Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 We just started the GAPs diet and the bio-kult about 5 days ago. We had done Weston Price for about 4 years prior to GAPs. For the last two years, I have been going to a chiropractor who has put me on lots of minerals to break down my kidney stones. It has been working . . . however, the minerals she is giving me has lots of things that we are not supposed to have in it. Any suggestions what I should do? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 > > Hi there, > > I've now been going into details of what I should be taking & have > some questions regarding the supplements. My doctor has given me a > variety of supplements to take so here are my questions: > > B complex - the combination of various B vitamins is different. Some > are higher like Niacin is 200 mg but others like thiamin and > riboflavin are lower. I take 1 capsule a day. I've still got 2 > bottles so I'm wondering if I should continue or search for one with > similar dosage recommended. +++Hi Shirin. It is better to get a B complex that is balanced, called synergistic, rather than one that isn't. That is because the B vitamins all work together, so some of the B vitamins need to be the same amount in the product as specified on my list. > > B12 - I was given a sublingual one which is supposed to help with my fatigue. That is 5 mg. +++B12 is included in vitamin B complex. There are other factors involved in the absorption of B12, and also it is important to get the correct source of B12. The only reliable and absorbable sources of vitamin B12 are animal products, especially organ meats and eggs. Plant based B12 are not " true " B12, as this article states: http://www.healingnaturallybybee.com/articles/foods33.php +++Fatigue is common for candida sufferers, and the best remedy is consuming enough " good " fats I recommend, since they are the very best source of energy for the body compared to carbs, and having proper nutrition (diet plus supplements). See " Fatigue & Candida " to understand why candida causes such fatigue: http://www.healingnaturallybybee.com/articles/foods33.php > Fish oil - I cannot handle anything in gel caps (I think its the > gelatin) so I take the liquid cod liver oil from Nordic Naturals or > Childlife. These do contain fruit flavouring. But so far, these are > the only ones I can handle without feeling nauseous. Are these ok? +++I don't know about Childlife cod liver oil, but I know Nordic Naturals contains mostly omega 3, but not enough vitamins A & D. So if you take Nordic you must take vitamins A & D in addition since those 3 nutrients work together (omega 3, vitamins A & D) - see my article that calculates the amounts of nutrients in different kinds of cod liver oil: http://www.healingnaturallybybee.com/articles/cod2.php > > Vit E - again, the gelcaps issue. I dont seem to be able to take them at all without feeling sick. +++You can buy vitamin E oil in bottles, but I haven't researched them to see if they are derived from soybean oil or not. > > CoQ10 - Again recommended by the doctor for my fatigue. They come in 100mg capsules and I take 4 a day. Should I continue this? +++It won't hurt you to take them, but I suggest that after you finish the you don't continue on them since it isn't necessary. C0Q10 is formed inside the body from 2 amino acids, and amino acids are made from proteins, found in animal meats and eggs on this diet. Here's more information about CoQ10 from the Linus ing Institute if you can wade through the technical words: http://lpi.oregonstate.edu/infocenter/othernuts/coq10/ > > Glutagenics - this is a glutamine supplement that also has licorice > and aloe. This is supposed to help heal my leaky gut. Is this ok? +++I do not recommend taking glutamine supplements since it is converted to glutamic acid, which is a neurotosin. See this reference: http://www.mercola.com/article/aspartame/dangers.htm Dr. L. Blaylock, a professor of neurosurgery at the Medical University of Mississippi, recently published a book thoroughly detailing the damage that is caused by the ingestion of excessive aspartic acid from aspartame. Blaylock makes use of almost 500 scientific references to show how excess free excitatory amino acids such as aspartic acid and glutamic acid (about 99 percent of monosodium glutamate (MSG) is glutamic acid) in our food supply are causing serious chronic neurological disorders and a myriad of other acute symptoms.