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[Guest guest]

In a message dated 1/19/08 5:05:57 AM Eastern Standard Time,

eesc@... writes:

> would never choose chemotherapy and radiation.

>

I would never choose it either but can any of us say that it doesn't work? I

think for some, it does work but the quality of life is horrible and why

choose it when other things work as well? There is also IPT which is easier to

handle.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hi, Edwin!

What a great message and what wonderful links/sites! Thanks SO much!

This is beautifully and simply put,(from your site):

" All diseases are symptoms given names by the current medical

monopoly. "

I spell the word " disease " this way: " dis-ease, " as in " lack of

ease. " That dovetails perfectly with what you have said. Lack of

health can, for most intents and purposes, boil down to lesser or

greater degrees of dis-ease. Compare a man-made dam to a human body:

Small cracks in the dam can be likened to the low-grade dis-eases of

chronic bad breath, " heartburn/indigestion, " chronic headaches,

inactivity, moodiness and so forth. The small cracks, if paid

attention to, and traced back to their root cause can be relatively

easily repaired. The same with chronic low-grade dis-eases.

Huge breaches in the dam, with resultant flooding and death, can be

likened to cancer, stroke, heart attack, full-blown diabetes,

Alzheimer's, etc.

Many mainstream physicians and Big Pharma can be likened to

bureaucrats and irresponsible governments who see the small cracks in

the dam but who, because of their own self-interest and greed, choose

not to repair those cracks, and who thereby bring about terrible

catastrophes.

I would add one caveat about NEVER resorting to ANY chemotherapy or

radiation: Though I agree that the path mainstream medicine has gone

down with regard to the treatment of cancer has been a generally

fruitless and destructive one, there have been times in my own saga

as a cancer client where I have resorted to the least possible, least

harmful mainstream treatment, and where that has been of very

significant benefit to me. Those have been times when the alternative

stuff I was doing just was not doing anything to stop, much less slow

down, tumor growth.

Having said that, however, I do very much believe that if I'd known

in 1989 what I know now, I might well never have even been diagnosed

with cancer. I undoubtedly had " sprung many small leaks in my dam "

prior to being diagnosed with cancer. Secondly, I seriously believe

that had I not caused myself to get greatly stressed and to remain so

for many months, in the early 2000's, I might have remained in

remission to this day.

I believe, though, that when one is diagnosed with a particular dis-

ease---the one I was diagnosed with is low-grade lymphoma---that it

is important to keep oneself abreast of ALL possible treatments, even

including mainstream ones. Certainly working from the inside out, and

on the most basic level possible---that of diet, exercise, proper

sleep, destressing and so forth---is indispensible. But I personally

have found there have been the times I have mentioned when I have

been grateful for the least possible little touch of mainstream

medicine.

Bottom line for me though, is that I have no doubt at all that if

everyone followed the things you have laid out, there'd be a

tremendously positive spike in healings from cancer, and also far

less incidence of cancer.

Thanks for your great post!

Elliot

[Guest guest]

I join with others in not particularly recommending chemotherapy and

radiation. In any event:

Check out the files of the group. In particular, take a look at

intavenous vitamin C, which reduces the side effects, while increases

the effectiveness of chemotherapy. (Has many other applications, too --

my mother used it in conjunction with a surgery, and her physician was

amazed at the rapidity of her recovery from the surgery.)

Also: the book, " How to Fight Cancer and Win " , by L. Fischer,

readily available online.

Also: the ayurvedic supplement Amrit Kalash, available from mapi.com.

VERY good support for chemotherapy and radiation.

Best,

RB

Posted by: " elizabethmalabre " eamalabr@...  

elizabethmalabre

Fri Jan 18, 2008 6:49 pm (PST)

Hi, My mother was diagnosed yesterday with adenocarcinoma of the lung

that has metasticized and gone to her right hip bone. Prior to last week

I would have called her the picture of health. She is 76 and very

active. I don't know what to expect. She is choosing radiation and

chemotherapy. She meets with her oncologist monday. I would like to

support her in the best way possible and bring as much useful

information as I can to the table. I am grateful for anything anyone can

provide.

Thanks

Ann Malabre

eamalabr@...

[Guest guest]

, so sorry you've had to join us but welcome! I also have most of

my pain in my feet/ankles along with my wrists/fingers. But from time

to time something else will flare - knee, hip, lower back, neck.

