New to Group

[Guest guest]

welcome to the group! I am new to the group & biomedical protocols myself. I

have learned a lot from this group so far & I can say from my exereince that you

have found a great resource! These guys & gals are an endless supply of support

& knowledge!

Welcome!

>

> Okay, I'm new, and wow this group seems BUSY and very in depth as I'm

> just browsing through the archives.

>

> What I'm dealing with is a dd with real language issues, learning

> delays, memory, etc. and now in her teens is dealing with depression.

>

> I'm trying to get into chelation but can't tell which route to go,

> this is better than that, etc...

>

> Looks like I'll soon get much info on this list.

>

> Thanks,

>

>

>

[Guest guest]

> What I'm dealing with is a dd with real language issues, learning

> delays, memory, etc. and now in her teens is dealing with depression.

For language, I wrote what my son needed here

http://www.danasview.net/issues.htm

For depression, B vitamins, fish oil, and yeast control were very

helpful here.

Dana

[Guest guest]

Hi

Sounds yours is a similar story to mine although I did have steady

girlfriend for 7 years (29 now) and broke down because of ED - desire

has always been there for me though. You say your weren't into girls -

are you saying you did not ever feel an urge for sex/masturbation? I

know that sounds personal but I wouldn't have thought you have never

had desire/libido.

I've done a fair bit of research already and went to my doctor and

surprise suprise I had total T of 300 ng/dL. I intend to find out

exact cause of my low T soon although I am sure I am primary due to

small testicles since puberty and normal LH and FSH readings (taken

recently).

I too have had my sexuality questioned by my mates after breaking up

with original girlfriend when I was 26/27 just because I've not been

out with someone since on regular basis. Then I ask why I have to

have this - being a straight young guy in his prime who loves women

with this hypogonadism is a complete nightmare and something non-

hypogonadal guys would not be able to relate to.

Your doing the right thing by getting Total T, LH, FSH etc tested as

first step then your next step is to find out the cause of your low T

like me by further tests. If you need anymore info on this let me know

Chris

>

> Hello everyone,

>

>

>

> I'm new here and never posted before. I haven't been diagnosed with

> Hypogonadism, BUT, I am testing for it pretty soon. My doctor is

order blood

> work on the FSH and LH levels and I think others that I cant

remember as

> well. I believe I might have hypo or something similar to it

because I've

> been on the internet researching it deeply and the more I research,

the more

> I discover that I have the symptoms. The ones that are present are

listed

> below. I am 35 years of age which I forgot to mention earlier.

>

>

>

> * Low sex drive

> * Irritability/mood changes

> * Facial hair/chest hair not growing properly

> * Breast not developed like they should be for a guy

> * Loss of muscles (never really had any to begin with)

> * Depression

> * Difficulty concentrating/confusion

> * Hot flashes (feels like a small, short fever?)

> * Fatigue

> * Lack or assertiveness/aggressiveness (read that some

experience it

> from lack of male hormone)

>

>

>

>

>

> When I went to my Primary doctor, he examined my testicle area and

he said

> that my testicle (only have one due to removal in my 20's) is small

and

> soft. So, he decided to do the blood work which I have to get done

and he

> also wants to test me for diabetes (which runs on both sides of my

family).

> He will also refer me to a urologist depending on how results come

back.

>

>

>

> I've been dealing with these symptoms for as long as I remember,

but I

> never really gave it a second thought because I thought it would be

> something that I would grow out of eventually, but obviously I

didn't. I

> never had a steady girl friend because of it and I went through the

torment

> from family members and people questioning my sexuality because the

lack of

> relationships. I even had kids calling me out because I was 35 and

didn't

> have any children, it really got embarrassing. When I was younger,

around

> pre-teens, early teens, I was not into girls like my peers was and

I felt

> isolated. My parents noticed it too and said I would grow out of it

later

> down the line, so I just let it go and waiting around for years and

as I got

> older, nothing changed much. I just felt different from the others

and

> wondering why I didn't have the same feelings and desires like the

others. I

> even questioned myself if I was " gay " because of it, but that

couldn't be

> because I didn't desire males either, so I was thinking now what do

I do? I

> prayed about this recently and one day I just had the desire to go

out on

> the internet and look up low sex drive and that's when I start

hitting all

> this sites that dealt with low testosterone. I was thinking to

myself " Is

> this what I am suffering from? " So I kept researching it more and

discovered

> the some of the key symptoms of hypo and noticed that I had more of

them

> than I didn't have so this sent a up red flag with me and that is

what

> prompted me to bring this up to my doctor. So, hopefully I will

get some

> answers soon so I can go on with my life because this is really

eating at me

> and I feel I can't move forward until I do something about this.