(3) How Aspartate (and Glutamate) Cause Damage Aspartate and glutamate act as neurotransmitters in the brain by facilitating the transmission of information from neuron to neuron. Too much aspartate or glutamate in the brain kills certain neurons by allowing the influx of too much calcium into the cells. This influx triggers excessive amounts of free radicals, which kill the cells. The neural cell damage that can be caused by excessive aspartate and glutamate is why they are referred to as " excitotoxins. " They " excite " or stimulate the neural cells to death. Unfortunately the Leaky Gut Theory is full of holes (pun intended) - see this article: http://www.healingnaturallybybee.com/articles/dig12.php What helps your digestion most is proper nutrients (diet plus supplements), improving digestion as written in my main candida article (particularly having enough stomach acid by taking hydrochloric acid supplements), etc. > > HCL - I havent been able to find it at all in Singapore!!! So I've > added metazyme which is a digestive enzyme, one at lunch and dinner. +++If it is called a digestive enzyme it won't help, since it will contain enzymes produced by the pancreas, and not increase stomach acid. It is more important to increase stomach acid so when the contents of the stomach empty into the first part of the small intestines there's enough HCl to trigger the pancreas to produce its enzymes, along with bicarbonate of soda (baking soda). Baking soda is to alkalize the foods so it can be properly digested throughout the small intestines. If foods aren't alkalized it will particularly interfere with protein digestion. You can order betaine hydrochloric acid online, or eat 1/2 cup of good unpasteurized sauerkraut with every meal. One good brand is NOW. I hope that helps you. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Bee, Just to clarify, are u saying that its not necessary to take the digestive enzymes and HCL alone will be sufficient?? Will have to go shopping this weekend to look for the right supplements.... THANKS SO MUCH BEE. Shirin > > HCL - I havent been able to find it at all in Singapore!!! So I've > > added metazyme which is a digestive enzyme, one at lunch and dinner. > > +++If it is called a digestive enzyme it won't help, since it will > contain enzymes produced by the pancreas, and not increase stomach > acid. It is more important to increase stomach acid so when the > contents of the stomach empty into the first part of the small > intestines there's enough HCl to trigger the pancreas to produce its > enzymes, along with bicarbonate of soda (baking soda). Baking soda > is to alkalize the foods so it can be properly digested throughout > the small intestines. If foods aren't alkalized it will particularly > interfere with protein digestion. You can order betaine hydrochloric > acid online, or eat 1/2 cup of good unpasteurized sauerkraut with > every meal. One good brand is NOW. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 > > Hi Bee, > > Just to clarify, are u saying that its not necessary to take the > digestive enzymes and HCL alone will be sufficient?? +++Hi Shirin. Yes, that is correct. Luv, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Thanks Beth, let me clarify, I asked my  gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto: ] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys.com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301@...> Sent: Fri, April 23, 2010 12:02:03 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AM Subject: [ ] Re: Question about “supplementsâ€� Hi Lynne, Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment. SuziQ > > Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto: ] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 7:35:45 PM Subject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AM Subject: [ ] Re: Question about “supplementsâ€� Hi Lynne, Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment. SuziQ > > Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first.   Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto: ] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 8:18:43 PM Subject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PM Subject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: @ groups. com [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AM Subject: [ ] Re: Question about “supplementsâ€� Hi Lynne, Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment. SuziQ > > Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they?  J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to " celebrate " even just a little) your " undetected " status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto: ] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurvivalguide.org/comboguide.htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 8:38:40 PM Subject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PM Subject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PM Subject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AM Subject: [ ] Re: Question about “supplementsâ€� Hi Lynne, Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment. SuziQ > > Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Too true! Ha-ha. From: [mailto: ] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 9:42 PM Subject: Re: [ ] Re: Question about supplements Yeah but it still doesnt stop the want tos. From: Teri Gottlieb <theresagottlieb@...