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FYI

I have pasted the attachments below.

Ellen

Ellen Garber Bronfeld

egskb@...

FW: Research Study

Hi Laurie and Ellen -if you want to pass this request on to your IPADD folks, it

comes from a trustworthy source. Kathy

Kathy Gould

Project Director

Illinois Autism Training and Technical Assistance Project

1590 S Fairfield Ave., Lombard, IL 60148

phone 630.668.7398

fax 630.620. 9473

gouldkl@...

www.autism.pbisillinois.org

--------------------------------------------------------------------------------

Hello all - Whitney is a graduate student at OSU, under the supervision

of Betsy Benson. She is conducting a research study to determine appropriate

screening measures to identify and assess features of autism spectrum disorders

in adults. She is looking for adults who may want to participate in her study.

The study consists of six questionnaires to be completed by a parent and/or a

support professional of an individual with intellectual disability and/or an

autism spectrum disorder, covering a broad range of behaviors and demographic

information. The Ohio State University Institutional Review Board has approved

this research.

The attached letter and flier explain everything. She asked if I would share

this information with anyone that could perhaps generate some subjects. Please

disseminate this information to any contacts or list serves you feel

appropriate.

Thanks, everyone!

Jody

Please note Department name change and new e-mail address!

Jody Fisher, Project Manager

Director's Office/Policy and Constituent Supports

Ohio Department of Developmental Disabilities

30 East Broad Street, 12th Floor

Columbus, Ohio 43215

E-mail address: jody.fisher@...

Phone: 614-466-7317

FAX: 614-728-7072

Program Directors,

I am a clinical psychology graduate student at The Ohio State University,

specializing in autism spectrum disorders and intellectual disability. For my

master's thesis, I am conducting a study investigating the usefulness of

screening measure, the Social Communication Questionnaire, to identify autism

spectrum disorders in adults. Dr. Betsey Benson, my advisor, is supervising this

study.

Community awareness of the increasing rates of autism spectrum disorders among

children has grown considerably over the past few years, but much less is known

about the prevalence of this disorder in adults. Thus, appropriate screening

measures to identify and assess features of autism spectrum disorders in adults

are needed. My project is an attempt to fill this gap and meet the needs of this

population by investigating one promising instrument that may efficiently and

accurately identify adults in need of further assessment and treatment for

autism spectrum disorders.

We are seeking your assistance in recruiting participants for this study. The

study consists of six questionnaires to be completed by a parent and/or a

support professional of an individual with intellectual disability and/or an

autism spectrum disorder, covering a broad range of behaviors and demographic

information. The questionnaires should require about 45 minutes to one hour of

the rater's time. The Ohio State University Institutional Review Board has

approved this research.

If you have any questions or would like results of the study once it is

complete, please feel free to contact either researcher. For additional

questions or concerns, please contact the Office of Responsible Research

Practices (ORRP) at 614-688-8457, located at 300 Research Foundation Building,

1960 Kenny Road, Columbus, OH, 43210-1063.

We are very appreciative of your time and energy. This project would not be

possible without your help!!

Sincerely,

Whitney . B.A. Betsey A. Benson, Ph.D.

I/DD-Clinical Psychology Graduate Student Adjunct Associate

LEND Trainee Professor of Psychology

Nisonger Center Nisonger Center

Ohio State University Ohio State University

Whitney.@... Betsey.Benson@...

(614) 247-6237 or (919)-622-4892 (614)-688-3214

The mission of the Ohio Department of Developmental Disabilities is continuous

improvement of the quality of life for Ohio citizens with developmental

disabilities and their families.

All or part of this electronic mail transmission may contain confidential

information. If you are not the intended recipient, you are hereby notified that

any retention or dissemination of this information is strictly prohibited. If

you have received this e-mail in error, please notify

phi.support@... and delete all copies of this e-mail from your

system.

Would you like to participate in a study to learn about autism symptoms in

adults with intellectual disability?

Assessing the Validity of the Social Communication Questionnaire in a Sample

of Adults with Autism Spectrum Disorders and Intellectual Disability

I am a graduate student studying an autism screening measure. Guardians or

parents of adults with intellectual disability who think their charges/son or

daughter might be eligible and would like more information may contact the

researchers listed below.

To be eligible, participants with intellectual disability must meet the

following:

a.. 18-40 years old

b.. English-speaking

c.. A previous diagnosis of intellectual disability OR an autism spectrum

disorder and intellectual disability

d.. Willingness to nominate a staff member to complete several short

questionnaires concerning your charge's behavior and symptoms

e.. Willingness to allow researchers to access files with demographic and

diagnostic information

f.. No diagnosis of Down's Syndrome, Fragile X Syndrome, Prader Willi

Syndrome, Angelman Syndrome, Syndrome or Syndrome

g.. A diagnosis of an autism spectrum disorder is NOT required to

participate in the study

To be eligible, raters must meet the following:

a.. Current employment as a provider of supported living or employment, or

behavior support for individuals with intellectual disability, or a parent of an

individual with intellectual disability

b.. Worked with the individual with intellectual disability for at least 6

months

Participation in the study will not require any monetary costs to

participants, and postage for returning study materials to researchers will be

provided. Participants with intellectual disability will not be required to

complete any scales other than informed consent, and they will receive a $5.00

coupon to local businesses for participating. Raters will receive a $15.00 gift

card for participating.

