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In a message dated 4/23/02 11:35:00 AM Central Daylight Time,

writes:

> ??? I

> remind them, but my life is so busy, I'm usually do a thousand other things

>

> while they are with Maddie.

> What do you all think? Would you be eager to have a BS person come into

> the home?

> Donna

>

>

Donna,

I've explored this. While I have an ABA team (they don't do strictly ABA with

) they don't generally get involved in Ken and I with . I have

looked high and low for someone skilled enough to work with us as a family

and have found no one in our area. (Wisconsin is not exactly brimming with

wonderful professionals).

No offense to you Devree but doing behavioral work in a group home setting is

much different than working it around a family situation. I would look for

someone with experience working with families.

tips - be specific about what behaviors you want addressed. toilet training,

table manners, eating skills, safety awareness. Be direct about how much time

and consistency you will be able to devote to the task.

I'm sure there are others but that is a start.

Karyn

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---I have also had Behavior people in my home who expected me to participate

with them in working with Elie. What I have finally decided is that I am in

charge. I need people to work with Elie and report to me - I cannot work

with them for many reasons: I need a break. Elie works better with anyone

if I am not there. I have other things to do. Thus I have requested that

most behavior issues be worked on in the community. And I will work on home

(inside the house issues). But at this point we are pretty much without any

staff at all so it is all moot!! :`(

Sara - Choose to make lemonade, not complain about the lemons.

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Karyn,

Thanks for the tip. On my agenda of this year, I'm going to request

for ABA for as I see he might benefit out of it. I saw a video

and I'm pretty sure this will help him. I'm happy y'all brought this

up again.

Irma,13,DS/ASD

> Donna,

> I've explored this. While I have an ABA team (they don't do

strictly ABA with

> ) they don't generally get involved in Ken and I with .

I have

> looked high and low for someone skilled enough to work with us as a

family

> and have found no one in our area. (Wisconsin is not exactly

brimming with

> wonderful professionals).

> No offense to you Devree but doing behavioral work in a group home

setting is

> much different than working it around a family situation. I would

look for

> someone with experience working with families.

> tips - be specific about what behaviors you want addressed. toilet

training,

> table manners, eating skills, safety awareness. Be direct about how

much time

> and consistency you will be able to devote to the task.

> I'm sure there are others but that is a start.

>

> Karyn

>

>

>

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In a message dated 4/23/02 4:52:20 PM Eastern Daylight Time,

KVanRyzin@... writes:

> tips - be specific about what behaviors you want addressed. toilet training,

> table manners, eating skills, safety awareness. Be direct about how much

> time

> and consistency you will be able to devote to the task.

> I'm sure there are others but that is a start.

Thanks Karyn. That is helpful.

Donna

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In a message dated 4/24/02 8:29:01 AM Central Daylight Time,

writes:

> Karyn,

> Thanks for the tip. On my agenda of this year, I'm going to request

> for ABA for as I see he might benefit out of it. I saw a video

> and I'm pretty sure this will help him. I'm happy y'all brought this

> up again.

> Irma,13,DS/ASD

>

> One more tip while I'm on a roll. Having a therapy team in your home should

take the load off of you not create more. Tailor it to your (child and

family) and look at what tehcniques work for your child and then move

forward. We have had a therapy team in our home for over 3 years. They work

with every evening and twice daily on weekends. I use them for time

that would otherwise be unengaged in positive things (interpreted- any

down time). Every family is different so every in home team should look

different.

Karyn

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> > One more tip while I'm on a roll. Having a therapy team in your

home should take the load off of you not create more. Tailor it to

your (child and family) and look at what tehcniques work for your

child and then move forward. We have had a therapy team in our home

for over 3 years. They work with every evening and twice daily

on weekends. I use them for time that would otherwise be

unengaged in positive things (interpreted- any down time). Every

family is different so every in home team should look different.

>

> Karyn

>

Thanks Karyn,

Definitely will do my homework as I'll call around and I'll know what

to be aware of. I'm having to reapply with the Healthcare Services

and I'm jotting every service I believe would benefit out of.

I'm also considering including Sensory Integration. But, I have

realized its not a biggie here in San , but I do know in

Dallas it is and thats just a 40 to 45 minute flight over there if

needed. Who knows maybe that person is willing to come down as the

Autism Support Group are trying to bring many resources, therapy, &

etc. to us then us traveling. I'm concerned about his rocking back

and forth and after reading an Autistic guy whom wrote about why he

did the same, sort of stuck in my head, worring. I know meds help,

but I would like to wait until is seen by the Autism Treatment

Ctr. We shall see when this happens as he is on a waiting list again.

Thanks again.

Irma,STeven13,DS/ASD

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  • 8 years later...
Guest guest

I hope someone out there has some wisdom to share about

getting the behavioral support we need. My son, 12, was recently

diagnosed with AS. We are still waiting for the Child Study Team to

convene, so an IEP is still a long way away - probably not until September at

this rate. We live in NJ, and I heard that there is a NJ law that

requires all insurance companies to cover Behavioral specialists.

However, our insurance is part of a group policy that was purchased in

NY, where my husband’s company has its main office. The insurance

company says they are not required to cover these specialists, by law, because

the law is “not extraterritorial.”

I know each child is different, but I need to get a sense of

how often (on average at least) a child with strong needs for a behaviorist

should be meeting with a one. Are these the kind of services typically

provided for in an IEP? Any suggestions about how to get the insurance company

to cover it?

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Hi the insurance doesn't pay for. Any mental health we live in nj they pay the therapist I guess it depends on insurance company we pay high copay for therapy sorry. I didn't help. Wish you luckSent via BlackBerry from T-MobileFrom: " Seamon" <sueseam@...>Sender: Date: Sun, 3 Apr 2011 15:43:27 -0400< >Reply Subject: ( ) Behavior Specialist I hope someone out there has some wisdom to share aboutgetting the behavioral support we need. My son, 12, was recentlydiagnosed with AS. We are still waiting for the Child Study Team toconvene, so an IEP is still a long way away - probably not until September atthis rate. We live in NJ, and I heard that there is a NJ law thatrequires all insurance companies to cover Behavioral specialists. However, our insurance is part of a group policy that was purchased inNY, where my husband’s company has its main office. The insurancecompany says they are not required to cover these specialists, by law, becausethe law is “not extraterritorial.” I know each child is different, but I need to get a sense ofhow often (on average at least) a child with strong needs for a behavioristshould be meeting with a one. Are these the kind of services typicallyprovided for in an IEP? Any suggestions about how to get the insurance companyto cover it?

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