Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Hi Dee, Yes, I realize I am very blessed to have a great doc on board, especially after reading about the trouble so many have in finding someone to prescribe LDN. I will ask her when I see her soon if she wishes to be on the referral list. She is a Lic. Ac. and a Physicians Assistant, and is an hour or two away from San Francisco, CA. She is one of the angels on the planet! I just remembered a neurologist I saw sometime back who might be open to LDN, as he recommended I take ashwaghanda, which is quite out of character for a neurologist! I don't see him any longer but I can email his name to anyone who might be interested. He's also 1-2 hours from SF. Blessings to you in your search. Kathy Wow Kathy, To have a doctor recommend LDN for you is wonderful. I spend most of my time educating and getting the information to the doctors so they will prescribe. All I can say you do indeed have a wonderful doctor and hope he is on the LDN prescribing list as we need more of these " wonderful doctors " . I need to find another doctor now ( mine is leaving back to the UK) So I have started my search... My first attempt was a GP who thought LDN is only for alcoholics and wouldn't do any good. He didnt' read any of the information and just dismissed it. So the long haul and battle continues. Wish me luck. Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Hi Kathy, I am in the Monterey area. If your doctor feels comfortable with our sharing his/her number on a list to give to those that need a doctor in the area, we would love to get their information. All my best Aletha [low dose naltrexone] Re: new to group Hi Dee,Yes, I realize I am very blessed to have a great docon board, especially after reading about the troubleso many have in finding someone to prescribe LDN. Iwill ask her when I see her soon if she wishes to beon the referral list. She is a Lic. Ac. and aPhysicians Assistant, and is an hour or two away fromSan Francisco, CA. She is one of the angels on theplanet! I just remembered a neurologist I saw sometimeback who might be open to LDN, as he recommended Itake ashwaghanda, which is quite out of character fora neurologist! I don't see him any longer but I canemail his name to anyone who might be interested. He's also 1-2 hours from SF.Blessings to you in your search.Kathy Wow Kathy,To have a doctor recommend LDN for you is wonderful. Ispend most ofmy time educating and getting the information to thedoctors so theywill prescribe.All I can say you do indeed have a wonderful doctorand hope he ison the LDN prescribing list as we need more of these"wonderful doctors".I need to find another doctor now ( mine is leavingback to the UK)So I have started my search... My first attempt was aGP who thoughtLDN is only for alcoholics and wouldn't do any good.He didnt' readany of the information and just dismissed it. So thelong haul andbattle continues. Wish me luck.Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 I too am very fortunate - actually - I wouldn't even know about LDN if my Dr. didn't tell me about it. However - my GP and Neuro both think I'm on Snake Oil so when I do see my alternative MD it is a well-needed change of attitude. > > Hi Dee, > Yes, I realize I am very blessed to have a great doc > on board, especially after reading about the trouble > so many have in finding someone to prescribe LDN. I > will ask her when I see her soon if she wishes to be > on the referral list. She is a Lic. Ac. and a > Physicians Assistant, and is an hour or two away from > San Francisco, CA. She is one of the angels on the > planet! I just remembered a neurologist I saw sometime > back who might be open to LDN, as he recommended I > take ashwaghanda, which is quite out of character for > a neurologist! I don't see him any longer but I can > email his name to anyone who might be interested. > He's also 1-2 hours from SF. > Blessings to you in your search. > Kathy > > > > > Wow Kathy, > > To have a doctor recommend LDN for you is wonderful. I > spend most of > my time educating and getting the information to the > doctors so they > will prescribe. > > All I can say you do indeed have a wonderful doctor > and hope he is > on the LDN prescribing list as we need more of these > " wonderful doctors " . > > I need to find another doctor now ( mine is leaving > back to the UK) > So I have started my search... My first attempt was a > GP who thought > LDN is only for alcoholics and wouldn't do any good. > He didnt' read > any of the information and just dismissed it. So the > long haul and > battle continues. Wish me luck. > > Dee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Laurie - welcome. Lots of us have very similar stories to yours. For some of us, things progressed slowly; for others (like me) things went downhill real fast. But for most people, once you find out that PA is the problem it is only a matter of being patient until your rheumy finds the right med or combo of meds that give you all or most of your life back. I was diagnosed June 2006 with PA after suddenly developing joint pain in April 2006. Within those 2 months, I became bedridden. It took a few months for the first drug she gave me to begun to work. Slowly I began to get better. Two years later, I'm not exactly my old self, but I can do much of what I did before, just slower and being careful to pace myself. Some people are doing so well they say they can't even tell they have PA anymore. So the prognosis is really pretty good overall. The key is getting on to