Contact: Whitney , B.A. Phone: (614) 247-6237 or

(919) 622-4892

Fax: (614) 688-5522

Email: Whitney.@...

Principle Investigator: Betsey A. Benson, Ph.D.

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FYI

I have pasted the attachments below.

Ellen

Ellen Garber Bronfeld

egskb@...

FW: Research Study

Hi Laurie and Ellen -if you want to pass this request on to your IPADD folks, it

comes from a trustworthy source. Kathy

Kathy Gould

Project Director

Illinois Autism Training and Technical Assistance Project

1590 S Fairfield Ave., Lombard, IL 60148

phone 630.668.7398

fax 630.620. 9473

gouldkl@...

www.autism.pbisillinois.org

--------------------------------------------------------------------------------

Hello all - Whitney is a graduate student at OSU, under the supervision

of Betsy Benson. She is conducting a research study to determine appropriate

screening measures to identify and assess features of autism spectrum disorders

in adults. She is looking for adults who may want to participate in her study.

The study consists of six questionnaires to be completed by a parent and/or a

support professional of an individual with intellectual disability and/or an

autism spectrum disorder, covering a broad range of behaviors and demographic

information. The Ohio State University Institutional Review Board has approved

this research.

The attached letter and flier explain everything. She asked if I would share

this information with anyone that could perhaps generate some subjects. Please

disseminate this information to any contacts or list serves you feel

appropriate.

Thanks, everyone!

Jody

Please note Department name change and new e-mail address!

Jody Fisher, Project Manager

Director's Office/Policy and Constituent Supports

Ohio Department of Developmental Disabilities

30 East Broad Street, 12th Floor

Columbus, Ohio 43215

E-mail address: jody.fisher@...

Phone: 614-466-7317

FAX: 614-728-7072

Program Directors,

I am a clinical psychology graduate student at The Ohio State University,

specializing in autism spectrum disorders and intellectual disability. For my

master's thesis, I am conducting a study investigating the usefulness of

screening measure, the Social Communication Questionnaire, to identify autism

spectrum disorders in adults. Dr. Betsey Benson, my advisor, is supervising this

study.

Community awareness of the increasing rates of autism spectrum disorders among

children has grown considerably over the past few years, but much less is known

about the prevalence of this disorder in adults. Thus, appropriate screening

measures to identify and assess features of autism spectrum disorders in adults

are needed. My project is an attempt to fill this gap and meet the needs of this

population by investigating one promising instrument that may efficiently and

accurately identify adults in need of further assessment and treatment for

autism spectrum disorders.

We are seeking your assistance in recruiting participants for this study. The

study consists of six questionnaires to be completed by a parent and/or a

support professional of an individual with intellectual disability and/or an

autism spectrum disorder, covering a broad range of behaviors and demographic

information. The questionnaires should require about 45 minutes to one hour of

the rater's time. The Ohio State University Institutional Review Board has

approved this research.

If you have any questions or would like results of the study once it is

complete, please feel free to contact either researcher. For additional

questions or concerns, please contact the Office of Responsible Research

Practices (ORRP) at 614-688-8457, located at 300 Research Foundation Building,

1960 Kenny Road, Columbus, OH, 43210-1063.

We are very appreciative of your time and energy. This project would not be

possible without your help!!

Sincerely,

Whitney . B.A. Betsey A. Benson, Ph.D.

I/DD-Clinical Psychology Graduate Student Adjunct Associate

LEND Trainee Professor of Psychology

Nisonger Center Nisonger Center

Ohio State University Ohio State University

Whitney.@... Betsey.Benson@...

(614) 247-6237 or (919)-622-4892 (614)-688-3214

The mission of the Ohio Department of Developmental Disabilities is continuous

improvement of the quality of life for Ohio citizens with developmental

disabilities and their families.

All or part of this electronic mail transmission may contain confidential

information. If you are not the intended recipient, you are hereby notified that

any retention or dissemination of this information is strictly prohibited. If

you have received this e-mail in error, please notify

phi.support@... and delete all copies of this e-mail from your

system.

Would you like to participate in a study to learn about autism symptoms in

adults with intellectual disability?

Assessing the Validity of the Social Communication Questionnaire in a Sample

of Adults with Autism Spectrum Disorders and Intellectual Disability

I am a graduate student studying an autism screening measure. Guardians or

parents of adults with intellectual disability who think their charges/son or

daughter might be eligible and would like more information may contact the

researchers listed below.

