Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Hi Cheryl... I just wanted to touch base and let you know that I lost most of the mail that was recent because my computer went down...including my favorites list with your site on it! So some time would you send me your site address and anything else that may have gotten lost...interested in the cure youtalked of on the board and treatment you are doing...Hope things are going well for you... Byron [Lyme-aid] CURE >From: cheryl@... > ><<She also said they are hot on the trail of a cure for lyme but it is atleast >2 years down the road. Oh, she also showed me an article very very >critical of the Lyme vaccine, the possiblity that it is causing immune >system problems like lupus. YIKES! >Sharon >> > >Do you know what this cure will be??? I want it NOW! LOL waaaaaaa > >OH, and which vaccine article did she show you? > >thanks for sharing! A number of doctors are doing that treatment, so I will be anxious to hear how you make out with it! > >) >Cheryl (NY) > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2000 Report Share Posted December 18, 2000 Jeanne, Thank you. That's a fair evaluation, and I agree. The word " cure " is very strong and invokes caution in reasonable people. It's one reason I lurk here, to hear first person reports of folk that have been helped. Chuck People are more violently opposed to fur than leather because it's safer to harass rich women than motorcycle gangs! On Mon, 18 Dec 2000 09:44:12 -0500, jp <jeannep@...> wrote: >It seems many people on this list want to believe in Dr. >without question. I for one think that Dr. 's use of the word cure is >more a turn-off than a turn-on. I believe she would have much more of a >following if she didn't make statements that sound like promises of a cure. >She may be a humble person, but her statements appear to lack humility and >consequently credibility. I have no doubt that her intentions are the best, >but I think you are right to ask her and her followers to reevaluate how >Dr. 's work is presented. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeat”. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 We are all just different--and it's okay to me that everyone has different opinions. That's what makes the world unique and different. I don't condemn or judge anyone that wants a cure for their child. I personally do not. His unique abilities and behaviors are part of the him I love. I know he will do something great in life. but I fully understand your feelings--but it doesn't make anyone silly that they don't feel the same way. Purrs & Kisses, Kristal of Digi Kitty The Kitty who loves Digi! Designer for the VDBC "More" Team - you can see my designs HERE!!! From: Elgamal <cindyelgamal@...>Subject: ( ) Cure Date: Thursday, June 3, 2010, 7:35 PM I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 If I asked my son that question, he might say "no" but I would think it would be more about not liking change than really understanding the question =) My son has very good self-esteem, too. He's more frustrated with the people around him than he is with himself. But, sorry, there are social aspects of him that I would change if I could. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: K <kristalstamper@...> Sent: Sat, June 5, 2010 9:57:35 AMSubject: Re: ( ) Cure It's funny that you said that--I asked my son yesterday--if you could change yourself would you? He said, no (looked at me like I was crazy--he has GREAT self esteem--haha) but then he added well, I wouldn't mind being a little more muscular (GEESH). Purrs & Kisses, Kristal of Digi Kitty The Kitty who loves Digi! Designer for the VDBC "More" Team - you can see my designs HERE!!! I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 I totally disagree that we wouldn't have technological advances, art, and music if we didn't have Aspergers. That's kind of silly. I'm not going to get into this again, but you are giving a neurological disorder way too much credit, in my opinion. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: Amber <evans.amber77@...> Sent: Fri, June 4, 2010 11:26:55 PMSubject: Re: ( ) Cure Yes my son is only 10, but he has it hard already, still I would not want to cure him, and no I do not agree with the aforementioned comment about the comparison of Aspergers being close to cancer, or any other deadly problem. People DIE from cancer my son is alive and well, he has a rough road, no friends, but he is smart, he is inventive, he is loved and he is who he is. I work with the intellectually and physically disabled, I love them all for who they are, even the individuals who can turn on me and beat me to a pulp I love them, I understand them. I am so tired of people wanting a "fix", god had a purpose to his design in each of us, he didn't make a mistake, and BTW do you like you computers, the cool software you have installed on them, how about your ,light bulbs, DVR's, cell phones and art and music? If we all fit in that box we wouldn't have any of that, if it were not for Aspergers you wouldn't have most of it. Have any of you listened to Temple Grandin? Her road was hard, and so was her mothers, but she likes who she is, and does not want to be cured. I ask my son, my 10 year old if I could give you a pill to make you "normal" would you want it, and he said, no mom, I want friends, but I want them to like me for who I am, I don't want them to like a fake me. I think that speaks volumes. If we are not accepting our kids for who they are, how can we ask the world to? I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 I also mentioned diabetes, blindness, deafness which are not deadly problems. While I have no idea if any of the inventors of all the technology you mentioned have Aspergers I don’t believe that Aspergers is a prerequisite to being creative and/or inventive and to make a blanket statement that we “wouldn’t have most of it†is not valid.  