Even though

> I haven't been officially diagnosed with hypo I decided to join the

group

> just to see what you guys are going through to see if this is

really a

> possibility in addition to my symptoms I posted above. Thanks for

listening

> and any advice or suggestions are appreciated.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi! Your T level count is too damn low, explains all your symptoms.

When the rest of your tests get back, get the appointment with the

urologist as soon as possible, convince him/her to immediately give you

a shot to jump start, and then check with your health insurance company

to see if they will cover with your copay either injectable

testosterone or a skin spread on. Skin spread ons, simply put and from

the esperience of many on this forum, don't work as well, and have to

applied every day, and are VERY expensive, especially the name brands

like Androgel. I have been self injecting, something you MUST learn to

do right away as going in for shots is a real inconvenience. Most guys

here self inject in their thigh, really does not hurt at all, either

every two weeks, NO LONGER than that, or even once a week.

This is by far the cheapest way to go. If you want to try the daily

skin spreads, the cheapest way to go is to get a good compounding

pharmacy to whip you up a jar of, I use 10% testosterone, GEL, I get it

from Hyland Pharmacy in Albuquerque, and they will mail it out.

Any questions this is a GREAT group, let us know what happens.

I think you will feel a whole lot better when your T level comes up.

norton

[Guest guest]

Hi Danny and Welcome,

We have some men here with Klinefelter's I am sure you all will have a lot to

talk about.

Co-Moderator

Phil

> From: Danny <tridant7@...>

> Subject: new to group

>

> Date: Tuesday, November 18, 2008, 8:17 AM

> Hello, I am new here...and just learned that I may have

> Klinefelter's.

> Will be seeing doctor this week. I have had some problems

> over the

> years and had no idea that it could have been

> Klinefelter's.

> I look forward to meeting and talking about this with

> others in hopes

> that I can come to grips with this.

>

>

> ------------------------------------

>

>

[Guest guest]

A lot of people here are on it. I take it myself. I have not found the side

effects to be too bad. Usually I feel a little stomach upset later in the

day that I take it and that has been about all. It's important to take folic

acid when you are on it to avoid problems caused by the methotrexate

depleting it.

Gareeth

Heritage Info wrote:

> Hello all,

>

> I have recently been diagnosed with psoriatic arthritis and I am about

> to start on a treatment plan of methotrexate. Has anyone had any

> experience with this course of treatment? I'm a little nervous about

> the side effects.

>

[Guest guest]

Hi Gail,

I am on methotrexate since last March. It's helped put me back on my feet, I

was nervous when I first started too, but it has worked well for me. Hope this

helps.

Jolene

-------Original Message-------

From: Heritage Info

I have recently been diagnosed with psoriatic arthritis and I am about

to start on a treatment plan of methotrexate.

[Guest guest]

Hi Gail,

I took methotrexate for about 6 years and then it became toxic. It

bothered my kidneys and made me feel terrible.

When I first started it was great then I got to a level where I had to

give myself a needle once a week.

Since I've had to stop taking it my psoriasis is much worse along with

the pain and swelling.

I wish you luck because it really does help.

SD

[Guest guest]

Hi, welcome to this group.

1) have you done the hair test to see what kind of heavy metal he has in his

body?

2) A gluten free casein free diet would be very important for ASD kids, go

on this diet if you haven't already done so.

3) consider doing the Andy Culter detoxifcation protocol. Check out under

the file section for this protocol.

hope this helps

Priscilla

On Mon, Jan 12, 2009 at 5:08 AM, bernadetteguillen <

bernadetteguillen@...> wrote:

> Hi! I'm new to the group. I have an 8 year old with autism and a 9

> year old NT son. My son with autism has many issues: non-verbal,leaky

> gut,allergies, seizures, development delay, murcury and not potty

> trained w/#2 to name a few. But other than that, he is great!! I hope

> to learn alot from this group.