> Sent: Fri, April 23, 2010 9:39:34 PM Subject: Re: [ ] Re: Question about supplements That's way too cool. Puts it pretty straightforward doesn't it? From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 9:27:54 PM Subject: Re: [ ] Re: Question about supplements Your are to funny, From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 9:16:46 PM Subject: RE: [ ] Re: Question about supplements Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they? J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to " celebrate " even just a little) your " undetected " status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PM Subject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PM Subject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: @ groups. com [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PM Subject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AM Subject: [ ] Re: Question about “supplementsâ€� Hi Lynne, Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment. SuziQ > > Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 My dr is a Gastroenterologist. I called 2 weeks ago, spoke 2 the assistant and inquired about the exp they had /w hep c. Of course the response was that she deals with all the time. I thought about a second opinion made an appt, canceled it. I am just felling stressed and overwhelmed w/ trying 2 find a dr, the costs, etc. I think, how many drs am I going 2 have to see to find a good one?" Maybe I should just stick w this one and go on and get going on my trx. I'm just so frustrated and discouraged.(A glass of wine would be nice right about now... :-(Sent from my Verizon Wireless BlackBerryFrom: Teri Gottlieb <theresagottlieb@...>Date: Fri, 23 Apr 2010 12:57:11 -0700 (PDT)< >Subject: Re: [ ] Re: Question about “supplementsâ€� Lynne,I am going to piggy-back here on what Suzi just said... Even after treatment drinking is not a wise decision. During treatment it is disastrous. Those high caliber high intensity drugs CAN NOT be mixed with alcohol at any time. And the drugs stay in your body for months and months after treatment so having a drink the day it's over doesn't work either. When you have liver disease of any kind, drinking is like pouring gasoline on a flame... the damage is huge. I agree with Suzi, FIND ANOTHER DOCTOR. Find a Hepatologist or at the very least a Gastro that specializes in liver disease. I'd also stop the ephedra. Caffeine is a huge no no during treatment. I had to switch tode-caf coffee and herbal teas and I had to stop my much beloved Coca Colas as well. Besides, if you are just using to to work out... chances are, working out is going to be the last thing on your mind during treatment. Just my 2 cents, but it's 2 cents from somebody who's been there and done that. Teri in Chicago From: SuziQ <ancientkron > Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to thesupplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 The fact that you even THOUGHT about getting a second opinion to me means in the back of your mind there is doubt. I blew thru 2 gastro's before I found THE ONE. Just remember, this doctor and his nursing staff are going to be a part of your everyday life for the entire length of your treatment. Find someone that immediately makes you comfortable, addresses all your concerns and has a nurse that will hold your hand thru the treatment and beyond. Someone that knows his stuff and has done this hundreds of times with positive results. Ask him what his success rate is. I was lucky and had a doctor with a 92 percent SVR rate. He was also very aggressive with his treatment. Check around for a Liver Specialist. Just my 2 cents.TeriSent from my Verizon Wireless BlackBerryFrom: lynne.wolfe@...Date: Fri, 23 Apr 2010 22:13:19 +0000< >Subject: Re: [ ] Re: Question about supplements My dr is a Gastroenterologist. I called 2 weeks ago, spoke 2 the assistant and inquired about the exp they had /w hep c. Of course the response was that she deals with all the time. I thought about a second opinion made an appt, canceled it. I am just felling stressed and overwhelmed w/ trying 2 find a dr, the costs, etc. I think, how many drs am I going 2 have to see to find a good one?" Maybe I should just stick w this one and go on and get going on my trx. I'm just so frustrated and discouraged.