And, none of us are waiting for a “fix†and continue to do all the hard work to help our kids. But, many of us would go for a “cure†in a heartbeat. I love my son Aspergers and all. But, he just turned 20 and after years of supports, therapies, etc. he still struggles on so many levels and I wonder if he will ever function independently even though his IQ is genius level. Someone mentioned that this topic was not a survey and they are correct. But, I would be willing to bet that if we did a survey there would definitely be a trend – the majority of us with children mid-teens and above who have struggled for years and continue to struggle - and sometimes wonder if we are ever going to “get there†- would be in favor of a cure. From: [mailto: ] On Behalf Of Amber Sent: Friday, June 04, 2010 11:27 PM Subject: Re: ( ) Cure Yes my son is only 10, but he has it hard already, still I would not want to cure him, and no I do not agree with the aforementioned comment about the comparison of Aspergers being close to cancer, or any other deadly problem. People DIE from cancer my son is alive and well, he has a rough road, no friends, but he is smart, he is inventive, he is loved and he is who he is. I work with the intellectually and physically disabled, I love them all for who they are, even the individuals who can turn on me and beat me to a pulp I love them, I understand them. I am so tired of people wanting a " fix " , god had a purpose to his design in each of us, he didn't make a mistake, and BTW do you like you computers, the cool software you have installed on them, how about your ,light bulbs, DVR's, cell phones and art and music? If we all fit in that box we wouldn't have any of that, if it were not for Aspergers you wouldn't have most of it. Have any of you listened to Temple Grandin? Her road was hard, and so was her mothers, but she likes who she is, and does not want to be cured. I ask my son, my 10 year old if I could give you a pill to make you " normal " would you want it, and he said, no mom, I want friends, but I want them to like me for who I am, I don't want them to like a fake me. I think that speaks volumes. If we are not accepting our kids for who they are, how can we ask the world to? I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 – My 20 yo son would probably also say “noâ€. But, they have perception issues (which is part of Aspergers) so they have no idea really. My son likes himself, too, and would not “see†anything that he would feel needs to be different. LOL! From: [mailto: ] On Behalf Of MacAllister Sent: Saturday, June 05, 2010 10:04 AM Subject: Re: ( ) Cure If I asked my son that question, he might say " no " but I would think it would be more about not liking change than really understanding the question =) My son has very good self-esteem, too. He's more frustrated with the people around him than he is with himself. But, sorry, there are social aspects of him that I would change if I could. " Over-optimism is waiting for you ship to come in when you haven't sent one out. " From: K <kristalstamper@...> Sent: Sat, June 5, 2010 9:57:35 AM Subject: Re: ( ) Cure It's funny that you said that--I asked my son yesterday--if you could change yourself would you? He said, no (looked at me like I was crazy--he has GREAT self esteem--haha) but then he added well, I wouldn't mind being a little more muscular (GEESH). Purrs & Kisses, Kristal of Digi Kitty The Kitty who loves Digi! Designer for the VDBC " More " Team - you can see my designs HERE!!! I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 I agree. I am an engineer and I have worked with many brilliant guys in my career. Most of them are fun and sociable. But they could also design and build an automobile by themselves. Having a passion and being smart is *not* the same as Aspergers.Sent on the Sprint® Now Network from my BlackBerry®From: MacAllister <smacalli@...>Date: Sat, 5 Jun 2010 08:07:53 -0700 (PDT)< >Subject: Re: ( ) Cure I totally disagree that we wouldn't have technological advances, art, and music if we didn't have Aspergers. That's kind of silly. I'm not going to get into this again, but you are giving a neurological disorder way too much credit, in my opinion. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: Amber <evans.amber77 > Sent: Fri, June 4, 2010 11:26:55 PMSubject: Re: ( ) Cure Yes my son is only 10, but he has it hard already, still I would not want to cure him, and no I do not agree with the aforementioned comment about the comparison of Aspergers being close to cancer, or any other deadly problem. People DIE from cancer my son is alive and well, he has a rough road, no friends, but he is smart, he is inventive, he is loved and he is who he is. I work with the intellectually and physically disabled, I love them all for who they are, even the individuals who can turn on me and beat me to a pulp I love them, I understand them. I am so tired of people wanting a "fix", god had a purpose to his design in each of us, he didn't make a mistake, and BTW do you like you computers, the cool software you have installed on them, how about your ,light bulbs, DVR's, cell phones and art and music? If we all fit in that box we wouldn't have any of that, if it were not for Aspergers you wouldn't have most of it. Have anyof you listened to Temple Grandin? Her road was hard, and so was her mothers, but she likes who she is, and does not want to be cured. I ask my son, my 10 year old if I could give you a pill to make you "normal" would you want it, and he said, no mom, I want friends, but I want them to like me for who I am, I don't want them to like a fake me. I think that speaks volumes. If we are not accepting our kids for who they are, how can we ask the world to? I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had__________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 I don't think Asperger's is a prerequesite to being creative. I am creative, but the world doesn't get to enjoy my creativity. I've met people that I believe are Asperger's and don't have a creative bone in their bodies - they are too rigid and inflexible. I am hoping that the diagnosis and support we give our son will make life a bit easier for him that it was for me, but I still wonder if he will be able to leave home, get a job, support himself etc. Miranda > > > > > > > > I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). > > > > > > > > > > > > > > > > > > > > > “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs > > > > > > > > > > > > > > “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Miranda – I think we all hope for the same things you do which is why we continue to plug away. From: [mailto: ] On Behalf Of miranda.flemming Sent: Sunday, June 06, 2010 1:23 AM Subject: Re: ( ) Cure I don't think Asperger's is a prerequesite to being creative. I am creative, but the world doesn't get to enjoy my creativity. I've met people that I believe are Asperger's and don't have a creative bone in their bodies - they are too rigid and inflexible. I am hoping that the diagnosis and support we give our son will make life a bit easier for him that it was for me, but I still wonder if he will be able to leave home, get a job, support himself etc. Miranda > > > > > > > > I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€Â. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). > > > > > > > > > > > > > > > > > > > > > “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs > > > > > > > > > > > > > > “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 I agree . Of course we love our kids they are gorgeous. But I would like him not to struggle in everyday life. I would also like to not have to worry endlessly about him! KelI will keep climbing the mountain.Sent from Kel's iPhone On 04/06/2010, at 9:35 AM, " Elgamal" <cindyelgamal@...