My DD is 7 and has ADHD, Bi-Polar, and AS...I don't know where to start ???

[Guest guest]

My dd was diagnosed at age 3 with severe ADHD with a mention of what looked like

Asperger's to be followed up on as she got older. Last year she was diagnosed

with Bi-polar and Asperger's. She has been in the Pysch hospital 5 times since

November 2008 to get medication changes after periods of prolonged violent

outbursts. They finally put her on Risperdal which has eliminated the violence

but not the outbursts. Every waking moment with her is a like living in a battle

zone. I am overwhelmed and frustrated. Any advice on how some of you got through

this stage, what types of services I can demand from the school (she has an IEP

but it's not sufficient), how to cope day in and day out. I would appreciate

anything anyone can help me with.

Thanks so much,

[Guest guest]

I don't know if this will help your daughter, but Geodon has helped with my son's temper and out burst. He is 19 and has only been on it for a couple of years, but it has helped him a lot. Ask your doctor if she is old enough for this and if it might help her. Good luck. It has helped for my son to have a counselor to talk things out too. From: invictus_kc <invictus33@...>Subject: ( ) My DD is 7 and has ADHD, Bi-Polar, and AS...I don't know where to start ??? Date: Wednesday, June 17, 2009, 3:58 PM

My dd was diagnosed at age 3 with severe ADHD with a mention of what looked like Asperger's to be followed up on as she got older. Last year she was diagnosed with Bi-polar and Asperger's. She has been in the Pysch hospital 5 times since November 2008 to get medication changes after periods of prolonged violent outbursts. They finally put her on Risperdal which has eliminated the violence but not the outbursts. Every waking moment with her is a like living in a battle zone. I am overwhelmed and frustrated. Any advice on how some of you got through this stage, what types of services I can demand from the school (she has an IEP but it's not sufficient), how to cope day in and day out. I would appreciate anything anyone can help me with.

Thanks so much,

[Guest guest]

I don't know if I can help. I know what it is like to live in

chaos though and outburts. My daughter's issues are more extreme

with the pressures of school. Is it the same for you. Better

in the summer with a more relaxed pace.?

With the severity of the issues you describe what school

accomodations do you have?

I know for kidos often with BP and some AS the pressure of

behaving in school is too much and when they get home look

out Mom is the target. Is this the case with you too? It is

this way for us.

We have advocated for years to get changes in the school setting

and finally the school had enough with us and is sending

us out of district. I have mixed feelings because of the

travel time but it's not perfect but I hope it is better.

My friends BP child is much improved on lithium but the

little girl is mainstreamed and still takes it out

on Mom afterschool. I wish this child had a more supportive school

setting. That is the direction we are headed for.

Structured, organized, calm, supportive and small.

I don't think I gave you any real strategies. Some doctors

are better at mixing drugs to find solutions than others.

We are in the process of changing from one MD that is too

conservative to another we know is successful at mixing

meds. Noone wants to go this path but when severe problems

present it must be done. Life can not be sustained with

agression and depression.

Let's see specific services in school:

reduced work, no homework, counseling, social skills,

help with any learning issues. What are your child's learning issues.

Many kids with BP or AS have specific cognitve issues where

verbal skills may be in tact but they have auditory processing

issues, or visual spatial issues, disorganized. You can advocate

for a neuropsch test to find this common cognitive deficits

in BP or AS kids. An academic test will not show these issues.

Often BP kids are sensory seekers and overload theselves

when they should retreat, if your child is receptive (some aren'y)

OT can be very helpful to teach your child ways to self soothe.

Sensory seekers (often BP kids) needs to learn to regulate themselves

better.

Advocating: If the IEP is not sufficent I am guessing your kido

must behave at school, otherwise they would be pushing you

to accept another placement if there were outbursts at school.

What is the case with this? Do problems persist at school.

I wish you the best at finding the doctors and school setting where

you child can one day soon thrive. ((((Hugs))) to you because Mom

often has to be the one to find the way.

Pam

>

> My dd was diagnosed at age 3 with severe ADHD with a mention of what looked

like Asperger's to be followed up on as she got older. Last year she was

diagnosed with Bi-polar and Asperger's. She has been in the Pysch hospital 5

times since November 2008 to get medication changes after periods of prolonged

violent outbursts. They finally put her on Risperdal which has eliminated the

violence but not the outbursts. Every waking moment with her is a like living in

a battle zone. I am overwhelmed and frustrated. Any advice on how some of you

got through this stage, what types of services I can demand from the school (she

has an IEP but it's not sufficient), how to cope day in and day out. I would

appreciate anything anyone can help me with.

>

> Thanks so much,

>

>

[Guest guest]

What is on her IEP right now?

Ruth