(A glass of wine would be nice right about now... :-(Sent from my Verizon Wireless BlackBerryFrom: Teri Gottlieb <theresagottlieb >Date: Fri, 23 Apr 2010 12:57:11 -0700 (PDT)< >Subject: Re: [ ] Re: Question about “supplementsâ€� Lynne,I am going to piggy-back here on what Suzi just said... Even after treatment drinking is not a wise decision. During treatment it is disastrous. Those high caliber high intensity drugs CAN NOT be mixed with alcohol at any time. And the drugs stay in your body for months and months after treatment so having a drink the day it's over doesn't work either. When you have liver disease of any kind, drinking is like pouring gasoline on a flame... the damage is huge. I agree with Suzi, FIND ANOTHER DOCTOR. Find a Hepatologist or at the very least a Gastro that specializes in liver disease. I'd also stop the ephedra. Caffeine is a huge no no during treatment. I had to switch tode-caf coffee and herbal teas and I had to stop my much beloved Coca Colas as well. Besides, if you are just using to to work out... chances are, working out is going to be the last thing on your mind during treatment. Just my 2 cents, but it's 2 cents from somebody who's been there and done that. Teri in Chicago From: SuziQ <ancientkron > Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to thesupplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurvivalguide.org/comboguide.htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Pegassist.com. is the pegasus site and they do send like weekly up dates then monthly updates. From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Lynne,You should be able to find a Hepatologist in New Orleans. They have some major hospitals there that are doing all sorts of great work. Call the hospitals and they can give you names. Charity Hospital may be a good starting point since they are a teaching hospital. You can find the best docs at a teaching hospital. Hope this helps.Teri From: Beth Frey <bethfrey42301@...> Sent: Fri, April 23, 2010 8:50:18 PMSubject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Your are to funny, From: Lynne Wolfe <lynne.wolfe@...> Sent: Sat, February 13, 2010 9:16:46 PMSubject: RE: [ ] Re: Question about supplements Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they? J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to "celebrate" even just a little) your "undetected" status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 That's way too cool. Puts it pretty straightforward doesn't it? From: Beth Frey <bethfrey42301@...> Sent: Fri, April 23, 2010 9:27:54 PMSubject: Re: [ ] Re: Question about supplements Your are to funny, From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 9:16:46 PMSubject: RE: [ ] Re: Question about supplements Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they? J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to "celebrate" even just a little) your "undetected" status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Yeah but it still doesnt stop the want tos. From: Teri Gottlieb <theresagottlieb@...> Sent: Fri, April 23, 2010 9:39:34 PMSubject: Re: [ ] Re: Question about supplements That's way too cool. Puts it pretty straightforward doesn't it? From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 9:27:54 PMSubject: Re: [ ] Re: Question about supplements Your are to funny, From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 9:16:46 PMSubject: RE: [ ] Re: Question about supplements Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they? J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to "celebrate" even just a little) your "undetected" status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 I have a want to for a cold beer right now... but I have a cold glass of herbal tea here instead... Life changes.Teri From: Beth Frey <bethfrey42301@...> Sent: Fri, April 23, 2010 9:42:12 PMSubject: Re: [ ] Re: Question about supplements Yeah but it still doesnt stop the want tos. From: Teri Gottlieb <theresagottlieb> Sent: Fri, April 23, 2010 9:39:34 PMSubject: Re: [ ] Re: Question about supplements That's way too cool. Puts it pretty straightforward doesn't it? From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 9:27:54 PMSubject: Re: [ ] Re: Question about supplements Your are to funny, From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 9:16:46 PMSubject: RE: [ ] Re: Question about supplements Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they? J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to "celebrate" even just a little) your "undetected" status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Lynn, I was in Houma La last summer. Thought I would be there long enough to go thru tx while there. I went to Tulane Transplant & Abdominal Center in New Orleans. Hepatologist there was awesome. And very caring as were all the nurses and staff. I really wish I was still able to be with them.Had to move back to Oklahoma - Hubby job transfer usually about every six months. Hope to be here long enough to do tx; but haven't found a Hepdoc I trust to be with me thru tx.From Trudy from my iPhone On Feb 13, 2010, at 8:38 PM, "Lynne Wolfe" <lynne.wolfe@...