> wrote: I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 I agree with as well. You do not need autism to be unique. We all have interesting personalities and talents that make us unique and attractive. One way to answer the question: would I want myself to be autistic? NO. Would I want a cure if I was? YES! Marc > > I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 That is a great point, . I wonder how the division line on this goes by age. And I would also bet the severity affects this kind of subject a lot. So many people are being dx'd with this these days and even self-dxing themselves. Anyone who is a bit quirky or can't make friends gets a dx of AS. This is a " severe " disability though. So I think people who deal with severe are the ones who would run out to stand in the cure line. And then as you pointed out, little kids and older kids are two different challenges entirely. Even people who think it's not so bad when their kid is 6 yo are singing a different tune after trying to navigate through puberty and watching their kid deal with social issues that are twenty times harder as they get older. Having seen both ends age wise and severity wise, maybe that's why I am first in the cure line. lol. Heck, I will even push someone else out of the way to get there. lol. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure   I wouldn't cure my Daughter.  In my eyes I still dont see Aspergers asAutism.  And its prolly just my daughter.  I would love to cure theoutburts but her quirks are what makes her unique.  I love the way shesees the world, Yes she has challenges but who doesn't.   I dontbelieve its silly to say I wouldn't cure my daughter.  I think it variesto each persons own circumstance.  I wouldn't cure her of thinkingdifferently??     On Jun 3, 2010, at 4:35 PM, Elgamal wrote:   I somehow have lost the thread to this and was going torespond to Roxanna’s comment that if there was a cure for autism shewould go for it “in a heartbeat, half a heartbeatâ€. I totallyagree with Roxanna. We all love our children and we all will say we lovethem as they are. But to say you wouldn’t want them cured of autismif that was possible is just as silly as saying you wouldn’t want yourchild cured if they had __________ (fill in the blank: diabetes, cancer,deafness, blindness, the list could go on and on). Many of us on thisgroup have kids who are older and we have spent years and years on therapies,support, medications, and continue to see our kids struggle. So, to sayyou wouldn’t want your child cured is silly (I am trying to be nice as Ican think of much more appropriate, though less politically correct, language).        “Here's to the crazy ones, the misfits, the rebels, thetroublemakers, the round pegs in the square holes... the ones who see thingsdifferently -- they're not fond of rules... You can quote them, disagree withthem, glorify or vilify them, but the only thing you can't do is ignore thembecause they change things... they push the human race forward, and while somemay see them as the crazy ones, we see genius, because the ones who are crazyenough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 , that's nice for you and for Temple Grandin, who makes a ton of money and has a job she loves. What about those people with autism who can't even talk or participate in the world? I somehow don't feel they would be as excited to have autism as you are for your dd. Well, we could ask them but then, they can't communicate. So I guess we won't be able to see what they think about it. Too bad for them. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure   I wouldn't cure my Daughter.  In my eyes I still dont see Aspergers asAutism.  And its prolly just my daughter.  I would love to cure theoutburts but her quirks are what makes her unique.  I love the way shesees the world, Yes she has challenges but who doesn't.   I dontbelieve its silly to say I wouldn't cure my daughter.  I think it variesto each persons own circumstance.  I wouldn't cure her of thinkingdifferently??     On Jun 3, 2010, at 4:35 PM, Elgamal wrote:   I somehow have lost the thread to this and was going torespond to Roxanna’s comment that if there was a cure for autism shewould go for it “in a heartbeat, half a heartbeatâ€. I totallyagree with Roxanna. We all love our children and we all will say we lovethem as they are. But to say you wouldn’t want them cured of autismif that was possible is just as silly as saying you wouldn’t want yourchild cured if they had __________ (fill in the blank: diabetes, cancer,deafness, blindness, the list could go on and on). Many of us on thisgroup have kids who are older and we have spent years and years on therapies,support, medications, and continue to see our kids struggle. So, to sayyou wouldn’t want your child cured is silly (I am trying to be nice as Ican think of much more appropriate, though less politically correct, language).        “Here's to the crazy ones, the misfits, the rebels, thetroublemakers, the round pegs in the square holes... the ones who see thingsdifferently -- they're not fond of rules... You can quote them, disagree withthem, glorify or vilify them, but the only thing you can't do is ignore thembecause they change things... they push the human race forward, and while somemay see them as the crazy ones, we see genius, because the ones who are crazyenough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs  “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Do people who can't even talk or communicate have aspergers? I think she is referring to aspergers only--as this is an aspergers group. Asperger children are even above high functioning autism on the spectrum. They are completely independent as adults and do not have the issues that other lower spectrum children have. So I think she is referring to Aspergers--not the children who can't communicate or participate. Purrs & Kisses, Kristal of Digi Kitty The Kitty who loves Digi! Designer for the VDBC "More" Team - you can see my designs HERE!!! I somehow have lost the thread to this and was going torespond to Roxanna’s comment that if there was a cure for autism shewould go for it “in a heartbeat, half a heartbeatâ€. I totallyagree with Roxanna. We all love our children and we all will say we lovethem as they are. But to say you wouldn’t want them cured of autismif that was possible is just as silly as saying you wouldn’t want yourchild cured if they had __________ (fill in the blank: diabetes, cancer,deafness, blindness, the list could go on and on). Many of us on thisgroup have kids who are older and we have spent years and years on therapies,support, medications, and continue to see our kids struggle. So, to sayyou wouldn’t want your child cured is silly (I am trying to be nice as Ican think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, thetroublemakers, the round pegs in the square holes... the ones who see thingsdifferently -- they're not fond of rules... You can quote them, disagree withthem, glorify