Lately my neck has been really bothering me. It cracks terribly every

time I move it in any direction, and it hurts. Sometimes it just feels

so weak like it can't hold my head up - I have to lean my head back

against a chair or lay it down on the table for a few minutes, or go

lie down. There's no way to tell how long it will last. For me, the

neck pain only lasts a day or two, then goes away until " next time "

which comes on with no warning. Everyone has a different pattern,

though. The MTX should begin to help all your joint issues. If it

doesn't, the rheumy will try something else or increase the dose.

Actually 3 weeks is not so long to wait for a rheumy appointment - I

think the average seems to be about 3 months for a first appointment.

I'm sorry you have to travel so far! Driving (or riding in a car)

really causes me to flare. Riding is easier than driving, so I hope

you can find a friend to drive you there and back. Let us know what

the rheumy says!

best regards,

sherry z

>

Has anyone had

> experience with the neck pain? I didn't think that anything could

> hurt as bad as my poor feet until this pain.

> Thanks in advance for any advice you can give.

>

>

[Guest guest]

Hi Rosemary,

I'm scared and haven't wanted to accept my rheumatologists diagnosis

but now that it is all flaring again and this time spreading to more

toes and fingers I have to face the fact that I (might) have PA and I

find it really frightening.

I teach English in the mornings and Ballroom dancing in the

evenings. My biggest fear is that I will be unable to do both if

this progresses. Can you tell me about your symptoms and how you

cope. Any info will help me deal with this.

Many thanks for just being there to ask.

Patrice.

[Guest guest]

" I am now experiencing severe shoulder and neck pain. "

Hi ,

Welcome to the group. I'm right there with you as far

as the daily shoulder and neck pain. For me it usually

starts by noon, and by the time I get out of work and

make it home (2:00 p.m.), I'm in terrible pain. I take

a tramadol and get the heating pad on my shoulders and

neck. If I rest/sleep for and hour or so, it

dissipates enough that I can work out and get

dinner/do light housework. However, by 7:30 p.m. its

time for a Skelaxin, bed, and the ice bag. Ice seems

to help more in the evening, as does some time spent

in the hot tub. These things help, but the pain never

goes completely away. I see my rheumy tomorrow, this

will be one of the topics for discussion.

Hope this helps you!

warm blessings,

jane

[Guest guest]

Re: shoulder and neck pain. This has been a problem for me for many years -

long before I developed PA so will pass along my experience to you so you might

explore whether or not it actually is PA or something else that's treatable

through other means.

Initially, I went to chiropractors who treated me off and on for what they

called " impingement syndrome " and a rib that wouldn't stay in place. Then ,

after what they were doing no longer helped, I finally went to an ortho who did

an MRI and said I had avascular necrosis in my shoulder and sent me to physical

therapy. It got better and was under control for nearly five years - just by

continually doing the exercises I'd been given. However, when I had my other

shoulder operated on a year + ago (torn rotator cuff and biceps tendon from a

fall), the shoulder that had been a problem for so long got a lot of over-use

and started acting up again. I was in physical therapy for rehab on the

shoulder that had surgery and - long story short - the shoulder that has been a

problem for years is not really a " shoulder " problem: it's a rib problem,

caused mainly by poor posture. Of course, the ribs, spine and shoulder all work

together in very complex ways and

my neck also gets stiff, too, at times. I can actually feel the stiffness/pain

going from my upper back all the way up the right side of my neck. Causes lots

of headaches, too. So, I am in physical therapy, again, and finally have

someone who really knows what he's doing and it's helping a great deal.

The shoulder, I've learned, is one of the most complex joints in the body and is

connected to so many other things that it takes somebody really good to be able

to diagnose what's really going on; and - unfortunately - that's not most

doctors.

Joanna Hoelscher

630-833-7361

[Guest guest]

Hi Lori,

I don't have any information for you. But I wanted to say that I'm so

glad you are looking at other options for your cat. My best to you

both.

ar

On Thu, 17 Apr 2008 00:36:38 -0000, " hanneloretepper "

<hanneloretepper@...> said:

> Hi ,

> i am new to this group. My 17 yr old kitty was diagnosed 4 mths ago

> with lymphoma, Intestional. She was on chemo for this time and it

> cleared up her intestional problem but now it is in her chest. I did

> chemo pills and one IV Chemo tx. I hated it and stopped it and am now

> working with a integrative vet. I am so relieved to be doing something

> for her that is so much more gentle.

> I have a question about wormwood and bloodroot. The vet wants to start

> her on this in a week as we are building her immune system back up and

> added a chinese herb.

> Has any of your cats been treated with these 2 herbs? What experience

> can you share.