> wrote: Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto: ] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfegmail> Sent: Sat, February 13, 2010 8:18:43 PM Subject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PM Subject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: @ groups. com [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth Frey Sent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AM Subject: [ ] Re: Question about “supplementsâ€� Hi Lynne, Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment. SuziQ > > Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne > Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (23) Recent Activity: New Members 8 New Links 88 Visit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 I want a banana shake. Cinder Check out datagrey's photos and profile! http://community.webshots.com/user/datagrey Find me on MySpace and be my friend. http://www.myspace.com/datagrey From: Teri Gottlieb <theresagottlieb@...>Subject: Re: [ ] Re: Question about supplements Date: Friday, April 23, 2010, 9:53 PM I have a want to for a cold beer right now... but I have a cold glass of herbal tea here instead... Life changes. Teri From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 9:42:12 PMSubject: Re: [ ] Re: Question about supplements Yeah but it still doesnt stop the want tos. From: Teri Gottlieb <theresagottlieb> Sent: Fri, April 23, 2010 9:39:34 PMSubject: Re: [ ] Re: Question about supplements That's way too cool. Puts it pretty straightforward doesn't it? From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 9:27:54 PMSubject: Re: [ ] Re: Question about supplements Your are to funny, From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 9:16:46 PMSubject: RE: [ ] Re: Question about supplements Beth, great link, thanks! Started scrolling down and of course got to the A’s first, read what I pasted below, LOL! Love it…can’t say it any more simply can they? J “No Alcohol!!!!: NO NO NO, Especially not ever while on treatment. Why are you even asking? What are you thinking??? One ounce of alcohol negates the effects of the interferon for however long it takes your body to process it. Negates=makes it not work at all! That means that if you decide to "celebrate" even just a little) your "undetected" status (especially over a long weekend) that would mean that by the time your body processes the alcohol you drank, up to 4 days may have passed (technically) since you had your shot. 4 DAYS!!! Plenty of time to allow a breakthrough of the virus. Is it worth it? Go have a fruit juice or something, just say NO!†From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:50 PM Subject: Re: [ ] Re: Question about supplements There isnt much info on the pegysus site. And not a live chat either. here is a little something that some folks use. Me I didnt have the typical systoms. I didnt even lose my hair until my thyroid wacko http://www.hepcsurv ivalguide. org/comboguide. htm Good luck to you and may God smile on you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:38:40 PMSubject: RE: [ ] Re: Question about supplements Not on treatment, yet. My dr wanted me to start the week after I was diagnosed in March, but I wanted to research all my options prior. Apparently, peg\rib is the best option to try first. Based on the feedback I have received today on this forum I am going to attempt to change doctors and find a Hepatologist that I like and trust. I live in a “bedroom community†North of New Orleans. I looked online and asked my dr about local support groups and they pointed me to the Pegasus site. (Not much going on over here.) So far this group is the best thing I have found. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:23 PM Subject: Re: [ ] Re: Question about supplements So are you on treatment? Have you taken it? Where are you from? Me I am in a small town in KY we dont even have a liver support group here. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 8:18:43 PMSubject: RE: [ ] Re: Question about supplements No offense was taken, just wanted to clarify. I sure miss my glass or two…or three…(after a really stressful workday!) Have been turning to decaffeinated flavored teas instead, it’s sort of working as a substitute. (Still miss my wine though!) J From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 8:11 PM Subject: Re: [ ] Re: Question about supplements Thats ok I used to love to drink on a hot summer day in the pool or after I mowed the yard and still want to every now and again. But like I said since finishing treatment I am still to chicken Sorry if I offened you. From: Lynne Wolfe <lynne.wolfe@ gmail.com> Sent: Sat, February 13, 2010 7:35:45 PMSubject: RE: [ ] Re: Question about supplements Thanks Beth, let me clarify, I asked my gastroenterologist if it was ok to have any alcohol during treatment and she told me on occasion. I did not say that I thought it was ok. From: [mailto:HepCWebWarr iors@groups .com] On Behalf Of Beth FreySent: Friday, April 23, 2010 7:19 PM Subject: Re: [ ] Re: Question about “supplementsâ€� I was just responding to the person who thinks it is okay to take treatment and drink and do adrephia. I think its crazy to do so. I think it was the pegasys site where I learned that taking treatment and drinking could cause liver failure and even death. Here is the site http://www.pegasys. com/. PS never did drink that beer been off treatment for 6 mths and to chicken. lol From: Beth Frey <bethfrey42301> Sent: Fri, April 23, 2010 12:02:03 PMSubject: Re: [ ] Re: Question about “supplementsâ€� I heard if you drink whilke taking infern-riba it could kill u From: SuziQ <ancientkron> Sent: Fri, April 23, 2010 8:16:59 AMSubject: [ ] Re: Question about “supplementsâ€� Hi Lynne,Please find a doctor who knows more about liver disease than the one you have--either a gastroenterolist or a hepatologist !!! Any doctor who knows anything about liver disease or Hep C would NOT say alcohol is ok--especially during treatment !!!! Both ephadra and alcohol are absolute no-no's. Treatment can be difficult and you need a doctor who is knowledgable about the disease and about the side effects of treatment. Learn ALL you can before you start treatment. Find a doctor who has SUCCESSFULLY treated a number of patients. Read the online book Choices at hepcchallenges. org. If you wiil tell us where you live, maybe someone can steer you to a doctor in that area. I am sorry, but NO DOCTOR who knows anything about Hep C (or other liver diseases) would say alcohol is ok. You need to have someone who is very, very knowledgable to see that you are safe during treatment.SuziQ >> Hi, so glad I stumble across this group! Seems a very supportive place to be esp. with all the stigma attached to hep c. I am a 43 yr. female and was diagnosed in March geno type 3. Completely out of the blue! I was going through a battery of medical tests for a contractor job in the Middle East and one of my labs came back with an “abnormal†result. Had to get more tests to show that I am ok…well, turns out I am not ok. So, I really want to get this started and over and try to move on with my life. I plan to start my peg\ribo treatment mid May. (I think) I have just been trying to research as much as I can before I start and mentally gear up for it. Oh I do already take the max dose of Wellbutrin for depression…so really concerned about the mental\emotional side effects. However, my current mind set is: Expect (and prepare) for the worst and pray for the best! Once again, feel blessed to have found your group! Getting to the supplement question: I was wondering if anyone has used any Ephedra products while on the meds? In the mornings I currently take half of a 25 mg true Ephedra w\200 mg of caffeine in it. It helps give me energy to get to the gym and get a work out. However I am concerned if there are indications for the liver and it if may have an adverse affect with the meds. I was thinking it may actually help me though some of the side effects…? I asked my Dr. and she said it was fine…but she also told me I could drink alcohol on occasion too while on the meds. Also, are there many of you that have combined alternative medicines with the Western? Such as Milk Thistle, vitamin D and such? Is there any one place (or link…Don?) for dosage amounts and potency? Thanks!! Lynne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Gloria,I know of more than a handful of people who are dealing with Hep C just in the small town I live in... maybe like 12. I would love to start a real live in person support group, I actually talked to my Gastro about it when I was on treatment... any ideas on how to go about starting one? I have to make an appointment to see the Gastro anyway and I could talk to him, I know his old nurse said she'd help as well.... But how do you even start something like that?TeriFrom: Gloria <gadamscan@...> Sent: Sat, April 24, 2010 10:22:36 PMSubject: Re: [ ] Re: Question about supplements Hate to say this gang!!! After 8 years dealing with the HepC, I still have yet to find very many places that actually have support groups!! So far, this group has been the best support I could find ever... I was on another Canadian Group; but, it seemed to completely fold about the time our government handed out the money for the bad blood scandal. Some support there hey??? Quote Link to comment Share on other sites More sharing options...
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