some serious meds under the care of a rheumatologist. " S. Zorzi " <szorzi_1999@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi , Well it sounds like you did a great job with your hubby diagnosing early LD. My understanding is that many bulls-eyes, however, is an indication that the spirochetes that cause LD have disseminated in the body and therefore needs to be treated aggressively. My son was diagnosed four years ago and had six bulls-eyes and was only given three weeks of antibiotics. He became symptomatic again six months later, and we treated him with 12 weeks, then became symptomatic again last fall and got quite sick. After much research I believe that he was not treated aggressively enough the first time around, and therefore become a chronic Lyme patient. It has been a long road for him. The only reason I tell you this is to encourage you to be a strong advocate for your daughter at the outset. If you are going to treat locally, with a doctor that is not schooled in LD, do your own research so you can encourage him/her do aggressive treatment. I have two other kids who have been diagnosed with LD early, but had positive blood tests, flu-like symptoms, and the rash. Thanks to the experience of my oldest son, I made sure the younger two were both put on dual antibiotics; amoxicillin and azythromax (sp) for three months. LD is nothing to mess around with and I believe you truly have one shot to treat it properly and then the spirochetes can go into hiding and into different forms and travel, making it more difficult to treat. If I had to do it over again, I would not have followed the treatment guidelines from my family doctor. He did not know enough about LD, even though we live in a pandemic area. I will, quite honestly, never forgive myself for not educating myself more intensely at the outset and, as a result, my oldest son became quite sick with chronic LD (wheel chair, neurological impact, surgeries, missing months and months of school, etc.) Do your research. There are definitely two different " camps " when it comes to the diagnosis and treatment of Lyme. It is important/critical to know what your options are, as many physicians who are not schooled in LD will not tell you, or do not know themselves. I believe you have one shot to treat LD properly; treat her aggressively! Feel free to email personally if you would like some links to other websites. I will keep your family in my thoughts, [ ] New to group Hi, My name is and my 9 yr old daughter Betsy was just diagnosed with Lyme Disease. About two weeks ago she began running a moderate fever. It would be anywhere from 100°F 103.7°F. She also had some nausea and vomiting as well as a few bouts of diarhea. I did notice a few small red spots that looked like mosquito bites. Several days after the fever started she started complaining about pain in her knees so we took her to the doctors and he did a strep test and ordered blood work including a Lyme test. My husband is a music teacher and teaches Summethey werer Musi and I am a disabled nurse and don't drive anymore so we were planning on taking her for the blood work on Monday. On Saturday my husband took the kids out for a short time because Betsy had been cooped up in the house for over a week and her temp was just about normal and while they were out my husband noticed that her mosquito looking spot had gotten considerably larger and she had several other spots on her arms and legs. He had me check them when they got home and she had these large spots all over her body and a lot of them had that classic " bulls eye " appearance. We called her doctor immediately to see if we should take her to the ER to get her blood work done immediately or if we could wait until Monday. He asked us to take pictures of her spots and email them to him and he called us back and told us that she definetly had Lyme Disease and put her on antibiotics. The spots cleared up in a few days and her fever also came down to normal. She no longer complains of her knees bothering her though she does tire easily. We live in Northern New Jersey and we never saw the tick that bit her. My question is should we take her to a specialist or is our family doctor qualified to treat Lyme's disease. Thankfully I think we caught it fairly early on. I would really appreciate any help or advice that anyone can give. Thanks, Rutan No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.3/1565 - Release Date: 7/21/2008 6:36 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Oh yes, I forgot to say that you really need to get blood work, even though your doc is treating already, so it is documented and you know which bands are positive. This will help to determine the best antibiotics in her case. It is important that a doc does a clinical assessment, rather than gives a one-treatment fits all diagnosis. As you will learn, different symptoms mean different strains; different strains require different treatment. [ ] New to group Hi, My name is and my 9 yr old daughter Betsy was just diagnosed with Lyme Disease. About two weeks ago she began running a moderate fever. It would be anywhere from 100°F 103.7°F. She also had some nausea and vomiting as well as a few bouts of diarhea. I did notice a few small red spots that looked like mosquito bites. Several days after the fever started she started complaining about pain in her knees so we took her to the doctors and he did a strep test and ordered blood work including a Lyme test. My husband is a music teacher and teaches Summethey werer Musi and