. Should I have him test for Kleinfelter's or Kalmans?

> > 5. And the most important one is WILL MY PENIS GROW?

> > 6. Has anyone out there experience actual substantial growth and

> how

> > long did it take?

> > 7. What else should I do?

> >

> > I'm sorry to be so long-winded, but I'm just so pissed off that

> I've

> > been to doctors all my life (48) years and not one of them has

ever

> > looked at my body and said, " Maybe we should do some tests here "

> >

> > Not the doct I had to see to get a marriage license

> >

> > Not the urologist I had to see when I found out I had a very low

> > sperm count

> >

> > Not even the endo when I said, " Look at me. "

> >

> > Thanks

>

> I am sorry to tell you that the answer to #5 is NO. Once the window

> of puberty has passed you will not see any significant increase in

> penis size with TRT.

[Guest guest]

imtom520,

Welcome to our group.

Peruse our files and links section...there's a lot of information there;

which is underutilized by membership.

Enlarging your dick. This can be done and some men are doing it every day.

It does take a discipline and commitment and enlargement usually doesn't

occur over a short time period, but rather months of practice.

There's a new devoted to this topic

male_enlargment/?yguid=4213886

A new member there just posted his stellar gains in length/girth in a short

time by pumping his dick. He's unusual but a case in point as to what's

possible.

IMO, the most comprehensive sites are: http://www.thundersplace.com/forum/

Thunder's Place is free but you do have to register and select a password.

Many members that frequent the site make contributions for site maintenance.

The site is well organized; I'm a pumper so I frequent the pumper's forum,

but also visit other areas.

Many members are very serious about enlarging their dick and have been at it

a few years; some members, as part of their sig post their beginning,

current and goal measurements. Gains vary from individual to

individual...some men are rapid gainers, other slow, etc.

IMO this site is incomparable http://www.tigerpumping.com/index.html

Illustrative images and line drawings are embedded in text; I learned to

pump my dick at Tiger Dave's site. Pumper's gain girth easily, but gaining

length is more difficult, but not unattainable; jelqing with your dick

~50-75% hard and pumping hard promote length growth. As I have erectile

dysfunction (ED) and belong to several ED groups....if I could jelq/pump

hard, I would not be members of those groups. Quite a few mature men with

ED issues find that regular pumping routine facilitate their nocturnal

erections (NEs) and piss hardons (PHs) and action of erectile medications

(Viagra, Cialis, Levitra). Some urologists are now recommending that their

clients take up pumping their dick.

Hope this helps,

OR eon

GayMan

New to the Group

Hello everyone:

I'm new to this, so I hope I can get some good advise. Please stay

with me here as I tell you my condensed life story.

I've been searching for my adult life to find out what was wrong with

me. I thought I was the only one out there like me.

As a child I was overweight. When I reached puberty age, I developed

body hair but my penis did not grow (much if any). When I married,

sex was difficult and as the years have gone by, fairly non-existent.

I've been seeing an endo for several years for hyperthyroid. They

had to kill out the thyroid and now I'm on synthroid 4 micrograms per

day. After reading and educating myself a little, on a visit recently

I told the doc I'd like to have him run a testosterone level on me.

He ran one about three years ago and it was in the 300's, which he

said was " OK " This time, total was 197, free % was 1.54 and free was

30.3. LH was 5.6 and FSH was 5.8. That's all the tests he did. His

letter said he wanted to start me on T shots 200 ml every three weeks.

I am now two weeks post first shot and feeling a little more energy

and maybe a little more libido???? Wishful thinking maybe. Anyway,

I have lots of questions and few answers. Here are some:

1. How long does it take to see the " full effect " of therapy?

2. Is 200 ml / 3 weeks enough?

3. What additional test do I need to have him run.

4. Should I have him test for Kleinfelter's or Kalmans?

5. And the most important one is WILL MY PENIS GROW?

6. Has anyone out there experience actual substantial growth and how

long did it take?