>

>

>

--

Priscilla

[Guest guest]

Hi! Welcome to the group. You're in the right place. Does your son have ANY

mercury amalgam dental fillings? Did he have reactions to vaccines?

S S

New to group

Posted by: " bernadetteguillen " bernadetteguillen@... bernadetteguillen

Sun Jan 11, 2009 1:08 pm (PST)

Hi! I'm new to the group. I have an 8 year old with autism and a 9

year old NT son. My son with autism has many issues: non-verbal,leaky

gut,allergies, seizures, development delay, murcury and not potty

trained w/#2 to name a few. But other than that, he is great!! I hope

to learn alot from this group.

------------------------------------------------------------

Air Duct Cleaning

How clean is the air in your home? Click now for quality air duct cleaning!

http://tagline.excite.com/fc/BK72PcZao4l55N8NIYtUAtAqjbIU0U4yBDmXHARmSf9lbH4VUVq\

F1W/

[Guest guest]

He does not have any fillings but he definitelly had reactions to vaccines.  He

changed right from the beginning after his hep b shot, only then I did not

realize that was what it was.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: New to group

autism treatment

Date: Sunday, January 11, 2009, 9:21 PM

Hi! Welcome to the group. You're in the right place. Does your son have ANY

mercury amalgam dental fillings? Did he have reactions to vaccines?

S S

New to group

Posted by: " bernadetteguillen " bernadetteguillen bernadetteguillen

Sun Jan 11, 2009 1:08 pm (PST)

Hi! I'm new to the group. I have an 8 year old with autism and a 9

year old NT son. My son with autism has many issues: non-verbal,leaky

gut,allergies, seizures, development delay, murcury and not potty

trained w/#2 to name a few. But other than that, he is great!! I hope

to learn alot from this group.

------------ --------- --------- --------- --------- --------- -

Air Duct Cleaning

How clean is the air in your home? Click now for quality air duct cleaning!

http://tagline. excite.com/ fc/BK72PcZao4l55 N8NIYtUAtAqjbIU0 U4yBDmXHARmSf9lb

H4VUVqF1W/

[Guest guest]

Yes, we've done the hair test.  He has mercury, and alluminum.  We were on the

GF/CF diet for several years. Now we take enzymes and can tolerate most foods. 

I'll check out Andy Cutlers protocol.  Thanks! 

 

> Hi! I'm new to the group. I have an 8 year old with autism and a 9

> year old NT son. My son with autism has many issues: non-verbal,leaky

> gut,allergies, seizures, development delay, murcury and not potty

> trained w/#2 to name a few. But other than that, he is great!! I hope

> to learn alot from this group.

>

>

>

--

Priscilla

[Guest guest]

welcome~ this is the place to be. Read the files and absorb as much as

you can. There is a lot of information for treating the gut,

antivirals, chelation, brain support etc, etc.

Don't be afraid to ask questions.

>

> From: Shepard Salzer <_Shepard@...>

> Subject: [ ] Re: New to group

> autism treatment

> Date: Sunday, January 11, 2009, 9:21 PM

>

>

>

>

>

>

> Hi! Welcome to the group. You're in the right place. Does your son

have ANY mercury amalgam dental fillings? Did he have reactions to

vaccines?

> S S

>

> New to group

> Posted by: " bernadetteguillen " bernadetteguillen

bernadetteguillen

> Sun Jan 11, 2009 1:08 pm (PST)

> Hi! I'm new to the group. I have an 8 year old with autism and a 9

> year old NT son. My son with autism has many issues: non-verbal,leaky

> gut,allergies, seizures, development delay, murcury and not potty

> trained w/#2 to name a few. But other than that, he is great!! I hope

> to learn alot from this group.

>

> ------------ --------- --------- --------- --------- --------- -

> Air Duct Cleaning

> How clean is the air in your home? Click now for quality air duct

cleaning!