I am a disabled nurse and don't drive anymore so we were planning on taking her for the blood work on Monday. On Saturday my husband took the kids out for a short time because Betsy had been cooped up in the house for over a week and her temp was just about normal and while they were out my husband noticed that her mosquito looking spot had gotten considerably larger and she had several other spots on her arms and legs. He had me check them when they got home and she had these large spots all over her body and a lot of them had that classic " bulls eye " appearance. We called her doctor immediately to see if we should take her to the ER to get her blood work done immediately or if we could wait until Monday. He asked us to take pictures of her spots and email them to him and he called us back and told us that she definetly had Lyme Disease and put her on antibiotics. The spots cleared up in a few days and her fever also came down to normal. She no longer complains of her knees bothering her though she does tire easily. We live in Northern New Jersey and we never saw the tick that bit her. My question is should we take her to a specialist or is our family doctor qualified to treat Lyme's disease. Thankfully I think we caught it fairly early on. I would really appreciate any help or advice that anyone can give. Thanks, Rutan No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.3/1565 - Release Date: 7/21/2008 6:36 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 Hi I have lived in NJ for over 25 yrs, have chronic Lyme myself for over 18 yrs and my son was gestational ( he is almost 19) If it were MY child Id go to a LLMD...as each case is so different and dealing with kids make it more important to be with someone very experienced. If you email me I can give you a list of Drs...but Evan and I are leaving Sunday for 3 days--for Chiari evaluation for possible brain surgery--not clear if the Lyme and raised CSF pressure triggered this or made it worse but we now have this abnormality that MAY be the cause of much of our symptoms.So it may be a few days before I am up to emailing back meanwhile the antibiotic should prevent further damage...good luck and stay in touch Finette [the gene pool could use a little chlorine!] [ ] New to group Hi, My name is and my 9 yr old daughter Betsy was just diagnosed with Lyme Disease. About two weeks ago she began running a moderate fever. It would be anywhere from 100°F 103.7°F. She also had some nausea and vomiting as well as a few bouts of diarhea. I did notice a few small red spots that looked like mosquito bites. Several days after the fever started she started complaining about pain in her knees so we took her to the doctors and he did a strep test and ordered blood w ork including a Lyme test. My husband is a music teacher and teaches Summethey werer Musi and I am a disabled nurse and don't drive anymore so we were planning on taking her for the blood work on Monday. On Saturday my husband took the kids out for a short time because Betsy had been cooped up in the house for over a week and her temp was just about normal and while they were out my husband noticed that her mosquito looking spot had gotten considerably larger and she had several other spots on her arms and legs. He had me check them when they got home and she had these large spots all over her body and a lot of them had that classic " bulls eye " appearance. We called her doctor immediately to see if we should take her to the ER to get her blood work done immediately or if we could wait until Monday. He asked us to take pictures of her spots and email them to him and he called us back and told us that she definetly had Lyme Disease and put her on antibiotics. The spots cleared up in a few days and her fever also came down to normal. She no longer complains of her knees bothering her though she does tire easily. We live in Northern New Jersey and we never saw the tick that bit her. My question is should we take her to a specialist or is our family doctor qualified to treat Lyme's disease. Thankfully I think we caught it fairly early on. I would really appreciate any help or advice that anyone can give. Thanks, Rutan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Thanks , I appreciate your response. I am a very strong advocate for my kids as I know you all are. I am disabled due to medical mistakes and am a nurse on top of having two kids. My son was born with kidney problems and thankfully grew out of them but we spent the first two years of his life back and forth to his kidney doctor. Betsy has never had any medical problems but she does have some problems at achook, She is a very bright girl but has problems with writing and organizational skills so she is seen by occupational therapists and speech therapists at school(she just has had problems with her L's and Sh sounds which is fairly common). We certainly want to prevent the Lyme's from making school any more difficcult on her though. Our family doctors are great but they are not specialists and I want a specialist to at least look at Betsy and to tell us if she needs any further testing or treatments done. We have a great childrens hospital near us and I plan on going to their web site next to see get the number for a specialst. Betsy tends to get herself worked up when it comes to things like needles so we will be taking her for her blood work without her knowledge. No need to have her worry herself to death. On a good note, she has been on the antibiotics for a week now and has not complained of any