Introduction to group

[Guest guest]

Welcome, . You've come to a good place. I don't have any lung

problems so far, but many people with PA have pleurisy and/or pain from

inflammation in the connective tissues around the ribs. It's certainly

possible that your lung problems are related to PA.

regards,

sherry z

>

> My first questions are: Does anyone here have problems with their

> lungs? Like too much mucus at times and pain in the

> bronchul(SP?)tubes? Do people with PA also develop something like RA

> lung? I was diagnosed with Asthma at 23 but it isn't acting like

> asthma now.

[Guest guest]

Hey ,

Sorry to hear about what has been going on with you. You can

certainly develop lung problems with PA and/or RA. I did and since

being on humira it has really helped with inflamation in my lungs.

you might want to complain to your Rhemy and have him send you to a

lung specialist that is familiar with RA Lung involvment.

Hope things get better for you. Right now my lungs are okay, but

it wasn't always the case.

Sorry to say but i think with this kind of autoimmune disease

anything can happen and usually does.

>

> Hello,

> I am and I have just been diagnosed with PA--no. let me take

> that back. I was actually diagnosed with RA related arthritis when

I

> was 12 and that was back in 1978. I was put on aspirin treatment

and

> within one year I was in remission. This lasted for about 10 yrs.

Then

> little things began to happen. By the time I was about 23 I began

to

> show signs of Psoriasis patches on the back of my neck and scalp,

and

> my eye lids.The Drs. didn't test for anything at that time. Just

ruled

> it was ezemea(SP?)and gave me some ointment and sent me on my way.

It

> wasn't until the births of my children that I began to feel really

> sick.That was 6 yrs ago, and it has taken this long to get another

> diagnosis.

>

> I have begun to show more symptoms , and the pain levels are really

> soaring now. I know very little of this disease and I am hoping I

can

> talk with others who know more than I do. And I am itching! lol.

>

> My first questions are: Does anyone here have problems with their

> lungs? Like too much mucus at times and pain in the

> bronchul(SP?)tubes? Do people with PA also develop something like

RA

> lung? I was diagnosed with Asthma at 23 but it isn't acting like

> asthma now.

>

> Thank you for any help you can provide. I am going to look around

in

> the posts and see what else I can learn.

>

> Corie

>

[Guest guest]

Hi my name is Carlene, I have a son who is 10 diagnosed with "Aspergers" and "ADHD".

He is currently taking meds. He is seeing a counselor weekly. He goes to a local Charter

School. We currently have a wonderful network for him. But we still struggle with issues.

So I am happy to be joining this group. Thank You.

[Guest guest]

Hi Carlene,

Are you happy with your son's diagnosis?

My daughter got diagnosed with ADHD. I did not see it in her. I even questioned 'Can a child with ADHD sit in a classroom with 25 other children and work on a math test for 3 hours and still get a perfect score?' The reply I kept getting was 'NO'. So I kept pushing. I finally had another screening done and they said that all of my daughters sensory and motor disregularities were creating ADHD tendacies. That I do agree with.

So now we are doing some intense OT with my daughter. The down side with my daughter's degree of sensory and motor issues is that it will take at least three years to get her to be able to recognize and seek the proper stimulation so that she can focus.

From: Carlene Standley <treasuretrash48@...>Subject: ( ) Introduction to group Cc: Treasuretrash48@...Date: Saturday, March 27, 2010, 10:57 AM

Hi my name is Carlene, I have a son who is 10 diagnosed with "Aspergers" and "ADHD".

He is currently taking meds. He is seeing a counselor weekly. He goes to a local Charter

School. We currently have a wonderful network for him. But we still struggle with issues.

So I am happy to be joining this group. Thank You.

[Guest guest]

Hi Carlene & family Welcome to the wonderful group! Angel Blessings

From: Carlene Standley <treasuretrash48@...>Subject: ( ) Introduction to group Cc: Treasuretrash48@...Date: Saturday, March 27, 2010, 6:57 AM

Hi my name is Carlene, I have a son who is 10 diagnosed with "Aspergers" and "ADHD".

He is currently taking meds. He is seeing a counselor weekly. He goes to a local Charter

School. We currently have a wonderful network for him. But we still struggle with issues.

So I am happy to be joining this group. Thank You.

[Guest guest]

First I think you could be my new best friend, second for the first time this

weekend I dont feel alone, My Son age 10 was diagnosed this friday with

Aspergers, he has been on ADHD meds for a long time. First I have to say his

meds work wonders, but there was always somthing in my head that made me say, it

is not only ADHD, we are missing somthing, the doctor we went to recomended a

charter school, or magnet school, how do you like the charter school does it

seem to help? What therapies do you attend, I am so new to all of this, after we

left the doctor I just felt like now what? I just joined this group, and am

looking forward to talking to parents that understand. Thanks!

>

> Hi my name is Carlene, I have a son who is 10 diagnosed with " Aspergers " and

" ADHD " .

> He is currently taking meds. He is seeing a counselor weekly. He goes to a

local Charter

> School. We currently have a wonderful network for him. But we still struggle

with issues.

> So I am happy to be joining this group. Thank You.

>

[Guest guest]

So sorry I didn't reply sooner, it has been a long day. It is 11:00 and just now getting to my emails. Yes I am finally feel like someone is dealing with the same issues as I am. Thanks for responding. This is my first time doing this. So here goes. Exhaustion can be the first response to my week and day!. Constantly on the move. Keeping things in order, and chores kept up. But has gotten better in the last few months. is on a very strict schedule, bedtime, wakeup, school, homework, chores, playtime!!!, ect. It works! But when I fianally sit down to eat or do other personal things guess what? Mommmmmmy I am........!

