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My 7-y-o dd does this. Sometimes the word is similar to the one she's

replacing. For instance, right now I'm being called 'Mamoo' and daddy is

'Dadoo.' Sometimes she renames something. The cat's real name is Elvis, but

she renamed him " Cutie, " or, more recently, " Cube. " Sometimes it's just an

out-of-the-blue made-up word and I have no idea what she's trying to say until I

convince her to use English instead of Kylie-isms.

I recently read Elder Robison's book " Look Me in the Eye " and he said he

has always renamed people and objects. Part of our daughter's evaluation

specifically mentioned that she does this. I suspect it's more common than we

realize in Asperger's/HFA kids.

~Cheryl S.

>

> My daughter sometimes makes up her own words. nne will say weird combo's

of sounds that mean nothing and say it means something else for that moment not

forever but for that reading or play time she will want the number 45 replaced

with " a-kay-e " .  She will say the nneese word for 45 is " a-kay-e " . Does any

one else deal with this? It might just be her age too she is almost 4.

> cathy

>

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this is interesting--my son called his great grandmother, Big Granny (as she is a very tall woman). I never thought about it before. He only did the descriptive language for a few months--but the Big Granny has remained. LOL

Purrs & Kisses,

Kristal of Digi Kitty

The Kitty who loves Digi!

Designer for the VDBC "More" Team - you can see my designs HERE!!!

From: <ladle24@...>Subject: ( ) Re: Hyperlexics don't all LIKE to read Date: Friday, June 4, 2010, 12:49 PM I also checked out "When Babies Read" from the library. I agree with you, and skippe dthoe whole part about teaching reading. However, there were two or three good and helpful chapters at the end, with activities for improving comprehension and theory of mind areas.The book was probably targeted wrongly, because by the time you've already figured out that your kid can read early, the book

loses a lot of relevance.However, I wonder if research could be done into trying to teach young autistic children to read, and if that would improve long term outcome. Even though my hyperlexic does not like to read, reading was the magic road to communication and stability for us. I have a friend with a son in a dedicated autism classroom. He is now 4, but they are teaching them to read. I don't know if it is a "step above" your typical preschool play-classroom, but I think it might be. It will be interesting to see how this affects overall outcome.>> I did want to add to this thread that I mentioned a book I was reading> the other day, "When babies read" and ugh. I did not like it overall> for learning anything new about hyperlexia. the first chapter seems to> describe the author's experience which was nice to read. And she did> discuss how

they used the ability to read to teach him the skills he> was missing which we did as well and I agree with. It almost seems to> me a "duh" thing, though. We did it automatically without knowing and> I would like to think most people would get that. But then she goes> into how to teach babies to read overall - something she advocates,> especially for kids with disabilities but for all babies. And I really> felt the topic of hyperlexia was gone by then. Then her own experience> seems almost too good to be true - insurance company paid for home ABA> program and school implemented intensive early intervention program. I> was hoping she would tell us which insurance company and which school> is so great! But she didn't. She has the standard "take cookies to> the IEP meeting" advice. You can tell she's never been in a school> system who refused to do

the right thing and were willing to pay> laywers big money to make their point. lol. Which is good for them,> really. The less people have to struggle, the better. But I don't> know if people who haven't had to fight for anything have really> experienced the situation to where they should give advice to people> who have or are going through that. Not that they can't but that it> always seems to be those little pieces of advice that you are so far> past by this point. if the obvious worked, we wouldn't be here, is my> motto to that end. <g>>> Anyway, too bad. I had hoped to gain some insight into the disorder.>> Roxanna> Whenever I feel blue, I start breathing again.>

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I know doesn't making up her own words seem like great imagination!!! I don't know what to do with that. She seems to show some signs of an aspie, autism, lots of rett, some atypical rett and many many other syndromes but they all do not have imagination. It might be something she will defy in her own dx when we get an accurate one.CAthy

From: <ladle24@...>

Subject: ( ) Re: Hyperlexics don't all LIKE to read

Date: Friday, June 4, 2010, 12:49 PM

I also checked out "When Babies Read" from the library. I agree with

you, and skippe dthoe whole part about teaching reading. However,

there were two or three good and helpful chapters at the end, with

activities for improving comprehension and theory of mind areas.

The book was probably targeted wrongly, because by the time you've

already figured out that your kid can read early, the book loses a lot

of relevance.

However, I wonder if research could be done into trying to teach young

autistic children to read, and if that would improve long term outcome.

Even though my hyperlexic does not like to read, reading was the magic

road to communication and stability for us. I have a friend with a son

in a dedicated autism classroom. He is now 4, but they are teaching

them to read. I don't know if it is a "step above" your typical

preschool play-classroom, but I think it might be. It will be

interesting to see how this affects overall outcome.

>

> I did want to add to this thread that I mentioned a book I was

reading

> the other day, "When babies read" and ugh. I did not like it overall

> for learning anything new about hyperlexia. the first chapter seems

to

> describe the author's experience which was nice to read. And she did

> discuss how they used the ability to read to teach him the skills he

> was missing which we did as well and I agree with. It almost seems

to

> me a "duh" thing, though. We did it automatically without knowing

and

> I would like to think most people would get that. But then she goes

> into how to teach babies to read overall - something she advocates,

> especially for kids with disabilities but for all babies. And I

really

> felt the topic of hyperlexia was gone by then. Then her own

experience

> seems almost too good to be true - insurance company paid for home

ABA

> program and school implemented intensive early intervention program.

I

> was hoping she would tell us which insurance company and which school

> is so great! But she didn't. She has the standard "take cookies to

> the IEP meeting" advice. You can tell she's never been in a school

> system who refused to do the right thing and were willing to pay

> laywers big money to make their point. lol. Which is good for them,

> really. The less people have to struggle, the better. But I don't

> know if people who haven't had to fight for anything have really

> experienced the situation to where they should give advice to people

> who have or are going through that. Not that they can't but that it

> always seems to be those little pieces of advice that you are so far

> past by this point. if the obvious worked, we wouldn't be here, is

my

> motto to that end. <g>

>

> Anyway, too bad. I had hoped to gain some insight into the disorder.

>

> Roxanna

> Whenever I feel blue, I start breathing again.

>

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