or vilify them, but the only thing you can't do is ignore thembecause they change things... they push the human race forward, and while somemay see them as the crazy ones, we see genius, because the ones who are crazyenough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Thank you. And can we just drop it already? I think everyone has made their personal points of view. And thats fine. Agree to disagree and move on. referring to aspergers only--as this is an aspergers group. Asperger children are even above high functioning autism on the spectrum. They are completely independent as adults and do not have the issues that other lower spectrum children have. So I think she is referring to Aspergers--not the children who can't communicate or participate. Purrs & Kisses, Kristal of Digi Kitty The Kitty who loves Digi! Designer for the VDBC "More" Team - you can see my designs HERE!!! I somehow have lost the thread to this and was going torespond to Roxanna’s comment that if there was a cure for autism shewould go for it “in a heartbeat, half a heartbeat”. I totallyagree with Roxanna. We all love our children and we all will say we lovethem as they are. But to say you wouldn’t want them cured of autismif that was possible is just as silly as saying you wouldn’t want yourchild cured if they had __________ (fill in the blank: diabetes, cancer,deafness, blindness, the list could go on and on). Many of us on thisgroup have kids who are older and we have spent years and years on therapies,support, medications, and continue to see our kids struggle. So, to sayyou wouldn’t want your child cured is silly (I am trying to be nice as Ican think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, thetroublemakers, the round pegs in the square holes... the ones who see thingsdifferently -- they're not fond of rules... You can quote them, disagree withthem, glorify or vilify them, but the only thing you can't do is ignore thembecause they change things... they push the human race forward, and while somemay see them as the crazy ones, we see genius, because the ones who are crazyenough to think that they can change the world, are the ones who do.” - Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.” - Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.” - Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Not sure who this " parrish knight " person is but I feel sorry for anyone who defines themselves by their disability alone. How sad. And really, I don't advocate putting anyone to death for having a disability just because I want a cure for that disability. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure   I wouldn't cure my Daughter.  In my eyes I still dont see Aspergers as Autism.  And its prolly just my daughter.  I would love to cure the outburts but her quirks are what makes her unique.  I love the way she sees the world, Yes she has challenges but who doesn't.   I dont believe its silly to say I wouldn't cure my daughter.  I think it varies to each persons own circumstance.  I wouldn't cure her of thinking differently? ?     On Jun 3, 2010, at 4:35 PM, Elgamal wrote:   I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language).        “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs  “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 It is total BS that only people with autism invented everything in the world. It's nice your kid is high functioning enough that you can be glad he has a disability. But I promise there are a lot of people with more severe autism who are not able to speak up for themselves. Temple grandin makes a lot of money writing books, speaking and has a job doing what she loves. It's always nice to be someone who can do what they like, get paid a good wage and live independently. I hardly find that to be a barometer for whether having autism is a wonderful thing, though. It's nice if you can discuss " fake me's " and all that with your kid. I have a friend who has a kid who can't even use a communication device, let alone tell her how wonderful it is to wake up with poop his pants and have to be washed by other people. Well, I just assume he would say how great this autism stuff is if he could talk because everyone so far seems to think it's a wonderful disability to have. I'll ask him next time I see him how great it is to be autistic but I suspect he'll just be looking at the ground and stimming, oblivious to everything around him. last time, he actually said, " Hi! " to me (or towards me really) and I was impressed. I think he still has a way to go before he can form the words, " Having autism has made me what I am today. " Hope he is working on that, though...maybe we can program it into his augmentative device? I'll ask his mom. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure Yes my son is only 10, but he has it hard already, still I would not want to cure him, and no I do not agree with the aforementioned comment about the comparison of Aspergers being close to cancer, or any other deadly problem. People DIE from cancer my son is alive and well, he has a rough road, no friends, but he is smart, he is inventive, he is loved and he is who he is. I work with the intellectually and physically disabled, I love them all for who they are, even the individuals who can turn on me and beat me to a pulp I love them, I understand them. I am so tired of people wanting a " fix " , god had a purpose to his design in each of us, he didn't make a mistake, and BTW do you like you computers, the cool software you have installed on them, how about your ,light bulbs, DVR's, cell phones and art and music? If we all fit in that box we wouldn't have any of that, if it were not for Aspergers you wouldn't have most of it. Have any of you listened to Temple Grandin? Her road was hard, and so was her mothers, but she likes who she is, and does not want to be cured. I ask my son, my 10 year old if I could give you a pill to make you " normal " would you want it, and he said, no mom, I want friends, but I want them to like me for who I am, I don't want them to like a fake me. I think that speaks volumes. If we are not accepting our kids for who they are, how can we ask the world to?   I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language).        “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs  “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Thank goodness I am not alone. I was reading posts, trying to catch up and I was ready to throw in the towel if I read another " I love having autism " posts, like they are all Temple Grandin's out there. I guess part of my stress is having to actually LIVE with autism and it isn't this great and wondrous thing. I sometimes wonder if I live on an alternate planet or we didn't get into the " We want the autism that is fun and exciting instead of the autism that really sucks life out of us " line when it was being passed out. that would just be my luck. lol What I want to know is why it's only the " good " traits of autism that get noted in these discussions. And I even say " good " traits with sarcasm attached because it's only " good " if you make it work for you. And if you can't, then the world is out to get you by not being " Accepting " of your " differences. " I mean, kids who can " stare at something for long periods of time " means these are the people who created computers and microwaves. huh? I don't get how one equals the other. it's just taking a negative trait and trying to make it seem like a positive trait. Nobody is out there cheering for the kid with autism who is obsessively spinning for long periods of time. Don't we love that ability to focus? And don't we credit those kids with creating something great? It takes both sides of the coin and people leave out the flip side. They credit autism/AS with the entire being of these kids/people as if that is the end and beginning of who they are. Without autism, they would be this lifeless hanging puppet or worse (gasp) normal like the rest of us. lol. Well, there are a lot of people out here who are relatively normal and quite interesting, inventive, able to focus for long periods of time, create wonderful life altering inventions, think...And peeling off the autism doesn't change who that person is unless you are crediting " who " someone is entirely to a disability called Autism. Then there is a the subset of this one - where people say, " Well, I would not want to cure autism because I love my kid just the way he is. I would like to take away his tantrums, his inability to make friends, his persevering, his ADHD..... " and on and on (fill in the blanks with your kid's autistic traits.) And to me, that's just saying the same thing - you'd cure autism. I don't ever hear people with other neurological issues creating a " I AM MY DISABILITY " club. I don't hear people saying, for instance, " Don't teach him to read. He is dyslexic. Dyslexic people are really smart and great thinkers. If you teach him to read, you'll take away who he is! If you teach him how to read, his imagination will disappear! It's wrong of the world not to accept him for who he is and wrong for them to force him to conform and learn to read! " OF course, I don't really hang out in any dyslexia groups online. Maybe this club exists too. In which case, AUGH! lol. I have 2 kids with dyslexia and 2 with autism. We did ABA with the younger one who has HFA and I credit that with helping him to BE high functioning. It's because we did not accept that autism would be who he was or define who he was and what he could do that he is where he is today. I don't give autism credit for any of his good features and it has only been something that has prevented him from achieving to his potential all this time and made everything four times harder than it is for a typical person/kid. So I hate it and I'd love to make it go away so he could take advantage of all the good qualities and abilities that he does have - HE has, not autism has. I do not yet understand why people want to credit a disability for the inner being of who someone is. I was cringing with all this talk about asking kids if they would take a pill to " fix " who they are. I will not even go there because I have such a headache right now. But that is so far from the point. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure  Yes my son is only 10, but he has it hard already, still I would not want to cure him, and no I do not agree with the aforementioned comment about the comparison of Aspergers being close to cancer, or any other deadly problem. People DIE from cancer my son is alive and well, he has a rough road, no friends, but he is smart, he is inventive, he is loved and he is who he is. I work with the intellectually and physically disabled, I love them all for who they are, even the individuals who can turn on me and beat me to a pulp I love them, I understand them. I am so tired of people wanting a " fix " , god had a purpose to his design in each of us, he didn't make a mistake, and BTW do you like you computers, the cool software you have installed on them, how about your ,light bulbs, DVR's, cell phones and art and music? If we all fit in that box we wouldn't have any of that, if it were not for Aspergers you wouldn't have most of it. Have any of you listened to Temple Grandin? Her road was hard, and so was her mothers, but she likes who she is, and does not want to be cured. I ask my son, my 10 year old if I could give you a pill to make you " normal " would you want it, and he said, no mom, I want friends, but I want them to like me for who I am, I don't want them to like a fake me. I think that speaks volumes. If we are not accepting our kids for who they are, how can we ask the world to?   I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language).        “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs  “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Well, if that is true then she is wrong. This is a group for parents whose kids have AS and HFA. (My two ds's have HFA and not AS) We are not an " AS only " group. Also, AS people are not guaranteed completely independent lives as adults at all either. If they were all going to do fine as adults, then I can see how one wouldn't be that worried and how one might think having AS was just a " different way of thinking. " However, that is not true at all. Also, autism is a spectrum disorder but that does not mean there is a menu of problems that only certain people have within the spectrum. Rather, it means they all have the same core problems with varying severity. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure Do people who can't even talk or communicate have aspergers? I think she is referring to aspergers only--as this is an aspergers group. Asperger children are even above high functioning autism on the spectrum. They are completely independent as adults and do not have the issues that other lower spectrum children have. So I think she is referring to Aspergers--not the children who can't communicate or participate. Purrs & Kisses, Kristal of Digi Kitty The Kitty who loves Digi! Designer for the VDBC " More " Team - you can see my designs HERE!!!      I somehow have lost the thread to this and was going torespond to Roxanna’s comment that if there was a cure for autism shewould go for it “in a heartbeat, half a heartbeatâ€. I totallyagree with Roxanna. We all love our children and we all will say we lovethem as they are. But to say you wouldn’t want them cured of autismif that was possible is just as silly as saying you wouldn’t want yourchild cured if they had __________ (fill in the blank: diabetes, cancer,deafness, blindness, the list could go on and on). Many of us on thisgroup have kids who are older and we have spent years and years on therapies,support, medications, and continue to see our kids struggle. So, to sayyou wouldn’t want your child cured is silly (I am trying to be nice as Ican think of much more appropriate, though less politically correct, language).        “Here's to the crazy ones, the misfits, the rebels, thetroublemakers, the round pegs in the square holes... the ones who see thingsdifferently -- they're not fond of rules... You can quote them, disagree withthem, glorify or vilify them, but the only thing you can't do is ignore thembecause they change things... they push the human race forward, and while somemay see them as the crazy ones, we see genius, because the ones who are crazyenough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs  “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.â€Â  - Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 probably but I was thinking she wanted the contact with the animals, she LOVES animals but we cant have any b/c my husband was even allergic to our guinea pig (which we kept anyway, in my older dds room as it was hers but he died 2 wks ago of old age :*( ) On Thu, Jun 10, 2010 at 8:18 PM, miranda.flemming <miranda.flemming@...> wrote: could she work in a vet diagnostics lab? (eg animal microbiology/disease identification). That would be very procedure driven and low social contact.Miranda > > > Sue, That was so correct!!!> > > I've watched several young HFA adults who do have jobs (with a job> > coach)> > > and you described them to a T. Some work in fast food places washing > > > dishes & pots, cleaning the tables & bathrooms and mopping the floors.> > > this one guy - He can drive but he can't answer the phone and take an> > > order. Even thou he wants to so bad and he tries but messes up every > > > order. his boss and job coach both told him he can't never answer the> > > phone. how sad he was. he see's others can do it without any problems> > and> > > gets the order right. Even helps the customers with their own order. > > this> > > young man can't. he doesn't know how to approach his boss for another> > > position in his job nor does he know how to apply for a different job. so> > he > > > stays there doing the job he learned. he can only do one assignment at> > a> > > time. he knows what he learned and that's it - he's comfortable. He> > lives> > > with both parents. When he was younger his parents thought > > > things would be so much better for him when he's an adult. he also has a> > > high IQ and he can drive. how hard can a job be..... They never> > expected> > > this for their son. another young man can't drive nor does he want to. > > he> > > lives in a group home because he can't pay bills and needs reminders to> > do> > > laundry, wash himself and getting to his job and home. He can't> > understand > > > how to take the bus & put the correct money in. He doesn't pay attention> > to> > > his stop. He can't ride the bus... He needs to do the same routine every> > > day and if its changed he needs one on one help with his job coach. all > > of> > > these young men (except this last one) want more. They see how simple> > > others can do their job without any help and know just what to do. They> > are> > > HFA yet put in the same group as others that have more needs than them. > > > When the job coach comes in with the boss to check on them they are all> > in> > > that same group and the HFA's know the> > > difference between their group and the other typical workers. they know > > > the typical workers don't have a job coach and are expected to do> > > more. they know they are different and know enough to want to be like> > their> > > typical co-workers. > > > The autism is holding them back. You describe these young adults to the> > T.> > > I have to tell you, their are these two young adults that live in a group> > > home. Both can't drive or hold a job. they are married. They do their > > > laundry together in a laundry matt. The person that runs the group home> > > drives the group to the laundry matt and shopping. this couple needs> > help> > > with the shopping but they can do their laundry on their own with a few > > > concerns. When they put a $20.00 bill in the coin machine. They> > only took> > > a few quarters to put into the washing machine and left the rest of the> > > change in the coin machine. (I didn't know this at that time) When the > > next> > > person came in she put her money in the coin machine not knowing their> > > change was still in there. (neither did I) that caused a problem and> > this> > > couple didn't know how to handle it. (It wasn't until then that I > > realized> > > what happened). because the couple yelled - that's my> > > money!!! They tried to explain but the lady only understood when she saw> > > all that change...At First, that lady was arguing that she just put $5.00 > > in> > > the machine. That's my money she said - get away!!!!! it was a good> > thing> > > that woman just counted out her $5.00 in change and gave the rest back to> > > that couple. How difficult was that! I agree, without the autism life > > would> > > be that much different for them.> > > you explained your post so well and I know these job coaches would agree.> > > Best luck to you and your son> > > Rose > > >> > >> > >> > >> > >> > > ________________________________> > > From: Comtois <suetois@... <suetois%40cox.net>> > > > < %40> > > > Sent: Tue, June 8, 2010 8:03:37 PM> > > Subject: ( ) Re: Cure> > >> > >> > > My almost 19yo son has AS. He's never had any sort of verbal delay, and > > he> > > has a *very* high IQ. But he's not going to be leading an independent> > life> > > as an adult for a long time--if ever. He needs to be our ward (and is> > happy > > > to be so) because he can't handle major decisions for himself. He can't> > > find a doctor or an apartment, navigate college, be responsible for> > > remembering to do important things, or do many other things that a > > typical> > > person of his age can do if they absolutely have to. He probably won't> > ever> > > be able to drive because he processes events slowly and startles rather > > than> > > reacting appropriately when something unexpected happens. He has earned> > two> > > professional certificates, but is on the waiting list with the Department> > of > > > Rehabilitative Services because he's sufficiently handicapped to qualify> > for> > > job placement and job coaching services--without which he would be unable> > to> > > get or retain a job. (He has no sense of > > > business-appropriat e behavior and doesn't self-edit the sort of comments> > > that will get you fired, so he's going to need an employer who is *very*> > > understanding. ) Something like 70% of adults with AS are under or > > > unemployed because of similar problems. He's never had a friend despite> > the> > > fact that he would dearly love at least one. He probably won't ever> > marry> > > and have a family of his own. We're *hoping* that, with appropriate > > > supports, he'll eventually be able to leave home, but that's years and> > years> > > in the future if ever.