7. What else should I do?

I'm sorry to be so long-winded, but I'm just so pissed off that I've

been to doctors all my life (48) years and not one of them has ever

looked at my body and said, " Maybe we should do some tests here "

Not the doct I had to see to get a marriage license

Not the urologist I had to see when I found out I had a very low

sperm count

Not even the endo when I said, " Look at me. "

Thanks

[Guest guest]

,

The dick as muscle analogy is an oft used one and it's an incorrect one.

The dick has three main chambers...the ventral cavernosum spongiosum and a

pair of corpus cavernosum. Cavernosum spongiosum is an apt description for

these chambers which fill with blood to make an erection; they are spongy.

To achieve an erection the above chambers fill with blood. Muscles do not

fill with blood, muscles enlarge by cytoplasm of cell increasing in volume.

We are born with a certain number of muscles cells and muscle growth does

not represent adding more muscle cells.

OR eon

GayMan

Re: New to the Group

Hi, Tom is it?

I suggest from your email that you get checked for Klinefelter Syndrome.

You

have at least some of the classic symptoms. It is a simple blood test and

takes a couple of weeks to get it back, at least here. It might explain

some of

your problems when you were younger and some of them now. You should at

least get a total and free testosterone test, an estrodiol. I actually

would

suggest a full blood workup to make sure your liver is good and see what

your

white cell count is up to.

As far as the penis size, my hubby said his was extremely small at 18yo. A

doctor told him " it is a muscle like any other muscle. Work it and it

grows. " Well, all I have to say is that my hubby must have worked hard

Maybe

that will work for you too.

/Montana

[Guest guest]

Welcome Sandy,

It can all be overwhelming that's for sure. I don't have what you

memtioned atleast not that i know of. lol! The info is unlimited it

seems these days with the internet. Thank God for small miracles.

Good luck,

Keli

> Hi, my name is Sandy. I live 50 miles north of Chicago. The new

> Rheumy I have has indicated that I do not have Post Strep Reactive

> Arthritis, but probably Psa. I have been on Voltaren for 3 weeks

and

> the swelling is down considerably, but I still have joint and

tendon

> pain (migratory). I go back to the Dr. in 7 weeks. I am

> intererested in learning more about this disease.

>

> PS: I would be interested if any of you have had Erythema Nodosum.

>

> Sandy

>

> [Editor's Note: Welcome, Sandy. (You know the old axiom, Hand

someone a fish, and they eat for a day; teach them to fish, they eat

forever?)There is an enormous wealth of experience with psoriatic

arthritis and related issues on this site. Browse through the

various categories (blue, underlined, to the left); also, you can

pull up old posts, and follow strings that interest you. Go to the

National Psoriasis Foundation's website. Do online searches for the

following: Psoriatic Arthritis, Psoriasis, Autoimmune Diseases,

Chronic Pain, all your meds, erythema nodosum, and anything else you

can think of..

>

> D.]

[Guest guest]

But I did get LH and FSH tests: LH was 5.6 and FSH was 5.8.

> > Hello everyone:

> >

> > I'm new to this, so I hope I can get some good advise. Please

> stay

> > with me here as I tell you my condensed life story.

> >

> > I've been searching for my adult life to find out what was wrong

> with

> > me. I thought I was the only one out there like me.

> >

> > As a child I was overweight. When I reached puberty age, I

> developed

> > body hair but my penis did not grow (much if any). When I

> married,

> > sex was difficult and as the years have gone by, fairly non-

> existent.

> >

> > I've been seeing an endo for several years for hyperthyroid.

They

> > had to kill out the thyroid and now I'm on synthroid 4 micrograms

> per

> > day. After reading and educating myself a little, on a visit

> recently

> > I told the doc I'd like to have him run a testosterone level on

> me.

> > He ran one about three years ago and it was in the 300's, which

he

> > said was " OK " This time, total was 197, free % was 1.54 and free

> was

> > 30.3. LH was 5.6 and FSH was 5.8. That's all the tests he did.

> His

> > letter said he wanted to start me on T shots 200 ml every three

> weeks.

> >

> > I am now two weeks post first shot and feeling a little more

> energy

> > and maybe a little more libido???? Wishful thinking maybe.