> http://tagline. excite.com/ fc/BK72PcZao4l55 N8NIYtUAtAqjbIU0

U4yBDmXHARmSf9lb H4VUVqF1W/

>

>

[Guest guest]

Hi Gail,

I am new to the group as well. I just received a prescription for

methotrexate today. I'm supposed to start on Thursday. I decided to

have a glass of wine and enjoy it today because I understand we can't

drink once we start this medication. I am new to discussion groups

but I'm trying to muddle through this. I'll let you know how it goes

for me when I find out.

Best,

Sandy

[Guest guest]

Hi if you need any help I'm here someone got me through my first dose cause I

was so nervous.

Jolene

-------Original Message-------

I am new to the group as well. I just received a prescription for

methotrexate today. I'm supposed to start on Thursday . . . Sandy

[Guest guest]

Hi,

Is there really anything to be so nervous about?

I can really dwell on " side effects " .

Sometimes I think I drive myself crazy with it.

I have been taking folic acid for 7 days and on Friday night I start the

MTX.

I really hope this works.

Gail

[Guest guest]

Gail,

Better to have methotrexate to take than nothing at all. I took that

particular med for almost 12 years...it had some interesting side

effects for me but at a time when there were no biologics, it did the

trick.

Be positive and strong...at times easier said than done but

anything you put your mind to can be achieved!

Good Luck

and

many blessings!!!

kathy--- In , " Gail Goodson "

[Guest guest]

Hi!

I have a son with severe ADHD and sensory issues. Had a severe reaction to Hep

B at 3 weeks. I refused all further vaccines. There was a lot of press this

week about a recent study revealing that mercury was found in food containing

high fructose corn syrup and that they are still using plants to manufacture

HFCS that use mercury in the process. Google " high fructose corn syrup and

mercury " , it was on FOX news, Washington Post etc.

I am working with diet and just tossed everything in the house that contained

HFCS also. I am wondering if anyone has had problems with a bad itchy rash on

childs bottom - my son has one that has now spread to his lower back and legs.

He was on antiabiotics for strep 2 weeks ago not sure if that started it.

I am working now to locate a DAN doctor so I can have him tested as his

pediatrician will not even listen when I inquire about metals causing his ADHD

and other symptoms and would like to look into chelation.

Thank you!

____________________________________________________________

Find the writing help you need for any essay topic. Click now!

http://thirdpartyoffers.juno.com/TGL2131/fc/PnY6rbtuyaYa6kqouBlAfcEjuVmVVAubqu8g\

KPrn4e2qbs2zuLDgR/

[Guest guest]

Welcome to the group! You're in the right place. Comments interspersed.

S S

Re: New to group

Posted by: " joshuasmother@... " joshuasmother@... momtooneboy2003

Sat Jan 31, 2009 7:01 am (PST)

Hi!

I have a son with severe ADHD and sensory issues. Had a severe reaction to Hep B

at 3 weeks. I refused all further vaccines.

*Sorry to hear about your son, glad you're refusing additional vaccines.

There was a lot of press this week about a recent study revealing that mercury

was found in food containing high fructose corn syrup and that they are still

using plants to manufacture HFCS that use mercury in the process. Google " high

fructose corn syrup and mercury " , it was on FOX news, Washington Post etc.

*It has also been discussed here on this list. HFCS is bad for folks even

without the mercury in it.

I am working with diet and just tossed everything in the house that contained

HFCS also. I am wondering if anyone has had problems with a bad itchy rash on

childs bottom - my son has one that has now spread to his lower back and legs.

He was on antiabiotics for strep 2 weeks ago not sure if that started it.

*Have you given him probiotics since then. They help replace the " good "

bacteria.

I am working now to locate a DAN doctor so I can have him tested as his

pediatrician will not even listen when I inquire about metals causing his ADHD

and other symptoms and would like to look into chelation.

*You can order the DDI (Doctor's Data, Inc.) hair elements test without a doc

through DLS (Direct Lab Services). If you mention this list they'll give you a

discount. If you post results here we'll help interpret. Please note that many

DAN docs use unsafe chelation protocols.

Thank you!

