PA symptoms?

[Guest guest]

Barry wrote:

>realise they are just as frustrated when we

don't respond to medications as we are supposed to (it's obviously our

fault)<

While I accept that Rheumys do get frustrated, mine certainly: after 15,999

patients I walk in, what do I expect, I cannot accept that the medication

non-response is MY fault! For me this is the medical 'Get Out Clause' after

the " This drug is not a cure but will stop it in its tracks! " I have been on

the receiving end of both those medical comments and wonder if the Rheum's

are trained in " Assertiveness Training " , the " Repeating Record! "

From what I understand, they start you on the minimal dose. The when you

return complaining that the pain is back, they increase the dose. That may

work for a few months, as soon as you return they up the dose again. Now

there comes a POINT in time, where if they UP the dose again, you are

talking lethal dose, so the Rheumy says, " Well I do not understand this, I

have had great success with other patients on this treatment, therefore it

must be YOU! " Me, well I spent my time in the waiting cafe with my fellow

arthritics, where we discussed the treatments. Odd because ten of my fellow

arthritics had been through MY treatment system, whereupon it did not work

and each had been told it was working GREAT for other patients, therefore

the problem was with them! Unless you spend time talking about treatments

with fellow arthritics, guess you would go around believing that you are an

ENIGMA, because the treatment work for the 15,999 but failed for the one!

I soon realised that the long term patients I met every month at my Clinic,

were not improving. One man was BRIGHT ORANGE, even the whites of his eyes.

He remained like that for several months, and I have not seen him since!

As for exhaustion, I asked the Rheumy in England, whereupon he replied,

" Even normal healthy people would like more energy, if only we could supply

it! "

Love and God Bless

Gillian