joint aches nor has she had any fever. she was even able to go back to her Summer Music class and be in her concert even though she missed two weeks because of her fever. It does help having her dad as a music teacher and as one of the teachers of the Summer Music course. She would have been very upset if she had missed the concert though since she just started playing the french horn and this was her first official concert. I have chatted enough and will let you go. Thanks for all the help and support. Finette, thanks also for your post and I sent you an email about Chiari. I also have Chiari and had had surgery and am also a disabled Neurosurgical nurse so if you need to chat please feel free to email me. I have been on both sides of the hospital bed. I hope your consult goes well and your surgery is a complete success for you and Evan if surgery is needed. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Hi , My daughter was diagnosed with Lyme disease last month. She is now 3 months old. I took her to the pediatrician, who treated her right away but I was uncomfortable with this - especially given her very young age. I took her to a specialist and he agreed with the treatment plan, which was amoxicillin 3x a day for 18 days. I am under the impression that if it is caught early, it is 100% treatable. Hopefully this makes you feel better. I know that I am still worried myself, how can you not be when the health of your child is compromised? Anyway, hope this helps. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Caroline Hi good luck with the MXT. When I first started taking it it made me feel like I had the stomach flu every week it was horrible. A poster on one support group told me to try taking 50mg of Benadryl 30 min before the MXT. It worked wonderful the stomach problems went away. I had to actually count my pills to make sure I took them because it worked so well. If this does not work for you you should consider going on the injectable form I have been taking that now for about one year and I have no stomach issues. from SO. Jersey Dx's Psa 3/2006 Rx's Enbrel MXT folic acid tramadol vicodin and levoxyl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Caroline, welcome! Almost everyone has that flu-like feeling and/or severe fatigue with MTX. Mine lasted for 3 days at first. For many (maybe even most) people, this gets better or even goes away entirely over time. " S. Zorzi " <szorzi_1999@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hi Caroline, I'm pretty new to the group too. It's been a long while since I've been on MTX but I had similar experience. I used to take my dose on Friday and sleep most of Saturday. I had a lot of nausea and fatigue.. Talk to your Dr. about folic acid, as my physician had prescribe the over the counter folic acid, as he said it helps with the side-effects. I'm not sure it worked for me, as I continued to have side-effects. When my nausea continued to be bad, they switched me to injectible MTX to bi-pass my stomach. I'm glad it's working for you - enjoy your new found mobility! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 <<When I first started taking [MTX] it made me feel like I had the stomach flu every week it was horrible>> Taking Zantac the day of your MTX dose also works for many. " S. Zorzi " <szorzi_1999@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 I can't believe Dr.'s are still doing this giving shots that big every 2 weeks this is old and not any good. In the AACE Guildlines on page 11 it says to do shots every 7 to 10 days. I think Dr.'s are doing this to keep you coming in for the dam shot. Tell your Dr. you want to do your own shots and do them 100mgs every week. http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf Here is why this does not work doing a big shot 200mgs your body converts most of it into estradiol " E2 " so you now lose all the good the T shot was doing. You feel worse lose your libido get some bad ED and can't have sex. Your SHBG goes way up this binds up your testosterone so your body can't use it and your Free T levels fall very low. You get the shot and your levels go why up into the 1500 for about 5 to 7 days then they fall going way down so low you get symptoms of low T like you had before starting TRT. So this puts you on a roller coaster ride. Dr.'s let Diabetics do there own shots so just tell him your not coming in to his office every week to get a shot. Then order some small needles I use a 27g 1ml x 1/2 " lg. needle and shoot into my thigh. The oil comes out slow so I pull the plunger all the way down and just hold it takes about a min. or two to get my dose. When you shoot it also comes out slow and this is good you need to do the shot slow. Make your Dr. test your Estradiol " E2 " if it's high over 30 ask him for some Arimidex the pill comes in at 1 mg. we cut them up onto 1/4 and take .25mgs every 3 days if your real high get back to me I can tell you how to bring it down on a higher does with out you going down to low and this is just as bad as to high. Here give these links to your Dr. http://jcem.endojournals.org/cgi/content/full/89/3/1174 http://www.medibolics.com/ArimidexBoostsTestosterone.htm Go to Dr. 's web site and read TRT: A Recipe for success and his HCG update at www.allthingsmale.com He puts this out there free for us and our Dr.'s he is one of the best male hormone Dr.'s out there. Co-Moderator Phil > From: Boardwine <rboardwine@...