> > >> > > I'm also saddened by parents whose children have been diagnosed at 5 or 6 > > > yo, who think that their child has " mild AS. " If a person has mild> > AS--the> > > kind that means they're going to be quirky adults and absent-minded> > > professors-- they're often not diagnosed until they're in junior high and > > > their social deficits have become a problem. (I have another son who has> > AS> > > who's in that category.) If AS is apparent at the age of 5 or 6, it's> > > probably not going to be a " mild case. " It's all about not keeping pace > > > developmentally with chronological peers. None of the 5yos have great> > > social skills, so a mild case isn't even apparent at that age. However,> > as> > > typical children become more socially competent, kids with AS lag farther > > > and farther behind. If you can already see that lag at a very early age> > > it's a pretty good indication that you're not dealing with a mild case of> > > AS.> > > > > > As far as the need for a cure goes, my feeling is that if, as an adult,> > you> > > have AS and you can take care of yourself, you probably don't need a> > > cure--although you might want one anyway because it would simplify life a > > > great deal. If you don't need friends or a family of your own, then> > you're> > > not going to be bothered by their absence and you probably don't need a> > > cure. If, however, you want a family, your spouse is going to have to do > > > the heavy lifting in the relationship if it's going to succeed. My> > husband> > > has AS, so I have some experience with this. If you have AS, and it> > means> > > you can't hold a job and have to depend on your family, social services, > > or> > > the kindness of strangers as an adult rather than taking care of> > yourself,> > > then you're being selfish and deluding yourself if you think you're> > simply > > > " different. " > > >> > > Sue> > >> > > Re: Cure> > >>Posted by: " Roxanna " MadIdeasaol (DOT) com roxannaneely> > >>Tue Jun 8, 2010 2:12 pm (PDT) > > >>> > >>> > >>> > >>Well, if that is true then she is wrong. This is a group for parents> > >>whose kids have AS and HFA. (My two ds's have HFA and not AS) We are > > >>not an " AS only " group. Also, AS people are not guaranteed completely> > >>independent lives as adults at all either. If they were all going to> > >>do fine as adults, then I can see how one wouldn't be that worried and > > >>how one might think having AS was just a " different way of thinking. " > > >>However, that is not true at all.> > >>> > >>Also, autism is a spectrum disorder but that does not mean there is a > > >>menu of problems that only certain people have within the spectrum.> > >>Rather, it means they all have the same core problems with varying> > >>severity.> > >> > > >>Roxanna> > >>Whenever I feel blue, I start breathing again.> > >>> > >> Re: ( ) Cure> > >>> > >>Do people who can't even talk or communicate have aspergers? I think > > >>she is referring to aspergers only--as this is an aspergers group.> > >>Asperger children are even above high functioning autism on the> > >>spectrum. They are completely independent as adults and do not have the > > >>issues that other lower spectrum children have.> > >>So I think she is referring to Aspergers--not the children who can't> > >>communicate or participate.> > >> > > >>Purrs & Kisses,> > >>Kristal of Digi Kitty> > >>The Kitty who loves Digi!> > >>Designer for the VDBC " More " Team - you can see my designs HERE!!! > > >>> > >>Â> > >>Â> > >>Â> > >>> > >> > >> > >> > >> >> > --> > Sent from my mobile device > >> > -mommy to Emma, Becca, ,> > , , and baby girl no name (yeah I know, nothing new, does> > ever pick a name in a timely manner?) July 2010> > > > > >> > > > -- > -mommy to Emma, Becca, ,> , , and baby girl no name (yeah I know, nothing new, does ever> pick a name in a timely manner?) July 2010> -- -mommy to Emma, Becca, , , , and baby girl no name (yeah I know, nothing new, does ever pick a name in a timely manner?) July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 Hey , I've started training so I can beat you to the front. lol. I can so relate to the rest of your post as well. My ds (21 yo, hfa, dyslexia) just started college. He is taking 2 classes this summer and already it's kind of dicey - a C and a D thus far. He really won't ask for help, even from us. I finally practically begged him to ask me a math question and repeating how much I want to help him pass this class. He missed so much in math in school that his ability to do it is spotty, part autism issues, part dyslexia issues. He finally told me the other day he can't add/subtract fractions. So we did a little lesson but I could see he didn't get it yet solidly. I just want him to learn how to say, "I need help with that" once!!!!! I feel like I am stalking him over his classes. But we pay so much money for the classes as well as time he is spending in them. We have not had a problem with attendance yet because his two summer classes are both online. He hopes to take many of them like that but we'll have to see how well attendance goes even with that. I try to limit my butting in to every other day. Pace myself. lol. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure I wouldn't cure my Daughter. In my eyes I still dont see Aspergers asAutism. And its prolly just my daughter. I would love to cure theoutburts but her quirks are what makes her unique. I love the way shesees the world, Yes she has challenges but who doesn't. I dontbelieve its silly to say I wouldn't cure my daughter. I think it variesto each persons own circumstance. I wouldn't cure her of thinkingdifferently?? On Jun 3, 2010, at 4:35 PM, Elgamal wrote: I somehow have lost the thread to this and was going torespond to Roxanna’s comment that if there was a cure for autism shewould go for it “in a heartbeat, half a heartbeatâ€. I totallyagree with Roxanna. We all love our children and we all will say we lovethem as they are. But to say you wouldn’t want them cured of autismif that was possible is just as silly as saying you wouldn’t want yourchild cured if they had __________ (fill in the blank: diabetes, cancer,deafness, blindness, the list could go on and on). Many of us on thisgroup have kids who are older and we have spent years and years on therapies,support, medications, and continue to see our kids struggle. So, to sayyou wouldn’t want your child cured is silly (I am trying to be nice as Ican think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, thetroublemakers, the round pegs in the square holes... the ones who see thingsdifferently -- they're not fond of rules... You can quote them, disagree withthem, glorify or vilify them, but the only thing you can't do is ignore thembecause they change things... they push the human race forward, and while somemay