> Anyway,

> > I have lots of questions and few answers. Here are some:

> >

> > 1. How long does it take to see the " full effect " of therapy?

> > 2. Is 200 ml / 3 weeks enough?

> > 3. What additional test do I need to have him run.

> > 4. Should I have him test for Kleinfelter's or Kalmans?

> > 5. And the most important one is WILL MY PENIS GROW?

> > 6. Has anyone out there experience actual substantial growth and

> how

> > long did it take?

> > 7. What else should I do?

> >

> > I'm sorry to be so long-winded, but I'm just so pissed off that

> I've

> > been to doctors all my life (48) years and not one of them has

> ever

> > looked at my body and said, " Maybe we should do some tests here "

> >

> > Not the doct I had to see to get a marriage license

> >

> > Not the urologist I had to see when I found out I had a very low

> > sperm count

> >

> > Not even the endo when I said, " Look at me. "

> >

> > Thanks

[Guest guest]

I was just quoting what dear hubby sometimes says. All I know is at 18 he

was appro 1 " long and now he is approx 8 " ( of course I have not actually taken a

tape measure to it now). Obviously something has happened!

[Guest guest]

What are your lab figures and has your doctor even suggested

anti-thyroid drugs (PTU, Tapazole?) and are you seeing your

family physician, GYN or an endocrinologist? I understand

it is not unusual to have thyroid problems after a

pregnancy. My own ophthalmologist suffered from postpartum

thyroiditis. See

http://www.thyroid-info.com/articles/postpartum.htm

for a good article. Come back with more questions.

Elaine

Hello

On Tuesday, July 13, 2004, you wrote

> Hi!

> I was just diagonosed today with hyperthyroidism. I'm almost 30 and

> hoping to have kids next year. They believe my thyroid was caused by

> a traumatic pregnacy that went bad. I was told today by a doctor he

> recommends RAI. I'm kinda worried being in my childbearing years. I

> was told no complications would come of it. I have mild symptoms so

> far. Does anyone have any information on this ...especially if a

> woman wants to have kids within the next year.

> Thanks

> shell

[Guest guest]

Welcome Elaine! Wow, you have a very unusual story, and my heart

goes out to you that you had to experience so many not wanting to treat

you! But thankfully, you are on your way to recovery now. Your

comment about looking like a giant bug was cute! It gave me a

chuckle! It is good that we can laugh at ourselves. Welcome…

Debby

[ ] New to

the Group

Hello

Allow me to introduce myself. My name is Elaine,

I'm 53 years old and live on Long Island, New York. I've had AIH for almost 2

years now. My case is rather unusual so I will try to make a long story as

brief as possible.

I spent nearly 9 months walking around looking

like a giant bug light. My biliruben ran between 19 - 23 and my enzymes were

well over 1000. I don't have to tell you how ill I felt, as I'm sure

you already know. Despite multiple scans, tests, consultations and a liver

biopsy, my blood work did not confirm an AIH diagnosis.

In May 2003, a routine chest x-ray revealed a

mass in my chest, thought to be a thymoma (cancer of the thymus gland),

however, once again a needle biopsy failed to present a definite diagnosis. I

needed a surgical biopsy but got caught in a real catch-22 situation. No one

would do the surgery because of my liver, and no one would treat the liver

because of the mass.

In July I got all new doctors,had the surgical

biopsy which confirmed a malignant thymoma and was sent to Sloan Kettering

in NYC for treatment. Since this type of tumor is frequently associated with

auto immune disease, they immediately started me on 60 mg of prednisone for the

liver and chemo with cisplatin for the tumor. By January 2004 I was

down to 20 mg a day of prednisone and stayed at that dose until recently.

By February I was finally well enough to

undergo surgery for removal of the tumor. I also lost part of my left lung and

the pericardium (sack around the heart). Next came 6 weeks of radiation

therapy.

Once that was all done, my hepatologist started

decreasing my prednisone. I was having a lot side effects from it - high

blood pressure, high blood sugar, swollen joints, hand tremors, insomnia,

depression and weight gain. Now I'm on 100 mg of Imuran and 7.5 mg of

prednisone and hoping to go down to 5 by the end of the month.