> > Subject: New to group > > Date: Friday, October 10, 2008, 12:03 PM > I was given my first injection 5 weeks ago 200mg T cypionate > and for > two weeks all symptoms were corrected and had morning wood. > I crashed > for two weeks and experiences what I believe was E2 > rebound. > My Dr perscribed 200mg every two weeks for 3 months. I > injected Monday > of this week and am yet to feel any positive benefit. > I have confirmed with the pharmacy that the two > perscriptions were > identical. > > I do not access to any other labs to offer and hope that > someone can > offer 1. a way to increase the current effectiveness 2. a > concise way > that I as a layman can offer info to the Dr and Pharmacist > who is very > intereted in helping me. > > Thanks > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Hey Phil, you are right about the self injections. When I first started TRT I was self injecting Delatestryl under supervision and instruction. It worked for me until I developed cellulitis and was hospitalied for a week. I wanted to continue using but my doctor was cautious and put me on androderm. It burned my skin. I am still on Androgel but am willing to start self injection again. It wasnt bad after I learned how to do it. Even a guy that was once terrified of needles can do it. > From: Boardwine <rboardwine@dotfoods .com> > Subject: New to group > > Date: Friday, October 10, 2008, 12:03 PM > I was given my first injection 5 weeks ago 200mg T cypionate > and for > two weeks all symptoms were corrected and had morning wood. > I crashed > for two weeks and experiences what I believe was E2 > rebound. > My Dr perscribed 200mg every two weeks for 3 months. I > injected Monday > of this week and am yet to feel any positive benefit. > I have confirmed with the pharmacy that the two > perscriptions were > identical. > > I do not access to any other labs to offer and hope that > someone can > offer 1. a way to increase the current effectiveness 2. a > concise way > that I as a layman can offer info to the Dr and Pharmacist > who is very > intereted in helping me. > > Thanks > > > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Your right and for me the gels did not support my joints and muscles as time went on I ended up house bound in a lot of pain. We never thought it was the gel on Nolon told me he had a lot of pain on gels and when he went to shots he felt better even after the first one. And so did I and my levels were never up high enough one does not know this until they move there levels higher. When I switched to shots I got my life back. Co-Moderator Phil > > > From: Boardwine <rboardwine@dotfoods .com> > > Subject: New to group > > > > Date: Friday, October 10, 2008, 12:03 PM > > I was given my first injection 5 weeks ago 200mg T > cypionate > > and for > > two weeks all symptoms were corrected and had morning > wood. > > I crashed > > for two weeks and experiences what I believe was E2 > > rebound. > > My Dr perscribed 200mg every two weeks for 3 months. I > > injected Monday > > of this week and am yet to feel any positive benefit. > > I have confirmed with the pharmacy that the two > > perscriptions were > > identical. > > > > I do not access to any other labs to offer and hope > that > > someone can > > offer 1. a way to increase the current effectiveness > 2. a > > concise way > > that I as a layman can offer info to the Dr and > Pharmacist > > who is very > > intereted in helping me. > > > > Thanks > > > > > > > > > > > > ------------ --------- --------- ------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Thanks for the responses. Your support is great and I thank you for taking the time to throw a rookie a life line. I am self injecting since the initial shot and have 5 hypos left as well as 5 200mg vials for the next 2.5 months dosing. I called the Dr and staed that the effect was poor and that I was wondered if I should inject this Monday 200mg which would be one week ahead of next scheduled injection. His response was that tha would be too much and that the T needed to build up. My plan is this, next Monday I will inject 100mg and continue weekly 100mg injections. Stupid question... Can I reuse the hypos our should I approach the pharmacist about geting 5 more? Lastly, Phil I think you stated the type of T test I needed. What specific tests should I request from him when I see him at the end of the three month " trial " and should they be at a specific time of day? My Urologist had done two test of T months ago and denied me treatment because 2.2 2.5 on a scale of 2-35 was not medically necessary so insurance would not cover treatment. My GP agreed to the current treatment after I explained that the other test were at 8 AM which gave a high measure. His was at 4 PM and was 1.8. Thanks, you have given me hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 > I am self injecting since the initial shot and have 5 hypos left as > well as 5 200mg vials for the next 2.5 months dosing. Hi, vials? or ampules? an ampule is a single use container http://en.wikipedia.org/wiki/Ampoule but... you can draw up half a ml in 2 syringes (the whole amp) and store the unused 100mg. if you want an alibi for the pharmacist just say " my syringes got soaked and I don't think they're sterile anymore. can I buy another box? " to which he/she will say sure (they're not regulated most places) and sell you a box. next time you go in just ask for more... as in " could I get another box please. I'm clumsy and if I'm the least bit unsure about contaminating a needle I get a fresh one " when you get your prescription filled... I just buy them 50 at a time from www.getpinz.com... and I'm using multidose vials and want SHARP points to stick me so I get the extra needles... but if you get amps then there's really no need for that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 In SA, MCI provides 10 x 1ml insulin syringes per bottle of one's prescription. This makes dosing so very easy. One draws as much or as little as one needs for a strong hardon and store the bottle in the fridge. ids 2008/10/11 jbbooks1901 <jbbooks1901@...