Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Welcome to the group and thanks for posting a message. Chelsea sounds a lot like my . He started chemo at 7 months old for AML and did very well. www.caringbridge.org/visit/lindadolezan Look forward to getting to know you! D In a message dated 2/20/2008 2:39:05 P.M. Eastern Standard Time, enseno153@... writes: My name is Carey, and my daughter Chelsea was diagnosed in September with AML. We're on a study to decrease the toxicity of the chemo and so far she's done excellent. We've got two more rounds. We're still in the hospital waiting for her counts to rise from the fourth round. She just turned 2 in January. She really has hardly gotten sick at all, and the treatments don't slow her down a bit. She's constantly running around the halls of the hospital waving at people (today she's been dancing for all the nurses a lot). I'm excited to find this group and hear about all of your stories. If you have a blog, or caring bridge site, will you please post it here? I enjoy reading about other kids w/ Ds and leukemia. Our kids are so inspirational, I feel so blessed to be Chelsea's mother!www.cbranam.blogspot.com Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Hi Carey, My name is Lynnette and I have a 2 year old daughter named who was born with DS and TMD. Her TMD cleared up on it's own w/o treatments at 6 months of age. Around her first birthday(5/21/07) she got a cold and I noticed petechiae on her face. Her platelets had dropped to 20. She had her first BM biopsy then and another one in June. The results for both were inconclusive and her platelets improved to 80 so we stared the wait and watch game by having blood counts every 1-2 weeks. In Sept. her platelets dropped again and we repeated the BM biopsy.This one showed myelodysplastic syndrome, but not quite AML. We continued our wait and watch. In Nov had a cold and her bruising and petechiae were worse than normal. We went into get her counts and the platelets were 21. We repeated the BM biopsy on Fri and it has come back with the dx AML. She got her Hickman central line on 12/5/07 and start her first of six rounds of chemo on 12/6. We are also on a study to decrease the side effects and toxicity of chemo. has done very well and will start her 6th and final round of chemo on 5/23/08. She has had only a few pukey days and didn't loose her hair until after the 5th round. I read your blog spot and it mirrored my own caring bridge site. We also have spent 100 days in the hospital since 's dx. Please visit www.caringbridge.org/visit/rachaelseeley. Reading your post brought a smile to my face. It was so nice to hear a similar story. I would love to keep in touch! Quote Link to comment Share on other sites More sharing options...
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