To be eligible, participants with intellectual disability must meet the

following:

a.. 18-40 years old

b.. English-speaking

c.. A previous diagnosis of intellectual disability OR an autism spectrum

disorder and intellectual disability

d.. Willingness to nominate a staff member to complete several short

questionnaires concerning your charge's behavior and symptoms

e.. Willingness to allow researchers to access files with demographic and

diagnostic information

f.. No diagnosis of Down's Syndrome, Fragile X Syndrome, Prader Willi

Syndrome, Angelman Syndrome, Syndrome or Syndrome

g.. A diagnosis of an autism spectrum disorder is NOT required to

participate in the study

To be eligible, raters must meet the following:

a.. Current employment as a provider of supported living or employment, or

behavior support for individuals with intellectual disability, or a parent of an

individual with intellectual disability

b.. Worked with the individual with intellectual disability for at least 6

months

Participation in the study will not require any monetary costs to

participants, and postage for returning study materials to researchers will be

provided. Participants with intellectual disability will not be required to

complete any scales other than informed consent, and they will receive a $5.00

coupon to local businesses for participating. Raters will receive a $15.00 gift

card for participating.

Contact: Whitney , B.A. Phone: (614) 247-6237 or

(919) 622-4892

Fax: (614) 688-5522

Email: Whitney.@...

Principle Investigator: Betsey A. Benson, Ph.D.

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  • 1 month later...
  • 2 months later...
Guest guest

RESEARCH STUDY

Seeking:

Parent or primary caregiver must be above the age of 18 years old and have a child between the ages of eight to eleven years of age who was diagnosed by a psychologist or medical doctor as having Autism Spectrum Disorder.

OR

Parent must be above the age of 18 years old and have a child between the ages of eight – eleven years old who does not have any disabilities as classified by IDEA (2004). It includes autism, Deaf-blindness, deafness, emotional disturbance, hearing impairment, mental retardation, multiple disabilities, orthopedic impairment, other health impairments, specific learning disability, speech or language impairment, traumatic brain injury, and a visual impairment, including blindness.

Study:

The purpose of this study is to gain a greater understanding of temperament- based parental approach to addressing the needs of each child. The research is comprised of three different phases in which parents will be asked to complete several surveys. Parents will be matched according to set criteria established for the research study. They will then be assigned to two groups. Some parents will be asked to implement specific parental strategies to address the needs of their child. This can take place in their home and community environment. The research will last approximately two months.

Reward:

Once results have been obtained, a thank you letter will be mailed to all the parents as well as $5.00 gift card to and Noble as an appreciation for participation in the study!

Interested in Learning More:

If you are interested in learning more about this research study, please contact the Principal Investigator, Tara Malka, M.A., Ed.M. at tdm33@...!

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  • 4 months later...

Cara wrote:

> While I was at UPMC they asked if I would be willing to donate some lymph

nodes and blood for a research study on Achalasia. ...

>

> Along with the donated tissue, I also received a questionnaire. ... Well this

questionnaire was barely a questionnaire. It asked about cancer in the family,

reflux and smoking and drinking history.

This research is probably looking into the risks and causes of cancer in

achalasia. It may also be looking for some markers in the blood and

tissue for possible causes of achalasia, but it may just be about

cancer. If it is about more than just the risk and rates of cancer then

I would guess that they have a theory that they are trying to research

or they are trying to test, confirm or improve some findings of other

research.

Studies like these can be very focused, which can be a good thing. It

allows for some control and easier comparison between studies than may

be the case with broader studies. One of the important features of a lot

of research is the identification and control of variables. If for

example, you were trying to study the affect of humidity on the

expansion of a certain substance you should probably control temperature

and time, which would also mean you identified temperature and time as a

possible variables in the expansion of that substance. In your research

there could be some cases where temperature was not controlled well and

the data from those cases needed to be excluded. In this example

research there is only one variable that is being studied and two others

that are being controlled. If you had a study with ten food items you

were studying the effects of you should identify all the relevant

variables for each item and there could be a number of them for each

item. It is one thing to have corn on your plate, but even if you don't

like it or eat it you still have corn in many food products and it was

fed to much of the livestock that meat comes from. Fish is also like

that. Fish meal is used in many ways and people that don't eat fish

still end up eating fish products. Some people that have Ciguatera Fish

Poisoning may become sensitive to other foods that would seem unrelated.

I use sardine paste, like a seasoning, in things many people would never

expect it in.

Broad surveys and questionnaires can be useful but they don't take the

place of more focused research techniques. Which techniques researchers

use are going to depend on the exact questions the researchers are

trying to answer and their backgrounds. There is a skill to doing a good

design for a questionnaire like you want. Some researchers have their

skills in other types of research. There may only be enough funding for

just so much research and it will be spent on the research that those

involved think is the best use of the money.

If anyone has a child that is going to do a science fair project they

should understand the concept of identifying and controlling variables.

Science fairs have a lot in common with beauty pageants. It is about

pleasing the judges, who often have some science background. A very

simple project with good identification and control of variables will

look much more beautiful to the judges than a more complex one with

uncertainties. Professional research is also judged (in different ways)

and scientists tend to like simplicity.

notan

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