------------------------------------------------------------

Wireless Network

Get everything you need to hook up your own wireless network by clicking now!

http://tagline.excite.com/fc/BK72PcZbN1i6wlakht9oJV9F8yES0Xn6313fwDQWFvM34GLgolI\

sve/

[Guest guest]

>>I am wondering if anyone has had problems with a bad itchy rash on

childs bottom - my son has one that has now spread to his lower back

and legs.

This meant a few things here, including yeast overgrowth and herpes

die off.

>>He was on antiabiotics for strep 2 weeks ago not sure if that

started it.

Consider yeast overgrowth first.

Dana

[Guest guest]

>

> Hi

>

> Sounds yours is a similar story to mine although I did have steady

> girlfriend for 7 years (29 now) and broke down because of ED -

desire

> has always been there for me though. You say your weren't into

girls -

> are you saying you did not ever feel an urge for

sex/masturbation? I

> know that sounds personal but I wouldn't have thought you have

never

> had desire/libido.

>

> I've done a fair bit of research already and went to my doctor and

> surprise suprise I had total T of 300 ng/dL. I intend to find out

> exact cause of my low T soon although I am sure I am primary due

to

> small testicles since puberty and normal LH and FSH readings

(taken

> recently).

>

> I too have had my sexuality questioned by my mates after breaking

up

> with original girlfriend when I was 26/27 just because I've not

been

> out with someone since on regular basis. Then I ask why I have to

> have this - being a straight young guy in his prime who loves

women

> with this hypogonadism is a complete nightmare and something non-

> hypogonadal guys would not be able to relate to.

>

> Your doing the right thing by getting Total T, LH, FSH etc tested

as

> first step then your next step is to find out the cause of your

low T

> like me by further tests. If you need anymore info on this let me

know

>

> Chris

>

A total T of 300ng/dl is perfectly normal for someone of a pubertal

age. You should of developed normally from everything I've read.

anything under 350ng/dl is a cause for concern for post puberty.

Did your doctor say otherwise?

[Guest guest]

On Tue, 10 Feb 2009 01:03:15 -0000, you wrote:

>A total T of 300ng/dl is perfectly normal for someone of a pubertal

>age. You should of developed normally from everything I've read.

>anything under 350ng/dl is a cause for concern for post puberty.

>

>Did your doctor say otherwise?

That's actually in the bottom five percent:

Measurements converted to ng/dl

Age Number of Subjects

Mean Standard

Deviation

Median 5th

Percentile10th Percentile

95th Percentile

< 25 125 692 158 697 408 468 956

25-29 354 669 206 637 388 438 1005

30-34 330 621 194 597 348 388 975

35-39 212 597 189 567 329 388 945

40-44 148 597 198 597 319 378 936

[Guest guest]

300 ng/dL is too low as a consistent reading during puberty, though it

might be an initial reading toward the beginning of one of the Tanner

stages. It depends on which reference range is in view. I doubt any

man who experiences substantial masculinization remains at that level-

he'd probably finish around 600 ng/dL at least (somewhat below the

average for 18-45 year olds).

Arup Reference Range for Tanner Stages IV & V (near complete sexual

maturation; ranges indicated on my lab results)

Tanner Stage IV: 165 - 854 ng/dL

Tanner Stage V: 194 - 783 ng/dL

http://www.medicine.uiowa.edu/Path_Handbook/handbook/test2266.html

This site indicates testosterone (free & total) by age for both males

& females. Under Tanner Stage V, it lists 94-783 ng/dL total

testosterone instead of 194-783 ng/dL; I'm not sure if the site or my

lab results made the typo.

Checking on Clinicaltrials.gov , some testosterone deficiency studies

indicate 400 ng/dL as the threshold. It seems that the more recent

studies indicate 400 ng/dL as a better cut off point. This follows

the trend of using a higher cut off point, as a year or two ago,

andrologists were suggesting 350 rather than 300 as a cut off point.