We are hoping that the removal of the tumor will

have a positive effect on the AIH but no one knows for sure because I appear to

be the first documented case in the US. I still feel awful and I'm beginning to

wonder if I'll ever be back to my old self. Still, I have a lot to be grateful

for--I'm still here to whine and complain and share my story with you kind

folks.

Regards

Elaine C

Long Island, NY

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[Guest guest]

In a message dated 10/24/2004 9:31:16 AM Eastern Daylight Time, tdcc2000@... writes:

Welcome Elaine!

Thank you all for the warm welcome. It's great to have a group of understanding people to share with.

Elaine

Long Island, NY

[Guest guest]

I have an ache/pain every once in a while in my shoulder. When it used to be

really bad it would feel like thousands of ants chewing on the muscle -

sorry, realise that's gross, only way I can think to describe it! LOL I

don't get it very often now though, and never that badly.

Ade

> New to the group

>

>

>

>

>

> Hi, I'm , I just found this group today. I have a question. Does

> anyone in here ever have pain in your arms and shoulders? Sometimes

> it's pain, sometimes it feels like pressure. I'm not sure how to

> explain it. Sometimes I feel the same in my neck. Is this common? It

> makes me worry about having a heart attack even though I am only in

> my 20's. Thanks

[Guest guest]

>

>

> Hi, I'm , I just found this group today. I have a question.

Does

> anyone in here ever have pain in your arms and shoulders? Sometimes

> it's pain, sometimes it feels like pressure. I'm not sure how to

> explain it. Sometimes I feel the same in my neck. Is this common?

It

> makes me worry about having a heart attack even though I am only in

> my 20's. Thanks

I definitely understand your pain because I hurt all over-legs, feet,

arms, neck, and fingers! I will be starting synthroid in a few days

and hope I feel some relief soon.

[Guest guest]

Hi Larry,

So gald you wrote. I know for so many of us it can be real lonely at times for

others to understand how you feel your emotions and your body. Just keep the

communication open with your wife. My hubby is a ER nurse so he is used to life

and death. At first he was really quiet and didnt say much. I felt like he didnt

care but it has been almost a year since the diagnosis and now he handles it

much better. I think he was scared because he knew that this could get ugly and

painful. He has also told me he feels helpless and doent know how to help me so

I have learned to talk more and to keep asking him for the help I need now. I

have a pride issue and have a hard time admitting I need to slow down or say

help to anyone. I would read to him letters from this group and research papers

or articles out of Arthritis today. Sometimes it is easier to pretend and some

people dont know how to react or what to say . I hope this doesnt offend you but

I would like to pray for you right now. Dear

Heavenly Father, I thank you that Larry found this group. I lift him up to you

right now in the name of Jesus and ask that you would help him to communicate to

his wife. That you would show him how very dear he is to you Lord, that he would

feel your love for him and that you desire good for him. That you would give his

wife compassion, understanding, support, love and be a helper to him. I ask that

you give Larry the strength he needs. Allow his marriage to be strengthened by

this. Only you Lord know all that he needs and desires I ask that you would

knock on the door of his heart and and give him peace and joy. Thank you In

Jesus Name Amen. I will continue to pray daily for you. Please keep us all

posted on how you are we all care for oneanother here. The bible says you do not

receive because you do not ask. Just ask anyone here and everyone is always

willing to talk and help. But please also keep talking to your wife Im sure her

heart is hurting for you.Have a wonderful day.

Latisha

bichondaddy1057 <bichondaddy1057@...> wrote:

Hi All...

Just want to introduce myself to everyone. My name is Larry and I

have severe osteoarthritis in both knees and RA in my hips. I am 47,

M/ living in the New Orleans Metro area. I just am hoping to find a

place to talk, my wife does not really seem to understand that I am

in pain 24-7/365, and it does get old hurting all the time.

Larry...

[Guest guest]

Welcome Larry,.....You have come to the right place for support and

friendship, T

>

>

> Hi All...