> Lori

>

>

> ------------------------------------

>

>

[Guest guest]

Hi Lori,

Some people in this group are using Low Dose Naltrexone to treat canine

cancer:

ldnforcancer

Sincerely,

Dudley Delany

dudley_delany

[Guest guest]

If it were my cat, I would check out the following group, their

tonic has shown remarkable results and they can give you very good

feedback.

blacksalveandpetswithcancer/

>

> Hi ,

> i am new to this group. My 17 yr old kitty was diagnosed 4 mths

ago

> with lymphoma, Intestional. She was on chemo for this time and it

> cleared up her intestional problem but now it is in her chest. I

did

> chemo pills and one IV Chemo tx. I hated it and stopped it and am

now

> working with a integrative vet. I am so relieved to be doing

something

> for her that is so much more gentle.

> I have a question about wormwood and bloodroot. The vet wants to

start

> her on this in a week as we are building her immune system back up

and

> added a chinese herb.

> Has any of your cats been treated with these 2 herbs? What

experience

> can you share.

> Lori

>

[Guest guest]

Hi Sofia,

You might consider Low Dose Naltrexone for use as a cancer preventative. It is

inexpensive, has minimal side effects, and is readily available. To learn more,

visit

http://tinyurl.com/2p57xv

Sincerely,

Dudley Delany

dudley_delany

[ ] New to Group

Hello,

Just wanted to introduce myself. I'm new to the group and interested

in learning more about what everyone else is doing. I no longer have

cancer - treated traditionally, but want to make sure it doesn't come

back.

So, I'll just sit back and read.

Sofia

------------------------------------

[Guest guest]

" animalperceptions " wrote:

> ...I no longer have cancer - treated traditionally, but want to make

sure it doesn't come back. Sofia

>

Hi Sofia,

I recently posted a message that can help you to avoid a return of

cancer. It can be done naturally without drugs or supplements.

/message/31748

Best wishes,

[Guest guest]

Hi and welcome,

We just had a new member join last week with your problems read back the posts

last week.

<Liketolaugh31@...> wrote:

Hello my name is I have Kleinfelters xxy-47 I found out at age 13

I am 39yrs old from Staten Island NY

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

- welcome! I can see that you will be a postive and upbeat

voice in our forum. I hope you will find our group helpful to you as

well.

The heel pain is called plantar fasciitis and is very common to

people with PA, although lots of non-PA people get it too. There are

some simple stretching exercises you can do to help alleviate that

particular pain. Just google " plantar fasciitis stretches " and

you'll find some sites that describe and/or illustrate the

exercises. They really helped me. Two years ago my foot and heel

pain was so bad I was actually bedridden. Those stretches helped me

get over the plantar fasciitis and I've been doing them faithfully

ever since and have not had a repeat problem with that!

best regard,

sherry z

[Guest guest]

Hi ,

Welcome, You certainly are busy and seem to be a fighter.

You mention your symptoms and and how you are affected, but are you

doing anything for treatment?? PA CAN be treated very successfully

by Methotrexate, Enbrel, Humira, just to name a few options.

If you are NOT treating your PA, you could be enabling permanent

joint damage by not addressing this. It's great that you aren't just

lying down and giving in, but you also need to take the offense and

deal with this disease.

Stay Well,

[Guest guest]

, have you been checked for lupus? The pain sounds a lot like pain from

lupus.

Theresa

[Guest guest]

Theresa,

Thanks, but, yes I have been checked for just about everything. Thank god I

have great insurance. I have had everything else eliminated for my diagnosis.

The funny thing was that even the Rheumies were not sure at first because I am

so good at controlling the psoriasis part of this illness. Therefore I became a

human guinea pig to satisfy the fact that the diagnosis was really accurate. I

have actually had to let my skin regimen go at times to show my doctors that I'm

not crazy. Thanks god it only takes 24hrs.

My GP was even double checking all the test. I added a new meaning to human pin

cushion.......lol.

Thanks again

Penkoff <girlfriendgeneration@...>

[Guest guest]

I sent you some answers privately. Email me if you have any questions.

Dee

http://www.ldn4cancer.com

>

>

> Hi All,

>

> I am in Louisville KY. I just finished with a bilateral mastectomy

and am cancer free at the

> moment and am choosing not to follow Dr's orders with Chemo. I am

very interested in LDN

> to keep m y cancer at bay and am sure my ONCO will not be interested

in it, but, will ask

> anyway.

>

> So, I am looking for a DR to prescribe or make my own.

>

> I have read posts but must be stupid as I can't figure out how to do

it and where the best

> place to get the compound or pills. How can you take a 50mg and

turn it in to an assured

> 4.5 serving as I understand more or loss is not optimum.