> > > > I am self injecting since the initial shot and have 5 hypos left as > > well as 5 200mg vials for the next 2.5 months dosing. > > Hi, > > vials? or ampules? an ampule is a single use container > http://en.wikipedia.org/wiki/Ampoule > > but... you can draw up half a ml in 2 syringes (the whole amp) and > store the unused 100mg. > > if you want an alibi for the pharmacist just say " my syringes got > soaked and I don't think they're sterile anymore. can I buy another > box? " to which he/she will say sure (they're not regulated most > places) and sell you a box. > > next time you go in just ask for more... as in " could I get another > box please. I'm clumsy and if I'm the least bit unsure about > contaminating a needle I get a fresh one " when you get your > prescription filled... > > I just buy them 50 at a time from www.getpinz.com... > > and I'm using multidose vials and want SHARP points to stick me so I > get the extra needles... but if you get amps then there's really no > need for that. > > > -- Ian Samson PC Specialist since DOS 2 -------------------------------- Ian Samson Sound Studio http://www.lp2cd.za.net/ lp2cd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 No you don't use needles over again this will give you a dam bad infection. The labs on TRT are as follows. FOLLOW-UP LABS Two weeks after initiating a transdermal, or five weeks after the first IM injection: FOLLOW-UP LABS Two weeks after initiating a transdermal, or five weeks after the first IM injection: • Total Testosterone • Bioavailable Testosterone • Free Testosterone (if Bioavailable T is still unavailable) • Estradiol (specify the Extraction Method, or “sensitive†assay for males) • DHT (especially if patient is using a transdermal delivery system) • FSH (3rd Generation—ultrasensitive assay this time) • CBC • Comprehensive Metabolic Panel • Lipid Profile • PSA (for more senior patients) • IGF-1 (if GH Therapy has been initiated already) Co-Moderator Phil > From: Boardwine <rboardwine@...> > Subject: Re: New to group > > Date: Friday, October 10, 2008, 6:23 PM > Thanks for the responses. Your support is great and I thank > you for > taking the time to throw a rookie a life line. > > I am self injecting since the initial shot and have 5 hypos > left as > well as 5 200mg vials for the next 2.5 months dosing. > > I called the Dr and staed that the effect was poor and that > I was > wondered if I should inject this Monday 200mg which would > be one week > ahead of next scheduled injection. His response was that > tha would be > too much and that the T needed to build up. > > My plan is this, next Monday I will inject 100mg and > continue weekly > 100mg injections. > > Stupid question... Can I reuse the hypos our should I > approach the > pharmacist about geting 5 more? > > Lastly, Phil I think you stated the type of T test I > needed. > What specific tests should I request from him when I see > him at the end > of the three month " trial " and should they be at > a specific time of day? > My Urologist had done two test of T months ago and denied > me treatment > because 2.2 2.5 on a scale of 2-35 was not medically > necessary so > insurance would not cover treatment. My GP agreed to the > current > treatment after I explained that the other test were at 8 > AM which gave > a high measure. His was at 4 PM and was 1.8. > > Thanks, you have given me hope > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Phil, I do not use needles repeatedly. I get 10 syringes and I use it once and discard. What do you think about my mixture: Alprostadil, Papaverine HCL, Atropine Sulph<something>, and Chlorprozamine HCL. ids 2008/10/11 philip georgian <pmgamer18@...> > No you don't use needles over again this will give you a dam bad > infection. The labs on TRT are as follows. > FOLLOW-UP LABS > > Two weeks after initiating a transdermal, or five weeks after the first IM > injection: > > FOLLOW-UP LABS > > Two weeks after initiating a transdermal, or five weeks after the first IM > injection: > > • Total Testosterone > • Bioavailable Testosterone > • Free Testosterone (if Bioavailable T is still unavailable) > • Estradiol (specify the Extraction Method, or " sensitive " assay for males) > • DHT (especially if patient is using a transdermal delivery system) > • FSH (3rd Generation—ultrasensitive assay this time) > • CBC > • Comprehensive Metabolic Panel > • Lipid Profile > • PSA (for more senior patients) > • IGF-1 (if GH Therapy has been initiated already) > > > Co-Moderator > Phil > > > > > From: Boardwine <rboardwine@...