worried about childs health

August 20, 2009

Hello group:) We are going to alot of spec's docs. Gastro,neuro, developmental

pedia, allergy asthma, dermatology, pt,st,ot, genetics, othro's, ent, etc. My

son has HFA with his autism he has some comorid condtions. I was wondering if

others have any of the conditions that may come with the autism or just have

them. My son has hypotonia, excesise intolerance, gastrointestional problems,

skin problems, asthma, allergy, ear infections, SPdsyfunction, overpronation of

the feet, (leg cramps & pain). We went to pedia yesterday to get a checkup

before school starts. We reveived all areas. They now think the severe eczema

may be psorsis ( prob spelled that wrong). They want him to go on a diet. He is

gaining to much weight. Thats where somewhat the autism comes in to play. He has

issues with textures. One day he may eat a waffle then refuse it for a week. He

eats no fruits (watermelon on a good day) No veggies. Meat only sausage (on a

good day), chicken nuggets, hamburgar if its in taco's. So meat is limited also.

He love pizza, mufins, and all junk ans starchy foods. He doesn't eat much

though. What the pedia thinks is that he may not eat much ,but what he is eating

is going striaght to calories. Causing him to gain alot of weight. Also we have

the hypotonia which comes into play. He wants to run and play but he gets tired

very quickly. He gets aggitated very quickly when his hands don't work so when

he is trying to tye a jump rope or make a garage out of blocks when swinging he

gets tired of holding on. I think the excersie intolerance has alot to do with

the hypotonia. Then if he does play hard and pushes himself to play he gets leg

cramps and pain. Will then limp on both legs and cry. Then at night it gets

worse and he can't sleep well so we have to give pain med. Mournings then he

will have trouble walking. Has trouble walking some mournings without playing

hard the day before. One doc told us it was the autism and that he doesn't like

the feel of the floor. Thats doesn't explain the pain part of it though or the

swelling of feet and or legs. This has been going on since he was 1 1/2 and

regressed into autism and epilepsy. His weight gain really started to get worse

this year and as the hypotonia got worse and the excesise got worse. He weighs

in at 81 for a 4 1/2 yr old. I don't want him to get diabetes or other health

problems. What have some of other parents done to get there texture problmes

kids to eat better? No doc has yet figured out what is going on with his legs

and until they do I don't think he is going to do to much running. His seizure

meds do cause him to have a lesser appitite. Does anyone going through this?

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