>

> Thanks and BLessings,

>

> PAMI

> www.pami.us

>

[Guest guest]

>>I just finished with a bilateral mastectomy and am cancer free at the moment and am choosing not to follow Dr's orders with Chemo.<< Pami, I'm not trying to be a party pooper here, but why would you choose not to have the chemo? Breast CA patients are surviving much longer and being cured at a much higher rate than at any time in history. This is not due to wishing it so, it is due to the chemo and radiation protocols, plus the use of sentinel node techniques in surgery. I would hope you would at least talk to your doctor and reconsider until there is more data to review. I don't know if there has been that much experiene with LDN in many of these cancers - from what I read it really is not a cure, but certainly seems to be disease modifying in mostly neurological and inflammatory syndromes, like MS and Crohns. It may be too early in the LDN research to trust your life to this one

modality of treatment. Maybe we could get a thread going JUST for cancer patients to post their experiences. Does anyone know if there are any current studies going on with LDN and any type of cancer? Best to you, Bob C deealejo <deealejo@...> wrote: I sent you some answers privately. Email me if you have any questions.Deehttp://www.ldn4cancer.com>> > Hi All,> > I am in Louisville KY. I just finished with a bilateral mastectomyand am cancer free at the > moment and am choosing not to follow Dr's orders with Chemo. I amvery interested in LDN > to keep m y cancer at bay and am sure my ONCO will not be interestedin it, but, will ask > anyway.> > So, I am looking for a DR to prescribe or make my own.> > I have read posts but must be stupid as I can't figure out how to doit and where the best > place to get the compound or pills. How can you take a 50mg andturn it in to an assured > 4.5 serving as I understand more or loss is not optimum.> > Thanks and BLessings,> > PAMI>

www.pami.us>

[Guest guest]

>

> >>I just finished with a bilateral mastectomy and am cancer free at the

> moment and am choosing not to follow Dr's orders with Chemo.<<

>

> Pami,

> I'm not trying to be a party pooper here, but why would you choose

not to have the chemo?

Hi Pami,

I think this is a very personal decision you have to make, and you

need to weight up all the pro's and cons before you decide. Make

yourself as informed as possible before you go ahead. Personally, I

had Breast Cancer 2½ yrs ago (stage 2, 2cm lump, estrogen and

progesterone positive), had lumpectomy, 21 lymph nodes removed of

which 1 was positive (they believe in overkill here!), and also chose

not to have chemo or radiation. To choose to go against the tide

requires more bravery than to go with it, believe me. The type of

breast cancer you have also has a lot to do with whether chemo is

required. Had I had an aggressive type, I may have chosen chemo with

alternatives to help build the immune system. Have you heard of

Insulin Potentiation Therapy, and if so can you obtain that treatment

in your part of the world? That is supposed to be a good way to have

chemo with 1/10th the amount of drug. I have been doing many

complementary therapies since my surgery, and came across LDN last

August. So far all is very good; I keep up with tests and scans, and

also visit a good clinic in Switzerland once a year. If you want to

know more I would be happy to contact you personally with info re

Switzerland or any thing else that may help you. I sincerely wish you

the very best in your journey with cancer, and certainly stick with

LDN whatever you do.

Helen

Australia

[Guest guest]

Dear Bob,

Thank you for your heart felt concern. I have searched my soul with regards to

Chemo.

Chemo is not a benign process it can end in death or permanent maiming. In the

last 2

months I have read till my eyes are buggie and talked to more people about

cancer then I

ever thought possible. The Dr's know that even with Chemo it is a crap shoot and

they will

admit that. They will give me an extra 10% chance of not having a recurrence of

cancer.

They will never know whether it worked or hurt me. The studies and stats do not

show

the whole truth either. So I am not ready to take these risks at this time. I

am a very

healthy vegan 49yr old do yoga everyday and plan to stay that way to the best of

my

ability. They are amazed at my recovery. My genes were bad and that is why I

got the

cancer. But believe me I take every decision one day at a time. I do the best I

can do with

the knowledge I have at the time.

Blessings,

PAMI

> >

> >

> > Hi All,

> >

> > I am in Louisville KY. I just finished with a bilateral mastectomy

> and am cancer free at the

> > moment and am choosing not to follow Dr's orders with Chemo. I am

> very interested in LDN

> > to keep m y cancer at bay and am sure my ONCO will not be interested

> in it, but, will ask

> > anyway.

> >

> > So, I am looking for a DR to prescribe or make my own.

> >

> > I have read posts but must be stupid as I can't figure out how to do

> it and where the best

> > place to get the compound or pills. How can you take a 50mg and

> turn it in to an assured

> > 4.5 serving as I understand more or loss is not optimum.