Hungry ect. Luckily meds do help with his ADHD and he goes to bed at 8:30, yeah! Iam at full force cleaning ect. He goes to a treatment center for meds monthly, and sees a counselor weekly. We are soon going to a gasterenologist for digest test ie. -see if needs to be gluten free or dairy free diet. But its so wonderful to get a letter saying he is no longer going t o recieve SSI /medicaid as of may. Bummers. But we have good insurance but out of pocket expenses are going eat us up. Well: APPEAL at least for medicade. Well I hope I did not overwelm you. looking forward to chatting with you. new friends.

From: evans.amber77 <evans.amber77@...> Sent: Sat, March 27, 2010 3:37:45 PMSubject: ( ) Re: Introduction to group

First I think you could be my new best friend, second for the first time this weekend I dont feel alone, My Son age 10 was diagnosed this friday with Aspergers, he has been on ADHD meds for a long time. First I have to say his meds work wonders, but there was always somthing in my head that made me say, it is not only ADHD, we are missing somthing, the doctor we went to recomended a charter school, or magnet school, how do you like the charter school does it seem to help? What therapies do you attend, I am so new to all of this, after we left the doctor I just felt like now what? I just joined this group, and am looking forward to talking to parents that understand. Thanks!>> Hi my name is Carlene, I

have a son who is 10 diagnosed with "Aspergers" and "ADHD".> He is currently taking meds. He is seeing a counselor weekly. He goes to a local Charter > School. We currently have a wonderful network for him. But we still struggle with issues.> So I am happy to be joining this group. Thank You.>

[Guest guest]

This is such a great group! I wish that I had more time to read all of the posts- its when I come across someone who is just starting out in the journey that I stop and look at what my journey has held. I am sure you will find some of the best advice you can get on here. We all have our ups and downs.. personally I feel that I am blessed beyond blessed to have an Aspie.. he is the most incredible child I have ever met. He is confusing, frustrating, mysterious, hilarious...the words can not explain.

I need to get on here more.. just knowing that others are going through the same things gives me hope that there is a way!

( ) Re: Introduction to group

First I think you could be my new best friend, second for the first time this weekend I dont feel alone, My Son age 10 was diagnosed this friday with Aspergers, he has been on ADHD meds for a long time. First I have to say his meds work wonders, but there was always somthing in my head that made me say, it is not only ADHD, we are missing somthing, the doctor we went to recomended a charter school, or magnet school, how do you like the charter school does it seem to help? What therapies do you attend, I am so new to all of this, after we left the doctor I just felt like now what? I just joined this group, and am looking forward to talking to parents that understand. Thanks!>> Hi my name is Carlene, I have a son who is 10 diagnosed with "Aspergers" and "ADHD".> He is currently taking meds. He is seeing a counselor weekly. He goes to a local Charter > School. We currently have a wonderful network for him. But we still struggle with issues.> So I am happy to be joining this group. Thank You.>

[Guest guest]

Hi ,

It was good to hear from you. The answer to your question, I am ok with his diagnoses. I do accept it. I just believe I have time to find out as much as possible about it. To keep trying ways to help him be the best that he can be, to live a long and healthy meaningful life.

I try to focus on all that is able to do and be encouraging, and positive, and what ever he is interested in I let him know about it as much as possible. He has done so many things. He will like something for a few months then change quickly. It gets so enthrolled in it, obsessive! He will not do computer or games, but reading and drawing is so great! I am so proud of him.

Well now that I have talked your ear off, lol. Hope to hear from you again soon. I do have other things in my life and hope to get to know you better. I am so new at all this, forgive me if I keep rambling on.

Have a great day.

From: DeGraff <reneendegraff@...> Sent: Sat, March 27, 2010 9:56:25 AMSubject: Re: ( ) Introduction to group

Hi Carlene,

Are you happy with your son's diagnosis?

My daughter got diagnosed with ADHD. I did not see it in her. I even questioned 'Can a child with ADHD sit in a classroom with 25 other children and work on a math test for 3 hours and still get a perfect score?' The reply I kept getting was 'NO'. So I kept pushing. I finally had another screening done and they said that all of my daughters sensory and motor disregularities were creating ADHD tendacies. That I do agree with.

So now we are doing some intense OT with my daughter. The down side with my daughter's degree of sensory and motor issues is that it will take at least three years to get her to be able to recognize and seek the proper stimulation so that she can focus.

From: Carlene Standley <treasuretrash48>Subject: ( ) Introduction to group Cc: Treasuretrash48Date: Saturday, March 27, 2010, 10:57 AM

Hi my name is Carlene, I have a son who is 10 diagnosed with "Aspergers" and "ADHD".

He is currently taking meds. He is seeing a counselor weekly. He goes to a local Charter

School. We currently have a wonderful network for him. But we still struggle with issues.

So I am happy to be joining this group. Thank You.

[Guest guest]

Hi,

 

Welcome to the group. If you have questions feel free to ask them and someone

will be able to respond with the best answer they have. We're pretty relaxed

here, so just jump in whenever you're ready.

 

Roni

From: shaebrown2 <shaebrown2@...>

hypothyroidism

Sent: Monday, May 16, 2011 3:01 AM

Subject: Introduction to Group

hi,

I newly joined this group and i am loving to be part of your group.I have got

useful learning articles by members of this group and looking further for

something more new to know and share.

professionally i am a prosthodontist and in regular practice,definitely i could

get something new and helpful things to learn from this group.

thanks,

Dr. Tal Morr

http://www.tmprosthodontics.com/

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