<rboardwine%40dotfoods.com> > > > > Subject: Re: New to group > > < %40> > > Date: Friday, October 10, 2008, 6:23 PM > > > Thanks for the responses. Your support is great and I thank > > you for > > taking the time to throw a rookie a life line. > > > > I am self injecting since the initial shot and have 5 hypos > > left as > > well as 5 200mg vials for the next 2.5 months dosing. > > > > I called the Dr and staed that the effect was poor and that > > I was > > wondered if I should inject this Monday 200mg which would > > be one week > > ahead of next scheduled injection. His response was that > > tha would be > > too much and that the T needed to build up. > > > > My plan is this, next Monday I will inject 100mg and > > continue weekly > > 100mg injections. > > > > Stupid question... Can I reuse the hypos our should I > > approach the > > pharmacist about geting 5 more? > > > > Lastly, Phil I think you stated the type of T test I > > needed. > > What specific tests should I request from him when I see > > him at the end > > of the three month " trial " and should they be at > > a specific time of day? > > My Urologist had done two test of T months ago and denied > > me treatment > > because 2.2 2.5 on a scale of 2-35 was not medically > > necessary so > > insurance would not cover treatment. My GP agreed to the > > current > > treatment after I explained that the other test were at 8 > > AM which gave > > a high measure. His was at 4 PM and was 1.8. > > > > Thanks, you have given me hope > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 I can't say never used them. Co-Moderator Phil > > > > > From: Boardwine > <rboardwine@...<rboardwine%40dotfoods.com> > > > > > > Subject: Re: New to group > > > > < %40> > > > Date: Friday, October 10, 2008, 6:23 PM > > > > > Thanks for the responses. Your support is great > and I thank > > > you for > > > taking the time to throw a rookie a life line. > > > > > > I am self injecting since the initial shot and > have 5 hypos > > > left as > > > well as 5 200mg vials for the next 2.5 months > dosing. > > > > > > I called the Dr and staed that the effect was > poor and that > > > I was > > > wondered if I should inject this Monday 200mg > which would > > > be one week > > > ahead of next scheduled injection. His response > was that > > > tha would be > > > too much and that the T needed to build up. > > > > > > My plan is this, next Monday I will inject 100mg > and > > > continue weekly > > > 100mg injections. > > > > > > Stupid question... Can I reuse the hypos our > should I > > > approach the > > > pharmacist about geting 5 more? > > > > > > Lastly, Phil I think you stated the type of T > test I > > > needed. > > > What specific tests should I request from him > when I see > > > him at the end > > > of the three month " trial " and should > they be at > > > a specific time of day? > > > My Urologist had done two test of T months ago > and denied > > > me treatment > > > because 2.2 2.5 on a scale of 2-35 was not > medically > > > necessary so > > > insurance would not cover treatment. My GP agreed > to the > > > current > > > treatment after I explained that the other test > were at 8 > > > AM which gave > > > a high measure. His was at 4 PM and was 1.8. > > > > > > Thanks, you have given me hope > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 There are a lot of things that one feels that sound like low testosterone but can be Thyroid or bad Adrenals. Here is a link to labs I tell men to get that feel the way you do. You need to cover all the bases to be sure it's not all of the above. I have lost count as to how many men have more the one thing wrong. You are in the right place here post your labs when they come in get a copy of the always get copys of labs. http://forums.realthyroidhelp.com/viewtopic.php?f=5 & t=7059 Co-Moderator Phil > From: O <drobryant@...> > Subject: New to group > > Date: Thursday, October 30, 2008, 2:36 PM > Hello everyone, > > > > I'm new here and never posted before. I haven't > been diagnosed with > Hypogonadism, BUT, I am testing for it pretty soon. My > doctor is order blood > work on the FSH and LH levels and I think others that I > cant remember as > well. I believe I might have hypo or something similar to > it because I've > been on the internet researching it deeply and the more I > research, the more > I discover that I have the symptoms. The ones that are > present are listed > below. I am 35 years of age which I forgot to mention > earlier. > > > > * Low sex drive > * Irritability/mood changes > * Facial hair/chest hair not growing properly > * Breast not developed like they should be for a guy > * Loss of muscles (never really had any to begin with) > * Depression > * Difficulty concentrating/confusion > * Hot flashes (feels like a small, short fever?) > * Fatigue > * Lack or assertiveness/aggressiveness (read that some > experience it > from lack of male hormone) > > > > > > When I went to my Primary doctor, he examined my testicle > area and he said > that my testicle (only have one due to removal in my > 20's) is small and > soft. So, he decided to do the blood work which I have to > get done and he > also wants to test me for diabetes (which runs on both > sides of my family). > He will also refer me to a urologist depending on how > results come back. > > > > I've been dealing with these symptoms for as long as I > remember, but I > never really gave it a second thought because I thought it > would be > something that I would grow out of eventually, but > obviously I didn't. I > never had a steady girl friend because of it and I went > through the torment > from family members and people questioning my sexuality > because the lack of > relationships. I even had kids calling me out because I was > 35 and didn't > have any children, it really got embarrassing. When I was > younger, around > pre-teens, early teens, I was not into girls like my peers > was and I felt > isolated. My parents noticed it too and said I would grow > out of it later > down the line, so I just let it go and waiting around for > years and as I got > older, nothing changed much. I just felt different from the > others and > wondering why I didn't have the same feelings and > desires like the others. I > even questioned myself if I was " gay " because of > it, but that couldn't be > because I didn't desire males either, so I was thinking > now what do I do? I > prayed about this recently and one day I just had the > desire to go out on > the internet and look up low sex drive and that's when > I start hitting all > this sites that dealt with low testosterone. I was thinking > to myself " Is > this what I am suffering from? " So I kept researching > it more and discovered > the some of the key symptoms of hypo and noticed that I had > more of them > than I didn't have so this sent a up red flag with me > and that is what > prompted me to bring this up to my doctor. So, hopefully I > will get some > answers soon so I can go on with my life because this is > really eating at me > and I feel I can't move forward until I do something > about this. Even though > I haven't been officially diagnosed with hypo I decided > to join the group > just to see what you guys are going through to see if this > is really a > possibility in addition to my symptoms I posted above. > Thanks for listening > and any advice or suggestions are appreciated. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Hello and welcome, Sounds like you've got a lot going on there, but I just wanted to let you know that when my testosterone hit 326 for serum total I began to have all the symptoms you describe and when it went down to 292 I thought I was losing my mind so I know how you feel. This is a great group and there are many knowledgeable people here. I'm sure you'll get the right advice and support. > > Hello everyone, > > > > I'm new here and never posted before. I haven't been diagnosed with > Hypogonadism, BUT, I am testing for it pretty soon. My doctor is order blood > work on the FSH and LH levels and I think others that I cant remember as > well. I believe I might have hypo or something similar to it because I've > been on the internet researching it deeply and the more I research, the more > I discover that I have the symptoms. The ones that are present are listed > below. I am 35 years of age which I forgot to mention earlier. > > > > * Low sex drive > * Irritability/mood changes > * Facial hair/chest hair not growing properly > * Breast not developed like they should be for a guy > * Loss of muscles (never really had any to begin with) > * Depression > * Difficulty concentrating/confusion > * Hot flashes (feels like a small, short fever?) > * Fatigue > * Lack or assertiveness/aggressiveness (read that some experience it > from lack of male hormone) > > > > > > When I went to my Primary doctor, he examined my testicle area and he said > that my testicle (only have one due to removal in my 20's) is small and > soft. So, he decided to do the blood work which I have to get done and he > also wants to test me for diabetes (which runs on both sides of my family). > He will also refer me to a urologist depending on how results come back. > > > > I've been dealing with these symptoms for as long as I remember, but I > never really gave it a second thought because I thought it would be > something that I would grow out of eventually, but obviously I didn't. I > never had a steady girl friend because of it and I went through the torment > from family members and people questioning my sexuality because the lack of > relationships. I even had kids calling me out because I was 35 and didn't > have any children, it really got embarrassing. When I was younger, around > pre-teens, early teens, I was not into girls like my peers was and I felt > isolated. My parents noticed it too and said I would grow out of it later > down the line, so I just let it go and waiting around for years and as I got > older, nothing changed much. I just felt different from the others and > wondering why I didn't have the same feelings and desires like the others. I > even questioned myself if I was " gay " because of it, but that couldn't be > because I didn't desire males either, so I was thinking now what do I do? I > prayed about this recently and one day I just had the desire to go out on > the internet and look up low sex drive and that's when I start hitting all > this sites that dealt with low testosterone. I was thinking to myself " Is > this what I am suffering from? " So I kept researching it more and discovered > the some of the key symptoms of hypo and noticed that I had more of them > than I didn't have so this sent a up red flag with me and that is what > prompted me to bring this up to my doctor. So, hopefully I will get some > answers soon so I can go on with my life because this is really eating at me > and I feel I can't move forward until I do something about this. Even though > I haven't been officially diagnosed with hypo I decided to join the group > just to see what you guys are going through to see if this is really a > possibility in addition to my symptoms I posted above. Thanks for listening > and any advice or suggestions are appreciated. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 > > Okay, I'm new, > > > I'll just say " Welcome! " . I'm not feeling too well today. So nothing more brilliant comes to mind. :-) Michele http://www.healthgazelle.org http://www.kidslikemine.org http://www.solanorail.org Quote Link to comment Share on other sites More sharing options...
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