>

> Just want to introduce myself to everyone. My name is Larry and I

> have severe osteoarthritis in both knees and RA in my hips. I am

47,

> M/ living in the New Orleans Metro area. I just am hoping to find a

> place to talk, my wife does not really seem to understand that I am

> in pain 24-7/365, and it does get old hurting all the time.

>

> Larry...

[Guest guest]

Welcome Larry. Sorry for your reasons for being here, but glad you found

us. 24/7 pain is something many of us here understand. No one can really

understand it unless they too have experienced it. They can say they do,

but they really don¹t have any idea of what it does to not get a break from

pain. Before finding meds that helped, I had 24/7 pain. It is now more

managable. I hope your doctor can help you with your pain. Any chance of

getting those knees replaced? I had mine both done and they are almost like

new. If only my ankles could get so lucky, I¹d be on the front page of

Sports Illustrated LOL! Yeah right, I can dream. Knees and hips are the

most sucessful joints replaced. They are getting better with the ankles,

but not there yet.

a

>

>

> Hi All...

>

> Just want to introduce myself to everyone. My name is Larry and I

> have severe osteoarthritis in both knees and RA in my hips. I am 47,

> M/ living in the New Orleans Metro area. I just am hoping to find a

> place to talk, my wife does not really seem to understand that I am

> in pain 24-7/365, and it does get old hurting all the time.

>

> Larry...

>

>

>

>

>

>

>

>

>

[Guest guest]

HI All...

I wanted to thank all of you who welcomed me to the group. I have been dealing

with this mostly by myself for over 5 years now, and although some days are

better than others, most are no fun. I look forward to talking to everyone in

the group, and hope I can learn from all of you nice people.

Larry in New Orleans...

__________________________________________________

[Guest guest]

Welcome, Larry! Here you will find many people who are able to

understand your pain and frustration.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] New to the Group

>

>

>

> Hi All...

>

> Just want to introduce myself to everyone. My name is Larry and I

> have severe osteoarthritis in both knees and RA in my hips. I am 47,

> M/ living in the New Orleans Metro area. I just am hoping to find a

> place to talk, my wife does not really seem to understand that I am

> in pain 24-7/365, and it does get old hurting all the time.

>

> Larry...

[Guest guest]

Hi , welcome to the group! You have come to the right place,

there are so many great people, and know how you feel, T

>

>

> Hello All,

> My name is and I have fm. I have had it for 8yrs.

> I still would like my life to be the way it was. I miss being

> able to be active. I am 50 years old and I love life and being

> involved with everything. I have three grandchildren and love

> to be part of their lives, I wnat to do things with them like

> I used to and can not and they can not understand why I do not

> go with them all the time now.

> I have other things also I have ibs,cfs, I have

> vericose veins that make my legs hurt also, degenerative disc

> desease and arthritise in my spine, and cronic sinusitus,along with

> migranes at times.

> I went to the doc because I was feeling really tired,

> more than usuall and he uped my zolofed to 100mg a day and

> said if it did not help he could give me something to help me

> stay awake during the day and I would still beable to take my

> abien at night. I do not want to do that. It makes me feel like

> I am going to be a drug addict, something to keep me awake and to

> put me to sleep and something for the pain etc.

> At times I just do not want to be in my body for awhile.

> I thought talking to people with the same problems would help me

> get through the really rough times.

>

> Thank You and Looking forward to talking

> to you all

[Guest guest]

Hi and welcome to the group. If you haven't heard of it, the spoon

theory on this site can help you explain having a chronic illness to

others who don't get it.

http://www.butyoudontlooksick.com/spoons.htm

Jennie (34, had RA for 1 1/2 years, mother to a beautiful 4 year old

little girl)

>

>

> Hello All,

> My name is and I have fm. I have had it for 8yrs.

> I still would like my life to be the way it was. I miss being

> able to be active. I am 50 years old and I love life and being

> involved with everything. I have three grandchildren and love

> to be part of their lives, I wnat to do things with them like

> I used to and can not and they can not understand why I do not

> go with them all the time now.