see them as the crazy ones, we see genius, because the ones who are crazyenough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 It has always sorta felt like defeat one moment and then we'd get a little ray of hope so we didn't just give up. I did give up a few times anyway - not enough hope coming in. It is a roller coaster emotionally when they get older like this. When my ds no longer could go to school, I think that was the worst for me as a parent. I thought "this is the end of how far he's going to go in life." Now it turned out that another set of options came out of that that led to where we are now. But at the time, it felt so defeating. And I am always wary that the same problem can happen again and he will refuse to move forward. I have to try not to look too far ahead or it can make me crazy. Roxanna Whenever I feel blue, I start breathing again. Re: ( ) Cure Yes my son is only 10, but he has it hard already, still I would not want to cure him, and no I do not agree with the aforementioned comment about the comparison of Aspergers being close to cancer, or any other deadly problem. People DIE from cancer my son is alive and well, he has a rough road, no friends, but he is smart, he is inventive, he is loved and he is who he is. I work with the intellectually and physically disabled, I love them all for who they are, even the individuals who can turn on me and beat me to a pulp I love them, I understand them. I am so tired of people wanting a "fix", god had a purpose to his design in each of us, he didn't make a mistake, and BTW do you like you computers, the cool software you have installed on them, how about your ,light bulbs, DVR's, cell phones and art and music? If we all fit in that box we wouldn't have any of that, if it were not for Aspergers you wouldn't have most of it. Have any of you listened to Temple Grandin? Her road was hard, and so was her mothers, but she likes who she is, and does not want to be cured. I ask my son, my 10 year old if I could give you a pill to make you "normal" would you want it, and he said, no mom, I want friends, but I want them to like me for who I am, I don't want them to like a fake me. I think that speaks volumes. If we are not accepting our kids for who they are, how can we ask the world to? I somehow have lost the thread to this and was going to respond to Roxanna’s comment that if there was a cure for autism she would go for it “in a heartbeat, half a heartbeatâ€. I totally agree with Roxanna. We all love our children and we all will say we love them as they are. But to say you wouldn’t want them cured of autism if that was possible is just as silly as saying you wouldn’t want your child cured if they had __________ (fill in the blank: diabetes, cancer, deafness, blindness, the list could go on and on). Many of us on this group have kids who are older and we have spent years and years on therapies, support, medications, and continue to see our kids struggle. So, to say you wouldn’t want your child cured is silly (I am trying to be nice as I can think of much more appropriate, though less politically correct, language). “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2011 Report Share Posted September 7, 2011 See my website. I suppose that you do understand what clicking on the british flag means? Greetings, Claessens member Verband Baubiologie www.milieuziektes.nl www.milieuziektes.be www.hetbitje.nl checked by Norton cure My friends - I want to say this for my own benefit. These following speculations, opinions, whims, empty judgments and 1/2 truths are coated with my own 10 years of 1st hand experience with ES. The root cause of ES, for everyone, as far as I can tell, is unknown. The most major sources STEM from a body predispositioned by parents with mercury fillings, vaccine, fluoride, pesticide, bioweapon grade viral/bacterial and psychological trauma. We are then born with a download of these emotional, gut bacterial, and chemical poisons. Add to that being IMMEDIATELY injected upon birth with extremely toxic poisons from vaccines (MMR, Pertussis, etc) that cause an overstimulation of the immune system (auto-immune disorders) AND aluminum, mercury and other adjuvants/poisons that fry the nerves, brain, gut flora and predispose us to a life of lowered IQ, severed consciousness from Spirit and support a system to host a myriad of diseases that slowly eat away our brain/gut/nerves (Herpes), give us tumors and cancer (like the polio/ " Salk " vaccine consciously created from green monkeys infected with the Simian Virus 40 or SV 40), leukemia, etc., etc. ad nauseum... Add to that a million chemicals from our environment that purposefully fry the nerves (herb/pesticides...) and then genetically modified organisms created by MONSANTO that have bacteria, when ingested, create poison in your own gut. PLUS, now we have an explosion of EMF/R that, in themselves, trigger specific responses in organs and tissues as proven by cancer that can be caused only by a frequency introduced into a cell in a test tube. Now, with all that, WHAT DO WE GET!!?? Yes, absolutely, a body that will fall at the first and slightest wind that blows. To blame our condition simply on a particular food, is folly. Vaccines grown in a dish along with peanut oil will cause auto-immune responses to peanut butter in children; same with eggs and organ tissue like rabbit brains will cause a MYELIN eating auto-immune response in everyone vaccinated with those ingredients (investigate the Tetanus shot which also causes infertility). To unravel this entire scenario, in order to recover from such a horrible disease/condition as ES, must encompass a larger truth and address so much more than detoxing heavy metals, or changing one's diet. It, at least, must embrace an entire REBOOT of the immune system and gut flora, to change generations of DNA altering influences and modern biowarfare weapons, like LYME, mycoplasmic bacteria in Chemtrails, chemical weapons and nuclear radiation fallout. I believe, to fully heal, I must embrace this entire truth as far as I can handle it before breaking down into another trauma based episode or be stuck in the weeds of eternal recovery. I don't believe there is a miraculous book or theory as the cure all. God, I wish there were one and if you think you have found it, I am still willing to hear it because I am a sucker and will buy it. I'll try pretty much anything to get my life back to where I can again sense the future, fly in my dreams, feel the intuitive dance in every moment, be the happy and radiant being I know that I am. I hate being controlled by someone's cell phone and flying into a spontaneous rage. My regret and emotional roller-coaster is damaging to my loved ones and my spirit. Keep the solutions coming. Let's find the way out, together. With love, ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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