(Note that reference ranges sometimes include those who are sick but

haven't articulated symptoms, & are generally based on who gets

tested, not some well-constructed " ideal health " standard.) Men can

have 300 ng/dL (or less) total T & not perceive symptoms, whereas men

can have over 300 ng/dL & have almost all of the symptoms of

hypogonadism. If a) medicine was not so prejudiced by the Anabolic

Steroid Control Act & testosterone's status as a Controlled Substance

& testosterone was prescribed as liberally to men as estrogen is

prescribed to women, we wouldn't need these arbitrary numbers to limit

who gets it & who doesn't & could allow the presence of symptoms to

justify prescription.

Pardon my political rant. Don't settle for average or normal- only

accept what makes you feel better.

~Xian

> >

> > Hi

> >

> > Sounds yours is a similar story to mine although I did have steady

> > girlfriend for 7 years (29 now) and broke down because of ED -

> desire

> > has always been there for me though. You say your weren't into

> girls -

> > are you saying you did not ever feel an urge for

> sex/masturbation? I

> > know that sounds personal but I wouldn't have thought you have

> never

> > had desire/libido.

> >

> > I've done a fair bit of research already and went to my doctor and

> > surprise suprise I had total T of 300 ng/dL. I intend to find out

> > exact cause of my low T soon although I am sure I am primary due

> to

> > small testicles since puberty and normal LH and FSH readings

> (taken

> > recently).

> >

> > I too have had my sexuality questioned by my mates after breaking

> up

> > with original girlfriend when I was 26/27 just because I've not

> been

> > out with someone since on regular basis. Then I ask why I have to

> > have this - being a straight young guy in his prime who loves

> women

> > with this hypogonadism is a complete nightmare and something non-

> > hypogonadal guys would not be able to relate to.

> >

> > Your doing the right thing by getting Total T, LH, FSH etc tested

> as

> > first step then your next step is to find out the cause of your

> low T

> > like me by further tests. If you need anymore info on this let me

> know

> >

> > Chris

> >

>

> A total T of 300ng/dl is perfectly normal for someone of a pubertal

> age. You should of developed normally from everything I've read.

> anything under 350ng/dl is a cause for concern for post puberty.

>

> Did your doctor say otherwise?

>

[Guest guest]

Welcome, Randy. You speak for many, if not most, of us. We do know

how your feel. It's nice to have others who understand and can lift

you up when you're down. best regards, sherry z

[Guest guest]

Hi Randy,

I had my first bout of inflammatory (reactive) arthritis that I got as a

result of a seemingly never-ending strep infection I contracted as a

young man (age 20). I had been working nights in a machine shop while

attending the University of Akron part-time during mostly sleepless

days. The step infection would not go away and opened doorways to other

disease, like mononucleosis. Before working nights for a year, I had

always been extremely healthy and strong. I was on varsity sports teams

for the whole 4 years I attended high school. I set school and county

records in the hurdles and the pole vault. I missed but 12 days of

school for the entire 13 years that I attended K-12.

It seems that strep infections and a number of other infections such as

chlamydia are precursors to psoriatic arthritis.

http://www.arthritis.org/can-germs-prevent-arthritis-ra2.php

Here is a link to others' stories of psoriasis and psoriatic arthritis

that was published in the New York Times:

http://well.blogs.nytimes.com/2009/01/15/the-voices-of-psoriasis/?apage=\

3

Following is a link to

http://butyoudontlooksick.com/

when in there follow the

link to spoon theory. It has proven helpful for some people who don't

get how disabling inflammatory diseases/chronic pain can be for a

person.

http://butyoudontlooksick.com/the_spoon_theory/

I am always pleased to hear that something like Enbrel can bring relief

to most people - people like you, Randy. I'm now 53 and am on

Prednisone only; I can't take the TNF blockers: they have caused

neuropathy for me and I am under investigation for MS that may have

been unmasked due to using Enbrel. It was a gamble when I started

shooting those proteins into my system, and I seem to be one of the few

who have a negative outcome. My first couple of months on Enbrel were

fantastic! I had forgotten what a pain-free body felt like. Though I am

losing my memory and other cognitive/neurological abilities, I have no

anger because I was counseled to inject it. Celebrex messes now with my

heart and blood pressure so badly that I only take it on the extremely rare

circumstances where I feel I must get through a day, like having tp

travel to my Rheumatologist by car 2.5 hours away from my current home

in the very rural coastal mountains of British Columbia.

Take care, Brent