> >

> > Thanks and BLessings,

> >

> > PAMI

> > www.pami.us

> >

>

[Guest guest]

Dear Pami, You are smart in worrying about the effects of chemo. I think for 10% I wouldn't risk it either. It seems you have done your homework - unfortunately, so many base their decisions on emotion or some anecdote from someone they know. It definitely is a personal decision. Being a vegan probably gives you a better fighting chance - most vegans I know really pay good attention to good nutrition, and it is turning out this is a key to fighting cancer. The genes are definitely the prime issue in a lot of diseases - we can't fight nature as much as we think! My best to you for a positive recovery and good health. Bob Cpamipamipamipamipami <pami@...> wrote: Dear Bob,Thank you for your heart felt concern. I have searched my soul with regards to Chemo. Chemo is not a benign process it can end in death or permanent maiming. In the last 2 months I have read till my eyes are buggie and talked to more people about cancer then I ever thought possible. The Dr's know that even with Chemo it is a crap shoot and they will admit that. They will give me an extra 10% chance of not having a recurrence of cancer. They will never know whether it worked or hurt me. The studies and stats do not show the whole truth either. So I am not ready to take these risks at this time. I am a very healthy vegan 49yr old do yoga everyday and plan to stay that way to the best of my ability. They are amazed

at my recovery. My genes were bad and that is why I got the cancer. But believe me I take every decision one day at a time. I do the best I can do with the knowledge I have at the time. Blessings,PAMI> >> > > > Hi All,> > > > I am in Louisville KY. I just finished with a bilateral mastectomy> and am cancer free at the > > moment and am choosing not to follow Dr's orders with Chemo. I am> very interested in LDN > > to keep m y cancer at bay and am sure my ONCO will not be interested> in it, but, will ask > > anyway.> > > > So, I am looking for a DR to prescribe or make my own.> > > > I have read posts but must be stupid as I can't figure out how to do> it and where the best > > place to get the compound or pills. How can you take a 50mg and> turn it in to an assured > > 4.5 serving as I understand more or loss is not optimum.> >

> > Thanks and BLessings,> > > > PAMI> > www.pami.us> >>

[Guest guest]

No harm taking LDN if you have either of these items.

[low dose naltrexone] new to group

Hi,I am new to this group and have been in the background here for a few weeks. I appreciate so much all of your questions and responses. I have not been formally diagnosed with MS but have very frightening symptoms that come and go and have that word hanging over my head. My wonderful doctor suggested I try LDN, which I had never heard of. I am trying to learn more about it. I haven't ruled out Lyme disease, nor the effects of a very bad mold situation that I think I am finally out of, externally at least. I would appreciate receiving the welcome email. Is there any harm in taking ldn if this is Lyme or mold instead of MS?Thanks so much to all of you for your courage in pursuing healing!Kathy

[Guest guest]

Wow Kathy,

To have a doctor recommend LDN for you is wonderful. I spend most of

my time educating and getting the information to the doctors so they

will prescribe.

All I can say you do indeed have a wonderful doctor and hope he is

on the LDN prescribing list as we need more of these " wonderful doctors " .

I need to find another doctor now ( mine is leaving back to the UK)

So I have started my search... My first attempt was a GP who thought

LDN is only for alcoholics and wouldn't do any good. He didnt' read

any of the information and just dismissed it. So the long haul and

battle continues. Wish me luck.

Dee

httP://www.ldn4cancer.com

low dose naltrexone

> Sent: Saturday, May 24, 2008 8:08 PM

> Subject: [low dose naltrexone] new to group

>

>

> Hi,

> I am new to this group and have been in the background here for a few

> weeks. I appreciate so much all of your questions and responses. I

> have not been formally diagnosed with MS but have very frightening

> symptoms that come and go and have that word hanging over my head. My

> wonderful doctor suggested I try LDN, which I had never heard of.

I am

> trying to learn more about it. I haven't ruled out Lyme disease, nor

> the effects of a very bad mold situation that I think I am finally

out

> of, externally at least. I would appreciate receiving the welcome

> email. Is there any harm in taking ldn if this is Lyme or mold

instead

> of MS?

>

> Thanks so much to all of you for your courage in pursuing healing!

>

> Kathy

>

[Guest guest]

KATHY - what a WONDER!!!!!!! a doctor who didn't have to get his arm twisted to prescribe LDN!! maybe he won't mind having his name on the WANTED LIST!!! find out, and let the group know!!! thanks

marshiris@...

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.